Today I..... [Archive] - Page 3 - NeuroTalk Communities

Donna7

03-07-2007, 03:08 PM

Today, I saw the first hint of green across the fields! Maybe spring is coming after all!
Today I am experimenting with my new headset and Dragon! It's nice to be able to post in here without using my arms!
Mark, I hope things go well, regarding the morphine pump. I don't know anything about them, but I hope you find some relief!
Dawn, I hope your cold gets better soon... we've had one around here for weeks that just won't go away.
Shelley, interesting thought about obsessing and control. I'm something of a control freak, and this is a hard one for me... being out of control of my illness and feeling sometimes that its controlling me.
Jo, I'm glad you and your computer are on speaking terms again!
Red, sorry about your mom's friend.We just lost my husband's aunt recently; she was a very special lady, too.
Hoping it's warming up where you all are, and that you'll all be having a good day!

cindyj

03-08-2007, 05:55 PM

Today I, am thankful I finally slept in my bed last night fr the first time in 6 weeks! I am thankful after a week of not being able to walk ,that today I can use my legs even if it is slowly! I am also thankful that mine and hubbies pneumonia seemd to be a bit better today! I am also thankful for this place and for each and everyone of you!!!

dawn3063

03-08-2007, 06:48 PM

Thank Shelley
For the thought process that she shared with us in the "Today I" thread.. I felt confident that it helped me in my appointment with the Dr today to listen and realize that it is ok to wait just a little while longer to see if things work out on there own. Then to proceed with more invasive procedures. I really do feel good about it.
Hugs to you Shelley :hug:

Today I will...

Let go of judgement ..of myself, my condition and pain

The mind creates complexity, the mind is not peaceful, it prejudges

Be more loving of myself

Find value in everything

Find a purpose in each day each moment

Choose to heal instead of need to know

Stop needing to know about my illness and obsessing for control

Wanting control implies not having it

I will let go and find out what will happen

Can I really let go of what I think and know and maybe just maybe allow it to be better than what I think it is

The past and the future reside only in the mind...joy exists in the now. Choice only exists in the here and now.

Evolve at your own pace

Fear comes from limits

Fear is reactive

Fear doesn't come from the spirit

Fear is toxic and exaggerates pain

So many of us lose our old selves... dont...Choose to be positive, choose to contibute , choose to be Shelley or Peg or Dabbo or Dawn or Jo or BB or DiMarie or Fish

Near the end of our time together, my hypnotist told me write a letter to my body ...thank it for being, for being patient and tell it how much you love it unconditionally. I think maybe I will do that tonight after all this time.

:grouphug:

CindyJ- I do hope that you and your hubbys pheumonia continue to improve.

Red- I am very sorry to hear about the loss of your old friend.

Donna- I am so looking forward to sping too..

Mark- Best of Luck with the Morphine pump. I do hope it brings you relief.

Here is wishing everyone a low pain or mostly a pain free weekend...

Many Hugs :hug:
Dawn

johannakat

03-09-2007, 02:29 PM

hope that shelley was able to avert disaster at work and make her 11AM departure with client to massage.

happy weekend to everyone

dabbo

03-09-2007, 10:55 PM

I hope everyone has a good, low pain weekend! Today I went to the primary care doc, who told me he thought i have the flu. :eek: that would explain why i feel like i got hit by a mack truck for the last day and a half.....

Jo*mar

03-09-2007, 11:21 PM

Hope all of you are able to enjoy a peaceful weekend.
We're having a soggy- but not cold weather front - so a bit dreary.

Don't forget the time change this weekend- Daylight savings starts early!

dabbo

03-09-2007, 11:28 PM

johannakat

03-09-2007, 11:41 PM

dabbo- sorry your (ex?) friend is such a moron.

maybe the dog i sent after victoria's mom can bite him too...

redjpwranglergirl

03-10-2007, 12:11 AM

Technically, this would be "Wednesday, i...."
got really upset with someone who I thought was a friend of mine. He is a PT, and I always thought he was a good guy. He decided to tell my wife that this was all in my head and not a real medical condition, that the sooner I realized that, the sooner I would get over it. Unreal. I wonder if they taught him that in school. If they did, I don't think it would surprise me.

Good grief....That would make me want to slap him "upside" his head....:mad:

cindyj

03-10-2007, 12:18 AM

Oh great dabbo ,just what you need, one of those morons in the medical field who is too damn lazy to research your illness!! That is inexcusable!! I think you need a new PT and I think this"friend" owes you one heck of an apology.We get enough of this crap from the outside world, who say" but you look great" grrrrr, I have come to hate that sentence! Just because we are not walking around with casts and slings on everyone thinks we are fine!!!

DDayMBB

03-10-2007, 06:12 AM

Technically, this would be "Wednesday, i...."
got really upset with someone who I thought was a friend of mine. He is a PT, and I always thought he was a good guy. He decided to tell my wife that this was all in my head and not a real medical condition, that the sooner I realized that, the sooner I would get over it. Unreal. I wonder if they taught him that in school. If they did, I don't think it would surprise me.

TODAY I....
..... Wonder what the H E L * was that person thinking, that was so un-professional for him to say Dabbo... hang in there and remember you have support over here !!!!!!!!
Mark~n~Goober

DDayMBB

03-10-2007, 06:24 AM

TODAY I......
hope Cindy had a goodnights sleep in her own bed again last night and do so hope her walking improves more and more each day;)

.......... I just wanted to make mention I am trying to compile a list of Drs that are not on the sticky at the top of the page.... if you could and can recomend a doc or PT that is credible that does not exist in your state on ths list, please let me know... also if there are any there that no longer practice that you know of please let me know via e-mail to ....... DDayMBB@aol.com ... THNAK YOU MUCH!!!!

I would also like to wish all a wonderful and pain free, illness free and trouble free weekend !
MARK~n~Goober

dabbo

03-10-2007, 05:29 PM

Today I... am feeling a little more human after sleeping for pretty much the last 2 days. I meant to add to my post about the PT I know ( that was my friend).. My wonderful and lovely wife went off on him when he said that! :D He was pretty much left speechless, which is a lot to say about that guy.

Jo*mar

03-10-2007, 05:35 PM

Hooray for her!!:D :D :D

redjpwranglergirl

03-10-2007, 07:38 PM

dawn3063

03-10-2007, 09:46 PM

Yea... Dabbo..

I'm glad that the old flu bug is on his way out of your home... :OuttaHere:
Gee.. What was that PT thinking??? Oh, Nevermind it's obvious he wasn't thinking.. I'm glad your wife was quick and told him the #%^&@@!... :Grin-Nod:

Here's hoping everyone is having a pain free weekend..

:hug: Dawn

dawn3063

03-12-2007, 12:52 AM

Am exausted :Yawn: .. I was up during the night with my little dog bogie and then I spent the morning with him at the emergency vet clinic.. Poor little guy.. He has a case of gastroenteritis.. But we caught it in time and with a high dose of antibiotics and anti nausea meds he's gonna do alright.. I'll tell ya these little critters sure can worry ya...
Now after all this... Ouch, My whole body hates me.. :thud:
So, for me a hot bath a muscle relaxer and a good nights sleep :Zzzz: ...

Here's wishing everyone a good week ahead...

Many Hugs
:hug: Dawn

Edelweiss

03-12-2007, 08:42 AM

want to say "hello" again to my dear TOS family members.
I have been on holidays in France - the days passed rapidly by and I spent a very nice time there. During 3 days we travelled to another "departement" to Bretagne (britany) and visited on the way to Bretagne the famous cathedral of Chartres and then Mount Saint Michel - we walked along the coast and all in all it was very marvellous and beautiful. Besides the first accomodation: I could not sleep because when I lay down I had the feeling as if a knife was in my shoulder blade. So I spent the night sitting in the bed watching french TV.... Fortunately, I can speak and understand french, but.....

I am sorry to read about dabbos experience with the PT - this is so difficult to understand why some people are thinking this way.

I send you sunny greetings from Austria!
Bye Barbara

redjpwranglergirl

03-12-2007, 12:24 PM

DDayMBB

03-12-2007, 04:55 PM

Today I... thought would share a picture that I found when going down memory lane after my uncles passing of myself, thought all could use a bit of a chuckle:)

Also I would like to pass along a good day to all TOSers and hope all are well and welcome Barb back home !!!

Mark~n~Goober

Jo*mar

03-12-2007, 06:21 PM

ahhh-- Mark - how cute

astern

03-12-2007, 08:10 PM

Oh Mark, that's so sweet! We had a crochet blanket on the back of our couch in the 60's too! Grandma made it.

They sure did dress you well, my mom would call you "Van the Boy Model". :p

dabbo

03-12-2007, 10:09 PM

Mark- that picture is GREAT! :p
Barbara- i'm glad that you had a good time in France! I've never been there, but it is on my list of places to visit. Glad you're back safely!

Edelweiss

03-13-2007, 09:09 AM

thank Mark for the cute picture!!!

I hope you are having all a good day today!
We have bright sunshine here today and so I send sunny greetings to you.
Barbara

DDayMBB

03-13-2007, 03:43 PM

When I saw that picture, I just had to share... I can not even imagine wearing something like that, but how time have changed! Besides that, wish I could go back to that point and time in life, how simple things were:D

be nice if others could share their childhood memories/pics from way back if anybody can;)

My best to all!!!! Mark~n~the Goobermeister

Peg24

03-13-2007, 03:54 PM

Mark,

You were just as cute as a button! :grin:

Thanks for sharing!

Peggy

DDayMBB

03-13-2007, 04:51 PM

Mark,

You were just as cute as a button! :grin:

Thanks for sharing!

Peggy

PEG, I DO NOT KNOW WHAT HAPPENED BETWEEN THAN AND NOW:D

redjpwranglergirl

03-13-2007, 05:55 PM

astern

03-13-2007, 06:28 PM

My Mom made the jumpsuit - I wore it every day until I outgrew it. I picked this pic to share because it shows my arms in 'neutral' comfey-position. Wonder why I liked to rest my arms like that??? Still do it... I wonder what causes that? :rolleyes: :rolleyes: :rolleyes:

Hoping everyone is pain-free today!

DDayMBB

03-13-2007, 07:47 PM

Cute picture, Mark! I was just wondering though if you get that dressed up around the house now?:D

Well red, hate to say it, but I kind of outgrew that outfit:wink:

Astern, amazing.. I can not see kids these days wearing hand made clothing or even putting on what mom wanted us to wear... and besides, heaven help us if we got them dirty or damaged them! I think this is a kewl view on the today thread be nice to see others sharing back in time:)

Edelweiss

03-14-2007, 10:11 AM

cannot attach a picture - don`t know, why..... will try it again this week.

Thank you Ann for the picture!

Hope you are all fine!
Greetings (sunny greetings again)
Barbara

dawn3063

03-14-2007, 06:11 PM

Too much to deal with... First off yesterday which was Monday, I had to make my appt for my first stellite gangalion block.. Yep, Now the Doc thinks I may have RSD setting in, in the right arm that has been giving me problems. So, I have to have that done on the 26th of this month.. :holysheep: What else is going to happen..
Then my poor little dog was sick again,, Up all night with his sick stomach.. So off to our normal vet this morning.. Poor guy is dehydrated and has to stay with IV's and meds.. His blood count is all out of wack.. So, that bill is going to be :thud: Oh, well he is worth it.. That little guy is one of my best care takers..
So to say the least I'm exausted.. I just want to crawl into bed and sleep forever :Zzzz:
Cute pictures by the way Mark and Astern..
Have a good day everyone..
Many Hugs
:hug: Dawn

Donna7

03-14-2007, 06:38 PM

Today I am seeing even more green in the fields! I do think we may see a spring after all! I missed gardening, though... one of those things I'll probably never do again... but my daughter and my husband want to put in a garden this year.

Oh, you guys are all so cute! I don't have any old pictures in my computer... I could post some of the grandchildren, but that's a whole 'nother story.

Dawn, I saw my doctor on Monday too, and he said the exact same thing. Are you taking Lyrica? He upped my dose to 225 mg... 3 75 mg capsules a day. He also wanted to schedule me for an SGB, but I need to line up some financing first. My auto insurance is exhausted, and my private health insurance is not being very cooperative with accident related bills. So, have a call into my lawyer, and will try to schedule it soon. Have you done any research on it? My doc said it wouldn't be that much different than some of the other injections I've had.

I hope they've caught yours early enough to make a difference with treatment. My doctor told me mine was also in the very early stages; he can't promise anything, but he did say he usually sees it in later stages than where I am now. He drew a line on the back of my file to explain the continuum with TOS and RSD... with "no problems" on one end of the line... then TOS... then TOS with nerve irritation... then TOS with nerve irritation and beginning autonomic symptoms... then TOS and full-blown RSD. He said the progression can go either way, depending on the direction it was already headed. He felt I had probably been somewhere between nerve irritation and autonomic symptoms all along, and have bumped up a bit toward the RSD end of the continuum. He did add CRPS Type II to my report.:(

So sorry about your little doggie... I have a sick daughter, too, but no throwing up thankfully!

Hope you all are having a nice week, without too much pain.:grouphug:

redjpwranglergirl

03-16-2007, 01:10 AM

Dawn,
I hope your dog is better by now- I know what you're going through. We were back and forth at the vet's for about 3 wks. last month with my cat. She stopped eating out of the blue (which is NOT normal for her, believe me) and started drinking ALOT of water. They put her on antibiotics because they thought her teeth looked infected but also did alot of bloodwork and found out she has diabetes and also fatty liver and told us that if cats stop eating that their livers can begin to fail pretty quickly. Long story short, she had to stay at the vet's for about a week because they had to force feed her to see if they could bring her appetite back, otherwise we would've had to put her to sleep. Luckily it worked- but the bill....$$$$....We have to give her an insulin shot daily and she has to eat prescription diabetic catfood. But what do you do- you have to try to do whatever you can for them- they're part of the family.

Today I...found out that an old classmate of mine from elementary school through high school has a brain tumor and they don't know if he'll be able to have radiation because he had Hodgin's Disease when we were in the 7th gr. and spent that whole school year at St. Jude's and had radiation treatments there. If he can, he may have a year, if not, 3 wks. to 2 mos. It's just so sad- it's hard to even comprehend what he and his family must be going through.

astern

03-16-2007, 07:28 AM

Red, That's so sad about your friend from grade school. See everyone, it CAN be worse! I count my blessings daily, otherwise I'd be consumed by hoplessness.

I'll keep him and his family in my prayers.

Y'all have an outstanding day and feel GOOD!:grouphug:
Anne

redjpwranglergirl

03-16-2007, 12:49 PM

Thanks Anne- you're right- it can be SO much worse. I'm so thankful that the things I'm dealing with are all that's wrong with me. I can't imagine what people go through with that kind of diagnosis. This has really hit me hard- he was such a nice guy when we were growing up. So many people in my class have died- one of my oldest best friends died a couple of years ago from lung cancer and had never smoked. And, it seems like the older I/we get, these deaths seem to be even harder to deal with- like it makes us think about our own mortality.

dabbo

03-17-2007, 02:06 AM

Today I..... (or Friday, I guess) I feel really petty, but... I'm ticked that the airlines canceled all the flights from NYC to wherever.... so, I don't get to see my wife or little girl until (theoretically) Saturday night. That, and its sleeting/snowing/icing, etc. here. Just miserable weather up here. So, I'm stuck until at least tomorrow evening. It could be worse though.

Red- i'm so sorry to hear about your friend. I pray they can take care of the tumor. Being a Memphis resident, I really can tell what a great thing St. Jude's is doing. I could really stand to learn a thing or two from them.

I hope everyone is doing well, and has low pain levels and a great weekend! (and a Happy and safe St. Patrick's Day!)

DDayMBB

03-17-2007, 04:02 PM

Today I would like to share some lovely snow scenes that appeared overnight :Poke:

Will look forward to seeing that pic that you are trying to get to load Barb...

Donna, I was told that my CRPS II is the same as RSD, I just went to see a pain management specialist on Thursday and we are trying to decide between an Implanted spinal stimulator or a pain pump... a refferal by Dr, Togut and this guy seem to know his field.:Excited:

Red sorry to hear about your old classmate ! Also, as far as our animals are concerned, just wonder myself who is the boss of the family... them or us:D

Anne each day we get up should be outstanding even if it is just for one moment, though thanks for the thought;)

Dabbo I hope next week turns out to be better and your time away does not last to long!

And unto all TOSer may the rest of the weekend be well for all !!! Now to get rid of this snow!!!!!

redjpwranglergirl

03-17-2007, 11:05 PM

Mark,
There's no doubt, the cat is the boss of our house!:D

DDayMBB

03-18-2007, 08:12 AM

TODAY I.....
..... Get the pleasure of sitting down and writing up some new guidelines for my work comp hearing, which if any of you remember right I was given the task by by present attorney to follow up with the appeal o my own. I do beleive I have enough evidence to get his overturned and low and behold if such is the case she will be losing out on a nice chunk of money.
.....seen an attorney on Friday, who said with all that is going on with me the TOS, CRPS II/RSD and bouts of depression, I should have been getting SSD a long time ago, however I feel as though this is just part of my life on that roller-coaster that only goes down hill, never back up:confused:

..... took a second to go grab myself a cup of coffee, well walking out of the kitchen, watched in slow motion as the cup left my hand and fell onto the floor... there goes another mug:holysheep:

.....watched the videos on spinal stimualtors and pumps.. as well as, going on line and I think the pump has a lot less things that can go wrong like arcs between electrodes and burns that can singe right through the cord and cause paralysis or death so think the pump is the way to go ... a small price to pay having a small scar vs. taking all the oral meds

pass along to all us TOSers and RSDers a great day free of pain and agrevation MARK~n~GOOBER

DDayMBB

03-18-2007, 10:56 AM

.... am wondering if anybody has/had an implanted spinal stimulator and if they have had any problems concerning a burning feeling, involuntary twitches or had to have it removed due to strength being to strong that they actually received a scar from it arcing on the spine itself?
....also in question if anybody had an implanted pump, whose content was morphine? From my understanding the morphine only slightly crosses through the blood/brain barrier, thus cutting down on the amount of actual opiate within the blood-stream, eleviating the"high" that oral meds do... however, at this point and time, I do not get any form of "high" as the meds I take only take the edge off (which is what I and sure my doctor want to achive) though now, I hate to admit it this is no longer happening to me! I know today, between my last post and this one I am being quite selfish and dwelling upon me and am so very sorry to others as I am aware each and everyone of us ahces, pains and problems!!!!!!!!!

GOOBER says he is sorry for making MARK be that way :sorry:

redjpwranglergirl

03-18-2007, 01:57 PM

Mark,
I don't think you need to apologize to any of us here. You've always been the one to put others pain and problems before yourself, so I don't think anybody would think you're being selfish or thoughtless for coming on here and talking about what you'e dealing with right now.:)

Peg24

03-19-2007, 04:32 PM

Today I wish my strength wasn't starting to fade.

Came back to my mom's today to find her worse from her cancer than when I left her 5 days ago. I try to hold up for her, but depression and pain is getting the best of me today.

For all of you that believe in the power of prayer......I ask you to please say one for her.

I will keep in touch!

Peggy

Jo*mar

03-19-2007, 06:20 PM

Our thoughts are with you Peg.

johannakat

03-20-2007, 01:23 AM

:hug: to Peg and ***strength**** vibes to your mom. You are both in my thoughts.

:Good-Luck:
:icon_evil: <- workers comp people who make decisions re: Mark...may they rot in h*ll unti they see the light for you. :Clever: you will outsmart them in court, and your ex-attorney lady WILL be sorry....:You-Rock: I soooooo hope you are able to find some relief with the right pump.

*~*~*~*~

today I made good on promise to self to join health club. (yes a little bit of love thyself :heartthrob:) found riding a recumbent bike to be pretty tolerable thus far, made it a whole 25 minutes. Hoping to be able to say that tomorrow, too... :D Pain Dr. did say to use endorphins for pain relief whenever possible. I am going to give it my best effort.

hot tub and sauna (the real motivation to go and ride bike) worth every penny of club membership...it will be my new hobby. :Zzzz: going to sleep well tonight after all that.

DDayMBB

03-20-2007, 05:46 AM

peg I send out my thought s and prayers t you and your mom !1!.

jo kat thanks for the supp ort I am having a problem typing at the moment so will cloes now

gog bles alll !!!!!!!!!!!!!

DDayMBB

03-21-2007, 06:50 AM

Today I .... am having a much better morning and hope that everyone else is also! Di, please PM me a good time to give you a call would like to spek to you, prior to having my WC hearing tomorrow.

......... Unto all I sure hope that your pain is low and that those undergoing legal battles find quick resolve within your favor, God knows the companies will do all they can to get out of taking responsibility!

Mark~n~Goober

Edelweiss

03-21-2007, 07:29 AM

promise to Mark, that I will cross my fingers for his hearing tomorrow (I know we have the time difference, but I will count!) and I wish you all the best!

Peggy, I am sorry for your mother! I can imagine that this is hard for you.

The last days, I suffered a lot: my both arms hurt so much and yesterday I left work after 4 hours because I couldn`t work any more. This night was bad and in the morning the coffee box felt out of my hand and there was the powder all over the carpet, the floor. So I already vacuumed at 7 o`clock in the morning. What a great start in a good day. Anyway, the day can only be better than the morning.

I send my very nicest greetings to all of you!
Barbara

Jo*mar

03-21-2007, 12:54 PM

Mark is hearing today {wed} or thursday?

If you have time - just in case it becomes a settlement negotiation- do a quick add up of all costs and future moneys { so you have at least a rough estimate?}
- but in your case I don't recommend settling anyway - you are still in too much pain.

barb i hope you are doing better today - does the carpet smell like coffee now- not a bad thing lol
I love to walk down the grocery isle and smell the coffee smell.

redjpwranglergirl

03-21-2007, 06:46 PM

Sending positive vibes to Mark that his hearing tomorrow goes his way and also my thoughts are with Peg and her mom at this tough time for her.

johannakat

03-21-2007, 07:36 PM

:Good-Luck: to Mark!!!!!

may you end up a :Dancing-Chilli: :winner_first_h4h: :Excited:

momzpeachy

03-21-2007, 07:54 PM

I just wanted to say today...I lost it..total frustration.

I did think of everyone out there who is going through painful times. I just can't get over how so many people don't understand what we're going through and how difficult this all is.

I wish all the best for everyone! I hope better days are ahead. I thought I was better today but then some stress fell upon my shoulders and I ended up with a real pain in the NECK..literally!

I have 4 kids...2 teenagers and why didn't they come with manuals?

I'm thinking of a deserted island right now ...palm trees and coconuts and a warm ocean breeze...oh how I wish I were there.

Best wishes to Mark and also Peg and her mom. I hope all goes well and better times are ahead.

I'm going for the heat pack and the couch ....I am so so angry at everything right now. I just don't get why all the bad things happen to all the good people. One good hand just once would be nice. Don't some of you agree?

Well good night for now :)

Stardust

03-21-2007, 08:29 PM

Mark--wishing you the best of luck tomorrow! Am sending you good vibes from yet another geographic location. :) You are a nice person and deserve good things to happen to you.

Momz-hope things get easier soon.

dawn3063

03-22-2007, 01:27 AM

Mark,

:Good-Luck: Best of Luck :Good-Luck: to you tomorrow at you W/C hearing...
:You-Rock: You'll do Great...

Momz, can I join you on that Island with the warm Ocean breeze... It sounds so relaxing... What a great idea...

Hugs to all my TOS family...
:hug: Dawn

Edelweiss

03-22-2007, 06:53 AM

my thoughts and good vibes go to Mark and I hope that finally things will be right!!!
ALL THE BEST!!!!:winner_first_h4h:

To peg, dawn, momzpeachy, johanna, red, di, dabbo - and to all other readers/writers I wish a pain-free and problem-free day today.
Barbara

DDayMBB

03-22-2007, 07:37 AM

TODAY I..... Want to thank everyone for there wishes here for all the good vibes, thoughts and prayers :You-Rock: ! They say it is a fool who has himself a a representitive, but I am going in knowing I have truth and honesty on my side also there is not much else a lawyer would say at this form of hearing as what I am so why pay more GOD knows, I owe most everybody without an income, there fore do not nee another! THANKS FOR THE SUPPORT!!!!!!!!!

.........At the moment do not want to burn out the hands typing as I may need them later so will write more later and let you know how I made out also all with bad things goign on hope these may mellow out as well as your pain GOD BLESS ALL!!!!!!!!!

Mark~n~Goober

johannakat

03-22-2007, 02:16 PM

Momz- I have a 14yo ADD kid, and I can relate...they can be a real PIA. I am so sorry you are having trouble. My new motto is that when 14yo pia girl gets in trouble I put her to work doing all the things I can't (dishes, mopping floors, cleaning toilets, etc) It helps me feel better on multiple levels (kid suffers for bad behavior, i get cleaner house without having to stress myself) I'd have been sunk without it in the last months.

Mark I send more good vibes to you today...hoping things are going well.

DDayMBB

03-23-2007, 05:50 AM

TODAY I.... am glad that my hearing is over! Just looking around, me sitting in thhe waiting room with a bunch of lawyers who are opposing each other slapping each others buacks and treating their cases as if it were a game... little do they realize this is people's lives they are messing with! I was the only party there by themsleves, for that matter the only one there, (lay person) client there lest representing myself or being there to watch over my case. The judge asked if I was sure I wanted to continue? Sure, I did not have the big words or shifty moves :Deliberate: , but I said yes went in with truth and honesty on my side and now place my fate in the hands of God and the two judges who overseen my case. I hope I got my point across thouroughly and to hear froM them soon either way(GOOD NEWs HOPEFULLY WITH SOME :Good-Luck:) ! And tell each and everyone of you I went in feeling your thoughts, hopes and prayers sent my way by you.... THANK YOU SO MUCH FROM THE BOTTOM OF MY HEART!!!!!! :heartthrob:

Today I on a better note start swim therapy... after court went out and treated myself to a new bathing suit, pair of divers grip bottom, neoporene wet suit shoes(needed a pair of non slip pool shoes) so why go with flip flops when I could get a pair of shoes that I can use in creeks trout fishing . that is if I can get limbered up through therapy enough to go this year... been two years since I was able to go fishing myself :Bang-Head:, so plan on working hard and make it one of my goals... at least last two years got to take and watch my boys fish and have a good time!!!

Mom and JoKAT, I have two boys of my own that it is hard saying no to all the time and throw an ex into the mix and life gets hard also, with support... though been fortuanate, she kind of understands the situation I am in <<<UMMMPH>>>> Momz hang in there, as everyone can say here life is not easy with TOS or CRPS/RSD, but the little faamily that we have here is caring and watch each others back :grouphug: and sure all can atteset to that! OOPS forgot to mention got my spring haircut also, a buzz job... do it every spring and as of yet it grows back by winter<thought about a razor cut, but 1/4 inch is eenough :D>

Barb, Sie sind ein wahrer Freund durch meine Schwierigkeiten und so erbärmlich gewesen zu hören, dass Sie so allein über den Weg so weit wie ZU ist angegangen scheinen. Ja haben Sie die Bäder und solch, aber scheint, als ob wir hier Leute haben, die spezifische Stützengruppen bilden! Ich werde hoffen, dass Sie wissen, wenn Sie je müssen, ab einigen Problemen lassen, sind meine Ohren ope zu Ihnen!!! That is from one TOSer to another... so do not be a stranger here :) :hug: !

TODAY IN CLOSING I PASS ALONG A :) TO EACH AND EVERYONE and ask that you share it with somebody special, see how easy it is... I just did to all of you !!! MARK~N~GOOBER

astern

03-23-2007, 08:29 AM

...glad the courtroom nightmare is over for you Mark. I know exactly how it feels to be the only layman in a room full of lawyers - makes one feel like cannon-fodder. I'll be praying all weekend that the outcome is favorable and relayed to you asap.

...also now aware that while I THOUGHT I was doing well, using the TENS unit in place of muscle relaxers, been having such a bad 3 months that I had to start the flexaril at beditme again. I notice much improvement. After 3 days on the pills, I am back down to a 5-6. It could possibly be weather related too, but more than likely my muscles aren't ready to stand on their own yet.

...wish all my friends here in the Forum a beautiful weekend free of worry and pain.
:grouphug:

johannakat

03-23-2007, 04:00 PM

Am happy to hear that Mark is feeling postive sending good vibes your way
~~~((((++++++)))))~~~~~((((+++++)))))~~~~~((((++++ ++)))))~~~~

Also, A smile and a wave back at you, Mark! :Wave-Hello:

Am happy to have gotten a scrip for my very own Interferential stimulator unit. Can't wait to order it and try it out. :D

Also happy to report I have made it to my new gym each day this week, though I am pretty sure I won't make it today... and did my exercises. 20 minutes of light cardio a day and my normal PT exercises to start. My back is not liking it much, and I had to up my regular pain meds a bit, but my mood and general energy level have been MUCH better. SO, I am going to keep at it pretty gently, for now. . :Dancing-Chilli:

Happy and pain free weekend to all!!!!

:partytime2:

Johanna

cindyj

03-23-2007, 10:50 PM

Today I am in quite a bit of pain but thankful that I can finally wash my own hair lol!! I have been raising my activity level the last few days because I have literally done nothing for 2 months. I know its causing some of the pain, but I am not overdoing it and only doing things that I am allowed too. I can't wait for warm weather so I can get out side!!

Johanna it is awesome that you have been able to exercise hun!! I pray that your body will continue to cooperate!! There is no better feeling than being tired from actually physically doing something! I found my tens machine flared me up more than helped, but I have severe fibromyalgia and hyper active muscles so that may be why.
Mark I am glad you got through court and I am praying that you will finally win this fight! You said you were in Gods hands, there is no better place to be!!
Hang in there everyone, put one foot in front of the other and take each day in baby steps, it's all we can do so let's give it our all! Wishing a low pain weekend for all (((((hugzs))))))) cindy

momzpeachy

03-24-2007, 04:08 PM

...am still in pain. It just doesn't go away. After the injections in my armpit to relieve the arm pain ...well...it worked for a little while but now IT's BACK! The arm pain is back and as painful as it was before. I now can't brush my teeth again without pain..can't stir foods, can't jerk my arm in any way shape or form...BEEN DROPPING EVERYTHING! This truly sucks! If I press on the muscles under my arm...my entire arm all the way to my fingers tingle and go numb. Also happens when pressing on the neck. It's instand pins and needles. The Doctor mentioned that in his report also. :Help: :yikes:

This is just rediculous...and so very frustrating. I tried to peel potatoes yesterday and cried. I couldn't even fry up ground beef! :mad:

I've been dealing with this pain and going through injections but they only seem to relieve the pain for a short time. I need longer relief! I can't stretch without SEVERE pain! No therapy yet and my husband went to massage my neck and shoulder...YIKES...NO WAY NO HOW! I jumped sky high. That hurt so bad it brought tears.

so today again I sit here in pain...I can't even put jeans on without crying. I feel so useless. I can't go shopping..can't do anything! It can really make for some down time. I didn't even wash my hair cause I can't get my arm up.:Bang-Head:

I guess as usual one day at a time but I have another week before I see the Doc again. Oh yippee!:Excited:

Now I also have a cold...the kids were so nice and decided to share. I feel so wonderful now. I really am doomed!:Sick:

P.s. I wanted to let you all know that I have a 14 yr old daughter who has mild cerebral palsy along with many other medical conditions. She has had 9 surgerieds...3 open heart. She also has some learning issues, developmental delay and some new things coming about. We aren't sure what's going on so I'm in the midst of contacting specialists and going through all kinds of testing at the moment. As always I put the kids first but I'm starting to lose my mind. I don't even know where to start these days.

Well enough about my troubles...hope everyone is having a nice weekend. Take care.

:Crazy 2:

momzpeachy

03-24-2007, 04:15 PM

Cindy

I guess we're having a similar day...lol

I read your post after I posted...must;ve been typing mine while you were posting yours.

I have an idea...guess if we shave our heads like Brittany Spears...we wouldn't have to worry about washing our hair anymore :ROTFLMAO:

After shaving my head...I'll cut my arm off too...:Doh:
:Scratch-Head:

ok maybe not but nice thought at the moment.

DDayMBB

03-26-2007, 10:10 AM

Today... I think Mom was giving me a shot about having a BUZZ cut:D I do it every spring and yes it does cut time off in the morn plus added benefit of not having to reach up so go for it MOM an Cindy :Scratch-Head: though getting to how you feel MOM , maybe talk to your doc about an anti dperesnt ex; paxil, prozac, etc... does not hurt to try... but remember we are here for you and let it out !!!!:hug:

thank cindy, jo kat an mom for their positive vibes, now to wait the month or 2 for their decision <UMMPH>

If anybody has the chance to try water therapy go for it! The pool where I go is a constant 91 and feels great when in it, but when I get out can feel the difference, hope it adds to my mobility in time;) .

Pass long my hopes for low pain to all and a great day !!! Mark~n~GOOBER

dabbo

03-26-2007, 12:23 PM

I like the idea of a buzz.... been there, done that. Not sure i will this year, but we'll see how hot it gets and how i feel. Momz and cindy, i hope you're feeling better today. Johanna - way to go getting to the gym. I honestly think that the cardio I try to do in the mornings helps more than anything, although I only feel the reduced pain lvls for a few hours. The overall benefit of being active is huge, I think. On a totally unrelated note, I thought i broke my big toe, but found out last night that its infected and inflammed. so i have to take MORE meds. :mad: between the ketoprophen dose and the medrol and the muscle relaxer (not sure why the doc prescribed that:confused: ) my stomach pretty much hates me. I think it hurts more than if i were to drink cheap whiskey all weekend. oh well. not the end of the world.

Jo*mar

03-26-2007, 01:35 PM

Hey Buzz cuts are cute!
I've been giving buzz cuts to hubby for 10 yrs or so and boys too but now they go to barber shop or do it them selves I guess.
We like 3/8" the best.
saves a lot of money - just buy a good cutter and buz it off.

********************************************
[This is just rediculous...and so very frustrating. I tried to peel potatoes yesterday and cried. I couldn't even fry up ground beef! ]
momzpeachy-
Boy I do remember those times!
a couple months in 03 was the worst for me - got so sick of not being able to cook! and only eating fast foods, frozen dinners and sandwiches. I love to cook.

When did your bad symptoms start?

momzpeachy

03-26-2007, 07:19 PM

Hi guys

Today I had 3 fights with my hair..lol. :mf_swordfight:

Ok, who won...hair of course! I gave up! I almost went for the shaved head look but just couldn't get up the nerve. I was pulling some of it out though! I got so mad because I wanted to put my hai rup today but couldn't get my arm up enough and long enough to do it. HOW FRUSTRATING :Bang-Head:

I also noticed today how bruised I am from all these injections. My neck is green and bruised and sore as heck! I haven't wanted to look at it since I started going through all this. Also pressing anywhere around my neck is a NO WAY HAPPENING THING!

I now have extreme pain under my arm, under hte armpit and along the side around to the back. Also, my ribs hurt when pressing on them too. THe pain seems to be migrating to new areas. I don't know what's going on. It hurts to cough sometimes and man do my ribs and whole right side just feel sore. My shoulder, elbow, and wrist are killing me!

I also have a new problem...I started getting pain on the left side..a little bit in the neck and a lot in the wrist. What does that mean? :eek: Please tell me this can't be happening and occurring on the other side now too.

ALso, here is a little about my story on how this started. In April of last year I was typing at work like I did every day and I was feeling achy. I started getting daily headaches and just an achiness/tired feeling in the right arm. I went to the Doc who referred me to a neuro. He did some tests ...looked for carpal tunnel and MS. Both came up negative so he said absolutely nothing. Gave me something for the headaches and didn't say anything further. Never saw him again. I assumed maybe I was just getting older and was doing too much typing at work. Getting kinda tired in my old age or something..lol.

So I kept doing what I was doing and over time things got much worse. The tiredness and achiness was getting to be more and more. Headaches were more severe and arm pain was happening. Then in December of 06 I started having so much pain in my wrist and elbow. I was also having trouble lifting my arm up and lifting anything was becoming a struggle. I was dropping everything and was having trouble even doing simple chores. I started having ICE COLD hands! I was going to the bathroom and running hot water over them A LOT! I was shaking out my hands, wearing a wrist brace, you name it..I was lost. I was then getting very uncomfortable sitting at my desk. I was getting a burning feeling in my neck. I then started noticing my fingers turning BLUE/PURPLE while typing at work and I freaked out. I went to the regular doctor who said I had all the signs of carpal tunnel who then referred me to a ortho..who said the same thing and referred me to the neuro. THen all the tests began and I got diagnosed in February with TOS. He checked for everything(CTS, MS, herniated discs, etc). Had to rule out all that to get the TOS dx. So here I am now. Going no where fast. And typing this has brought on the pain. There is more to the story but I will save that for a better day.

Take care all

momz

johannakat

03-26-2007, 08:36 PM

Momz- often tos is bilateral- think of it this way- your rib is pushing up against your collar bone because it is too high. so, if one is higg and rib cage is pretty connected andsymetrical, guess what...the other is high too...

spasms in your neck and back muscles aren't helping, they are pulling the rib cage further up, so go figure, the other side starts to hurt, too. For me, started on the right, and after months of compensating with my left arm I am now more interested in surgery on the left than on the right.

Also, a note on bruising:
those big green and black and blue areas are the result of extra dried blood particles hanging around under your skin. ALso, I bet there is some swelling associated with all those bruises? TOS is the result of compression. you are now adding little blood particles and extra lymphatic fluid to an area that is overstuffed already...these can cause extra compression by taking up space. Extra compression= extra symptoms.

The last time I had an IV it was in my wrist and it bruised afterwards...my whole forearm was numb for a week until the bruising went away.

I don't mean to give you something else to worry about, but bruising may be contributing to your symptopms...

IF stimulators are reported to help flush some of that junk out buy stimulating deeper healing and promoting "waste flushing" of the stimulated areas. (deeper and moreso that TENS) Also, there are exercises you can do to promote lymphatic drainage, or there is such a thing as lymphatic massage. (it is super super gentle). These things may really be able to help you. I know our PT gave shelley an exercise to help increase drainage around the neck/collarbone area after her surgery. It was something really simple like:

look striaight ahead
put your pointer finger on your chin and press gently
bend your head down at a 45 degree angle between your shoulder and chest, or maybe it was a little closer to your shoulder...can't remember..I think it was like trying to look at your armpit....
then bring your head back up again.

also not sure if the finger's part is very big, just know shelley did it when she showed me. It was a very gentle movement and you don't have to go far.

Shelley....are you out there??? is this at all correct????

On a good note- the fact that you got to a doctor who could even diagnose you properly in a BIG PLUS!!!! That he knows what to do after dx is even better :)

:hug:

Johanna

johannakat

03-26-2007, 08:42 PM

PS, new favorite thing about my health club....

They have the big hand dryers that blow air, but high up on the wall so you can stand under them...no more having to hold the hair dryer..:D
I may never take another shower at home.

Edelweiss

03-27-2007, 09:24 AM

know I am late with my wishes to Mark, and I am happy that the hearing is over! Alles Gute und vielen Dank für die netten Worte!:)

I am having hundreds of strange things: there is a lot of pain in my arm, but a kind of pain I don`t know until now, there are some red spots on my face, and so on, and so on.....I don`t want to make a list of it.
The people around me are all having influenca - not me happily, but......
I am curious how this goes on.

And for the fight with the hair: today and yesterday I look like a witch and my working mates, too - so it is in the air and not an arm problem *lol*

Wish you all a pleasant day!
Barbara

Shelley

03-27-2007, 11:24 AM

Today I just feel like crap :(

johannakat

03-27-2007, 11:41 AM

:hug: sorry, shelley.

Dolfinz

03-27-2007, 12:53 PM

Hi everyone..
Got back from Florida over the weekend and came back to SNOW ! ugh.... should of stayed in Florida...... How is everyone ??? Been gone for 7 weeks.. feels like a lifetime ! But Today is the start of a brand new life for me !!

dawn3063

03-27-2007, 01:50 PM

Am being haunted by the Lyrica Curse :icon_twisted: ... I have been on it now for 6 days and I have gained a pound and a half :Sob: This just sucks!!! I have even been religious with my weight watchers diet...
Now I have to think :Ponder: is the weight gain worth the pain relief... Because this is a issue I don't need anymore added weight on my mind... :thud: Need I say anymore...:eek:

Shelley-I'm sorry your day is bad. I do hope it gets better.

Dolfinz-It is so good to see you back. How is your Mom and Dad doing?

Many Hugs to All...
:grouphug: Dawn

olecyn

03-27-2007, 11:25 PM

Been energized getting me some weekly help around the house
Hired a person
Then my hubby came up with the W/C issue hiring an outside source
Damn, thought I had it all figured out
I was so jazzed with the help.

Pain, frustration and confussion of the best surgeon or not to have surgery yet continues.
I sit here while my medical care is not being paid for except by hubby.
I'm so tired of this pain crap.
And as for California W/C...it F*&^%$ sucks
Such a pisser how they wait till you die.

Kinda scared...
Called my PCP and asked for a colonoscopy with the breaking news out and about.
Wanna get it before it gets me, AGAIN.

The strings just broke on my violin

Donna7

03-28-2007, 01:08 PM

Cyndy...sorry :hug:

Dawn...did you have your SGB? How did it go? How are you feeling these days? Sorry about the weight gain w/Lyrica. I haven't had as many side effects from it this time as last...maybe your problems will calm down some.

Shelley...sorry you're feeling so awful! Hope today is better!

Mark...hope you get some good news soon from your judges!

Dolfinz...welcome back!

dawn3063

03-28-2007, 01:58 PM

Am so tired... I was initially sleeping great when I started taking the Lyrica which will be a week tomorrow. But last night and the night before I had the hardest time sleeping. It has taken me almost 3 hours to fall asleep and then I wake up exhausted early in the morning among some other things.
My arm is still sensitive, not much change there... I had thought I was starting to feel a little better in that dept but Hmm, probabley not... I guess it's just a cruddy day since I'm tired. Maybe I need to give it more time...

Hi Donna, No the Nurse Practitioner said that since the sensitivity had decreased some that we should hold off on the block and start Lyrica to see how that works. She thinks that the nerve is healing on its own and that it's not RSD at this point. I'm still a little worried that I should have continued with the block to see what the results were. If this isn't improved in another week I'm going to call and see what we need to do. How are you doing?

Oh, Cindy that sucks.. Can you hire a cleaning service to come in and clean your house. I wouldn't think that would be a problem. Everyone has them anymore. Did you check with your attorney to see what they have to say? Maybe they have some recomendations for you.
Good Luck on the colonoscopy.. Your in my thoughts for a clear test..

Shelley, Sure hope your feeling better today.. Enjoy the beautiful warm weekend that's just around the corner..

And to all other TOSers Pain Free wishes and :grouphug: to All...

Dawn

redjpwranglergirl

03-28-2007, 11:56 PM

am having a BAD flare- haven't had anything like this in a long time. Just spent an hour on the phone with my mother and by the time we hung up, my neck and shoulders were seriously spasmed....Sometimes she makes me :Crazy 2: Anybody ever have the feeling that they might as well try communicating with the cat for as much good as they're doing communicating with a parent, child, doctor (fill in the blank)?

Jo*mar

03-29-2007, 01:55 AM

long phone calls seem to bother me more than typing - but I never was a big phone talker anyway, so that might be part of the problem-LOL.

I for real finally got my computer fixed!! yeahh!

just had to by a new main board, CPU, RAM & hard drive is all!

it's 2x faster than the old cpu -so it's a kick ***** machine now!

and it's so quiet! the other fan was soo loud!

Hope you all feel much better soon.

Dolfinz

03-29-2007, 05:32 AM

Hi everyone..

First off, I hate the cold weather, since I have been back I have had major flare ups! Being with my Mom was Horrible ! (Lumbar fusion surgery ) it sucks having to care of your parents !

But I now know that weather plays a BIG factor in my symptoms ! Hope everyone can have a good day.. week.. month.... I sympathize with everyone here ! Have a good day ....

dawn3063

03-29-2007, 10:47 AM

Hi Dolfinz, I can totally relate with you. Last year my mom had a knee replacement and I went to help her out. Ugh.. It was the worst.. Sure wasn't the mom I knew.. demanding, angrey... I was Sooo glad to come home.. I think I spent the next week in bed with a huge flare..
I'm in Ca so I can't even compare weather to back east.. But I know when it rains... :rain: Ugh... I'm not a happy camper..
I do hope your flare calms down soon.

Red, I do hope your day is going better and I hope that flare is calming down..

But on a GOOD note.. I lost a POUND... YEA....:Excited: Yea.. I can beat the Lyrica Curse...:mf_swordfight:

To all.. I wish you a low pain or best of all a pain free day...

Many Hugs
:hug: Dawn

Dolfinz

03-29-2007, 03:31 PM

Whooo Hoooo found another person going thru what was it ?? "The Lyrica Curse "??? I'm hearing that !! (haven't lost anything yet.. but just stopped...)

Donna7

03-29-2007, 04:34 PM

Dawn, I'm so glad to hear that it may not be RSD after all! And I'm proud of you for losing a pound, even while you're still taking the Lyrica! I can't find my scale, so I'm deluding myself into thinking I'm not gaining weight. Keep fighting! I sure hope things continue to get better!

I'm doing okay... good days and bad days... still having some of the burning and redness in my arm. I try to ignore it as much as possible. Sometimes it feels as though my bed buddy is hanging from my shoulder, which is fine as long as the weather stays cold! I have a feeling I may not appreciate him this summer, though.

Dolfinz and Red, so sorry you guys are in a flare.

Yeah, Jo, for the new computer!

Edelweiss

03-30-2007, 06:10 AM

am sorra, but I want to vent a little bit.
My mother who helps me so much with all "handwork" (houskeeping,....) was diagnosed with carpaltunnelsyndrom. She only has the sleeping hands at night and does not suffer during the day or is not handicaped with the everyday work.
But the problem is, that it can progress.
So I am looking in the internet about informations to the topic.

Imagine if we are both hand-icaped.....:eek:

I know there will be a solution and my mom is a type of woman who is not so sensible and she will be ok soon.

Thank you, I feel better now - sorry for venting.
I wish you a painfree weekend.
Barbara

Jo*mar

03-30-2007, 01:51 PM

Hi Barb,
Have you found any info on carpal tunnel yet?
Did they give her wrist braces to wear at rest and at night?

it's best to not wear them while doing activities - it will strain other areas trying to work around the splint.

Sorehand is the first place I found when I had RSI {repetitive strain injury}
there are other good links listed on the site too.
http://www.ucsf.edu/sorehand/
Sharon Butler posts there - quite a few of her posts in 2003/04
archives are search able
or her site www.selfcare4rsi.com

I don't know if she would consider supplements?
Grape seed extract
MSM
A good womens multiple
Cal/Mag blend

johannakat

03-30-2007, 07:33 PM

am starting to get very excited for my spring break vacation....and got me a fanny pack so maybe, just maybe, i can carry at least my own stuff when I go hiking (we'll be doing some of that on vacation...we're going camping)

Edelweiss- I have the greatest splints for sleeping...
Pil- o splints, very comfy, easy to get on and off...i love them dearly and when my wrists are hurting they can help me feel a lot better even if I sleep in them for just a few nights:

look at them here (http://www.drugstore.com/products/prod.asp?pid=85769&catid=10&brand=31641&trx=PLST-0-BRAND&trxp1=10&trxp2=85769&trxp3=1&trxp4=0&btrx=BUY-PLST-0-BRAND)

I hope your mom feels better soon...yes it would be very difficult to have you both out of commission!!!

Dawn- Fingers and toes crossed that you do not have RSD....
How are you overall, BTW...having met you right before surgery..do you feel significantly better? I sure hope so.

Red and Dolfinz....sure hope your flares calm down...:hug: :hug: (one for each of you!!!)

Have a great weekend everyone.

Johanna

Edelweiss

04-02-2007, 03:33 AM

thank Jo and Johanna for the ideas and the infos to help with carpaltunnelsyndrom. I printed it for my mom, and she can decide what she wants to do.
A very interesting thing I found out: in the german and austrian homepages in the internet I read that CTS is not due to computer work - and in the english text it is always computer related. So what believe????
She takes vitamine B1, B6 and B12 and will start physio with ionophorese and a hydroelectric bath for the arms. And in 8 weeks she will have a ENG/EMG again.
So we will see....
@jo: what does MSM mean? I don`t know it and I didn`t find a explication in the internet.

I hope that all members of the TOS family spent a nice and agreable weekend.
Have a good start in a new week!
Barbara

Jo*mar

04-02-2007, 12:13 PM

MSM info-

[MSM
MSM is simply an acronym for methylsulfonylmethane, a dietary source of sulfur that naturally supports the immune system and plays a major role in the formation of enzymes and hormones that control body activities. ]

http://www.all-natural.com/msm.html
http://www.msmguide.com/index.html

beth

04-02-2007, 02:47 PM

Don't let the nurse practioner put you off again. When you call this week, I would suggest telling her you don't seeany real change in the sensitivity in your arm and you aren't comfortable waiting any longer to have the blocks.

(This should be a series of 3, spaced a few days to a week apart, but different Drs do it differently. Try to get them no further than a week apart if possible. The anesthesia provides roughly 4-6 hours of relief - anything OVER that amount of time, say you go 24 hours without the burning pain, is both confirmation of RSD/CRPS AND a successful block, i.e., it worked for you. Hopefully, each block will give you longer-lasting relief). :hug:

There is a limited window of time to get the blocks in order for a remission to take place, or failing that, to have the best results. If the nurse practioner still tries to counsel you to wait, hold firm and remember it's YOU that will have to deal with the consequences, NOT her! Simply keep repeating, "I'd like to schedule the blocks today, can you do that for me?" No matter what she says, stay calm, say you understand, then repeat, "I'd like to schedule....
If/when she says no, simply ask, "Fine, then who do I need to speak with?"
Repeat till she realizes you are not going away. :D

I've found that medical personnel are often reluctant to actually treat RSD patients, they don't know much about RSD and a fair number of RSD patients are involved with litigation, and they really don't want to touch us. But RSD HAS to be treated early and aggressively in order for you to avoid developing the severe pain and disability that are the hallmarks of this condition. Like TOS, we have to be the ones to stand up for ourselves, do the research and educate the medical staff unfortunately; however, once you get to a Pain Mgmnt Dr or Anesthesiologist who is does these blocks, they are usually, but not always, fairly well informed about RSD. The Drs I saw at my local pain clinic were great at giving blocks, but I'm not sure when they last attended a conference session or read any new journal articles on RSD - they see a lot more back pain patients than someone with RSD and TOS, that's for sure! ;)

OK, so if you don't have RSD, then you've lost nothing by trying the blocks. But either way, you'll sleep better by knowing one way or the other and taking some action, right? Pretty sure the nurse practitioner isn't losing any sleep over this :rolleyes:

It's sunny and supposed to hit 70 today, after weeks of either cold, rain or both - and I didn't sleep at all last night so I'm heading back to bed...figures!
Hope you have some high spots and humorous moments this week!

beth

dawn3063

04-02-2007, 09:08 PM

Hi Beth,
I know what you are saying and I know I need to get the block done. The sensitivity in my arm is the same if not increased again. I've been taking Lyrica now for 11 days with no change. I also am getting joint pain in my elbow and wrist and it feels as though I have pulled a muscle in the joint area of my right elbow (this is intermittent but continuing) with some mild swelling in my forearm. I'll be calling the Dr soon to discuss the block. :Thanx: for your help..
Many Hugs
:hug: Dawn

:mad2: :Soapbox: :mad2:

Then Today has just been a really sucky day. I woke up with a migraine. I took my meds... No Relief :( Then I had to go to my PCP who told me that my fatigue was caused from not participating in activities. Ok, Granted I stay in allot but there is no way I can get out and walk around the mall for 4 hours which she implied I should be able to do among other things.. Gee, my Bipartite sciatic wouldn't allow that even if I wanted to. Then came her lectures. She said "Well the ball is in your court Dawn" either you can decide that life is good or you can go about it as it is and stay in your house and have low energie and be depressed. I just looked at her.. and thought where in the heck did this come from... If anyone wants to get out and get there life back it's me...No offence, I know everyone wants there life back...It's just a figure of speech. So you can imagine my Migraine was worse when I left the doctors office. So I took my second pill for my migraine and finally it went away. But now I am feeling like a truck ran over me and I get dizzy just sitting at the desk.
Well, I just want to go and take a pain pill and veg out on the couch.. But then again.. Maybe I should just get out of the house and go walk around the mall for 4 hours...:mad: What are these Dr's thinking sometimes.. Oh, wait a minute.. They don't think...

Ahhh, I feel a little better now that I vented that...

Thanks for listening...
Hugs to all
:grouphug: Dawn

Donna7

04-02-2007, 11:40 PM

I am so sorry about the RSD stuff happening again! And for your lousy doctor's visit today. I think I'd be looking for a new doc! That was very rude and insensitive...

:hug: I do hope you can get some treatment for the RSD quickly, and get it stopped before it really gets going. And please know that WE, at least, understand what TOS is like! :hug:

Edelweiss

04-03-2007, 04:42 AM

thank JO for the information about MSM!! You are great!

Iwish dawn a better day today!!!

Barbara

Jo*mar

04-03-2007, 11:57 AM

Hmmm I would think the same too - Dr is not fully on your side or not fully understanding of the TOS/RSD & sciatica situation.
In other words maybe you are beyond her scope of care now??

She could have suggested a starting with a short walks 2x a day if anything.
Just sitting outside in the sunshine and listen to the birds and sounds of spring makes me feel invigorated.

If she thinks you are depressed has she suggested an anti depressant?
Sometimes those help the pain meds work better also.

But then again if you like her generally - maybe she was just having a bad day.

***************
beth -It's great to see a post from you - your first hand know how, and encouragement, on the RSD stuff is really appreciated.

***********
barb- Thanks -I hope some of that info is helpful.

dawn3063

04-03-2007, 07:14 PM

Just can't seem to get ahead. I had a good friend call me and tell me that she is moving to AZ in a couple of weeks.:Sob: It seems as though all of my close friends that live near by are moving away. :Doh:

Anyways... Enough of That...

Jo, I agree that my condition may be beyond my Primary Care Dr's scope of practice at this time. She is my Primary and I do see her for general check ups or if I get a cold etc. She did prescribe an anti-depressant for me and has been adjusting that. I had hoped she would suggest that I see a chronic pain counselor but as you said I think it is beyond her scope. I don't think that she does fully understand the TOS/RSD/Sciatic thing... and you know how Dr's are they just hate to admit that they don't know... I guess I just need to take this portion of it and tell her I am moving on to a councilor once I find a good one. It just seems like chronic pain councilors are few and far in between. I do think it was a bad day for her as she is generally a fairly good Dr.
She has nothing to do with my TOS/? RSD or Sciatic my Neuro takes care of all of that.

Donna, Thanks for the great support :hug: . I do hope that your RSD pain is staying at the lowest level at this time and that you are able to get it taken care of ASAP.

Barbara, I do hope you have a pain free day.

I'm going to head to the pool now that summer is here. :Sinking: That always seems to help...

Oh, and then... My Ortho surgeon P&S'd me with my spinal fusion so now my checks have stopped...:sad-dollar: Back to just hubbys income... Come on Social Security I'm depending on you... I'm still waiting on my hearing date with the ALJ. Then I got a notice that I have to go to Jury Duty. :holysheep: :thud: I just want to run away :OuttaHere:

Well, I think I have complained enough for a day. If my meds allowed it I would have a glass of wine and veg out.
But I can't so instead of that I am going to indulge in a HUGE Gallon of Cookies and Cream Ice Cream:icecream: I don't care about the pounds at this time...:pizza: :pizza:

I hope everyone has a wonderful night...
Hugs to all
:grouphug: Dawn

redjpwranglergirl

04-03-2007, 08:51 PM

Dawn,
I'm sorry to hear what all you've been having to deal with right now. The icecream idea is a good one- enjoy some for me!

Jo*mar

04-03-2007, 11:05 PM

for jury duty - if you aren't physically able {to sit long times or attend a possible long trial} I 'm pretty sure you can be excused. {with a drs note.}

DDayMBB

04-05-2007, 06:13 AM

Today I... am just passing thru to say Hi and say I am still alive and hope that everyones problems become mild and that ALL have a pain-free day !!!!!!!!!!

Mark-n-Goober

Edelweiss

04-05-2007, 09:03 AM

am full of energy: I will enjoy a 4 day long weekend....this makes me happy.
Therefore I wish a happy easter holiday to all my dear TOS-friends!

Sunny greeting,
Barbara

DDayMBB

04-08-2007, 07:07 AM

TODAY I..... Wish unto all a peaceful Easter and hope it is spent amongst friends and family. I would also like to send forth my wishes for a pain free day to all, here in the northeast are undergoing temperatures in the 20's and my body is screaming for some warm weather!!!

GOD BLESS ONE and ALL !!!! Mark~n~Goober

astern

04-08-2007, 10:52 AM

...wish you all a Blessed Easter and all good wishes for a pleasant, relaxing, stress-free day. Yes Mark, feeling those temps in Dixie - I'm having uncontrolable daydreams of Key West and frozen coconutty drinks.

dream on, :Mexican: :pepsi:
Anne

dawn3063

04-08-2007, 11:04 AM

Today I... Am Wishing all my TOS family a Wonderful and Happy Easter...
God Bless All
Dawn

Dolfinz

04-08-2007, 11:41 AM

Today I ...
Wish everyone a Happy Easter... and I learned that I am going back to Florida.. Mom in the hospital again (since Tuesday) she has an Esophogus Ulcer(sp?) which could of been due to her having SO many drugs from the Lumbar Fusion surgery (just got back 2 weeks ago from FL). But she is getting out TODAY and she will be on Antibiotics. I hope she doesn't relapse again till I am there to take care of her...

SO...... back to the WARM sunshine for a while.... but my week won't end... gotta put my dog down on Friday......sniff sniff sniff Dakota.. of 12 years, my best friend.. but having a group of friends like you all helps ALOT so hope everyone has a great weekend.....I will try.. (the TOS is killing me tho !!)

Ciao,
Dolfinz

dawn3063

04-08-2007, 05:08 PM

Dolfinz,
I am so sorry to hear of all your up and coming trials. I do hope that your mother is doing better and I hope that her recovery is smooth and quick for you.
I am so sorry to hear about Dakota and the difficult day Friday will bring for you.. My heart goes out to you.:hug: They are such close friends to us.. It sounds like you had given Dakota a long wonderful life...
Many Hugs
:hug: Dawn

redjpwranglergirl

04-08-2007, 06:40 PM

Happy Easter to everyone. I can't believe how COLD :eek: it is here- not like April in Texas at all! There was snow in the Waco area yesterday. Dolfinz, I'm sorry to hear about your mother- I hope she's better soon. Also sorry about your dog. We thought we were going to have to put our cat to sleep a couple of months ago but with the help of our vet and alot of $$$ she's good as new- found out she's diabetic and we have to give her an insulin shot a day and she has to eat prescription diabetic cat food.

DDayMBB

04-09-2007, 10:55 AM

Today I.... PASS ALONG A HELLO TO EVERYONE !!!
dOFINZ, SORRY TO HEAR ABOUT WHAT IS GOING on with your mom.... a terrible way to escape the cold, also all you need is more work with your TOS..... certainly will be included in my thoughts and prayers !!!!! 7 years ago we had to put our pooor old dog down, but a week later we saved a pup who was scheduled to be put down and she is such a great dog... they truly make a house a home!!!

Red I will exchange the teens for the weather you are having in Texas:D

All in all I hope everybody has a good pain free day!!!!!!!!!

Mark~n~Goober

DDayMBB

04-09-2007, 11:21 AM

TODAY I.... would like to share an E-mail that I received which hits home and heart.

Support Our Troops

February 26, 2007

Contributed by an American Citizen
I love this e-mail. Support our troops!
Think about this:
A mother asked President Bush,
"Why did my son have to die in Iraq?"
Another mother asked President Kennedy,
"Why did my son have to die in Viet Nam?"
Another mother asked President Truman,
"Why did my son have to die in Korea?
Another mother asked President F.D. Roosevelt,
"Why did my son have to die at Iwo Jima ?"
Another mother asked President Wilson,
"Why did my son have to die on the battlefield of France?"
Yet another mother asked President Lincoln,
"Why did my son have to die at Gettysburg?"
And yet another mother asked President Washington,
"Why did my son have to die near Valley Forge?"
Then long, long ago, a mother asked...
"Heavenly Father, why did my Son have to die on a cross outside of Jerusalem?"
The answers to all these are similar --
"So that others may have life and dwell in peace, happiness and freedom."
This was emailed to me with no author and I thought the magnitude and the simplicity were awesome.
If you don't stand behind our troops, please, feel free...to stand in front of them!

buckwheat

04-09-2007, 11:40 AM

Dear Mark,

This is beautiful. My oldest son was in the last gulf war. If you don't mind I am coping and pasting this on the RSD site. Their are vets their, Thanks, Roz

Dolfinz

04-09-2007, 08:58 PM

Thanks for all the words everyone.. I am glad that I have been with this forum .. I have learned alot and got alot back too !

Hope eveyone had a great Easter.. and everyone can find some comfort for whatever it is that today brought... Tomorrow is a new day....

Have a great rest of the week everyone !

johannakat

04-09-2007, 10:37 PM

Today I am happy to rejoin my TOS friends, less happy that vacaiton is over and I am back to work and the daily grind.

Had a great vacation, nothing like a few days in the wilderness to make me feel whole and appreciate all that I have in my life.

Thanks to you all for being there.

Johanna

DDayMBB

04-10-2007, 06:50 AM

TODAY I.... am getting ready to go to swim therapy<what a great hour of releif> the water temp is a constant 91 F , the only draw back is getting out and hitting the cold showers. Afterwards, on my way to my pain management doc... think he is going to be giving me a trial of Morphine directly into the spinal column.... if that works, onto a temp pump that stays outside for a week trial than they implant one in the stomach/hip area and run a shunt directly up and into the spine***YEAH, NO MORE OXY-CONTIN IF THIS WORKS***

............. Welcome JoCat back and hope all is well with her;)

............. ROZ please do feel free to spread that around, it is such a sad fact that blood must be shed so that we remain free and great and I thank God for the soldiers and their families each night for their sacrafices!! BTW Roz, I am now officially DXed with CRPS/RSD, by 3 doctors.... lucky me, though I do appreciate all the advice and answers to al the stupid questions I directed to you concerning RSD <UUUUMMMMppppphhhh> :confused:

.........TO ALL THE TOSers AND THOSE WITH RSD, MAY YOUR PAIN LEVEL BE LIGHT AND YOUR WORRIES BE FEW, GOD BLESS ALL!!!!

............ Finz, now come on, no need for thanks over here, we are like one disfunctional family, but care for one another just the same!!! Feel free to speak or vent anytime the need comes about:)

Mark~n~Goober

Jo*mar

04-10-2007, 11:10 AM

Best of luck with the trial of Morphine , Mark- it's good to see you are getting some action to help with the pain finally.

Have a great day everyone!

gibbrn

04-10-2007, 11:19 AM

best of luck with your trial Mark hope all goes well.....may be travelling down the rsd, crps road myself.....nobody believes me that it is scar tissue causing the vascular issues.....thinking of u good luck!!!

Victoria:hug:

dawn3063

04-10-2007, 11:37 AM

Acually have warmth in my right hand. It would be great if it stayed.. Literally "Time will Tell"...

Mark-Best of Luck :Good-Luck: to you tomorrow with your trial Morphine pump. I will keep my fingers crossed for you..

Victoria-I truley hope that you aren't heading down that CRPS/RSD road. I do hope that you are able to iron out that scar tissue and vascular issue soon.

Here is wishing a pain free day to all...

Many Hugs..
:hug: Dawn

DDayMBB

04-10-2007, 02:22 PM

Well thanks for the positive VIBES all, though as things turned out... they are not going to do it in the office, therefore looks like I have an overnight stay in the hospital on 5/7!

Victoria, I certainly do hope that you are not getting CRPS.... I for one say that it suc*s real bad.... keeping you in my thoughts;)

Dawn a lot of time, I find myself wearing mittens even in the house, and say heck with what others have to say or think about it!

johannakat

04-10-2007, 03:00 PM

Today I sent heartfelt good luck vibes to Mark and Dawn that things go down the best possible path.

Victoria- DO not overdo on the packing front and I hope you find some peace and relaxation along the way. Pain does bad things for your psyche.

I have also decided as of yesterday that I will be unable to make a surgical decision w/o talking to doctors who perform more than one procedure. SO, I will make a trip to Denver probably late april/early May and hopefully be able to decide what to do after that. Don't know yet if I could rightly have surgery so far away from home with so many qualified surgeons here in LA, but hopefully the opinions and evaluation will help me settle my nerves and make a decision.

happy day to all....

Johanna

Dolfinz

04-10-2007, 07:15 PM

Today I...

Wish that EVERYONE in this post have a pain free week and hope that you all can get some relief on all of your matters....(hands are hurting too much to type tonight ) My Mom is back in the Hosp. and I leave on the 24th to go down..ARRRGGGHHHHH ! Well everyone have a great night..

Hugs and blessing to all,
Dolfinz :grouphug:

DDayMBB

04-11-2007, 01:22 AM

Dolfinz, I hope that your time with mom goes well... PLEASE do remember that you have to take care of yourself also, you do not need to aggravate everything going on in your life. You will be in my thoughts and prayers and if you have access to a computer, remember you can always come around for some moral support:hug:

Mark~n~Goober

Dolfinz

04-11-2007, 09:17 AM

Thanks Mark as usual.. The computer things well it might be a while she has that dreded dial up stuff.. if ya know what I mean.. I am seeing a new ortho on the 23rd so hopefully he will bring new light to my TOS... Hope everyone and you have a great day !!:hug:

johannakat

04-11-2007, 03:18 PM

Dolfinz- safe visit and good pain control an the airplane to you.

Let the Fla sun warm you to your core and enjoy every second of it...sauna without trying :)

redjpwranglergirl

04-11-2007, 08:05 PM

don't know whether to laugh or cry. I had to go back to the podiatrist and I knew what was probably coming:( I have to have surgery #4 on the same foot- a bone spur and inflammed bursa on the bottom of the head of the 5th metatarsal. He'll be breaking the bone and setting it in a better position- otherwise, I'll probably continue to have spurs form. He'll also remove a screw from the second surgery I had to fuse my big toe. This time it isn't supposed to be as bad as that one was but I'll still be on crutches for 2 wks.- which is better than the 8 wks. last time. Up 'til now, I've been having to get cortisone injections in the joints of my toe to keep the pain away but just couldn't stand the thought of another one of those- they're incredibly painful. So, surgery here I come....Realistically, while I'm not at all happy about it, as I always try to say, "it could be so much worse", and there's nothing I can about it so I might as well try to make the best of it.

dabbo

04-12-2007, 01:08 AM

redjpwranglergirl

04-12-2007, 01:21 AM

I'm sorry to hear that Red- I hope they can fix it. I've been having pain in my left big toe for the last 6 wks - almost right on the ball of my foot. Its gotten so bad that I can't really walk properly right now without horrible shooting pain - the kind that makes you see flashes of light..... I was planning on going to an orthopedic doc, but then i read that you mentioned podiatrist. So is going to an ortho worth it? so *#$*$! ing frustrating. just one more thing to add to the pile. I know it could be much much worse, but dealing with the mental side of this has been more difficult lately. arghhhhhhhhhhh. oh well.

anyways- i hope everyone is doing well around here.
Dolfinz- take care of your self, and I hope things go well in FL
Dawn - I hope that keeps on working!
Mark - I hope the morphine pump does the trick for you!!
Peg- - take care of yourself too.....
Shelley - haven't seen you around much (then again, i've been something of a stranger....) so.... :Poke:
Di- haven't heard from you in a while- i hope you and katie are doing well...

Dabbo,
When I first started having problems several years ago, I got advice (alot of it unsolicited:rolleyes: ) about both- the ortho and podiatrist but had more people recommend going to the pod since that's all they do. The one who's done my last 2 surgeries and the upcoming one is really good as was his partner who did my first surgery. On the other hand, the first pod I saw several years ago was a fruitcake (legend in his own mind....:rolleyes: ). I guess I would advise you to maybe try seeing one of each and see who you like the best. I can sympathize because when your feet are hurting, it's miserable. And by trying to walk so you can avoid more pain, you throw everything else off- you can have back aches, hip pain, etc. The only "good" thing I can say about it (if you can call it good...), the pain of this makes me forget about the TOS pain/issues.:D Kinda like the old joke where you have a toothache and someone hits your toe with a hammer and tells you that that'll take your mind off the toothache....Good luck- I hope you don't have to go through any surgery for this and as in any surgical case- don't let anyone operate on you that seems "knife happy"- trying something conservative first might be all you need- such as orthotics or an injection (:eek: ).

Edelweiss

04-12-2007, 05:48 AM

had an appointment with my shoulder-specialist. I haven`t seen him since 2004 and in the last weeks my shoulder hurts more than usual and the arm is extremely weak, so I decided to see him again.
The subscapularis was reconstruced by him 4 years ago and now he suspects a re-rupture. Isn`t that horrible? I will do an arthography next week and then we will know more. Not to know what exactly happens and living with hypothesis is very difficult for me.

Thanks you - so I could vent and feel a little bit better now.

Dolfinz, dabbo, mark - I send you good vibes - hope they will help.

To all others: I wish a pain-less day and send nice greetings
Barbara

DDayMBB

04-12-2007, 09:01 AM

TODAY I.... will share another E-mail that I received, hope no offense is taken by anyone as I share it in just in humor not in picking on any person/group !

A redneck was stopped by a game warden in Georgia recently with two ice chests full of fish. He was leavin' a cove well-known for its fishing.
The game warden asked the man, "Do you have a license to catch those fish?"
"Naw, sir", replied the redneck. "I ain't got none of them there licenses. You must understand, these here are my pet fish.."
"Pet fish?"
"Yeah. Every night, I take these here fish down to the lake and let 'em swim 'round for awhile. Then, when I whistle, they jump right back into these here ice chests and I take 'em home."
"That's a bunch of hooey! Fish can't do that."
The redneck looked at the warden for a moment and then said, "It's the truth Mr. Government Man. I'll show ya. It really works."
"O. K.", said the warden. "I've got to see this!"
The redneck poured the fish into the lake and stood and waited. After several minutes, the warden says,
"Well?"
"Well, what?", says the redneck.
The warden says, "When are you going to call them back?"
"Call who back?"
"The FISH", replied the warden!
"What fish?", replied the redneck.
Moral of the story: Georgia rednecks may not be as smart as some city slickers, but they ain't as dumb as some government employees.

My best to all for a low pain day;)

Mark~n~Goober

Jo*mar

04-12-2007, 01:52 PM

I can empathize with the foot pain thing!
I somehow managed to kick the telephone table dead center on my left foot. GGRRR...
Not as bad as what Red & dabbo are experiencing at all - but it is throbbing and a bit uncomfortable to walk on.

Barb - I hope you get answers from the test.
Dolfinz - have a safe and sane?? trip.

Best wishes for all today.

dabbo

04-12-2007, 02:29 PM

redjpwranglergirl

04-12-2007, 08:29 PM

Thank you for the advice! I'm trying to get a couple referalls from my primary care doc- things seem to happen quicker that way.

Mark - thanks for the laughs! I'll have to remember that next time I get to go trout fishing......they don't play where I go in Arkansas. $250+ ticket for having a brown or brook that is under the limit. oh, and they have an agreement with TN and MO that they can take your drivers license if you don't pay. :eek:

Forgot to mention in my earlier post, if the dr. can't find anything wrong with you- as in "nothing" (where have we heard that before.....) shows up on an Xray, ask if they can ultrasound your foot. The last surgery I had, nothing showed up on the outer side of my foot until he did that and it showed a cyst. Same with this latest problem of mine. He didn't see the bone spur on the bottom with the Xray- although he admitted that part of the problem was because it's uncommon to have 'em on the bottom so he wasn't looking there....But when he ultrasounded it that time and yesterday, the bone spur is clear and so is the fluid from the bursa.

Jo*mar

04-12-2007, 08:57 PM

redjpwranglergirl

04-12-2007, 10:09 PM

I'm beginning to think I broke or fractured my second toe - small purple spot and some swelling plus I can't put much pressure on the ball of my foot.
So I'm hobbling around in between icing and elevating it.

On a whim, I replied to an ad about part time work and the lady actually replied and wants to meet with me!:eek:
I'll have to see how she is set up so I can decide if I'm able do the work or not with out any problems.
But she is totally willing to work within my schedule.

I hope my foot is much better by Monday so I'm not limping in to the interview- LOL

I hope you didn't break your toe, Jo:eek: I've known several people who have and didn't know it. One friend of mine went several days before she finally went to the dr. and sure enough, her toe was broken. Sounds like what you're doing right now is probably the best thing- keep it elevated (and your weight off of it) as much as possible.

Jo*mar

04-13-2007, 12:00 AM

Well I'm not new to the toe break thing - I broke my little toe and a bone near it on my left foot in 03 and about a year later I managed to thunk my right little toe and broke it.
Geez - makes me sound really clumsy or worse - brittle bones already :eek:
and each time it happened in the spring too. how odd is that!
I better start taking all my vitamins regularly again.

2003 was a bad year for me - I had the shoulder strain, then broke the toe & foot bone, then started having the RSI troubles, then had the knee bursa removed, and then had the major RSI/TOS stuff happen- then off and on work, modified work, off work and comp claim filed and then denied after the IME report.
All the stress from that stuff plus the all Motrin/Advil I had been taking caused tummy troubles too.

momzpeachy

04-13-2007, 08:22 AM

well today I am ...ready to give up! :Sinking:

I haven't posted in a while because I just can't type much or sit at computer for more then 5 minutes! It's getting really frustrating! I've been trying to use the laptop on the couch which is a little easier but I still don't last long. I've been trying to read through posts but I give up.

mark..I hear ya and I know how you're feeling. I haven't had a good nights sleep in I don' t know how long. I'm fed up! i can't get comfortable anywhere! Going places is a nightmare! I can't drive without being in major pain. I carry my advil with me everywhere but that's not even working anymore. I've been having to drive my daughter to Doctor appointments which has not been helping my flares. The drives are iver an hour long then sitting at the Hospital waiting is just peachy.

I saw the Doc Wednesday and he is now sending me to another Doctor for epidural/facet joint injections. I'm going to a pain specialist for this. The neurologist can't do anything more for me since the trigger point injections and nerve blocks aren't working. It works for a day or two then everything comes back. I've had over 6 now and got no where with them. He said I can't start therapy because they wouldn't be able to get very far with me. I'm so flared up and in too much pain.

My symptoms and pain have now spread which leads the Doctor to believe I now have RSD. I knew the left side was starting a few weeks ago but now my rib cage is sore, abdomen hurts, knees burn, and I can't walk too well at the moment. My musclces are now tight in my legs and getting up steps is almost impossible the last few days. I have trouble getting up after sitting and walking is painful. My jaw is also now popping and in pain. I'm a real mess! My right eye is also affected and I need to see the eye Doctor because it's red, painful and turning in and out. Oh, and I forgot the ear pain...!!!!!!!!!

Well the neurologist is quite concerned. He said I'm not making any progress and we should've seen quite a bit of progress by now. I'm getting worse instead of better. I just don't know what's next. I'm not too happy about the next procedure. Having injections around my spine don't sound too good. I just don't see what my options are. I want my life back but the Doctor said it's going to take a LONG time before i'm better. PEACHY! He told me I need to just relax and just take one step at a time..yea yea...easier said than done...especially when you have no income and bills to pay.

I called the Doctor's office yesterday looking to see if I could get a better pain medication since the advil isn't working. I got the nurse/receptionist and boy I got no where with that. I was told to take ibuprofen..well duh isn't ibuprofen the same as advil? I was told I'd have to make another appt to see the doctor to ask about pain meds. I've been seeing this Doctor for 3 months and he knows me quite well and knows I'm in pain but I have tomake an appt to get a better medication??????????????????? I was not a happy camper so here i am venting right along with you guys.

I would like to go for another opinion and see another Doctor but I can't. Our insurance just changed and I was told that if I see another Doctor they are going to list this injury as work related and when they submit it to the insurance company it will get denied and since the workman's comp was denied also (but in the hands of a lawyer)...in the meantime I will be responsible for the bill. I don't want to start having medical bills coming my way because the insurance company won't pay. I know if they see a work related injury they will deny the claims. so now what? Stick it out I guess but I'm just afraid one of these days I'm gonna wake up and not be able to walk.

The only good thing out of all this is...the weight loss!

Well have a great day all...and beware it's friday the 13th!

Jo*mar

04-13-2007, 12:14 PM

oh I so feel for both of you!

yep- IB is the same LOL that nurse/receptionist is a real wing ding!

Ibuprofen (Advil, Motrin) – drug class, medical uses, medication ...
Explains the medication ibuprofen (Advil, Motrin, Nuprin, Medipren) a drug used for the management of mild to moderate pain, fever, and inflammation.
www.medicinenet.com/ibuprofen/article.htm - 45k - Apr 11, 2007 -

How long have you been taking IB and how much?
I was taking 4 pills and then a hour later popping 2 more so 1200mg {with food} while trying to continue working for about 3 months or maybe longer. I think it helped to cause mild IBS - just want to mention that as something to watch for.

My claim was denied too - but I was able to use pvt med card as secondary ?? and atty wrote them that we were appealing the denial so they put all bills on hold until claim was finalized.
You might ask your atty about this option. see what he says.

Since I decided to settle - a few bills were audited {paid} by WC and the rest I had to pay from my settlement money.
Some of it was paid by my pvt insurance - it was a bit confusing to me why they pd some and not others and atty didn't help at all after he got his share. Atty told me that pvt would cover all of them - possibly so i would sign and settle??
At least it is over and done now.

DDayMBB

04-13-2007, 11:43 PM

Today I.... am so very thankful!!!! For all the great people here at the TOS Forum, as I said several times before I consider us family regardless of how disfunctional one we may be:rolleyes: . There is not many places one can go in life and receive the support and compassion that each and everyone here gives to one another. I have the greatest wife in the world, but unfortunately, when I try and tell her about how I am feeling the understanding is not there. I am not saying she does not feel bad for me, just that being able to have an understanding of the mechanism of the disorder is just something that unless you live it you do not know what it is like. That is why I think when one of us is having an off day and need support, we are able to open our hearts and share... so this I would like to share with all A GREAT BIG THANK YOU FOR PUTTING UP WITH ME AND MY VENTING and SHOULD THERE BE ANYTHING I CAN DO FOR YOU PLEASE LET ME KNOW, I MAY NOT HAVE MUCH, BUT I DO HAVE AN EAR THAT MAY BE BENT and a pat on the back when you are feeling down.... my best to all Mark~n~Goober !!!!

DDayMBB

04-14-2007, 09:44 PM

TODAY I... received a disc form medtronics, Inc. describing the Morphine Pump. I have tried everything else so guess this is worth a try ! I just found out that I can make copies (DVD) of this so I can share or we could start a little group that passes them around:rolleyes: . I really do not know how many would want to take this step in pain releif, but if you want to PM me your address, I will try and get a copy out to you! BTW any address/name that is sent to me shall remain private as others can vouche, I do not hand out numbers or addresses. I know I am actually excited about my trial on May 7th, that way I can cut down on my oral meds and the rolller-coaster of break through pain:Excited: and possibly regain a life again! Tomorow is my wife and mine anniversary and years prior this was a big deal for both of us, dinner and such or a trip to the Bahamas where we were joined in matrimony and now find it difficult to even plan anything and I feel so bad for my wife for my lack of enthusiasm for fun!!!

Though think I will treat her to breakfast in bed and than maybe go up to the casino for a bit before the crowds start getting there. I have fear of crowds anymore**getting bumped** and being in more pain... what a party animal , aye ?

Well will see, who knows, may feel like doing a bit more and my certainly deserves to get out and have a good time,,,, so before I trow myself into a flare from typing to much wish all a GOOD night!
Mark~n~Goober:)

Jo*mar

04-15-2007, 12:02 AM

Congratulations on the Anniversary!
I hope you are able to enjoy a special day.

redjpwranglergirl

04-15-2007, 12:03 AM

Happy anniversary to you and your wife, Mark! And I hope the pump works out for you and takes away the pain.

DDayMBB

04-15-2007, 02:54 AM

Today I... or should I say this morning thank you to Jo and Red for the well wishes, right now it is teaming rain here and temp is supposed to drop so if we get the amount of snow that has fallen as rain don't think we are trveling anywhere... though like I said thanks for the wishes, she is a great woman!

Besides the burning feeling I get in my fingers, hands, arms and neck as well as the massive headaches I get at the back of my head up and behind my ears, I have been getting twitches on the left side of my face and my left eye blurs and I see maybe two or three seperate imagaes of the same item... when I close this eye(left) and look through just the right everything goes back to normal... before I bring this up to any doctor, I was wondering if anybody has the same problem??? I am just relating these to my CRPS/RSD and posted over at the RSD board on this also!

Until later Mark~n~Goober

Dolfinz

04-15-2007, 10:54 AM

Happy Annv. to you and your wife Mark.....

Hope you able to enjoy yourselves.... Hope the pump works for ya too ! I am getting real bad optical headaches right now and it's snowing to beat the band here.. (FLa soon !). Hope everyone has a pain free day !

Dolfinz:hug:

HopeLivesHere

04-16-2007, 02:00 AM

Hi Mark,

I hope you and your wife had a great anniversary just spending time together.
Ours hasn't been as exciting as it was in the past but I plan on better days.

I wish you well with your pump trial. My pump trial went so well & I had such good pain relief. Right after that work comp took back the authorization for the trial that they had previously approved and then denied the permanent pump. Can they get any more cruel than to give me a taste of real relief and then take it back?
I joined a Yahoo group called the "Pumpsters". Very low key. I've only posted a couple times but the sharing and education there is great.

I too have ongoing vision problems. Sometimes I lose vision for a few seconds while I'm reading Then it comes back. Or my eye will go totally away from what I'm looking at and then go back a couple seconds later. Several other vision issues either, but they are intermittent and unless they happen at the doctors while he is testing me, they'll never know what it is. Personally, I don't think they'll know anyway. It is weird but what else is new?
Hope this storm doesn't do too much harm in your area.
Sending you lots of California sunshine....Hope

Edelweiss

04-16-2007, 07:08 AM

wish a belated-happy anniversary to Mark and his wife and I hope you had a "good" day with moderate pain.

Hope the morphine pump will help you to get relief!!!

Me too, I am so happy to know you all are here!! Thanks!

Wish you a good day,
Barbara

Horizontal One

04-16-2007, 08:19 AM

Mark...very belated wishes on your wedding anniversary and here's hoping the trial works out for you.

....also hi to all...trying to catch upas not been on since xmas spare you the details...so whilst so many to name in particular I will say a BIG HELLO and send my best wishes to you all.

H:) x

Jo*mar

04-16-2007, 11:19 AM

H One -nice to "read" you - I hope you are finding some improvements since we heard from you last.

I wonder if the eye sx are mainly related to spasms or TrPs?
I always have more eye /vision troubles when my neck & shoulders get very tight and I get odd little TrPs on my scalp.
I can do my stretches and press/massage those away and my eyes return to the more normal state.
My eyes will water more {a lot} and my reading vision is worsened, sometimes I get a slight twitch.

but it is always good to at least get a check up anyway, plus it will rule out any obvious eye problems.

DDayMBB

04-16-2007, 09:16 PM

Today I ... found a great site for those wondering about the signs and symptoms of RSD/CRPS and thought I would pass it along to those wondering about the disorder http://www.rsdhope.org/

dabbo

04-17-2007, 11:33 PM

redjpwranglergirl

04-17-2007, 11:52 PM

Mark - belated Happy Anniversary wishes.....
Today I.... was put into a walking cast. Seems my left big to has either a). bipartate sesamoids or b). I fractured my sesamoids stepping on the edge of something. While the walking boot/cast thing is uncomfortable and hot as hell, i don't usually have that shooting pain. oh well. no more driving the stick shift for a while. arggggggggggh. I'd like to replace the left side of my body excluding a lung and a kidney i think.

Oh, I feel your pain, Dabbo! I'll be joining you wearing a walking boot next week- am NOT looking forward to it because as you said, it's hot as hell:( How did you fracture your sesmoids?! Do you remember anything in particular that might've done this? Anyway, hope it gets better quickly for you.

johannakat

04-18-2007, 12:01 AM

Oh you guys make me think I should have more sympathy for my 14yo..she spent the last two months in a boot for a broken toe and I haven't been particularly sympathetic (she's been a BIG PIA with regard to other things...maybe that's why :D)

Also wanted to wich Mark a happy anniversary, and hiya Dabbo, haven't seen you in a while!

sweet dreams all...

Johanna

gibbrn

04-18-2007, 11:52 AM

ok so life is in the crapper right now
freaking about the move feels like nothing packed moving on 23ed....
pain doc idiot receptionists didn't do their job the right way so now I have to suffer from their stupidity and not have an apt.
feel like never waking up again
pain is worse than ever....now back on fentanyl patch up to 50mcg already
grumpy(to say things politely) with EVERYONE esp DH who put s up with it all..God love him

Even yelling at my baby cat....poor monkey having to put up with such a nasty mommy
feel like the whole word is crashing down on me and I cant do anything to stop it!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

there it all is in a nutshell.!
Calgary....don't even care
engagement...don't even care....
depression.....perhaps,

happy belated anniersary Mark!
love to all,
Victoria

redjpwranglergirl

04-18-2007, 06:36 PM

Today has not been the best of days....had to go get a surgical clearance from my PCP. The podiatrist wanted bloodwork done and there's only one lady in the lab that I'll let draw my blood because she never misses and the other ones, well...not good....But,lucky me, she's off after having shoulder surgery so they assured me that the "new girl" was very good.....The problem here is, if somebody can hit me the first time, I'm OK. If not, then there's a good chance I'm going to pass out on them. Let's just say she was not as good as the other lady because sure enough, she missed, I'm getting very light-headed and nauseated, and before it was all over I'm laying on the floor of the lab with ice on the back of my neck....Not one of my finer moments.
Sorry to hear you're back in so much pain, Victoria.:(

astern

04-18-2007, 07:24 PM

Oh Red, that's awful! I'm so sorry dear - don't you hate it when people (professionals) don't listen to you?

Best of luck o the pump Mark, and happy anniversary!

Dabbo, hope the foot fracture heals quickly - my bro broke bones in his foot 3 weeks ago and is already running (slowly) again.

Victoria, most packingh is done the day before and same day as the move - no need to freak on that. Sorry dear for the pain Doc's mess-up.

Hope and Jo, thanks for bringing up vision - didn't correlate my worst vision moments with TrPs and spasms!

God Bless us all, aren't we a mess of a dysfunctional functioning family?
:grouphug: :grouphug: :grouphug:

Best wishes for peace and painlessness,
Anne

Jo*mar

04-18-2007, 08:16 PM

redjpwranglergirl

04-18-2007, 09:01 PM

It's sounding like it's a rough spring for all of us!

Vic - can't pain doc squeeze you in for a quick appt?
Or call a previous dr for help?
Hope things ease up for you soon.

Yikes Red - hope the floor was clean LOL

we had fog and hail earlier but the sun is out now -yeah!!

It looked clean:o - but at that point, I didn't care. I was just hoping that I wouldn't pass completely out or throw up in the middle of the floor:eek: ....I always warn people that I'll do this but guess they don't believe me- what else is new:rolleyes: . I think this girl will remember me from now on though.

dabbo

04-18-2007, 11:27 PM

lol johanna.... i'm pretty sure that all 15yr olds are PIA at one point or another... its not so much the pain from the foot (that does suck tho), its the inconvenience of it all.

vic- i'm sorry that nothing seems to be going right. You've got a helluva lot going on right now. hang in there, and before you know it, most of it will be behind you and you'll have more time to relax and recoup. :hug:

Jo*mar

04-20-2007, 12:58 PM

I'm enjoying a beautiful sunny day today but was 30* overnite still - bbbrrrr.

Edelweiss

04-23-2007, 04:53 AM

have bad news to share with you: I will have surgery for the 3th time on my right shoulder. The subscapularis is the problem and I have to have surgery soon, to avoid muscular athrophy.
There is no guarantee - maybe the subscapularis will tear again, but the doc said I am too young (34y) and I will need my arm my whole life and he has to try everything.

I hope that you all can have a good and painfree day!
All the best
Barbara

Jo*mar

04-23-2007, 11:05 AM

Oh Barb,:(
When is your surgery?
I hope it all goes well.:grouphug:

redjpwranglergirl

04-23-2007, 12:36 PM

Oh Barbara, I'm so sorry to hear about your surgery. I hope all goes well- please let us know when you're scheduled.

johannakat

04-23-2007, 09:43 PM

am having a tough day...the baby is sick again, wheezing badly, on all available asthma meds, an antibiotic, some eye drops, and very little sleep. I escaped to get my few work hours in today, and it feels like vacation.

My arms and back are majorly flaring bc of the holding and extra attention she needs.....and I don't get any time to do my own exercises and stretching when she is this way. :thud:

Somebody get some :Zzzz: for me tonight....I don't see much in my own near future :Sigh:

sorry about your surgery, barb. What exactly is it for? Sounds like you have had something similar? :Hum:

hello to all, see you around in a few days, I hope.

Johanna

olecyn

04-23-2007, 10:02 PM

How the heck do you do it?
I can barley kick out my family early enough to get my mediation and exercises in to calm down the nerves and sooth the muscles.

Man o man I feel for you young TOS moms.
I GIVE YOU PROPS!
XXOO

redjpwranglergirl

04-24-2007, 12:14 AM

dabbo

04-24-2007, 02:18 AM

I'm sorry that things aren't going to well right now red..... I do hope that they fixed your foot, and that they fix the pain med issue. take it easy.....

redjpwranglergirl

04-24-2007, 03:33 AM

I'm sorry that things aren't going to well right now red..... I do hope that they fixed your foot, and that they fix the pain med issue. take it easy.....

I definitely hope that surgery is not in your future!:o Thanks for your good wishes.

Jo*mar

04-24-2007, 02:23 PM

redjpwranglergirl

04-24-2007, 05:14 PM

I know with my knee surgery {minor one} the first week was the worst- but with a foot -yikes!
At least I could hobble around with the brace and crutches- plus the house is small so I could hop & grab doorways and counter tops - ahh the memories :eek: a full month off work and knee brace for 3weeks.

how long is the suggested recovery time for you?
hope your meds work soon for you.

I'm not sure about the recovery time- he said a couple of weeks on the crutches, so I guess after that that it'll just depend on how I feel and how much my foot is still hurting and how long it stays swollen. I go back on Fri. for him to check it before the weekend and will see then when he'll take out the stitches. The pain meds still aren't doing much more than take the edge off so I'm just keeping it propped up and taking it easy.:D

tshadow

04-24-2007, 09:44 PM

Hi dear Mark,

Hope your days are filled with love and family.

I am trying to make a hard effort to come back on here as much as I can tolerate. I miss the family here!

Hugs. Tam

dabbo

04-26-2007, 11:01 AM

Tam- Its good to see you around here ocassionally.
Mark - I hope the pump works out well for you!!
Red- continue to take it easy :D . When my doc said if the walking cast didn't work, we might have to go w/ a regular cast. And then :holysheep: he said "crutches". I said :Noooo: probably not a good idea.....
Peg - i'm so sorry... still in my family's thoughts and prayers.

We made it up to CT ok. My daughter was WONDERFUL on the plane. She either slept or entertained everyone around us. It was a joy. We saw my great-uncle in the nursing home yesterday. wow. night and day difference from when I saw him last year. He has probably lost 30 pounds in the last 5 months. He is on oxygen 24/7 now, and is on high-dose antibiotics from having double pneumonia. I'm glad Eva got to meet him - and she put a big grin on his face.

Jo*mar

04-26-2007, 02:27 PM

Shelley

04-26-2007, 02:32 PM

When in doubt Jo, get ti checked out. Hope it feels better soon.

redjpwranglergirl

04-26-2007, 03:07 PM

Today i am debating whether I need to go to the dr or urgent care & get my foot x-rayed or not.

I bumped same foot as was hurt recently {toe/foot seemed to be doing fine before bumping it} into hubbys work boots in the dark.
it's not really hurting but just feels not normal and is a bit puffy again -more so by the end of the day.
maybe I need to just stay off it and elevate it again for a day -- hmmm?

I would suggest getting it checked, Jo. You might have a small fracture. When he was young, my son got a hairline fracture in one of his metatarsals from running down a field playing kickball (or something like it) in PE. It started swelling immediately- I took him to the dr. for an Xray. The fracture showed up very faint on the Xray and they put him in a walking boot. Better safe than sorry!

Jo*mar

04-26-2007, 05:27 PM

Thanks for the encouragement -
I remembered that my docs office has it's own imaging equipment so called and can get in tomorrow morning.
It's a new Dr/NP - only went once in 06 -basic get to know you appt.-
and I didn't do the follow up stuff the NP suggested - mammo, blood work, yearly thing LOL
I was so sick of appts. and doctors.
hmm I still am!

dawn3063

04-26-2007, 11:12 PM

Yea,

I finally got my ALJ hearing date for Social Security, June 14th :Dancing-Chilli: :Dancing-Chilli: Happy Happy Joy Dance... I've been dealing with this now for 3 Long years... It is scheduled the day after my AME appt with Work Comp.. Boy is that going to be a long two days :thud: But hopefully Good ones..:Head-Spin:

Red- I am so sorry to hear about your surgery. I hope that your pain meds kick in soon and that your healing time is short.

Jo- Ouch, I will cross my fingers that you don't have any fractures in your foot.

Dabbo- Your foot too... Wow, it was a bad time for the TOSers and there feet..:Noooo: I'm glad you were able to see your uncle and bring a smile to his face. :icon_razz:

Tamara- It is so good to see you back!!

Mark- I do hope that your Morphine Pump works wonders for you..

Many Hugs to all and Wishing everyone a Low Pain or most of all Pain Free days ahead...

Dawn :hug:

Jo*mar

04-26-2007, 11:16 PM

I hate when 2 stressful things are so close together!
But Good for you - keeping fingers crossed {well mentally anyway}
:wink: :grouphug: :wink:

johannakat

04-27-2007, 02:11 AM

Lots of struggles out there these days....Peg, tam, dabbo, jo, dawn, red, oley,shelley, Mark, and everyone else...
Thinking fondly of all of you. Take good care of your feet, your loved ones, and yourselves....!

Sweet dreams as I am off to bed while the wheezing baby is sleeping,

johanna

johannakat

04-27-2007, 02:15 AM

How the heck do you do it?
....

XXOO

oh yeah- and my answer to this is SuperJoyce the wonder PT, HellaRobert the HellaHellerworker, my heating pad, and my very very good friends Vicodin and Opana ER.

:p

DDayMBB

04-27-2007, 06:47 AM

This morning I had foot surgery- 2 hrs. worth- so my day hasn't been too good either. On top of that, the pain meds are not working- not even taking the edge off. Looks like I'll be watching DVDs all night.:(

I'm wondering how Mark is doing- hope everything is OK.

Red... I am still lurking around on a daily basis, though I have not been do any typing (ouch!)... and as far as the pump is concerned, that has been post-poned till the 21st of the month:Sinking: and thanks for thinking about me;)

Tam- it is great to see you out and about, I hope things are going OK for you and when I get some minutes built up on my cell willl try and give you a call

JO & DABBO- sorry to hear about your foot woes, that is all you need on top of everything else

Johannakat- sounds like you have a mission, pla and goal... hope they all afforded you some rest

Unto all TOSers, I hope that you have a great day and a better weekend :)

Mark~n~Goober

Jo*mar

04-27-2007, 03:27 PM

Ok foot not broke anywhere- just re aggravated it by hitting someones work boots in the dark !{in the middle of the room}:eek:
She said probably set me back another week - it's more like a foot sprain type of thing.

she did say I will eventually have some arthritis in my toes- and showed the early signs of it to me. at least she said 10-20 yrs in the future.

johannakat

04-27-2007, 07:04 PM

Well, my wee sweet asthma baby seems to be on the mend...we've made it from albuterol every 2hrs (sunday and monday) to albuterol every 6hrs today. We narrowly missed the hospital for the third time this winter...hope it keeps up.

Assuming she stays well I am scheduled to leave for denver monday morning for the last two surgical opinions i plan to get. Unless I learn something earthshattering I'll retun to LA on tuesday night and go with a local surgeon, tentatively scheduled for May 21. If so, Mark, you and i will be having surgery on the same day, Lets hope the gods are smiling for us!!!!
I don't believe in any specific one, so we'll just have to count on all of them...:D

jo- good luck and keep getting better.

have a great weekend everyone...
Johanna

Horizontal One

04-28-2007, 09:53 AM

HI everyone.....sending my best wishes to those that don't know me as I have been oof forum for some time now AND to Dimarie, Victoria,Tam, LAw, Jo55 Red, Butterfly, Peggy, Cyndy, MArk and I know more but just cannot remebr everyones names at moment. My brain is suffering badly.
Have new software next few days so may be on forum more often,
As an update. Still in pain, lots of meds including the weighty Lyrica, broken sleep etc.....well you all know what I mean. Am waiting for referral to another specialist. One consultant coming to see me this week to review things. Having said that I am seriosly considering wearing a neck collar or building supports as my head part at back feels like it is sinking in. I have terrible traction related pain which is a pain(no pun intended) when laying flat would be wonderful but diaphragm paralysis means no way...
anyway must end there....I will try and catch up soon.
My very best wishes to you all.
I hope today is better than yesterday and may tomorrow be brighter instead.

Love
Hx

Jo*mar

04-28-2007, 12:55 PM

Hx,
if you are looking into collars or braces and such you might want to talk with frogga on the RSD forum - she is a uni student in UK with RSD and some other possibles.
she is in a w/chair and has used a variety of collars
she is a sweetheart too.
her profile page-
http://neurotalk.psychcentral.com/member.php?u=1390

Edelweiss

04-30-2007, 09:03 AM

want to say "hi" to everyone here. I took some days off to calm down....I wrote last week that I will have my 3th shoulder surgery - I am sheduled for May 10th - and that makes me really upset. I feel as if my head is in "cotton". I think all the time about it and about the inconveniences after surgery and the long rehabilitation afterwards. (It will be a reconstruction of the subscapularis and if it is not possible to reconstruct him for a 2nd time, the doctor will make a tendon transfer from the pectoralis - and this does not sound so sweet to my ears!!!)
Hiking in the mountains always gives me power and we explored the mountains around us. Wonderful weather - too hot for the season, but exactly right for me. Now I am in a better and hopeful mood and I think the surgery will bring me relief, even if the 6 weeks post OP will be very difficult.

I am sorry to read that some of you suffer from food-problems. As if TOS is not enough?????
Wish you all the best and fast rehabilitation!!!

To all others I wish a painless day and a day with less troubles!
Very nice and sunny greetings
Barbara

gibbrn

04-30-2007, 10:06 AM

Hi all,

have been away as living out of suitcase for so long and getting ready for the big move to Calgary....more worried about the cat than my own pain..lol

I will have a four and half hour plane trip to Calgary from Ottawa...with soon to be In Laws (I hope no ring yet guys!!!!!!) oh well that isn't what it's about!

So I go to pain doc today drove from ottawa to Burlington five hour drive in hotel with horrific pillow....at least I slept a bit.....then Doc apt then another three hour drive to old place where dh lived for mail and pick up meds then back for another 2 hour drive to Ottawa again...ahhhhhhh

then pack and get up at 430 to go to airport a few hours early with cat and man in tow....ok stress????? ehhhh yeah

Thank God for diazepam and percocet!!!! Crap!!!! I am so stressed at least we have the house and we were worried our stuff would not get to Calgary on Truck by the 10th...well the truck driver called and asked if we could get stuff on the 30th Ahhhhh so we get it on the 2nd stress is my life!!!!!!!!!!!!!!

And not to mention the pain I really hope that the triggerpoint injections help me today and on the drive home I should sleep and relax!!!!!

anyhow just to check in and no internet till after the 4th so will keep in touch after that take care to all and hugs miss chatting and supporting ya'll !!

Love and hugs to all:grouphug:
Victoria

Jo*mar

05-01-2007, 04:01 PM

Good luck Victoria - hope you come thru all that with out too much extra pain. yikes!

Barb- just keep looking forward and positive that all will go well with the surgery. The hiking in the mountains sounds lovely.

best to you all!

dabbo

05-01-2007, 11:54 PM

Victoria- I hope you get eeverything taken care of without a huge flareup.
Barb - glad to have you back.....I wish I could go hiking!!

Today I.... (yesterday, really, but whatever.... I lost my great-uncle. He passed away very quickly- he left the nursing home at 5am, bound for the ICU because of a high (104) temp. He passed away at about 12:20pm that same day. Thankfully, we got up here to see him before he passed away- It was almost as if he was hanging on so that he could meet my daughter. I think that she brought him joy in his final few days on earth. Reading his obituary, I re-realized the importance of family. He is my grandfathers brother, and was never married nor had any children of his own. However, that never made a difference. He took the time each week to call all of his nieces/nephews AND all of their children that didn't live at home. He has 16 nieces/nephews (8 couples), and 23 great-nieces/nephews, and 1 great-great niece. So, my stay up in CT has been extended for a few days.... My cousins and I are collaborating on a eulogy for him. I've never written one, but it has cheered us all up- thinking of all of the funny moments, all of the great memories with Uncle Dom. :grouphug:

Shelley

05-02-2007, 12:14 AM

Dear Dabbo,

I am sorry for your loss. What a special man to make the time for all his nieces and nephews each week. God Bless him and your family. My thoughts are with you.

Vic hope your pain goes down and that ring comes soon.

Barb good luck on your upcoming surgery.

Sorry guys I have been away from posting here for a while. A little crazy lately.

Hope all is well and I miss you all.

redjpwranglergirl

05-02-2007, 12:15 AM

Dabbo,
I'm so sorry to hear about the loss of your great uncle. I know it meant alot to you and to him too that you were able to make it up there to see him one more time.

Edelweiss

05-02-2007, 02:28 AM

..am sorry for dabbo - you uncle must have been a very good man! Always sad to loose a beloved person!

..say thank you shelley, dabbo and jo for the support for surgery. I will try to post - or if I can`t, someone will do it for me.

..I wish all the best and good luck to Victoria!

ALL the BEST for ALL readers TODAY,
Barbara

Jo*mar

05-02-2007, 11:42 AM

I was able to see my aunt before she passed last week, it really helps to be able to see them and at least say a few things before they go.
She was non responsive but talked to her anyway about memories and old times.

Shelley

05-02-2007, 02:30 PM

Jo,

I am sos orry to hear of your loss as well. I am suer your aunt so appreciated the visit and the chance to see you before she passed.

You and your family are in my prayers. :hug:

johannakat

05-02-2007, 04:21 PM

Barbara- the mountains...yes a wonderful place to sort out how you feel about something tough. :hug: I am so sorry you must endure more surgeries....

To Dabbo and Jo, so sad to lose loved ones. There must be a really great party somewhere for all these folks to go running off and leave us here.

shelley- nice to see you back on the TOS board :)

Victoria- moving, proposals, in laws, cats...all super stressful. Pain- unvbelievably inconvenient and makes things that are already stressful unbearable. I send you a long relaxing breath and an ooooooooooommmmmmm hoping that it might give you a half a moment's peace.

:hug: :hug: :hug: to all.

I myself have returned from a very fun filled trip to denver. My mind is as cloudy as ever....and i will be very interested to get the final results back from the tests i took. One thing I did learn which has been very overwhelming to me is that I have clearly been in a lot more pain that I have given myself credit for....One of many pokes and prods I had in the last two days was a left scalene block with Dr Sanders - and the brief glimpse into that pain free state was enough to leave me quite overwhelmed and taken aback. I am still reeling from it.

The battle we all face against pain is a cruel cruel one. We shoudl each give ourselves a huge pat on the back for whatever it is we manage to accomplish each day because it is such an uphill battle.

peace to everyone

Johanna

dawn3063

05-02-2007, 06:40 PM

Dabbo-I want to say How sorry I am that you have lost your Great Uncle.. I think it is great that you were able to go see him a few weeks ago and that your daughter brought a bright smile to his face.

Jo-I am also sorry for the loss of your Aunt.. It is wonderful that you were able to see her and be able to speak to her prior to her passing. I believe that the persons subcounsciouse mind is able to hear words spoken to them.

Shelley-It is good to see you out and about. I do hope that you are feeling better.

Johanna-I do hope that Dr S is able to help you out of all your pain and into the wonderful bliss that you have felt from the block..

Red, Victoria and Barbara-Wishing you all a Great and Low stress day...

As for me... UGH... I am getting by..:Sob: I will be starting with my new pain management Dr on the 15th. :Dancing-Chilli: But then somedays it seems too far away...:thud: One day at a time...
Lidoderm patches, Heat, Drugs, Biofreeze not much is helping... :Dunno:
Plus, now I find out that I have a large bulging disc in my lower lumbar spine plus other fun stuff down in that lovley lumbar area.. God Help Me... When it rains it pours... :rain:

Many Hugs to all
:hug: Dawn

redjpwranglergirl

05-02-2007, 08:46 PM

[QUOTE=Edelweiss;93206]want to say "hi" to everyone here. I took some days off to calm down....I wrote last week that I will have my 3th shoulder surgery - I am sheduled for May 10th - and that makes me really upset. I feel as if my head is in "cotton". I think all the time about it and about the inconveniences after surgery and the long rehabilitation afterwards. (It will be a reconstruction of the subscapularis and if it is not possible to reconstruct him for a 2nd time, the doctor will make a tendon transfer from the pectoralis - and this does not sound so sweet to my ears!!!)
Hiking in the mountains always gives me power and we explored the mountains around us. Wonderful weather - too hot for the season, but exactly right for me. Now I am in a better and hopeful mood and I think the surgery will bring me relief, even if the 6 weeks post OP will be very difficult.

I am sorry to read that some of you suffer from food-problems. As if TOS is not enough?????
Wish you all the best and fast rehabilitation!!!

To all others I wish a painless day and a day with less troubles!
Very nice and sunny greetings
Barbara
Barbara,
I hate to hear that you have to have more surgery:( It's not fun at all and neither is the post op recovery (the list of things you CAN'T do right after surgery....). But if it'll bring you some relief it'll be worth it. So I'm wishing you good luck and take care of yourself while you recover!

Jo*mar

05-02-2007, 10:56 PM

Oh Dawn, I hope it isn't a major thing in the low back :( .

johannakat

05-02-2007, 11:11 PM

Dawn- I am so sorry you have so much to add to your existing problems...:(

A new pain doc...that can be a really good thing. Someone with some fresh perspective to help you start again, perhaps.

All my fingers and toes crossed for you... xoxoxo

Johanna

Shelley

05-02-2007, 11:30 PM

Dawn I am sorry that you are in so much pain. I sure hope they have some cancellations and get you in sooner. I pray that they can get that RSD in remission.

Johanna....just glad you are home and safe. Look forward to the surgery discussion my friend.

:hug: to all of you.

Today I am very :( and just feeling sorry for my self tonight. I should not be so I am going to try to be better. Not feeling sorry for myself due to the pain but rather work. And I know I should be grateful that I work and have a good but stressful job. Bu today I met my new client and gosh she has expectations of the work to be delivered that I am not sure I am smart enough to do. And I am not looking for any sympathy or pats on the back...I just feel lost.

And I am not a good failure person hence the feeling sorry for myself. :thud: :confused2: I just do not know what to do :Dunno: and am not sure I even care enough anymore. :Sigh: Oh well, I just need to get on with it and try harder. That's what my tombstone will say...she always tried hard.

God, :Sob: I used to be good. I used to be somebody respected and a pro in my line of business. When did I become a hasbeen.

:hug: to you all, thanks for listening to my pathetic rant. I am sure tomorrow will be better

Jo*mar

05-03-2007, 12:42 AM

Shel - do you feel like you are having memory and concentration problems?
I know i was having major brain, focus, memory problems- still do at times.
I was really worried for awhile- thought I was getting ADD & Alzheimer's- plus my close work/reading vision was getting weird too.

Being in crowded places was overwhelming- with the noise, lights.
Trying to follow a conversation in a crowd - total brain fog then.

I just wondered if any of these things are happening to you.

Hey you aren't a has been!

You're our Shel bell:grouphug: :grouphug: :grouphug: :grouphug: :grouphug:

Shelley

05-03-2007, 01:16 AM

Thanks for the hugs Jo. :)

While I think I have a small amount of concentration and memory issues its that I am just plain in over my head. Makes me feel stupid and then I am the best at beating myself up.

WOW...how appropriate is my horoscope for tomorrow. And how sad I am looking at my horoscope for guidance when I should be writing this presentation :eek: ...if only a winning lotto ticket would show up.

How do we learn? By making mistakes. If we don't ever make any of those, we will never learn anything. Perhaps then, some of our mistakes are not as mistaken as we mistakenly imagine! It is easy to look back on a decision and regret it. It is easy, too, to paint a bleak, one-dimensional picture depicting only the downside of a situation. When we start being hard on ourselves in that way, we make the only kind of mistake that truly is a mistake! Look at what's good as well as what's bad.

Ok back to it.

THanks for listening. I know I am being pathetic.
ShelBell (how funny Jo that you called me that, my friends shortened it to Bella last year)

Edelweiss

05-03-2007, 06:52 AM

..want to say to shelly that you are a very strong person to support work and tos. And you have to tell yourself several times a day that you are genious. This is what really counts and not what a client wants you to do.

..want to say to jo that I am sorry for your aunt and as others already said, I think, it was important that you have been with her before her death.

..want to say to red, that I hate the idea of surgery, too. I KNOW all the difficulties after surgery: taking a shower and wash hair with one arm, eating or preparing to eat, difficult to find a position to sleep with the sling (see:http://www.servo-med.de/img_art_zoom/00525111.jpg)
Yesterday I bought some blouses because it is easier to wear and to put off then T-shirs,....
Thank you for your understanding and your help!!!!!:)

..want to say to johanna that walking in the mountains is real refreshing and energizing for me, and I think for you too, as you talked about it already.

..want to wish to all others readers and writers a good day - with beautiful weather and without pain and without troubles.
All the best
Barbara

Peg24

05-03-2007, 08:16 AM

Shelley,

Be careful of depression. It sounds alot like you are having some of it.

If so, please go talk with someone. It will help.

Depression can cause you to feel 10 times worse than you already do. It strips your mind of being able to concentrate and believe me, you will feel like you can't accomplish much. Trust me, I have been there.

Sounds like you and hubby could use a much needed vacation.

Remember, I am here if you ever want to talk.

Love ya Shelley,

Peggy

dawn3063

05-03-2007, 10:44 AM

Shelley,

Hang in there.. I have to say your one strong lady just to be able to swing work with your TOS and RSD.. Sometimes I think we overdue things and then we leave ourselfs standing out in the middle of this huge crowd overwhelmed and lost.

Hey Lady.. From one friend to another.. Roll down the windows in that car, turn up the radio as loud and you want and go drive that car along the coast, Singing "I am Woman Hear me Roar" By Helen Reddy... :ROTFLMAO:

On a Serious note... Peg is right if you feel depressed and if things are piling up on you maybe you can find someone to talk to. I have my first appt today with a Phycologist, I know I put it off for a long time.. But things just kept piling up and I need someone to help me sort them out...

Many Hugs to you...
Dawn :hug:

johannakat

05-03-2007, 11:41 AM

Shelley-

big giant deep breath

big giant ooooooommmmmmm

and

big cyber hugs

real ones to follow tomorrow

Johanna

Shelley

05-04-2007, 10:24 PM

Today I....

Made it through the day. Phew.....big giant breathe woooooooooooo.

I cant believe how whiney I was the other day and how much I beat myself up this week.

The pressure was immense. I had to write a presentation to give ot eh CEO and President of the studio biz I work on. And there is a new day to day client that started this week and wants everything done differently. I did not think I would survive and one night after meeting with her for 2 hours I came back and just cried because I truly thought the work was well over my head and I would lose the account for my agency.

And who knows it may still happen and we may lose the account but I made it through this week. And my presentation was good and I did most of the talking in the meeting today with the CEO.

I need to really try to learn from this new client and take advantage of her knowledge to grow. But part just does not care enough about all of this like when it was my passion before all these health problems.

Well I will just see where it takes me and hope that I can continue on the path.

Seriously thank you for all your support when I needed it most. It meant so much to know I could come here and whine about problems not even that bad but bad to me and have all of your love and support.

I guess I am smart about one thing...having all of you in my life. :grouphug:

It is time for a beer!!!!!!!!! hmmmmm.... I don't really drink so it must be time for some shopping. :D

Edelweiss

05-05-2007, 09:54 AM

just jump in and say hello to you all!:trampoline:
Hope you have a good weekend without pain!
Barbara

Stardust

05-05-2007, 08:55 PM

just want to say that I'm sorry that so many of my friends are having such a difficult time these last few weeks. Martha, Cyndy, Dawn, Tamara, Shelley, Annie (and a few others who haven't posted lately but are also having a difficult time): I think about you often and hope things improve soon. You're all such incredible women. And this TOS stuff stinks.

And others who I haven't met or talked to--DiMarie, Ada, Victoria, Mark, Peggy--hope you're holding up okay too.

Pls. forgive me if I've left anyone out....I try to limit my computer time and probably miss alot.

xox
Stardust

dabbo

05-07-2007, 12:33 PM

Today I.... am back at work after nearly 2 wks off. I am still wiped out from my trip. Its tough to focus, let alone get real work done. Oh well. I hope everyone had a good weekend, and has a good low pain monday!
-dabbo

Jo*mar

05-07-2007, 02:30 PM

I was thinking you should be getting back home soon.
Glad you checked in. Hope you can get rested up.:D

dabbo

05-07-2007, 03:55 PM

Thank you Jo! Sorry to read about your aunt. I've been checking periodically, but I'm still waaaaaaaay behind in my reading. I hope to get rested up soon :D

Jo*mar

05-07-2007, 06:43 PM

Hey Mark !!
Are you still out there???
I just realized you haven't posted for awhile- hope you are doing OK?

Edelweiss

05-08-2007, 11:56 AM

am happy to see dabbo back here. Welcome back!

I am so nervous as I will go to hospital tomorrow afternoon and on thursday I will have surgery. As I already wrote, I am afraid of the upcoming weeks - real handicap and the long time of PT and rehabilitation.

My mom will check in and post on friday to tell you how things are going on.

Me too, I hope Mark is OK and goober lets him alone!!!!:-)

All the best and a painless time to everyone here!
Nice greetings,
Barbara

astern

05-08-2007, 12:09 PM

Good luck Barbara, we'll be anxious to hear how it goes for you!

relax, soon the pressure will be behind you.:hug:
Anne

redjpwranglergirl

05-08-2007, 06:07 PM

Good luck with your surgery, Barbara! I'll be thinking about you and sending some good thoughts your way.

Jo*mar

05-08-2007, 06:44 PM

The waiting is the worst part and the unknowns.
I'm sure you'll do fine.:grouphug:

dawn3063

05-08-2007, 09:57 PM

Just one of those days :Bang-Head: .. Today I wonder when I am going to wake up from this 5 year nightmare and be able to get on with a normal life again...
Hugs to all
Dawn

DiMarie

05-09-2007, 12:14 AM

Today would be DeAnne's 30th birthday, she was born on Mothers Day so that is going to be tough. Everyone kept me busy today and I was looking for a car, so the plan to keep me busy worked.

Facet turned on and off all day. I planted flowers for her at the cemetary.
Now to try and sleep, I see her face and it has a huge smile in front of me.

She has to be in peace, she has to be with my Mom,
Maybe I am numb yet......I would love a hug and kiss from her.
I can still smell the baby'nes of her when I hugged her close and nursed her. Her bouncy long curls as she headed off to mischief....All the way to the last months!

I hope everyone is having good weather,
I say my prayers for all, my list is long.:grouphug:
My Love
Di

dawn3063

05-09-2007, 01:10 AM

Many Hugs and Prayers to you... :hug: :hug:
Dawn

Jo*mar

05-09-2007, 11:55 AM

Hugs to all - those in pain and for those that have loved ones that have passed on.

Shelley

05-09-2007, 11:09 PM

DiMarie

You have been in my thoughts during this difficult time. I am sending :hug: and :Heart: .

Horizontal One

05-10-2007, 10:42 AM

I just wanted to say good luck to those that are facing surgery or investigations. Also, my thoughts and wishes are with everybody else, especially those who have suffered loss recently.

Today, I successfully used new version Dragon software without too many glitches. This will make my communicating with everybody much easier. Hope I can give back to the forum, what forum has given me in the past.

Best wishes for a better day and a better day tomorrow and the day after.
Hx

Edelweiss

05-11-2007, 09:02 AM

:Good-Post:

Hallo, here is Barbara`s Ma writing,
Barbara`s surgery was successful and everything went well. A reconstruction of the subscarpularis tendon was made and the surgeon is content with his "work of art".
Now we hope, that the recovery goes well and that this was the last operation on her shoulder.
She sends her love to you all!!!

Sunny greetings from Austria
Barbara`s Ma

Jo*mar

05-11-2007, 11:50 AM

Thank you so much for posting Barbs Ma!

I hope Barb does well with recovery and will be in less pain soon.

sending her a soft hug :)

dawn3063

05-11-2007, 12:33 PM

Barbs Ma,
Please let her know that we are thinking of her and wishing her a speedy recovery..
Thank you again for letting us know how she did..
Many Hugs
:hug: Dawn

Shelley

05-11-2007, 12:49 PM

Please tell Barb we are sending her :hug: for a speedy recovery.

johannakat

05-11-2007, 03:26 PM

Thanks, Barb's Ma. Send my thoughts to Barb and some to yourself for that pesky Carpal Tunnel.

Johanna

redjpwranglergirl

05-11-2007, 06:37 PM

Thanks for letting us know how Barbara's surgery went and best wishes to her!

ocgirl

05-11-2007, 11:10 PM

Dear DiMarie,
I'm so sorry for your loss and the pain in your heart.
It's just not supposed to be that way, that a parent outlives a child.
My prayers are for you and your family. I feel good that you visualize De with a beautiful smile and the baby memories are so wonderful. The baby smell is unforgetable, the love for our children is so deep.
This will be a tough year with each holiday, birthday and anniversary date bringing memories back.
We are here for you Dianne.
Love,
Martha

http://www.poem4today.com/images/mothers-day-baby-and-mom-hand.jpg

DDayMBB

05-12-2007, 06:31 AM

Today Barbs mom ..... Ich wollte nur sagen vielen Dank zu Widerhaken Mutter für die Aktualisierung..., von was sie um Sie in der Vergangenheit gesagt hat, Sie ertönen, wie eine große Frau und eine enge Beziehung hat! Ich frage, dass Sie mein Deutsch vergeben, als ich nicht bin, dass gut dabei, obwohl ich versuche. Bitte schicken Sie entlang meiner Liebe und Gedankens und hofft, dass jener Widerhaken hinter mit uns bald! sein kann!! Mark

Diane Marie... I think you know that I am here for you, I never know a good time to call and I may come around here, however have been limiting my typing.... I do not know which is worse the TOS or the RSDhowever for you I will endure the pain of both as it is the least I can do for all the kindness you have sent foreward my way!!!! I truly miss speaking with you, it surely has been s long time... I HOPE IT HAD NOT BEEN ANYTHING I MIGHT HAVE DONE :confused2:

To my extended family here at the TOS forum, I appologize that I do not come about and address your good & bad times as well as you sorrows and what you all face on a daily basis and at times feel so guilty in not doing so! As I stated to di Marie you have helped me through some rough times and always had a kind word to say I do hope you all know that my heart, soul and prayers go out to all now and forever!!!!!!!!!!! Before my fingers and hands catch on fire... I do think I better close now and hope that I may be able to make it out and about sooner in near the future!

My heart felt love, thoughts and prayers go out to all of my TOS family and I would like to thank you for all the positive things you have shared with me over time. I would also like to senf forth my hopes that all may have a day frrr of pain and that evveyones famlies are doing well also!!!

MARK~n~GOOBER :circlelove:

redjpwranglergirl

05-12-2007, 11:53 AM

Mark,
It was good to hear from you because I think we were all wondering if you were OK! Here's hoping you have better days ahead.

DDayMBB

05-12-2007, 07:03 PM

Mark,
It was good to hear from you because I think we were all wondering if you were OK! Here's hoping you have better days ahead.

Red, I do not know if it is the TOS or RSD that is worse... the burning pain in both arms and my right leg annoy me continually and I have been having such occipital headaches mainly on the left which during these episodes, my hearing is muffled and I am seeing double... I just do not know where to turn thanx to RSD. I am hoping that the upcoming trial with the pain pump helps at least with the pain caused by the TOS... that would be one thing down and now with the RSD so prevelant, I think my time has passed to have my surgery done for the TOS (way to go dealing with the ins. companies) for fear of increasing the RSD... SO VERY SORRY FOR VENTING GUYS, just needed to get things off my chest/mind. It is amazing the billions of dollars the company I worked for, that spent so much in legal fees just to get my surgery turned down and any wages paid since 7/13/05.

redjpwranglergirl

05-13-2007, 02:16 PM

Mark,
I'm so sorry you're having to go through this. I don't think you need to apologize to anybody on here for venting- especially after what all you've been dealing with. I know exactly what you're going through with those occipital headaches :( Before the PM dr. put me on a regular schedule of meds, I suffered with them way too often and for me, they were worse than any pain I dealt with with my TOS. Remind me again what the date is that you go for the trial pain pump.

johannakat

05-14-2007, 03:11 PM

I think Mark was scheduled for May 21...

Mark- I send to you the best of vibes, thoughts, and wishes.

*hugs* I am so sorrry you are feeling this bad.

Johanna

DDayMBB

05-14-2007, 11:50 PM

TODAY I... would like to thank Red and JoCat with their thoughts and yes it is the 21st that I go in for the trial of the pump. If this thing works the way I am told it should work... it will give a consistant amount of medication directly to the nerves themseleves thus bypassing the unwanted side effectsof having gone through the blood stream as well as the high and lows in waiting for the medication to start helping than the short falls of the longevity of the needed releif **at least that is what it looks like on paper** as you all can vouch we would try anything to gain freedom from the monsters of TOS and RSD.
.... I also seen my new primary doctor today since having to change doctors since my insurance changes. I was so apprehensive of seeing somebody new after nearly being with the same family doc. since 1985 and have to say his bedside is great and his knowledge is excellent. I did not expect him to be so well versed in the areas of TOS~n~RSD, but this gentleman surely has caused me to have faith in his abbilities. As far as the headaches are concerned, he does not want to start me on any new medications prior to having an MRI/MRA of the brain (hope they can find one of those BRAIN things in me:Good-Luck: )and also some bloodwork, to rule out problems with the pituitary or adrenal areas. Besides that he wants to bring in a Neurologist, again prior to starting any new meds, to explore any other avenues of trouble... I truly respect the way he is approaching the situation as I do not want to take anymore pills, heaven knows I take enough already!
.... had the chance to speak with a member of our family here at the TOS forum (Alison aka. SeaPine) it is amazing, whenever I actually talk to a person within our group, it is like chatting with a person one has known from eons across the back fence:grin: . I just hope, I did not drive her CRAZY/NUTZ with my rambling.

Well, think it would be in my best intrest if I stopped typing for the moment so unto all of the extended family I wish all well and hope that tomorrow brings about a day of sunshine and that everyone has a day of limited pain!!!
ALL of *OUR* BEST>>> Mark~n~Goober

Jo*mar

05-15-2007, 01:05 AM

sounds like a pretty cool dr - that is great!

Edelweiss

05-16-2007, 10:30 AM

am happy to check in the forum for the first time after surgery.
I thank my "virtual" family so much for the support and the wishes.
As my mom told you, the surgery went well and it is now a question of time to say if everything has gone well.
I have got a double anesthesia: an arm plexus + a total and the fingers took beteween 24 and 48 hours to wake up.....just a nasty feeling.
now I take voltaren 2 times a day and give cold packs on the shoulder to calm down the pain.
at night tos and the shoulder are doing a "competition who is stronger" and honestly, this is very disargreable.

I read your conversations and I wish to all a good and trouble-free day, and of course a painfree day - and for Mark a good day at the 21st.

Don`t know when I will use the internet again as typing with one hand is "great".:icon_rolleyes:

Very nice greetings,
barbara

Jo*mar

05-16-2007, 11:28 AM

Great to hear from you Barb.

I hope it all calms done soon for you, rest well and speedy recovery.
:grouphug: :) :grouphug: :)

dabbo

05-16-2007, 12:53 PM

I'm glad your surgery went well Barb, and hope that things heal up the right way. I had the same anesthesia for my shoulder surgery- i was a little out of it for a couple of hours, but my arm anesthesia didn't wear off for 16-18 hours. THAT was annoying. Continue to get well Barb!

johannakat

05-16-2007, 02:19 PM

Have finally .. Really truly made the final final surgery decision. I only went round and round about 20 times. :D Monday is my big day for side number 1.

Mark, I am back to going under the same day as you...monday. Here's to good weather and favorable conditions!!!! (are all you gods up there listening?)

I'm pretty excited about all this and I hope to start posting my "how I chose a surgeon" thread some time today. However, I had Botox injections on the right side this morning so I'm not sure how long I'm going to last. I'm feeling a little loopy.

Barb, I'm glad to hear that things went well and sorry for your disagreeable competition between the shoulder and the TOS that must really suck :( hopefully you have a good stash of movies to watch and you can Unt distract yourself until you are feeling better

Shelley, if you're out there somewhere- a big hey and hello, and I can't wait to get caught up about your latest findings. Very curious after yesterday's conversation!

To everyone else, I wish you a happy day...

Johanna -soon2Bribless- kat

Dolfinz

05-16-2007, 08:22 PM

Hi to everyone and I want to wish everyone who is having or is recovering from a surgery....a very big Get Well :hug:

Jo*mar

05-20-2007, 10:11 PM

Just a hello to all -and a bump so this doesn't go off the 1st page- LOL

Edelweiss

05-21-2007, 05:59 AM

thank dabbo (so I read you also have had the experience of a shoulder surgery - poor dabbo!), johanna, jo, dolfinz for the good wishes.

I keep my fingers crossed for johanna`s surgery - it is a good time now for having surgery I think!!!!:)

All the best and a very good day to ALL readers/wreiters,
Barbara

cindyj

05-25-2007, 04:24 AM

Today I.... said a prayer for each and everyone of you. I am so thankful for all the good wishes, advice, tips, and prayers I have recieved here. You are all in my nightly prayers but today I just wanted to say an extra one for reduced pain, healing, financial help, and everything else we are all in need of. (((((hugs))))) cindy

olecyn

05-26-2007, 01:03 AM

AIN'T SHE A CRACK UP?
Lots of friends here in the same boat on the 3 hour tour.

TODAY I... would like to thank Red and JoCat with their thoughts and yes it is the 21st that I go in for the trial of the pump. If this thing works the way I am told it should work... it will give a consistant amount of medication directly to the nerves themseleves thus bypassing the unwanted side effectsof having gone through the blood stream as well as the high and lows in waiting for the medication to start helping than the short falls of the longevity of the needed releif **at least that is what it looks like on paper** as you all can vouch we would try anything to gain freedom from the monsters of TOS and RSD.
.... I also seen my new primary doctor today since having to change doctors since my insurance changes. I was so apprehensive of seeing somebody new after nearly being with the same family doc. since 1985 and have to say his bedside is great and his knowledge is excellent. I did not expect him to be so well versed in the areas of TOS~n~RSD, but this gentleman surely has caused me to have faith in his abbilities. As far as the headaches are concerned, he does not want to start me on any new medications prior to having an MRI/MRA of the brain (hope they can find one of those BRAIN things in me:Good-Luck: )and also some bloodwork, to rule out problems with the pituitary or adrenal areas. Besides that he wants to bring in a Neurologist, again prior to starting any new meds, to explore any other avenues of trouble... I truly respect the way he is approaching the situation as I do not want to take anymore pills, heaven knows I take enough already!
.... had the chance to speak with a member of our family here at the TOS forum (Alison aka. SeaPine) it is amazing, whenever I actually talk to a person within our group, it is like chatting with a person one has known from eons across the back fence:grin: . I just hope, I did not drive her CRAZY/NUTZ with my rambling.

Well, think it would be in my best intrest if I stopped typing for the moment so unto all of the extended family I wish all well and hope that tomorrow brings about a day of sunshine and that everyone has a day of limited pain!!!
ALL of *OUR* BEST>>> Mark~n~Goober

Edelweiss

05-26-2007, 08:15 AM

am having more pain: it is extremely hot an since thursday night I don`t take the pain killers any more. The doc said it is enough - he must know it. Still fighting the battle tos vs shoulder....I am a bit tired of it.

how are you doing here todeay? I hope much better and I wish relief to all who had surgery recently or other treatments or who are in pain!!!

All the best,
Barbara

Dolfinz

05-26-2007, 09:03 AM

Just wanted to say Hi to everyone .. Barb..I'm feeling your pain.. the humitity is killing me right noiw !! Hands swelling, feet and my neck and shulders have been unreal ! I hope eveyone who had surgery.. or anything else done : GET WELL SOON ! Hope everyone has a pain free weekend !

Hugs,
Dolfinz :hug:

dawn3063

05-26-2007, 11:20 AM

Oooo.. More like yesterday..
I had my 1st in my series of 3 Stellate Ganglion Nerve blocks done for my RSD... Rats,:yikes: I just hate getting stuck in the neck with needles.. What is this for me :Ponder: a kagillion times.. :Scratch-Head: Well, maybe not that many...:p Just trying to keep a sence of humor here... But it does get old...:thud:

Cindy,Barb,Donna,Johanna,Dabbo,Jo,Dolfinz,Cindy and Everyone I am Missing....
I wish you all a wonderful and low pain or most of all pain free Memorial Day Weekend...
Many Hugs :hug:
Dawn

DDayMBB

05-26-2007, 09:01 PM

Oh my goodness,
WHERE DO i START??? I miss being around and how much you guys are so much of my family! I so wish I could cure all your ills and unfortunately I can't though there is one that I can suggest. The trial with my pump was a new experience on life! They insersted it in my lower back via flourascopy and the doc had a sense of humor and told me besides all other problems, I had scoliosis....he had another funny but that will have to wait till the end. It took about 15 minutes to kick in and it was like I no longer had a problem... about 4 hours later they came in with a 10mg oxy contin when I have been taking 40mg 3 times a day after that I refused all other pain meds for the duration it was sorking so good! Now to go through with the real deal, and truth be told soon is no quic enough!!!! Well now back to the other funny... I was standing in front of the hospital having a smoke with my temporary pup tether to my neck and my DR WALKS UP TO ME WAGGING HIS FINFGER ... HE GOES THAT IS JUST A DR FINGER WAG THAT HE WAS SLAVE TO 3 PACKS A DAY FOR 24 YEARS AND IT IS NO HIS PLACE TO LIVE MY LIFE JUST TREAT ME AND SINCE HE IS TREATING ME HE WOULD RATHER ME NOT SMOKE<wow> On another note my family doctor called me to see howI was doing reviewed labs, x-rays and talk about my trial OMG I feel so blessed with all these nes Docs... Than I also have Dr Togut to back them all up... Need I say life is good just can not wait for the pump though!!!!
This coming from the heart, I really love and care for each and everyone:hug: !

Mark~n~Goober

Donna7

05-26-2007, 09:21 PM

Mark, I am SO happy to hear of your successful trial and a relief from pain for you! That's wonderful!

How long will you have to wait for a permanent pump?

olecyn

05-27-2007, 12:29 AM

So happy to hear your experience.
Send me some drugs subliminally.
I have to agreee with the wagging doc finger...
Smoke doesn't go well with cancer.
And if thats the vice you choose so be it.
It's no wonder we ALL aren't smokers, drug addicts, gun swirlin cowboys/girls and in for renal failure with the meds we take.

redjpwranglergirl

05-27-2007, 01:44 AM