Today I.....

[mtnmom]

Momz - please call your local domestic violence center. The people there are trained to assist women like you and Im sure they can help and offer suggestions. Best of luck. :hug:

[KLS2007]

Today I am trying to figure out how to get out of this mess I am in. I hate my life! I hate having TOS! I just hate it all!

I now with that I would'[ve stayed single years ago and never remarried. I went from a bad marriage to a worse one. I seem to find the controlling men. I don't know how to get out of this one though. I managed to get out of my first marriage because I was working back then. Now, I'm now working, can't drive, and have no money. I want badly to get away from the hell I'm in. I just don't know how. I got in a huge fight with my husband...ick I hate that word now. Last night, it was awful...again he can never admit he's wrong and again it started a huge fight! Well I hit him and then he kicked me ..so hard I can't walk today. Also I tried to get my keys to get away and he yanked them from me..hard. They were in my right hand. I probably have everything screwed up now in my neck and shoulder. I am in excruciating pain now. It's also in different places then it was in. I just give up. ALso, this has now begun on the left side and the PT noticed it. I have a huge mess. The PT couldn't even do anything with me yet.

I want to leave but I can't lift my suitcase. I have no family here other than my kids. I have my son here and my daughter with my ex. Sheesh, what a mess. I am still on lots of meds. I don't know what to do. The only place I can go is Florida. But I need my meds so how do I go there? My husband took my keys away so i can't drive so now I'm stuck ..can't walk, hurting badly and hating life! I am sorry to vent here but I don't know what to do. I at least had another bedroom to move my stuff too and that's where I'm at now. I can't even look at him..I hate him so much for what he's done. I hate him!

I am tired of dealing with all this crap. I can't get better either..I only get worse. Now what?

I am so sorry Momz to hear that you are in such a situation. I was in an abusive marriage for over 20 years before finally getting out and if you need to talk, feel free to PM me at anytime. Go thru your phone book and find someplace that deals with victims of domestic violence, they can connect you with local resources that may be able to help you out of your situation.

[Dolfinz]

Momz....Just wanted to say that I too have been there and done that...

Please let us know how you are ! We are all here to help and listen ! :hug:

Dolfinz

[beth]

Momz,

Don't agitate him, let him feel like he's "won". Don't want you getting hurt any more than you have already! Pack underthings and a change of clothes in a light back with credit cards, ID and any cash you can put your hands on.
If you think you can get your keys when he falls asleep, fine. Otherwise, get out while he's at work, call a cab if needed. Go to ATM or bank first and get as much cash as allowed, or enough for a week or two anyway. Call a women's shelter or go to the YWCA or police and ask for shelter. These people can accompany you back to get the rest of your things, place an order of protection/restraint, help you file a complaint (which you SHOULD do, so this is already on his record and he'll think twice before coming after you again. Let him off scott free and he'll think you will do so again, and again!) Once you have a safe base, you can make some firm plans for your future, but first, you have to get OUT.

PLEASE get moving and let us know you are ok!!

beth :hug:

[hairdresser]

Momz; I'm sorry for all your going through. You sound like you are a strong person. You also sound like it's time for changes in your life. I wish I could be of more use to you other than just saying I care, but know when things turn physical it's time for help. We are all here for support momz, we want to know that your ok.

[dabbo]

Momz- I am SO sorry for what you are going through. I can't imagine. If there is anything I can do to help, at all, please PM me. You are in my thoughts and prayers, that you will find the right resolution.
:hug: dabbo

[momzpeachy]

Thanks to all of you who replied and thanks for your concerns. My life sucks! No two ways about it. I am married to a controlling jackass! I seem to have that kind of luck. He is very threatening and verbally abusive. He has been to the kids at times also. I'm sick of it! i didn't leave the night of the fight because I was too dam afraid to leave. Funny, he's trying to play the innocent card and how he was in "danger" from me...yea ok..well if he was in so much danger...why didn't he leave??????????? I know he keeps saying how stupid I am but uh...he's the one who can drive and get away if hes in so much DANGER! He has always made threats that if I were to leave...he would make up all kinds of stories on how I'm so mean to him. But he hasn't gone anywhere...always here wanting sex and attention from me. But yet I'm so mean to him. He always leaves out the parts about how mean he is to me! How he makes up so many lies! How he is so controlling! We had a fight a few weeks ago because I wanted to take online classes..but he said because "I'm his wife , he had to agree to it". I feel like i'mhis dam slave. He seems to forget what century this is! He now wants to claim he was in so much danger because I was throwing things...yea I threw things...I was PISSED. He was verbally abusive and then took my keys away! He could've...he has 2 cars here! What a jerk! He can never be wrong..EVER...even when proven wrong by other people. He thinks he's a saint and he wants control over EVERYTHING! He has now claimed he gets at least half of my workmans comp...ever since this started..that's all he's thought about. The $$$$....he would talk and talk abouthow much money "we will get" but uh..think he meant how much he will get! He has forgotten about the paiin and HELL i've been through for over a year..oh and yea surgery! He's never gone through anything like this! Now he is accusing me of faking being disabled...but yet I can't drive. He hasn't given one ounce about me and what I'm going through! He has only wanted money ..which is JUST SICK! I almost hope the workmans comp case doesn't pan out at this point. I dont' care anymore...especiallysince he thinks it's his! He didn't do MY job...didn't get the injury and doesn't have the pain! he claims he's been supporting me...well yea guess he has. Workman's comp doesnt cover much anyways other than lost wages and medical expenses. Oh, and I was only working PArt time! We bought our house solely on HIS income! My income was the extra spending money which he stated over and over! he even said "it's a good thing we didnt buy the house using your income". He's just pissed cause he can't do all the things HE wants to do! Oh, and no extra spending money! Well sucks...cause I can't do the things I WANT TO DO EITHER! probably never will again!!
I am in another room of the house staying FAR away from him! I actually like it...until I figure out what I'm doing. I need PT and meds but not sure how to do this. I have no way of getting to my appts. I need transportation or I have to move back to Florida and stay with my mother. Then all my stuff is here and it causes a real pain in the ....! Not sure what to do ..trying to plan things out. I am just so disgusted with the man I married.

Please email me with any suggestions. Thanks.

[astern]

Momz: sounds like you have a Narcissist on your hands. Learn how to protect yourself from battle here (http://www.healthyplace.com/Communities/Personality_Disorders/narcissism/faq_index.html).

I was in a similar situation with ex 3: he said I would only leave this marriage in a body bag. He told all his friends that too and posted it on the internet! :eek: He was controlling, but not smart enough to pass off his illogical reasoning to me - which pissed him off and made him close to violent.

If you ever want to talk, PM me and I'll give you my phone #. Do what Beth says above - involve as many people (authorities) as possible - there is help out there for you if you ask the right people (police/therapist/social worker/battered womens shelters).

And you DEFINATELY want to be apart from him when the w/c goes thru.

:hug:
Anne

[Jo*mar]

Some helpful links-

http://www.ci.madison.wi.us/POLICE/domviosafetyplan.html
http://www.ci.madison.wi.us/POLICE/domvioleaving.html
http://www.therapistlocator.net/families/Consumer_Updates/Domestic_violence.asp
http://www.google.com/search?hl=en&q=preparing+to+leave+a+marriage&btnG=Google+Search

[mucker]

Hi there Momz i am sorry to hear about your family but for god sakes get the hell out. I come from a broken home my dad remarried and so did my mother my step mother physically and mental abused me from the age of 8 to the age of 16. My mothers husband did not hurt us just our feelings because they had a child together and he would tell my mom that we weren't his so he was not taken us any where. But the damage from them was they were very physical with one another and we had to listen and watch them fight and i can tell you right now it was no fun growing up. It took me a long time to deal with the pain i went though and i hate to hear or see other kids go through this kind of abuse if you wont leave him for your self then do it for the kids they don't deserve to live a life of that kind of ****. My sister end up marrying a abuse of man she left him several times going to shelters for woman finely they got through to her and she left him for good she is now happily married to her second husband. And i thank god every day that she left before he killed her or hurt one of the kids. I truly believe there is always a way out you just have to make your mind up and do it there are no excuses any more there is help in every town you walk if you have to call a family member or a friend or call the cops they will come and get you take to a shelter and they will help you figure out what to do and don't they have any welfare there you do what you have to. I am sorry if i sound pushy or rude but i just get so upset when i hear about men or woman and kids who are being abused because i have been there and even though i am in my forties now i remember it like yesterday. I wish you the best and hope and pray he don't hurt you any more:hug:

[LinJane]

Momz. Just here again to make sure you know how much we all care. You need to get out if possible. Please keep us all posted so we know you are ok. Linda

[marabunta]

Momz,
I just have to say "DITTO" to all the above.
WE ARE ALL HERE FOR YOU.
I had similar surgery to yours a month earlier.
I finally got off the opiates last week and I'm still in excruciating pain if I try to do anything at all. Was up all night due to too much PT and finally took a Norco a few hours ago. :(
My wife's due with baby #2 in June and I can't bear the thought of the physical pain holding our newborn will probably bring. It's just not right.

Gotta run, our 19mo will be up in an hour & the least I can do for my migraine-suffering wife is watch the baby for a few hours in the morning, especially since I kept her up just trying to get comfortable all night. Won't be more than a quick breakfast ,then maybe 101 Dalmations will amuse her and cheer me up a bit before my wife can get up and play with her outside:)

[DDayMBB]

Momz... regardless, physical or psych it does not matter nobody should ever have to go through this in life.... and the abuse one harbors is not related to gender. My thoughts and prayers have been with all and hope all might feel a reprieve with their pain and may tomorrow be brighter for all!!!

Mark~N~GOOBER

[DDayMBB]

Wishing all a peaceful day of reflection and may
the faults we have commited be washed away
in his sake. And my prayer unto one and all is to
have a day free of pain! Unto later, my best to
you and yours... Mark~n~Goober

[Jo*mar]

Happy Easter

Have a wonderful day :grouphug:
Hopefully it will be a pain free day for all:cool:

[ozzy14]

Today we heard the terrible news that our community has lost another little boy. Our friends 2 year old grandson passed away this morning. He drowned in the backyard pool. We are so upset. My daugher was close to him and would see him at the childcare centre she works at. What a senseless death.

Rest in peace little Bryce. We love and miss you buddy.

Ozzy

[Dolfinz]

Hi all ...

Happy Easter.. Hope everyone has a great day today ! I am happy because my father came thru his Bypass Surgery Monday but he is dealing with the after effects... my mom is soo tired ! But hopefully he will be going home some time this week. It's been a heart wrenching week for me with this surgery . I am leaving for Florida April 2 to go down and help !

My son is still moved out and so far he says he is doing o.k. and happy.. so good for him ?? ( It's so quite here now )

Hairdresser hope your folks are doing better. Momz hope things are going o.k. for you ! Ozzy so sorry to hear of your greif . Everyone else I hope you have a Painfree week and Painfree holiday !

Hugs to everyone.....:hug:

Dolfinz

[Horizontal One]

:)...thinking about you all in my quiet time, reflecting on the kindness and help offered by you all.

Hx

[Jo*mar]

this was slipping down the page- so i thought I'd say a hello.
we're getting some late season snow flurries here, but the temps are in the 30*-48* range so not too bad.

I hope everyone is doing as well as possible.
:grouphug:

[johannakat]

Today i am happy because it is only one more week until spring break vacation to Yosemite. I do think i might have to invest in yet another sleeping pad to be able to stand it, (each year i seem to need the bigger, cushier model ) but it is a small price to pay for sleeping in the outdoors and waking up to a sunrise over half dome.

I do miss the days when my hubby and me could throw on our packs and venture out into the wilderness. There is really nothing like being totally alone in the mountains, but i think i might be stuck settling with car camping for many years to come, at least until the kids are old enough to carry their stuff and mine too!!! :rolleyes:

Just for good atmosphere, here is a pic of one of my babies from last year's trip....

Peace and happy almost april to everyone :)


http://farm3.static.flickr.com/2384/2372346462_794f8c55b5.jpg

[dabbo]

have fun at Yosemite!! I'm jealous!
I haven't been around much, but i've been kinda busy. We were going to move to a house, so we put our condo on the market. thankfully, it sold right away. Last week tho, I was offered a job in Nashville. Soooo now, instead of moving to the 'burbs, we're looking in nashville. and, we are out of the condo in 2.5 days. a "little" busy.

[LinJane]

Dabbo I'm sure you must be busy. Moving is a real hassle, espcially when you are under a time limit. Good Luck!

I am doing the typically tax stuff that we all dread.

My daughter, has decided on going to LIM in the fall so now it is all the paperwork and financial information. I really didn't want her inNYC but she will be only1 1/2 to 2 hour trip door to door. This is going to be sooo hard for me. I can't imagine her not being here! And my youngest goes to Kindergarten. What adjustments.

Hope everyone has a great weekend! Linda

[mtnmom]

Hi everyone! I've been quite busy too. Things are slowing down here in the mountains and ski season will be wrapping up soon, despite the fact that there is plenty of snow still and more to come tonight - about a foot they say...

This weekend Im headed to Moab, Utah (it is so beautiful there!) for our annual spring break mountain bike trip. Im getting excited and hope that my arm/shoulder holds up!

[hairdresser]

Today I went to the hospital to visit Dad. He was admitted on the 29th of Feb, with pleural effusion. Had a vats procedure done, developed infection,and a blood clot in his lung. These complications resulted in a fight to survive. He still has a chest tube in, with never ending drainage.Antibiotics on going. I go to the hospital almost every day. All these complications and no diagnosis for the fluid. He is able to breathe now without oxygen, but any exerion leaves him breathless.My Mom is disabled so I help her through the day and in the afternoon I visit Dad. Monday when I woke up my hand was swollen and red. I always have burning and some swelling but this is one uguly looking hand. Still waiting for a wc decision from my appeal hearing. Life is rough but love and God must keep me going, because I'm exhausted!! So hello to everyone it's been awhile. May pain levels be low, and life full.

[DDayMBB]

Today I went to the hospital to visit Dad. He was admitted on the 29th of Feb, with pleural effusion. Had a vats procedure done, developed infection,and a blood clot in his lung. These complications resulted in a fight to survive. He still has a chest tube in, with never ending drainage.Antibiotics on going. I go to the hospital almost every day. All these complications and no diagnosis for the fluid. He is able to breathe now without oxygen, but any exerion leaves him breathless.My Mom is disabled so I help her through the day and in the afternoon I visit Dad. Monday when I woke up my hand was swollen and red. I always have burning and some swelling but this is one uguly looking hand. Still waiting for a wc decision from my appeal hearing. Life is rough but love and God must keep me going, because I'm exhausted!! So hello to everyone it's been awhile. May pain levels be low, and life full.

You have quitq a battle with your dad, Though I am worried about your hands.... I hope you have been taking pictures of them I place mine on white paper and list left, Right time and date. Helped out in my SSD case< WC are gangsterts from day one.

[dabbo]

hairdresser- i'm sorry to hear about your dad. That must be so stressful. I hope and pray that they find what is causing the fluid. I hope your WC appeal goes well.

Mark- its good to hear from you!!

The other day I had a tension release massage or something like that. It was pretty much a lymphatic massage. WOW! it felt great. my arm felt so much lighter and looser for a little while.

[cindyj]

Aww sorry to hear about your dad hun , the stress sure won't be helping you at all.As for WC ,don't give up!! Hubby had a spinal injury at work in 1994, we fought for 9 long, poverty stricken years and finally got a settlement in 2003. It paid the 9 yrs of debt and now he recieves monthly, less than what he made back in 1994. But at least its something.
Pleural effusion is what happened to me after my tos surgery. I was sent home from emergency twice after being told my laboured agonizing breathing was just form my surgery grr. 2 days later i was rushed in , and they put in a chest tube and drained 2 and half litres out of my chest, my lung had collapsed form all the fluid. I have never fully recovered from it and its been 15 months.Tell your dad to keep demanding they find the reason, so they don't just drain it and send him home. I feel for him, that chest tube caused me more agony than the surgery itself and it caused alot of nerve pain on the edge of my rib cage. Istill have terrible pain and swelling there everyday.I will keep you and your dad in my prayers hun. We just got thru 6 weeks of radiation with my dad. He just finished 2 days before Easter.He had a tumour behind his tonsil,so the radiation has burnt him alot, he's doing well as far as the doctors are concerned,but it sure has been rough on him.Its been very hard to see him so sick.His treatment was 100 miles away,so he had to stay there all week and came home on weekends.We tried to go for a visit every week while he was there but the travel was very hard on me and I had another surgery the week he started, so its been a rough time.But as everyone here knows, a rough time has become the norm for most of us.Im thankful the 6 weks are over,he still has a long road ahead of him so now we are just praying that it worked.
well i needed to stop typing 20minutes ago so i guess i better stop.
hugs and prayers for all of you, take care ,cindy

[tshadow]

I enjoyed peeking in today to read how everyone is doing.


My pain is in a lower cycle, more headaches, but having an "up" with other symptoms going bad.

Check in with you guys soon. God bless you all.

[johannakat]

Hairdresser and Cindy - you and your families are in my thoughts. I am sorry you have been having such a hard time of it. :hug:Actually Cindy i was wondering how you were doing, we haven't heard from you in so long.


Mark and Tam- nice to see you around!

Dabbo- I sure hope you have a place to stay :)

We have returned from vacation and I am wiped but it was worth it. Mountains are such a great recharge for my batteries..

hope everyone else out there is doing well.

[dabbo]

just checking in.... hotel during the week, back home to the family on the weekends. its taking its toll on me- sleep is tough, etc. that, and the 200 mile trek home and then back is wearing me down. not good for the pain! hopefully we'll get settled soon...
i hope all are doing well!

[DDayMBB]

Today I pass along my wishes that al are of good health !!! I was wondering if anybody has had a class 2 (percocet) filled in different state than their own? I have been visiting a friend in florida and need a script filled... it would be of the same pharmacy chain !?!
Peace to all Mark~GOOBER~N~ERIC

[Jo*mar]

Hi Mark, Hi dabbo and everybody.
Just waiting for some more spring warmth to come to Oregon- it keeps teasing us:) and then still gets chilly at nite.

[Horizontal One]

I just wanted to say hello to old friends and new ones. Yesterday was a nice warm spring day here and today is dark and raining. Spring is here but in fits and starts. The lawns have had their first cut and the gardens look happier for it. The year seems to be going by so quick.

Also good news I have another lovely nephew, well great nephew. My brothers daughter gave him a new grandson in the night. :)

Best wishes everyone

Hx:grouphug:

[tshadow]

Pain was going down for a month and a half, thanks to home aide doing a lot.

No hunger at all. (But no weight loss. No exercise.)

Very sleepy.

Then, I took a bath, and the pain in the arms just started going up, up, up....

So I write this to show the cycles that this TOS goes through.

If you're working, you're cycling very fast, up and down very few days or even just UP, UP.

God bless.

[HopeLivesHere]

Hello to everyone...I have been gone so long but I'll explain later. I had to spend lots time reading up on how everyone is doing.

Momz, I'm sorry to read of your situation at home.
I hope you are safe and everything gets worked out in the best
possible way for you & that you are in a better place now.
OC Grl, great resources !

Hairdresser, I know what a difficult year you've had. You will be rewarded
for your compassion and kindness. I pray your parents will be healed soon.

Dabbo, Congrats on the new job..hope it is going well?

Di, sorry your burdens are so heavy. I can tell from your post you're
a compassionate mom. Guilt-such a toxic emotion.

Johanna, I'm glad you got away to Yosemite!! It's so peaceful there. I hope things are going well for your family now. Your husband and you are a lovely couple. Nothing should come between the love I saw between you & hubby.

LinJane, glad you had such nice vacation -

I know (in a different way) how our kids can break our heart. My son has been very sick for a couple months (years actually) and he lives so far away - i have to trust things will work out for the best

sorry i can't get everyone in here - but I've missed you all...
I too have the stomach & respiratory problems. Mostly it hurts to breathe so
I breathe shallow so Pecs are tight. They were so sore from day 1.
GOOD NEWS:
I've been gone for some time now due to the birth of MY grandson (in March) - it's sad they don't live near us. My daughter had a c-section.
I was able to be in the Operating Rm. She hemorrhaged, losing 1/2 the blood in her body - it was
strange how I felt no emotion about that. Everyone is OK now.

I've had my pump for almost a year now and it has been a life saver
& allowed me to be with her, baby & dh. The pump relieves a lot of
the rsd burn but not so much tos sx.
Right now everything is flared but I expect a week of rest will help
me get back to where I was. I do fear I may have caused some rsd spread because I feel burning and prickly pain in places I didn't before going.

Sorry this is long...trying to make up for long absence.
I hope everyone has a low pain weekend.....Hope

[DiMarie]

Today I pass along my wishes that al are of good health !!! I was wondering if anybody has had a class 2 (percocet) filled in different state than their own? I have been visiting a friend in florida and need a script filled... it would be of the same pharmacy chain !?!
Peace to all Mark~GOOBER~N~ERIC

Hi Mark,
I had my percocette filled at Walgreens in Fl. No problems. Forgot them the trip two years ago. Soak up some rays you lucky guy.

I miss everyone and keeping up. The emotional strain sometimes just take strenght from my heart to deal with life.

DeAnne's Birthday would have been yesterday and i had to clean out her home this week, No help physically from the family. Oh, when the TV fell on me husband picked me up, left the TV upside down in a heap.

I hate that I am not here as much, I have so much sadness, most days I stay up at night and sleep all day until I work.
My Katie has not been in school since Feb. Anexity, being bullied, so it is therapist, tutoing, now home schooled, I am on healthier days investagating for a Cyber school program. I do not think she will do middle school in Sept, maybe half days as the year goes on.

Need to change ehr therapist, my younger son with the heart problems and seizures is seeing a new doctor now, still no answer for the real bad full seizure s going on. Not working.....
My oldest son settled w/c, no ssdi info yet for his hearing. He has had shoudler surgery so tons of me watching grandson.

Then we are fighting a fraud against our homee equity, suing to take our home. Sold it to a second company unknow to us, paying the first company...
Even after we paid off the loan, they did not ever hold assignment to our loan but are now went after the assignment two weeks after our payoff saying we own them $10,000 in legal fees.
We are part of a class action suit against them for the fraud, but it is draining us.

Big warning about how homes are sto;e out from under you and you would never know it...that was us. But I founs out. They used a wrong address and town but our deed to try and gain title to our home.
Confusing, but I am unable to handle one more stress....

And miss my girl so very much......
O want to take Katie to Washington DC a few days.....just to get away there is a local bus trip to the smithstonian....
I am a mess, but I love you all here, and pray for everyone.
I read, wish I had more to give.
Just send a prayer for our family as I pray for you all. Sorry for typos, using the laptop, and sheding a few tears......
di

[Jo*mar]

I was just thinking about the ones that haven't posted for awhile- and some of you appear:D

I hope better days for all of you soon and peace in your hearts:Heart:

[johannakat]

I hope that summer can bring some warmth to your heart, Di....so much you have on your plate. :hug:

Hope- I have missed you, too...hoe WONDERFUL that you were ablt to go and be such a part of your grandson's birth. It was clear when we last met that you missed your kids very much. Brightens my day to know you had a chance to be with them. :)


I miss all of you ... I am somehow entirely too busy at my kids' school to get a chance to come on here much.

Hello, and hugs, adn sunny warm thoughts and feelign to all.

Johanna

[dabbo]

Di- I am so sorry to read about your new troubles. I wanted to let you know that you inspire me through your actions in dealing with everything, and still managing to find time to help others. THANK YOU!!!! :hug:

Mark - i'm glad that you got that taken care of, and i'm jealous your in Florida! enjoy!

JKat- like you, i've somehow been busy/too tired to get on the internet much lately.

Peg and Shelley smelley - i hope you are well- long time no talkie.

Quick update - this is my 5th or 6th week at the new job. so far, so good. we moved into our house up here in mid TN - that was and is a pain. lugging boxes around just hurts. anyways- gotta get up in 5.5 hours.
take care all...
:grouphug:
dabbo

[Shelley]

Smelly Shelley here! :p:D

'Sup peeps?

I read alot here but have not posted much.

:grouphug::grouphug: for the room.

[dabbo]

I don't remember the last time this thread went a week w/o a post....
Today I - took my car BACK to the shop. I picked it up yesterday after they replaced the fuel pump that they said was bad. - ouch. I can't figure out why, but i'm sore as crap. I need to be more ergonomically aware at work... Anyways- I hope that everyone is doing well.

[trixlynn]

saw my surgeon and got the results from my last round of tests. I have "exuberant" growth of scar tissue. This has resulted in a worsening of symptoms. The Dr. says he will not operate again, as anything he tries to do now would only make me worse. He says the scar tissue is too entwined.
Lovely!
He is going to send me for a series of diagnostic blocks to see which has the better chances of helping control the pain. He is also sending me to see his favorite pain specialist. He feels that I will likely be like this for the rest of my life.

[Jo*mar]

To bad they can't laser out or dissolve that darn scar tissue:(.
Maybe some day they will come up with something for it...

I've been enjoying the spring weather, we had a mini heat wave last week.
I got most of my garden in :D & things are sprouting already

[johannakat]

To bad they can't laser out or dissolve that darn scar tissue:(.
Maybe some day they will come up with something for it...




Dr Jordan and Dr Ahn do Amalayse (sp?) blocks.

I know allison had one once...sent her into a massive flare to have it, and not sure if it helped after or not.

Botox could probably still be helpful...? And/or BP blocks liek the one cyn just had.

(Cyn, your description of the BP block sounded very much like what i feel like after botox...)

[tshadow]

I LOVED Botox - they injected little injections (not painful) all over my neck, back and upper arms even. They tried one side first - it was great and my so-called normal side clearly showed symptoms. Later they did the other. Finally they did both so I could benefit fully.

I am going to ask with the new doc if they can do that again. I NEVER realized until then how much my muscles were spasming.

And since I'd had Botox in my forehead a few times, I wasn't allergic, etc. BUT, you MUST make sure you doc is reputable and the brand of Botox isn't a cheap imitation.

[DDayMBB]

I LOVED Botox - they injected little injections (not painful) all over my neck, back and upper arms even. They tried one side first - it was great and my so-called normal side clearly showed symptoms. Later they did the other. Finally they did both so I could benefit fully.

I am going to ask with the new doc if they can do that again. I NEVER realized until then how much my muscles were spasming.

And since I'd had Botox in my forehead a few times, I wasn't allergic, etc. BUT, you MUST make sure you doc is reputable and the brand of Botox isn't a cheap imitation.


Ih

I Have to agree with Tam on this though theamount of time it hd take to work was about 21/2-3 weeks thanit worked for appx. 8 week any releif is worth it!!!!

Today I would like to wish a healthy pain free day.... Mark<Goober<Eric

[johannakat]

I find a little massage light therapy a ~day after the injections helps them kick in faster.


:)

cheers and low pain to all

Johanna

[Shelley]

Hi guys,

Back to Super Joyce the PT for me. Last 6 weeks or so I have been having trouble with my left arm and raising it up. The right is where I had my scalenectomy. BUt for some reason the left is becoming weak. I can raise the right straight up but the left maybe 3/4 and I look like I am hailing Hitler.

ON another note, the spine guy did find some interesting stuff. I have a subluxed C6 disc. Its a 3mm retrolithesis meaning unstable and the degree of angulation or something he said was 30% higher than it should be. It is what flares by spinal root nerves.

He said its livable and teo keep going until it really bothers me. It is waht is contributing to my left arm weakness. He said they fix it with an ACDF...spinal fusion.

Otherwise the rest of me is fairly under control... it is me we are talking about :D

Happy Memorial weekend everyone. :grouphug:

[neverending]

Just want to say How grateful I am to have found this forum and know that I am not alone in my battle with TOS.

Neverending

[dabbo]

Happy Memorial Day to all....

Shelley - i'm sorry to hear about your back :( ... try to keep it under control (like stop stealing people's seats or poking them :D )

Jkat is right - a massage a day or 2 after botox injections seems to help dramtically with the soreness. i think it also helps "work it into" the area. even if it took 3-4 weeks to kick in, its worth it i think for 8 weeks of relief.

[mtnmom]

Good morning! Spent the weekend doing some stuff around the house - painting the guest room, resanding (with an electric hand held sander) and re-painting my front porch, staining a log bench... My forarm looks like Popeyes today. TOS and home improvement projects dont mix! :)

[Jo*mar]

Yeah mtmom, I know what you mean.
I'm sitting here with my muscle stim on:) , mostly upper back/shoulders sore {so far anyway:cool:}, we did a lot of projects this weekend too.

[gibbrn]

Hi ya'll!!

Hope all are doing the best they can.....and surviving another day with TOS.
Trying to do more walking but it is difficult and I am wearing a pedometer to count my steps...great thing...check out walkingspree.com and see what I am up to. It tracks my food intake as well as all activity I am able to do and charts my walking and how many steps I take....ok I suck.......I am at about 3000 to 4000 a day...not a lot. but you'd be surprised how many steps you take in your house!!

blessings and prays to all in pain and struggling.
Love and hugs,
Victoria:hug::hug:

[Shelley]

Hi All,

Well today I went back to Super Joyce PT. The spine doc that dx the C6 subluxation/retrolitthesis sent me.

I ahave been having trouble raising my left arm and it is painful. Was great to see Joyce but she was like :eek::eek::eek: when she saw the range of motion in my left shoulder/arm....lost like 40%.

So she called it frozen shoulder which I am off to google. Anyone have any experience with it? Suggestions?

[Peg24]

Hi SHelley,

Sorry to hear you are having some problems.

Yes, I have had frozen shoulder once back before my surgery and its rough. Very painful.

Mine came from babying the arm on my TOS and not using it.

Love Ya,

Peggy

[marabunta]

...finally was able to raise my left arm over my head!

It's been almost 6 months since surgery! From out of the OR on 12/6/2007 until April 30th, I could only raise my left arm to my chin. During this time I've been in physical therapy twice a week for assisted range-of-motion and performed daily range of motion exercises.
In March I also had 3 weeks of strengthening that had to be aborted as the nerves weren't ready yet.

On 4/30 I could finally touch my forehead. The next day I could touch the top of my head. Then no progress at all until yesterday afternoon. I could suddenly raise my arm! It was hard to do and heavy to lift, but I could do it again today. I'm having to really limit myself from trying to do more, I can't afford a flare at all right now. My wife's due with our second child in 11 days (or less) and our 21mo daughter is getting more adventurous every day!

[dabbo]

Marabunta- congratulations on the progress!! Its great to read that. I know what you mean about an adventerous 21mo old... my daughter is about that age. Cute as a button, but into EVERYTHING.
Today is the 2nd day in a row i've had a migraine. i had to leave work early yesterday b/c of that one. yeccccch.

[gibbrn]

Well I finally had my physical from my great doc here in Calgary and got 18/18 spots for fibromyalgia positive!!!!!!!!!!!!!!
What the Hell????
Ok hard enough thinking you have tos never mind fibro as well!!!

So now I have to see a rhumatologist sp?? my mind has gone to hell and left me behind a shell of a person with no brain power anymore!!!! ahhhh

well that's my update hope you all have a pain free weekend and lots of fun!
love and hugs to ya''ll
Victoria:grouphug::grouphug:

[Jo*mar]

Ohh Vic,
At least there might be some sort of comfort to know another reason for why you have been feeling so cruddy all this time?? Maybe there will be a treatment that will help you a bit...??
Did the Dr mention anything new or different? treatment wise?

[johannakat]

Well I finally had my physical from my great doc here in Calgary and got 18/18 spots for fibromyalgia positive!!!!!!!!!!!!!!
What the Hell????
Ok hard enough thinking you have tos never mind fibro as well!!!

So now I have to see a rhumatologist sp?? my mind has gone to hell and left me behind a shell of a person with no brain power anymore!!!! ahhhh

well that's my update hope you all have a pain free weekend and lots of fun!
love and hugs to ya''ll
Victoria:grouphug::grouphug:


Vic- Dr Jordan's explanation of fibro was pretty simple- increased sensitivity to pain. He doesn't really check for it becuase he says if he is offering proper pain management he should be treating any symptoms of Fibro. I also saw a rheumy, but the gist of treatment as described by them was as follows:

1. Make sure patient is sleeping well
2. Control Pain
3. Treat depression if present
4. Exercise as much as possible (even is that is a very very small amount- they had me start at 5 minutes a day every day, add 1 minute per week...i am up to 15 minutes :) The goal is 25 minutes of cardio a day- i hope to hit it by october or so.

all of these items SHOULD be addressed by your pain management doc if he is any good, so it really isn't that big a deal. My visit to the rheumy was more to make sure there were no other rheumy type diseases also going on..but I don't see him any more after the first visit's bloodwork came back clean, just the pain mgmt doc.

just my 2cents on the matter.

Sorry you've got the new dx to think about- i got mine in march :hug:

Johanna

[Jo*mar]

Have you seen this website about FM? {and CMPS}
http://www.sover.net/~devstar/define.htm

this is interesting -
[ Physical therapy and all other forms of treatment must proceed very carefully when both of these conditions are involved, because any excess pain caused by the therapy can further sensitize the central nervous system. Any treatment regimen will be both more complicated and less successful than if the patient had only one of the two conditions.

and
some of the treatments normally prescribed for FMS patients can cause damage to CMP patients, and the reverse is also true. You cannot strengthen a muscle that has a TrP, because the muscle is already physiologically contracted, for example. Too many physical therapists see a weakened muscle and immediately attempt to strengthen it without testing for the presence of TrPs. Attempts at strengthening a muscle with TrPs will only cause the TrPs to worsen and may develop satellites and secondaries. ]

I think this is why many with TOS, CMPS, FMS often don't have a good results with PT.
They don't look deep enough for a person's specific causes & needs.
They just do the old generic cookie cutter PT plan....

[dabbo]

Vic- i'm sorry to hear about your new Dx.... hoepfuly it will help you and your doc figure out better ways to treat you.

Jo (the SUPER mod!! :D ) - thank you for the link.... good info!

I hope everyone is doing well... i'm glad its friday. long week...pain is ok, but now that we've moved to middle TN, i have to drive 30 miles each way to work. its mostly highway, but i'm still trying to figure out the most comfortable way to sit. anywho.
:grouphug:

[Edelweiss]

My dear TOS community!
I am so sorry for this long silence, but.....
After my pectoralis-major transfer I still have some very strange feelings in my arm and in the shoulder region. TOS is going to be more irritated - and I don`t feel so good.
It is strange: the muscles and the articulation of the shoulder, the movements developpe quite good - and the sensations, the pain, the irritations are completely out of a normal way.
There is a burning sensation "inside" of the arm, but the skin is cold, by elevation of the arm there is a feeling of a heavy something and I have difficulties to lift the arm (but in a passive way it is possible), there is swelling,....

But most of you know, how difficult it is to understand all these sensations in the arm and so I will not vent.

I have read some of your posts and I send my best wishes to all of you in the hope, that all kind of problems will find solutions.

All the best and very nice greetings.
Barbara

[Jo*mar]

Barb, good to read from you.
I hope you and drs can find some answers and solve this puzzle for you soon.
:grouphug:

[olecyn]

Long time, no see.
I sure miss all the fun here, energy & information.
Tons & tons of updates & new info as I read at 2am.
Really great posts & answers.

Gibbrn - sorry to hear you have FM. I too was shock off my feet when told. Makes sense though.
And Johanna is correct with Dr. J's response.

Tam -u started a good thread...

Et all - so many new TOS patients here, incredible!
Question, how did all of us find NT?

Had a scalene block in May.
Took a couple of hours to feel the effects.
It did wonders for me.
2 weeks of olecyn was back.
If I could only bottle up those 2 weeks & let the Gennie out a couple of hours each day for the rest of my life.

OPANA ER is working good for me except for the wide eyed bushy tail at night.
Kinda like speed but keeps the CRPS at bay.

[johannakat]

Cyn- it is nice to see you back :)
i haven't had the problem with bright eyed bushy tailed at night from opana...weird!

i myself am hoping to do another round of botox injections soon to get a few of those good weeks like your block gave you :)

actually, in general i have been feeling pretty good, my massage therapist really made a breakthrough and did something to make my back feel great a month or so back. Some of the pain has returned as it wore off, but only about 10-20%, and repeat treatments seem to be keeping it generally at bay. I have been doing SOOOOO much gardening since, and it makes me really happy.

I have also been working the egoscue exercises...easy and gentle. I know i am doing something because i can feel the muscles in my legs and butt getting stronger. I have only been doing the lower body stuff so far.


Barb- so nice to see you back on here, too....keep fighting for yourself, and hopefully you will have a breakthrough...:hug:

to everyone else, thanks for being here...and just be the best you you can be, enjoy all the little stuff.

johanna

[LinJane]

I'm not sure how long it has been. We are just ending a heat wave that has been great for business but very hectic and stressful. Mark, Iknow you know what I'm talking about. I am very frustrated. After a recent doctor visit, I have been left alittle discouraged. I also have a new symptom. Has anyone experienced a sharp pain in the neck, throat area? If I put my hand on the right side of my neck/throat, where I feel I believe the aorta(?) it is very painful. My doctor didn't feel it was anything other than TOS pain but is is different than I have ever felt. Oh well, one more to add to the list!

It has been so long since I have been on- Ihope everyone is ok. I just got through daughter's prom and getting ready for a large 18th birthday party for her, graduation, 5 year olds blessing day at her pre-school and ballet recital. Ready to shoot myself!! Husband's b-day was yesterday with no celebration due to work.

I hope all is well. I will try to read past postings. Still, as always, glad you are all here. Linda

[TraceyW]

Hi Linda,

I often have a deep pain in my throat (just to the right of my windpipe, i think thats the aorta too?). It feels like a deep aching/itching type of pain. This pain has recently started to extend into my chin and down into my collarbone....

Im quite new on here and still trying to figure out the vast anatomy involved in TOS so im not sure of all the correct terminology!

[astern]

I often have a deep pain in my throat (just to the right of my windpipe, i think thats the aorta too?). It feels like a deep aching/itching type of pain. This pain has recently started to extend into my chin and down into my collarbone...

Hi Linda and Tracey et al,

I have this too right now - with a lump just above my collarbone. Feel dizzy and weak, so stopped walking for a few days till it passes. I think it's time to go back to Denver for a followup.

Today I... am going to see a concert with my daughter and her bf. Missed this same show last year from a flare, so am doing all I can the last few days to be pain-free.

Peace to you all!
Anne

[johannakat]

Anne- I hope you make it :)

[astern]

Thanks Johanna, I made it! :p Had to medicate all thru the show, remained seated, tried to NOT bop my head around... and STILL managed to have an awful headache today (an 8).

But I'll take it! :)

wishing all a pain-free day!

[trixlynn]

Lin Jane and Tracey,
That artery on the right side of your neck is the Jugular. I too get that pain, my Dr. and Chiro say it is my scalenes spasming.

[TraceyW]

Lin Jane and Tracey,
That artery on the right side of your neck is the Jugular. I too get that pain, my Dr. and Chiro say it is my scalenes spasming.

Thanks trixlynn!.

Fortunately the pain in that area comes and goes - and when i get it, i can usually ease it by stretching my neck up. It makes sense that its the scalenes spasaming.

When my pain consultant pushed on that area i was in a serious level of pain though, almost made me cry!

[LinJane]

Trixlynn: thanks for the information. My doctor kind of blew it off. It is frunstrating when all symptoms are grouped into one diagnosis. My neuro really did not have an answer. I am basically told to cut back on percocet. Sounds great but if pain is still there, sometimes worse than others, how do I do that??? I am feeling very helpless with the TOS and VERY overwhelmed with my personal life. The only way to ease the pain is with meds and, by not doing "normal" activities. Getting fed up Lin

[dabbo]

I'm glad you made it to the concert Anne!
Linda- its good to hear from you... I'm sorry that your docs are being a pain in the .... rear.
I too get sharp pain in the neck/collarbone area, but on the left side. When its low, it feels like a tight shirt collar. When its high, it feels like someone stabbed me. It is the scalene muscles (there are 3 of them each side I think) spasming. For me, that is something to watch out for because it can trigger a flareup.

Anyways.... I'm glad its Friday, and I wish everyone a good weekend!

[trixlynn]

LinJane,
I too feel very overwhelmed with everything. Coming to the acceptance of being disabled at 37.
We are having to sell our house, because without my income we can no longer afford to live here. On top of that we are trying to find something we can afford. Do we leave our town? That would mean my husband would have to find a new job somewhere else. But almost anywhere in Canada is much cheaper than here.
There is just so much stress. I am sure that that does not help my pain levels at all.
Trix

[hairdresser]

Today I recieved a registered letter from my provincial comp. board and my appeal has been accepted.Pinch me!

[Jo*mar]

I too get sharp pain in the neck/collarbone area, but on the left side. When its low, it feels like a tight shirt collar. When its high, it feels like someone stabbed me. It is the scalene muscles (there are 3 of them each side I think) spasming. For me, that is something to watch out for because it can trigger a flareup.

Anyways.... I'm glad its Friday, and I wish everyone a good weekend!

neck pain & Trps

Trigger points in the scalenes and SCM - symptoms and referred pain
SCM- http://www.pressurepointer.com/SCM_trigger_points.htm
scalenes - http://www.pressurepointer.com/Scalene_trigger_points.htm

the full chart with pain areas here-
http://www.pressurepointer.com/pain_reference_chart.htm

[Jo*mar]

Today I recieved a registered letter from my provincial comp. board and my appeal has been accepted.Pinch me!

Congratulations!! whoo hoo!!!


:yahoo::trampoline::Heart::sunchair::Excited::Head-Spin:

[johannakat]

Today I recieved a registered letter from my provincial comp. board and my appeal has been accepted.Pinch me!


Wow, great day for you canadians :)

congratulations hairdresser!!!

[marabunta]

UGH! lots of good and bad around here. A few weeks ago I posted about my long awaited increased range-of-motion. Tried going back to work, that lasted about a day and a half! Trying to take it slowly but there's too much happening at once around here.
The REALLY good news is my wife gave birth to our second child last week, a healthy nearly 9lb baby boy who's now home and doing fine after a miserable pregnancy. He has a really proud 22mo older sister too!

The REALLY bad news is that after of a few hours of trying to sleep on the hospital pull out(even with lots of strategically-placed pillows), I felt like my pain levels regressed 3-4 months. That hasn't subsided as much yet and lots of numbness/clumsiness is preventing me from safely holding our new baby for more than a few minutes. Now that we're at home I can prop him on a pillow on my lap. It's so upsetting and that's putting it mildly. I can't put it into words but I know you all understand better than anyone else in the world can.

The in-between news is I guess I'm back to pursuing SSDI through an employer-provided and paid attorney outfit. I hope my recovery doesn't take that route but I need to cover all the bases. I thought I had a transitional work plan/schedule that would work for me but I'm finding my non-op side isn't any better with the rest its been given for 6 months. Maybe a few more months of gentle recovery will provide some guidance.

So like I titled this post, please wish me patience and a little relief so I can be the super husband and father I've always strived to be for at least the next few weeks. My wonderful wife deserves to be able to count on me for at least a little while as she recovers from her C-section. It's killing me being scared(because of numb arms) to pick up our newborn out of the bedside bassinet at night so my wife doesn't have to get out of bed so much to feed/sooth him. We considered a co-sleeper setup, but our bed, finances, and safety don't really allow for that right now.

[johannakat]

:hug:
That hasn't subsided as much yet and lots of numbness/clumsiness is preventing me from safely holding our new baby for more than a few minutes. Now that we're at home I can prop him on a pillow on my lap. It's so upsetting and that's putting it mildly. I can't put it into words but I know you all understand better than anyone else in the world can.

.

:hug::hug::hug:
i totally understand....i hope each day it gets a little better :( Those days of being a newborn are soooooooo special and precious. at least you are able to be near them at all times, being off work. every time i find myself frustrated that i can't do something with or for my kids i try to just sit and read a story with them or talk to them and remember what a gift that extra time that i am not at work is. maybe i can't play baseball, or give uppies, but i can have a lot of other meaningful time....

I know it will get better for you.
:hug:
johanna

[Jo*mar]

[The REALLY good news is my wife gave birth to our second child last week, a healthy nearly 9lb baby boy who's now home and doing fine after a miserable pregnancy. He has a really proud 22mo older sister too!]


marabunta-
Congratulations on the new baby
:D:D:grouphug::grouphug::D:D

[marabunta]

Thanks:circlelove: My Dr. had me raise my Lyrica to about 3x what I was taking, I can hold the baby and help out more...but my memory's definitely shot again. He's 9 days old today and still having neonatal jaundice issues. His levels have been going up since leaving the hospital Friday. We're finally getting to see our regular pediatrician today after having to bring him in for bloodwork each of the past few days. I'm sure we'll get it cleared up just fine but the current treatment is to feed him every two hours and supplement with formula. He's lethargic from the jaundice(we were thinking he was just a really easy baby:winky:) so it's a real chore for all of us to get food in him to clear the bilirubin. We've had him outside a bit everyday also.

I was trying to convince my wife to breastfeed every other feeding and I'd do formula every other, so at least we'd each get a 3 hour break in between and not affect her supply. Of course, she's trying to be superwoman and do it all:Red eyes:...she trusts our pediatrician though so maybe the Dr will agree to that setup. Just doing anything to keep from having to re-admit to the hospital, we're borderline on that at the moment.

I just got off the phone with my SSDI claimant representative(Allsup) interview...geez...90 minutes starting at 5am! :shocked:It was the only time she had this week and I wanted to get the process going. She was surprised I'd take that appointment...guess she's never had a newborn & toddler in the house!:wink: I was also proud of myself for putting together all of the interview data beforehand, and asking if I could fax over all of my answers so I didn't have to talk so much...I was still forgetting questions 10 seconds after she asked them!:eek:

I hope everyone's having no-flare days!

[Jo*mar]

My second boy had slight jaundice issues - his cleared up in a week or so, I hope your baby's does too.

I breast fed all 4 of mine, and as long as mom is getting plenty of food herself she should be able to produce as much milk as needed- the more baby nurses the more milk is produced. Of course my info is from lonnngg ago LOL my baby is almost 18:D.

[dabbo]

Marabunta- i hope your baby is doing well, and that you and Mom are getting some rest!

My mother-in-law got bitten by a spider last weekend (the doc thinks, at least). She had to be admitted to the hospital earlier in the week because she couldn't move her leg, and the doc wanted her on IV anti-biotics. Then I think she had some heart trouble.... long week for her. My wife just went back home to see her and spend a few days.

I hope all are doing well.
-dabbo

[dabbo]

Bump.... didn't want it falling too far down the page...
Di, Shelley, Mark, Tam, Peg, JoKat, Dawn, Jo, Victoria (and everyone else :D ) - long time no talk. I hope all are doing well.
Take care of yourselves and i hope to hear from you soon.
:grouphug:

[mtnmom]

Today I will spend another day keeping my kid on the couch. He got a concussion crashing his bike on Tuesday - scary stuff. Confusion, amnesia... At first he couldnt remember the two weeks leading up to the crash, slowly it started coming back to him, now he just cant remember the few hours around the crash. The CT scan showed no brain hemoraging so he will be cleared to resume activity in a week, provided he passes neurological tests on Monday. So, I would like to remind you and your kids - always wear a helmet! If my son had not been wearing his (it is cracked in half), the injury would have been so much worse.

[TraceyW]

Hi all,

sorry to hear some of you have had bad weeks - bike accidents and spider bites.....so best wishes to the porley!

well i have a job interview tomorrow and naturally im a little nervous - but a little worried if they ask me to declare any medical conditions....hopefully tos wont affect my chances of getting the job as they could prejudice against me!. has anyone had any experiences like that?

[marabunta]

Tracey,

Good luck on your interview.

I wouldn't worry about declaring medical conditions as much these days as I would a few years ago.
With ADA awareness any decent employer is more concerned about a discrimination claim for something they might not even know about(unless they asked!). I actually think being open and honest about it has been the deciding factor in my winning a few very competitive jobs over the years, as my perserverance, dedication and accomplishments show through.

I don't recall them ever asking about it, but I may have said something like, "It's not usually an issue, but if it starts to flare up, I'm usually aboe to manage it by having the flexibility to split my shift. Like taking off an afternoon and making it up in the evening. Probably once a month or less."

Of course, I've been careful in picking jobs that, by design, can accommodate my needs. This last one was kind of borderline, but I didn't know that until after I accepted it.

Just my two cents:cool:

[TraceyW]

Thanks Marabunta, the interview went well i think (its hard to tell though!). They actually didnt ask for any medical conditions - so your right when you say its not such a problem for employers these days, as i suppose they arent allowed to discriminate, therefore perhaps have to be careful with even asking that question!.


Im very limited to the type of job i do - cannot do office work, as in so much agony i was sent home crying sometimes!. Nothing with lifting or anything retail either.....just worry one day i wont even be able to work in a school as then there is nothing else i can do!

[dabbo]

Tracey- I hope that things work out for you with this job!

Mtnmom- I hope your son recovers quikly,and I am so thankful that he wasn't injured too seriously!

Has anyone else been sick alot this year? I have ANOTHER freakin sinus infection. ouch (cough cough)

[Dolfinz]

Hi everyone ! Hope everyone had a nice holiday and saw some great fireworks !

Mtnmom... sorry about your son.. My boy (22 now) seemed I was ALWAYS in the ER with him !! Boys will be boys ?! Hang in there !

Dabbo... I have been MISERABLE since I got back from Florida in June ! I never had allergies/sinus this bad ! We here in Mass have had ALOT of rain so the pollen has been every high ! Have you tried a Netty ( I think that is what it is called ) Pot yet ? I bought one at CVS 2 weeks ago. I have had NO problems since I used it ! It really works. You should try it. It's like a little tea pot that you pour into the sinus cavity (sounds weird) but if you can get the hang of it , it is worth it. I hope you start to feel better and... love the pic ! I am jealous !

Anyway.. just wanted to stop by and say Hello to everyone and hope you all have a pain free holiday weekend ! My left shoulder is still not moving !


Hugs to everyone......:hug:

Dolfinz

[dabbo]

Finz, I'm sorry that you've been feeling yucky. I have the squirt bottle, but I think I'm going to try the Neti Pot. I get the little packets of saline solution- they're pH balanced.

I hope everyone had a great 4th of July, and is having a great weekend!!

[Dolfinz]

Hi everyone... Hope everyone had a great holiday !

Today I .... went to the grocery store and just bought myself a treat... a 2.0 Lobster !! I figured the price was awesome and I sold 2 pieces of jewelry yesterday and this is my reward !!! God I can't wait till lunchtime ! :D


Hope everyone has a great rest of the weekend !!!!

Dolfinz

[TraceyW]

Today i......got offered the job that i had an interview for!!. They didnt ask me any medical questions but now im starting to worry that they will have a problem with me taking time off for hospital appointments.....always something to worry about with me. Just wishing now that i had raised the subject myself in the interview!

[gibbrn]

Hi Dabbo,
I check in once and a while..been scrapbooking and causing myself hellish pain making artist trading cards and greeting cards. All the wrong stuff, but I love it!!!!

I am going to have to start coming on agian as I am seeing a new doc for the last three months and she is amazing. I should do a post with all the things she is having me do to change my life and get into somewhat of a better placce..ok a great place if it all works out. she does this with lots of dx and lots of issues. I have an illness she says and that is how we will treat me....as if I am sick and then she gives me guidelines of what to do and how to change and what needs addressing each bi-weekly visit. AMAZING woman...has fibromyalgia and still treats people all day long.

anyhoo.....love to all my old pals and hey to all the new ones....but then to you I am new!!!

love and hugs to all,
Victoria
Ps happy Stampede week.....CAlgary alberta.....for all you cowgirls and cowboys!!!!:hug::hug:

[DDayMBB]

Finz, I'm sorry that you've been feeling yucky. I have the squirt bottle, but I think I'm going to try the Neti Pot. I get the little packets of saline solution- they're pH balanced.

I hope everyone had a great 4th of July, and is having a great weekend!!

Well, a bit late on the 4th my dog coward the whole weekned even under the influence of a sedetive from her vet.....

I know I have not been around in a bit, well to start out I passed out in my driveway one day... no idea how long I was out but a neighbor found me who called the ambulance it was not till I was in ICU that I woke up and found out that I had walking pneumonia and had a fever of almost 105 spent .... after 7 days of bedrest the resident doctor said I was moving my arms fairly well <URGE TO GO POSTAL> sure after resting!!!! Not even a week later came down with a nasty gastric distress that as one could due witout the cramps, and movements coming from both ends that lasted almost a month.... now my RSD is drivinig me crazy with the burning, itch, stabbing pain in my feet ankles and shins hey let us not forget the good ole TOS with the trool stabbing my shoulder with an ice-pic, my swollen hand, dropping things mus I go on since this is the TOS site!?!
I am getting tiered of diagnoses.... Cervical Disc Disease, CRPS II/RSD, TOS, Fibromyalgia and multiple herniations in the Thoracic Spine

Unto all, sorry for the B%TCH SESSION !!!!! I hope and wish that quiet night and a better day tomorrow !!!!!!!!!!!!!!!!!!!!!

[Jo*mar]

Victoria, yes let us know about the new doc and the suggestions she makes :)

Mark, that sounds like a scary and very cruddy time for you , i hope things are getting a bit better..

[dabbo]

Hey Vic! Good to hear from you, and I so pleased that you like your new doctor. Its amazing that she has fibro and is able to do that. I hope that things go well, and you get to that great place!!

Mark- Its good to hear for you. I'm sorry about what happened- walking pneumonia is a b*$&ch!!! take care of yourself! Our dog was flippin out from the fireworks from late June thru last weekend. I think we were about to have to sedate her!

Oh - I hate that flippin troll with the knife.... I want him to go away! To that end, I had another round of botox on Monday- mainly in my traps, down into my shoulder blade, and one in the scalenes. WAY sore today, but I didn't have a massage on monday. It will be worth it if it lasts 2 months again.

[Peg24]

Hey Everyone,

I haven't been on in awhile...trying to stay off the computer.

Full blown TOS flare up due to stress. Hubby lost job of 10 1/2 and hasn't been able to find work in over a month.

Boy, when I get under stress...this mess gets really bad!

Hugs and Kisses to All!

P.S. Dabbo, great pic of you......your a cutie ;) (yeah, I see you blushin)

Peggy

[olecyn]

Come to California...I miss you!
Besides I can give you a paying job. Scrapbooking a couple of books. :hug:


Hi Dabbo,
I check in once and a while..been scrapbooking and causing myself hellish pain making artist trading cards and greeting cards. All the wrong stuff, but I love it!!!!

I am going to have to start coming on agian as I am seeing a new doc for the last three months and she is amazing. I should do a post with all the things she is having me do to change my life and get into somewhat of a better placce..ok a great place if it all works out. she does this with lots of dx and lots of issues. I have an illness she says and that is how we will treat me....as if I am sick and then she gives me guidelines of what to do and how to change and what needs addressing each bi-weekly visit. AMAZING woman...has fibromyalgia and still treats people all day long.

anyhoo.....love to all my old pals and hey to all the new ones....but then to you I am new!!!

love and hugs to all,
Victoria
Ps happy Stampede week.....CAlgary alberta.....for all you cowgirls and cowboys!!!!:hug::hug:

[gibbrn]

I wish I could come to Californina but not coming until November....another wedding. Marc's cousin. We are going in Aug to Ontario for my brothers wedding so we are on the wedding tour!!!!

I'd love to scrap for you!!!!

love and hugs,
Victoria:hug::hug:

[DDayMBB]

I send forth to all awonderful pain-free day!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

[gibbrn]

hey all I second the pain free day! In case some of you are not reading my new doctor thread I will post a book worth reading here....

the last lecture by Randy Pausch. A must read and get out the tissues and highlighters he gives words to live by. you can also watch on you tube his
'the last lecture' about 80 mins long and well worth a watch!!!!

have a great day all
love and hugs to you all
Victoria:grouphug:

[dabbo]

Peg :winky: Thank you! I'm sorry to hear about your flare, and about your hubby. It can be tough after an abrupt change like that ... I was looking for a newer picture of me, but they are all of Eva (who's almost 2!!) That picture is from Santa Monica about 3 years ago- one of my buddies was teaching me how to surf.
Things have been up and down here - good doc visit, more botox. tried to trim the hedges (HORRIBLE idea), and hurt for literally a week. Throw that in with an ... interesting 2 weeks at work- think financial headlines. :eek:

[DiMarie]

Hi my dear friends,
so good to stop by and read but sorry to hear about the problems.
Peg and dabbo I miss our night time chats! I am sorry to hear of your husbands job and the stress Peg. It is a terrible time in your life to have that going on. I donlt even think Disney pays that well, but maybe worth checking into. tommy and Katie want us to retire and move down so Tom can drive a Disney bus, Katie be a character and me? Ummm maybe a fairy godmother in training.

I am sending my thoughts and prayers. I will spend all week every morning praying for a improved job for hubby. Tell him hello fro us, he is a wonderful man and great to spend time with. I am so glad we all met.

dabbo, hugs to the bundle, if you think terrible twos are bad, wait for the terrible three's!

cyn, Gibbrn, so good to read you, and everyone.
hugs :grouphug:
di

[TraceyW]

I went out yeserday to shop with a few friends (to celebrate my turning 27 this week) and had a few drinks over lunch (we ended up leaving the bar at 12.30am after several more drinks and dancing!) After sitting in the taxi for about 15 minutes my neck had completely seazed up and was painful to move.....slept on a hard pull out bed with hard pillows at my friends house.....this morning OUCH.....have been on the heat pad since - think it could have been a lot worse though and cant really complain seeing i choose to try and forget about the TOS for the day.

How very foolish of me!

Best wishes to all
x

[gibbrn]

hey Tracey,

we all do it at some point!! I just drink enough so that I don't feel the pain!!

keep using heat and ice!!!

love and hugs,
Victoria:hug:

[dabbo]

Tracey - I hope you're feeling better!
Di - I'm not sure what three's will be like! It amazes me the words that Eva (who turns 2 in a month!) has picked up- coffee, mailbox, delicious, "sit" to the dog, "bad doggy," "get down doggy." and they're all used in context.

I hope everyone has a good week.... 90+ degrees here in middle TN. :(

[gibbrn]

Well here we go again....medication rotation. I just signed my life away (not really being the drama queen that I am) to get the fentanyl patch instead of my oxycontin as I think my body has become used to the drug and it no longer works.

rotation of opiods is a good thing. It helps to give you a holiday so to speak from the other drug and each drug works in a different way! I hope this helps me get some better pain relief

I have been popping the percocet and diazepam like smarties or tart n' tiny's
lol :p:p not good I know but gotta survive with less pain right!!!!!

hope all are having a good day or night and are as pain free as possible

love and hugs to all,
Victoria:hug:

[DiMarie]

Well here we go again....medication rotation. I just signed my life away (not really being the drama queen that I am) to get the fentanyl patch instead of my oxycontin as I think my body has become used to the drug and it no longer works.

rotation of opiods is a good thing. It helps to give you a holiday so to speak from the other drug and each drug works in a different way! I hope this helps me get some better pain relief

I have been popping the percocet and diazepam like smarties or tart n' tiny's
lol :p:p not good I know but gotta survive with less pain right!!!!!

hope all are having a good day or night and are as pain free as possible

love and hugs to all,
Victoria:hug:

Hi Victoria,
I know what you mean about the oxy becoming like immunity and changing meds. Start low and build up for any side effects if you have to.
I stopped by to look at your Art work and totally love the Friends Forever. Are they 3-D wwith a combination of techniques? They are so original!
http://neurotalk.psychcentral.com/album.php?albumid=64
Thanks for sharing
di

[gibbrn]

Thanks for looking at my art. It helps me keep sane!! It is all kinds of mediums. You can use anything you like on the cards. I am an avid scrapbooker so I got into making cards and now I make artist trading cards and am trading with people all over the world. Only rule for the atc's is that you have to make it 3'5" x2'5" and you cant sell or buy them. they are for trade....just like hockey cards or whatever the kids are trading these days!! Only they are little bits of art work.

glad I changed my meds today has been a pretty pain free day...but I did have my massage today and it has been three weeks due to scheduleing issues!! My pain has been under 6 at times today!! Only breakthrough once so I don't go into withdrawl!!!!!!


Hope you are keeping well. You are in my thoughts and prayers!;)

love and hugs,
Victoria:hug:

[TraceyW]

Wow some pretty good art work vic!.

Glad to hear your having a pain free time at the mo!. I had a massage with hot stones yesterday......it was like heaven - beats any regular massage hands down.

[gibbrn]

ok the pain is back....damn it one day is all I got....so thinking...massage doing the pain causing/????? has been like this since they said possible FM??? I want my pain gone!!! Or at least a 6/10 again!! boooo hoooo

and to top it all off having issues with comp as well....not returning calls not giving me timely access to my chart etc.

I am at my wits end with these idiots. So I sent three letters explaining how pissed I am..one to adjudicator, one to her manager and one to assistant director!!! all managers above adjudicator. Hope this gets me a new adjudicator! Who knows Lord works in mysterious ways does she not!!!

love and hugs to all and a pain free day as possible.
Victoria:hug::hug:

[olecyn]

I Stopped by cause I dont hear from any one.
Boo Hooo, poor me! :)

*Vic, your cards are FABULOUS!
*You are so incredibly crafty...I knew I liked you!
*How do you do all the small motor skills?
*Just like me...gotta do something or you'll go insane.
*Love the photo of you tipping the bear glass.

I need someone to come help me put up photos on here.

DI, email me sometime...think about you guys so much.
Good to see some posts here
Whatz going on with TAM?
Anyone ever hear from Alison?? NC?

Gotta get off the compooper...

[DiMarie]

Victoria
Sometimes I heard about the toxins being released during a massage and you have to get rid of that.
Maybe someone can recall what it is called, but like the calm before the storm.
I hope that you feel better soon.
di

[dabbo]

vic- i didn't realize that was your art. I'm impressed! I am nowhere near that creative. I agree that massages can make you sore sometimes- i think you're supposed to drink alot of water to help "flush" the toxins from your body.

cyn -- good to hear from you! I'd be glad to help walk you through the adding of photos sometime.

I hope everyone is having a good week......

[gibbrn]

hope that everyone has had as pain free a day as possible.
I also hope that this continues for everyone over the weekend and hope that wherever you are it is sunny and bright.

I wish all a good night!
love and hugs,
Victoria:grouphug:

[DDayMBB]

Victoria, I have the pumpo and right at this time I have Dilauid, flowing I was told that at some some point they will be draining it and starting me on morphine just so I do no become immune to the Dilauid. Now I am glad I have it in..yeas the TOS hurts but as of late the RSD has been a ****** lately!!! Until later my best unto all MARK~GOOBER~N~ERIC

[dabbo]

checking in....
hope all are well
been a long week for us. Funeral on Monday for a lady my family and I knew from church- she was a great woman. Passed away from metastized pancreatic cancer, only 4-5 weeks (I think) after Dx. I learned alot from her over the 15 years I knew her, but I also learned ALOT from her the way she handled this. Amazing woman- she will be missed.

i hope alll are well
-dabbo

[ozzy14]

Hi All,

Im a grandma! My maltese "bella" had 3 gorgeous male puppies. Mum & bubs doing well. She's had more visitors than I had when I had my kids!.

Ozzy

[gibbrn]

thanks for the update and congrats to you and bella!

[gibbrn]

oh the perils of travel back to Ontario (home) with TOS! I hate to travel....I hate to pack I hate to feel like I am squished in a tiny plane seat!! I have decided to use a heat pack like the kind you'd use for arthritis or a backache. they advertise on TV. I have tried it out and it heats up a treat!!! I had no idea they were so good. I will just take as much diazepam and percocet as I can and put the heat on...and beep like crazy on the way through the security gate...there is iron in the heat pack. I hope they don't take it from me!!

I will try to have fun.....after all it is for my baby brothers wedding!!! Looking forward to seeing family and friends at the wedding. My doctor even told me to use alcohol.....he said get a nice buzz!!!! LOL

take care all,
love and hugs,
Victoria:hug:

[TraceyW]

Enjoy the wedding Victoria!, im sure the painful journey will be worth the wonderful memories you gain. Those heat pads are wonderful - i was also suprised at how effective they are and how long they stay hot for!. Wishing u a very pleasant (if slightly drunk!) flight.

Wishing everyone an enjoyable weekend!

Ps - i had my first alexander technique session today and the woman aligned my spine whilst i lie down, she walked around me and adjusted my limbs. My middle back felt a little odd afterwards, but im sure thats just because my spine is not used to being adjusted like that!
x

[dabbo]

Vic- enjoy the wedding, and congrats to baby brother! The travel does stink, but at least its for something good. I'm sure you thought of this, but I would pack all/most of your meds in your carry-on (or the fiance's (Mark?)- even better!) I had the unpleasant experience about a year ago of bringing only 2 or 3 days of meds wiwth me in my carryon for my 6 day trip, only to have the airline lose my checked luggage... for good.

Good news, speaking of travel, is that Heather and I are going back to Italy in October. Flying first class on frequent flier miles! wooooo!! :D :D

[ozzy14]

Hey all,

Finally some good news. After a year of paperwork, Dr's reports etc, my insurance company has approved my disability insurance claim! What a relief!

Ozzy

[mtnmom]

Just dropping in to say hello! Have been so busy this summer that I hadnt been around for awhile. Hope you all are doing well.:hug:

[olecyn]

Hey all!
Dabbo...your on for a photo training session. I just dont stay on long enough to train.

Victoria...hope u have a grand time. Mixing OPIODS & Alcohol? Thats too much like a Heath Ledger thing. Careful girlfriend. Your too special. I sneak one or 2 on my Opiods occaisionally but it really wigs me out.

Di, Hopeliveshere, OCgirl, Dawn, Johanna, Tam et all I miss talking with you guys.

For ALL thos here I don't know. Congratulations on your progress legally & physically.

FYI, going into tomorrow for scalene botox. Crossing my eyes & toes. Figers dont cross.
Cyndy

[DDayMBB]

Just stopping by to say hello.... one day @ Disney with my son pushing me thanks to RSD and lack of motorized carts only plus when we got to the head of line we got to be first.... truth be told would rather been able to stand in line..............OH WELL JUST KEEPING IT SHORT, THOUGH I DO WISH ALL MY BEST TO ALL and WAITING FOR DEER SEASON WHERE I AM GOING TO PUT ANTLERS ON AND HOPE FOR THE BEST OR WORSE HOW EVER YOU CONSIDER IT!!!
TILL LATER TAKE CARE ALL!!!!!

[dabbo]

cyn - good luck with the scalene botox..... it might be sore as $H!T for a few days, and then hopefully you'll feel its benefits. I'll cross my right fingers for you. left ones dont like to cross :(

ok. theres something on one of the HD channels aobut a steeplechase runner. his training is running 90 miles a day 6 days a week.

[olecyn]

Yep, it sure in the heck created pain...
CRPS (Firbo & RSD) got a hold of me at night after the anesthesia & Dilauded pain injections worse off. OPANA today along with my OPANA ER 15mg qd.

Dr. Jordan said not to be shy with the pain meds for a few days. Now I know what he's talking about. He went into the right scalenes, pect minor, subscapularis, traps, behind my ear, temples & between my eyes. He said my temples were hard as a rock & the others were spasming like crazy.

Geeze I hope the BOTOX is worth the CRPS shut down but them I have one an the verage of every week to 2 weeks.

[dabbo]

I'm sorry that you're hurting .... like Dr. Jordan said - don't be shy. I've had the scalene, trap, subscapular, and almost behind my ear. I think we did the pec minor time before last. Was what you had the Myobloc (botox B?) with the needle guided by an EMG (that thing that makes noise)? I need to go to sleep.......i'm rambling.

Hey to all!

Peg, Shelley smelley, Di, Mark, JoKat, et al come out come out wherever you are.

[DiMarie]

Hi dabbo!
I just went out of town for a long over due trip to Niagara falls. My step daughter lives in North Tonawanda and was in a theater production last week so DH and I took Katie up to see her and visit the Falls, Butterfly observatory and bird aviatory.

Drive was long, but I used all my tricks, pillow, breaks to streatch and valium!Five to six hours with breaks and eating along the way.

Enjoy the view!
Di
http://i114.photobucket.com/albums/n260/dimarie11/100_0661.jpg

[olecyn]

It has been 10 days & just now starting to feel a little better. Had to go to my therapist to this get ginormous amount of pain out of my system & hypnotherapy.

I'll have to check on the type of Botox when I see him. And yes Dr. J always uses waves where he places the needle. He's so very good. They put me out due to the high level of pain in the areas he went into: Right scalenes, pecs, subscapularis, R & Left trapezius, trapeziods, jaw, temporal & corrogated muscles.

Cant sleep as usual....
Massive pain in my back sides since Friday. Geeze, I sure hope its not something related in my kidneys going haywire due to the meds.

Di ~ ahh to be in Niagra. I'll visualize if I can get to sleep.
Cyndy

[dabbo]

That is a great picture Di! Cyn- I'm glad that you're finally feeling better, and am sorry it took 10 days!
Saturday night I whacked my head on the corner/edge of a shelf in the garage. My wife heard it from ~50 feet away....I don't think I blacked out, but had to go to the ER Sunday- slurred speech, confusion, coordination problems, etc. CT was normal, so thats good. Doc called it a mild concussion. On monday, my daughter accidentally hit my forehead with the back of her head. MORE confusion, vomiting, etc. ANOTHER ER trip. So now ( I think) its tuesday, and I have to go to a neurologist on thursday for him to check me out. I don't htink i'm supposed to drive- regardeless, i am way sensitive to light right now.

ANywho- hope all are doing well!

[tshadow]

Dabbo - maybe you should hold still for a bit...my goodness! Hope you feel better soon and that nothing is serious.

Olecyn - I am glad you are getting some new treatments and I hope they work.

To all others, lotsa love. I have not been on the board so that my symptoms are not unnecessarily triggered. Do miss you guys though! Love!

[Jo*mar]

ouch...
eesh dabbo, don't be so rough on yourself:eek:

I wonder if your c1- c2 might have gotten out of alignment from those "bumps", I don't remember if you ever had any upper cervical adjustments {axis/atlas}?
If you continue with problems might be worth checking into.

:grouphug: to all of you :grouphug:

[DiMarie]

hi dabbo,
That Pillow suit that Astern needed for car accidents, should come with a pillow helmet...Maybe that will protect if it covers the forhead.
I think any blow to the head jerks the neck too and can flare symptoms. I hope that it heals fast.

Baby kisses make everything feel better, no headbutts though :rolleyes:
di

[Curious]

dabbo..maybe one of these blow up sumo wrestler suits will help. :D looks like the headgear has some padding.

http://www.iwantoneofthose.com/store/assets/images/product/sumsui/sumsui_lg.jpg

all kidding aside, take care. praying the neuro says you are a -ok. :hug:

[Shelley]

Oh man Dabbo, take it easy. I sure hope everything at the neuro checks out. :hug::hug:

Here have some :icecream::icecream:....Nooooo I know its cold Dabbo but you dont rub it on the bump on your head :D:p

[Dolfinz]

Dabbo... Hope your feeling o.k..... :hug: Be careful my friend !

Hi Shelly.. How are ya ?? How's the shoulder ?? Mine is getting there.. PT gave me a few new things to do with weights and it feels like my shoulder got ripped out of my arm today !! But...I am at 165 degrees !! Now if I can get it to 180 I will a happy girl !!

Hope this find everyones else having a pain free week !!!! Hugs to all ! :hug:

Dolfinz

[marabunta]

Dabbo, I can relate!

My 2yo daughter's learned a 4 step handshake that finishes with knuckle smacking and then a head butt. She's always been good at the head butt thing, forwards, backwards, etc. Worst is when she throws herself into my lap to snuggle and snaps her head into the ball of my shoulder...OUCH!! That one hurts physically and emotionally.

Our baby boy is doing great. Of course, he likes to dig his head into the inside of my elbow...can't do that for more than a minute either!

I started on 30mg Cymbalta about 3 weeks ago...my weight's starting a downward trend...first time I've lost weight while on Lyrica. It's only about 6lbs, but its a start! I've only gained 13lbs on 9 months of Lyrica, that's 5% of my body weight so not too bad.
I'm hoping to drop 30 over the next year...20 more would be great but that's probably reaching for the moon!

One day at a time!

[Chemar]

as you may have noticed we have been having some server probs lately

here is thread on CFF about it
http://neurotalk.psychcentral.com/thread52684.html

one of the things that seems to be contributing to the old server's load is very looooong threads

Doc will be moving us onto a super di duper new server in a couple of weeks, but till then it would be best if we try to keep threads a bit shorter...say maybe no more than 500 posts.... then start new thread


soooooo
if someone would please start a "Today I......" part deux and let me know when it is up....I will add the link here for all to continue

so sorry for the inconvenience but I am sure you would agree it is better this way than to have the old server struggling to let us in

thanks to Shelley for starting "Today I...." part 2
http://neurotalk.psychcentral.com/thread52838.html

and a big thanks to DDayMBB for this thread :)