Child Epilepsy - Useful Sites

[Kamie]

I would like to compile a list of useful sites for child neurology.

So hit me with your useful sites. :)

[GinaMarie]

http://www.nlm.nih.gov/ - National Library of Medicine

http://www.locateadoc.com/ - Locate a doctor . com

http://www.rollxvans.com/

http://www.miracleflights.org/

http://www.chirogeek.com/index.htm

http://www.dontlaugh.org/curricula/

http://wwww.ispokewithmychild.com/grief-loss.htm

http://translation.langenberg.com/

http://www.sandiegozoo.org/videos/index.html

[langansmom]

www.kidsepilepsy.com

Great site with info from parents about seizures and medicines/other therapies. You can search by treatment, child, type of epilepsy, etc. Parents give opinions on how different meds worked/side effects/etc.

[WonderBoy]

Dystonia and Movement Disorders:
wemove.org (http://www.wemove.org/)
KidsMove at wemove.org (http://www.wemove.org/pediatric/)
wemove.org Parent to Parent Discussion Forum (http://www.wemove.org/ubb/ultimatebb.php?/forum/5.html)

Dystonia Medical Research Foundation (http://www.dystonia-foundation.org/)

Epilepsy support for parents:
Epilepsy Foundation's Parents Helping Parents ecommunity (http://www.epilepsyfoundation.org/efforums/forum/categories.cfm?catid=2)

IDEA/IEP
Wrightslaw (http://www.wrightslaw.com/)

Augmentative Communication
Quality Indicators for Assistive Technology (http://www.qiat.org/)

[moose53]

I've been collecting bookmarks for ages:
http://public.murl.com/moose53/HEALTH_AND_MEDICAL

The 'Health and Medical' folder has many-many sub-folders.

Barb

PS1: If you create an http://www.murl.com bookmark file like I did, it's available to everyone.
PS2: If you want me to extract my links into an HTML file on the internet so that you can incorporate them into your own set of links, just send me an IM; otherwise, you're welcome to use them as they are.

[Tracy Sheppard]

www.iahp.org

Institutes for the Achievement of Human Potential

[Nathan&GilliansMommy]

www.parent-2-parent.com (www.parent-2-parent.com)
A great support group/board for tube feeding issues and reflux. There's also a forum for Special Needs Kiddos and Adaptive Equipment.

[Val/UK]

A complementary therapy being used for many different neurological disorders and for many different ages from toddlers to adults is: G-Therapy.
G-Therapy has also recently been written about in The Times of India.
http://www.timeswellness.com/fullStory.asp?articleID=TW10ART9102006
http://www.g-therapy.org I suggest you click Responses on this link for views from doctors.
Val (UK)
My daughter has cerebral palsy spastic quadriplegia and G-Therapy has been the only therapy after trying many that began to change her in her teens.
http://www.g-therapy.org/cslaura.htm

[firemonkey]

http://www.doaj.org/