Today I..... [Archive] - Page 4 - NeuroTalk Communities

DDayMBB

06-05-2007, 02:24 PM

apologize for not writing more often..but typing with the left hand is not my favourite occupation now.
Today is half-time, this means the first 3 weeks with the arm sling are over so the next 3 weeks will be rapidly run off, I hope!

I am glad to hear about Mark`s pump and I hope you can enjoy the relief.

To all others: I hope that you are in a good periode of recovery (f.i. after surgery) or without pain!!!
All the best and sunny and warm greetings from Austria
Barbara

Truly hope Barbs arm is doing better... I have not gotten the permanet pump in yet that was just a trial to make sure it would work. They have a protocal the trila was stage 1, tomorrow I go through stage 2 a psychiatric exam, than stage 3 is another neuro exam than after all this the insurance company has to approve the cost so at any point releif may be denied..... <<UMPH>> because at the hospital after they inseterted the spinal pump I only required 1 dose of my regular meds and than I only had a small dose!

My hopes are that all are doing fine !!! Mark~n~Goober

phoebe

06-05-2007, 08:40 PM

I wanted to drop in on some old & new friends and say hi. I'm new to this forum, knew some of you from the old forum. I've been reading this forum but haven't totally caught up on all that has been happening.

Mark, I'm so glad you will finally get some relief. Hope it works well for you. :) phoebe

Shelley

06-05-2007, 08:47 PM

Dang Sciatica today...I am walking like I am 80. :mad: Oh wait my blood tests show I am 80.

Peg24

06-05-2007, 09:11 PM

After the loss of a mother and a brother in a month's time, I realize more than ever now that today and everyday is important.

We should all love each day as if it were our last.

Take time today to tell your family that you love them and show them that you mean it.

It will be the best gift you can give them and yourself!

Love you all!

Peggy

johannakat

06-05-2007, 09:15 PM

Dear sweet Peg, I am so sorry for your losses.

you are in my thoughts each day....

Johanna

olecyn

06-06-2007, 07:46 PM

WHAT DOES JORDAN AND JOYCE SAY ABOUT YOUR SDCIATICA?

Dang Sciatica today...I am walking like I am 80. :mad: Oh wait my blood tests show I am 80.

tshadow

06-07-2007, 04:32 AM

Truly hope Barbs arm is doing better... I have not gotten the permanet pump in yet that was just a trial to make sure it would work. They have a protocal the trila was stage 1, tomorrow I go through stage 2 a psychiatric exam, than stage 3 is another neuro exam than after all this the insurance company has to approve the cost so at any point releif may be denied..... <<UMPH>> because at the hospital after they inseterted the spinal pump I only required 1 dose of my regular meds and than I only had a small dose!

My hopes are that all are doing fine !!! Mark~n~Goober

Mark,

I'll try to give you a call tomorrow when I awaken - time ? who knows these days! Today was 5 PM.

I do hope that you get to go all the way to your goal with this. I am so hopeful that it brings you relief - and then I can follow you maybe?

God bless you always,

Your friend out west, Tam

Shelley

06-07-2007, 01:03 PM

Hey Olecyn,

Have not seen Jordan yet. Have an appt on the 19th. But the MRN that Filler did on the left side pelvis shows a very angry and swollen sciatic nerve. BUt this pain in on the right. PT says left is pulled down and right is compensating.

I'll hold out for Jordan.

DDayMBB

06-07-2007, 09:54 PM

redjpwranglergirl

06-07-2007, 10:29 PM

Just a quick note... Shelly hope the back feels better... Peg so sorry for your loses you like everybody here are in my heart thoughts and pryaers... JoCat you always seem to know what to say and I feel your sentiments are truly from the heart bless you!

Today, I seen the next to last doc prior to the pump a Neuo surgeon, she was very genntle though now am on another med for my occipital headaches.... is anyone familiar with the effectes of TOPOMAX?? let me know if you would!

God bless all with chronic issues... Mark~n~Goober

Mark,
I could NOT take Topamax- I took it for 3 days and then stopped it. I staggered around and it blurred my vision so badly that I couldn't see to drive and had to use my prescription reading glasses to see the TV. It might've helped if I could've stayed on it but I just couldn't. I went back to the Neurontin I'd been on before- it didn't cause any of those problems for me. Good luck, though- hope it helps you!

Jo*mar

06-08-2007, 01:23 AM

this is interesting info on Topamax -
http://www.crazymeds.org/topamax.html
and the official website-
http://www.topamax.com/topamax/isi.html

tshadow

06-08-2007, 07:08 PM

DDayMBB

06-10-2007, 07:01 PM

I shared with Mark my experience of several Manic-depressive episodes with Topomax whenever I hit the 100 mgs. - 125 mgs., which my drs. were insisting I do. I now started it again, but only do 50 mgs. a day, which has not caused all of the above problems. My blurry eyes are also connected to the previous high blood sugar caused by Lyrica.

TODAY IS FINALLY A GOOD DAY. AAAAHHHH. I AM GETTING SOME THINGS ORGANIZED AROUND THE HOUSE, MAKING SOME CALLS WHICH I'VE WANTED TO DO FOR MONTHS, AND IT'S A BEAUTIFUL DAY HERE. I AM SWEATING BUCKETS BUT I AM SO GRATEFUL FOR ONE LOW-PAIN DAY WHEN I CAN FEEL HUMAN AND LIKE TAKING A BATH!!!!

THANK YOU GOD.

Tam after so long had to cut you short so soryy hon, but nothing personal my children come first in my lfe and that was my youngest calling in, so next dime will be on me !!!!!!!!!! I do not know what I did, but think I alienated somebody, I considered a good friend, though have, not received an e-mail or return phone call :Dunno: I do think this person knows whom I am am talking about.

Well so far so good with the Topomax.. seems to be helping a bit with the the headaches, theses days any releief with any symptom is a good thing so....MY and GOOBERS biggest thing is the wait on the implant of my intrathecal pain pump :Excited:

I would like to say thank you to everyone who has stuck in there by my side through my up and downs and also I send out my thoughts and prayers to all who live day in and out with pain, frustration of dealing with doctors lawyers and employers Mark~n~Goober

tshadow

06-11-2007, 02:15 PM

No apology nec. to Mark!

I had three good days in a ROW! WOW...that's new.

Now, going back down, but slowly - this is different.

I'm at 4 1/2 yrs of TOS, and the past few months have had some different symptoms, but nothing anyone else would really notice - but this is a weird condition, as I always say.

I still have BRIGHT RED cheeks and chest (and sometimes right arm) usually about 2 PM - 7 PM. (And yes, I've had hormones checked twice and they are normal, not menopause.) So this is TOS, besides, the red BURNS like crazy. (This is newish.)

Does anyone else have changing symptoms with their TOS?

dabbo

06-11-2007, 03:26 PM

hope everyone is doing well.... been kinda crazy here at work the last 3 days- which is both good and bad. I like the "good busy," but hate the "bad busy." now i'm *slightly* p.o'ed at a few coworkers who decided they were all going to be out of the office friday (5 out of 8 in my group) .... only 1 had put it on the calendar. So I had to change my appt with my pain doc, and i have already postponed it from last week. by the time i see him, it will have been 8 weeks. never gone 8 wks w/o seeing him.... This coming friday was going to be 7.5 weeks, and that is pushing it. :mad: :mad: I put myself on his cancellation list, but my doctor is working short days this tues/wed, so i probably won't get in this week...... :( oh well. it could be worse.

Jo*mar

06-11-2007, 03:40 PM

I worked in an manufacturing environment - we HAD to submit our Vacation or days off requests for approval by lead/supervisor - same as where my husband works.
Of course if emergencies or such that was taken into consideration.
But it was generally a company wide policy - that only so many from an area could be "off" at the same time.

johannakat

06-12-2007, 12:38 AM

Dabbo-seems like seeing the Pain doc is very very important....did you have to give in? Stick up for yourself..., OK? you are important.

did you mention that without seeing him you won't function ? (that's how I'd feel if i didn't see mine these days...)

hi to everyone- quiet day today, went to the chiro for the first time since surgery, should have done that a week ago, wow. they must have really been jerking my arm all over the place to get me that misaligned.

stiches out tomrorow, and i get to pick up my rib from the pathology dept at St Johns :)

sweet dreams all,

Johanna

Jo*mar

06-12-2007, 12:52 AM

jokat- you're keeping your rib?? :D we used to have BBQ jokes about that all the time :eek: :eek: :eek: :cool: :cool: :p :p :wink: :wink:

johannakat

06-12-2007, 01:11 AM

It's been a part of me for a long time, i couldn't deal with letting them incinerate it!!!

ocgirl

06-12-2007, 02:01 AM

I have taken Topamax a couple of times in the past . I'm supposed to have restarted it but I'm waiting until after my daughter's graduation as I KNOW I will have to take a week or two to adjust to "Topamax and I can only take about 50 mg before I get 'stupid."

When I first took Topamax about 6 years my first idiot pain management doc gave me a titration schedule that almost killed me. Every 4 days I would increase my dose by 25 mg until I got to 400 mg !!!!!

This does not work for me !!! One of my friends titrated her topamax that fast with no problem and she stayed on 400 mg and really like it because she lost weight.

When I hit 100 mg a night I hit the zombie phase of my life. I could not write my name or spell at all. I had no word recollection. I could not figure out how to turn on the TV or any small appliances and I found myself asleep in the garage on a pile of dirty clothes.
I had 2 kids that needed to be driven around and I know for sure that the Lord protected us and the guadian angels were with us, I can't believe I didn't crash the car.
My husband didn't understand what was the matter with me and was being a jerk. He just couldn't accept me saying that I was unsafe to drive, but when I would have to make a decision like in a parking lot I couldn't figure out if I should stop or go. IT WAS REALLY SCARY.

Also, it made me unusually aggressive verbally. I couldn't stand loud noices or I would get very agitated, forget driving with the radio on--no multitaking for sure. I couldn't even do one task. When we were driving home from my daughter's basketball game my husband again was being a jerk and he and my daughter were arguing.
I got very aggressive and yelled at them both and threatened them:rolleyes:
Before I would yell at them, but I would never threaten them (yikes, embarrassing)
That when I knew I had to lower the dose, too many freaky things happened.

I found this in Jo's information:
So true for me..... I was the village idiot.
When I cut the dose in half I was much better and stayed on that dose for several years after.
__________________________________________________ ________
"Topamax's Freaky Rare Side Effects: Tongue paralysis. Combine that with not being able to get the right words out and you're all set to apply for the position of village idiot. There have also been a couple of men who started lactating after taking Topamax.
You aren't going to get these. I promise.
__________________________________________________ ____

The key is to increase your dose very carefully. Topamax now even comes in a dose with sprinkles so you can really take a small starting dose.
Take a long time to increase your dose ( no matter what the doc says, I say)

It's a good drug, but a very weird drug. Probably the weirdest med I am on..:holysheep:

dabbo

06-12-2007, 04:16 PM

Jo- we do have a calendar.... but THEY didn't use it.
JoKat- we would have ALOT of jokes about keeping ribs down here (BBQ capital of the world.....) I did think about telling the people that are here tough $*%&#, that I was going to the doc because i had already put it off 1 week (from the 8th to the 15th). But.... I couldn't do that to the 2 others that are in- the messed up thing is that they're the ones that quasi-understand how important it is that I go. Oh well.... I'm on the cancellation list, so i hope someone cancels tomorrow or thursday.

dabbo

06-12-2007, 10:09 PM

OC- thx for the heads up about topomax. I already mumble.... i'm pretty sure i would just become mute. and i DON"T need to start lactating. pretty sure that would be weird.

HopeLivesHere

06-12-2007, 11:31 PM

Mark,

I hope you all the success with the pump - one never really realizes how

horrible those medication side effects are until you no longer ingest those things. They mess with your whole body.

Glad your trial went well. My trial went just slightly better than where I am now, but that was not a major surgery.
I had IV sedation for the tubes in the spine and general anesthesia for the pump implant. I won't even need a refil until Oct 1.

Well, my time is still limited on the computer so I must go.
Martha, I hope Topomax takes it easy on you this time.
Glad Tam had a few good days and Johanna, are you gonna frame that rib or put it up for sale on ebay?

Be back soon, Hope :hug:

johannakat

06-13-2007, 12:26 AM

aww come on dabbo, at least you have someone around who might enjoy it if you did lactate....!!!! :p

dabbo

06-13-2007, 03:31 PM

Jo*mar

06-13-2007, 04:23 PM

well.... - he must have got a better deal or something- isn't that why they change?

My ?? - Why do they even put golf on TV???
last weekend 3 channels had golf {broadcast- not cable}-
but at least a horse race was on one of the other channels - and a filly beat the colts :D run baby run!!!:D

Jo*mar

06-13-2007, 04:25 PM

http://earthquake.usgs.gov/eqcenter/recenteqsww/Quakes/us2007dnbi.php#maps

[U.S. seismologists said magnitude 6.8 earthquake shakes Guatemala.

The earthquake reportedly took place about 3:30 p.m. EDT Wednesday. The United States Geological Survey reported that the earthquake struck approximately 70 miles southwest of Guatemala City, the country's capital.
Firefighters in Guatemala City said they had no immediate reports of injury or damage.
The quake was felt in neighboring El Salvador.]

US map of quakes-
http://earthquake.usgs.gov/eqcenter/recenteqsus/

DiMarie

06-13-2007, 05:05 PM

My driver (Dale Jr.) just went to Hendrick Motorsports - the team of the 24 and 48 cars (Jeff Gordon and $&%*@ Jimmy Johnson). Seriously, this is bothering me, because i cannot STAND Jeff or Jimmy. :eek:
JoKat - i'm sure my DW would find it funny, but i don't want to confuse my daughter.... she already tried to latch on once. :eek:

Mark- I hope your pump continues to work...
Everyone - take care, and take it easy......

Our family has the same reaction, my grandson for some reason like a driver named Mikey,,,,like his Dad. But husband is ready to through out the smoker cooker he won and all his collection.

I think that Theresa is behind it all.....They ahd a lot of rain in Pocono last week. I didn't see the race end as Ihad laryngitis and bronchits, off work on Sunday,, Still can;t talk. good thing IU have a forum to read.

I try to read, post a little and keep up,. but still healing.
Hugs to all Mark hope the pump is working out, you needed something for sure.
Di

Shelley

06-13-2007, 11:01 PM

I was ordering a group present for a colleague that I am close to and is leaving L.A. Made me sad so I bought me a prezzie from Tiffanys too :D

Hahahahahaha on Dale Jr Dabbo. :nopity:

olecyn

06-14-2007, 02:15 PM

Today I'm burning like hell on wheels in both arms.
hands and fingers are shaking
sciatica increase as well as the foot and toe numbness
Why?
Having to catch up on W/C paper work
Pool here I come
Ice here we are
PT here I come manana

GET OFF THE COMPOOPER, Cyn

dabbo

06-14-2007, 04:38 PM

I hope your feeling better Cyn.....

about yesterday. I help coach a church league co-ed softball league. Mainly stand around, helping 14-18yr olds work on their fielding, how to throw the ball, etc. Well, last night we were short on people for practice, so the coaches played. I thought it would be a mistake for me to play, but....
like i said, i'm dumb. I played. Swung a bat for the first time in 2yrs. I batted a few times, and actually hit pretty well. The whole time tho I had that nagging voice in my ear "this is a really dumb idea.......:eek: hey idiot, listen to me, you're being dumb." Hopefully thats the last time i ignore that voice for a while. I will admit though, it was a blast playing. I forgot how much I miss really being able to play. :( :(

Jo*mar

06-14-2007, 05:41 PM

Dabbo -I know what you mean about the sports stuff -
I can shoot a few baskets, hit a couple of tennis or baseballs - but the baseball /bat jarring concussion of the hits are bad for me.

And with my right shoulder- i can't throw overhanded for beans! or hit overhand tennis balls.
I can make the first basket hoop shot - but lose the arm control/coordination fast after that one.
underhanded or side throws are OK for me like Frisbee...

Cyn hope you feel better soon.

dawn3063

06-14-2007, 06:04 PM

Finally finished my SSD hearing with the ALJ and the AME with W/C yesterday..
Wow, what a weight off my shoulders..
The Social security hearing was so informal and I was very lucky apparently I had a very easy going judge. My attorney told me that he was a very fair and nice guy.
THe hearing lasted 20 min and he told her he had all the information he needed that she wouldn't need to submit anyfurther records. I will have my decision in 4 to 6 weeks. The attorney said it went very well....

The AME.. Ugh, Besides all the :Poke: and glowing :BeamUp: from the x-rays that went ok too..

Cyndy-I'm sorry to hear that you are feeling so poopy today.. Take a break and relax in that wonderful pool..
Dabbo-Isn't it a blast to be able to have alittle fun.. I do hope that you don't suffer from that little bit of joy you had yesterday..
Shelley-Sorry your loosing a friend.. I hate it when friends leave.. :Sigh: But, I hope you enjoy that present from Tiffanys :Rich: You go girl..:ROTFLMAO:
Di-I hope you have a bright day full of Sunshine and happiness :cool2:
Hope-It's great to see you posting again.. I'm so glad to hear that your doing so well...
Johanna-Many Hugs and you better be taking it easy...And asking for :Help: :wink:

I hope everyone else is having a restful and low pain day...Many Hugs to all :grouphug:

Dawn

Shelley

06-14-2007, 07:03 PM

Cyndy....pool?....Pool party! Hey everyone lets go soak at Olecyn's

:OuttaHere:

olecyn

06-14-2007, 08:39 PM

Youz funny
I can visualize all of of TOSers trying to get into the pool
And then having someone there to get us out.

johannakat

06-14-2007, 09:20 PM

ole- That IS a fun picture lol

dawn i hope you are hanging in there, too...

taking it easy here...reading a bit too much big soccer (my galaxy had some trade activity and other stuff to read about this last week), but now my back really hurts. :(

Yes, dabbo, that same voice that was talking to you was trelling me to quit...but i COULDN'T!!!

I feel like I am in the movies with the TOS angel (you better stop now!!!)on one shoulder and the TOS devil (no no it is FUN- it won't hurt that bad, you can handle it!!!)on the other....

*sigh*

got to go now, for sure.

hugs to you all

Johanna

beth

06-14-2007, 10:25 PM

Cyn,

You mean you don't have CABANA BOYZ??? Well, that's a MUST!! Who's going to serve our drinkies and things, hmm? And towel off our toes?? :eek:

I may have to come see Alison and Tam and the rest of you when the legal drama is over, and I expect everything to be just like on The OC, etc. LOL!

I have serious ocean withdrawal going on - haven't seen a wave since St George Island FL, 2003 - and it rained all but 2 days! :( So a high priority is a family vacation to sunshine and surf (and not even in VIEW of a hospital!!)

We're having a heat wave already in the midwest - been high-80's and even 90 for weeks - I'm melting.......

beth

dabbo

06-14-2007, 11:46 PM

Dawn- I'm so glad that this went well for you today (Except the poking, etc..)

Pool party sounds like fun, so long as there are steps to get in, and it doesn't require too much swimming. I'm thinking more like a "float in the pool with a drink" party. This would be a good addition http://www.pooltoy.com/rcdrdebo.html

A pool by the ocean would be even better. hmmmmmmmmmmmmmmmmm :cool:

When I was playing I remember thinking "I might not hurt from this!" w-r-o-n-g. ouch. whole left side is tweaked right now. :( time to go back to the heating pad.

dawn3063

06-15-2007, 12:29 AM

Dabbo,
Only you would find a pool toy that delivers drinks.... :ROTFLMAO: But I have to say that is "VERY COOL"....:pepsi: :You-Rock:

Peg24

06-15-2007, 08:02 AM

I've got the pool, Just BYOB and come on over! :welcome_sign:

Peggy

Edelweiss

06-15-2007, 08:21 AM

find the energy to surf in the internet and I read all your conversations from the last week.....and for the BBQ jokes: I have a shoulder to offer as I had this shouldersurgery recently! :cool:

I will try to go to work on monday after a 5 week break due to surgery. doc said if it is not possible I can stay at home some more time, but I need the distraction. I was a couch potatoe the last weeks and it is so boring to watch the old soap operas in the afternoon. Of course, I have a DVD collection, too but....
most of you know this situation that I describe, so no need to say more about it.

In august I will spend 3 weeks in a rehabilitation center and meanwhile I go as often as possible to the physical therapy and to my alexander therapy and I hope both will help.

I wish you ALL allt the best and take care!!!!
nice greetings
barbara

Jo*mar

06-15-2007, 11:09 AM

Barb it's good to hear from you- be gentle on your self at work:)

Edelweiss

06-16-2007, 08:36 AM

Thank you, jo!!

You are rught, I have to take care and I promis, I will do it!!!

Wish you a very nice week-end,
Barbara

Shelley

06-18-2007, 09:48 PM

Today I just dont feel well. :( God it makes me so sad to always not feel well. THis weekend I went out with hubby and 1/2 way thru did not feel well. I felt so bad for him, not to be able to go out with his wife and walk the promenade.

Dabbo I think I am just having one of our TOS tantrum's today :thud: . I just cannot imagine coping with this for 20 or 30 or more years. I cant do this.

Bad day. :Sob:

dabbo

06-18-2007, 10:01 PM

I'm sorry you're having a bad day shelley.... :hug: chin up. I'm having a tantrum too.... when i go to the doc tomorrow it'll be 8 weeks since my last visit (pre-Connecticut trip) and 9.5 weeks since my last brachial nerve block. Throw in the stress from work the last 3 weeks (we've been busy! - thats good tho) and the softball mistake from last week, and i'm up a creek. oh well.

i hope everyone else is doing well...... :p

i know it could be much much worse. but the longer this goes on, and the more active Eva becomes, the more emotionally it hurts. that being said.... the majority of the time between the 2 visits has been "good." <-- N.B. thats my re-defined good. 2 years ago that "good" could have been "bad." but whatever.

Jo*mar

06-19-2007, 01:28 AM

Dabbo - when I saw the news about that car at the charity event that went out of control and crashed into the crowd in Tenneseee - I thought of you.:(

redjpwranglergirl

06-19-2007, 01:42 AM

I'm wondering how Mark is doing- haven't seen him posting much lately. Also, speaking of TN, I found out today that a guy I went all through school with, from 1st through 12th grade, lives up there and is back in the hosp. with cancer and is in very bad shape. He had Hodgkins Disease (I think) when we were in the 7th grade and I believe it's come back in his lungs now and he's developed pneumonia. I haven't seen him in years but he was always such a nice, upbeat guy and from what I understand from other classmates that have seen him, he's still the same way and has such a great attitude about this and his life. It's just so hard to hear what someone you've known for so long is having to deal with. When I heard about this it made me feel really bad for complaining about my foot hurting and about this cold that my gr'son shared with me.:rolleyes:

Edelweiss

06-19-2007, 06:56 AM

is my 2nd day at work. the secretary helps me a lot but there are hundreds of little hand movements during the day, I did not recognize them until now.

since 3 days the left hand hurts very much (overdone) - and this is extremely stupid as it is my one and only help!!!
so when it rains it pours I think you say in english, or something like this?:wink:

there will be better days in my life than these last ones and I am keen on seeing these better days!

all the best for all who have a bad day too, today!
and of course for those who have a good day today - I hope you can enjoy it.
barbara

astern

06-19-2007, 09:01 AM

...posting on this thread because I don't have anything good to report.

My psych. started me on cymbalta a week ago. I took it for 2 days - I think LSD and Speed would have done the same thing. I will admit that it reduced the nerve pain, I really wanted this med to work, but the side effects were too severe. Now the nerve pain has returned and weather systems moving in are re-aggrivating everything, especially my mood. :(

One bright spot tho, and old friend I used to work with for many years has resurfaced. He and his best friend (who has cancer) have made a CD of old skool rock n' roll and I have been able to advise them on getting their art ready for printing the cover. Good times... good friends.

I'm so lucky to have you guys here to vent at. God's richest blessings to you all!
:grouphug:
Anne

Jo*mar

06-19-2007, 12:46 PM

I think Mark has to wait for approval for the permanent pump- the first was just a short trial to see if it would work for him.

Barb- can you only work half days??:(

Anne - you don't have to only have good news to post here:) anything is OK.

Hope everyone has better day today :grouphug:

johannakat

06-20-2007, 03:13 PM

Got smart and got dragon back out... what a difference on my hands. :Doh:
Why am I so stupid using my hands when I have it right here on my computer???

Could somebody please hit me over the head once in awhile with a 2 x 4 or poke me or something to remind:Poke: me not to be so stinkin' stupid?

In other news,I can scoop ice cream again with my left arm. Very happy about that:icecream:

Happy day to all

Johanna

dabbo

06-20-2007, 03:19 PM

Thank you for thinking of my Jo..... Selmer is about an hour away from here. I have relatives (in-laws side) that live outside of selmer; thankfully none were there at the time.
I made it to the pain doc yesterday, and left with a brachial plexsus block, a neck TP, a scalene TP, and 2 trapezius TP's (thank God.) Doc was pleased that I'd been 2.5 months, but the idea is to go longer in between. Hoping.......
mark - i hope you get approval for the pump long term.
barb- take it easy.... i hope your hand feels better
red- i'm sorry to hear about your friend. are they treating him in memphis?
shelley/peg/di :Poke: :D

DDayMBB

06-20-2007, 06:08 PM

Red- still around, really do not have that much to say these daze..go figure, naw really I just avoid typing in hopes in keepin Goober quiet!

Barb- truly sorry to hear that your surgery turned out bad for you and the on going pain that you are suffering.... sounds like some more spa time to me;)

Anne-I did try cymbalta and had real nasty effects from it, about day three my body started going through hot to cold and had visual hallucinations where things slowed down with gray trails... and Jo is so very right this place is made for depositing what is on your mind:)

Jo-with eveything going along in your life it never seems to amaze me how you are able to keep people, place and things straight... I am coming down to the home strtch with the pain pump, on the 25th go to see the surgeon with all other hurdles behind me YEAH !!!!

Shelley-this is a tantrum allowed zone:D

Johanna-instead of poking you which may aggrevate ongoing troubles how bout somebody just kindly remind you that it is on your 'puter;)

Dabbo-sorry, but I missed how you ever made out with your your foot??? I feel for you having a little one and going through this nasty monster... my guys are 16 &14 and the general rule is do not break the dad considering both are taller than I... especially the oldest 6'3" 220 and into Judo and wrestling:eek:

wonder how Dimarie made out yesterday... we had some nasty weather here with high winds up in her area with repoted power outages and trees down...

Best wishes go out to all all TOSers Mark~n~Goober

redjpwranglergirl

06-20-2007, 07:23 PM

dabbo

06-20-2007, 11:39 PM

St. Jude's does a wonderful job, and is a wonderful place considering what that job is- and they NEVER turn anyone away, regardless of whether or not you have insurance.
Mark - thank you for asking about the foot.... It (I think) is better. I wore the cast for 6.5 weeks and I don't hurt unless I walk around barefoot. So ONE part of me got better without too much intervention :D

DiMarie

06-21-2007, 12:04 AM

Red-
wonder how Dimarie made out yesterday... we had some nasty weather here with high winds up in her area with repoted power outages and trees down...

Best wishes go out to all all TOSers Mark~n~Goober

Hey Mark,
Storm missed us, a few miles away it was rough. I guess mercy after the tornado last December!

Just earased my caller ID from last week and saw you called....LOL, I have had laryngitis/strep and haven't been able to talk for over 11 days.
I have a meeting tomorrow and work and have to wisper, I finished the z-pac, it helped the bronchitis, but still not talking, lol Family LOVE'S IT.

I was to have a sleep apnea test today up cross pointe and had to reschedule.

Did you get a surgery date? is it the doc at Geisinger...no presonality and waited for two hours...I think on purpose.

Hope everyone is enjoying the summer type weather. Thinking of you all, Feel better.
Di

ocgirl

06-21-2007, 12:28 AM

I noticed that you are having a sleep apnea test soon.

I had a 2 night sleep apnea test about 2 weeks ago, it came back positive for sleep apnea.

So, I need to get a bipap machine to help me sleep.

Sometimes I'm really afraid to go to sleep at night, with the way the asthma attack came on without any warning and now sleep apnea.

I would do anything to avoid a repeat of the respiratory failure that I had March 23. My daughter especially is fearful as I already had 1 episode where i was sleeping and she said my color was looking bad so she called my name and I didn't answer. So, she shook me and then I woke up. She burst into tears when i woke up remembering the time she had to call the paramedics when i didn't wake up.

It was after the bad color while sleeping that my internist finally agreed for me to have a sleep study.
The respiratory therapist told me to tell my doc that i needed a sleep study because when i slept my oxygen saturation levels would drop.

i told my internist but he's not going to take the word of the resp therapist and me:mad: he has to wait until i'm blue in the face and scaring the you know what out of my family.

I went to the pulmonologist that I saw in the hospital, so he is handling my respiratory situation.

He is quick to answer an e-mail too. I sent him an e-mail about the bad color and not waking up episode and he called me within 10 minutes and told me to so to the ER.

The pulmonologist said once the apnea is treated I might have less pain:) He said that sleep apnea causes right heart failure so that is why my ankles were getting so swollen.

I'm kinda looking forward to sleeping with the bipap as they had me spend a night with it on, testing my sleep and how i tolerated the different pressures and different masks.

DiMarie

06-21-2007, 12:43 AM

Like you Martha, I have fears....
My saturation I know has been poor for at least 12 years....I suspect my asthma being a problem.

THe neuro ordered the test, Every single time I have the saturation thingy on me I set it off...so much so that on the multiple occasions the got a second machine thinking it was the machine...when it happened on the second machine they turned it off!

I have been after my husband for several years to have one done as he stops breathing; gags and chokes or gulps for breath....

I hope you get your machine soon. I saw that Pamster had hers the same day the order was written.
I know how your daughter felt...bless her heart,
Di

ocgirl

06-21-2007, 02:32 AM

Di, I'm so very sorry to bring up painful memories of your beautiful daughter, a mother's worst nightmare.

Today my son came home from Tucson for my daughter's graduation tomorrow.

I was feeling very bad respiratory wise,short of breathe, so exhausted and when I did anything at all I would just get drenched with sweat.

I was nervous, because when I blacked out in March I had no warning whatsoever.

So when I'm feeling so short of breathe I don't know how aggressive I should get or if it is a false alarm.

I got a new Adavare inhaler 250/50 and used my ventolin a couple of times and felt a little better if i just layed on the couch. But we were to go out to Claimjumper for Bryce's 22nd birthday.

I survived but it's hard to separate the two, asthma and it's respiratory distress and exhaustion and the fatigue of tos. i guess I'll just have to error on the side of safety.

The sleep study may find the reason for the extreme fatigue you feel Di. I hope if goes ok for you. I slept well because i knew someone was watching me.

DiMarie

06-21-2007, 02:46 AM

Martha don;t think of it as bringing up bad memories of De, they are memories that give credibility to her life.If friends ignore the topic, it is more that they not intentionally, ignore her exsistance to me.

I know my family here loves me, those that knew De her too.
I just wish sometimes for a moment a taxi will pull up and she can get out for a visit.....or just walk out her door and wave as I go by.

I go down often to her home, and to the cemetary to care for her flowers.

I think of you often Martha, I often wonder do they have things figured out well, do you fear,is it medication, physical, fixed????

I want you well. Have fun at the graduation, it is so wonderful that the family will be there, Watch the P's and Q's if you do not feel well.

Hugs,
di

Edelweiss

06-21-2007, 08:06 AM

just enter the forum to say hello and wish you all a good day!!!!!
Barbara

dabbo

06-22-2007, 02:26 AM

Today I.... am off work and gone fishin' for the weekend!! :D

Dolfinz

06-22-2007, 06:31 PM

Got notice of Denial for the Appeals Counsel for a hearing.. last step before taking civil action... Sigh, sigh.. But.. I am going to reapply.. and this time there is more eveidence for TOS ... AND more info to boot !! Hope everyone has a pain free weekend :hug: .. Still hanging in there !!

Dolfinz

HopeLivesHere

06-22-2007, 11:34 PM

I love coming here and checking you all out. It is like the daily newspaper on TOS.
I've had a lot of pain in my shoulder joints today. I can't try to have perfect posture because it hurts too much. My forearms have a deep ache. My pump is set at a low level of morphine and clonidine and can be upped a little when I see the doctor on Monday. It works better on RSD than TOS if you can tell by what I'm saying. Still the burning skin is mostly 80-90% gone and I'm thankful for each and every % :D

Martha, I read what you wrote and was (this is going to sound strange) sooo thankful you are going to have a bi-pap. It will be the angel on your shoulder and will let you know when you stop breathing. Sleep apnea can affect you in so many ways, like the cardiac you mention, BP, edema and mostly fatigue.
Di, I know what you mean about the gasping. My husband had the sleep test & has severe sleep apnea but cannot tolerate any mask. He's tried them all. I told him to pack it up and take it back. A lot of stress to see him stop breathing so often on nights I can't sleep well.

Dolfinz, I hope your appeal goes well. You don't need any more hassles.

Dabbo, I am glad you can take time off and go fishing, or were you kiddin'? :wink:
Wishing all a good weekend. Di, you are right about the good weather. Sure helps me feel better.
Hope :hug:

ocgirl

06-23-2007, 04:49 AM

Hope,
It's not strange at all, I feel the same way.

I was to see the pulmonologist on Tues. but I'm embarrassed to say I was so tired I wanted to sleep another 30 minutes so I set my alarm, but it didn't go off.

I slept through my appt to see the doc about my sleep apnea!

The doc ordered the bi-pap machine on Tues the 19th
and I had not heard from them by Fri. I called the office and no one had taken care of the doc's "as soon as possible order.":(
I should have it on Monday. The medical device company called a couple of times about insurance today, so things are in the working.
I'm looking forward to seeing the ways it will help me.

Edelweiss

06-23-2007, 08:30 AM

am sorry to read that hope`shoulder hurts - I know very well what this means. Hope you can get relief soon.

Since yesterday my doc gave me the ok to stay at home again for about 10days and then we will see.
The surgery of the shoulder was a big one and I need some more time.

Today my arm sling came off and I feel so free - 6 weeks day and night with this pillow and this sling are over. yeaah!!!

I wish you a very very nice week end and all the best,
Barbara

Dolfinz

06-23-2007, 10:32 AM

Now my shoulder is killing me this a.m.....Hope and Oc.. I hope you guys have a decent weekend... Eidel... I am so sorry that you are in pain but you need to get well...

God I wish someone would wave their magic wand and make everything better for everyone here !:hug:

I hope everyone has a great weekend.. Hopefully Mark has a good time and goes home with some fish !!

Hugs,
Dolfinz

phoebe

06-23-2007, 08:40 PM

That's wonderful about the bipap for the sleep apnea. I bet you'll find that you haven't slept so well in years, and hopefully it will also bring the pain levels down too.

Hi to everyone else. Most of you don't know me but hi anyway. :) phoebe

HopeLivesHere

06-24-2007, 12:33 AM

Hi Phoebe,
I've seen you post before, but I forgot when and where. What else is new?

Barbara, I'm glad you got rid of the sling. They can be good and bad. I wear
one on days my arm feel like it weighs 100 pounds. Glad you got 10
more days off work to heal. I get some relief from shoulder pain if I
stay in bed :wink:

Dolfinz, I really like the idea of that magic wand :) :)

OC, Glad you understood that comment. Your doctor's office screws up too?
It took my doctors office 2 months and me complaining to the manager
because they never put in the request for the intrathecal pump. Yes, we
have to baby sit :rolleyes:
That is so funny that you slept through your sleep apnea appt = NOT!!
You should write that one down and pull it out when you need a laugh.
Be sure you let us all know the ways it helps. Weight loss is another
bonus of the machine for anyone who needs the machine AND weightloss.
Your ankles were so swollen when I saw you.
I've read a couple articles that sleeping in itself helps people lose weight.
I sleep 12 hours + everyday.

Di, I hope you are feeling better and I also hope everyone's weekend is going well. The weather here is co operating :) :)

dawn3063

06-24-2007, 10:15 AM

It's a beautiful morning here in So California today and I Just wanted to say Good Morning and Hi :Wave-Hello: to Everyone...
I do hope that everyone has a low pain or best of all pain free day today...
Many Hugs
Dawn :hug:

DDayMBB

06-24-2007, 03:13 PM

Martha-sounds like bieng underwater and going down dor the 3rd time... I heard of a surgical option (do not know if this relate to you) where they go in and tighten the roof of your mouth (exact terms unsure of) just what you need on top of every thing else <UMMPH>:thud:

Phoebe- I have to say welcome back and hope all is going well !!!:Wave-Hello:

DiMarie-It was GRrrr8 speaking with you the other day and as always you and your are in my thoughts and prayers....:)

Barb-now with the sling gone and the time off, please do not over do... enjoy your time off and work your way up to better health... still think more time at that lovely spa is in order. At times I envy your system of health care !!! Ich hoffe, dass von dies das letzten den Chirurgien ist, die Sie gehen müssen, obwohl und Sie anfangen, besser zu fühlen. Meine Wünsche gehen für bessere Tage aus zu Ihnen! ;)

Finz-I do think you were speaking about dabbo and his statement he was taking the day off and going fishing... .. I bought my permit at $31 bucks to take my son out and he has only wanted to go once... but I do agree with you on the hopes that everyone had a good weekend **including yourself of course**:wink:

Hope-I see the surgeon about getting my pump tomorrow, he is the last step I have to take.. sure you remember the hoops and bridges you had to go through to to get it... my trial was wonderful !!! Hope all is welll with you:)

Dawn- I send these right back to you :hug: though very gentle !!!

AND UNTO ALL THE OTHER TOSers/RSDers :grouphug: MARK~n~GOOBER

ocgirl

06-24-2007, 03:39 PM

Thank you everyone for your kind words and well wishes, Dolfinz, Phoebe( good to see you again), Hope, Mark, Dawn, DiMarie and anyone I may have forgotten

Mark- a very good analogy-going underwater for the 3rd time(that's how I feel when I wake up gasping)
My family wonders why i stay up so late but i don't want to go to sleep !

I have heard of the surgical option also, but I am very fearful of any surgery
( I got tos from being positioned wrong during a minor outpatient surgery 2/00-got a brachial plexus stretch injury)

I am able to get past the fear when needed. I had a rib resection and scalenectomy 1/04

dabbo

06-25-2007, 08:46 AM

I hope the CPAP works OC.... I need to go back to the sleep doc about trying one. Either that or it might have to be that surgery where they burn off the back of your soft pallate (i think)).

I hope everyone had a good weekend... I did go fishing- trout fishing in Arkansas- and it was gorgeous out there. That, and a 36-pack of coors light was $17.99 :eek:

barb- be careful without the sling- i know how glad you must be not to have to wear it all the time. one of the things the surgeon suggested to me after my shoulder surgery was to wear the sling in public so that people would be more careful around me.

Edelweiss

06-25-2007, 09:21 AM

can tell to dabbo that even with the sling (a big one!!) people around me did not take care - they thought ist was a handbag!!!!
so no care with sling - it`s better without!!!
Had already therapy today and with each day I thing it goes better.

All the best for all here in the forum,
nice greetings barbara

DDayMBB

06-26-2007, 11:40 AM

Went to see the surgeon yesterday, had a friendly beside and seems very capeable and trust worth worthhy to be uner the knife with... Di Maybe you and De caught him on a bad day you know how moody surgeons can be !!!! now if my insurance carrier does not put a halt to it my pain pump will be inserted on 7/25

I hope all Tosers have a great day !!!!!!

Mark~n~Goober

Jo*mar

06-26-2007, 12:23 PM

Mark - fingers and toes crossed for you - wow one month away HOPE , HOPE , HOPE !!!:D :D :grouphug:

johannakat

06-26-2007, 05:32 PM

Awesome, Mark...I am totally happy for you!

phoebe

06-26-2007, 08:38 PM

Thanks for the warm welcome, and I'm so glad things seem to be looking up for you. :) phoebe

Edelweiss

06-28-2007, 08:43 AM

wish to Mark that you will get the pump and that you can have back a better quality of life!!!
All the best!!!
Barbara

DDayMBB

06-28-2007, 04:29 PM

Jo, Johanna, Phoebe & Barb > I would like to thank you guys (gals) from the bottom of my heart for the well wishes !!! It is about time something goes my way:) Than again I am very fortunate to have a loving wife, two great children and both of my parents and a roof over head which I do thank God for !

I have my appeal hearing infront of the judge for SSD on July 11 ... that is just 2 days shy of when I was able to work 2 years ago UMMMppphhh:crazy: and from there things just seemed downhill.

Hope everybody are enjoying their summer are free of pain>>>>

Mark~n~Goober

johannakat

06-28-2007, 05:00 PM

Mark- can't think of anyone who deserves it more.

:)

fingers crossed for your hearing

Johanna

Dolfinz

06-28-2007, 05:57 PM

Just wanted to stop by and say HI to everyone !! Mark I am sorry for thinking you were Dabbo... I am glad to hear about your Dr's appt. and I hope that you have good luck at your hearing ( I just got denied at the Appeals Counsel level now I get to start all over again !)

Dabbo.. Fishing in Arkansas.. sound nice.. glad you got dinner.... Edelweiss.. Glad to hear things are going well.. and to everyone else hope you are having a decent week !!

Hugs,:hug:
Dolfinz

dabbo

06-29-2007, 01:08 AM

Mark- thoughts and prayers are definitely with you. I hope they let it go through smoothly....
Dolfinz- arkansas was gorgeous..... I love it up there. So peaceful and relaxing.... ahhh.....
I hope everyone else is doing well!!!!
:grouphug: -dabbo

gibbrn

06-29-2007, 10:21 PM

Hi all Happy Canada day to all Canadians out there.....and all who are coming to Calgary from wherever!

Hi to all my pals....sorry to have been so absent...cpu issues and FLARE from down below and I don't mean Australia....

I am still in a huge flare, but have been trying a new med here Nabilone.....it is the synthetic THC and it is WONDERFUL at taking pain and muscle spasms away....but I feel stoned and can't do much for the day so I kind of have to sit and wait till it wears off then I am in pain again and feel the need to take it again and then am obliterated.....so weigh the options....what the hell do I do!!!

Anyhow!
Have a great weekend.....hope to be able to say Happy 4th of JULY...ok I just did!! Happy fourth of July to all my American friends!!!

Love and Hugs to all,
Victoria

HopeLivesHere

06-29-2007, 11:40 PM

Hi Mark,
I am ever so happy your surgery for the pump is scheduled. I hope yours goes as well as mine and you can just feel the burning lifting and gone. I have had 3 increases and may have another one Monday. I do that until I get up to my maintainace dose. Each week gets better.

Vic, Wow, that is some kind of med you are on but I know many who took it and experienced the same as you did. Now you'll need provigil to keep you awake. I really dislike taking meds with such side effects. Sorry about your flare

HAPPY CANADA DAY TO YOU AND HAIRDRESSER.

Hope

Dolfinz

06-30-2007, 07:34 AM

Hi everyone Happy Canada Day to all you Candians...

Vic... just one question.. Do you get the munchies when you take that med ???
(Just kidding ) Sounds like you would need something you keep you awake !

Hope everyone has a great weekend and a pain free one at that !

Hugs,:hug:
Dolfinz

DDayMBB

06-30-2007, 07:46 PM

[quote=Dolfinz;118112]Just wanted to stop by and say HI to everyone !! Mark I am sorry for thinking you were Dabbo...

Trust me, I have been called much worse.... except I would not touch that Coors light like Dabbo ::Poke: (just kidding Dabbo)

Wishing our neighbors to the North and here in the U.S. a Safe Holiday !!!

Mark~n~Goober

DDayMBB

07-02-2007, 11:18 PM

Today I>>>>> Start a very hopeful count down of 22 days till I get my intrathecal pump (June 25) with all hurdles crossed, the only thing that can stop me now is if my insurance company has a change of plans (which I pray not) !!!

Hope all are doing well !!!

Mark~n~Goober

dabbo

07-02-2007, 11:33 PM

I hope all are well today....things are quite a mess at home- we're putting new cabinets in, and they're sitting in my living room. (all over my little living room, that is). Hopefully the install will go quickly, but we'll see.

Mark - I hope nobody changes their mind at the last minute about that pump... no offense taken about the coors light. I just couldn't pass up 36 beers in a cooler for $17.99. CHEAP! (yeah, i know its cheap beer).

Happy Canada Day to all those up north.... half of the people i work with/for were out today.

Vic- I hope the Nabilone works.... i often wondered if "that" would be effective. Can you bake brownies with it though :rolleyes: ? And, like Hope said, not to add ONE more med (I hated adding MORE stuff) but.... Provigil has helped me alot (95% of the time, I'd say).

Shelley- :Poke:

cindyj

07-03-2007, 12:53 AM

Dropped by for a minute to say hello.Ive been in the midst of an excruciating migraine for 2 days and have only been out of bed 10 minutes today...ugh. I am caring for my baby granddaughter full time as my daughter inlaw had to return to work earlier than planned( baby is only 11 weeks old) so nedless to say I havent had the time or energy to come and check in on everyone. I am typing with sunglasses on which is much harder than I thought lol. My head is in 1 of its settled moments so I thought I would come catch up on how everyone is doing. But much as i would like to read all the posts I know my head won't be able to do it. I dd have a question though" , How long does it usually take for you to get back to being able to take a full breath withut feeling like you have a rubber band constricting your ribcage? When I take a deep breath it still feels like a bit more of my lung needs to open up and the past week, when i get up my lung and ribcage hurt like they did after surgery but not as bad. When I had the fluid buildup in my chest it partially collapsed the bottom of my lung, hopefully it's just that finally healing. I had my surgery january 30 so I am 5 months postop and I am not nearly as well as I had hoped. I see so many of you had physiothrapy after surgery, yet my surgeon told me it wasn't necessary??? From any of your experiences with surgery, can any of you tell me how well you were by 5 months postop?
I may not be around alot with the littl one now, but know that all of you are still and always will be in my daily prayers, ((((hugs))))) cindy

Jo*mar

07-03-2007, 01:16 AM

Hi all!!!

I didn't have surgery so i can't help you there cindy:(
I sure some will be along - but I know it takes a lot longer than the drs usually estimate.

I guess no PT is better than bad PT - :(

I hope you have found and watched some of the online videos for posture , massage, & various therapies those really are pretty good for showing you things to do for your self.
watch more than one of any type so you can see the one that might be better for you.
Of course use common sense about doing only what you are able to do comfortably with no pain increases.
Dr didn't even say anything about range of motion movements or anything???hmmmmphh! nothing??
Has your strength and ROM returned on it's own fairly well?

Peg24

07-03-2007, 08:43 AM

I just wanted to take a few minutes this morning to say hello to all my TOS friends.

I know its been awhile since I have been on. I guess just alot of adjusting since the deaths in my family this year.

Other than still having some slight flare ups, my TOS seems stable (thank God). Just hate that it keeps me from doing those things I once enjoyed.

Mark, I am so happy for you and I pray this will give you some relief. I've been a part of this forum for quite awhile now and I have heard your pain on many occasions.

May all of you have a safe, but fun 4th of July!

Love you all!!!!!

Peggy

P.S. I still miss those night chats with all you guys!!!

gibbrn

07-03-2007, 02:35 PM

Hi,

nice to hear from you sorry about your head!!:mad:
I was five to 6 mths post op when I went to physio and my lungs were certainly on the mend but not 100% yet but they were better for sure.....keep doing deep breathing yoga breathing is good three part breath going in to your abdomen...it rises then to your mid chest...ribs rise...then to upper part (the worst!!!!!) top ribs....you can put your hands on these areas to feel the breath going there takes a while to get used to it....check out some yoga sites...don't have one to recommend I use dvd's to learn it and a class so now know it....

As for physio you should be doing some by now....GENTLE only and stretching...no treadmill or theraband......both very bad for me in physio.....brought all my symptoms back...I had bad physio...so no is better than bad for sure......but you need to keep stretching and doing as much as you can at home....Lord knows with a baby you will likley be doing all the stretching and more....lifting is an issue I hope the baby is way lesss than the 5lbs you should mimimally be lifting......( I hope and pray the babe is not!!!) but point being you should not lift much it could cause more damage than good right now as you go into the final stages of healing muscles and ligaments......scar tissue is now my worst enemy.

hope some of this helps...
feel free to contact me if you need to
love and hugs

love and hugs to everyone else hope your day is better than mine has been with comp calling me with more WONDERFUL news!!!!!!!!!!!!!!!!!!!

take care and again Happy Fourth to all,
Victoria
gibbrn@hotmail.com

DDayMBB

07-03-2007, 02:47 PM

Dabbo, truly I am glad you had a good time and as far as the inconvenience at the moment now just think of the end result as long as the cupboards are in boxes think of them as new end tables to prop your feet up on and place one of those coors on:rolleyes: ! My Alcohol days stopped when I started taking narcotics... Uncle Jack and I at one time were on a first name basis !

Cindy, one of my neurologists (i have 2 and a neurosurgeon) has given me Topmax for my migraines and it took a while to get the dosage up to where it works, but I used to be bothered by loud noises and bright lights, now the sunglasses are just used for sunny days:cool: Wish I could help expand with your breathing maybe somebody will come along and share what helped in their case:Good-Luck:

Peg... it is always nice having you around and have to say personally your input is valued, please do not be a stranger and look forward to seeing you again:hug: hope everything in your life is getting back to normal and will add a little extra in tonights pryers for you !!!

Unto all my best !!!

Mark~n~Goober

phoebe

07-03-2007, 08:55 PM

I just wanted to jump in and say I hope that headache is better, but more importantly how's your breathing today? If you really are feeling as though you aren't getting enough of a breath, you may not be. If it is even a tiny issue, I would at least touch base with your primary care physician, the one who referred you for surgery and let him/her know about this. Even over a holiday there should be an MD or an Advanced Practice nurse on call for him/her.

Did you have an incentive spirometry in the hosp. where you drew in as much air as possible, so that you could increase the efficiency of your lungs? Did you do alot of coughing and deep breathing? Did anyone help you cough by putting a pillow up against your abdomen to help guard your abdomen/ribcage from pain? All this should (or at least 4 yrs. ago this was the case) have been started within the first day or so post op, and from reading your post and having a partial lung collapse, I bet you did use these things. If you still have the spirometry (alot of people go home with them).. That's a useful tool to keep your lungs open and all those teeny little air sacs healthy and oxygenated which is important.

And, like Jo, I'm not speaking from personal experience, only nursing exp. I'm sure the other people who have had surgery can help you with this. Do keep us posted. :) phoebe

johannakat

07-05-2007, 07:30 PM

today i am confused because i wrote a post to cindy a few days ago, don't know why it isn't here???
cindy- PT is all important to me, but good pt is the only kind worth having. The help with range of motion and general awareness of my limitis and how to gently push them is key.

Mark- you and I are on the same surgery wavelength as I am having right sided rib resction July 23 :) hopefully it is a good week for surgery karma.

hello to you all, victoria nice to see you around some!

Johanna

DDayMBB

07-08-2007, 12:44 PM

Today I:lookaround:wonder where Dabbo and Edelweiss have been hiding, it is not like the 2 of you not to even stop by even just to say hello... truly hope both of you are well !!!!

Hope Cindy's migraine have let up somewhat... so that she can enjoy her time with her little one !:Good-Luck:

Victoria, how is going with that new medication ??? Is your body getting acclamated to the side effects? From the way you make it sound, if you can get over that hump, the benefits gained in releif are well worth the trial and open up new doors in the treatment of the BEAST "TOS"!!!:Painter:

PBJ... your opinions here as well as on the old forum are always welcome as you come by not only talking from personal experience, but also from professional knowledge! :welcome_sign:

Johanna... I hear the blare of the trumpets, pounding of the drums and the plucking on the strings of the harps... wishing us both well in our up coming procedures! Not only that, I have faith in our maker that everything will be fine.

In closing, I just want to share my hope and prayer as always that everyone afflicted with TOS and RSD a day free of pain and better day tomorrow !!!!

Mark~n~GOOBER

Jo*mar

07-08-2007, 12:57 PM

Haven't been on or posting much- managed to get some puter virus while hooked to my aunts laptop trying to fix it for her. Learned that lesson...big boo boo.:mad:

Darn antivirus pgm didn't stop it and I couldn't open it to scan after my PC started acting up!

So I got frustrated and wiped my hardrive - reinstalled XP and Ubuntu linux- so I can use one or the other.
But starting over from scratch and setting up mine profile, hubbys profile and family profile takes a long time.:(
We all hate the default XP stuff- like the classic look better:p

plus spent a day at aunts setting up her new laptop and we kept scanning the old one to try to clean it since her photos and family tree & documents are on it yet.

DDayMBB

07-08-2007, 02:46 PM

Jo that sounds like a real pain in the place where the sun does not shine...

gibbrn

07-09-2007, 04:46 PM

I am having a few issues with the med still....thanks for asking...huge adjustment issues.....can't quite get used to it and still sleep a lot and of feeling stoned and paranoid....can't take the much needed diazepam or my nortriptyline near it either or I go comatose!!! Not literally......I get more side effects.....

So no decision as to keep or drop it yet I will still take it at night...but I was trying to go into the day time dose but it is very difficult. I will keep trying....

Hope all are well and having as much of a pain free day a possible.

Love and Hugs,
Victoria

Edelweiss

07-10-2007, 02:54 AM

just jump im to say hello to my dear TOS friends and I hope that pain (any pain TOS, migrain,.....) and problems are low today.

Since yesterday I am back at work and I started moderated and without stress. There are only 3 weeks until I will go to the rehabilitation center to train my shoulder.

I wish you all a very good and happy day today!
Barbara

dabbo

07-10-2007, 01:54 PM

I've been doing more "lurking" as of late. I hope everyone who has an upcoming procedure/hearing/whatever has a favorable outcome!
Victoria - I hope that you can adjust to that medication, esp. if its helping.
Jo- arghhhhhhhhh.. dang computers! can't live without em, and they can be a pain to get fixed!
Mark - me and any alchohol only meet once in a blue moon now. Thats a far cry from my college/post-college days (hello mr. daniels and mr. beam...).. no way I would drink while taking pain meds. So i hardly ever drink. But that 36-pack for $17.99 was WAY too cheap to pass up- thankfully there were 5 others to take care of it!

Father-in-law and I managed to get the cabinets installed, sink hooked up, countertops in, etc in 2 days last week. I was super careful about how I moved, what I did, etc, so I made it through that with a "normal" flare - not the worst i've had, but. That surprised me- I thought I would be off the charts (in case you can't tell, I'm stubborn - no way I was going to pay someone $1500 or $2000 to install those cabinets). anyways.....

hope y'all are having a (relatively) pain-free day.

Jo*mar

07-10-2007, 02:06 PM

Good job with the cabinets- your walls must be square and straight:)

we had a lot of cussing when we redid our kitchen - thank goodness hubby got a cabinet jack to help hold them up all I had to do was steady them and be the gopher LOL!

Our house is a old one that we have remodeled over the many years as the family grew. Uneven and out of square is the norm even after the updates- some basics are too hard to fix without tearing it all down.

dabbo

07-10-2007, 03:07 PM

LOL Jo! NONE of the walls in that condo are square. We hung the 1st one, got it plumb and level, and then hung the second, and adjusted them both to make the faces even. and then repeated the process. Oh, there were more than one or 2 four-letter words used. The people that installed the original cabinets 30 years ago nailed them to the wall and the soffet (instead of using screws) - THAT drove my father-in-law up the wall!

as far as fixing the basics.... its amazing what a little trim and a little bit of caulking will cover up :D

Jo*mar

07-10-2007, 03:13 PM

Definitely love those screws and drill/screwdrivers over the old hammer & nails:cool:

We had a wonky corner to do a run of cabinets around - yep trim is a lifesaver - we haven't trimmed out or totally finished our project yet- from last summer.
Got burnt out on the project- it's all fine and usable but haven't applied the skins or toe kick panels or finished the window trim.
maybe this fall.....

dawn3063

07-10-2007, 11:12 PM

Want to wish Mark all the Luck in the World at his ALJ hearing tomorrow...:Good-Luck:
My prayers are with you for a fully faviorable outcome..
:hug: Dawn

DDayMBB

07-11-2007, 12:03 AM

Victoria, I really hope that works out for you... if not, you can not say that you did not go in blind! You did your homework first hand and weighed the issues, I am just hoping that this could be another med in the war chest to combat the pain we all suffer here. Than again what works for one may not be the same for another... I am so looking forward to getting my intrathecal pump my trial was excellent !

Barb good to see you stopping by as well as hearing that your pain levels are at a tolerable level. I still say your health system has a very nice policy with the wellness spas.

Dabbo, hope your body is not paying the price for your savings, though prior to my TOS hitting I was planning on putting on a new roof (my brother & me) now that is by the way side 2 years past. That is kewl you and your father-in-law can work side by side, unfortunately my father-in-law passed prior to my wife and I getting married. Him and I got along very well and I asked him for his permission to marry my wife, before asking her and he was thrilled and welcomed me into "the family".

Jo... that is not even a question, one does require the power screwdriver, though I do not hammer either that is what they made air tools and children for ;) I miss the days of being able to lift, carry, run the farm tractor (with various implements), go shooting the list goes on ... how you are able to hit all the topics and places you do amazes me typing this so far has taken about an hour and sure the pain I feel now will be worse in a while!

Tomorrow, or in 9 hours I go in front of the SSD judge, I do not know, but I am at some sort of peace. There is nothing that I can do to influence which way his verdict goes, however know just how I feel, he holds all my medical records and I feel my attorney can carry the rest. The only thing that hurts me is my age as I have been told time and again so wee will see.

HOPE THE FOLLOWING DOES NOT OFFEND
DUE TO SOME COLORFUL LANGUAGE

Five surgeons were discussing what type of patient is the easiest on which to operate.

The first surgeon said, "I like to see accountants on my operating table

because when you open them up, everything inside is numbered."

The second responded, "Yes, but you should try electricians! Everything

inside them is color coded."

Not to be outdone, the third surgeon offered his opinion, "No, I really

think librarians are the best; everything inside them is in alphabetical

order."

The fourth surgeon chimed in, "You know, I like construction workers;

those guys always understand when you have a few parts left over."

But the fifth surgeon shut them all up when he observed, "You're all

wrong. Politicians are the easiest to operate on. There's no guts, no

heart, no balls, no brains, and no spine, and the head and the *** are

interchangeable

My best to all... Mark~n~Goober

See what's free at AOL.com (http://www.aol.com/?ncid=AOLAOF00020000000503).

redjpwranglergirl

07-11-2007, 01:56 AM

Good luck tomorrow, Mark! Or, I guess by now, it's today.:)

Shelley

07-11-2007, 01:56 AM

Best of Luck MArk :hug: :hug:

Edelweiss

07-11-2007, 04:46 AM

wish good luck to Mark!! :Good-Luck:
And thank you for the funny story.

I had my 2 month control of my shoulder today and the doctor is very satisfied with the arm. I need some more musclepower but I will train it in some weeks intensively.

There is still one question in the air: does my tendon have a problem/illness or not. He says, it is not normal, that a tendon of a young woman (I was 27 when these problems started) tears and tears again without a reason after some time after a good surgery. So we will wait and see, how the shoulder is developping this time.

To dabbo, red, shelley, dawn, jo, etc etc etc I wish a good day and send you all very nice greetings

Barbara

DDayMBB

07-11-2007, 11:02 PM

phoebe

07-11-2007, 11:14 PM

I'm thrilled to hear that. You certainly have been an inspiration to all of us even though you were pretty much always in severe pain. I'm amazed you aren't totally bonkers by the way Goober has treated you.

CONGRATULATIONS

phoebe

Shelley

07-11-2007, 11:16 PM

YAY Mark...if anyone deserves a bit of turnaround and good things you certainly do:hug:

redjpwranglergirl

07-12-2007, 12:05 AM

AWESOME news, Mark!

Jo*mar

07-12-2007, 12:39 AM

Whoo hooo!!!:D
Yeah for you Mark
:D :cool: :) :D :cool: :) :D :cool: :)

dawn3063

07-12-2007, 01:39 AM

I want to say thank you to everybody for their thoughts, support and prayers from the first time I posted not only here... but also on the old BT forum! It was a major shock to be labled as disabled and taken out of work and you all listened to all my bitches about every ache pain and spiral that I took downhill. Still you added support and gave me light when things where dim fibromyalgia, TOS, RSD, WC denials SSD troubles falling behind with my child support being without income for over 2 years and going deeper in debt, but being rich having a loving wife and my extended family here!!! TODAY I... think my life has reached a bit of a turn around, I have been approved for my SSD ( however long it takes to get my first check i do not care, I know it is coming sometime), my intrathecal pain pump trail was a God send and I am having it implanted it in 2 weeks. ALL I CAN SAY IS THANK GOD FOR HIS GIFTS !!! ALSO THANK YOU FOR YOUR SUPPORT !!!
MARK~n~Goober

:Wave-Hello: Hi Mark...
YEA... It's time for the Happy, Happy Joy Dance :Dancing-Chilli: :Dancing-Chilli: :Dancing-Chilli: :Head-Spin: :trampoline::Head-Spin: :Dancing-Chilli: :Dancing-Chilli: :Dancing-Chilli:
I'm "So Happy for You"... Congratulations on a Job Well Done with the ALJ...
Now we need to have a cyber celebration :Dancing-Chilli: :partytime2: :Dancing-Chilli:
http://i141.photobucket.com/albums/r58/Dawn3063/grouptoast.jpg

:hug:
Dawn

Peg24

07-12-2007, 07:23 AM

Mark,

I am so happy for you.

Lord knows you have been thru it and deserve it.

Know this is forum is always home for you and we are your family!

Love

Peggy

LinJane

07-12-2007, 01:04 PM

Mark, I did not read all the posts because there were over 800 and I am new to the site, but, I understand you have good news with your TOS. Congratulations and thank you for the support you have given me. I am trying to cope with the fact that it is back. I thought it was gone for good. Best wishes. Linda

DDayMBB

07-12-2007, 04:52 PM

Yeah Linda there are a few to many posts to start from the beginning, though a lot of experiences in many of the good people lcocated here at the TOS forum. Stopping by the Today thread is meant for topics that do not fit in other places be it good or bad or just feeling like saying hello to others! It is unfortunate after what six years, to be back fighting the TOS monster (BTW I named mine GOOBER), what do they think it is scar tissue ? Oh well did enough typing for the moment do not want to irratate Goober to much!

Hope all TOSers and RSDers are doing well... Mark~n~GOOBER

olecyn

07-13-2007, 01:19 AM

Edelweiss

07-13-2007, 04:17 AM

want to wish again all the best to Mark!! You deserve it!

Since yesterday, I have a throat / caught problem and I am afraid that I will developpe an influenza.
Drinking tea and relaxing are my 2 occupation for this weekend and I hope I will feel better soon.

Wish you all a fine weekend!!!!
Barbara

LinJane

07-13-2007, 09:14 AM

Mark, I go to Dr. Togut on 7/17 and hope for the best. I did not go to therapy this week as it seemed to make it worse. I'll see what Dr. T. says. Keep feeling better! Linda

Jo*mar

07-13-2007, 01:14 PM

Barb , Have you ever tried this stuff -Emer'gen-C - the world leader in Vitamin C products.

It's in single sized packets that you just dump into a glass of water.
We've been using it for years when we start to get a cold or flu.
1000mg of Vitamin C - plus they have different combinations of other Vitamins
[Super Orange Emergen-C fizzes in water to furnish 1,000 mg of Vitamin C with 32 different mineral complexes plus B Vitamins. Sweetened with Fructose for Quick Energy with Staying Power.]

http://www.alacer.com/
here's the info on the super orange flavor-
http://www.alacer.com/cgi-bin/dbsearch.exe?mdb=/products.mdb,tbl=products,DB_code=46,DBCOMP=ABS,te mplate=/products/returntitle.htm

Alacer products are available wherever fine natural/health foods are sold.

STORE LOCATOR -- http://www.alacer.com/Retailers/index.asp

Alacer products are available in the Vitamin C section of all fine health food, grocery, mass, and chain drug stores.

MAJOR RETAILERS
Alacer products are now available in many major grocery and drug store chains

gibbrn

07-13-2007, 06:41 PM

Hi Guys,

hope all are doing well....as can be expected for each of us.....Mark good luck with your pump!!!!!:wink:

I am still undecided on the nabilone......but I have felt better these last few days able to go to the chuckwagon races and night time show for our Calgary Stampede!!!! It was a great night to get out is heaven and not be in too much pain!!!!

Looking forward to going to the midway to watch everyone go on the rides....I dare not!!! But the cotton candy sounds nice!

Take care all!!!!!!
Love and Hugs,
Victoria:hug:

Shelley

07-13-2007, 07:49 PM

Stampede...Send us some cute Cowboys!!!!!!! :D Yippe Ca YAY! Yeeeeeeee HAAAAAAAA

johannakat

07-13-2007, 08:06 PM

today i got good and bad news from some bloodwork...

Good news: I am not diabetic...if anything i seem to be a little hypoglycemic...going to look into that some more...

Bed news: Thyroid is wacky...boy anyone who is tired all the time should go get theirs checked. It is pretty easy. Took two tries for me, a few weeks ago i was just a little off but this week I am really really off.

i guess that helps explains why i have been so stinkin tired all the time. Get to start new meds tomorrow, wish me luck!!

Not sure, but numbers were low enough yesterday that I may fail my pre-op appt next week. won't know until at least tuesday :(

Shelley I have been thinking about you...how are things? :hug:

Johanna

DDayMBB

07-14-2007, 05:26 AM

It's hard for me to keep up too with everyone
I think we have learned that the compooper is evil on our bodies
I happy to see ur back on and fighting another day.

I always wondered where the "goober" came into play.
I thought maybe your buds nicknamed u that.

Fight to live...Not live to fight

Olecyn... here the he beauty of the thread is that you do not have to keep up totally, you can jump in where ever and comment or like I said just at the very end end say hello, vent or just plain share what what is going on in your life... it is good seeing you around !!!:Wave-Hello: Hopefully the pump will let GOOBER know he is not welcome in my body, however sure the evil bastard will stop by for visits!:mf_argue:

Barb... that is surely one nasty way to spend the weekend, maybe it will ease off somewhat and you will be able to salvage part of it... I will keep my fingers crossed for you!:Good-Luck:

Vitctoria.... if I may quote "Shelly" Stampede... Yippe Ca YAY! Yeeeeeeee HAAAAAAAA

Johanna... I Hope Everything works out for you ! I know how much you have been looking forward to surgery and the releif that it is about to bring about. Keep us posted... thought and prayers will be with you!!!:hug:

Jo... those Vitamins you are speaking of for Barb, she lives over in Austria... wonder if they have outlets over there or ship ??? Though I know form what she says they have some natural meds there that would not be allowed here in the states due to regulations that do wonderous things... doesnt our government always know what is good for our bodies:eek: at least the major drug manufacturers???

HAS ANYONE SEEN DABBO AROUND ??? :Scratch-Head:

Well hands are getting a bit cold and blue so think I shloud stop now! Hope every one has a good pain free day MARK~n~GOOBER :OuttaHere:

Horizontal One

07-14-2007, 09:54 AM

Sorry, off line for ages and as with you all have to limit PC time even though have Dragon.
I have missed a lot so apologies but quickly...

Hello everyone and best wishes for better days.

Barb - hope your surgery has gone well...best wishes

Olceyn - hi and best wishes

Gibbrn - glad you seem to have settled in and hope you have a yippee day at stampede and enjoy the cotton candy, Mmmm Save me a bit please!!!

Mark - hope the pump works out well.
Jo55 - hi and hope all is ok

I cannot remember everyone as so many new people since last time and since old forum..so very best wishes...and today I hope that my consultant has prodded a new cons at a specialist centre to see me soon.

I am having a family holiday soon- am sure it wont be exactly restful but have plenty of time to "recover" :rolleyes: !
Take care one and all

Hx

LinJane

07-14-2007, 04:38 PM

It's just nice, unfortunately, to have people in the same situation to chat with. I had my son's 12'th birthday sleepover last night. Needless to say there was no sleep. The most important part was that he had fun. There are times, as we know, that you suck it up and move forward. I hope everyone has a great weekend. Linda:winky:

dabbo

07-15-2007, 03:22 AM

JoKat- I hope the new meds help and that this doesn't mess up the pre-op for you....
Mark- WOOO!! i'm so glad that SSD was approved and that you're sub- 2 weeks on that pump. what a relief that must be for you.
Shelley - cowboys.... or :Poke: rednecks? plenty of them down here
:D

Ok... time for me to b&$tch.... I spent 5 hours in the ER today.... Thursday night, I was holding/playing with my 11mo old daughter, and she squirmed, I moved the wrong direction, and immediately knew something wasn't right. I got that dang stabbing feeling back in my shoulderblade. Meds, heat, figured I'd be alright. Friday night, I was lying on the floor, simply moved wrong, and there when my shoulderblade (again). pain levels went right up, fingers were more numb than usual... So saturday, after much debating, I finally went to the ER. I was on the verge of a breakdown (waves of pain that would seriously put me on the verge of tears), my arm was uber-sensitive, and my hand was all sort of clammy. After waiting 3.5 hrs, the doc asks whats wrong, so I started to tell him. No joke he says "So just WHY did you come here today." I wanted to smack him. :eek: I explained to him (again) my problems, and what we have been doing to treat them. He looked at me like i was a freakin addict who was just looking for meds. This, after I clearly told him I was under the treatment of a Pain Mgmt doc. Then he told me that my chart said I was taking Lyrica. I politely suggested that he make sure it didn't say that, since I'm allergic to it. I would say net, he spent about 3 minutes with me, and didn't let me get in a complete sentence. Suggested I had carpal tunnel, looked at me funny the whole time, never really paid attention to me...... Anyways, they called my PM, who told them to give me something a little stronger for the pain and to follow up with them on Monday. Oh, and after I left, I noticed on my discharge paper he had put my chief complaint as "back pain."
anyways....sorry for rambling on and on and on.

dawn3063

07-15-2007, 10:44 AM

Like I said the other day...
:holysheep: Where do they get these Dr's from or I should say "Where do these Dr's get there Licence" from...
That's my new motto :Soapbox: :Bang-Head: They have no compassion...

I do hope you are feeling better today...
Many Gentle Hugs
:hug: :hug: :hug:
Dawn

Peg24

07-15-2007, 12:10 PM

Oh Dabbo,

I am so sorry you went thru that and I can truly relate to it.

I became so sick of doctors looking at me like I was stupid. I had a time when I became in so much pain and my whole left side became numb. They put me in the hospital and ran tests and of coarse, with TOS......nothing showed.

So the idot doctor, came in and said to my husband in front of me......"You need to take your wife to a phyciatrist". Meanwhile, I sit there with a blue swollen hand.

The medical field stinks more now than it ever did and I sure don't see it getting any better, no matter what our health problems may be.

I saw my brother die in 3 weeks because they all moved at a snails pace.

Sorry, I'm bitchin too!

I hope you are feeling better though, and I can only imagine how hard it must be for you not to be able to handle your daughter in the way you want.

Chin UP my Friend...:Excited:

Peggy

Jo*mar

07-15-2007, 12:52 PM

Gggrr I'm sputtering here !!!:mad: :mad:
nincompoop drs!!

when you see your PM dr can you ask about who to call if this situation happens again instead of going to ER?
He may just give you his # or the # of a back up dr that will believe you.

Something else to consider- maybe, and depending on if you think they could help at that time-
If you have a good relationship with your bodyworker or PT, or chiropractor- they might do a house call. Doesn't hurt to ask right??
Just thought of this because my chiro was telling me of a house call he made to a fellow that was housebound and needed emergency chiro care while at home. He mentioned it because it was out near my area.

johannakat

07-15-2007, 06:23 PM

Dabbo- that really sucks. I recommend you call the hospital staff, ownership, satisfaction board or whatever to tell them about your experience. you might also send copies of your medical records to prove you have TOS...
just a thought.

*gentle hugs*

johannakat

07-15-2007, 06:52 PM

Ditto to what Jo said as well, my daughters pulmonologist encouraged us to drive a little further from home to the children's hospital for late nite ER visits after a bad experience at our local hospital.

I wouldn't have thought of that on my own but when I asked him it made perfect sense!!

olecyn

07-15-2007, 08:32 PM

O honey,
Maybe we should have show and tell lessons at medical and nursing schools
I so know what u went through.
Turning, using ur hands or body, just the simplest of things the wrong way can trigger.
And it's so sad to hear it happened when picking up ur precious one.
All of u with young whiper snappers amaze me.

I had a bout with an emergency situation in April.
By myself and the pain got so bad I couldn't literally take a breath
I paced and thought ok, if I take a bottle of pain meds thats not going to do any good.
If I call someone and drive me i'm gonna die waiting in the waiting room for hours.
If I drive myself that would be fatal to others on the road.
So, I called 911 and that would get me right in the back door.
I was o so embarrased when all the hottie firemen came.
They couldn't get a pulse or BP even on my legs.
So, I knew I was severly constricted.
The pain was so bad it was hard to keep still for them so I paced.
The poor lil' 12 year old hottie's eye's got as big as Oreo's when he couldn't get a pulse or BP.
The chief hottie knew what a brachial plexus compression was and kinda explained it to them.
And when he called the ambulance they were really careful and fast to get me to the ER.
When chief hottie sat with me in the ambulance the guys asked him what they should tell the ER.
He said, she has a brachial plexus compression with chronic pain and difficulty breathing. He laughed and said "like they are going to know what TOS or a brachial compression is".
He was right...as they called out here's the brachial plexus compression...take her to room..
The nurse came in and couldn't get a pulse or BP on my left.
Told her nicely not to go even think of attempting my right and got a real attitude and how we had to get a BP.
When my daughter explained to her the paramedics couldn't get a BP, TOS and the pain level she still had NO clue what we were talking about.

Lucikly, the ER doc was educated, called my PTP , didn't hesitate and ordered a morphene injection.
I was good to go within 20 minutes.
The good thing is...
Out of desperation my hubby found my new doc of PT

Moral of the story...
Have a cheat sheet on hand for emergency's of what TOS is for the uneducated along with ur medical hx.
xxoo

dabbo

07-16-2007, 12:50 PM

Thank you all for the advice! I didn't want to call an ambulance (i'd be embarassed) and i'm too stubborn to let anyone else drive me, which, in hindsight, was a dumb idea.

When I went to triage, they ask you all those questions. They were going to take my pulse on my left hand, and I told them they would be better off using the right side of me for everything. I walked them through the TOS/nerve compression explaination, and told them (per my "contract" with my PM doc) who I was seeing, and everything that I'm taking. Oh, and my RESTING pulse rate ws 122 (thats WAAAAAAAAAAAAAY high for me)... Then (3-4hrs later) I guess the doc didn't read a dang thing those nurses put in there. that being said, I'm waiting to hear back from my PM, and that is all good advice. I also plan on talking to the hosptial about the doc- not just the way he did or didn't treat me, but the fact that he looked at my chart so briefly as to think that I was TAKING Lyrica, when in fact I am allergic to it!!! :eek: get this- when I had that reaction, that was the SAME ER that I went to!!

Shelley

07-16-2007, 05:36 PM

Today I just need to hub all of you :grouphug: and be hugged back :grouphug: Thats all. Thanks

DDayMBB

07-16-2007, 06:20 PM

Dabbo... it is sad that you had to walk them through all the aspects of TOS, than what is even worse the doctor ignoring everything you so painstakingly covered with them! As far as drug seeking, I wonder just how many people looking to catch a buzz, would sit in a hospital ER on a Saturday for hours on end... when they could go out on the street and probably get something stronger than any doctor would ever dispense. Just think, we here with TOS and RSD are only a fraction of the people doctors see, how many others are walking around misdiagnosed, impropperly treated or are just told there is nothing is wrong with them! I consider myself very fortunate to have the team of doctors I do, some of these coordinated by Dr Togut.

gibbrn

07-16-2007, 07:20 PM

Dabbo,

What bunch of yahoo's!!!!!!! I can't believe what incompetence is rampant in the medical system! I being in Canada see it too, but I can see we are all suffering from a bunch of idiots who didn't bother to take the pain management class because of a hangover! they also missed the tos class or don't know what a brachial plexus is due to WHAT exactly....did they not take anatomy...ok brachial plexus.....ok compression..ok put them together what do you get ....TOS!!!!!!!!!!!!!!
I feel for you!!! Hope you are feeling better and can enjoy your baby girl:p again!!!

love and hugs,
Victoria:grouphug:

Jo*mar

07-16-2007, 08:31 PM

I want to pass on a big soft HUG to Shelley too!!
Are you having a bad time?? :(

:grouphug: :grouphug: SHELLEY:grouphug: :grouphug:

dabbo

07-16-2007, 09:07 PM

Shelley - I hope things are alright..... :grouphug: for you.

Shelley

07-16-2007, 09:36 PM

Thanks guys I just needed to gove and get a group hug.

Things are up and down.

I think I am going to decide to quit my thyroid. Its a troublemaker with the TOS and the neuro problems. Time to go. Scheduled surgery July 31st. :mad:

Jo*mar

07-16-2007, 10:15 PM

Thyroid surgery?? It's not cancerous or anything is it? Just malfunctioning??
My sis in law had a part of hers removed - I think because it was suspicious/prevention reason and C ran in her family- aunts, mother etc.

johannakat

07-16-2007, 10:24 PM

Hey i like that...quit your thyroid. Drop it like a bad habit.

*****BiG HUG******

to you from me too...

As for me, no surgery next week says the illustrious Dr Jordan, so that is that.. :(

and if anyone could keep their fingers crossed that Francie and I won't be visiting Miller children's in the wee hours of tonight/tomorrow , that would be cool too-she is not breathing well and has a very high fever, so I am not optimistic. :(

Jo*mar

07-17-2007, 01:16 AM

:grouphug: hugs to little Jkat:grouphug:

dawn3063

07-17-2007, 01:33 AM

Oh, No :thud: ...
Our Shelley..
Surgery, I know this is something that you need to have done.. You are in my prayers. Please keep us informed...

Johanna, BIG :grouphug: Hugs to you and your little one that she improves so that you don't have to visit childrens tonight...

Best wishes to all my TOS family for a low pain or best of all pain free days ahead... :circlelove:

:hug: & :Heart:
Dawn

Edelweiss

07-17-2007, 07:52 AM

wish to those who will have a surgery soon (thyroid,...) or an other treatment all the best.

To dabbo:
I am sorry for your experience but I think this is unfortunately a part of our way through medecine. I love it when they finally say "it is only a muscle contraction" or something like that. As I was in similar situations in the past as you describe it, I learned that I better call a therapist (physio, massage, or whatever...) and they help me more than some of the doctors I have met.
Poor dabbo! I hope your pains have calmed down and you can re-use your hand/arm.

My influenza is not a real one: it started in the thoat, changed into a caught and now it wants to live in my nose.
I am my own doctor in this case and I take homeopathic drops and of course a lot of vitamines - thank you for the link for vitamine C!!!!

We have about 35°C that means it is very very hot and everybody is complaining about this. This is topic n° 1 - as if we don`t have other problems....

Wish you all a very nice and good day
Barbara

dabbo

07-17-2007, 09:45 AM

Barb- I hope you get rid of that flu! It is about the same temperature in Memphis, and you're right- its HOT.

I hope everyone had/ has a good day!

johannakat

07-17-2007, 09:18 PM

:rolleyes: I am cautiously optimistic about the thyroid meds...spent all nite at chilren's (but jokitten seems to be OK) and yet i am feeling pretty energetic today. i even had to carry her a lot last night, and survived. wonder of wonder & miracle of miracles.

Barb feel better!!

Dabbo give your little girlie a big hug (preferably on the floor) tonight!!!!

happy evening to all...i am out-ty

johanna

gibbrn

07-18-2007, 12:34 PM

Hi guysm

on this anniversary of my 33ed year I would like to wish everyone a pain free day.....oh and last night I had to GUT two bathrooms cleaned from top to bottom!!!! Hell pain after the work! I took my nabilone and 1mg of zanaflex and lo and behold I was free like a bird ....ok I was stoned!!!! But I had minimal muscle spasm after the meds! So we shall see what becomes of the addition of this medicaiton nabilone!

love to all,
Victoria

Jo*mar

07-18-2007, 12:40 PM

Happy Birthday Victoria

you crazy gal:D
I do hope you can have a wonderful day to celebrate another year:)

dawn3063

07-18-2007, 01:10 PM

Happy Birthday Victoria... :Birthday: :icecream:

Celebrate in Style...
:hug: Dawn
http://i141.photobucket.com/albums/r58/Dawn3063/happybirthday.jpg

Shelley

07-18-2007, 04:29 PM

Yaaaaaa HAAAAAAAAAAAA thats cowboy talk...by the way. unum...but where are the cowboys you were sending?

Happy Birthday Victoria!!! :hug:

DDayMBB

07-19-2007, 12:40 AM

Happy B-day Victoria:Dancing-Chilli:

Barb-n-Dabbo... Personally I still have memories of -20 F snow drifts and body tied up in knots, how about a compromise of high 70's ;) ? Barb hope your cold passes quickly:OuttaHere:

Edelweiss

07-19-2007, 05:21 AM

wish a belated happy birthday to Victoria!!!!

say to Mark: oh this weather! It is always wrong - too hot or too cold.....
In my office room there are 28,6°C and it it 11:15 o´clock in the morning.
In this heat my cold has no chance and I feel better now but weak.

Wish you all a very good and agreable day!
Barbara

dabbo

07-19-2007, 12:08 PM

Mark - I'd settle for 70's in a heartbeat. mid-70's and sunny year round? that would be stellar.

Yesterday I..... went to my doc (thankfully!) He told me that in the future I would be better off calling him or his partner (whoever is on call) than going to the ER. Hopefully that doesn't happen for a while. SO, we spent a while talking about what happened on thursday. Then he examined me, and focused on my shoulder/shoulder blades. My left shoulderblade doesn't like to move smoothly. In fact, not surprisingly, nothing on my left side likes to move like it should anywho, we discussed botox injections, and decided to give it a whirl. Other than the EMG needle they used to determine where the injections go, it went pretty well i think. not too sore today. We'll see by next week how they go. I hope i hope i hope that this works. about the only "not good" thing from the doc was that he really doesn't want me picking up my daughter very much - especially out of the crib or off the floor - where you have to extend your arms all the way, etc. That is tough. I gave her a big hug and kiss yesterday.

belated happy birthday Victoria!

JoKat- i hope you get some rest and that JoKitten gets better....give her a big hug.

johannakat

07-19-2007, 04:10 PM

dabbo- littlest jokitten is getting decidedly better, thanks. When she moved out of the crib (early at about 14mo) we just put her mattress right on the floor, and if she needed it, a gate on the bedroom door. It works pretty well, and now i almost never have to pick her up. The only time things are a problem is if she is feeling uncooperative. We also have a wooden high chair with a foot rest, and from about 1 year on she has been climbing up into it herself. It is amazing what they can do for themselves when you empower them. We did so much of this earlier than i would have thought she could do it because i was so unable to do it for her, and she has done great.

I hope the botox works for you...brave of you to do it with no anestesia.

Johanna

PS, southern california is the best place in the world to live when you are a tosser. i love 70 degree weather. We have a great sofa bed if anyone needs to come visit. :)

LinJane

07-19-2007, 07:26 PM

Johanna, I have 4 children, 17, 15, 12 and 4. I did not have TOS until my now 12 year old was 3. It was difficult with dressing and bathing but I then had surgery which helped alot. I had my youngest with no difficulty. The problem became she loved to sleep with us! She has slept in bed with my husband and I since she was 2. It was too difficult for me with the back and forth. Yesterday my husband had surgery on his shoulder so I told her she had to sleep on the floor in her sleeping bag. She loved it! I hope this does not go on for long but at least I don't have a leg, knee, or elbow in my back! Good luck and God Bless. Linda

DDayMBB

07-21-2007, 12:55 AM

Dabbo, my Botox took a few weeks to kick in fully than only lasted like a month and half and than the results gained were not that impressive. Does this guy do trigger point injections also, I don't remember you saying anthing about it. Just my opinion, I found the trigger points to be more effective and surely more cost effecient as these are able to be given when the pain is at its highest and take effect immediately. They are given pretty much so in the same areas as the Botox and when given by a qualified person the pain is limited to none, especillay in comparison to what you are going through. Keeping my fingers crossed 4 U !!!

Hope ALL HAVE A SAFE PAIN FREE WEEKEND !!!

MARK~N~GOOBER

LinJane

07-21-2007, 10:02 AM

Just wanted to say it is a beautiful day here in NJ and am planning on spending it by the pool or in the hot tub. Hope everyone enjoys their Saturday and as pain free as possible.

Karen

07-21-2007, 05:38 PM

Hi! Thank you to everyone for making me feel so welcome! It is so nice to be able to talk to people who understand!! I really appreciate knowing that there are others out there.

Dabbo- my shoulders do not move smoothly either. They click click click click click for every minute movement. Every doctor I had found it puzzling until I started chiropractic treatment. My chiro said that it was because of the spasming in my neck and shoulders. He said that because all of the muscles were so tight, they were pulling my shoulders down, thus my arms were not moving smoothly in the sockets. It made sense to me, so I believed him. I have learned the hard way about believing doctors, though! (like we all have, I'm sure) Maybe that is what it is?

Hope everyone has a nice weekend!

DDayMBB

07-22-2007, 08:46 AM

Think it is safe to start doing a final count down to getting the pain pump... think it would be a real creul joke on either the doctors or insurance companies part to cancel it at this point <Wednesday is the day and being his OR schedule was open, requested 1st slot, will know on Tuesday afternoon as to what time to report to the hospital>.

Karen, it was basically the same site (Brain Talk), that I wondered across when I was first diagnosed with TOS which truthfully kept me sane **OK I NEVER WAS SANE, BUT THAT IS ANOTHER STORY**. Never did I feel alone and should I ask a question there was always somebody there with an answer! The out pouring of love and kindness, a place where I could come to laugh, share, explore, and vent led me to the point, where I consider the members an "extended family" !

dabbo

07-22-2007, 09:29 AM

JoKat- I had SoCal in mind when I thought of the mid-70's year round..... San Diego Forecast thru 2010: 75 and sunny, slight chance of afternoon showers. :D

Mark - I do hope that they get your pump implanted without a hitch.

I am up in NYC this week.....I'm writing this post from the Memphis airport 2.5hrs after my flight was supposed to leave. So instead of getting in at 11am, i won't g et there til 6 or 7pm. arrrrgh. stupid me forgot my little luggage roller at home. Oh well.... it could be worse. at least i remembered to bring my meds in my carry-on this time.

I hope everyone has a safe and enjoyable low-pain Sunday!

Edelweiss

07-23-2007, 06:08 AM

wish a good monday = a good start in this new week to everyone here!!!:)

From thursday to saturday, in the city where I live was a street-theater-clownery-acrobatic-fire spectacle and I love things like this very much. I was so tired and nevertheless, I wanted to see all the shows.
If you want to see some pictures:

http://www.pflasterspektakel.at/eng/157_197.asp (http://www.pflasterspektakel.at/eng/157_197.asp)

http://www.nachrichten.at/regional/574266 (http://www.nachrichten.at/regional/574266)
click on "Bildergalerie" to see some pictures, if you want.

I hope dabbo that you arrived without pain in spite of the delay.

Mark, I wish you all the best!!!

Very nice greetings to all members
Barbara

redjpwranglergirl

07-23-2007, 08:44 AM

A local Houston woman, 31 yrs. old, died over the weekend from cervical cancer that went untreated for 5 yrs. because the 5 doctors and one ER that she went to blew her off, because she was "too young to have 'anything' like cancer wrong with her' ". She first went to the drs. in severe pain and symptoms and had numerous abnormal pap smears. By the time it was caught it was too late to do anything to help her. Why is this all so familiar.....I know there are many good drs. and they're all human just like us, but....WHY DIDN'T ONE PERSON LISTEN TO HER"?!:mad:

DDayMBB

07-23-2007, 10:03 AM

Dabbo... I hope that your Botox gets a chance to work with all the stress of flying and carrying your baggage! If I can suggest, if th hotel has a hot tub or sauna do take advantage of them if not take some nice long warm soaks in the tub to give the injections a chance to work as you relax.. hopefully your delay did not last to much longer:Help: after you had posted!

Barb... seems as though there is always some form of bizzare, ethnic or cultural event that takes place within your nearby sorroundings every weekend, what a wonderful place... it is unfortunate that you are not always up to your best to enjoy the moment. Than again your resolve does not allow anything hold you back from experiencing what life has to offer truly you are an inspiration :You-Rock:

Red... that is an example of the worst kind of just how far the medical system fails ths patient. The first "other than NORMAL" or elevated Class PAP should have been a flag and persued, this with the pain she fell through the cracks and for this there is no excuse. We all need to speak up and be heard, if we went to a restaurant and a meal was not done properly one would send it back... health care need not be no different, we are the consumer, we can not let them intimidate us it could be a matter of life or death :Clever:

Lin Jane... just wondering if anybody heard how she made out with her appointment with Dr T on the 17th ???

DiMarie... have you made it out to any of the local bizzares, don't know about you but I luv the potato pancakes and haluski

Hope all have a good Monday !!! Mark~n~Goober

LinJane

07-23-2007, 11:20 AM

Mark, I made out ok with Dr. T. He gave me Skelaktin(?) and told me NOT to exercise or do PT. He gave me injections in my neck and shoulder. Hurt worse for a couple of days. Still about the same. Says the muscle in the back of my neck and shoulder are causing the pain. I'm just trying to be really careful. Thanks.

Hope everyone has a good day, Linda

shelliemac

07-24-2007, 08:51 AM

LinJane:

I've been taking Skelaxin for 6 years, since my car wreck. It works pretty good. You build up a tolerance for it after a while, so your mg will have to be increased eventually. I started out at 250 mg 4 x's a day and I was SOOOOO drowsy, but now I take 800 mg 2-3 x's a day and it helps the pain but I'm not drowsy.

LinJane

07-24-2007, 11:51 AM

Hi Shellie, Dr. T. gave me 800mg 2x per day but I only take it at night. I take percocet during day for pain and I cannot take anything else that will make me tired. I'm hoping atleast at night it will help the muscles. My husband just had surgery and is up at night so I am too. Still have to get kids up for their sports schedules in the early mornings. I'm tired by mid-afternoon. We do have a hot tub out by the pool so I'm going to try to get in today. Too bad you're all not close by, we could have a hot tub party! There's a bar out there too!

Dr. T also prescribed lidoderm patches. So far no relief but I thought I would give it a try.

Linda

gibbrn

07-24-2007, 02:13 PM

My computer issues sorted!!!!!!!!!!!! The online computer company....you can fill in the name you all know it! Has finally decided to help me with my issues after over 250days of poop with a capital P.....they are now going to exchange my cpu for a brand new one! Comparable......but now has VISTA a little scared about that one.....we shall see how it goes...as for backwards compatible...who knows......anyhow excited but now in hellish pain....

on phone for over an hour...didn't put the ;headset on and was bending or leaning forward in my chair to write on my lap....bad girl I know...ok about an 8/10 for pain!!!!!!! diazepam time with a few percocet for good measure! This hurts too so no more typing...

love to ya'll

I am off to Ontario to visit everyone except the evil parents..:eek: opps sorry just mother...can we have the dogs out please!!!!!!!!!!!!!! I leave on the weekend for my best girlfriends wedding! SOOOOO excited about it.
Problem is PLANES TRAINS AND AUTOMOBILES!!!!!!!!!!!!!!!!!!!!!!!!! eeekkkk

ok my cyber pals....take care today and don't over do it!!!!

love and hugs,
Victoria:hug:

johannakat

07-24-2007, 02:31 PM

are my bestest friends......

I stick them right on the spot by my upper left shoulder blade that hurts and hurts and hurts...

It doesn't totally go away, but since that is my greatest source of point pain i can use the lidoderm to reduce the oral med increase when it is really really bad.

Lin- a newer long acting pain med that Dr J prescribes a lot is called Opana ER. I have 10mg pills that I take 2 x a day (morning and night) it is a slow release pain med, and therefore no ups and downs like the shorter acting stuff. I have had a lot of good success with it, doesn't really make me drowsy, and no tylenol component (good for the liver).

I mention it specifically because nobody knows what it is when i mention it by name. It is actually just oxymorphone, which is another in the family of opiates (percocet is oxycodone+tylenol, vicodin is hydrocodone+tylenol) . It doesn't make me near as constipated as the other two types, either. :)

anyhow, just something to think about, I would encourage anyone to ask their doctor about it, it is new- I pay the non-formulary co-pay for it, but I really like it.

otherwise, having a tough day today...last week my kids were sick so they were home with me every day and i did a lot of stuff i am trying to avoid because they were just both so needy. Big sis had a soccer tourney this weekend so i spent the weekend alone with them as well since hubby had soccer duty :( Anyhow, I am really paying for it now. going for a massage this afternoon, so keep your fingers crossed for me.

I hope you are all feeling better than me.

Johanna

LinJane

07-24-2007, 07:14 PM

Johanna, hope you're feeling better. I am not thrilled with pain meds because I had a problem in 2001 with oxycontin. Anytime a doctor mentions it I bristle. I was on so many different meds that I don't even recall which ones. I KNOW they are necessary for pain but sometimes docs prescribe too easily and as me, the patient, say sure, whatever you say. I had to be admitted to Columbia Presbyterian for 2 weeks. I was admitted on September 10, 2001. I watched from my hospital window the second plane hit. What a kick in the you-know-what after they have taken you off of all medication and you are away from your family! Then finding out you know people who were there and were killed. Great detox and rehab.

Sorry for going on but sometimes it happens. Right now just taking percocet and skelexin. I think a glass of wine sounds good right now. First going to give my 4 year old a bath. Then get on pj's. Then maybe wine.

Linda

HopeLivesHere

07-24-2007, 11:24 PM

Victoria,
How frustrating, but it sounds like you may have a success story with your computer - finally.
An hour hunched over like that would make me into a twisty doll. I can relate to the aches and pains - hope that you are better now so you can have a wonderful time at your friends wedding. Take those meds & fly happy.
Sorry to hear things still bad with mom. That stinks. Meanwhile you have much to do.

Johanna,
Thanks for the reminder that those patches can go on my back too. When that knife starts stabbing my back, that is just the thing to use to help ease that horrible pain. I can't get it there myself so I'll have to remember when my husband comes home. I think Opana is a great alternative to Oxy.

Jane,
Sorry about the trauma of 9/11. Glad you shared it with us though and hope you are feeling better. Your words about the evening in pj's with a glass of wine make me relax. It's been a long time since I've had wine - hope it worked for you.

Barbara,
I thoroughly enjoyed the pictures of your festival. The weather looked like it was a perfect day. I'm sorry if you had to miss it.

Redjp
Your anger at the medical system is appropriate. When it fails a young woman who was obviously ill is horrible considering that with prompt treatment cervical cancer is curable. I hope that made the front page of a local paper. And how are you doing?

LinJane
Hope you find the right cocktail of meds so you'll feel better soon.
Skelaxin didn't work as well as zanaflax for me, but the dose had to increased gradually.

Best wishes to all,
:hug: Hope

redjpwranglergirl

07-25-2007, 12:24 AM

Hi Hope,
I'm doing pretty good- thanks for asking! More importantly, how are you?

Yes, that woman's death was totally unnecessary. She not only made the Houston Chronicle numerous times, she was also the subject of numerous reports and interviews on our local news. She was also ABC New's person of the week one time too.

DDayMBB

07-25-2007, 06:29 AM

LinJane...that is to ba to hear about the trigger point injections causing you more pain, normally when I am having spasms I will see him and him and he will inject anywhere from 4-8 spots and by time I reach the parking lot I can usually start to feel releif. Also, I can understand your fear about medications, after what you havve been through how devastating that must have been to witness first hand! In the beginning I was RX'ed Skelaxin, however I coud not take it as perscribed because it made me tiered and I was still driving a fuel tanker and the two just did not mix:eek:

Victoria... I hope for your sake that all the issues with your 'puter will be soon behind you and that all your travel plans go well>>> take a breath or 2 and maybe the same goes for a Valium or 2 with the parents **or just mother** ;)

Johanna... this Opana, is the stenghth similar to an percocet 10/325 or more so like an Oxy-contin 40mg? I and sure alot of others here like the idea of no extra acetominophen **bad for the liver** one could always take a tyelenol if need be. Hope you had a relaxing and rejuvenating message:cool:

Hope & Red... always a pleasure having the 2 of you pass through:)

DiMarie... carrying this over from another thread, I just wanted to tell you I hope you are able to enjoy your family gathering with the love and support of those whom are close to you!

Goober is starting to pace back and forth and I can feel him, I wasnt able to take my am Oxy and I do not report to the hospital till 9:30 surgery is supposed to be @10:00... I have a feeling I will not be in before noon and Goober will be screaming, though Mr/Ms anesthesia may be able to quell Goober in the mean time!

Oh well did way to much typing and do feel each and every key stroke... I wish each and eveyone a good pain free day Mark~n~Goober

Edelweiss

07-25-2007, 06:57 AM

send all the good vibes I have to Mark and I hope that the surgeon is in a good form!!!! ALL THE BEST WISHES FROM ME!!!!
Have you already thought about selling Goober on ebay - maybe someone is interested in a second-hand Goober????:Crazy 2:

I still have troubles with my shoulder but in 7 days I will go to the rehab-center and I hope to find relief there.

Wish a very good day to all!
Barbara

gibbrn

07-25-2007, 02:40 PM

Hi Mark,

Best of luck and I hope that you will be able to tame goober!!!!!!!!!!!!!!!!
No pain no gain as seen in another post!!!!!!!

love and hugs,
Victoria:hug:

gibbrn

07-26-2007, 03:56 PM

Hi Ya'll,
I have a lot of concern over the fact that people are feeling judged here. I have said it before in a previous post to which I felt was harsh and judging.... Check the judgment at the door this is a support forum!!!!!!!!!!!!!!!!!!!!!!!!!
Today I pray for the peace and sanity for all to be able to support each other with our thoughts and experiences and allow all to express their thoughts......and take them with a grain of salt if they are felt as judging.....we are all human yes, but we are not always understanding what may be asked with a question and of course tone of voice and concern can't be conveyed except by words.....and they have the ability to be misunderstood or misinterpreted.

Love to all and peace to all
:grouphug:
Victoria

johannakat

07-26-2007, 05:07 PM

Johanna... this Opana, is the stenghth similar to an percocet 10/325 or more so like an Oxy-contin 40mg? I and sure alot of others here like the idea of no extra acetominophen **bad for the liver** one could always take a tyelenol if need be. Hope you had a relaxing and rejuvenating message:cool:

OK, I asked the pahrmacist about this when it was first prescribed. I am calibrated in Vicodin equivalents because that's what I started on. Opana is a ~12 hour long release medication, vicodin is of course a short acting med ~4hours for me (your metabolism can make it different for you!)

I am usign these as a base- but I think both percocet and vicodin come in different strengths, so check yours.

vicodin= hydrocodone 5mg/tylenol 500mg
percocet=5 mg oxycodone/325mg tylenol
Opana ER= 10mg oxymorphone

1 10mg Opana ER = ~4 vicodin over 12 hours (or 20mg hydrocodone)

1 10mg Opana ER= ~3 percocet over 12 hours (or 15mg oxycodone )

I am not as sure about the percocet, as I only asked the pharmacist directly about the vicodin. I also don't really know anything about oxycontin as I have never been on it.

The opana is a lot easier on my stomach and my bowels than taking the equivalent vicodin. Also, since it is a different kind of opiate, a person may react differently to it than to hydrocodone or oxycodone as in vicodin or percocet.

** disclaimer: I am pretty sure about this, but I am just an engineer- not a pharmacist ask your doctor for more info!!!**

I am just suggesting that using opana in place of a short acting medicine, if you are taking it regularly, is a lot easier on me in terms of rememebring to take it and in the way it hits my system (much smoother delivery on the long acting med)

as always- you have to do what works for you, but i have found that many doctors are not familiar with Opana because it is new. The fact that Dr Jordan likes it so much is meaningful to me because I really trust his judgement. So I offer it just as something that people may not know is out there for them.

have a great afternoon...off to the chiro.

Johanna

PS, Opana ER also comes in 5mg and 20mg strengths. I was taking 20's 2x a day right after surgery, but now I take a 10 mg 1 or 2x/day depending on how bad i feel.

gibbrn

07-26-2007, 07:48 PM

Hi guys,

Check this site out and see if you can plug your meds in to see what it would be in other meds.......
http://www.medcalc.com/narcotics.html

Take care
love and hugs,
Victoria

phoebe

07-26-2007, 08:33 PM

I'm thinking of Mark and hope old Goober has taken a hike. :) phoebe

dabbo

07-26-2007, 09:31 PM

Am "packing" my stuff to go home. I use the term packing lightly though.... the airline lost my luggage and then found it and then gave it to a delivery company who promptly...... LOST IT. and then gave me the runaround until Tuesday morning. So, I don't have my luggage, and that means that haven't had my meds since tuesday night. In case something like that happened, I split my meds up so that if one bag were lost or stolen, I wouldn't be up that creek until the bag was returned- never thought they would lose (totally lose) my bag. I couldn't have them sent up here, since by the time that i realized the bag was gone, they would have gotten here as I was leaving. Pharmacies won't take an out of state prescription over the phone, and there's no way in h-e-l-l that i would go to the ER in NYC. arrgggggggggghhhhhh.... I guess the only "good" part about that is I got to buy new clothes (one set at a time) from Century 21 - which is one of the coolest stores i've been to. anyways .....
Mark - I hope that this all goes smoothly for you and Goober will butt out!
Victoria- I hope that the new computer from "that" company shows up quickly and works well!
Everyone else- I hope you have a good, pain free week/weekend.

johannakat

07-26-2007, 09:57 PM

Hi guys,

Check this site out and see if you can plug your meds in to see what it would be in other meds.......
http://www.medcalc.com/narcotics.html

Take care
love and hugs,
Victoria

Victoria- really cool! thanks!

The oxymorphone is only given as IV. The mg must be different than oral like opana somehow? It looks like it is off by some factor- The calculator says 10mg of oxymorphone=50-100mg oxycodone...but it should be something like 20.

if you have any ideas ?

gibbrn

07-26-2007, 10:12 PM

Here is another one

http://www.globalrph.com/narcoticonv.htm
http://www.thatspoppycock.com/l_calc.htm
maybe these will help???

love and hugs,
Victoria:hug::hug:

Edelweiss

07-27-2007, 02:07 AM

..hope that dabbo already has got his meds - what a pitty with the luggage!!!
I am so sorry for you, as I think working and travelling with TOS is already heavy enough and then this problem with the luggage.
I keep my fingers crossed for you.

..wish again all the best to Mark

..wish to Victoria that she can get relief with the meds!

And to all readers and writers here I wish a nice friday and hope you will enjoy the weekend.

Barbara

DDayMBB

07-27-2007, 08:33 AM

Victoria... I could live and let live :) also with check judgement in at the door (or was that "sanity") I checked that in at 1981 :eek:

Johanna... the breakdown seems reasonable enough , at least from the one I know (the percocet) the opana sill sounds promissing though
OxyContin10mg=10mg oxycodone over 12hr
percocet 10/325 10mg oxycodone 325 acetomenophen
If you are looking to avoid the tyelenol with the effect of the percocet, though these are not for occasional use from my undestanding...

Dabbo... hey dabbo who needs a pharmacy you are in NYC you need but visit your street corner dude:D next time bext you do your meds carry on!

I want to thank everybody for there wishes, my surgery went off without a hitch! I got home yesterday and have to report that Goober is still hanging out with me they are not bringing my pump fully online (right now itis just dripping enough to keep the line clear and open) for a few weeks the surgeon will not sign me over to pain management till I heel. All in all the surgical site does or did not hurt being manipulated in the OR caused flres in my TOS and RSD, so actually I did not feel any pain at the surgery site s, my biggest woories are pulling the pump out of place or shunt out of my spine so esy goes it.

Enough typing thought would let ya'all know I was still kickick... hope all are doin fine Mark~n~GOOBER

DiMarie

07-27-2007, 02:59 PM

Hi Mark, I am down at the son's with Connor but just caught up on the forum to see if you posted. Glad your doing OK.
Everyday from now is a gain.

I have been getting more carpal tunnel and elbow pain helping with the grandson, but son needs shoulder surgery and can not care for Connor. I am so exhausted. Tomorrow they want to take a train ride...I want to sleep all day.

I hope everyone can have an enjoyable weekend, the weather behaves, no flares and rest for the weary.
Di

LinJane

07-27-2007, 04:44 PM

Mark, glad everything came out ok. Hope you feel better soon!!

Linda

gibbrn

07-28-2007, 06:04 PM

Hi everybody.....

hi mark glad to hear that you are doing well...u are in my prayers and thoughts.

I am finally in Ontario after a long flight in which I could not sit still....HATE travel with tos.....thank God for percocet and fentanyl as well as diazepam my best muscle relaxant friend....in a hell of a flare since I moved, but feel worse now...and more travel to come....

on a happpy happy note now seeing my Dh's nephew...mine too despite the no ring on MY finger yet..lol....I am called aunty victoria......David is amazing makes me want to get off all meds have a baby and go back on all meds again.....lol :eek: Love babies want one soooooooooooooooooooooo badly...not for lack of trying I can assure you.....eekkkkkkk sorry guys.....

K enough said..

love to you all have a stress free weekend and keep the smiles on your faces and the the stresses in their places...

love and hugs,:hug:
Victoria

redjpwranglergirl

07-28-2007, 07:36 PM

Mark,
Just stopping by to see how your day has gone and hoping that you're feeling much better!

dorrie

07-28-2007, 10:07 PM

Today I...feel alot better than I did yesterday!! That is a really good thing!

phoebe

07-29-2007, 08:34 PM

I want to tell Mark I'm so glad the worst is over hopefully and that Goober will slowly be titrated out of your life.

To everyone else have a good Sunday night and a wonderful week. :) phoebe

DiMarie

07-29-2007, 09:27 PM

Up here in the N. E. town, land of Goober, we have him caught in a bear trap...he is not happy, but roped in...
Hang in there Mark,
di

phoebe

07-29-2007, 11:07 PM

I knew Goober could be caught, and I figured he'd be caught in your area.
YeeeeeeeHaaaaaw! :D phoebe

johannakat

07-30-2007, 03:53 AM

Victoria- ah yes a baby...they are soft cuddly and wonderful all at the same time yet requiring in their everyday care every movement that we as TOSsers try to avoid- the lifting, bending, etc.

this is a conundrum- i think botox accompanied by c- section might be the only really good way to go when preggers (though i haven't actually asked any of my docs if it is possible to do when preggers, only figure that is it most likely not to be harmful or at least less harmful than so many other things that we take, and if there is already strong medical evidence to the contrary, well, i haven't looked for it so don't quote me too much) or maybe you'd just need to hire your own hellerwork "nanny" to take care of you each day :rolleyes:

In any case, I am sure my life would be so much easier without my little guys, but it would so so much less fulfilling. I sure hope you are able to figure that one out for yourself. Definitely ask your docs about the botox possibility, i am curious.

i mean, even if you don't plan on it today, you'll want to figure it out for someday, right? Always good to look ahead. :hug:

Mark - I continue to think of you and hope for your successful healing so they can turn that sucker of a pump on adn put goober out to pasture....

to everyone else a happy night-

relax and let the stress fly out the window, guys. deep belley breathing- take in the warm summer sun and let it radiate through you :cool:

Johanna

DDayMBB

07-30-2007, 08:24 AM

standing up is still a bit intresting, as you notice I have not been around. have to call the dotor today, I get a tad dizzy than ears start ringing and pressure in sinus area hope it is just the spine only being played with !!! other than that the incisions look real good and the staples on my stomach and back should be out in no time !!!

Sorry to cut it short... going back to lie down hope all have a good day Mark~n~Goober

LinJane

07-30-2007, 09:55 AM

Mark, Glad to hear from you. Continue to get better and don't over do.

VictoriaWhen I had my first three children I did not have TOS. After my surgery I became pregnant with my fourth and scheduled a C-section so as not to aggravate my neck. Worked out very well. I did not experience any TOS symptoms while pregnant and had been off all meds for some time before. She was unplanned, but, has been the best thing for our family. We thought the novelty of her would have worn off with the other kids after awhile but it hasn't. We laugh at her every day! The oldest is 17, then 15, 12 and the little one 4. Nothing is impossible! I had wanted a 4th very badly but had given up. I was actually on the pill when I got pregnant! Miracles do happen.
Hope everyone has a good day

Best of luck. Linda

olecyn

07-30-2007, 11:42 AM

Now that we have technlogy back
I need to work on ALL my legal paper work with the help of the fam
So much to ctach up on and so much for the new attorneys.
YIKES
I dread it cause I'm going to flare just gathering paper work.
Gotta get over it and live to feel better
Not live to work on legal crap.
I hate CA W/C, the ins co, CAL Pers

dabbo

07-30-2007, 01:42 PM

I hope everyone is having a good Monday, and had a good weekend! Sorry that i've been complaining so much lately. We had almost 3 months that were great- no nerve blocks, pain as under control as we've gotten it, and then BANG, that went away. Its a little upsetting to see what little gains i think we've made swept away like that. You add the last 3-4 weekends in there (ER, Migrane, travelling, then back home), and its just been crappy (i coudln't thing of a better word). Anyways... back in town now, trying to get hold of Doc so we can talk about what to do.
Mark- I hope they get tht pump turned on so you can kick goober to the curb :D
Victoria- I think JoKat is spot-on with what she said about kids- they're sweet and loving and cuddly, but picking them up enivitably requires reaching in some way that you really shouldn't.
Barb- I hope that you feel better and were able to go to that festival near (or in?) your town. At least, I think there was a festival last weekend.

One positive thing i "think" i can contribute.... my wife did natural childbirth using the Bradley Method. That taught ME alot of controlled breathing, focused relaxation techniques. It required alot of practice, but i've found them to be very helpful. Anywho.....

gibbrn

07-31-2007, 12:54 AM

ok ya'll

I have had my first nasty pm....I was told to go an do the f thing....lol who in there right mind has the energy to type that in this forum.........

life is short and so I say go have fun and enjoy each and every thing....why do we get upset at things said for education for others??? ok nough said least I get this taken away......I am saddened to see nastyness in the world today.....

love to ya'll and good luck Shellie!!!!!!!!!!!!!!!!!1
love and hugs,
Victoria

Edelweiss

07-31-2007, 09:53 AM

don`t have much time, but I wanted to say "hello" to everyone.
Tomorrow, I am off work to prepare my luggage and on thursday I will go to the rehabilitation center for 21 days. Hope that my shoulder and TOS problems will be better there.
I am 11 weeks post op and my shoulder still hurts. With the multiple therapies I will get there, I hope i will feel better afterwards.

To all my dear "familiy" members, I hope that all of you can have a good time without pain or other troubles.

All the best,
Barbara
PS: I don`t know if the internetpoint works there, so maybe I will be absent for a while...

LinJane

07-31-2007, 10:56 AM

Barbara Best of luck and I hope you get the relief your looking for. Hope will have access while away but otherwise, post when you return.

Linda:)

shelliemac

07-31-2007, 11:03 AM

Good luck with therapy, I hope everything goes well and that your pain becomes manageable. I will be thinking of you and praying for you.

astern

07-31-2007, 02:22 PM

Good Luck Barbara! hope you get the rest and therapy you need to recover!
:hug:

Anne

HopeLivesHere

07-31-2007, 06:07 PM

Barbara,
I'm so happy for you. It does sound as if medical care in Austria is excellent. I'd love to go away for 21 mos of therapy. Ah, but I am dreaming. Let's pray this does the trick for you. Hope

redjpwranglergirl

07-31-2007, 06:09 PM

LinJane

07-31-2007, 06:48 PM

Today I took my 4 year old daughter swimming. Now we are going to play go fish which I taught her last night. These are the times you forget about the pain. Life can be great, it's finding the time.

dorrie

07-31-2007, 07:14 PM

Today I am going to go camping! My hubby and the kids are there already. We do not go too far from home so that we can still get to soccer games. I am off work tomorrow so I am staying with them tonight and coming home tomorrow night! I have not been camping in about 30 years!!!!! I cannot wait to swim and relax....hopefully catch a tan...I am as white as a ghost!!:eek:

LinJane

07-31-2007, 07:47 PM

dorrie, I think that is great, have a great time camping. I let my daughter win the first game of "go fish" but I won the second. Have to teach them that they do not win every time! I like being here for friendship and support. Medical information is great. Just not something I can provide. I am not a camper. If it doesn't have a bathroom or electricity I am not there! Not even in my backyard!

dorrie

07-31-2007, 07:59 PM

Hi LinJane! I guess I will find out tonight if I am a camper!! I like the idea of relaxing....no hair and makeup worries and lots of sun and water....but...no airconditioning:eek: and I sleep with a fan blowing on me!!!:eek: :eek: I think I will take my melatonin tonight...it makes me sleep good!!! I read that you have 4 kids...wow! I have 2...21 and 17 and 2 stepchildren 10 and 8 a step grandson 5 and a grandaughter who is 6 months old and a wonderful 47 year old hubby! I do not know alot about TOS...I do know that you go thru alot of pain and I am sorry for that. My thing on here is diabetes type2. I also post all over including alcoholism, weightloss and depression. Gotta go as the guys are coming to pick me up soon. Have fun laying cards with your daughter. I will check in tomorrow night to see who the winner of the evening was! Take Care LinJane...nice chatting with you:hug: Dorrie:)

dabbo

07-31-2007, 09:38 PM

Dorrie and Lin- if I haven't said it.. .welcome, and glad you found us! Dorrie- I am jealous that you are going camping. I LOVE it. We went camping 3-4 times a year growing up. Now, I help out with my scout troop, so I could go as often as 10 times a year. In fact, 13 months ago, we started talking about a week long backpacking trip. The 7 days turned into 5, but then this nasty thing flared up (I gotta think of a nickname like Mark did....) and I had to tell them that I couldn't go. Anyways, 3 adults and 8 kids are headed over to the Ozarks to backpack. I envy them.... so relaxing to get out there and just enjoy nature.

DDayMBB

07-31-2007, 09:51 PM

Barb... keep us posted if you can if not know you will be in our thoughts and we will await your return !!!
My best to all... sorry still can not sit up for any period of time without my ears starting to ring, so minding my P's-n-Q's until later everyone !!!! Mark~n~Goober:rolleyes:

johannakat

07-31-2007, 10:29 PM

barb- goo dluck and have fun!!

Mark- glad to know you are hanging int here, can't wait for you to feel great-

dabbo- i am with you, a true camper. my biggest disappointment re: TOS is knowing that i will not be able to carry a backpack. i once took an 8 day trip from the west side of the sierra to the east, culminating with the top of Mt whitney. ah, those were the days. glad i went to do it when i had the chance.

linjane- have fun with the cards and your daughter- they do help you to forget...they're so sweet and cute :)

happy night to all, i am off for family dinner with the food throwing maniacs that are my kids...keep your fingers crossed for my dining room walls tonight- lasagna!!!

gibbrn

08-01-2007, 10:42 AM

hi to all,

I am really a lucky person to have such a great support here and I say thanks to all for being here and sharing the go fish games and the camping and pain and family and life.....this is why I feel I know you, you share your good bad and ugly here and we know how to help and talk to each other.....my life went from feeling insane to ok I am not insane......because of here!!!!!!!!!!!!!!!!

Love you all:grouphug:
Victoria

LinJane

08-01-2007, 11:59 AM

I know Victoria, it does help to know there are others with the same, and sometimes very different problems. By the way, we tied in go-fish. She's getting good though. We try to have a family game night. We play poker and everyone wears sun glasses, even the little one. We'll see who wins tonight. Linda

DiMarie

08-02-2007, 01:16 AM

glad to read all, Mark glad you are posting and doing Ok.
Hey JohannaKat...how about a belt, with a bungie cord to a rolling back pack...Or I could let you borrow my rollator walker taht climbs rocks and cats,

Going on a job interview tomorrow, It will be in addition to the casework I do. It is an advocate for children with ADHD, Aspergures, beahvioral problems. I will be the person overseeing so no cracks to fall through. From the pediatrician, to teachers, to aide adn special classes and home.....

With all I ahve seen and been through don;t know of much that could surprize me in life. The most probmatic cases at work are referred to me and my supervisor says work your magic!

It si in God's hands if it si right. The pay, the hours,
It was nice when the head called me today to set up an interview if I was still interested had a voice you use when speaking with coworkers over coffee. Not progfessional to the point, but a nice voice. I don;t know if it is her personality and loves this work, or she was impressed with my resume and looking forward to meeting me, but I liked talking to her.

I hope it is meant to be to help with income to the home. But, not over do my body....
I do want to keep my job though....I love working with these families. Some of the cases I have, 90% Iare so bad, still with us a year later. Two are in jail, one recently got out and never saw the little girl.

Sorry for not fixing typos, I better get the dragon out and go downstairs when on the puter to save my self...
OH we may have a heat wave Mark, three days about 90* finally!!!!!
love yo you all
di

johannakat

08-02-2007, 01:41 AM

Oh DI I hope it works out for you- how rewarding to be able to do the work you do- I think you know it- it seems to come through in your posts that you get satisfaction from providing this special service to families who need some way some how to get time together.

as for backpacking, i think maybe a llama will eventually be my solution :)

vic and linjane- to know we are not alone in the world is all important. THANKS for being around for the rest of us.

nite nite all,
sweet dreams (though i know none of you will see this till tomorrow!)

Johanna

LinJane

08-02-2007, 10:04 AM

DiYou have always been around to help. When I had my surgery in 2000 you were there for me on the site. I was in PA for about 7 days and I knew if I needed someone, you were there. If anyone is qualified for the work it is you. I am sure you will get the job.

As noted, the east coast is having a heat wave!! Hooray!! My husband and I own a heating and air conditioning company so this means broken a/c and my guys working and hopefully making money! This is what we count on is a busy summer. Today I think I will do nothing. I worked my tail off yesterday and am paying for it today. Atleast got in the hot tub last night. That helps alot.

Linda

johannakat

08-02-2007, 12:06 PM

OK, so I am trying to come to grips with this...but yesterday, I think super joyce might have very politely labeled me exercise intolerant.:Bawling:

she told me that since i had my range of motion back that all she was doing was helping me maintain what i had- and that what i needed was strengthening, but that clearly i could not just go to the gym because my body didn't seem to be able to handle that. She has tried to give me so many different exercises modifying them to accomodate my weaknesses, and i just can't seem to do them, even gently, without really wrecking myself.

she didn't kick me out the door, exactly, but she wants me to leave her and start seeing a PT who is a feldenkrais practitioner :Bawling:

i am not taking this news very well. the 'there isn't any more improvement to get,' and 'learn to work with what you have' part, basically. i was really hoping there was going to be more to do for my back...it still hurts so much every day :Bawling::Bawling::Bawling::Bawling:

we had talked about the feldenkrais guy before, and i guess i just assumed that i would continue to see both of them....:Sigh: but that doesn't seem to be what she has in mind.

I have been trying to figure out since yesterday why this is bothering me so much....and I think it is that i have just put so much faith in her, she the only doctor or practitioner that i have simply trusted outright- no questions asked. There was some real mental relief associated with that that I am not prepared to give up trying to figure out if I can trust someone new. :confused:

anyhow, just venting. no one here (at home) really understands why i am so dissapointed about this, but i thought maybe you guys could.

got to get moving and take francie for a docs appt....so i'll have to check in later.

Shell- if you get a chance to check in today i have been thinking about you but since my in-laws got here yesterday i haven't had a second to think...but I hope you are hanging in there and comfy at home by now :Heart:

later everyone

Johanna

shelliemac

08-02-2007, 12:38 PM

Johanna--

So sorry to hear your news. I know that must be very frustrating and heart-wrenching for you. As much as we've all been through, going from Dr. to doctor, and practitioner to practitioner, one after the other and when you can finally trust someone... it's so hard to lose that person. Try to continue doing some exercises on your own... things that she is taught you and shown you during your time together. There's an old saying that friends come and go in our life some stay for a long time, some only a short time but each serves his purpose in our lives. Don't look at this as the end, there is always room for improvement. Paraplegics have walked when the doctors said there's no hope, and the terminally ill have survived. I believe in you, and we're here to support you. Don't ever give up on yourself and always keep on trying.

We all love you very much!

:Heart: :circlelove: :Heart: :circlelove: :Heart:

DDayMBB

08-02-2007, 12:41 PM

Johanna... I hope everything works out well with your PT dilema:confused: , maybe you can get the best of both going for you!

Victoria... the true way to maintain sanity is through insanity :D , or just saying what the hey and going for it!

Di... best of luck with your venture, hope politics do not play a factor God knows how our local system works!!!

LinJane... the company I drove for did HVAC and I did some installs for extra bucks, those poor buggers crawling around in the attics... than again it is their gain as well as yours when busy:) sounds like we might have another two weeks of this warm, so try and take some time out to relax

Got my staples out today (yeah) still the site on my back is very itchy and try and scratch with TOS **right**. Still taking all my oral meds, my pump is only ddripping, enough to keep the line open.. they are going to start turning it up next week and weaning me off my other meds (scarey).
The ring and headaches are finally gone, however not over doing... no bending, stretching, driving etc... I am fortunate to have a supportive wife that helps me through and when needed spanks me (OK verbal reprimand LMFAOROF)!!!

Enough typing going numb so wishing all well and hoep soon will be able to sign off without the addition of the bastard **GOOBER:icon_evil: **

Mark~n~Goober

LinJane

08-02-2007, 06:06 PM

MarkIt's nice to hear from you. We won't get into the spanking. You sound good. I remember when my husband had staples on his leg and I had to wash and blow dry the incission. How gross! My guys complain about the attics and crawl spaces but they are paid VERY well and we are, I have to say, really good bosses. Actually, sometimes too good.

I have been using icy/hot on my shoulder at night and when I wake up, I'm in less pain then normal. Trying to go in the hot tub a couple of times a day. It does help. Still I have to say, lately I am very bitchy at home and not sure why. Maybe because no one helps like they should. I have to take a trip to south jersey tomorrow with kids and my mother-in-law. Love her but she wanted to take my daughter to a specific store and I don't trust her driving. She's horrible. So I have to go to drive as if I wanted to go so I know my daughter is safe. I may be paranoid but I think over 80 should have a drivers test. Also she recently broke her hip and had surgery. I watch her walk and get nervous and I am supposed to let her drive my daughter?? I don't think so. I am a little over protective but, hey, they are mine!!

Sorry. Thanks for listening. Linda

johannakat

08-02-2007, 06:09 PM

sorry Linda, yes, I started driving a little earlier than i'd have liked after surgery bc i didn't trust my mom driving the kids around. There is just a lot more traffic and lanes around us than where she lives, plus we have a big hunky van- she is used to something much smaller. yikes.

you're a good mom to watch out so carefully for your kiddo's :)

LinJane

08-02-2007, 07:22 PM

JohannaIt's terrible but true. I've been in the car with my mother-in-law and she will stop driving to look at somthing on the side of the road. She has backed into fire hydrants and other cars and acts like it is no big deal. No one wants to tell her she can't drive. I hate to say it but when she broke her hip, I was hoping that would be the end. No way. She has not driven any of my children in 5 years. I make an excuse every time. Kind of annoys me that I have to but, they are more important. Luckily she only lives 10 minutes away. I don't even like my 17 year old daughter driving! I have to get over that one. She is very good though. She and my boys are good for a Block Buster run. She doesn't like going much further. Thank God.

My 4 year old has invisible friends. They are ballerinas with very interesting names. Makes life fun. Usually we have a pretend birthday party for one of them each day.

Linda

redjpwranglergirl

08-02-2007, 07:51 PM

My mother's driving....I once bought her a bumper sticker that said, "if you don't like my driving, get off the sidewalk", (seriously).

johannakat

08-02-2007, 09:00 PM

you guys are LOL funny :) :p :rolleyes: :D

Well, I met the new feldenkrais PT this PM and he seems very well informed and pretty cool- maybe this is just what i need after all, and Joyce really IS looking out for me. Maybe I am like a baby bird that needed a good shove out 'the nest.

and the part where he is less than a mile from home and takes my insurance (vs 12 miles of traffic away and out-of-network) ain't so bad, either.

I'll have to dig up the feldenkrais thread to read up and add my comments once i get into it. :)

he did tell me i should get a

BUCKWHEAT PILLOW

so vic- Looking forward to that deal you were going to work on :cool:

LinJane

08-02-2007, 09:18 PM

I still need to know the deal with this pillow??? Sleeping with a husband who weighs about 250 and a very demanding 4 year old daughter who will not sleep in her bed, I need any help I can get!! Please, I have Dora pillow cases in my room!! I bet most of you do not even know who Dora is!

Let me know the deal with pillows and what makes them special. Would love something new. thanks, Linda

johannakat

08-03-2007, 12:16 AM

Linda- According to new feldenkrais guy, they conform to your head very well, kind of like the smooshy pillows- except even more supportive for your head/neck, or wherever you put them.

dabbo

08-03-2007, 12:35 AM

Which pillows are these? the buckwheat ones Victoria mentioned?

Red- I LOVE that sticker....maybe i'll get one for myself :D

JoKat- Good luck with your transition.... i think the right attitude will help lots.
Di- Good luck with the interview- I think it'd be a good fit for you, and I hope the hours etc work out well.
Mark- you're in my thoughts and prayers as they start to wean you off the oral meds and onto the pump. I hope that this continues to go well.
Shelley- :poke: get better and have some :icecream:
Peg- I hope you're doing well... havent heard from you in a while....
Everyone else- take care!!!

johannakat

08-03-2007, 12:25 PM

am relieved that Joyce says I can still come to see her if i want :)

"there's always SOMETHING to work on," she says....and aint that the truth!!! I am so broken :Sigh:

LinJane

08-03-2007, 06:36 PM

Today I actually bought material and a pattern to make my 4 year old a dress! I haven't sewn in years and then I don't even recall what I made. My 17 year old daughter is a great seamstress along with my mother-in-law. We went to a store for my daughter to get material for a project and I found the easiest pattern I could find. I told daughter #1 she may have to help me but at least I am going to try.

Still hot here in NJ. Hope everyone has good plans for the weekend. Mine are to do nothing. I am finding that trying to baby my shoulder is helping. If I can get this muscle to get out of spasm I believe the symptoms should subside.

Thanks for listening! Linda

Sea Pines 50

08-04-2007, 12:06 AM

today i finally got to speak to my darling daughter, chelsea, about her follow-up visit the other day with her (our) hepatologist over at USC, dr. donovan, re the results of her recent liver biopsy, which was performed to determine the amount of damage the hep 'C' virus has wreaked so that she can make an informed decision concerning possible course of tx...

ahem: she has absolutely NO fibrosis or inflammation in her liver, you guys!!!---:)

i have been so stressed out about this, for weeks:eek:. the most likely source of the virus for her being "household exposure," you can only imagine the guilt i feel for having given my only child hepatitis 'C'. (your mother probably gave you milk & cookies. not chelsea's mom! nooooo.) the fact that i didn't do it on purpose is neither here nor there, it still SUCKS.

but this is a huge relief. best news i've had in i can't remember how long and so of course i had to share it with my TOS forum family.

i have never ever posted on this thread before.

now i suppose i have no excuse whatsoever not to go forward with pursuing thinking about thinking about getting a re-do, i guess. hey, anyone wanna hook up with me in denver? maybe in the fall, i'm thinkin'... too hot right now!:rolleyes:

think i'll call and make appointments with drs. ahn, brantigan, sanders and (maybe) weaver. probably will look up that heartthrob steve annest too while i'm at it...

unfortunately, i've managed to outsmart myself once again and gone and lost my medical records. so now i have to start reconstructing everything. sheesh

meds and surgery, surgery and meds. the last resort of the feeble and feint of heart. i am such a loser....

NOT

just overjoyed at the news about chelsea's liver. as i type this, she is on her way to rosarito with her daddy, brother, uncle, cousin et al to celebrate in a little casita they rent every summer. felicidades are definitely in order for my little tapatilla this weekend. ole!:Thank you: holy, mole, even!

hope you all are staying cool and hanging in as best you can. see you in the fun zone, kidz.:cool:

alison
"Be Brave"

redjpwranglergirl

08-04-2007, 12:24 AM

AWESOME news, Alison! I know this feels like the weight of the world off of you.

johannakat

08-04-2007, 12:56 AM

:hug: to alison :) :D :cool: :p :D

milk and cookies are overrated, anyhow :rolleyes:

dabbo

08-04-2007, 02:12 AM

Great news allison- you have to be so relieved (not even sure that word comes CLOSE though)

LinJane

08-04-2007, 09:59 AM

AlisonNothing like good news about your kids. My son had viral meningitis this winter and was out of school for 2 months. He was in 6th grade. Spent time with neoro's,MRI's, Spinal taps, and all the fun that goes with it. Actually there was a problem with the tap. They hit a nerve and did not withdraw fluid. He was in pain for a long time FROM the tap. We had a tutor but it's not the same. I am so happy you got good news on your daughter! Best wishes, Linda

PS. I like the Today I... thread. It is nice to share. Good or bad.

LinJane

08-04-2007, 10:00 AM

Marksince you started this thread, I think you should be the 1000 poster. Where are you? You doing ok? Hope you are feeling better.

Linda

Horizontal One

08-04-2007, 11:21 AM

:grouphug: HI from little me. I have been trying to keep up to date but wow so many new threads, new replies and I just cannot keep up. I have skimmed thru and want to say

All thiise had surgery...hope al things went ok and you are recovering well. I gather Mark is progressing in getting goober to "move house" now that he has pain punp installed. Best wishes Mark.

DiMarie - good luck with interview.

Gibbrn...best wishes and I pron=mise that card soon. Motivation down plus pain up so no crafting.

Good news re Chelseas liver biopsy.

Sorry can only mention a few, but I forget quickly. I am missing so much and sorry not contributing much bit time goes quickly. Have been battling a chest infection.....went away for a short break. It was fun but exhausting and at least the weather was kind to us as fed up like some of you with the persistent rain. Flooding has been bad here, we have been fortumate. My sympathies and wishes to anyone flooded etc. And have just heard about the bridge collapse in Minniapolis- how frightening and awful. I hope the casulaties are only a few....I am lost for words. So many horrible things going on in the world.

Anyway..best wishes everyone...I am now going to finish unpacking and then rest, then I must catch up with things.

Oh yes..going to try some hypnosis to help with pain..nothing ventured nothing gained. By doctor in medical pratice...if helps take away some of the nauseating pain away even for a bit then it will be worth it. Still no word re my other specialist referral. I keep hoping that it will come in the mail but no...just bills and junk mail.

Take care all.

Hx:)

dabbo

08-08-2007, 09:57 AM

Today I..... am going back to the chiro to hear their treatment plan, but am not sure if i'll let them tweak me. I'm afraid that they'll tweak me into outer space.

Also, Today I decided that I'm going back to the basics. I pulled out my copy of Managing Pain Before it Manages You, and re-copied all the pain diaries, relaxation results, etc.

I know I'm prone to over-analyzation, but I realized that when I stopped that, and stopped paying attention to what hurts, how it hurts, and when, I started to hurt more and more often. I also fell into a prolonged "funk." I think that some of this was I allowed my pain to control me, instead of doing what I could to keep it in check. So, we'll see. There IS only so much that I/we can do, and part of the problem before (I think) was that I put too much emphasis on me and me alone fixing me.

anyways..... I hope everyone is doing well today!!

Edelweiss

08-09-2007, 04:06 AM

say hello to you all!
The internetpoint was out of order and so I could not write until now.
I have a lot of different therapies: individual physical therapy, water therapy, lymphatic massage, normal massage, microampere, energy therapy, and so on... the art is the find a compromise between shoulder training and TOS (they call it Te-O-Es here, I always say TOS in one word, funny) but most of the time I work on the coordination of my scapula, who is completly un-coordinated after surgery.
I have an "angel" of therapist who has a big repertoir of methodes and so I hope I will profite a max here.
In the afternoon, Ican have a siesta - this is luxury for me.

I scrolled through you conversations and as I can`t reply to all, I wish all the best to my extended family members and I hope things will be ok!
All the best and sunny greetings from carinthia
Barbara

Jo*mar

08-09-2007, 01:47 PM

Just a Hello to all.

was called away due to a urgent family emergency in another state for the last week and a half.
BIL had terminal cancer {lungs/liver} - {quick moving or he ignored it until it was to late for any treatment}
-he passed away at a friends home - peacefully it seemed, like falling asleep.
Just wanted to let you know where I have been.

These situations - it really opens your eyes to getting a will or a trust set up as well as any final wishes in writing -and getting all finances and papers in order. His were not.:(
So I'm going to be working on those things I did some of mine last night.

Quicken has a prg that you can download called Will Maker - I'm sure there are other prgs out there too, but I had just bought Quicken Deluxe 2007 in February and the Will Maker prg comes with it as a free download.
So far it seems very easy to use and you can add comments and detailed wishes as you go along.