Today I..... [Archive] - Page 2 - NeuroTalk Communities

dabbo

12-05-2006, 02:07 PM

redjpwranglergirl

12-06-2006, 12:39 AM

Redjeep - I suppose this would technically be "Last week I....." but I started seeing (yet another) new neurologist last week at a HUGE group in town. Its the kind of place where you may not feel like there is alot of personal attention, but if they order an EMG, Nerve Conductivity Test, 3 X-rays, and 2 MRI's, they can probably do it that day, in the same building (what do you think they ordered for me....?). BUT!! I was greeted by a 2.5 foot by 3 foot sign stating that "AS OF DEC 31, 2006, WE WILL NO LONGER BE ACCEPTING BLUE CROSS/BLUE SHIELD INSURANCE." (gee, guess who I have) I think they were quibbling about pre-approval for tests, etc. regardless, i now have ~26 days left until i can no longer see this particular doctor. Unless someone gives in or something.

I can sympathize- I not only lost my great neurologist but also my GREAT PM dr.- he left my insurance plan by choice, because of their low reimbursement rates....He and the other PM dr. I've seen since told me that ALOT of PM drs. are leaving our plan for that very reason....very discouraging....So, I haven't really had a PM dr. for over 2 yrs. I saw a new one last Dec. He's located in a major medical center where people from all over the world come for medical care, and his office was full of people who LOVED him and said he'd given them their lives back because they'd been in so much pain (I can identify with this feeling) and he probably was a very good dr. but his office is full of people who'd had car wrecks or major injuries,etc. and there I was looking "normal":D - like nothing was wrong with me, so I think sometimes whether drs. mean to or not, they tend to not take you as seriously, since you "look OK", as they do the people with the obvious injuries. He really didn't offer me much help and I don't think he took me that seriously. So, the neurologist I see now fills the same prescriptions my old PM dr. had me on which helps for the most part.

DDayMBB

12-06-2006, 08:01 AM

Guter Tag Frau Barb, hoffe ich Ihren Winter, dass Tage Sie zu schlecht nicht belästigen! Sie haben wirklich hier ausführlich nicht aufgestellt, um wie Sie machen, oder haben nur aufgehalten, durch hallo zu sagen... Ich hoffe wahrheitsgemäß, dass alle gehen gut und Verhör von Ihnen bis erwarten wird, als, hoffe ich, dass Sie frei von Schmerz! sind!!

~G~ I am sorry that you have to go back pages to pick up whats going on with this thread... myself, I view it daily and when I feel up to typing I do so! Can not wait for surgery, I really think this will do wonders for me and think going into it with a positive attitude helps! I am having both sides done days apart, guess he is planning on doing the left side(the most problematic as he will probably do rib resction on the first rib as well as scalene and pectoral minor... than on the right, limited to scalene and pectoral minor, unless when he gets in there and finds he has to do more. The biggest thing I have to do in preperation is to give up smoking for at least one month prior... can see flying home with a chest tube to be yanked out by my doctor here... my Doc(Dr Togut) has been in touch with Dr Sanders and agreed to do follow up ex; removing stitches etc!

Red... isnt that typical that the insurance company will cut you off or OK procedures after the fact... thank Bill and Hillary for that one when he started off on his ins. reform, he opened a bad can of denials and never followed through... The whole idea went out the window when Hillarys father was in need of care and they had him on lief support till they finally said enough was enough as he was dead, but kept alive by machines... how I know this part about her dad he lived about 15 miles from me and I knew a few people at the hospital .... my everything was going their way until he took ill!!! Oh well now the ins. companies now basically call the shots and the patients and their families have no say so!

Dabbo, I hope you are at least able to get everything done by the 26th... sorry to say but sounds like the best you can do and if you get your Dr to pull some strings to make sure all is done prior!!!!

Red in addition, I love it when people say "BUT YOU LOOK FINE< AS THE PAIN IS GOING RIGHT OFF THE 1-10 SCALE>" amazingly enough when you keep doing meds to function all is OK I know I have an addiction thing going on bien that I have been on OXY and Percocets for over a year now and sure know it when I miss a dose~

UNTO ALL, GOOBER AND MYSELF DO WISH/HOPE THAT EVERYONE IS DOING FINE TODAY!!!! MY THOUGHT GO OUT TO ALL <MARK-n-GOOBER>

dawn3063

12-06-2006, 10:50 AM

Want to say "Good Morning" to all.. And to let everyone know that I am going to have my post surgical TOS side cleaned up the end of January.. I have some adhesions that chose to set up residence and are not being too friendly with those old nerves of mine.. So off to the OR I go..
I hope everyone has a low pain day and a warm one for those in the cold part of the country..
((Hugs))
Dawn ;)

Edelweiss

12-07-2006, 02:27 AM

wish you all a "Good morning" - I hope it is one for you!

Herr Mark, you are right, I didn`t write a lot besides "hello" in the thread - but I cannot tell you something interesting only: my arms hurt and the region under the clavicula hurts, my scapula hurts,.....

I don`t know if I told you that I had a fall on the 18th of september and my body was so intelligent to protect my right arm/shoulder so I mainly fell on the knees and the left arm. But the right knee is still swollen and sometimes it hurts. Finally, we did a MRI and it shows that there is a partiell ruptur in the tendon.
This is not a big thing and with the time this will regenerate but I don`t move so much as I should (I don`t go out for hiking or walking, I don`t use my home bike,...) and the TOS troubles are getting worse because of this inactivity. My blood circulation is lower and therefore the muscles are more tight.
So I hope that the knee will be better soon!!!!

I am sorry to read that some of you cannot choose the doctor they want because of the insurance company!!!! This is so sad!

And at least a weather information:
we still have low temperatures and are missing the snow. The ski season should start this weekend but this will not be possible.

I wish you a good and happy day,
Barbara

DDayMBB

12-08-2006, 02:17 PM

Dawn, I hope the surgery will help you out! Seems as though we are all looking for answers for each of our cause, I know somewhere there must be light at the end of the rainbow;) I am hoping to get my surgery done end of Jan or start of Feb and hoping that I could get both sides done in the same stay! The Drs office sid may have to go to a motel several days in between. Sorry got OT about myself:confused: so now back to you hope this works and you never have to deal with the pain again:)

Frau Barb... well guess ones body does try and protect itself. Yes writing does hurt, though at times have to say it is the only contact to the world... at times I enjoy the challenge you provide to me writing in "Deutsch" as I sometimes try and send off statements to your native speach, Unilt later Guten Tag :)

Hope all are staying warm, my pinky, ring and middle fingers on my left hand are swollen, discolored and on fire and the right same fingers are swollen and color is just mottled all from the cold, heck during the summer I used to wear gloves in the frozen foods thaks to CRPS... and still think of some of the strange looks I would get! Though it is still only in the 20's(F) 7 (C) here when it gets cold do not know what i am going to do.....UUUUMMMpppphhh

Goober and I send our light hugs and best of health to all !!!!!

DDayMBB

12-08-2006, 03:14 PM

To: YOU
Date: TODAY
From: GOD
Subject: YOURSELF
Reference: LIFE

This is God. Today I will be handling All of your problems for you. I do Not need your help. So, have a nice day.
I love you.
P.S.
And, remember... If life happens to deliver a situation to you that you cannot handle, do Not attempt to resolve it yourself !! Kindly put it in the SFGTD (something for God to do) box. I will get to it in MY TIME. All situations will be resolved, but in My time, not yours.

Once the matter is placed into the box, do not hold onto it by worrying about it. Instead, focus on all the wonderful things that are present in your life now.

If you find yourself stuck in traffic, don't despair. There are people in this world for whom driving is an unheard of privilege.

Should you have a bad day at work; Think of the man who has been out of work for years.

Should you despair over a relationship gone bad; Think of the person who has never known what it's like to love and be loved in return.

Should you grieve the passing of another weekend; Think of the woman in dire straits, working twelve hours a day, seven days a week to feed her children.

Should your car break down, leaving you miles away from assistance; Think of the paraplegic who would love the opportunity to take that walk.

Should you notice a new gray hair in the mirror; Think of the cancer patient in chemo who wishes she had hair to examine.

Should you find yourself at a loss and pondering what is life all about, asking what is my purpose? Be thankful. There are those who didn't live long enough to get the opportunity.

Should you find yourself the victim of other people's bitterness, ignorance, smallness or insecurities; Remember, things could be worse. You could be one of them!

Should you decide to send this to a friend; Thank you, you may have touched their life in ways you will never know!
Now, you have a nice day,
God

DDayMBB

12-08-2006, 04:06 PM

Today I am going to forget about the pain and nasties and think I will hang "around the Holiday Chat" thread... just what I need is more weight put on:confused:

johannakat

12-08-2006, 04:06 PM

Finally got my copy of Dragon NaturallySpeaking at work. It got lost at the computer software depot for 3 weeks, but I bugged them all this last week till they found it. : )

Of course, I can't use it to type here because everyone around me would know i wasn't working...!

good day to all....be happy : )

Johanna

DDayMBB

12-08-2006, 04:13 PM

DiMarie

12-09-2006, 09:50 AM

A quick stop in, I drop by to read, and have been long in dropping a hello.
I wish all well, Dawn, I am rooting for a swift recovery and great results.
Hope everyone is doing OK, and have some weekend plans even if it is a recliner and old movies!

Work has been so busy, parents htat want to see their kids for the holidays, most cases they have not seen the kids in 1-3 years. One man just got out of prison and is seeing his baby daughter for the first time!
Hugs
Di

DDayMBB

12-09-2006, 01:16 PM

TODAY I......
......was wondering where you have been the past couple of months;) it has been to no avail calling you, even at different times...regardless of which always nice hearing from you!!!!

...... I tell all that as of tomorrow morn, none of us will have any money woes as I will share my winnings:cool: we just had a casiono open up around here last month and planning on going up there with a bunch of rolls of pennies and feeling lucky... plan on walking out of there with a ten or 2:D

Goober told me he does not feel like sharing, however told hin to gain so values for his fellow man/woman

dawn3063

12-10-2006, 01:25 AM

Should I say Tonight I went to a Birthday party for a old friend who turned the BIG 40 and I saw a few people I hadn't seen since the last day I worked almost 5 years ago.. Which was nice BUT.. They were asking "are you back to work yet" and when I told them no still trying to deal with the nerve thing Blah Blah Blah... All they said was Well, You look Great.. I would have thought you would be back to work.. Nothing grinds at me more than "you look great" :mad: when in fact you feel like :( :( :( ..
Ok, I'm sorry I shouldn't be so hard on them they probably don't know any better.. :rolleyes:

Dimarie.. Thank you so much for your well wishes.. I hope you had a grand time with the grandkids the other night.. :) And I hope you beat the nasty old headache..

Mark.. How did you do with that roll of pennies at the casino.. Best of Luck.. :D and tell Goober not to be so stingy :p

Pain free wishes to all TOS'ers...
((Hugs))
Dawn ;)

Gromlily

12-10-2006, 12:04 PM

will drop by a say a a quick Hi!! I think I am going to be limiting my time at the forum for a bit due to a very sore right eye that had a run in with an overly exuberant lab's paw (bad dog!! j.k.) Gromit was playing and got me good!

Anyway, glad to see Tam checking in, and Dawn, it is frustrating that people don't understand our situation. I have said toS as in syndrome, and people will say "you mean your injury ". I have explained numerous times that it is now a syndrome, a condition, not just an injury. It will take a long time for my TOS to heal. Geez, some of my family don't even get it. Oh, well...

Mark, I thought your "not for the religious" (or what ever you titled it) is perfect. It is exactly the attitude I aspire to have. Thanks for sharing !!

Have a good day all,
G ~ :)

DDayMBB

12-10-2006, 06:33 PM

Today must say did well on the penny machines, walked in with $40 and left with$50, for me it does not matter if I had the money to play big the penny machines are just as fun $100 machines! I am going to try and get a pic of the fingers that are blue/purple from the cold the other day... hope that they hang out long enough for Dr T to see on Wednesday!

HopeLivesHere

12-10-2006, 08:14 PM

Hmmmm....congratulations on winning Mark. All that entertainment and you got pain, I mean paid.

Ya, the blue hands go with RSD, that was among my first symptom. Cold does make it worse. Do you ever go to the RSD forum to read?
My records say TOS first then RSD but I think they came together.

Dawn, glad you made it to the party. You deserved to get out and hove some fun.

Anyway, just saying hi. Was going to say I heard from Tam but then I saw she posted here. it was email because phones hurt her ears too much :(

Hope everyone has a good week. The cooler damper weather has taken a toll on me. But at least I'm here ;)

Hope

dawn3063

12-11-2006, 10:26 AM

DDayMBB

12-11-2006, 11:32 AM

Wake up this morning grieving the loss of my old partner and good friend that I flew with at my old job.. She and her crew were flying back to there base when there helicopter crashed in the mountains.. The entire medical crew was fatally lost in the crash..
My hopes are that everyone has a low pain day..
Dawn

Dawn, my most humble and sincere thoughts go out to you... guess should say if it is of any consolation, they went doing what they enjoyed doing .
Goober and Mark

dabbo

12-11-2006, 11:39 AM

redjpwranglergirl

12-11-2006, 12:31 PM

Today Im hurting more than yesterday - but its not just physical - the mental part is weighing on me right now. It hurts to hold my daughter the way she wants to be held- so i'll hold her that way as long as i can stand it, but inevitiably i have to put her down. THEN I feel bad because i'm worried that i'm missing out on some great, important moments. I can't help out around the house as much as i'd like, and i feel bad about that because my wife takes care of our daughter all day. I think alot of it has to do with not knowing when (or even if) the pain will go away - i don't like not knowing stuff like that. Anyways - sorry to rant - just having one of "those" days. :( it could be worse tho - i just need to focus on the positive.

Dabbo,
I know that sometimes it's really hard to deal with so much pain and all of the thoughts that go along with being in pain and not being able to do the things you want to or that you used to be able to do. And I can identify with having to deal with all this at such a young age. I was 17 yrs. old when my problems started- we had a car wreck on Christmas Eve in 1975 and I got a severe whiplash and it's gone from bad to worse since then. That's when the neck pain and lower back pain started and I'm still dealing with that. I also had a bad fall on icy concrete steps in 1983 and that made the back pain even worse. The nerve loss symptoms of TOS started in the mid 90's. So I've been going to drs. for this for many years and it took a long time for any of them to figure out what's wrong with me. Don't worry about ranting here:) - we all know what you're going through. And it sounds like you're trying to have the right idea about thinking positively. I hate to say that because some of us have been raked over the coals in the last few years for trying to make the point of having a positive attitude but really, it does make a huge difference to the way you feel and I'm glad to see that some others have now come to the same conclusion about thinking positively and are posting it here. You know, I think most of us try to do what we can and make the best of it. I don't like the hand I've been dealt but I can't do anything about it. We've all been where you are now, dealing with the mental part of this so we can identify so I hope you'll come on here and let us help/encourage you!:) I have to say that Mark is one of the most positive people on here and always has a kind word for everybody. And as far as missing out on important moments- you won't- it just might be a little different from what you're expecting. As long as you're there and are enjoying your baby, those are all important moments. How does she like to be held? Could you sit while you're holding her and support your arms with pillows so her weight doesn't cause you pain? Sometimes we've all just had to come up with little tricks to be able to keep doing things we want/need to do! Maybe some of the others will come along and can give you some hints. I know you're fairly new at this but speaking as someone almost twice your age:eek: , it's hard when you first find out what you have but you find ways to deal with it and there are many people here who are very supportive and will be there for you. Take care!

Jo*mar

12-11-2006, 05:36 PM

Dawn- so sorry to hear about your friend.

Dabbo - I forgot how old your daughter is but even if very small still -
what about lying on the floor with pillows - or reclining on the couch or chair and letting her lay on your chest? Or use extra pillows around your arms and on your lap to support her?

The heartbeat sound is very soothing to babies & she may put you to sleep too with her little breathing.

when she is older she can climb and crawl all over you- kids love for mom & dad to get down on the floor and play with them.
:BeamUp:
:Heart:
I just noticed all the new /more smilies...

HopeLivesHere

12-11-2006, 05:40 PM

Dawn,
I am so sorry for your loss. I heard that just happened in Florida too, but patient had just been dropped off.........
It is so hard because some of us are not done yet mourning our own lives. Puts things in perspective....at least we are here. Hope

Nolina

12-11-2006, 08:34 PM

.... and realized I've been missing out on some pretty amazing stuff here. ;) I'll be coming back for more!

hugs everyone,
Nolina

dabbo

12-12-2006, 12:42 AM

redjpwranglergirl

12-12-2006, 12:56 AM

I meant to post earlier that my beautiful girl likes to be held on the left side, preferrably with the left arm - of course, thats the affected side - too much holding = lotsa pain. Taking the problem one more step - i'm left-handed and mainly left-side dominant- drive with my left arm (baaaaaaad idea), carry bags with the left arm, etc. I'm trying to re-teach myself to do this w/ the right side, but its a tough process!

Precious baby! I kept my 3 yr. old gr'son this afternoon and also a 3 mo. old that my DIL keeps during the day, so she could go to the doctor and boy, they keep you hopping! The 3 mo. old is a very good baby and he slept most of the time but my gr'son is very smart and VERY "busy" which is a deadly combination....:eek: BTW, I'm lucky- I'm right handed but my left side is my bad side. I don't envy you trying to teach yourself to do everything with your right hand/arm.:(

Nolina

12-12-2006, 01:08 AM

Dabbo, sorry to hear how difficult it is to hold your precious little girl :( She sure is a beauty.

When you drive, you might try tucking some little pillows under your arms, if you can, to support the arms, that way you don't have to try to hold the arm up the whole time (and maybe give the right arm a small break) . I would be lost without my pillows. I also use a little ball that attatches to the steering wheel to help turn the wheel much easier, w/o using the whole hand - i forget what it is called. Don't know if those ideas would make driving easier at all for you.

Please be careful of the shoulder bags if you are still working and carrying laptops, etc back & forth - I'm certain those contributed to my injury. :eek: Maybe Santa can bring you one of the newer, more ergonomic backpak style bags if you don't already have one. :o Don't want you to get hurt worse than you already are!

dabbo

12-12-2006, 11:04 AM

Thanks for the advice Nolina- fortunately, i don't have to carry much back and forth from work right now. I always carry the diaper bag w/ the right arm. I like the pillow idea -- we have a boppy (sp?) for the baby - i think someone else recommended it here too. That knob you're talking about is "lovingly" called a suicide knob- my cousin has cerebral palsy and has to have one to drive. I've been very lucky car-wise. the car I own is a 2002 Camaro Z28 with a manual transmission, so driving that was hurting. My parents live in town, and have an extra car that my sister drove (she's now in college) - its a 1986 Ford Taurus :cool: thats in great condition. Just switching to that car has helped. But i still try and drive w/ the left arm. i've gotta break that habit somehow. And Red - thank you! thats very.....brave of you to keep both of em (especially the active 3yr old!!) :eek:

Edelweiss

12-13-2006, 08:17 AM

am sorry for Dawn and her friends - sometimes it is hard to understand why those accident happen.

I suffer again from headaches: yesterday I stayed at home and today I am at the office but I will retourn home earlier. I have the impression my head is burning!!!:yikes:

I wish you all a good day with a low painlevel!
Nice greetings,
Barbara

dabbo

12-13-2006, 08:32 AM

Today (after ANOTHER doc visit) - I realized what I can compare this to that the people I work with can understand. Follow me here.... Your car has a problem. When you're driving down the road, the gaugues will start flashing and flippping back and forth :eek: , all the while the car continues to appear to run normal. You tell your friends, who of course don't see this happening as often as you swear it does. When you take the car to the dealer, not only does everything appear to be working, they can't figure out what would have caused the problem in the first place. Of course, you keep taking the car back in. The thing is, the entire time YOU know that something is wrong! does that make sense.....sorry to ramble. again. :Sigh:

DDayMBB

12-13-2006, 11:42 AM

TODAY I.......

..................Pass along to dabbo, first of all, looks like you have a real gem there, one thing being a part time dad(divorced, but have and had liberal visitations every weekend and during the week) that the only wrong thing you can do to a child is not try>>> I think they somehow sense the love you have for them and by trying I mean doing things you feel are of best intrest to the child! It is unfortunate that you have this nasty disorder that you can not do more, but seen mentioned about getting down on the floor. why not spread out a blanket and PILLOWATIZE yourself and have the little one goohing as you play:trampoline: and take care of that little lady:) ! Also I think most of us understand the now you have them now you dont symptoms... from past personally and I know others have kept a diary of what you are feeling and what you are doing at the time they occur. I found it of value taking this in when visiting my doctor and getting feedback on things I can do to aid myself... TOS is a monster that grows and keeps throwing different things at you, it is learning a matter of control, try to head off flares before they start... thes are just suggetions that help me out.

........ Nolina it is not amazing things that are taking place here it is amazing people that stop by.... I like to consider each person with TOS and CRPS/RSD as extended family, we all live with the monster and who but us can relate exatly what we are going thorougjh :confused:

........Red hope all is well with you and yours and is always a pleausre when you stop by for a visit, you seem to know just what and how to say to others in times of need and brighten everyones day:)

.........I wish that Barbs head would stop producing those nasty headaches that put her out of commission, suc bad things happening to a nice person:Head-Spin: !!!!!

Today, I personally wish that the judge would come to a conclusion in my W/C case And Iprobably am wrong including in my prayers that he reach a verdict/ruling in my favor... though this is so unfair laying all the burdens of keeping up our house upon my wife and also not being able to provide proper for my children... my wife deserves saint hood not only putting up with a whinning lump like me, but going daily to a job she dilikes just to try and make ends meet:eek:

TODAY GOOBER SENDS OUT HIS BEST TO ALL WHO HURT AND ALL WHO PUT UP WITH US WHO DO!!!! GOD BLESS ONE AND ALL!!!!!!!!!

Gromlily

12-13-2006, 11:46 AM

Hey!! Rambel away!! That's what we are all here for!! WE all come here to offer and to receive support!! So feel free to express the true emotions that you aare feeling. Sometimes we can't express ourselves in this way around others who don't understand what we are going through!! Hopefully by talking through your fellings and issues here you are better able to cope out there!!

This must be a very emotional time, what with it being your birthday, and having a new darling baby, a sweet wife and a physical illness that you don't know the possible out come of. It is tough to have so much going on at your age when you have your whole life ahead of you. At least for me, it would be real easy to play the "what if" game. That's why it is good to come here and share your feelings and concerns. There are alot of helpful, insightful people here that can help you find your way through the "maze" of living with TOS.

Have you tried those "Moshi " pillows to put under your arms and behind your neck when holding your daughter in a chair or on the couch? The work great for me. I have about ten of them (got them on clearance at Linens and Things for $ 3.99 each) and hubby will pack me with pillows and wedge me in the chair so I can hold my niece. It works great, no weight one me that I can't manage!! Maybe that would work for you as well.

Also, can you try carrying the diaper bag, or bags with a handle on your belt?? I use a belly bag for light things, as I can no longer carry a purse.

I am left handed too with that being the side I had my surgery on, although I am bi-lateral. It is hard to try and re-train to use your right side !! :eek: !

Hope you have a pain less day!!
G~ :)

redjpwranglergirl

12-14-2006, 12:10 AM

am wondering what happened to winter:Scratch-Head:....We're all wearing shorts and tank tops here and Sunday it's supposed to be around 80 degrees- too hot for it to be almost Christmas time!

Edelweiss

12-14-2006, 07:44 AM

cannot stay very long in the forum - I still have terrible headaches and have got a date at my familiydoctor tomorrow.

I read all the communications here, the posts of red, gromily, mark, dabbo - I am sorry I can`t answer...maybe in some days I will be able to write more.

I wish you all a good and painfree day,
nice sunny greetings
barbara

redjpwranglergirl

12-14-2006, 11:28 AM

dabbo

12-14-2006, 01:13 PM

Barbara - I'm sorry that your head is STILL hurting. I hope they figure out why soon. I wish I could be of some sort of help, or have some advice. I hope you're feeling better this evening than you were earlier....

dabbo

12-15-2006, 10:49 PM

Today I.... hope everyone is feeling well or better. And I wanted to keep the Today I... thread going. I had the surgery question posed today :Scratch-Head: . Anywho = hope ya'll are doing great oh yeah - i LOVE the new smilies! :trampoline:

Gromlily

12-17-2006, 08:51 AM

want to say Hi to Barbara and let her know how sorry I am that she is having so many headaches. I remember just after surgery I could only read posts, I couldn't dictate or type due to pain. I remember how frustrating that was !! :Bang-Head: !! I still have those days... equally frustrating..:Dunno: ..

and I gotta agree with dabbo that these new smileys are a hoot!!:Dancing-Chilli: :Dancing-Chilli:

I hope everyone has an enjoyable Sunday..
God Bless.
G ~ :Heart:

Edelweiss

12-18-2006, 02:33 AM

am finally able to answer. Thank you so much for all the post and your thoughts.
It was a kind of migrain the doctor said - this type of migrain is really horrible! And of cours the scalene-muscle was part of these headaches, too.

I got some other meds and I feel much better now - so good, that I tried to bake some christmas cakes this weekend, and I was successful.

I wish you all a good start in a new week without pian!
Barbara

redjpwranglergirl

12-18-2006, 03:28 PM

Edelweiss

12-20-2006, 03:57 AM

send redj...virtually some of the christmas cakes...and I hope you like them!!!!:Girl(angel-flying):
Maybe this will help against our health problems!!!?????
Barbara

dawn3063

12-20-2006, 08:18 PM

Hi to Everyone..
I just wanted to say Hello and see how everyone is doing.. I'm back after a tough emotional week..
Tomorrow I have a court date with W/C.. They had cut off my TTD payments when I had my spinal surgery.. So my attorney is off to deal with this one tomorrow.. Wish me luck..
I hope everyone is doing well after the Pre-Christmas hustle and bustle and that you are able to put you feet up and your hot packs on and rest for awhile..
Merry Christmas..
((Hugs))
Dawn ;)

dabbo

12-20-2006, 10:11 PM

Dawn - good luck w/ that tomorrow. Hoping and praying that all goes well.
Barb - I hope your headaches are gone, or at the very least have become much less intense- have a pain-free night, and a good day tomorrow!

Edelweiss

12-21-2006, 02:38 AM

hope you are all doing well.

Dabbo: my headaches are gone *yeah* but the neck and arm still hurts - what I personally can support better. I can work and concentrate me - but with these terrible headaches this is so difficult.

Dawn: I keep my fingers crossed for this date!

All the best and good day, today!
Barbara

DDayMBB

12-21-2006, 04:11 AM

Edelweiss

12-21-2006, 05:44 AM

want to entertain you...
You have to press the space bar on the keyboard to make the litte men jump over the hills - and after the 5th jump, you can roll the parcle by pressing the space bar.
Have some fun!:)
http://www.duwichtel.de/wichtel1/index.php

dawn3063

12-21-2006, 03:24 PM

Am Soooo Happy :Dancing-Chilli: The Judge ruled in my favor and the insurance company is going to restart my TTD checks plus back pay... :Excited:
Thank you so much for all your wishes and crossed fingers.... Oh, I hope you can uncross them without any problems.. :eek:
I am heading to my mom's for Christmas.. Merry Christmas to Everyone...
Chat with ya soon..
((Hugs))
Dawn

dabbo

12-21-2006, 04:28 PM

good for you Dawn!!! Its GREAT to hear that things worked out for you. Hope youre having a good day...

Edelweiss

12-22-2006, 02:55 AM

am very happy for dawn - this is the best x-mas present, I think!!
Barbara

dabbo

12-22-2006, 12:37 PM

today i'm ticked at all the people at work who weren't on the vacation calendar. they decided to leave early the last 2 days - when we were already short handed. :Help: So i had to sit there yesterday covering for them - all the while i was a 9 or 10 on my pain scale. SO ticked off. :Soapbox: not very "holiday spirit of me" - sorry to rant. I hope y'all are doing well, and have a good weekend!

DDayMBB

12-26-2006, 10:13 AM

Today all I wanted for x-mas was a favorable decision on my workmans comp that did not happen and to get my surgery taken care of which is also dito....:Sigh: Hope all had a safe healthy and happy day!!!

God Bless one and all... Mark-n-Goober

johannakat

12-27-2006, 02:09 AM

Went on a beautiful 3 mile 600 ft elevation gain hike with my family. We drove two hours up to Angeles National Forest to hike Vetters Mountain which has a fire lookout tower on it. You can see a large portion of the San Gabriel mountains from there, though the elevation is only about 5900 ft. Besides fires, they used in during WWII to look out for enemy planes.

My lovely family really pulled it together to make it happen, as planning and doing this stuff is usually my job. I want to thank daughter (14) for carrying the family backpack, and son (3), for hiking like a true champ (with more energy than me for most of the way) and my dh for carrying the baby (16mo) in the backpack. My parents also came along and I'd like to thank them for being unusually well behaved, as they have been for this entire visit (since friday).

I haven't felt so normal for a really long time. It was great to get out and do something that was exercise but did not require my arms.

Mark- did you have a hearing today? I do hope that you can find some resolution. It is absurd that WC does not recognize surgery as an obvious part or TOS recovery.

Edelweiss

12-27-2006, 07:30 AM

..am happy for Johannakat that she could enjoy such a beautiful hiking day.

..am sorry to read Mark`s post - that the x-mas wish didn`t come true!

..send very nice greetings to all and the wish, that this day will be a good one!

Barbara:catalan2:

Edelweiss

12-27-2006, 07:34 AM

..want to add for dabbo:
we are 2 working people instead of 6 today....they decided that it`s better at home than @ the office...ha,ha, and we have all hands to do!!! :Head-Spin:

DDayMBB

12-28-2006, 11:02 AM

TODAY I wish myself a happy B-day, unforunately my wish for surgery di not come true, though today I am headed down to my attorneys office tofile an appeal and hope this comes true!!!

GOD BLESS ONE AND ALL AND MY WISH THAT ALL ARE PAIN FREE;)

Frau Barb(Edelweiss), I would like to thank you for the on-line B-day greeting!!! Like I told you off the board it is another year that I made it through!!!!

redjpwranglergirl

12-28-2006, 12:35 PM

dabbo

12-28-2006, 01:14 PM

Happy Birthday Mark- Lets hope all goes well at the attorney's, and that Goober stays away.....

trix

12-28-2006, 02:20 PM

I hope you have a great birthday.:icecream:

dabbo

12-28-2006, 03:56 PM

Someone asked what was wrong, and I said "TOS." They (jokingly) responded "is that like an urge to go shopping at the outlet mall?" I'll admit - i laughed

Jo*mar

12-28-2006, 05:30 PM

Happy Birthday

Mark!!

I'm glad you guys all mention your birthdays because I am totally bad at remembering stuff like that.
I didn't put mine to show in my profile so it doesn't show up on our little calendar at the bottom of the main page. Sometimes I forget to look at that part.

******************************************

Mark did you try to resize pic with paint {stretch/skew} I just down size the percentages until it will upload here. -save as a new copy/name {so you still have original size too}

or I use MS photo editor {in with MS office- if you have that}

buckwheat

12-28-2006, 09:38 PM

Hi Mark,
Happy B Day. I was wondering if you know if a all wheel drive is the same as a 4x4. I have got to get to the market. I am moving next week so I have not been shopping. This snow stuff is somewhat new to me. Thanks and Hugs, Roz

DiMarie

12-28-2006, 11:25 PM

Greetings to all, good news and bad seems abound.
Dabbo and Hey Joe were in chat. We all have to stop by. It is hard to keep in touch, but nice to talk and not just a post.

Mark I am glad the attorney will handle the appeal. It is a super touogh enough to go through an appeal, but immpossible to do one alone.

I have been inandated at work. First there were 4 caseworkers, now there are two...and my co-worker is pregnant due the begining of Feb. and has gestational diabetes....

We due have one person on staff trained but no experiance, and I just received 6 new cases and two more processing. I HURT! Just sitting one end, setting up tables, entering data, holding book to pretend to read during visits, OUCH.

Oh, De passed a kidney stone last Wed. Sick all week from it, oldest boy has to have the tonsils out asap, and the gall bladder, He had pain manegment treatments today I had to drop him off.

I got to the doctors today for me and he was out sick with the flu! I need trigger points so bad and the first I can get in is Jan 29th.

But Happy Birthday Mark! I hope your Boys made your day nice and wife had special plans.First tiem since I was ten I had a nice party and with grandson, it was so great. He just loves gamma so much. He jumps up and down and shakes when he sees me.

Such unconditional love......

But, I did get a full spectrum light. It is like sunlight, floods the room with great feeling of opening the curtains. Not heat lamp, but so good to have light!

So tomorrow is a full day of watching the grandson, picking up the fellas case load he dropped on us with no notice, and crawl home and soak in calgon!
Tonight I am off to medicate my pains, and try to make up sleep.
Love you all, HoPE the aches and pains find a place to hide a few days at least!
Di

Edelweiss

12-29-2006, 02:56 AM

will write the last post for this year here - I will be on holidays until january 7th and this means that I will avoid sitting in front of a computer.

I want to send you my wishes for 2007:
* a better health or a complete healing
* a good mood to motivate yourself even if pain is present and
* confidance

At the same time I want to thank you for beeing here - I am very happy to know you! (even virtually)

All the best and until january,
Barbara

Dolfinz

12-29-2006, 08:30 AM

Today I learned that I was Denied from SSI and SSDI so...

I will start fresh today and get more info on my condition and keep fighting !

I hope everyone has a great New Year.. thanks for ALL the help along the way everyone !

DDayMBB

12-29-2006, 11:14 AM

TODAY I... do thak one and all for the B-Day wishes... and pass along to Dolfinnns to hang in there and fight like HE double tooth picks I just mailed out my letters for my WC appeal... seem like it is a wide circle we all go through with insunarnces... please all forgive my typing fingers are not moning so good today!

Witrh any lucj I will get the pic of my guys capturing Goober, now what to do with him:D GOD BLESS ALLL with the up and coming Neww year!

Have to click on pic and enlarge to get the full effect...GOOBER is a scared

DDayMBB

12-31-2006, 09:16 AM

Today I hope all have a safe and happy new year and that the New one brings about peace and happiness to all free of pain and the same goes out to each and everyones family and friends..... Mark-n-Goober

DDayMBB

01-02-2007, 12:44 AM

Today I... am just wondering how many others experience pain within the bi-cep region as well as at times not being able to bend or straiten your arms due to extreme pain going from the bi-ceps up into the shoulder and chest area?!?

...... I am also reiterating a HAppy and healthy New Years wish unto all and that this time may bring forth less pain!

Goober passes along a hello as do I .... and may the one whom you place your trust hear your cries and misgivings:icon_wink:

dabbo

01-02-2007, 02:41 AM

Mark - I too often have what i think is the same pain - shooting down my biceps from my shoulders. I have NO idea why this happens. i wish i could offer more..... tell Goober i said Hi and that he should behave. happy new years!

dawn3063

01-03-2007, 09:44 PM

:cool: Want to say Hi to everyone and hope that everyone had a wonderful Christmas and a Grand New Year..

Mark- Happy Belated Birthday.. :Birthday: and of course with cake you have to have :rm_milk: .. I do hope that your pain levels have decreased even a little.. And I will keep you in my prayers that you will be able to win your appeal for your surgery soon..

Dolfinz- Appeal your SSDI and fight fight fight... I am waiting for my AGL hearing date now.. I think they just want everyone to give up.. But well show them..:cool: Were too tough for that..

Roz- I hope your move is going smooth.. I'll give you a call in a week or two.. Hang in there and don't do too much..

Di- I hope you are able to get those trigger point injections soon.. Go slow and take some long HOT showers..

Dabbo- Hi.. Hope your hanging in there.. Maybe I'll catch you in chat soon..

Wow, As for me.. I'm on the count down for surgery T-minus 22 days...

I hope everyone have a low pain week...
((Big Hugs))
Dawn ;)

dabbo

01-04-2007, 12:50 PM

Just wanted to say hey to everyone- took a couple of days off work, and didn't hang around here as much as i usually do - spent some quality time with my wife and daughter :D , which always makes me feel better, even if it is briefly. I hope all of you battling lawyers/judges/comp/SSDI have better luck with that this year. Pain levels not too good today :( - but it could be worse. I'm back to the PM on tuesday (finally). I'm showing up early, because he's been out of the office for 2 weeks :eek: I hope he doesn't get sick or something else- i have a late appt, and i'm getting afraid that he'll be really backed up. anyways- hope you are all well.
-dabbo

DDayMBB

01-06-2007, 08:56 AM

TODAY I.....
Ask where the heck it stops, TOS, Fibromalgia, myfascial, CRPS, RSD ??? Just tiered of all tha bull and run-around, all I know I keep getting worse and hurt !!! Sorry all just stopping by real quick, though a deep question that I reuest and expect some time !!!

Mark-n-Goober

gibbrn

01-07-2007, 08:44 PM

hi everybody
Happy New Year!!
Hope pain levels are low enough for all to enjoy this day prayers to all. I am suffering high pain levels now....changing meds and trying long acting tramacet...ultram.....many different names...just came out here...think I need more still not comfy enough to do average things...laundry....dishwasher loading unloading......etc.....still do it and cause the pain what choice do I have....mess issues sort of A n a l about mess hope this word is acceptable...not sure but it is the truth!!!

had to reboot the cpu and get it going again hopefully no virus again!!!!!!!!!!!

Anyhow hope all well thinking of everyone always..... missed talking to you all despite the fact that I went to Mexico for a week and didn;t want to come back now had no pain there....and bam back here....pain...hmmmm need heat or life of leasure?????

love to all
Victoria:D

Jo*mar

01-07-2007, 09:49 PM

I don't know about any of you on the east coast- but we in Pacific NW are supposed to be getting a cold front in on wedesday. {teens and 20s for 4 days or so}
so we get to prepare for that- i don't know yet if it will be a dry cold or snow or even worse ICE.
I guess they will firm up the forecast in a day or 2.

gibbrn

01-08-2007, 01:25 AM

I have to say I am thankful that us here in Ontario.....Toronto area are having an easy time of it so far touch wood......lol I hope it stays this way My Dad is still out golfing for gooodness sakes!!!! Hope it stays warm!!!!! Sorry to ya'll in Denver you have my heart and best of luck and NO shoveling!!!!!

love Victoria

Edelweiss

01-08-2007, 02:25 AM

am back again from my very short holidays. How good it was to have some days free - I slept long in the morning and enjoyed the days: one day I spent at a spa, I went to the cinema and to the theater,.....

I had my birthday some days ago and I my mom and my BF organized a wonderful day for me - this was very nice!

My best wishes for this day, today!
Barbara

DDayMBB

01-08-2007, 08:42 AM

Today I ......
....... must say I am envious of Victoria of her time in the warmth, though not of her returning high pain levels. I do not think the A N A L word is a problem nor see anyone taking offensive to it, especially when used in correct context;) to the situation at hand !

...... welcome Barb back from her holiday, and pass along to her a happy belated B-day!

...... Jo, regardless snow rain, ice and cold think we are all bothered by this nasty weather. Fortunately monetarily (heating bill) we have been quite fortunate here in the N East with record highs, though 85 and sunny sounds good on a white beach. Hopefully you make it past the bad weather quickly!

..... I am just about to get ready for a hearing for child support... it is that I have ever denied paying for my chldren and to add have always paid beyond what was stated, though now that I have been without a pay in over 1 1/2 years, I just do not know what tod do! Hopefully the hearaing officer will be somewhat understanding, though may be heading off to jail <UMPH>

..... Pass along to all my hopes that the weather treat one and all well and that pain levels remain low !!!

Mark-n-Goober

dawn3063

01-09-2007, 12:58 AM

Want to wish Mark LOTS of Luck and Prayers that the hearing officer will find understanding in your situation and see the Love that you have for your children.. Stressful times sure can make pain levels higher then normal.. So I hope that you are able to find a few relaxing moments in the day to unwind and relax..

Here is a warm Hello to all my TOS family and wishing everyone a low pain week if not a pain free one.. :Wave-Hello:

((Gentle Hugs))
Dawn ;)

T-minus 16 days

Edelweiss

01-11-2007, 06:59 AM

am back at the forum - had a gastro-enteritis (as hundreds of others have actually)and I can tell you how good it is when it is over. Still little cramps in the stomac from time to time but this is nothing!!!

So wish you all a good day - without pain or other problems!
Barbara

johannakat

01-11-2007, 01:30 PM

Today I am very excited because David Beckham has signed to come and play with the LA Galaxy. It is a great day for soccer in the United States.

Too bad it's such a lousy day for my arms. I don't know how I am going to make it through work today.

Here's here's to everyone getting some news as happy as that.

Johanna

Jo*mar

01-11-2007, 09:42 PM

I had my birthday some days ago and I my mom and my BF organized a wonderful day for me - this was very nice!

Barbara

Barb,

Happy Belated Birthday

http://i137.photobucket.com/albums/q219/turbojo84/BirthdayBalloons.gif

redjpwranglergirl

01-11-2007, 11:58 PM

I'm late wishing you a happy birthday :Birthday: too, Barbara, but I'm glad you had a great day! What kind of plans did your mother and boyfriend have for your special day?

Edelweiss

01-12-2007, 02:45 AM

Dear jo, dear red,
thank you so much for the wishes!!!!
You ask what they did for me? First they both surprised me with a great breakfast and the traditional "gugelhupf" cake - and my mom gave me some presents.
In the afternoon, my BF gave me some presents and in the evening we went in a vegetarian restaurant and then to the theater.
I was spoiled!!
It was a harmonic and nice day and I had a good start in my new year.

Again thank you for the post,
nice day, Barbara

DDayMBB

01-12-2007, 06:46 AM

Edelweiss

01-12-2007, 08:05 AM

thank you for your Geburtstagswünsche!!!
When I read about your hearing, I am sorry, that your ex-wife does not cooperate more with you.
All the best and pain-free weekend,
Barbara

redjpwranglergirl

01-12-2007, 11:35 AM

Today I.... am more than ready for summer even though us here in the NE have had a relatively mild winter thus far the last couple DAZE in the 20 F like probably most here could say that cold is an enemy!

..... Dawn would like to thank you for your wishes with the hearing officer, my ex wife did not show, so I could have really messed her over, but for my childrens sake did not, in fact I asked him to call her while I was still in the office to prove to her I was not being under-handed. Needless to say, she has not answered any calls that I placed and who knows if I will see my boys this weekend <UMMPH>

..... Barb, I also am passing along a Verspäteter GEBURTSTAG Wunsch und Hoffnung, dass Ihr nächstes Jahr eine positive Änderung verursacht !!! :Good-Luck:

..... pass along to Jo and Red a :Wave-Hello: as they pass through:)

..... I wonder just what each and everybody here were to be able to harness the power we go fighting the pain on a daily basis and put it into a constructive enterprise? From the bottom of my heart I have to say I am proud to be associated<even though would rather it be a better social way> with all here at the forum !!! There are lyrics that state what each of do without thought... "I Will Survive"

.... Unto all wish a day of low pain levels !!!!!!

Mark-n-Goober

Mark,
We're already having "summer" here now....Hubby is outside mowing the weeds:D wearing shorts! I've had to turn the AC back on the last few days because it's so humid. But it's supposed to change on Mon. and our high temps then and on Tues. are supposed to be in the 30's, which is VERY cold for us.:eek: I'm sorry to hear what all you're going through with the ex....My poor brother has had h%@# for years with his ex-wife, even though both of them are remarried and their son is now 18. I've never been in that position myself but I've never understood why some people seem to get such joy out of making so much trouble for an ex.:confused:- especially when the one making the trouble remarried immediately after the divorce was final and that's been years ago.

Edelweiss

01-16-2007, 08:17 AM

wonder what happens to our "Today I..." thread - and I want it in the ranking of the up-to-date-theads.

What can I tell you today? Yesterday, by a simple movement, I blocked a nerv on the left side of my neck, and *autsch* that hurts enormously.
I am very careful with my head and arm movements but in some days it will be better, I am sure. Usually, it is my right side who has troubles, so I am crazy that my left side has problems.
Getting old is difficult *lol*:icon_wink:

I hope that all of you can spend a good day without pain or other kind of troubles.
Very nice greetings
Barbara

DDayMBB

01-17-2007, 09:26 AM

redjpwranglergirl

01-17-2007, 12:54 PM

Red, I ask that you not feel sorry for me, but pitty my ex wife! I truly am not the greatest person in the world... but to try and turn my children against me is something that by now my guys are old enough to recognize what is happening! I even go to the point when they say someting negative about her, that I put a halt to that and remind them that she is still their mother! Though also have to admit their step dad does treat them well for which I am thankful and as far as my wife is concerned, they call her mom:) so all in all I know they are and will be well rounded!!!

BARB, come on now... you are not getting old, just becoming more refined just as an excellent wine;) ! Also the *autsch*Können Sie dies wird, befreien Sie von Schmerz und versorgen Sie releif den Sie deshalb viel verdient!!!

Unto all my extended family here, I hope that everything you wish for comes about and that all pain levels are low!!!
Mark-n-Goober

Oh Mark, we all have our faults and nobody is perfect but all in all you sound like a pretty good guy to me! And I have to commend you for taking the high road as far as the ex is concerned. When my parents divorced my mother always said the same thing to me- "he is your Dad", and she never said anything against him. And my best friend did the same thing when she divorced. It really is the classy thing to do- to never down the ex to the kids. As you said, when they get older, they usually do see what is happening. You're very lucky that they have a good step-dad and even luckier to have a wife that they think of as a mom! It sounds like your children are already well- rounded and are pretty good kids!

Edelweiss

01-18-2007, 08:51 AM

agree to the discussion of Mark and red - it is the best for the children to act as you do / or your parents did.
My parents were not divorced, but the relationship failed when my mom was pregnant, so I had no contact with my dad - and my mom often told me about the negativ aspects of his caracter - that is not good at all for a child. It was hard for her, obviously, but....

Mark, thanks for the positiv sentence about age, wine.....:icon_redface:

Today I feel better, the head and the arm-mouvements are greater.

We were waiting for a storm this evening/night.....he is already in France and Germany and will arrive soon - but some of you are concerned from much bigger climatical troubles (snow and ice) what I read in the newspaper.

Have a good day, today!
Barbara

trix

01-18-2007, 11:11 AM

Have an appointment for follow-up with my surgeon. I sm uncertain how he will respond when I let him know about my pain levels. I want to go to physio. I hope he will have some ideas to solve some of my issues. I almost feel guilty, like I don't want to dissappoint him. I don't want to tell him that the only releif I have gotten is that the constant numbness and tingling has resolved into intermittent issues.
Wish me luck.
Tracy

Jo*mar

01-18-2007, 11:50 AM

Maybe if you start off with the positive improvements and then ask about going to some specialized TOS PT ?? { " a place that is well versed in TOS rehab" }
Or at least a place that has advanced therapists.

Say you really want to have the best recovery possible and if some good PT or bodywork will help towards that goal , you would like to try it.
And leave the option open for changing PTs or places if the first one doesn't work out for you.

That approach might work well.

redjpwranglergirl

01-19-2007, 12:22 AM

johannakat

01-20-2007, 12:48 PM

am in awe of how much faster our new microwave cooks than the old one. If I had known a mere hundred dollars could shave so many minutes out of my day I would clearly have made this investment earlier.

Jo*mar

01-20-2007, 01:37 PM

Today I..
am wondering how Dabbo is doing?
And if the nasty weather was in his neighborhood?

I hope a good weekend for everyone - and some WARM weather
:grouphug: :grouphug: :grouphug:

dawn3063

01-20-2007, 08:27 PM

Was thinking... OMG as of tomorrow I only have 4 more days to my re due :holysheep:
And today was one of those days when you say "And why am I having surgery" :Scratch-Head: But then again tomorrow I'll know why... But hey hubby took me out to Lunch and then after to Cold Stone for a great :icecream:
That's it for today... Well get comfey on the couch and watch a good movie tonight and make it a layed back easy evening...
Hugs to all and wishing everyone a low pain or lets even wish for one of those pain free days..
Dawn :hug:

Shelley

01-20-2007, 09:28 PM

Today I am wondering....

Why I don't live at a spa! Had wonderful massage and girlie lunch by pool. Forgot about pain for a while and just laughed. Think I should move in.

Chatted with PEG24 online tonight and when I win the MegaMillions Lotto gonna open up TOS beach cottage and Spa! It will be warm toasty and free for all my TOS friends (lol).

Dawn that sounds like a great day!

And Jo, I miss too miss Dabbo in the chat room.

Have a good night tonight everyone!

DDayMBB

01-21-2007, 04:12 AM

TODAY I>>>>>
I shall pass along something to red, as much as my ex ****** me off(hope mods allow that) she still is my childrens mom and respect has to start somwewhere. Also, There are those that beleive a smack on the butt is detrimental to aa child, well I am guilty thanI can count on one hand that I had administered it to both of my guys on one hand though never to the point of hurt, just more so embarassment! Never hurt me and I think I grew up without to many issues:eek:

jo micro wave they had at work was super nuke... I had a hot pocket in the sleve... sleve and all blew apart, moto was you make the mess you clean, darn near took 15 min getting the baked caked on off:D

Jo we dropped down in the single digits and an icy snow... made me glad I am home bound:yikes:

Dawn my thoughts and prayers go with you on your re-do!!! I am envious, I wish I xould have it doen in the firest place whorkmans comp keeps me on hold as does SSD, Now Dr T will not let me have it done prior to seeing Dr Scwartzman (CRPS/RSD) and some Ketamine tretment <UMMMPH>

Shelly I love your idea and think would set up a retaing law org to help us... along

Unto all I say major:grouphug: just softly,,, dont break the DDay;) though say feel free to :poke: GOOBER all you want:D

dawn3063

01-22-2007, 04:19 PM

Just want to say how much my TOS family means to me. It's great to see how everyone comes togather in such desperate yet wonderful times.
I'm proud to say this is my TOS family..
Hugs to you all :grouphug:

Jo*mar

01-22-2007, 08:07 PM

on spanking- my parents used and taught us open hand on the rump!
although my lil sis did get cold showers a few times
{baby of the family:p }
and I seen to recall a hair brush getting thrown towards us;)
But over all it was no big deal

hubby or I have never had to really spank the kids- one ran out in the road once and I did spank him and tell him why - but our kids are pretty mellow overall.
worse was when they were older & fought with each other:eek: and having to stop that and settle them down- with out picking sides LOL

But to knock a kid around and emotionally bash them is a big deal - :eek:

DDayMBB

01-22-2007, 11:27 PM

Today somebody slipped up and I found out there was actually a witness who seen my accident start to finish, now to go and find that person and see if I can add a last minute witness.... than do a what comes around goes around

By saying I gave the boys a spank is saying they did not even feel it

Though you bring up about the abusers that raises the hair on the back of my neck, how could any grown up do that to a defensless child and say what they receive in prison is just the justice they deserve and I am not talking about being incarerated I am talking jail house justice :Wheel:

Jo*mar

01-23-2007, 12:02 AM

Today I ..
say a Big Thank You to Mark for getting information to us.
Now go rest up young man- LOL

small poem-

life can be sweet and free
sometimes bitter and painful
do as best we can
to make it through
til we are called upon
jo

Curious

01-23-2007, 02:57 AM

today..ok it was yesterday..:o i got to talk to mark on the phone.:)

and i too thank you for all the info passing you have done. i think you deserve my microwave cleaning tip.:D

set a microwave safe bowl full of water in the microwave. boil the water. leave the oven shut for about 5 minutes. it will steam off the stuck on food. wipes right off with a damp rag, sponge (ewww..sorry...but i don't like sponges) or papaer towels. if anything is was greasy, use a drop of dish soap on the damp rag you wipe with.

with my crew here..i end up doing this daily.:o the breakfast pockets..when they explode...oi vey....

Edelweiss

01-23-2007, 08:58 AM

tell you that yesterday I had my 6-month-control at the vascular surgeon, as I have arterial TOS. "Statusquo" he said, this means that it has not become worse. So, this is a good news.
He is very understanding and explains a lot to me.

Today it`s snowing - something that we haven`t seen this winter, so gloves, pullover and other warm clothes got out of the wardrobe.

Snow-greetings
Barbara

dabbo

01-23-2007, 10:24 AM

I'm glad you had a good doc visit Barb- having an understanding doc who explains stuff to you can (in my opinion) make a world of difference in helping us deal with TOS. Enjoy the snow - we haven't gotten any in Memphis this year. If we do, it will probably just be ice :mad:

johannakat

01-23-2007, 08:36 PM

Today I am happy to report that the new Shins album is out and it is GOOD...and as it goes..just like Natalie Portman said of them in the movie Garden State "they'll change your life..."

Actually, I use one of their songs (New Slang) for my focused relaxation...so I bring them up for TOS realted reasons.

Does anyone else do focused relaxation? It is one of the really good coping strategies Dr. Jordan gave me along the way. It does work. For more than pain, I use it when I am stressed about anything now that I have it working.

I have the instructions around somewhere, maybe I should post them.

In other news, health is a funny topic. But I think back to oclyns's shirt from last sundays meeting. For those who weren't there it said on the front

Cancer sucks

then on the back..

So does TOS

I bring that up bc....
My aunt was dx'ed with ovarian cancer last week. I was talking to her today and they just found out that even though they thought it had spread, it hadn't gone too far, and it looks like she'll make a full recovery.

Somehow talking to her today was really depressing. Her whole family had of course gathered to support her and don't get me wrong, I am really happy she's going to be OK. I was close to her as a child and her kids were my closest cousins.

But, that part of my family hardly realizes what is up with me, and I just got sad to realize she was going to get all better, and I might not. Actually I teased her about it a bit...

ah well. Some days I feel quite bad for feeling so bad. I mean, what do I really have to complain about? So many of you and other people everywhere suffer way more than I do, I should be happy to have the many many things that make my life wonderful. I feel like many days I have the right balance and the right outlook, but somehow today it is missing

Part of it perhaps is seeing a new doctor today and after the examination it was like well, you seem to be doing fine, right? Why would you even consider something like surgery? and I just felt like screaming NOOOOO!!!!!! I am NOT...there are SO MANY things every day that I avoid or have others do for me. To an extent it has just become second nature but then when I stop to really think about it and how long I have been at it I get REALLY bummed.

Maybe I'll take my own advice and do some focused relaxation tonight.

A huge thank you to anyone who bothered to read the rambling and selfish post. I do truly appreciate each and every one of you for providing this place where I can come and vent these fellings to people who get it.

And Finally I just want to mention that DI, you have been in my thoughts all day. I send you cyber hugs and will send you telepathic relaxation vibes when I get to that relaxation tonight.

sorry for rambling for so long.

Shelley

01-23-2007, 09:08 PM

Well today I am glad that...I can be be Johanna's friend and send a big hug her way. :hug:

Somedays we just need to give ourselves permission to feel bad about our illness, our setbacks, whatever it is that is challenging us at the moment.

So Johanna, give yourself permission to feel bad, it's ok. We all do because so many things have changed for all of us. And it sucks.

I hate TOS, but even given the past year plus, I have grown tremendously in so many ways. Do I wish I did not have it ...yes, Would I trade some of my experiences no.

And friends have stayed, come and gone and family too. My best friend early into my illness when it was at it's worst told me she could not handle it and did not have time for it. Guess what...she is sick now with an RSI and in terrible pain and I will comfort her because she needs it.

But I am a better person...more compassionate, aware and self aware. I will continue to fight, feel bad and brush myself off each time I hit a wall.

Vent all you want we are here for you. :grouphug: This group of amazing wonderful people that I would have never met if it were not for TOS. You have made my life richer in the short time I have gotten to know you all. And you are what I need in my life right now.

Johanna I am happy your aunt is going to be ok. Thank God.

My favorite aunt has breast cancer and she has lived 8 years since her dx. This could be her last year but she is the center for so many people. And she has been my rock through all this and taught me to seriously do what you can and that you will learn to get through it. It was hard sometimes and when I could not do something I just didn't and the world did not come to an end. That was a hard lesson for me.

And I am sorry that today that balance is missing. But give yourself permission to feel bad for as long as you want. I'm here to hold ya up friend.

I think it goes back to your post that sometimes we put such a positive face forward that people do not think we are suffering or hurt or feel bad or are sad for our losses.

And I think that people depend on us more than others. I know that for me that people look to me each day for energy and leadership and it's harder now.

And to Dabbo (or it could have been Johanna) I used your reply the other day at brunch when people asked how I was...some days better, some the same and it worked. People understood and were empathetic and did not try to solve my problems. They just accepted it.

And Johanna your body will tell you what's right and if you need surgery. Sometimes docs suck. I had that day a couple of weeks ago and today I went back at them with a bunch of stuff and got the attention I needed.

Keep at it friend.

and to curious...you are the most brilliant monkey :D . What a great idea for the microwave.

dabbo

01-23-2007, 10:02 PM

Definite Kudos to Curious for the microwave idea - I can't count the number of times i've blown stuff up in the Microwave. And shelley and Johanna - thank you for pointing out what i've occassionally forgotten - how lucky I am to have such a supportive group of people.
-dabbo

Jo*mar

01-23-2007, 10:19 PM

Coming to terms with and accepting TOS in your life, is very much a grieving process - just like divorce, job loss, or any life up upheaval.

I think there is 5 stages of grief {from this site}
http://www.coping.org/grief/stages.htm

A loss experience involves the following five stages of emotional response:
(1) denial, (2) bargaining, (3) anger, (4) despair, (5) acceptance.

These five stages can occur in either the sequence presented or in any variety of sequence.
The stages can recur during a loss experience.
One stage can last a long time, uninterrupted.
These five stages can occur in either the sequence presented or in any variety of sequence.
The loss process can last anywhere from three months to three years.
These stages of grief are normal and are to be expected.
It is healthier to accept these stages and recognize them for what they are rather than to fight them off or to ignore them.
Working out each stage of the loss response ensures a return to emotional health and adaptive functioning.
Getting outside support and help during the grieving process will assist in gaining objectivity and understanding.

gibbrn

01-23-2007, 11:43 PM

thanks for posting the stages of grief. It is so important to know what you WILL go through as you sort out your life with TOS. It is not nice to deal with and I am the first to admit that I was suicidal and if it were not for the support I got from braintalk at the time....and I am sure the help I would get here if it was that time frame........You must understand that this is NORMAL!!!!!

We all think we are crazy for feeling the way we do when we get upset for not being able to do things, but it just grief for the way of life we HAD we all need to move on to be able to cope. Some of us get stuck at the different stages for different periods of time, but that too is normal we all don't deal with things at the same rate!!:mad:

So kudos to those who help (Jo included for all her wonderful posts of info...) I wish our msn site was working!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! :confused:

And to all those who need help we are here for you!!!! AS I know you will be for me when I need it!

So hugs to all and thanks for your support and care!!!

love, Victoria:grouphug:

johannakat

01-24-2007, 01:05 PM

Today I thank my TOS friends for indulging me and for being my friends.

I am feeling much better today, ready to go out and tackle the world in usual fashion.

Shelley- you are absolutely right that what I had yesterday was a presentation problem. Sometimes I have a hard time remembering myself that I'm sick. I think probably that if I didn't have to use the computer and I did not have two small kids that I had to chase and lift up all the time, I might get by just fine and hardly ever feeling sick. Well, except when I'm putting away the dishes. I don't know. It's a nebulous feeling, never knowing when you're going to feel well and when you're going to hurt and the whole delayed flare thing makes it that much harder because frankly I can do many things for a short period of time. Just like many of you I won't know until later that I've overdone it. That a very frustrating thing to deal with on a daily basis. I know I'm a talking to a bunch of people who completely understand. Sometimes verbalizing my thoughts makes me feel better about them. Probably this thread isn't the greatest place to do it. Sorry if it's too off topic.

Unfortunately, I have to go to work now. I am rather late, so I will have to talk to y'all later.
Have a great low pain day, and remember to thoroughly enjoy every good part about it.

You guys are great
Johanna

dabbo

01-24-2007, 03:46 PM

I don't think you're off topic at all Johanna - I think Mark named the thread "Today I....." and left it open-ended so that we could get whatever we wanted to off our chest in a single location. That's why I like this thread so much. I'm glad to hear that you're doing better today. I'm also in awe of you - 2 kids and a job is quite a full plate! I hope everyone is having a good day.....
-dabbo

Edelweiss

01-25-2007, 06:24 AM

find some time to join again the "Today I.." familiy.
I read your conversations and I think it is quite normal from time to time that we cannot stand it that we were sick, in pain.....
At work, I don`t show it much, how I really feel but at home I let the whole frustration (of pain, handicap,....) out of me. That`s not nice, I know.....:wink:

Johanna: I also work with relaxation-music. I have two typs of music and one of it is even a anti-pain-music. In september I spent 3 weeks in a health center and had this type of therapy there (it was called energy island: with colors, music and scents) and I bought the music and hear it om my mp3 player when I return from work (I go by bus, so I can concentrate me on the music).

dabbo: you are right, with the information I get from my doctor I can understand much better what is going on with me. I had 2 shoulder surgeries suffer from a "functional" arterial tos. so, the area from the neck to the arm, there are a lot of irritations and problems and with passion he always explains to me why I am in pain and why he does not give me meds or surgery.

Today, after work I go to a lyphatic massage therapy. I am trying a new therapist and hope that I will enjoy it.

Wish you all a good day and send you white winter greetings from austria
Barbara

Shelley

01-25-2007, 12:05 PM

Barbara,

That anti pain music sounds great. I am going to do a serach online but if you have any information about it that would be great!

Let me know if the lymphatic massage works, I am interested based on what I did yesterday.

Two days ago I had a flare around the surgery site. The swelling and inflammation caused a lot of pain. So new chiro tried this new FDA lymphatic machine on me and in about a 1/2 hour the swelling was down significantly so much so that later at PT the PT asked what did you do different. My pain level was also down and we achieved a great range of motion that day. Today it is better. Made me wonder if perhaps I have some lymphadema in that area and need ways to keep it draining so it heals better since all the inflammation causes scar tissue when it scars down.

Hope everyone has a pain free day.

gibbrn

01-25-2007, 12:19 PM

HI guys,

Just wanted to add to the relaxation music topic if I may be so bold...:eek:

I use hypnosis cd's and they are amazing I can go under the sea or get a good pain relaxation time as it covers everything...I have spent a small fortune getting them all.....I am willing to share so email me or pm me with your email address and we can talk about what to do.....could mail a cd or try to send via email.....offer open to all hope someone takes me up on it as I am a big believer in it and if you try it you will be as well!!!!!!!!!!!!!:wink:

Take care all,
love and hugs for the day!
Victoria

DDayMBB

01-25-2007, 03:59 PM

Today I.... have fallen so behind to what is happening with everyone, though hope you all know my thoughts go with you all!!!

Jo Kat... you are a survivor in many ways as are the people who share in the disorder that brings us together! If not for this, I think I would have missed out on some remarkable people such as yourself;)

Shelly... I do like your thinking in that if you do not feel up to doing something than don't.. as you put it the world will not end and how true you are in saying this and if it does end at least you did what you wanted:D

Dabbo... and one would think that this forum would be limited to just TOS, who would have thought cleaning, cooking and other tips may be included here, though I tried the microwave tip and it does work! Also that is what this thread is all about... anything you need or want to talk about or get off your chest:)

Frau Barb...Ich hoffe, dass Dinge gut auf Ihrem Ende sind... zu schlecht mein Telefon zu Österreich ist nicht frei, als ich hier in den vierzig acht fortgesetzten Staaten hier in Amerika rufen kann !!! As always you are a ray of sunshine:cool:

Victoria... I just may take you up on the offer of obtaining a free CD, I am always open to things that may work in easing discomfort, pain and the blahs... It sure seems to work and keep you in an up beat mood !!!:wink:

Unto all TOSers, I would like to say thank you for helping me keep my sanity throughout my trials and tribulations. I like to tell people that the only way to sanity is through insanity:D :D :D

I would like to make mention of something I purchased :Heart: a medical alert bracelet, on the back is engraved <NO BP, Labs or IV left arm> as at the moment function of this side is limited and do not need to lose any more use, just incase if I can not spek for myself!

I made GOOBER go into hiding in remorse to the loss of one of our members and out of respect to her mother DiMarie I would like to share a group:grouphug: as something so bad can make so many so close!

Curious, it was so nice placing a voice with the name and Tam sure nice talking with you... certainly been overdone in chatting:)

Now to everyone, I wish you my best and catch up with you all again later... should I have left anybody out my most sincere appology as you know like I always say we that share this MONSTER are like an extended family and I sure do not want to hurt anybody, my thought and prayers go with all.....MARK

astern

01-25-2007, 05:11 PM

Mark,

I was driving along today and daydreaming about starting a new thread: "Shooting Goober".

But didn't want guests to think I had lost my mind.

You too, are a ray of sunshine!
:hug:

Anne

johannakat

01-25-2007, 05:22 PM

:ROTFLMAO:
When we get him, May Goober be condemned to the constant hell he has given to Mark!!!

Shelley

01-25-2007, 06:55 PM

Ok before I assume anything because you know the ole saying....I want to calrify who is Goober?

Ok stop laughing at me everyone, I am still a newbie:D

Edelweiss

01-26-2007, 06:28 AM

can tell you that the new lymphatic massage therapie is A DREAM!!!!!!
so soft, so relaxing, I miss words to explain how fantastic it was. I hope this will continue in this way...next thursday afternoon I will know more.
He did both arms, armpits, breast and shoulderblades.

The music I bought in the medical center is called "seidenklang" by thomas eichenbrenner. the first piece of music is for relaxation, the second one against pain.
Here the link:
http://www.mentalis.de/shop2004/shop.php4?sess=cbefa3da0c3be45b81afe881601b4af7&show_prod=48&xns_back=5

Another CD was recommended by ma familiy doctor: Dewa Che
It is different to the first music, but for me no 3 and no 7 relaxes me really.
Here a link:
http://www.amazon.com/Dewa-Che-Dechen-Shak-Dagsay/dp/B0009K7RFC

Only one more hour at the office and then free weekend! I love to do nothing during 2 days!!!!
Sun shines and it is cold and snow is everywhere - so I send you a marvellous wintergreeting from Austria.
Barbara

Edelweiss

01-26-2007, 06:32 AM

I will participate on the mission "hunting goober"...so you have a hunting-partner in Europe if he decides to flee!:mf_swordfight:

Shelley

01-26-2007, 12:01 PM

Today I...am just sad. Doesn't really matter why but I am feeling sorry for myself and feelings hurt. So I am going to take the day off.

Catch you all on the other side of my self pity party. :(

johannakat

01-26-2007, 12:16 PM

today I....missed seeing my friend Shelley for coffee, and hope that she is OK.

:hug:

DDayMBB

01-26-2007, 03:37 PM

TODAY I... think I will start charging admission to the GOOBER shoot, Though first to hit me instead of GOOBER is disqualified from the hunt:D

.... Shelly, no laughing matter here... GOOBER is the entity that lives from my neck on down to my shoulder at times he sitcks up: the size of a golf ball during a major flare, I thought since he moved in and unpacked his bags may as well give the free-loader a name!!!! :Poke:

... ahh barb, one never knows where Goober goes when he is not bothering me !?! :Ponder:

... sure jo Kat, dont invite me for coffee, or is this a non-smoking room??? Been trying to get that monster off me as well as GOOBER! :Doh:

and to all hope all is well, spoke with my attorney about 30 min ago. she wished me luck in handling my own appeal and asked when the check will be in the mail?

johannakat

01-26-2007, 03:45 PM

I'd be saying something to your lawyer like thanks for all your sound legal advice and what a great job on my case...really great, thanks

and Mark, you are always invited for coffee........PM me for the exact time and location!

Johanna

Jo*mar

01-26-2007, 04:02 PM

If we use a good rifle scope like this -

http://i137.photobucket.com/albums/q219/turbojo84/VX-III_4_5-14x50_LR_IR_p.gif

We could surely miss you Mark -and hit only Goober:eek:

{ I did have 2 scope pics showing but removed one}

dabbo

01-26-2007, 04:22 PM

I like how it BLENDS IN URBAN ENVIRONMENTS i mean...umm...uhhh.....:D

Jo*mar

01-26-2007, 04:28 PM

Oh i see what you mean-LOL
It sounds bad huh
{ took that one off}

astern

01-26-2007, 05:37 PM

OK, hold still Mark, I'll get Goober with this here lazer site. :wink:

please note this photo was taken pre-surgeries... I could still hold a weapon, but by now had lost all ability to aim.

gibbrn

01-27-2007, 01:04 AM

Hi guys,'
this message is for everyone! I want to say thanks for being my community and being my ears and assistants......I feel I have many friends here and want to say thanks to everyone who is here. I don't know what I would do without you all.......thanks guys:grouphug:

love and hugs
Victoria

Jo*mar

01-27-2007, 01:16 AM

Thanks to you and lady parrot for the MSN TOS site - all the articles and such - it really helped me to figure things out.

the 2004 hand clinic really was a good one - lost my saved copy when my hard drive crashed though.

If you ever have time send me a copy via email and I'll try to put it on my website- if it works we could do more of them.

gibbrn

01-27-2007, 01:20 AM

You were able to access the pics and articles????????????????????

I have just sent off another complaint to msn about not being able to see the articles and pics I got some great ones today that need posting...... somewhere........here there is not enough space....... I have all the articles and can put them into one large pdf as I have the adobe software.....so if you wnat them as individual let me know if you want them as all in one let me know!

take care.....
love and hugs,
Victoria

Jo*mar

01-27-2007, 01:35 AM

I meant from a long time ago- that's when i had the copy of it- lost it this summer my PC crashed about the same time as BT -LOL

hey if you can put it all in one file to send lets try it-
did you get the NT email from me about the hypno CDs?
if not I'll PM my email addy to you.

gibbrn

01-27-2007, 01:56 AM

Hi Jo
think I will have to send a hard copy my ms office is acting up and I cant send things out I did send you one thing don't know if you got it

so all who want the cd's let me know I will snail mail them to ya'll just send your full name and address to me by PM and we can get you all on hypnosis....

take care all
Vic

Starla78

01-27-2007, 02:17 AM

found all my TOS buddies! I am so happy. :D
Much love to all, Shan~

DDayMBB

01-27-2007, 11:01 AM

OK, hold still Mark, I'll get Goober with this here lazer site. :wink:

please note this photo was taken pre-surgeries... I could still hold a weapon, but by now had lost all ability to aim.

With that AR-15..... and the laser sight, you can hit you can take Goober without hitting me at a half a mile.....;) I have a pain Jane Busch Master which withas little recoil that 5.56 puts out sitll hurts! I used to like my toys, 2 AKs one original Russian, the other a Checz withfolding ability, a Bulgarian SKS, my favorite ar my mini 14... this looks nothing when I first bougt it tossed a fiberforce fold-down, muzzle cooler, flash hider than my 10/22 (this ) I still shoot what a sweaty, cusom finer Oak stock, bull barrel with a glass fiber core, and a redfield 9X25 50 mm FOV that can plick chucks at 200 yards clean.. oh well, sure got the gun rights activists against me :Doh:

gibbrn

01-27-2007, 11:48 AM

Ok .....

I am getting a little scared I had better not say the wrong thing to you.....I will have to be careful from now on now that I know you have as much as the terminator's coffin of guns......lol What do you shoot (aside from Goober) or do you go to a gun club????

just curious,
love and hugs:hug:

astern

01-27-2007, 01:18 PM

DDayMBB

01-27-2007, 07:42 PM

No gun club for me. Just enjoy(ed) target shooting. No animals!! Mostly got interested for self-defense. This 'toy' belongs to my ex, he has several dangerous toys. I still have my lil .38, tho I don't know why - can't hit a milk jug at 20 paces. :mad: Used to be quite the sharpshooter.

Mark, you talk the talk. I can't say I understood much of it, but I can tell you also enjoy 'toys' and have quite the collection!!

Victoria, you are safe. :D

just an angle thing, first chamber was unloaded, muzzle pointed away and bayonet dull, though a pic of my gys tryine to capture Goober:rolleyes:

No I just used to enjoy shooting and hunting Victoria, now I can not even shoulder a gun... holding it straight hurets, lest even say the rcoil...
and Astern, that looks like a Colt AR15, basically what our troops carry, however they carrry the M-16 which has the potential to do semi auto, 3 round bursts and full auto.. only real difference is the trigger group which allows these features.. I am a life member of the NRA nad feel the right to bear arms is something not to be taken light, unfortunately, in the wrong hand any firearm is dangerous... so is a steak knife! The last few years of hunting all I did was primitive black powder... iron sights, round ball and flint lock (vs primer cap) something like that were used back during the civil war, I even made 2 of my own, than I really did not go out with intention of taking out a deer, more like an excuse of taking a day or 2 off work and go for a walk in the woods!

Dolfinz

01-27-2007, 08:02 PM

Jo*mar

01-27-2007, 08:25 PM

Ohhh - I can feel the warmth already.

I hope your moms surgery goes very well.

DDayMBB

01-28-2007, 07:33 AM

Learned I am going Florida in one more week.. (hoping I will feel better.. ) but I am going down to help my mother thru Back Surgery.. Not complaining At All.. nope.... Warmth, Beach, SUN, Animals, helping Mom and Dad...

One way ticket -Ya Hoooo..... anyone wanna come ???? I promise I will bring some sun and warmth back with me....

Hugs,
Dolfinz

Finz, that is a terrible way of having to get there and pray that your moms surgery goes well! I can say yes I would love to go, my parents are doing their annual trip down on Tuesday... usually they go for 1 month, though this year they are going for 2... I would be happy one day in the 80s... may I wish you a safe journey and hope allgoes well Mark-n-Goober

DDayMBB

01-28-2007, 07:36 AM

TODAY I... hope everyones pain levels are down and that all are free of any troubles with life:)

GOD BLESS one and all !!! GOOBER-n-MARK

gibbrn

01-28-2007, 01:18 PM

Today I want to thank all of you for your help and kind words and research. I don't know what I would do without all of your assistance and mental sanity restoration!! You all GET IT like nobody else in my life can so thank you all for that!!

Ditto to what Mark has said about pain free days....mine is 7-8 out of 10 today but I had a really nice time at a Burn's supper last night at our local army mess hall quite a memorable and ambient event....loved it and my Dad was singing two of burns songs so it was extra special......

love and :hug: to all

thanks!,
Victoria

DDayMBB

01-29-2007, 06:57 AM

Today I... just have to tell Vitoria that the only way to remain sane is through INSANITY:D

Smiles and light hugs to all:) :hug: Mark-n-Goober

dawn3063

01-29-2007, 10:17 AM

Hope that positive results come to everyone :Head-Spin: As well as those warm sunny days... :circlelove:
((Hugs to All)) :grouphug:
Dawn

dabbo

01-29-2007, 02:15 PM

Am glad that Dawn is doing well post-op. I'm also wondering... those of you that said you had a choking sensastion - are you talking about the front/side of your neck near the collarbone? thats KILLING me today, and its a relatively new pain. Short of calling the doc, what can I do about it?

Jo*mar

01-29-2007, 02:53 PM

Dabbo,
Do you mean choking like you can't swallow normally or like things are getting pulled up into your throat or like a very tight necked sweater is on you?
If the latter that was scalene & SCM spasms for me- pulling up on the top rib and collarbones and then mine stuck like that until the PT guy did a rib mobilization and dropped it all back down.
I don't know how it would work during active spasms though.
mine were mostly resolved by the chiro- just some residual tightness that went away after the rib mob worked.
If you have a PT or DC that will try it or a friend:) - i have a description posted on here somewhere.
but first time might be best with a pro to see if if helps or not.
Peter Edgelow uses that as part of his tx plan.
http://www.edgelow.com/

Jo*mar

01-29-2007, 03:09 PM

found it-
http://neurotalk.psychcentral.com/showpost.php?p=45188&postcount=2

dabbo

01-29-2007, 03:40 PM

Thanks for the link Jo - you hit the nail on the head- its like wearing a tight-necked sweater on half of my neck. Its kinda depressing that when the doc/pt and seem to get the pain manageable, something new and different pops up. I'm usually all for variety, but not in this case!!

dealingwithtos

01-29-2007, 03:47 PM

Today I learned that STRESSED spelled backwards is DESSERTS! Coincidence?

Jo*mar

01-29-2007, 03:55 PM

Hi dealingwithtos,
{catchy name- LOL}
Welcome to the forum- we have a brand new- New member forum if you'd like to say a hello to the whole site.
http://neurotalk.psychcentral.com/forumdisplay.php?f=88
or we just have one for the TOS forum up in the sticky section above.

Jo*mar

01-29-2007, 03:56 PM

Dabbo i posted the rib mobilization as it's own thread too- so it will be easier to search up at any time.

dawn3063

01-31-2007, 11:51 AM

I would have to say is not one of my best days.. My right arm and chest are quite sore.. I also have a very sensative area on my inner arm..:Sick: Well, I guess every day can't be a good one..
I think I better stay off the computer for a bit and get some :Zzzz: Ughhh
I wish everyone a low pain day and warm sunny days..
Gentle Hugs :hug:
Dawn

Jo*mar

01-31-2007, 12:27 PM

Dawn do take it very easy now- even when you are feeling good OK?
let your self get healed from the surgery first.:grouphug:

DDayMBB

02-01-2007, 03:27 AM

Today I... think Doc John,Curious and Jo had a very nice idea in presenting the forum to the memory of Dee... such a shame at such a young age to have what helped her, take away her years!!!

Pass along to Dawn, please do not over do like the one Dr I had who did a discectomy on me said " I can place limitations onyou, however your body will relate what it can and can not do" and advised paying close attention to what it said!

BTW has anybody heard from Barb Edelweis as of late ???

Hope all have a good pain free day;)

Edelweiss

02-02-2007, 07:20 AM

finally found some minutes to enter to forum....
I have a lot of work as there are troubles with sick children and others are on holidays,...... So it`s up to me to handle all this stuff at work.

But: yesterday I was again at the massage therapy and he told me the muscles were so tough and therefore my arms hurt so much. I felt much better in the evening but today the tension is back again.
I will do absolutely nothing this weekend and I start in this weekend with a visit at the hairdresser this afternoon.
Beautiful and lazy - that`s the motto of this weekend!:) :) :)

I hope and wish that you all can have a painfree or painless weekend.
Until monday, Barbara

Edelweiss

02-02-2007, 07:22 AM

Mark, the idea to present a memory of Dee is a good one - if I can do something, please let me know!

Bye, Barbara

Jo*mar

02-03-2007, 01:10 AM

Barb and all - i hope you have a restful and relaxing weekend

gibbrn

02-03-2007, 11:50 AM

wishing to all a relaxing and as pain free weekend as can be!!!

love and hugs to all:grouphug:

Victoria

Dolfinz

02-03-2007, 04:20 PM

Off to Florida tomorrow hopefully will be feeling better when I get there...

Dawn take care of yourself and get the rest you need.. we will always be here for you or anyone !

Hope everyone has a pain free weekend and till next time .. Ciao

Dolfinz

Shelley

02-03-2007, 09:20 PM

Today I...am thankful for the beautiful day. It was just gorgeous here..Sun shining, warm and the color of the sky wa an amazing blue. I rolled the windows down, cranked the tunes and went for scenice drive. Felt good to be alive :ROTFLMAO:

gibbrn

02-04-2007, 12:33 AM

Aside from my what should have been a three hour drive....(ok tour.....got it thanks guys.....) took me eight hours and was drive from hell...I litterally prayed to God every minute of the drive to stay alive! I was so afraid but so glad to be alive at the end of it....there was a 20 car pile-up and a huge tanker of fuel which had 90ft height of flames.....was really bad but thankfully only 2 deaths so there was a huge bypass on the highway due to the damage to the ashphalt as the fire and flames damaged the road so badly......

We got three more inches of snow today....couldn't drive today .....so had to walk to get the red put back in the hair....lol

take care all and enjoy the sunshine!!!

love and hugs,:hug:
Victoria

Dolfinz

02-04-2007, 07:49 AM

gibbrn..
Oh my god !! We had a 100 car pile up yesterday in NH.. which is only 1/2 hr from me.. no deaths thank god... Doesn't winter stink.... off to Florida !

Shelley

02-04-2007, 10:45 AM

Dolfinz...My Dad lives in NH 1/2 mile from Mass....Ack I can't reach anyone. :confused:

Shelley

02-04-2007, 12:02 PM

Phew everyone OK. The 100 car pile up from less than 5 miles from Dads. Stepmom works at hosptial said it was crazy. Was worried because I have two step brothers in their teens and they are new drivers. But everyone ok:)

Peg24

02-04-2007, 01:01 PM

I have been looking and listening to the news to find info on this pile up in New Hamapshire and haven't seen anything. What part of NH did this happen in?

Peggy

dawn3063

02-04-2007, 03:02 PM

Want to say Hi to Everyone and it looks like I am back to the land of the living for awhile...
Hubby went out and bought me the Dragon naturally speaking for my PC. So now I can come back on and gab without using that old keyboard... :Dancing-Chilli: What a guy he is.. :heartthrob:

The days following my surgery went great. But last Tuesday I began getting a burning sensation underneath my right arm between my elbow and the old armpit. The entire area has become so sensitive I can barely touch it. My greatest fear is RSD. I see the doctor on Thursday for my two week follow-up visit. I'll know more at that point I can only hope that it's just a nerves issue from the surgery. Otherwise everything else seems to be going ok other than some inflamation.

Wow,Peg I'm so glad that the tornado did not even come close to you. How scary that whole thing was my heart goes out to all the people that were affected by that whole thing.

Shelley, I'm so glad that your family was not anywhere near that pile up when it occurred. Enjoyed the sunshine and the warm day today roll down your window and crank up those tunes :ROTFLMAO:

I wanted to wish everybody a great Super Bowl weekend. May your team win:winner_first_h4h:

((Hugs))
Dawn :hug:

Stardust

02-04-2007, 07:47 PM

Just want to say hi to all....and Dawn, I'm hoping that what you're experiencing is just your nerves acting up TEMPORARILY, just "complaining" from all those many hours of work that the doc had to do on you....Hope you hear the words "normal reaction" when you go for your post-op. In the meantime I'll be doing a little chant: "No RSD!" "No RSD!"

Edelweiss

02-06-2007, 07:55 AM

say "hello" and wish all my TOS-friends a good day!!!!:)

After work I will go to the alexander-therapy and I hope I will learn a lot again!

Nice day and very nice greetings
Barbara

DDayMBB

02-06-2007, 02:59 PM

redjpwranglergirl

02-06-2007, 03:20 PM

Shelly, I hope none of your family were involved in that nasty accident, and what good news that there were no fatalities !

Dawn, I have to agree with Stardust about the RSD, and pray that it is not headed that way... maybe time to relax yourself up a bit more !

Barb, sounds like somebody is off to be pampered a bit today !!! :)

I was wondering if anybody else has pain to the touch, in their cervical and upper thoracic spine... I have had this for about a year and was wondering if that is part of the wonders that go along with TOS or if it is just one of the other lovlies that share space with GOOBER ???

Hope all are doing well~ Mark-n-Goober~

Mark,
I've had pain to the touch in my C-spine area for YEARS and nobody seems to be able to explain it to me or do anything about it. A couple of the doctors say, "it's muscular", which may be true but, if I press on my actual c-spine it hurts like h%@#. I'm always sore, no matter what. I'm no doctor but it just seems to me that there's got to be more going on there to cause this than just "muscular".....Anyway, today in our part of Texas, it's beautiful! It's about 70 degrees and the sun is out- I've got the windows open airing out the house.

Jo*mar

02-06-2007, 03:29 PM

Mark someone on the spinal or RSD?? forum was asking about RSD in the C/T spine. This evening i will see if i can track it down.

My C/T area only hurts if i bend over and lift anything heavy - that's why I think the one dr might have been correct about the chronic C/T spine strain part- but he didn't say a peep about TOS or myofascial pain at all. I should have just flat out asked him about it. But that drs own PT guy did do all the tests that the dr didn't do and he did feel TOS was a strong probability.
Oh got off track LOL.
But my C/T spine isn't sore on the skin or to touch at all??
just gets sore inside the muscles {I guess} when i bend to lift or reach out to lift, push or pull a heavy object. at times it feels like something is ripping or tearing or just broken???
Last summer reaching out over the couch to open or close our slider windows was a big pain maker- nedd to silicone the glides next summer{chiros suggestion}

Oh goodness we had a record 10 in the chat room last nite!:grouphug:

Shelley and dabbo were just horrible ! :winky: {hilarious!!}
just like little kids
cracking up and being totally silly:D We had a lot of belly laughs and chuckles, I'm sure - I know I did.

If any of you are up for it just log in and read - you don't have to type.
usually?? most are in around 7 pm pacific time USA

I looked for some easy time zone graphics/converters-
http://www.worldtimezone.com/
http://www3.shastacollege.edu/dscollon/images/time_zone_map.JPG

johannakat

02-06-2007, 03:29 PM

redjpwranglergirl

02-06-2007, 07:28 PM

Mark and Red-
sorry if this is a dumb question, but have either of you tried chiropractic?
do you have a full range of motion in your neck...like can you look 90 degrees to the side in both directions?

For me, chiropractic helps more with neck pain that anything else. You really have tokeep up with it though,to train the muscles and ligaments in the "better" neck position.

It is nice here, too, in Socal. enjoying the sun.

Jo- I wish I could join in the chat more, but 7PM is dinner time in our house, so no computer for me!!

Johanna

Oh yeah- been going to a chiro for many years. In fact, my chiro was the one whose office I went to work in when I was still able to do massage therapy. Most of the time the only thing that would help my neck was a chiropractic adjustment. Her adjustments do help but for the most part, no, I don't have 90 degree range of motion in my neck. I use heating pads alot and take a muscle relaxer on a regular daily basis, needed or not, just to keep the pain from being any worse than it is. The severe pain I was talking about to Mark is if I actually mash on the back of my C-spine, directly on my spine. I wondered for years if I didn't have some kind of cord impingement but have had too many MRIs and CT scans to count and they always show nothing but minor bulges.

Jo*mar

02-06-2007, 09:19 PM

oh - I can't lean against the hard back of the tub unless I have some cushioning, that hurts a bit {osteophytes?? or at the T/C junction/ hump area?} and even when the pressure is off afterward it is sore for awhile.

dawn3063

02-06-2007, 09:22 PM

turnd out to be a sucky day.. There was some tension in our house today.. My husband worries and doesn't understand alot. It seems as though one thing starts to get worked out and then another medical problem arises.. My family lives far away.. So everything gets put on his back..
My doctor never called me back and it was yesterday that I left a message for them that I had been having this awful problem with my right arm.. Which feels like a 2nd degree sunburn today.. I guess I am just so worried about this new onset of pain in my right arm following my surgry.. And praying that it is nothing more than a very irritated nerve issue that will calm down..
Sorry to vent I just needed to chat with my TOS family..
I hope everyone is doing well..
Many Hugs to everyone :grouphug:
Dawn

Jo*mar

02-06-2007, 10:02 PM

Keep calling they may have lost the message :( - was that for the surgeon or your primary doc?
some docs do have email or if they have a website {contact us} link??

Is the burning on the skin , or internally based?
no redness or unusual swelling
heat or coolness make a difference

Shelley

02-07-2007, 02:58 AM

Hi All,

Wow lot's of TOS posts today...phew I have a lot to catch up on.

Jo's right we had a blast in chat last night. Thanks guys that silliness was just what I needed to get me out of my little funk. I was laughing so hard even today. :ROTFLMAO: Dawn..where is our :icecream: ?? Dabbo and and Peg will you please move over :Crowded:

Dawn I am so sorry that you are having a bad day. :hug: I am hoping that they call you back tomorrow. I know that Shelia typically spends the whole day in the office on Wednesday so I am hoping they call you tomorrow.

Mark - thanks :o , my family is A-ok but that accident was so close to them and my step brothers just got their licenses' but Dad says they are not yet allowed on the highway so all is good.

Mark to answer your question before the surgery I totally would have pain if someone just touched by C or T spine area. Especially at the CT junction like Jo said...youch! :eek: FOr the last year I could not even lie or go to sleep on my back, had to sleep on side. Touching or laying on the CT junction would cause pain plus weird chills down spine all the way down legs. And it would maek that choking feeling even more worse. And after trying to lay on there it would be sore for a while. My chiro did a special adjustment for CT junction that helped the pain in that area and totally made that hump decrease significantly.

Sometimes the pain and burning in the T-spine was awful. But MRI showed nothing at all. I also thought maybe osteophtyte or cord impringement but nothing. It was totally frustrating and perlexing because there was so much pain there but no proof that it should hurt there.

Now since the surgery I can again finally lay on the CT area. The doc explained that he thought it might have been caused by the TOS especially that the long thoracic nerve passed through the middle scalene or was entrapped by it and being crushed by it. During surgery he did freed the brachial plexus, long thoracic and spinal accessory nerve and now the pain is down significantly.

Funny though I wonder about RSD in that area because even though the pain is down even the lightest touch there will cause me to still have those spinal chills and tingling all the way up and down my spine.

And like Jo, I feel it in the C/T junction if I even try to lift something heavy.

TIme for bed :Yawn:

Painfree day for all tomorrow :p

DDayMBB

02-07-2007, 06:36 AM

No i have had spinal problems of numerous sorts over the last 15 years, my ROM is restritred due to C5 thru C7 being fused, multiple osteophytes, spondololetehsis (where one vertebrae glides over another) this C4 in Respect to C5 and a broad based herneation @ C3/4 with naroowing foamina throughout C3-7, though evry symptom in the past with the spine has been via nerve roots and not to the touch at the spine! Thanks all for all the replies;)

red yeah it does hurt like H E Double toothpicks, so a message is not in the pic... though would take some of that warm weather my thermostat here at the house is showing -4 F this AM BRRRRR !!!:eek:

Jo getting older, maybe I am just now noticing pain, I was able ignore prior or could be that have many things going on these days... TOS, CRPS/RSD, Fibromyalgia and the old stand by which has not reared its ugly head in years so I may be due Cervical Disc Disease UMPH:confused:

Dawn you know here you never, ever and positevely not ever have to appologize for venting here... you are among caring friends:grouphug: Do hope all worked out well:)

Yeah does seem to be alot of people wandering about, though always nice to catch up on what is going on with others!;)

Goober is thinking about coming to pay a visit to all that are having that warm weather, though no trips in my near forcast, so all-i-all take what I get and wish all a good day!!!:winky: GOOBERS HOST~MARK~

Edelweiss

02-07-2007, 07:39 AM

can also talk about c-spine troubles. In fact, I don`t have c-spine troubles - this is what docs say, it`s only a over-stretching.
I find that massages sometime help me and after a walk outside, I feel much better.
Today I am a full-power-woman. I have a lot of work these last 10 days (in fact we often are only 2 people at work instead of 6 - illness or illness of the child, holidays, formation,....)and today, clients came in all 30 minutes from 08:15 o`clock on. But I am as a rock - I resist and am not stressed. And I am so proud of me - after all, I should not forget, I am a TOS patient!!

The alexander-therapist said to me yesterday, that until now we always worked on the physical problem but "you are more than a personified TO-syndrome". I liked this very much - and yes, that`s true!:)

Wish you all a good day! With sunshine and agreable temperatures!
Barbara

dawn3063

02-07-2007, 11:03 AM

Want to make sure that Shelley and Dabbo don't :mf_swordfight:
Behave and I'll get you guys your
http://i141.photobucket.com/albums/r58/Dawn3063/IceCreamLanding.jpg
So :hug: and share your seats.. and no more :Poke:
:grouphug:

dawn3063

02-07-2007, 11:21 AM

Things are better.. We talked.. I think it is not only hard on us but so much of this is hard for our spouses, family and friends.. I know I take some things for granit with my husband I just asume he knows.
I see my Doc tomorrow so I'll know more then.. Positive thoughts my way.. :p Because I know my thought have been way negative latley.. I guess I just look at the dark side of things :Hum: and then you automatically think your :Sinking:
So I just will let the Doc's make that final decision for me.. :Deliberate:
:grouphug: to all
Dawn

Jo*mar

02-07-2007, 11:28 AM

- I missed chat last nite -
-daughter went to a bball game at school so had to go pick her up, plus I had been playing on the 'puter too much during the day and neglecting my exercises and stretches.
So I did a double dose of those last nite and will be sure to not skip them again.:wink:

Edelweiss

02-08-2007, 08:37 AM

can tell you that I am so happy that this day is nearly over - only one more time this week at work.
Yesterday I was full of power, today I am still working for 4 people but the power falls down. Happily, the weekend is near!!!

I wil go to a friend and visit her new appartment after work...and then back home and I will be a couch-potatoe for the rest of the day. Thursday, the bring CSI and other (criminal) series on TV and that was it for today!

Good day and a nice hello to everyone,
Barbara

dabbo

02-08-2007, 01:44 PM

today I.... got whatever stomach bug is going around. yuuuuuuuuuuuck. :Sick:

I also hope dawn is feeling less pain today....

Shelley

02-08-2007, 05:26 PM

Uh Oh Dabbo...too much ice cream ...more for me :D

Today I...went to PT. We worked on lower back issues because sciatica acting up lately. PT said well...it looks like your butt muscles are atrophied...I said Seriously? Seriously ? I said have you looked back there? It doesn't look atrophied to me. She said yep...your butt is broken. I was :ROTFLMAO:

So now I have TOS and a broken butt...figures :eek: ...LOL

dawn3063

02-08-2007, 10:21 PM

Went for my 2 week post op follow up visit at the surgions office and had seen the Nurse practisioner. We had a good visit. She told me that she is pretty sure that the burning in my arm is from the ulnar nerve. She said that it was very entraped and compressed with scar tissue. When the ulnar nerve is compressed such as mine was and once it is released the nerve will start to wake up and cause a sever sensativity and burning sensation. She still wants to run a couple things by my surgion such as the color change and the coolness in my right hand. She said that is not normal for the ulnar nerve. He was in surgery today so I will hear more tomorrow. If infact he is concerned that this could be the start of RSD they will schedule me for a SG Block asap. She said that she has not seen any signs of RSD on me in the past and that it would be unusual for it to occure so soon after surgery but not impossible.
She told me to wear the Lidoderm patches and she ordered a special cream that is made at a pharmacy in Bevely Hills that will be mailed to me that is suppose to help calm the burning sensations from the nerves and I will use that when the lidoderrm patches are not used.
So I will take it easy and wait to hear from them tomorrow. Keep your fingers crossed. :winky:

Dabbo-I sure hope that the old stomach bug is gone soon. It just is the worst when your sick. It seems to make the TOS worse. Sorry Guy no more Ice Cream for you..:winky: at least for awhile.. Get some :Zzzz: And hope you feel well soon..

Shelley-I'm so sorry that your butt is broken..:holysheep: too much over crowding on the old couch by dabbo and peg:Crowded: thats ok more :icecream: for you..

Peg-I hope your Big day today went well at work :laptop:.. Get some rest so we can catch you in chat later..

Barb-I hope that you were able to be a couch potato.. Sometimes that is the best..:Popcorn: especially with CSI on TV.

Ah, and at last Greys Anatomy is on tonight.. A must watch.. :heartthrob:

I hope that everyone has a great night and a pain free day tomorrow..

Many Hugs :grouphug:
Dawn

Peg24

02-08-2007, 10:31 PM

Dabbo,I hope you got over your stomach bug, and I sure hope you don't give it to the baby.

Dawn, I'm glad to hear that you did get some answers on your arm. I will say alittle prayer that it is not RSD you are looking at now.

I also wanted to tell you that those dogs are so cute!!!

Hope to see you all in the chat!

Peggy

redjpwranglergirl

02-08-2007, 11:37 PM

Hubby and I went to see the movie, "Pan's Labyrinth".....the special effects are awesome but it's definitely NOT a movie for kids.:eek: I had read about it before it came out but it was quite a bit "worse" than what I was expecting, as far as the violence in it. All in all, quite odd....but I expect it to win an Oscar for best foreign film.

Stardust

02-09-2007, 06:29 PM

Very happy to hear that the nurse practitioner doesn't seem to think you have RSD. Did you hear back from the doc today? Are the lidoderm patches helping? Hopefully you're feeling a little better by now.

Everyone who examines me comments on how cold my hands are, and I know they are always thinking "possible RSD." In my case though, I always have to explain I've had cold hands my whole life. "Cold hands, warm heart...." and all that. :wink:

Hope the doc is in agreement with the nurse practioner. Keep us posted.

DDayMBB

02-12-2007, 03:43 PM

TODAY I... have fallen so far behind in being able to address everybody as I, usaully do and feel so bad about doing so, however, been lurking abou and reading over al the differents threads in out home space! I do feel bad about doing so, but just been haveing weird pains in my arms, bi-ceps and shoulders that has kept me away forom typing. I truly do hope you all know, that my love, thoughts and concerns do go out to one and all here within our famliy here! I contribute this to the cold and little fronts pasing so that I just have not done so, so I ask forgiveness in this area! I was wondering, if anybody would be intrested in getting together and devising some sort of a charter (non-profit) so that we could speak out and just let the legislators recognize this nasty disease, so that we are not fighting our problems alone and letting Washington DC (for those of us in USA) expand some research that may eventuality help others, I think most I am already a pain in the butt with my, congressman, senator and any one else that will listen to help with our cause!
My SS case and workmans comp cases are not getting ahead, and being quite I do not think they can fathom just far teh effects of the disorder go, especially being able to work and try and carry along all that goes along with us. Many here are not just, afflicted with TOS, but have cervical disc disease and RSD/CRPS, that it is about time we deserve recognition of what we live on a dialy basis.
I am preparing for my brief to the WC, appelate board, the Judge weems to think the accident should and could have beeen prevented at the risk of being runover or worse amd called my testimony not credable, but it take s a person in the cab to add air to the braking sytem and (especially after 2 mechanics "said the brakes were in working order"), though he threw out two so called witnesses than turned around and used their testimony in over all ruling in the case... so now I have to go befor the appelate panel of jusges to clear this up! Than I have the SSD board saying I do not qualify that , I can lift and carry, just like going to the store, I carry bags of toilet paper and such... the system is not fair, I would love to be out of the house working, but their interpetation of what I can do is nill!
If anybody is intrested in gaining a bill into congressman, the house and up the food chain, just to let one know what all this is about! I worked since I was twelve (pickin apples, mowing lawns and chores of many sorts) and think time for awareness and changes need to be implented! It is not a fact of being lazy and just like many of you this *hurts mentally, which adds to out physically health* otherwise they just keep on turning their backs on us! Please feel free to PM on what you think, because if this keeps going on, times will just keep on getting ignored and not helping us one bit!!!!
Maybe we can be the wrench in the gears !!!
Certainlly hope to do some head interlock.. my thought to all and hope all are safe, free of pain and asking that the father, son and holy ghost are with all now and future... God Bless!!! Mark-n-Goober !!!

Edelweiss

02-13-2007, 08:50 AM

jumped in the forum to complain about the construction work in the office over me!!!! but now as I read Mark`s mail, I think there is much more important to write than about the noise....

-the idea with the charts is good, but I cannot help very much as 1/ I am not in the US and 2/ I am only a "light" TOS patient and does not represent the pain what some among us live everyday

-as I already said in former posts, I cannot understand why the working comp does not grant you the treatments, money... You were tested and you have a diagnosis and the case is clear: in this situation with these pain and handicap in moving, you cannot continue working as you did in the past.

-and I am really sorry to read, that not only you battle for the treatments you also have still the troubles to find out who is guilty for the accident.
sometimes, I ask myself where from do you take the energy to fight. since the beginnig, this is "your" topic and I take my hat off to you. You are so courageous!

All the best and take care!!!!

To all other readers here I wish a good day!!!
Barbara

dabbo

02-13-2007, 12:41 PM

Today I... hope that people (*cough* lawyers and judges *cough*) start being more reasonable for all those dealing with workman's comp.

I also wanted to say that I'm SICK of the constantly changing weather conditions down here. It was 55 when I went to the gym at 5:30, and it'll be down to 25 by tonight. :eek: I need to hit the powerball and move somewhere that is 80-85 and sunny all year.

DDayMBB

02-14-2007, 09:00 AM

Today I do wish all a HAPPY Valentines Day and pass along a :hug: to all, lightly of course!

Today I....also feel sorry for my wife, she is outside running the snowblower, which up to this time has been my job! I went out to start it for her (thank God it is electric start), but just in that short time my hands are on fire! She just started a new job and this AM she was vommiting part of the morning and called off... now she is in fear of losing her job! Feel so much like a slugthe ultimate of feeling emasculated :Wheel:

...... My thermometer reads 6 F and this is not out in the wind, all I have to say isn't winter wonderful!

TODAY I want to share thought and prayer unto us all, and I may ruffle a few feathers in the process, but have to.... May the Lord watch over us and help those who are in dire straights and feel like giving up, that he may shine his light and ever loving grace and allow us all to be free of pain and bless those individuals who care for us day-in/day-out as they are the true heros! May God bless one and all!!!!!!!!!
Mark-n-Goober

Jo*mar

02-14-2007, 11:32 AM

Mark you can't help that you got TOS and RSD- so it's not your fault.
But I can imagine it is a role reversal for sure and hard to adapt too.
I hope the new employer will realize that they don't want a very sick person to come in to work - thus passing on the "bug" to others.

Barb, it's the work comp ins companies- they will deny, stall and delay as long as they can hoping that the injured one will give up and settle for a pittance or go back to work somehow because they need money to live on.
If there was a test that could actually read pain levels then there could be proof, but for now there is no test other than the patients word & actions.

gibbrn

02-14-2007, 01:46 PM

Hi guys,

Just wanted to say happy Valentines Day today and hope that you're all treated well by your Valentine or if you don't have one that you treat yourself well!:D

Love and hugs,:hug:
Victoria

marabunta

02-14-2007, 03:12 PM

Today I...had a major brain fart!

We were late for the baby's 6 month check-up so I:
1. Drove when my wife could have...(guy thing)
2. Dropped my wife off in front of the Dr's office to register ontime while I parked the car...(guy thing)
3. Didn't ask her to take the baby and/or diaper bag-didn't have the stroller either, so I carried them both in! (couldn't leave the baby, right?)

So during the baby's appointment, while holding her on my lap, I had the most intense and localized pain in my left index finger-I mean writhing in the chair and swearing under my breath from the sudden onset and intensity. I had to ask my wife to take the baby right away(duh, finally doing it the way I'm supposed to-ASK! - instead of handing off). She's used to this, thinking I just got stabbed, which is a pretty good assumption.

I usually don't get pains that localized in my extremities, the stabbing ones tend to bounce around if my hands/arms are involved.

Now I need to restrict myself from picking up the baby for the rest of the day:( , which isn't too hard since I'm working today (at home). But it just sucks...my scalenes are raging at the moment:mad: and my hands are cold.

Time for a diaphragmatic breathing break:)

So Mark, I'm there with ya! I hate watching my wife mow the lawn, bring in the heavy grocery bags, firewood, etc. That's one reason I haven't bought any firewood this winter.

marabunta

Peg24

02-14-2007, 03:29 PM

Guys,

I hate to tell you, but the women with TOS have the same problems. I hate sitting and watching my husband vacumm the house, fold the laundry and make the bed. Makes me feel pretty guilty at times.

But, I will tell you this. I am so thankful everyday that I have the most understanding and patient husband ever. If I didn't have him there to help me, I just don't know what I would do.

He does it with love, and never complains!

marabunta

02-14-2007, 05:39 PM

Peg,

Thx for the reminder...my wife is wonderful, always keeping an eye on what I try to do or do subconsciously.

We've had to do this for each other, last year she was the one more laid-up than I, on pregnancy bedrest from 12 weeks on due to our loss of a twin:(

She's never been disabled like that before, she hated watching me do everything. But she wound up with a better understanding of my frustrations with what I can't or shouldn't do.

I do think somehow I saved everything for one big gigantic flare after the baby was born in August, and it didn't settle down until going on Lyrica Thanksgiving week!

redjpwranglergirl

02-14-2007, 06:04 PM

Today hubby and I have been married for 32 yrs.! And he's sick in bed.:(
Mark, I can understand how it makes you feel, having to watch your wife do everything, but I'm sure if the situation was reversed you'd be taking care of her and doing everything you could to help her or to keep the house going. For many years it was my husband who was sick with numerous serious ailments, then for several years it was BOTH of us:( , and now it seems to be me having so many different problems aside from the TOS. So, that's just one of the things that goes along with being married and being there for each other and taking care of each other. I hope your wife is feeling better soon and happy Valentines Day to everyone!

DDayMBB

02-15-2007, 06:43 AM

TODAY I..... DO THINK THAT ALL OF OUR PARTNERS, FRIENDS, SIGNIFIGANT OTHERS DESERVE AWARDS FOR HELPING US ALL IN WHAT WE TRY AND DO!!!

................THINK THAT LARGE COMPANIES (CAN NOT MENTION THE NAME OF MY EMPLOYER) HOWEVER CAN SAY IT IS A MAJOR SUPPLIER OF GAS and OIL! NEEDLESS TO SAY THEY HAVE LAWYERS FOR THEIR LAWYERS AND THE LITTLE GUY GETS SCRE%ED AS THEY EARN BILLIONS!
All I wanted them to do is try and help me get back to semi-normal and just to cover my surgery and spot me a little money in the intrim, I ask is that to much to expect ?

TODAY I.... am also ready for summer to com along, yesterday/last night mother nature decided to drop appx. 1 1/2 feet of snow on us and the thermometer says -2 F with wind gusts that are causing drifts so as soon as they clear the roads they cover right back up!

TODAY I.... complained enough so guess, I will go take a shower, warm up and crawl back into bed...maybe if I could get relaxed!

TODAY I....I know I am starting to bother everybody but have a question for all.......does anybody get "picture in a picture" double vision, my left eye blinks and and other times closes... It is strange and this does not cover what totally happens, but a good example! Hope to hear some feedback on this!

TODAY I..... REALLY HOPE THAT ALL HAVE A GRRR 8 DAY AND HAVE A PAIN LEVEL OF ZERO!!!!!!!!!!

MARK-n-GOOBER

astern

02-15-2007, 08:07 AM

...want to whine just a little bit. Weather? also caused me to go into a flare at 3am... and I just had relatives come in from Montana! Have been charting the weather maps to try to identify when a flare would come, but it didn't jive with this flare, so now back to square 1. :mad: Also, BF slacked on valentines... among other things. Starting to have doubts on this relationship. Friends - absolutely, but s.o? having to rethink this. :( The tension and stress is going directly to my scalenes.

Prayers needed and offered.
A.
:Thanx:

DDayMBB

02-15-2007, 09:02 AM

Hey A,
Sorry to hear about you being blown off on VD, I myself felt guilty, due to my money situation all I was able to get my DW was a card! But that is all I was able to afford... it does not mean that I was thhinnnnnnking about her, just wish could have done more! Let me share a :hug: and hope your day brightens up for you!!!:)

Mark-n-Goober

dabbo

02-15-2007, 10:44 AM

I think theres' nothing wrong with 'just' getting a card, so long as you put some thought in to it. I hope it warms up up there some time soon Mark. And A - i know those weather changes have given me hell the last week or so. I'm in memphis, and that 30deg drop from tues to wed. am was just awful. i wish i was a beach boy! like i said before, i just need to hit the powerball and move somewhere its 80-85 and sunny year round. :D I'm sorry that your s.o. blew off V-day A....that sucks. I've been "that guy" before tho.

Jo*mar

02-15-2007, 11:51 AM

Mark on the vision eye thing - mine doesn't do any of those you mention.
I just get the extra watery right eye and vision gets a little blurrier during flares/tightness. The spasms did make my astigmatism much worse - I think that why the progressive glasses never worked for me. Totally made me dizzy in 15 minutes every time I tried to wear them.

I think those holidays are just a big commercial thing anyway.
It's not really what is bought- it's what you do and how you are every day.
Loving, caring, hugging, sharing, and snuggle time too.

DDayMBB

02-15-2007, 07:25 PM

TODAY I.... just got off the phone with a member of the old forum, which, I am sure most of you from the past will know "COOP" from California... he told me some great news, that about a month ago, he took a new bride and that this young lady came into the relationship... knowing full well about him having TOS and she has no problems in accepting all that goes along with the disorder! I wish him and her a long and happy lifetime together and hope to see him stop by here now and again!!!:hug: :Bride:

...... Dabbo and Jo, regardless of these holidays just being a commercial deal, I still would like to be able to be able to give something that is well deserved to my special lady! I know she does not expect or want anything, but I guess a part of me feels guilty in not being able to provide something for the love of my life!!! :Heart:

......am releived that my uncle, came out of surgey after having 5 blockages cleared up and having his atrial valve fixed... and is doing better at the moment than the doctors have expected!!!:)

......and like I posted elsewhere in the TOS board a Welcome to 3 new members... Cindy J, Rhonda and Teach 2.... hopefully they can take advantage of the information that so many of our members can give them! There are so many individuals over here that have a wealth of knowledge, which I can say personally have been a tremendous help to me!!! :Clever:

Mark-n-Goober

tshadow

02-15-2007, 09:46 PM

Mark,

You are always so kind to everyone. I do hope God gives you relief soon. It pains me to see such a valuable person suffer as you do. Please hang in there for us. We have a LOT of love for you.

:grouphug:

Edelweiss

02-16-2007, 05:54 AM

am happy about the news from COOP! There are some good surprises in life sometimes!

V-Day is not my favorite day and so this year with BF we decided to ignore it. I think this was a good decision.

I am tired - I wrote in former posts that we have a lot of work to do (as the working mates are on holidays, sick,...) and I am so happy that this will be over next tuesday. These last weeks I had the office responsibility and on thursday the "boss" will come back from holidays(4 weeks) in latin america.
So I will continue working normally without extra work!!

I wish you all a very agreable and fine weekend - without pain (or low pain level)!!!
Barbara

DDayMBB

02-16-2007, 10:01 AM

Today I.... was wondering in addition to the vision problem, if anybody has a problem with swallowing.... it is almost like I have to think how to swallow!?! So I end up chewing and chewing till whatever is ground enough to almost be in liquid form and even than have to take a sip of water to get it down... I know this sounds strange but this happens frequently!?!

My best to all:grouphug:

annhere

02-16-2007, 11:33 AM

Yes.....and sometimes I feel think I'm choking. Since my plate ) Fusion C4/5-C5-6) was put in I thought it had something to do with it....But I believe it's complications from the TOS now....I also cannot stand ...I mean totally bugged out if I wear a scarf of any kind. The weight of the thing of my neck feels like the fridge.....LOL

Ann

HopeLivesHere

02-16-2007, 07:37 PM

I have the vision problems too. Several kinds of problems.
I have both TOS & RSD.

There seems to be 2 different swallowing problems.
The one where it is hard to swallow and one ends up choking OR
the one I have is like a paralysis of the muscles used in swallowing.

There is no choking with this type of problem because no food goes down.
The muscles don't move. I keep trying but the muscles won't work.
Almost like they are paralyzed.
Sips of water make it worse because it is just something more in my mouth that won't go down.
I have to remove the food from my mouth. I know it sounds strange.
It seems to come with a fatigue that's so bad I have to go lie down & I go right to sleep for several hours or the rest of the night.
Sounds like myasthenia gravis but it hasn't gotten worse. Hope

dabbo

02-16-2007, 08:35 PM

Today I .... decided that my least liked word is "IDIOPATHIC." I heard it. again. as in "Idiopathic (Primary Central Nervous System) Hypersomnolence. thats a mouthful! so...more medications...yipeee. well, here i got to google the above phrase :confused:

Shelley

02-16-2007, 08:49 PM

New term...IDIOPATHETICDOCS

Jo*mar

02-16-2007, 10:09 PM

yess - swallowing troubles !!

so many times i will take a drink and it will go down the wrong way or something happens so i nearly choke.
if I forget and turn my head a little while drinking i can't swallow at all till i turn my head straighter!

VERTEBRAL ARTERY SX of TOS

DIPLOPIA, = double vision -Diplopia may also result from failure of both eyes to point at the object being viewed, a condition referred to as ocular misalignment
DYSARTHRIA,= slurred, slow, and difficult to produce (difficult to understand). The person with dysarthria may also have problems controlling the pitch, loudness, rhythm, and voice qualities of their speech.
DYSPHONIA, = interruptions of speech and affecting the voice quality. can cause the voice to break up or to have a tight, strained, or strangled quality.
DYSPHAGIA= "difficulty swallowing". It derives from the Greek root dys meaning difficulty or disordered, and phagia meaning "to eat". It is a sensation that suggests difficulty in the passage of solids or liquids from the mouth to the stomach.

http://tos-syndrome.com/newpage12.htm

Shelley

02-17-2007, 06:02 AM

Today I am grateful...and I thank you all for your unconditional support and love. You are all such beautirful wonderful people and I am so grateful to each of you for coming into my life. And however afflicted we all are I am grateful to God for this path I am on because I never would have met all of you. We are a powerful family here. God Bless you all

gibbrn

02-17-2007, 04:36 PM

Idiopathic is an adjective used primarily in medicine (http://en.wikipedia.org/wiki/Medicine) meaning arising spontaneously or from an obscure or unknown cause. The combination of Greek (http://en.wikipedia.org/wiki/Greek_%28language%29) roots means approximately "a disease of its own kind."
It is technically a term from nosology (http://en.wikipedia.org/wiki/Nosology), the classification of disease (http://en.wikipedia.org/wiki/Disease). For most medical conditions, one or more causes are somewhat understood, but in a certain percentage of people with the condition, the cause may not be readily apparent or characterized. In these cases, the origin of the condition is said to be "idiopathic."

idopathic hypersomulence......would mean very sleepy for unknown reasons....hyper....is a lot or increased amout....somnolence.....sleepyness.......

People suffering from hypersomnolence, sleep an excessive amount of time at night, take long naps during the day, and generally feel drowsy and distracted when awake. This serious neurological sleep disorder (http://www.wisegeek.com/what-are-the-different-types-of-sleep-disorders.htm) can be permanent or temporary, yet it's (http://www.wisegeek.com/what-is-the-difference-between-its-and-its.htm) often misdiagnosed. Hypersomnolence can be related to a genetic predisposition, caused by another health condition, or idiopathic, which means it has no known cause. http://www.wisegeek.com/what-is-hypersomnolence.htm

love and hugs,:hug:
Victoria

DDayMBB

02-18-2007, 06:49 AM

TODAY I... am filled with sorrow... the uncle that I said went in to emerbency open heart surgery has passed on to the other side of life! Him and my aunt were loke second parents to my brothers and my self and their daughter was like the little sister we never had! Their property joined ours and their house was only about five acres away from ours! My poor wife was devestated as her dad passed away ten years ago yesterday!

Please treasure the ones we have while they are amongst us and have faith in rekindling our bonds when we shall meet again in the place of rebirth!!! God bless all!!

Mark-n-Goober

Peg24

02-18-2007, 10:31 AM

Mark,

I'm so sorry about the loss in your family. Seems so many of us these days are dealing with this and its tough.

You and your family will be in my prayers.

Take care my Friend!

Peggy

buckwheat

02-18-2007, 10:46 AM

Dear Mark,
I am so sorry to hear about your loss of your uncle. You and your loved ones will be in my prayers. Hang in their my friend, Roz

DDayMBB

02-18-2007, 10:50 AM

Shelley

02-18-2007, 12:15 PM

Dear Mark,

I was so saddended to hear of your loss. You and your family are in my heart, thought and prayers.

God Bless

redjpwranglergirl

02-18-2007, 12:42 PM

Peg... I really do thak you for your condolences... my uncle was highly involved within the shrine and some of his last words, which were somewhat dismissed that he did not want flowers at his funeral ! A by- pass surgery which is so routine in life these days everybody just took lightly by all of us, he "said he expects any and all contributions be made to the shriners hospital fund"... just like he knew this was the end of this journey and he was to begin a new!!! His love for children was so bountiful and in our lodge, he was in charge of the CHIPS program, that is where members take time out of their lives and fingerprint children, photograph and make a short video tape in-case they are lost or disappear that the authorities have a means of having identification !
I am sure that there will not be a dry eye in the place, I know mine have been weeping in both joy and sarrow.
To all I say respect and enjoy the time you have with your loved ones as life is to short!!! Mark-n-Goober !!

Mark,
I'm so sorry to hear about your uncle. When my grandfather died in 1970, he had gone to his men's Sunday school class on Sunday morning. The class had some kind of luncheon and program planned for Wed. He told the class to have a good time on Wed., but that he wouldn't be there with them. He died in the early hours of Monday! Makes you wonder doesn't it....I was in the 7th grade and was just devastated- I loved him so much. He was a wonderful man, very faithful, and was also a mason and big into the Shriners too. That big church was filled to capacity and was SRO. He had helped start the town where we were from and he and his Dad had brought telephone service to that area in the 1930's (that was back when individuals could and did own their own telephone cos.) I have pictures here of him with Earl Long (if anybody remembers the movie "Blaze") when the main st. of the town was paved- this was a big deal back then because it was right after WW2. I have so many wonderful memories of him and I know you do of your uncle too. My condolences.

Jo*mar

02-18-2007, 11:29 PM

Mark ,
It sounds like your Uncle was a very special man to you and many.
Prayers and hugs for those he left behind.

http://i137.photobucket.com/albums/q219/turbojo84/images2.jpg

johannakat

02-18-2007, 11:51 PM

Mark- I too offer my sincerest condolences to you and your family. It is so hard to lose someone close to you. Take comfort in the fact that he is in a better place now and will always be watching over you.

:Boy(angel-flying):

Johanna

dawn3063

02-19-2007, 12:06 AM

I am sorry for your loss. My prayers go out to you and your family.
My sincerest condolences.
:hug: Many Hugs
Dawn

DDayMBB

02-19-2007, 12:09 AM

DDayMBB

02-19-2007, 12:12 AM

Unto all I would like to say thank you for your thoughts and prayers... my uncle and aunt were like second parents to my brothers and myself and my little cousin (26) is the little sister that we never had and have to say she had 3 brothers who watched out for her.. and still do, heaven helps the person who ever hurts her:D I need to get fixed up now more so than ever as the farm/land will not get taken care of by itself and dad is getting older! Thank you to all my extended family here also:grouphug: :hug: The strangest thing that took place though was his granfathers clock stopped at 7:37, the exact time they pronounced him... my aunt said she will never restart the clock again, even writing this sends shivers up my spine!

HopeLivesHere

02-19-2007, 06:38 AM

Mark,
I'm so sorry to hear of the loss of your uncle.
He must have been a very special person.
I'm glad you have good memories of him.
You are in my thoughts and prayers. :hug:
Hope

gibbrn

02-19-2007, 11:08 AM

My deepest condolences about the loss of your Uncle. I can't say I know what that is like, i have never lost anybody close to me, but I can imagine...my heart goes out to you and I hope it brings you the strength you need to get through this. prayers and hugs my dear friend......

love and more hugs,
Victoria:hug:

gibbrn

02-19-2007, 11:41 AM

Had a huge fight with my Mom and told her where to go in no uncertian terms.....I was sewing a button on for her on a sweater as she was going out and I was told what are you doing I didn't ask you to repair a hole.....well I had to fix the hole to sew on the button.....so I gave it to her and said do it yourself......so didn't speak to her yesterday and now huge blowout...she was so rude to me when I expected to be told she was sorry she blew up at me.....so now it is an all out war. She said this morning I was being silly and to stop it and was less than cordial.......she knew there was a message on the phone and listened to it rather than answer it and give it to me....I am in the basement......and it was a cancelation of my dr's apt today......thank goodnesss they called my cell phone as well......at my side all the time.....so now I am left with this huge mess.....I am in the basement she is being a complete %&*@$ to me and I am doing most of her things for her as she is on sickness (depression) more like denial leave from work......I do all her work ....she dosn't even get her drivers license renewed and I find the paperwork......so it is up to me to look after her...no more.....

she is also a clandestine smoker and I help her hide it from Dad he knows she is smoking agian after 10 yrs quit, but she is smoking when he is in shower and other times behind his back.... I told her no more covering up for her...

I am the kind of daughter to buy her clothes when I see them if i am out or to pick her up hycinths (sp) and daffodils in pots to make her feel better.....I am so pi&& ed off right now and don't feel hate just let down no idea whrer to go with this still not talking and don't want to will not do anything for her so she knows what I do for her........

She is totally ungrateful and rude to me and expects me to continue doing these things for her.

Totally frustrated to hell and back!!!!
Victoria

redjpwranglergirl

02-19-2007, 12:47 PM

Victoria,
I'm so sorry to hear about the problems with your mother. I can sympathize- I love my mother to death and she would give any of her family the shirt off her back but, oh brother....do we sometimes (alot of times...) have "issues"....She's a control freak and even though I'm 49 yrs. old and my brother is 45, she still tries to tell us (or drop BIG hints) what we "need" to do or makes comments on what we do and show disapproval if it isn't what she thinks we should do.....That is definitely NOT going to work with me so we "lock horns" fairly often. My hubby says, "just ignore her", (is that a "man thing" or what?!) but that's easier said than done....At my "late age", I don't need to be asked, "do you need to go to the bathroom?" anymore before we leave the house....:rolleyes: I try to be patient and let alot of it go but she does seem to get a bit worse the older she gets and I know she's not going to change. It does help alot though that we live about 6 hrs. apart. I don't know what to tell you- maybe just try to keep some space between ya'll for awhile and see if she comes around. I imagine everybody on here has had some problems with one or both parents at one time or another.

johannakat

02-19-2007, 02:03 PM

Victoria- If your mom is off work for depression, perhaps that is what is affecting her? Doesn't make it right or easy. backing off is completely the right way to go...give her some time to come to her senses.

My parents once came to visit (they are a plane ride away for good reason) and were so obnoxious i told them not to come back until they straightened their attitude out. It was hard, and three years later we are still repairing the damage but it is getting better. My mom and i were always really close, but when I got married it took her a while to figure out how much she missed not being my first line of communication. She supported me a lot when I was younger, financially in the early years and mentally later. I was a single mom from 19 until 29. It was hard for her to realize that I was grown up and my opinions and methods of doing things were my own instead of hers.

Anyhow, once I drew the line we really aired some issues that had been boiling under the surface for a while and we're better for it today.

I am sure your parents love you, and that you will figure it out in time. Harder when you are so interconnected- adults in the same house is always hard...make it your parents and it is doubly hard !!! Of all human relationships, I think the daughter-mother is the most tumultuous and long lasting, but also the closest.

:hug:

Good luck,

Johanna

gibbrn

02-19-2007, 03:35 PM

hi, thanks for the support you have both hit some pretty sore spots and are correct in exactly what you are saying....we are adults living in the same home and it is diffiuclt esp. b/c we are exactly alike we will say the same thing at the same time or pick up the same sweater to buy even if we are hundreds of miles apart......but boy was it a blow out. I feel neglected and told that I am not good enough...but her issue is deeper I think...she won 't say what she means she tells you what she thinks you want to hear....and lately I have been getting her to work on this.....thankfully Dad is solid right now and I dont think she has told him what has happened.....but I am ready to move out I can't live like this stuck in the basement....I feel like that guy in the goonies movie...ok dating myself....lol.....but I do the freak in the basement that she dosn't or dosn't want to understand........I am going to just stay out of her way if I can and let her calm down it effeted her more than me I think.....anyhow thanks guys....as for the depression thing...it was harassment at work and I don't think she is really depressed....she is not coping iwth the issues of harrasment and is using it as an excuse for me to do everything....I am the parent in the role and it is driving me NUTS!!! anyhow......

I just had my anesthetic injections and hope they work, but I can't even lift my arm as far as I could before which really wasn't that far:eek: anyhow....is a great effort!!! it will settle...perhaps I will watch a movie and crochet....hmmm nice idea...turn on the fire and relax...oh you guys are great!!! love ya'll (love that saying!! )

take care all and love and hugs to everyone.......:hug:
Victoria

DDayMBB

02-22-2007, 07:03 AM

Today I am kind of back... it has been a long week thus far, and I do thank all for the condolances for the passing of my uncle! You all want to hear something strange that just may send a shiver down ones spine... he was pronounced dead at 7:37 an his grandfathers clock stopped at 7:37 I do not know if I mentioned that or not, but just gives me the willies, also my youngest who said he did not want to be a pall-bearer in his dream the night before had a dream (or something??) that he said my uncle told him he would be OK and he wanted him to be part of the service... dream or not he was sure it was my uncle talking to him....
On a brighter note got to meet Beth and share breakfast with her and Di Marie, my luck, me the lone male being able to spend time with two wonderful ladies:cool: amazing thing is that sitting down with anybody who is going through the same pain and troubles, makes us seem so close like we have know each other for years, though would rather meet all under circumstance minus the pain:hug:
Victoria, I hope things work out for the best with you and to all I hoe the day goes about free of pain and that something nice takes place for you today!!!!
Mark-n-Goober

Edelweiss

02-26-2007, 04:53 AM

am able to write in the forum. Last week, I was in a bad mood, had a lot of pain - the whole situation was difficult, so I didn`t post.

I am late to express my sympathies to Mark - I am so sorry for the loss of you uncle! I hope you are not too sad.

Tomorrow, I will fly to France and spend 8 days there - I hope I will return with more energy than I have actually!

I wish you all a good day - without pain or familiar problems!!!!!
Barbara

Jo*mar

02-27-2007, 04:34 PM

Today - i am so sick of computers !
I stupidly downloaded a highly rated registry cleaner and performance tweaker program- never again! {BoostXP - don't use it}

it tweaked my XP alright - totally messed it up and also the restore system wouldn't work either.

so i had to reinstall XP which took 5 tries for some reason spent all day sunday on it and then most of monday getting system back to the settings as we like.
plus I thought i emailed my address book to another email addy so i wouldn't lose them all and could get them when i was ready for them - nope nowhere to be found.

So if any of you would like to - send me an email, PM or post on my website on my profile page- so I can build my address book back.

thanks

Coop42

02-28-2007, 04:33 PM

That's one reason I don't post that much anymore. I have the voice recognition software but my computer doesn't run it very well and it freezes on me all the time, and sometimes it miss spells so many words that I have to fix, I end up in a lot of pain after anyway. Coop

olecyn

02-28-2007, 08:54 PM

Had my MRA/MRV this afternoon
Had to take major meds to take the pain away after.
Was in the chamber for over 45 minutes
They couldn't get the contrast medium running smoothly through the IV
This is with my hands over my head as tears ran down my face the whole time.
No films with my arms down, why?
After the hell I went through today
I just want it to verify Dr. Collins' report.
However, i just researched and an MRV is only 2D not 3D like Collins'.

Do I suggest an arterial doppler and by whom?

marabunta

03-02-2007, 02:00 PM

OH MY!

Hope you're starting to feel better.

I wonder if they were having problems getting the contrast to run BECAUSE of arterial compression?

just a layman's thought...

marabunta

gibbrn

03-03-2007, 12:08 PM

as per Doppler ultrasound.....vascular surgeon will get this for you or your family doc....make sure they put you in all the provocative positions....
take care
Victoria:hug:

gibbrn

03-03-2007, 12:12 PM

ok big cpu issues!!!! could not get it to work trying to remove dos virus and can't still there and is adding network so tried in dos to do something and fried the darn thing!!! so sent it back to dell and got a new system board and back to capacity so soon will be burining cds to send out...however leaving on sunday to go to Calgary for a week and then back to b-town to move my things and get out of parents for good...at least dad is talking to me......Mom...well another story all together....no worth the effort right now she is cold and has no feelings....truely!!!

ok all have a great weekend will be superbusy for me and will miss my kitty when I put her in the kennel......the cats pajama's sounds nice and is vet tech who runs it so should be good! anyhow rambling on again as per usual

hugs and love to ya'll will miss you for the next little while likely two weeks....or at least until past the 20th of March.......will miss ya

love and hugs,:grouphug:
Victoria:hug::hug:

DDayMBB

03-04-2007, 06:00 AM

Today I....
......... hope Barb has a great time in France and that she has enough energy to have lots of fun!!!

......... Glad Jo finally got her compuuetr up and runnnig and will get my addresses out to you as soon aas possible!

........ Great to see COOP around the board and so great to hear about his new beginning in life my best wishes to him and his bride

......... Think Olecyn has enough pain, lest be tortuered by these techs. hope you are feeling better

........... Victoria, I hope your move brings about peace and harmony, maybe the distance will help out with your family relations!

And to all TOSers may I wish eack and everyone a Great day free of pain Mark-n-Goober

Jo*mar

03-04-2007, 12:19 PM

LOL- Mark the darn puter is still hit and miss!

Linux OS works and XP works but niether one is perfect yet...

but email is set and working on both OS.

DDayMBB

03-04-2007, 09:36 PM

Today I was wondering if anybody tried a Morpine pump... Doc is sending me to a pain management Doc and this is one of his suggestions, not sure I want that strong of a med in me

Peg24

03-04-2007, 09:54 PM

Mark,

The only time I had a morphine pump was after my surgery in the hospital and it then of coarse was great. I don't know how it would be in a daily life. I would think kinda tough.

Peggy

DDayMBB

03-05-2007, 01:33 AM

Peg the way I understand it is that it goes into the spinal column, therefore no break through to the bloodstream.... I was just wondering how the worked???

HopeLivesHere

03-05-2007, 02:00 AM

I wish anyone who tries the intrathecal pump, surgery or the SCS lots of pain relief.

olecyn

03-05-2007, 10:22 PM

All I can say is that
I had experience with Morphine with my cancer surgeries
It is the only drug that has worked on me
I say go for the morphine pump
And to hell with more surgeries.

Only my experience and thoughts.

Shelley

03-06-2007, 09:58 PM

Today I was writing to Johanna and was trying to explain that I am going to try to approach things differently because the last several weeks I have been in a place that has been scary and reminicent of the beginning.

And in the beginnng I tried going to a very gentle and understand soul for some hypno therapy. We would often talk for an hour prior to the hypnosis to focus where the hypnosis should be directed. I think it helped me to relax and find some peace.

So yesterday I went back to review the notes I had taken during those sessions and just wanted to share with everyone.

Maybe something will strike a cord, maybe not, maybe you will find it corny but at the time some of the thoughts gave me peace

So here goes....( in no specific order)

Today I will...

Let go of judgement ..of myself, my condition and pain

The mind creates complexity, the mind is not peaceful, it prejudges

Be more loving of myself

Find value in everything

Find a purpose in each day each moment

Choose to heal instead of need to know

Stop needing to know about my illness and obsessing for control

Wanting control implies not having it

I will let go and find out what will happen

Can I really let go of what I think and know and maybe just maybe allow it to be better than what I think it is

The past and the future reside only in the mind...joy exists in the now. Choice only exists in the here and now.

Evolve at your own pace

Fear comes from limits

Fear is reactive

Fear doesn't come from the spirit

Fear is toxic and exaggerates pain

So many of us lose our old selves... dont...Choose to be positive, choose to contibute , choose to be Shelley or Peg or Dabbo or Dawn or Jo or BB or DiMarie or Fish

Near the end of our time together, my hypnotist told me write a letter to my body ...thank it for being, for being patient and tell it how much you love it unconditionally. I think maybe I will do that tonight after all this time.

:grouphug: