Today I.....

[DDayMBB]

Am just thankful that we can start relating back and forth to each other !!! God knows we were a family, disfunctional as it may be share something others just can not understand!

[DDayMBB]

unto all I hope all is going well with you and yours !!!!

[Horizontal One]

....I am happy that our forum family can chat and seek advice and comfort from our friends. I send my best wishes to everyone and hope that they are doing OK.

Take Care
Love
Hx

[DiMarie]

There's no place like home, if it be BT 1 or BT 2. Thank you for bringing supportive friends together again. My computer went for good during the time of the BT tragedy. I am checking email as I can with the old 233Mgz computer. Takes me an hour to open and read send off a reply so I struggle for time. Paying bills takes forever.
Missed you all dearly!
Di

[Jo*mar]

whew long time no read!

Di and I emailed each other on and off - but she's about the only BTer I have "talked " with since the crash - well I did do the Flash chat til it crashed too
had some good times back then- sems like so long ago lol

hope all of you are well as can be
Jo

[Edelweiss]

am glad, thankful and happy that my beloved "today I..." thread exists again.
I missed the daily exchange of thoughts, state of health, troubles, good things to share,.....
Thank you for informing me troughout the weeks by email!!!:)
I wish you all a nice and invigorating weekend.
Greetings
Barbara

[DDayMBB]

Today I.... Do hope all have a godd painfree day !!!

Mark-n-Goober

[DDayMBB]

Today I.... would like to add a link to this forum for new members and those of us who may have skimmed past the sit previously... it basically explains what is and some symptoms one might have

http://www.nismat.org/ptcor/thoracic_outlet/

[DDayMBB]

I would like to take the Liberty of submitting some information that was written by a skilled, professional and understanding Dr, Dr Sanders from Denver Colo

http://www.ecentral.com/members/rsanders/

[DDayMBB]

Today I would like to say it is nice seeing some names from the past.... Horizontal One, DiMarie, Jo55,law and Barbara so far that I have seen... Hopefully the rest of our distant family will find there way over here !!!!!! At the moment I have got to take a break from the computer, starting to get sore so I pass along......................

My Best to all !!!!!!!

Mark-n-Goober

[dawn3063]

I'm so glad to see that BT is back.. I missed the communication we all had as a group.. Today I want to say.. Hello and I missed you all..
Have a great weekend..
Dawn ;)

[DDayMBB]

Welcome back Dawn and I dito you it sure is nice to have the board back... seems as though it was a life time in between :)

Mark-n-Goober

[law76]

Today And Last Night, Not Kidding You Have Stayed Up All Fricking Night W/no Sleep With Computer Probs From Nine Thirty Last Night To Noon Today. I Am Going To Take My Lollipop And Sleep.....OH -THE PAIN IS UNBEARABLE!!!!!!!!!!!!!!!!!!!!!!!!!!!

[DDayMBB]

Law surely hope you start feeling better, but glad those lolly-pops help! I was wondering if anybody else had this happen.... when I fall asleep and drop the pillow that I usually hold my ar straightens and my last 3 fingers curl up more so than normal. When I do wake my arm is straight my fingers bent and I require my wife to message my fingers to straighten the and her to help me bend my arm a few times before I can do it by myself and at times while she is doing that I am in actual tears! I have not had an appointment with Dr Togut, though have talked with him and he said it has to do with the Fleor nerve/muscle!

Unil later I wish all a pain free day !!!!!!!!

Mark-n-Goober

[Jo*mar]

am kind of sad about all the bashing on the forum feedback- suggestions are great- but many are just complaining and not offering ideas for improvement.
I'm wondering if their postings will have repercusssions when we return to BT1???
I hope not.
I think the banned ones are inflaming the others- i think they forget that anyone can read here.
Oh well life goes on.

[DDayMBB]

jo55 "" am kind of sad about all the bashing on the forum feedback- suggestions are great- but many are just complaining and not offering ideas for improvement.
I'm wondering if their postings will have repercusssions when we return to BT1???
I hope not.
I think the banned ones are inflaming the others- i think they forget that anyone can read here.
Oh well life goes on. ""

Jo I am not bashing anyone, I am just glad to see many face from the past and as far as complaints... well I for one will listen to complaints and should there be a way I can help another that would be great, however should I NOT, I hope there is somebody out there that can ! are we not here to try and help each other!
My thoughts go with you and everyone... Mark-n-Goober

[Jo*mar]

I know you aren't Mark- I didn't mean here in the TOS forum-
in the feedback topic section.

[Krankie]

got DDayMBB's e-mail about the new forum...I've just been so busy with the kids this weekend......I want to say Hi to all and can't wait to hear what everyone has to say....will give all a heads-up when I have a little more time to talk...just needed to say a quick HI---HI




KRANKIE

[Edelweiss]

am online again and I am glad to see that the "today I" family is growing!!

Since thursday my both arms hurt more than "usual" - nevertheless I spent the weekend in Vienna where we enjoyed the museums, restaurants and cafés.

I hope you can have a painfree or a light-pain day today!
Barbara

[Horizontal One]

say a big hello to everyone else since last time I posted...
Today I also feel sad for a non forum friend who is awaiting possibly quite bad health news..I send her my wishes....
Today also means a week til see Pain Consultant...I cannot wait..

Also...send all of you my best wishes....and a hug

[DDayMBB]

Hriaontal One it would be a pleasure for yor friend onr to say hello to sll! for as and as we a aaaaaaaaaaaaaaaaaaaaaaaaaaaaaaai do think there are lots worse on tha a lot who post here.... My thought and wishes go onto all not just us in the TOS
Mark-n-Goober

[dawn3063]

Want to wish everyone a good night and a painfree day tomorrow.. Now off to bed I go to try and catch this headache before it becomes too nasty..:(
((Hugs)) Dawn ;)

[Edelweiss]

wish a good morning to all - and I hope it will be a good day today: without pain, without sorrow and without troubles.
All the best,
Barbara

[tshadow]

Hi kids...

boy did I miss each and every one of you.

Mark, I am so glad to see you're back to your welcoming duties - you are our "greeter" of choice! smooch and hug.

Also, very sorry to hear of your AM finger problem. I do not have that per se. But sometimes the hand is such a claw, and hurts so bad, I leave it that way. I will pray that this will pass for you and ease up.

To every single one of you, big big kisses and hugs!

[Gromlily]

too want to thank Mark for being our unofficial greeter!! He has really been diligent about keeping this thread going!!

I am also grateful for the others who are diligent to this forum, who continue, year after year to try and lift others up with words of encouragment, personal experiences, and by sharing their own TOS situations so others can learn and be helped in their own healing process.

This is a wonderful family of people!!!

God Bless All,
G~

[DDayMBB]

T Shadow, what I do as far as greetings is just a way to keep in touch wih everyone over here. Like I had said prior, I consider all here an extended family with one thing in common **TOS** ! Regardless if you are mega rich or popper poor we know that money can not change our status. In fact I think it can teach all to be more humble in in how we treat one another !!!
Go Bless one and all and hope all arw safe !!!

Mark-n-Goober

[Jo*mar]

Good to see more of the gang trickling in here.

I still wonder how the ones that haven't found this place yet are doing?

The days are getting shorter and the weather is starting to change for fall already here.
take care all
J

[Stardust]

Just want to say hi and how wonderful it is to hear from everyone!! Although I didn't post regularly on the old forum because I really have to limit my computer use, I always checked in as often as I could to see how you were all doing. I really missed hearing about everyone this summer!

Mark, ditto on Gromlily and Tam's comments. You're the best!:)

[DDayMBB]

I did not do anything here that anyone else would not have done! We have always been strong together and if we did not have an answer to a question that we did not know there would always be somebody there could help out. I am fortunate to have found this site myself and think it is nice that we all share our weaknesses and also our strngths! Has anybody had any new outcomes with there TOS? I myself have found out that my workmans comp judge has put a deadline on all the stalling their judge has been doing and he must have any and all dpositions in by Sept. 19th, unfortunately, I found out after him getting this info in it may take another month or two to before a decsion is reached. I have been without any for of income for a year, which is an insult to me as I started work at the age of 13 picking apples and always had a job regarless... my first car was purchased by me at the age of 16 as well as paying my own insurance. I never expected at the age of 42 to be in this boat, however I am in the boat with one oar and spinning around in circles!

[DDayMBB]

I was invovled in a work related accident on 4/2 in which my truck rolled backwards and smashed into a SUV behind me, how exactly how it happaned I do not know but it took place. In the matter my back smashed inti the door frame, I mentioned it ti both of my boses but down played it because the company was taken over by a nre company on 4/1.... by the 7th I could not take it and went to see their occupational doctor after taking 2 PT appointmants got worse. I met with on of their neuosurgeons, on the first visit he spaent 10 minutes with me and said it should clear up within 6 weeks. The second time I seen him he wanated to do immediate surgery.
Upon receiving home I typed my symptoms into my computer search engine and each time an it ket coming up with a brahial plexus injusy more over TOS... after several searches I came up with a doctor in my area, Dr A Togut and he told me he cold not be sure what it was over the phone, however he would be be willing to see me an should it not be TOS, he would help me in finding a doctor who could help me and if it was not TOS he would help in finding me who could treat my condition. After a three hour interview with him that day he came up with the diagnosis of Bi-Lateral Diagnosis of TOS.
The New Company sent me to see one of their indepedent doctors, after spending 10 min with her reviewing my condition, I than spent 5 min with the wife would have the permission that my wife would not be permitted in with me and in his orders felt he had something to hide !!!
My basic wish would to be rid of some of this pain and return to some form
of normal life! I am not planning on doing any sort of doing any moto cross.

Until all My Best to all,
Mark-n-Goober

























I am sure that there are a lot of people who have been in the same situation. I am not looking for a free ride, I am just wanting to be treated by a Dr. who is tops in the field of TOS. I have not had the money to fly out to colorado, but found a way out to see Dr Sanders and after a 2 1/2 to 3 hour interview he came up with a diagnosis, this after being twisted, turned injected in various places he came up with the the diagnosis of bi-lateral TOS due to a work related accident.

[Edelweiss]

want to be a magician and if it was be possible I would let dissapear the pain and do magic for Mark`s case with the companies.

Unfortunately, I can`t and instead I send all positive and energetic thoughts that the situation will be better soon.

All the best
Barbara

[Edelweiss]

have to admit that it is not my day: feel tired, in pain and don`t have the mood to work.
Tomorrow will be the wedding of my cousin and I love familiy meetings (not at all, but there is nothing to do, I have to go there:p ).
So I will be back online on monday and I wish a very agreable, painfree and good time to all readers.
Barbara

[Jo*mar]

hello friends,
i added some search info for how to find some of the old BT1 info up in the sticky/useful link thread.

but if the cached results have more than 1 page - i don't know how to get to the rest of it.
If you click on the next page in the cached results it will go to the present BT announcement page.

I found this info in one of Liz/wittesea posts maybe she has some more ideas on that part of it.
have a nice day all.

[trix]

want to say hi to everyone. I am still waiting for surgery, and if at all possible I seem to be getting worse as time goes by. Just to refresh memories, I have bi-lateral TOS as a result of a motor vehicle accident on Aug. 28, 2006. I have done the physio and chiro. I still see my chiro 1x per week, and he is the only reason I function at all. I feel the best when I keep my hands and arms curled up closely to my chest. This unfortunatly is leading to some amounts of muscle atrophy.

My lawyer developed cancer, and has passed my case to another firm. I am very nervous about this as he had come so highly recommended, and I don't know anyone at this new firm.
TamaraShadow, any advice on questions to ask the new lawyer?

I can't drive anymore, and am finding it next to impossible to run my daycare. If I have to pick up one of the children, I find it really painful. I want more than anything to get better.

[Jo*mar]

Hi trix,
as much as possible try to keeep some amount of movement - keeping arms curled in is not to good for circulation or maintaining muscle as you mentioned.

slow and gentle movements to keep your range of motion as best you can.

Have you tried the laying on the floor thing?
I'll repost it here-

For passive gentle stretching - try
Laying on a rolled up towel or foam cylinder {approx 6"x30"}
or flat on floor if that is more tolerable for you
let gravity drop shoulders and open chest
{pectoral muscles } and use diaphramatic breathing to relax and release into the stretch

lay the length of the spine on the cylinder /or floor with a small pillow for head & neck if needed {pillow was recomemended for me because of the c-spine issues}

just relax and let shoulders drop and chest and armpits will release and stretch - place arms at a comfortable position 15-20 minutes as often as you can.

If you have mild low back troubles put a pillow under knees or raise them.
If you have any spine problems check with doctor before doing this.

I need to go do this myself - haven't been able to since we had everything crammed into living room while redoing kitchen.

[Gromlily]

Want to say Hi to Barbarea and tell her how sorry I am she had a bad day the other day, I hope the wedding goes/went well and she does not spend days recovering it as we TOSers sometimes do...

To Trix I send my best wishes and a hope that she can find an attorney that can help her get through the quagmire of W/C to aplace where she can receive the proper care and get on the road to healing...

Patience dear one, I sympathize with what you must be feeling and going through, just be patient, because the stress that you are describing can wreak havoc on your body and recovery. Is their someone else who can lift the children for you? Do you have anyone working for you that can do that? Be mindful that any thing that HURTS as you are doing it can be a RE-INJURY... AS much as you can, avoid doing anything that hurts!! Even physio. exams and p.t.!!

I had inappropriate P.T. at the beginning that worsened my injury!!
Dr.Ellis and Peter Edglow say NOTHING should cause pain!! Good luck ... and God Bless...

Hello to Jo55, and wishes for a good day.... I am grateful you are here to help us all on this forum...

Mark... SOOO SORRY TO READ YOUR STORY!!! It is very similar to mine!!! All I can say is Hang tough !! You have done nothing wrong !! You deserve PROPER CARE!!! I refused to let them push me away and demanded tests I new would diagnose my condition once and for all. W/C denied my requests for tests and my Private Insurace paid for them on a GREEN LEIN and gave me positive results for Bilateral TOS. A conclusive test that I am aware of is a specialized MRI/MRA of the brachial plexus area.

I don't know the rest of your circumstances Mark, I just hope and pray you can find a way to have this test peformed. Maybe Tam can help or has she suggested anything??? I will keep you and your wife in my prayers...

Which reminds me, the only thing they can ask your wife not to participate in is a pysch. eval. she can be present, take notes and audio tape EVERYTHING else you go for...AND SHE SHOULD!!!! You need a witness because these Quacks are the enemy!! They don't want to pay for your help!! They want to save money at your expense!!

Unfortunately you really have to FIGHT TO GET HELP!! The last thing you want to do when you are in as much pain as we experience!! So again, hang tough and don't take their attitudws and actions personally. WE know you are a honest man!! Who cares what they think!!

I wish I could write more today to others but I can't sit any longer, my arms feel like they will fall off...:(

But wishes are extended for a wonderful weekend (under the circumstances, as horrible as they might be) to all...

Hugs and Hugs,
G~

[DDayMBB]

For all, it is great to see you all around here.... My typing ha bss been rally of anf as much an I TRY IT GETSN o betterI have to pass along my thought ad love for all of oir ,embemmmr, can nor wait ro ro ro all of you shsi !!!!!!!!!!!!!!!!!!!! Mark-n-Goober

[Horizontal One]

Mark..really hope that things are sorte dout positively for you and that you have a better day, day by day....

Thinking of all of you

Today.....just popped in to say hi and wish everyone well. I am not so good again...and cannot wait to see pain cons tomorrow. My SIJ is really painfull., my knees have joined in...look like little old lady getting up....and I won't even mention my arms.

Thinking of all of you....that reminds me cannot remember who was doing RN training? Memory abysmal....anyone hope she is doing OK.

Take care.

X

[Jo*mar]

Butterfly123 was in school for nursing - but haven't heard from her in a long time.
I hope she is doing well- I guess she must be or she'd have posted something.

[dawn3063]

Boy Oh Boy... Today I am so sore.. We have had to move somethings around in our house to accomidate my husbands new saltwater fish tank.. Even though he does the majority of the work...I still had to rearrange the little things.. Now my neck and mid back are so sore among other things.. I see Pain Killers in my very near future like now...:p
I hope that everyone is hanging in there..
Mark, I hope your days get better..
Jo, I hope your chicken on the barbie is scrumpshise (I probley spelled that one wrong) :o
Gromlily, Trix and Barbara.. I hope the coming week is kind to you and you find pain free days ahead..
If I missed anyone else.. I wish you all a great and painfree labor day and lets not labor too much.. :eek:
((Hugs)) Dawn ;)

[Edelweiss]

wish a good start in a new week to all readers!

The wedding of my cousin on friday was a full catastrophy: in the night from thursday to friday I woke up with a mega big migrain and at 03.45 in the morning I took three meds and I was dizzy but still in pain when I got up in the morning.
We missed the train (was to 30% my fault because I was so slow..), the next train was 30minutes delayed, then the underground was stopped because of a technical problem.....we hurried in the hotel to change clothes and we arrived at the church 10 minutes before the final amen. +embarrassing+:eek:

I am still in TOS pain and I am really happy that I can start with the cure on september 19th. I will be far away from all and everything for three weeks and I will receive a lot of therapies and dinner will be served and the room cleaned up everyday - as in a hotel. It sounds like holidays and I hope it will be like.

I want to say to all here in this thread:
I hope you are fine and feel better!

All the best and nice greeting
Barbara

[trix]

wonder what Edelweis means by the cure.

[DiMarie]

Hi Trix,
I think it is the different language words, Barb;s is working toward getting better the word "cure" "fix" "better" "relief". Treatments to help, I bet.

barb, so sorry to hear about the folly, but gal, to be hurtiing like you and even attempt to make the church is a wonderful try.. Did they have a reception you could relax at. Often when traveling and not a immedicate family member here in the states people opt to go to the reception fowlling the ceramony and they are folks without pain issues.

I hope that you feel better today and find relief in the treatments to come.

To everyone, Happy Labor Day long weekend. I put in time last week to go with the kids out of town this weekend. Back late last night and beat with tons of house work today to do.

Appointments tomorrow, eye, attorney, doctor.....Busy week, My son has an IME again... Just wraped up De's case and now they are staring with the son.
He has not filed for soc sec and has been off work since 2001, he had work hardening and return to work once but ended up with a fracture in the facet joint of spine from lifting a passanger. His weight restrictions form comp said he coould lift with assistance, well he couldn't.

So really busy week.
Be as well as can be,
Di

[DDayMBB]

Barb/Edelweis...Erbärmlich zu hören, dass die Hochzeit so sehr hart auf Ihnen war. ...look dabei auf diese Weise wenigstens Sie haben gemacht es und mein bestes zu Ihnen!!!

Jo...I put a few links at the start of this thread, I think it will take a while till we all get everything right... I also opened a seperat Drs thread of Drs and PTs by state and country that I could come up withif any one can expand on it please do

Trix.. Sure be nice if I could be of some use to you, hang in there, there are a lot of prople who have been dealing with this TOS monster longer than I and the biggest thing I founf out is never to give up!!!!!!!!!

Grom... so mmuch thanxx for the encouragementand like you came to the point do not quit

Dawn... my most sincere wish is that you never give up, we are here for eack other !!!!!!!

To those members I left out, please do forgive me... it is starting to type the way itis.... UNTO ALL TOSers hang in there my thoughts and LUV go your way

[Edelweiss]

am sorry that I use the word "cure" - but I want to explain what this means:
this is in a health ressort and you have to send a demand with your doctor to the "prevention center" of the social security and they allow you to go there.
There is a amount of ca. 250€ to pay for the 3 weeks and the rest takes the social security and I will have a single room, all meals and the treatments during 22 days.
For those who want to see where I will be (if you click on the english flag you can read the page in english):http://www.kurbad-althofen.at
I have already been there and I was so satisfied and relaxed when I came back home.

I wish you all a good day!
Very nice greetings from Austria!
Barbara

[DDayMBB]

Today I wish each and everyone who passes by this site a wonderful day!!

Barbara, gute Morgan.... as much as I fumbled about the inrtroduction into this clinic there were 2 word in Deutsch that I could not make out " Herzkatheder-Untersuchungen " pretty much so I get through reading all your Deutsch, however sure you always get a laugh out of mine !!!!

PEACE TO ALL !!!!!!!!!!!
Mark-n-Goober

[DDayMBB]

Today I feel, like a million bucks.... went to see DR Togut and after a ssemless number of trigger point injections, I feel somewhat normal again, wouldnt you know it they shut the water off where I live for upgrades to kick it in further with a warm bat !!!! ! He will not Call me with RSD as did Dr Sanrders out inin Denver, he Just calls it CSRP, though has recomeneded Dr Schwartzman in Piladelplia for treatment... I SURE LUV to Hate Dr T great individual and person.... I just nee ans want to get through stop one my bi-lateral surgery for TOS and tha than move on !!! Truly the man is to smart for his own good !!!! Good luck one and all!!!!
Mark-n-Goober

[dawn3063]

What a Great Day.. I just got the phone call from my one Dr's office that they had gotten approval for surgery to repair my failed cervical spine fusion.. Which is now scheduled for Sept 23rd.. Happy Happy Joy Dance :D
Mark.. So glad to hear that you are having a good day today.. I hope it stays for a while..
I hope that everyone had a great labor day weekend..
((Hugs)) Dawn ;)

[Jo*mar]

whew - I need to get caught up again and more have found this place too!

my harddrive took a crash or had viruses one or the other - so now all new drive and a new full antiv, spy, wireless protection -well soon i had to see how everyone was doing - LOL

then I'll install and try to save some of my old info and email addys ect.

hi to all
Jo

[beth]

am happy to be catching up with some of my favorite people! Mark, I completely agree about Dr Togut! Just wish we could make him 20 years younger and clone him so one could have an office near me! Hate it that I only get to see him every 12-18 months :(

RSD is the same as CRPS, but CRPS is the newer term, stands for complex regional pain syndrome. Type 1 is the old RSD, type 2 is what was called causalgia, or RSD due to nerve damage. A lot of Drs still use the RSD term, but they are the same.

Schwartzman is an expert in this field, and a referral from Dr T will probably get you in to see him fairly soon as they are colleagues, otherwise the wait is something like 2-3 years! He has a lot of experience with TOS patients who develop RSD.

Dawn, that is GREAT news!!

Jo, good luck retreiving your data. I HATE crashes, so time-consuming and v. frustrating!

Wishing everyone low pain and a good night's sleep,
beth

[DDayMBB]

TODAY I........
hope that the repeat fusion works out for you dawn, I hd C6-7 done app14 years ago, by a Dr down in Philadelphia, fortunate for me it worked out perfect. I did act as my own host for the plug vs cadavar, I felt less of a chance of rejection.

Jo, glad to hear that you are up and running... I learned on my first system to have a reputable virus protection that runs at all times... plus I try and stay away from spam.... I guess if a hacker/spammer wants in, they will!!!

beth, I do really like Dr T. , all I am saying is the RSD dx seems to be accepted more readily aand may help in me getting a jump on my benefits... though wish I never heard of TOS, RSD, CRP...let alone live it ;) As far as Schwartzman is concerned, I am just holding my own with money as it is let alone another Dr bill!!!

Unto all, my wish for a good and pain free day follow each and everyone !!!

Mark-n-Goober

[Edelweiss]

don`t have much time to type...so just a short but loud "HELLO" and I hope you are all having a good, sunny and painfree day.
Barbara

[dawn3063]

Want to say Hello to everyone..
Mark, The last surgery I had for my fusion took a cadaver bone.. Which didn't work so the Dr wants to take the graph from my Hip... How did you do with that.. And how long did it take for the discomfort of the graph site to ease up.. I know they say that the graph is more painful than the cervical surgery itself.. I'm just getting the jitters about that..:eek: The surgery is no big deal since I have been through it before and know what to expect.. Just curious what the other is like..:confused:
I hope that everyone is having a good day and that everyone is comfortable and having a low pain day..
((Hugs))
Dawn ;)

[DDayMBB]

Want to say Hello to everyone..
Mark, The last surgery I had for my fusion took a cadaver bone.. Which didn't work so the Dr wants to take the graph from my Hip... How did you do with that.. And how long did it take for the discomfort of the graph site to ease up.. I know they say that the graph is more painful than the cervical surgery itself.. I'm just getting the jitters about that..:eek: The surgery is no big deal since I have been through it before and know what to expect.. Just curious what the other is like..:confused:
I hope that everyone is having a good day and that everyone is comfortable and having a low pain day..
((Hugs))
Dawn ;)

Dawn, that is true that the graft site is more painful than the neck however, my Dr had me up adn walking hours after surgery. He told me that exercise eliviates the pain quicker and after about 3 days the pain pretty much so vanished. Unfortunately this Dr does not practice medicine anymore, last I heard he was teaching at the U of P .

Unto all passing by, my wishes for a good day!
Mark-n-Goober

[Horizontal One]

Good luck Dawn......and to everyone else "Good Afternoon" and best wishes.

Though

today I.............am really suffering as we have decided to reduce meds and see which seem to be effective and others not...because side effects are knocking me about....have more pain and really fed up..taking all energy to do this (Dragon through a wobbly. Also had SIJ injection..Ok but site is sore!!
Just want to be back to my pre self and do tings I used to instead I am tethered to oxygen, breathless and hurt.

Now I am giving self kick up a*#e as I am not the only one suffering and know people worse off.
Please accept my Today I am P"##*d off rant.

Hx no more typing for a while so will look in but may not join in.....sorry

[DDayMBB]

TODAY I>>>> have to say to Horizontal One, Yes there may be people worse off, but are they living in your shoes ??? It is sad to say, pain is pain regadless mental, physical or trumactic. That is why we are here to share with one another and try and help each other!!!!!

MY HOPES FOR A PAIN FREE DAY!!!!!!!!!

[DDayMBB]

don`t have much time to type...so just a short but loud "HELLO" and I hope you are all having a good, sunny and painfree day.
Barbara

Barb, you do not need to shout:D right back at you !!!!!!!!!!!!

Mark-n-Goober

[redjpwranglergirl]

Good luck Dawn......and to everyone else "Good Afternoon" and best wishes.

Though

today I.............am really suffering as we have decided to reduce meds and see which seem to be effective and others not...because side effects are knocking me about....have more pain and really fed up..taking all energy to do this (Dragon through a wobbly. Also had SIJ injection..Ok but site is sore!!
Just want to be back to my pre self and do tings I used to instead I am tethered to oxygen, breathless and hurt.

Now I am giving self kick up a*#e as I am not the only one suffering and know people worse off.
Please accept my Today I am P"##*d off rant.

Hx no more typing for a while so will look in but may not join in.....sorry

Horizontal One,
My heart just aches for you.....You've been through so much and I hate to hear that you're going through so much pain and I think you have every reason to come here and vent because all of us here know that you're not one to just come on here and complain all the time. You've always tried to stay upbeat and you always encourage others and I think that all of us admire you for that. Yes, there are people much worse off than all of us but that doesn't make your pain any less important to you. I'm hoping that you can get through this hard time and will feel better soon.

[DDayMBB]

Horizontal One,
My heart just aches for you.....You've been through so much and I hate to hear that you're going through so much pain and I think you have every reason to come here and vent because all of us here know that you're not one to just come on here and complain all the time. You've always tried to stay upbeat and you always encourage others and I think that all of us admire you for that. Yes, there are people much worse off than all of us but that doesn't make your pain any less important to you. I'm hoping that you can get through this hard time and will feel better soon.

MEGA DITOs on what RED had to say
I know for one I would rather not be over here, but who else understands what we live with day-in-and-out than us who the beast has reared its ugly head !!!!!!!!!!

MY best to all !!!!!!!!!!!!!!!!

MARK-n-GOOBER

[DDayMBB]

Today I.......was wondering if anyone else suffers from the flexor nerve/muscle problem where fall asleep with your arm straight the last three fingers curl up and you need somebody to bend your arm and staighten it out your fingers, or yourself slowly because the pain from fingers to neck make you dizzy????

Just a question in the whole scheme of life itself............:confused:

MARK -n- GOOBER

[Jo*mar]

mornin' all- well west coasters anyway - afternoon to east coasters- and hi to everyone else -- LOL

Mark-
I found a few mentions about - I think it's termed "claw hand" or clawing???

googled this - site:brain.hastypastry.net claw hand

click on the cached versions to get the info

we can use this same search and change the topic or a name after the .net part to get to some of the old BT1 info

[The way PT explained it to me, if the tendons start to tighten, it can pull the muscles. My tricep and biceap are "shortened" so I cannot straighten my arm all the way. I have tendon glide exercises I do with my hands, so my tendons in the hand don't shorten and I don't end up with a "claw hand." Look online googling for "physical therapy" "tendon glides" and leg. Do some of those to keep the tendons limber. It's VERY important to do them.]

[ Not a TOS expert but
I've had two trigger fingers, where they bent down, particularly at night, and I had to pry them open in am, fixed with injection of steroid and lidocaine. Neither ever came back. Sometimes it is from a problem of that particular tendon not gliding properly on it's path.

Alot of these weird hand things are coming from nerve involvement in your/our cervical spine. Hand problems are quite a bother aren't they.

I find that with time, my fingers have all gone to a natural position, flexed inward a little - can't lay hand flat on table, no biggy with me at this point.

phoebe
phoebejane

[Old 09-22-2005, 07:37 AM
You brought up a good issue here with the fingers bent in... my middle, ring and pinky all are closed and to straighten them out actually hurts in my forearm. I also would like an answer as to why this does happen... I know my EMG said something about slowing in the ulnar nerve, however unsure if this could be part of the cause!
God Bless and Good luck!
~~~Mark-n-Goober~~~
__________________

Old 09-22-2005, 10:12 AM
phoebejane
very likely the cause,
although the orthopedic surgeon who did my carpal tunnels and injected trigger fingers, said no, but that was AFTER I'd had my surgery, he ran such a busy, busy clinic, and never had time to talk to me. After my injections however, I was fine.

----------------------------------------------------
I think others have this too
I think that's why curldfingers picked it for her name and some others mentioned it also.
you might try doing a search for that with the "search this forum " feature above the list on the main pages.

if I recall it can be from the nerve irritations sending a wrong signal to that nerve. tells those muscles to contract.
But I'm not up on any details of it - haven't had that issue.

you could try a google type of search too.
--------------------------------------------------------
The "official" name for this is claw hand. Search for it in Google and add the name of the nerve affected.
It is often a bad nerve that paralyses the small muscles and that paralysis produces contractures which pull the fingers into these positions.
If you have tendon problems that show up in similar ways, it is not quite as bad as there you can get rid of it with exercise and patience whereas if you get it from a pathological nerve, it is much more difficult.

An interesting description of all sorts of nerve injuries is here:
http://www.studystack.com/studytable-10342
click on "show all" to show them all.

And another good site with pictures showing the effect of ulnar nerve palsy:
http://mywebpages.comcast.net/wnor/c...iderations.htm
----------------------------------------------------------------------
hope some of these help- there's more info out there- but I've been on the computer way too much this last weeks when it has been trying to crash and now done did it - and now rebuilding & resetting up my info.
if anyone wants a link for kubuntu - a easy Linux operating system
let me know.
I can boot from winXP or Kubuntu
still have to work out my wireless connection for Kubuntu - doesn't see my wireless card

[dawn3063]

Wow, what a beautiful morning it is here in So California..
Thanks so much Mark for sharing your experience with the bone graft.. It helps..
My Surgery date for my fusion repair was pushed up to the 22nd.. So less than 2 weeks to go.. :eek: I had to stop my anti-inflamatory medication yesterday so I'm not looking forward to the aches that will come from that...And today my head feels like I have a vise closing in on it.. Ugh..:(
I hope that everyone has a pain free weekend..
((Hugs))
Dawn ;)

[DDayMBB]

TODAY I........

Have to say thank you to Jo on the links and info she provided, hopefully it not only aids me, but also others who are going through this! Once again this moring bending my arm after sleep with it straight caused great pain bending it, but was able to do it with out waking my wife :cool:

I know you will do just fine Dawn with your surgery.... there are a lot of people ove here pulling, thinking, and praying for a quick return in health for you:) Dawn to be exact it is the illiac crest (top of the hip) where they take
the bone from. If you are into vanity, you may want to check with your Dr what and when you can start applying something like cocca butter to this site to help not scarrring, me I just look at it like another part of me:D

Read back in this post and would like to remind BOTHRed and Horizontal One, that this forum is not always here to share or talk about the good things in one's life (though that is always a nice thing when that happens) but also a place to come and vent to others who live like we do!;)

Was nice to see some of the regulars from BT 1 moviing about like Law, Krankiegirl, Tam, Gromlily, Edelweis, DiMarie, Beth... some new people like Orthomolecular, hairdresser, Bobbi.... so sorry if I missed anyone, and if I did please do by all means pop by and say Hi or if you know anybody from the old boards that need a hand moving over here please do help them find the way HOME

I was wondering if anybody knows of a way to move a Post over here to the top so that when others come about they see it first.... I do beleive That Drs list that I created should always be on top as well as "Useful Sites" started by Bobbi. Personally I think Churchgirls Doctors list was more inclusive than what I could dig up, but trying to share tried and proven doctors and that was all I could come up with!

I pass along a bit of extra hope for DiMarie.... had a personal E-mail from her and at the moment her life seem to be in a bad spiral downhill fast, truthfully I do not know how she handles some of the things she does!

am highly upset with my bank.... they put a freeze on my account due to lapse in child support *(which my support officer knows)* once I get things straightened out my guys will be taken care of.... Kind of hadr considering I have had no income since 10/10/05 and WC is pulling delay after delay! Well when we were told there was a freeze on the account the banks rep said they would cover all checks till things were straight! NOT we have been getting service charge after service charge from the checks we had out before we knew there was a hold on the account! We always had a good credit rating and I always paid above and beyond on my support!!! Even though I am sure she used the money elsewhere.... infact, whne my guys come down, they do not bring a change of clothes, I always purchased a wardrobe for them here!!!!

Oh Well.... need a time out fingers and left side is starting to hurt hope to hear back in the mean time as it rests !!!

From Mark-n-Goober, we wish all a good day !!!!!!!!!

[tshadow]

I am so sorry Mark that you have to live through this stuff.

The stress will kill us if the TOS doesn't, huh?! Hang in there for all of us, though, please...but it is so wrong of work comp to do that to you.

Sympathy - empathy - love your way!

Tam

[Jo*mar]

Dawn good luck with you upcoming surgery.
My son nearly had to have a graft when he shattered his wrist- but dr was able to use many pins after all.

Dimarie - I hope all gets smoothed out soon , you have such a full plate- we miss you here.

Mark - fees and bills - grrr---
It's almost like that old saying about death and taxes!

my vent - found out my WC atty "fibbed" or was incorrect , when he said I could submit my left over bills to my pvt ins carrier..

they did pay some of them but when the big PT bills showed up ---they declined
I appealed the decision and got a letter with an enclosure of the policy-

they do not cover any work injury bills - but as a courtesy they will not ask for repayment of those that they did pay.
well at least that is a break.

so the next step is to see if it goes to collections?? and if they will negotiate for a lesser amount.

wittesea has found links to the drs list {cached} I copied all the info from them to both of my sites.
http://forums.delphiforums.com/TOSRSI/start
http://pub36.bravenet.com/forum/3018365670

or you can ask docjohn to make a sticky for a Drs list and we can get them all in one place.

[DDayMBB]

Today I.......
Ask all to take a few moments of their day to remeber those who went down by the hands of the radicals ! Also to think about our people in Afghanistan and Iraq, who are there trying to quell any further acts of faceless destruction ! Also I ask those in the US to Fly the colors of the flag, in support of our people over there and the dead, fallen and wounded!!!


Mark-n-Goober

[redjpwranglergirl]

Today I.......
Ask all to take a few moments of their day to remeber those who went down by the hands of the radicals ! Also to think about our people in Afghanistan and Iraq, who are there trying to quell any further acts of faceless destruction ! Also I ask those in the US to Fly the colors of the flag, in support of our people over there and the dead, fallen and wounded!!!


Mark-n-Goober

Amen Mark,
This is an extremely sad day for our country and it's hard to sit and watch all of the tributes that are on TV today and also the video tapes of that day- the planes hitting the buildings, the twin towers collapsing, people jumping out of buildings, people who were covered in ashes leaving the buildings, the plane crash in PA, and so on.....It's hard, but we NEED to watch this over and over, so we don't forget....We need to remember the police officers and fire fighters who lost their lives trying to save others, and our soldiers that are fighting and many of them losing their lives, for our freedom- which also includes freedom of speech. We need to remember that things have changed forever and there are people in this world who would like to wipe us off the map, along with any other country that is different from them, and they would do this without a second thought- we need to pull our heads out of the sand and realize this..... I have to admit, I'm stunned by some of the things that are being said on forum feedback on this very subject, but I've just stayed out of it. We do all have the right to say what we think and to have differing opinions and hopefully we can allow others to have a different opinion without attacking them or their opinion. But, no matter what we think about the war or our government- and while this country isn't perfect, it's still a wonderful place to live, otherwise why would so many people across the globe be trying to come here to live? And I thank God that we have the right to say what we think and live in freedom- because in many of the countries in this world, people aren't allowed the freedom to say what they think- especially if they're criticizing their government. I support our country, I support our president even though I don't always agree with everything he does, and I support our troops who are dying for us to have the rights we have. I hope I haven't offended anybody- this is just my opinion.

[Jo*mar]

Boy it brings back a lot of memories- I was at work when 9/11 happened - so fast we all changed to the same radio station and turned them all up .
everywhere we walked we could here the reports - not too many scopes built that day.
many of us even on the west coast were in shock at the news.


on another note-
since my hard drive died - I lost my email addresses from those of you that I had-
and no I can't remember them - braindrain LOL

so please send me a PM or email with your email addy-
I think it would be nice to have everyones -
in case of anymore BT1 or BT2 crashes

and my websites are listed in my post before this one {bookmark /favorites them}- so you can always post or message me there too.

[DDayMBB]

TODAY I....
have to tell Jo, that it isno problem handing out my E-mail Address..... DDAYMBB@aol.com all I ask is to include in the heder who you are and that you are from BT!

Hope today will be a better day than yesterday for all:)

Mark-n-Goober

[Edelweiss]

apologize for not writing the last days. I had a lot of things to do, and my arm hurts, so I didn`t want to type more than I have to at work.

I read all your posts - so I am up to date what happens.

Just want to wish a good day to everyone!:) :) :)

Very nice greetings
Barbara

[Edelweiss]

it is me again!!!

I have had some ear problems the last weeks and yesterday I saw the ear-doctor and he told me the ear is ok, the problems come from the cervical vertebra. He asked me, if I had some difficulities with the cervical vertebra but I didn`t talk him about TOS, I just said I am happy that the ear is OK.

So far the latest news!
I wish you all a painfree day!
Barbara

[DDayMBB]

Barb,
Is it not funny (strange) in a way that TOS could affect so many different areas? Just glad that all worked out for you in the long run !

My hopes to all is a great painfree day without troubles or incident!!!

Mark-n-Goober

[dawn3063]

Want to wish everyone a quick hello and a wonderful and painfree day..
((Hugs))
Dawn ;)

[DDayMBB]

TODAY I.....have to make mention it wa nice to see somebody else find their way here.... ROZ, although now she is going under the username of Buckwheat.

Wonder who ever made up up the work comp system... seems as though I have been placed in the center of a spining tub ! Their side came up with a witness who said I was no where near my truck when it rolled, though when she gave her depo I was no where near.... it was the customer who I was delivering to and I would have really liked to look in her eye when she gave this testimony! I wont get into the whole scheme of things, but there is no way I could have made it out of the truck on such an angle and been at the side of her house when it rolled, second of all, it requires someone to add air to the brakes (letting off the parking brake) for it to move thus me in the cab... regardless, I am in need of closure on WC before I lose it... MORE THAN I AM ALREADY :D !

Hope the day is good for all that pass by and if you feel inclined feel free to pass along a HELLO :)

Mark-n-Goober

[sandy1955]

I'm checking to see if i can get a message through

[sandy1955]

Yeah!!! let me jump up and down....I have soooooooo been going through withdrawal not knowing where to find everyone.

[Edelweiss]

am happy that sandy found us! welcome!

In the afternoon I will go to a "sweet festival" downtown - there will be the longest "Apfelstrudel" and different chocolate maker, etc... the programme sounds quite good. And sweets alway help better than meds - with me!

I wish you all a quiet weekend and no pain at all.
Barbara

[Edelweiss]

want to say to Mark: NEVER GIVE UP!!!!!!!!

All the best!!!
Barbara

[Horizontal One]

Today I.....send Mark a big HUG...

[Stardust]

Thinking of you....hope things get easier soon.

[dawn3063]

Want to say Hi to all TOSers and I wanted to wish them a good day...
Wow, I can't believe it is sunday already.. Only 5 more days until I have to have the bone harvisted from my hip... Ouch.. :eek: and my fusion repaired..:eek: ..
Best days to all my TOS Buddys..
((Hugs)) to you all..
Dawn ;)

[beth]

Dawn,

Double OUCH!! :eek: That doesn't sound pleasant - the bone harvest part. I imagine you will have more post-op pain from this than from the fusion site, is that right? Do they do the harvest and then immediately do the fusion repair? How many days will you be in hospital afterwards? Is there someone who can let us know how things went and keep us up-to-date with you?

Will keep you in my prayers for a successful surgery and short&sweet recovery!!

beth

[Edelweiss]

want to inform you that I maybe will be off for three weeks. Tomorrow, I will start my "cure" - I have already talked about it - and the internet point is expensiv so I will jump in rarely.

I keep my fingers crossed for you, if it is for the surgery (bone - dawn!) or the workers comp (mark) - I really hope that "the stars are staying good for you" (translated word by word from german - sorry but I hope you understand what it means!)

And all readers I wish a good and painfree time!
All the best wishes,
Barbara

[Jo*mar]

Barb have a good "cure" we will be looking for you when you return.

hello to everyone this morning
jo

I added links to those Drs list threads into our useful sticky up at the top.
so if anyone needs that info it will be easy to find- plus I added it to both of my little websites and links to them.
If we ever start getting any newbies- LOL
still no word about BT1 - I asked in the BT1 flash chat and just was asked to have patience. LOL I think I spelled it wrong patient as being a drs patient or to have patience...??
AGGHHHRRR
I used to be an excellent speller- now i'm lucky if it looks near enough to right cause I can't remeber the difference geez

[dawn3063]

I just wanted to pop in and say Hi.. I hope that everyone had a great day and wishing everyone a better day tomorrow..
Just 4 more days to the big fusion repair.. I'm on the countdown now..:eek:
Tomorrow I have to go and get my neurography repeated on my right brachial plexus.. Been having a couple of aches since my surgery in Jan.. So the doc wants to make sure everything is going ok..
Beth, I'll try to get my neice to sign on under my name and update you guys..there harvisting the hip and then directley to the fusion..:eek: I'll be in the hospital 2 to 3 days..
Barbara.. Have a good cure and well see you when you get back..
Jo.. Love the rose..
And Mark where is Mark.. Hope your doing well..
((Hugs))
Dawn ;)

[DDayMBB]

TODAY I......

Return a very light hug to Horizontal... like I tell my children "careful do not break the dad" :D

send all my best to Dawn ! If your surgeon is as skilled as the one who did my fusion, you will be up and about hours after surgery.. do hate to break it to ya, seems like the only way to get the pain from the illiac crest is woking through it... meds do not hurt either :) !

Barb, hope "the Cure" eases your tense nerves, though sure the down time will do you well !;)

Stardust, all I can say is things can not get much worse so my thoughts are always leaning towards the positive things in life .

Jo, that is great that you were able to retrive and get the old Drs. list up top... I did have one on here that I had from another source but it was not as thorough as that one ! ;)

Seen another member from the past Olcyen found her way over to BT2... staarting to seem like like the old board coming back together !!!

Pass along a wish that all are doing well and that with the start of a new week all remain pain free and any legal woes work out for the best ........... MARK-n-GOOBER

[DDayMBB]

Today I... think I spent 2 much time at one sitting typing and going to be paying for it !!!!

[DDayMBB]

TODAY I..... was wondering if anybody else has notice loss of hair on their arms down towards the wrist area... I know the vast majority over here are women therefore many of you might not notice due to gender differences


TODAY I.... Wish all a great day:)

Mark-n-Goober

[Jo*mar]

I wish I would lose some hair !
especially the "old lady peach fuzz" LOL

I think some hair loss can be thyroid related, has your beeen checked lately?

Is your hair loss in an area where you have a lot of symptoms or pain?
{swelling or parenthiesia?/ i butchered that word- i think}
could be a partial explaination if so.

[DDayMBB]

I wish I would lose some hair !
especially the "old lady peach fuzz" LOL

I think some hair loss can be thyroid related, has your beeen checked lately?

Is your hair loss in an area where you have a lot of symptoms or pain?
{swelling or parenthiesia?/ i butchered that word- i think}
could be a partial explaination if so.

No Jo the more I talk to people.... it does seem the finger nail growth and the diminishing hair all has to do with RSD (which I do not have )... my doctors call it CRP which from my understanding is the same thing. Old heck, I think we all change age from day to day on our age. Here again being the opposite gender (male) my age has not progressed from the age of 13 or 14... except now my toys cost a bit more... we all like bright shiny objctes that make noise:D

Thoughts go out to all>>> Mark-n-Goober !

[Gromlily]

My prayers go out to Dawn today, I am hoping she is well rested and prepared for her surgery. I am praying that the surgery goes well for her this time!!

I want to say Hello to everyone else .... just thinking of each of you, hoping Barbara is doing well, Mark, you too !!! Jo, I got the ol' lady peach fuzz thing going on too !! Yuck-o !!! I hate this growing old business!! :p

Tam and Law, hope all is well with you two, Cyndy also..... Trix, tied, Astern, Beth, everyone, Hugs to all...

It's a beautiful morning here in Northern CA. Fall has definitle arrived!! I think Gromit and I will try and take a walk this morning and enjoy the golden hills, the vinyards and the llamas up at the top of the road!!

Best wishes for a minimal pain day to all!!
G~

[redjpwranglergirl]

Yes, here's hoping that everything goes well for Dawn. How are you doing Gromlily? I hope you're having a good day too and I wish we had your weather here! It sounds wonderful!

[dawn3063]

Want to Thank everyone for there well wishes and prayers... My surgery is scheduled at the "Crack of Dawn" :D Literally.. It was a busy week and I was a little nervious but I'm doing ok now and acually looking forward to having this fixed.. One less thing to have to deal with.. :rolleyes:
I hope everyone has a good weekend..
((Big Hugs)) to you all...
Dawn ;)

[DDayMBB]

TODAY I.....

pass along to Liliy, that it is not the groth of hair, it is that the hair is going away right up the arms from the wrists.... was basically told it is due to CRP(another name for RSD)... also my finger nails grow like mad... as far as thyroid and all other routine blood tests I am healthy like horse :D

redjpwranglergirl said Yes, here's hoping that everything goes well for Dawn. How are you doing Gromlily? I hope you're having a good day too and I wish we had your weather here! It sounds wonderful!
Yeah she is in my thoughts also, though once she getspast the pain in the illiac crest (the area where they take the graft) I think she will be back on the board in no time ! ;)

Dawn you will probably be in a triage area by the time I get this written... just in case please remember I am pulling for you !!!

Hate to say it but when I looked at my Thermometor outside at 4:00 am it was 42 F (appx 6 C) God I hate winter, should it not be for my childern I would be way dow south!

[color=blue] my best and heart felt wishes all have a good week end[/color/ Mark-n-Goober

[Gromlily]

am wondering if Dawn is in recovery yet, and hoping she has plenty of pain meds.!!

I also want to say Hi to Redjp and thank her for thinking of me! I am doing allright; just the usual aches and pains!! Hubby is about the same. I hope you are doing well and am so glad to see you here!! It is good to hear your thoughts and insights again!!

We do have wonderful weather right now. It is harvest season for the grapes, so we have been watching the big trucks come from Korbel and other wineries to pick up the grapes and take them to the wineries.

Mark... I was teasing Jo about the old lady peach fuzz we women unfortunately get!! I am however having trouble with my nails; they used to be so long and strong and now they split and peel. I think it is more related to my thyroid though, as I am hypothyroid and take a replacement hormone for it.

I hope you are able to find out about your nails and hair loss. It would be interesting to know if it is a symptom of TOS as well as the RSD.

Thanks for your thoughts and good wishes!! I hope you are able to enjoy the week-end, even if it is cold!! I don't like winter either!! Especially now, it causes so many aches and pains!!

I used to love to wak Gromit in the rain before all of this! I know, stinky wet dog but it was worth it!! We had fun!! :p :)

Best wishes for a wonderful week-end for all!!

((HUGS!!))
G~ :)

[Jo*mar]

It was chilly last nite here too- built the first fire of the season.
One of the news channels said Oregon is in for a rough winter.
per the Farmers Almanac.
i didn't have time to check it out for myself yet.

[gibbrn]

:eek: I vented in my other post but I learned that I must assert myself with my family as they do not understand that my pain is back and can't understand what it is like to be in so much pain just from such a simple task as ironing........but I did vaccum the main floor as well.....STUPID girl did too much......when will I learn that I must face the truth again and pace myself not a moron just acting like one!!!!!!:confused:

ttfn,
Victoria

[dawn3063]

Wanted to say Good Morning to everyone.. Today I am doing quite well and I slept pretty good last night.. Our beds at home sure beat those nasty hospital beds..
Here's wishing everyone a great week ahead..
((Hugs))
Dawn

[redjpwranglergirl]

Wanted to say Good Morning to everyone.. Today I am doing quite well and I slept pretty good last night.. Our beds at home sure beat those nasty hospital beds..
Here's wishing everyone a great week ahead..
((Hugs))
Dawn

Dawn,
I'm so glad to hear that you're home and doing so well! I have experience of those hospital beds too :eek: :( so I know how you feel. Take it easy and get plenty of rest!

[DDayMBB]

TODAY I....

I have got to tell Jo that all that chilly and white stuff can stay out your way

Can understand where you are coming from and than when you become a martar or such, especially you realize that it is to late and hurt already, now I think you should take a day or 2 2 off Victoria

Have to close out now before I start hurting

Mar-n-Goober

[gibbrn]

I am thankful that all of you are aware of the daily suffering and stress this causes us all. I am aware that things could be worse....my left arm can do somethings....but of course there are things that only the right can do.....lol ok girls sorry that one was for you or the boys if you take it the other way......clean this up girl.......sorry 130am......

I am thankful to have faith in myself, all of you and that there is a supream being above watching and waiting for the right lessons to be learned........there is a reason for everything I believe that with all my soul.

Have a wonderful day alll will pray for all!!!
love
Victoria and my lil cat Shadow.......:)

[dawn3063]

Want to say Good morning to my TOS family.. It's been one week today since my spinal surgery and so far everything seems to be healing well of course I won't know how the fusion is healing until they start doing the x-rays..:rolleyes:
I pray everyone has a pain free day..
((Hugs))
Dawn ;)

[gibbrn]

Today I am thankful for partly cloudy days. The sun has been elusive here lately.... so tired of rain!!!!! Not that I would rather have snow!!:eek:
...
To Dawn I hope your pains levels stay low and you find out that your surgery has been successful!!!!!:D

Today I wish everybody a pain-free day. I also wish that everyone can find joy in one small thing in their life today. Even if you are suffering just one tiny little thing that makes you smile:o I hope you find that!!! My heart goes to you all. Offering support if any need it in the way of articles or anything else I can do. [Thank God for Dragon].

Sincerely,
Victoria:p

[beth]

got my trial spinal cord stimulator! They were able to get both arms covered from fingers to top of shoulders and both underarms, and a bit of relief in the scap areas as well, so that was a success. It's weird to get "zapped" when I change position, will take getting used to, but supposedly better with permanent implant once it's scarred in place.

I think it's going to work for me, seems to be much less pain in my arms and shoulders!! YEAH!!! My neck is VERY sore tho, had to hang it off the edge of the operating table for entire procedure, over an hour - OW!

Will keep you posted as to how this works for me, get the trial out Mon afternoon - need to take some Tylenol now, then off to my daughter's Homecoming football game, at least for a bit. Taking a nice WARM blanket - brrr, getting chilly out there :(

Wishing a low-pain weekend to all,
beth

[Jo*mar]

Today I..
hope OBT can rescue the lost posts and threads- but I guess we'll know before too long now.

I would hate to have to start all over again- at least all the articles are still safe on the MSN TOS articles site.
Victoria - you should add that info in your sig - like you used to have.

[dawn3063]

Just wanted to say Hi to all my TOS family and pray that you all have a low pain night and a goodnights sleep..
((Hugs)) Dawn ;)

[trix]

None of the document or photo links on the MSN site work. They all come up saying this page cannot be displayed. Any idea why?
Tracy

[Jo*mar]

I'll check at the TOS msn site to see if it works for me.
You might PM gibbrn too and ask -she is one of the founders I think.

I tried to look at some too, pictures as well as documents - I left a message there that we were having problems getting doc & pics to display.

Hi Dawn- I hope you are still doing well.

Mark, haven't heard from you for awhile??
Hope you are OK.

[Curious]

bumped up this thread to help beary another one. ;)

actually....i'm having a lesser pain day. what i did right i have no clue. might be that i refused to pick up even 1 of grandmonkeys toys yesterday. he did a good job himslef. and i didn't cook dinner! hubby took the monkeys out and i watched an hour of tv with NO interuptions!:eek:

have a wonderful day everyone. low pain to all.
(((hugs)))
Curious

[dawn3063]

Want to say "Good Morning or Afternoon" to everyone..
Jo- Thanks for thinking of me.. I'm doing ok.. I see the Doc tomorrow for my 2week post op follow up.. X-rays and :eek: I hope I see fusion..
My MAC is down so I'm on my Laptop PC.. I have a voice system on the MAC.. But I have to result to the typing on the PC and Uggggg :( It's not easy.. So I'll sign off for now and I hope that everyone has a low pain day..
((Hugs))
Dawn ;)

[flippnout]

I had PT at home and of course hurt. But i'm still hanging in there.

[gibbrn]

Am patiently waiting for my new laptop to come so I can be wireless with no virus again!!!!!!

I am looking into the msn incident with a huge attitude....you guys know my style......:eek:

take care all....praying for us alll.


Victoria

[astern]

...had a checkup with my state-supplied Dr. - She's very good and competent. But I really don't think she has the time or desire to understand what's happening to me.

My last pain episode (2 wks ago) was the worst yet... threw up all my pain meds; pale; heart palpatations/flutters; shaking; couldn't see (could only open rt eye); could hardly speak; freaked me out enough to start getting my final affairs in order. I asked the Dr. today if I should go to the ER the next time this happens. She started to order a head CT and pain mgmt...HAHAHAHA. If I had the $$ for that I wouldn't be in the clinic seeing her! At the clinic from 2:30-5:30 today for that. At least I got all meds refilled. Her answer - which isn't a bad idea - is a suppository for nausea along with meds when this happens. Guess I'll give it a whirl! :rolleyes: (was she sending me a subliminal message?)

Wishing everyone here more pain-free days and lottery winnings!! :p
Anne

[Curious]

((((anne))))

i had to use those type of suppositories when i pregnant with sistermonkey (baby #2) i swear i couldn't keep air down. :eek:

i hope they help.

[beth]

Anne,

How did the episode start? If I wear a bra, or sometimes even just sleep on my side, I irritate the brachial nerve that branches off the plexus. It was injured by the vaccine reaction and then irritated or injured again during surgery. It runs down along the rib cage, with a branch between the first two ribs and another branch that runs across the underarm and down to the elbow (don't know where it goes from there).

When it's irritated, the branch between the first two ribs causes chest pains (faux angina). When these start I get pale, clammy, dizzy, can hardly draw a breath, and very nauseous. If I have a bra on, it has to get off, right this minute! If I can get into fresh air, that helps, and I have to consciously use relaxation breathing, deep breaths from down low.

The bad part was when these attacks started happening when I was lying down, trying to sleep - just from the pressure of my arm against the nerve. I'm not sure if there was a link, but it seemed like the nerve flare was linked to anxiety. I practiced using deep breathing and being purposely calm and letting go of things during the day, and the nerves calmed down shortly after.
Which was good, because it's hard enough to get sleep anyway, without panicky attacks of chest pains and breathlessness.

This nerve is also what causes the burning elbow pain and underarm pain, that surgery and other treatment hasn't been able to resolve - that's because it's a permanent nerve injury. I just finally learned this from a visit to Dr T in May. However, the trial SCS DID cover both the pain in the elbow AND underam, and brought an amazing sense of relief! How I pray that the permanent SCS surgery is successful!!

Your description sounds so similar, I wonder if maybe this nerve wasn't damaged in your first surgery? Do you think that's possible?

Think of you often,
beth :)

[LisaL-TOS]

...
My last pain episode (2 wks ago) was the worst yet... threw up all my pain meds; pale; heart palpatations/flutters; shaking; couldn't see (could only open rt eye); could hardly speak; freaked me out enough to start getting my -free days and lottery winnings!! :p
Anne

Anne, I have had these type of attacks. (about 14 total in the past 3 years) It would start with the left arm pain and then left shoulder and upper left cervical and shoulder blade. The heart palps would start, weakness and dizziness would follow, could not speak and had to lay down for about 45 minutes until they passed. I do not know what triggered these but when one of these hits you again, go to the ER room and ask them to take heart Enzymes, i.e. Troponin and CK-MB to make sure it is not your heart. If these heart Enzymes are normal a good ER doctor will repeat them in 4-6 hours. This is a must. They MUST be repeated in 4-6 hours if the first set is normal.
It is not unusual for women in their forties to have heart problems brought on by other conditions. Many ER doctors frown when a younger woman presents with "unclassic chest pains" but more women are presenting differently than men and are not being taken seriously. Peace of Mind is everything. I know. Wishing you better days ahead.

[Jo*mar]

that's good info to know- about the enzymes
Thanks Lisa


[heart Enzymes, i.e. Troponin and CK-MB ]

I hope I can remember those if I need them.

[LisaL-TOS]

that's good info to know- about the enzymes
Thanks Lisa
[heart Enzymes, i.e. Troponin and CK-MB ]
I hope I can remember those if I need them.

I have become an outspoken advocate for women and heart disease. I will be listed in a book coming out in April/May 07 and am currently writing my own and also an article for a magazine...(Time to be determined). As much as we all dread Breast Cancer, BC can be cured if found in time by getting regular mammograms and good monthly self exams. I know of 5 breast cancer survivors (10 years plus now) 1 in 9 women die of breast cancer. One in 3 women die from heart disease. HD is the no. one killer of women. Don't let any male doctor intimidate you when you present pain or "anything" that does not feel right. Act upon it and get your records and view results yourself. Get educated on this disease and especially if there is a family history and one is diabetic. You may be saving your own life.

[Curious]

lisa,
i am a big advocate to self breast exam. on an all ladies board that i post on ( just local chit chat :p ) we have specific date each month for everyone to post their exam results. and boy howdy...you don't post your results by 6pm :eek: emails pm...phone calls!

it is surprising how fast the month goes by and how easy to forget. more than once i have been reminded.:o i treasure those pm's!!

how exciting to be writing that article. i hope you share it with us when you are done, or tell where to get the publication.

[DDayMBB]

TODAY I....

pass along greetings and let jo know that I still exist however, been limiiiting my 'puter time

Curious... Monkeys (here I thought they all were just angels)... in Devils clothes :D

astern, I surely hope all is normal with and that you can avoid the DR;)

Beth... well I never tried the bra thing (just not me:D) however it is like I have brought up on other threads and asked my doctor... how the heck are to know when we are in the throughs of a heart attack or stroke, at times, the pain I get spreads across my chest numbene down both arms and seating ane elevated pulse just brought ou by the pain at times goes up the left side of my nec and causes my left eye to fltuuer and not focus proprly aka stroke? anymore I just assume everythin above the waist to be RSD or TOS hope all works out

flippin... I think therapy incresed my TOS as does my Doc, hope who ever is working on you has TOS experience

Dawn, truly I hope your fussion is set in place and the graft site is feeling OK! They have you in a Philadelphia (STIFF) callor or soft the phila makes it har to turn and the smell from sweating undr the foam gts bad:mad: all in all, I think you will do fine;)

Victoria... comm on you and attitude that boggles my mind great seeing you around

Lisa, when I worked in the lab the cariac enzmes were done X3q12hr, because a peson with an athletic heart will be high... though you are correct and a 12 lead EKG are great thinggs and as on TV it is stated # 2 killer of heart attacks are women so guess safe than sorry fit this bill

MARK-N-GOOBER Wishall a great day

[LisaL-TOS]

Hi Mark, No. One Killer in women is HD. Not use to be but is now. Why, because many of the doctors do not take women's symptoms seriously.

Emzymes: If a person comes to the hospital with RECENTchest discomfort (within an hour or so) more often than not...Heart Enzymes will be normal. That is why a second set of Enzymes should be taken 4-6 hours later. If these are elevated then usually the Cath team is alerted and Heparin started or another blood clotting med. If one has waited for hours to get to a hospital after having chest pains and it is truly Heart related discomfort, the Enzymes are usually elevated on the first try alerting the doctor that this is not just the start of a possible heart attack but may be in full blown Cardiac Trouble. If the same patient waits for hours before going to the ER room and then Enzymes taken and they are normal, chances are that the second set will be normal also but this second set still needs to be taken. Normally in a patient with two normal enzyme readings and no risk factors, they are sent home after the second set of results. And with risk factors and two normal enzymes the patient may be monitored for 24 hours before being released.

I have been through this both ways. I have it memorized. :o

[gibbrn]

Hi,

When nursing if someone had chest pain (and in Canada HD is #1 killer of women!!!!!!!!!!!!!!!!!) we took Cardiac enzymes.....ck and trop1 every four hours x3!! That way you get a good look at what is going on. If you ever have chest pain go to ER immediatly and get 12 lead ecg and then ck and trop's......not sure if they are called the same is US......but when I went in with chest pain KILLER I thought I was dying and all was normal.....I was working at the time and my colleges sent me to the er to get checked out. I was working out and doing millitary presses.....and that was squishing brachial plexus....extra rib and all............ no heart issue thank GOD but still needs checked!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! !!!!!!!!!!!!!!!!!!!!!

ANY CHEST PAIN GO TO ER....GOT IT GUYS....DO I HAVE TO BE YA'LL'S NURSE....NOT THAT I MIND I NEED PATIENTS!!!!!!

love to all.....

victoria

ps....Mark....thanks for that.....lol......was unsure if you were calling your mind great or great for me to be back.......lol....got it not reading right.....4mg of zanaflex and all!!!!!!!!!!!!

love again,
Victoria

[dawn3063]

Had my 2 week post op follow up appointment with my Ortho surgion for my Cervical spine revison/fusion.. He was very Happy with how everything is looking so far..:) He told me I could chuck that nasty old Aspen Collar.. YEA !!!! It sure felt good to peel that off.. :D
He told me to start doing gental range of motion exercise and then will see me back in 4 weeks... :rolleyes: Then I will go off to PT... One step closer :p
So far all is looking good..
I hope everyone is doing well and having a low pain day..
((Hugs to All))
Dawn ;)

[DDayMBB]

TODAY I......
Guess I was wrong in my thinking on #1 killer.....

best to all and SET in my place:) Mark-n-Goodber

[Horizontal One]

JUst to say hi to all and hope that you are doing Ok....I am feeling better in myself, but still lot of pain, so I am reading posts, but unable to post lots of replies.

So TODAY I....am sending a note to say I am thinking of you all....
Take care
Hx

[gibbrn]

Hope all have a somewhat pain free weekend.......:confused:

Thinking of you all...
Victoria

[DDayMBB]

TODAY?TONIGHT..I pass along greetings unto all right the moment trying to ignore GOOBER he is up (probaly from the cold snap we have beeen hving, though sent him away elsewhere:D I do not think it helped going out and supervising ,y youngest as he did some target shooting with a few of my favorite firearms... no I did not shoot he did all the setup etc... Though think taught him well and do beleive the respect of what he has in his hands... needless to say once home and him cleaning them out right into the safe!!!
PEACE GO WITH ALL AND PANI BE GONE... would'nt that be nice :)
Mark-N-????

[DDayMBB]

TODAY I.... would like to pass along to all JL got BT up and working again I am going to add a link here to it hope it works for all!!!


http://brain.hastypastry.net/forums/forumdisplay.php?f=263

I wish all a pain-free day !!!! Mark -n-Goober

[DDayMBB]

TODAY I......must say I am feeling great, just got back from the Drs a short time ago and while there was given Tigger point injections.... each bit of pain caused by the muliple injections are surely worth it.

I would hope everyone else is doing fine and pain free !!!!

Mark-n-**Goober** **who has been settled a bit by Dr T :)

[gibbrn]

Today I am thankful for Trains and that I am able to be with my guy now and I was able to travel without driving!!!!!!!!!!!!!!!!!!!!!!!!!!

Happy day to all and pain free living.....

Prayers to all,
Victoria

[DDayMBB]

Today I.....
... Victoria, I have to say your signature line has so much truth to it!!! I found a site that has different items for sell regarding such things like buttons, mugs, T-shirts etc... concerning disabilities without the outside apperance! Should you wish to view the site PM me and I will send you a hyper-link to that site, 'cause I do not want to appear to be advertising for anybody or thing

... send out my wish that all have a day free of pain !!!

Mark-n-Goober

[DDayMBB]

TODAY I......
......... want send out an ear to those whom feel the need to bend one and hope the day comes about without being in pain for all and that everyones troubles are not existant or mild !!!!!!!

Mark-n-Goober:)

[gibbrn]

Hi Mark,

tried to pm you and it wouldn't let me....send the link alongl.....you can pm me...

take care and Kiss your pets....lol

Victoria (cat person.....Siamese....part anyhow...cat person)

hugs

[DDayMBB]

TODAY I..... Do not know why you were unable to PM me Victoria and you are not the only one to say this.... wonder if there is some setting within the Control Panel that I have to change. Well I do not have Cats but my 185 lb lap dog is my buddy... good thing she can not talk because of some of the things I tell her throughout the day :D

...... pass along a HELLO TO ALL TOSers AND HOPE ALL ARE WELL!!!!!

Mark-n-Goober

[Jo*mar]

Sent a test PM to you Mark.

How are the TrP injections holding up?
still working for you ??


I thought my dogs at 54 lbs were big enough! Good thing I trained the white one to jump into the tub on her own - she's the only one that gets to be in the house often.

they are all only mid size though { knee height}

[DDayMBB]

Today I..... thank you Jo for the "test" letter, I had not touched anthing in the CP with the exception of my signature line, so I am unsure how it happened, though only people on my BUDDDY LIST were able to sedn me PMs, that has been changed :)

.....have to tell you Jo, "Kita" thinks she is a lap dog though when it thunders or fireworks go off she is up on the couch and we are on the floor:D One thing though is when she steps on your bare foot you know it !!!

Betst to all... Mark-n-Goober

[Jo*mar]

We only have one that is afraid of loud noises - our middle one.
neighbor likes to shoot out back of his property, the guard jets flying over after practice, fireworks, thunder.

she's getting worse too this 4th of July we had her in the back porch while we were gone. came back to let her out and she had torn the trim boards off the house door-trying to get in.
I think we have to get doggy tranquilizers for next year.

[gibbrn]

glad to say my baby.....(cat) Shadow is only 10lbs!!!!!

goood night to all hope you are all pain free!!!!

good night all
victoria

[DDayMBB]

Tooday/Tonight I...... Have to mention Jo, are previous Dog which was smaller (about 110 lbs) was afraid of fireworks also, the Vet gave us alprozapam and she did not handle it well, she was in a stupor for several days after. So after that experience we never gave her those again... she used to hop in the tub for some reason so we just let do that and we would sit in the bathroom with her and pet her to calm her down.

...... do not know about cats weights, though from past experience think 10 lbs of cat could be a terror if it chose to be :D Good night Victoria

.... Think I will try and lie back down again!!!!

Until later all and hope everyone elses GOOBER is Quiet :D

Mark-n-Goober

[DDayMBB]

Today I... was wondering if anybody here has any neat plans for the weekend? Think my wife, Goober and I will take a ride and see what is left of the foliage before all the leaves come down.
My best to all !!!
Mark-n-Goober

[LisaL-TOS]

Today is our son's birthday and throwing him a surprise party tonight.
He is so deserving. I Thank God every day that he and his family moved back from Oregon. I made my last trip there in 2003 and said no more. I could not handle the altitude nor the weather changes. Wishing everyone a Happy and Peaceful week-end.

[gibbrn]

I hope you have a wonderful party!!!!!!

Happy weekend to all!!

hugs,
Victoria

[Jo*mar]

Oh Lisa, what part of Oregon was he in back then?

the cascade range and east of it are much more of a temp fluctuation compared to the west side and coast range.
but more moisture on the west side.

[dawn3063]

Today it's a bit rainy and cool outside so I plan on curling up in my bed with all my pillows and watching my season 2 DVD for Greys anatomy... :p
Lisa, I bet your son will be so Jazzed... :D I hope you all have a blast at his Birthday Party..
Wishing everyone a restful and low pain weekend..
((Hugs))
Dawn ;)

[beth]

Last night I had a wonderful dinner out for my birthday - which was actually the 12th (Columbus Day). And I'm not telling WHICH birthday so don't ask LOL! :D When I was a kid we actually took Columbus Day off on the 12th so I never had to go to school on my birthday - pretty sweet!! I tell my kids their generation and beyond will grow up wondering why every important event in history happened on a Monday! :p

My daughter's HS football team is 8-0 and ranked 7th in state, that may change as of last night's victory. First year in this conference and they swept it - lots of excitement as has been decades since record like this!

Happy Birthday to your son Lisa-L, from a fellow Libra! :D

beth

[redjpwranglergirl]

Today is our son's birthday and throwing him a surprise party tonight.
He is so deserving. I Thank God every day that he and his family moved back from Oregon. I made my last trip there in 2003 and said no more. I could not handle the altitude nor the weather changes. Wishing everyone a Happy and Peaceful week-end.

Don't forget my piece of cake.....or I will be at your house first thing tomorrow morning....:D

[DDayMBB]

Today/this eve I.... really can not address each persons reply feeling a bit cramped up, so hope All over look this:( !!! So glad that I did not see any problems though and glad for all that have plans;)

Going to take a hot bath and see if this helps me !!

..... think I will be wandering about this eve, so maybe talk than, hope all are pain free!

Mark-n-Goober

[LisaL-TOS]

I am cleaning up the birthday party mess :o Ever since the Heart issues, what use to take 10 minutes now takes me 30 minutes. Thanks all for the birthday wishes. He was soo :eek: It was a great party.

Jo, they lived west of Roseburg close to Crater lake. It took all day to get there from Texas. Planes, Trains and Cars. :( Pretty country but Bod said no more. :p When they decided to come home, it took me only 10 minutes to call Mayflower and get them packed up. His home sold in one day.

Red, I sent over two big pieces of cake late last night. Look on your front porch. Hurry before an Armadillo gets it....Hurry~!~ :)

Happy belated birthday back to you, Beth.

Now it's time to get ready for Halloween, Thanksgiving and Xmas. I love this time of year. :)

[Jo*mar]

A Crater Lake trip was in our plans for 2003 summer- another thing that got put off due to my RSI/TOS injury that year.

well someday - at least we finally got the kitchen remodled!

Mark - rest up so those TrPs injections last longer for you.
{I know it's hard to do that though}

I've got TrPs in my rhomboids now from stacking firewood & R shoulder is complaining from that and pulling out English Ivy and Blackberries!
http://www.realbodywork.com/learn/shoulder/rhomboid.htm

[redjpwranglergirl]

Today/this eve I.... really can not address each persons reply feeling a bit cramped up, so hope All over look this:( !!! So glad that I did not see any problems though and glad for all that have plans;)

Going to take a hot bath and see if this helps me !!

..... think I will be wandering about this eve, so maybe talk than, hope all are pain free!

Mark-n-Goober

Mark,
I'm sorry to hear that you've been in pain and are all cramped up and am hoping that you're feeling better this evening. You've never been a complainer and are always upbeat and encouraging for everybody else so I hope you have some good days ahead!

[gibbrn]

sounds like you need some good massage and heat to me.....get cozy in bed with wife and then get out the good ol massage oil. I make my own pain oil....I buy my own essential oils....and my own oils as base....cooking oil guys!!!!! Almond oil and safflower oil cold pressed is great (about 50ml) is the bottle I use then add a very large amount of peppermint oil seen as all massage oil for pain has massisve doses of menthol....hmmmm that is peppermint guys........droppers full.....about four ....I test it tll I can feel the cool amount I like then I add clary sage, rosemary, marjoram (no I am not cooking....but.....hmmmm stomach rumbling:D ) as well as eucyluptys, wintergreen and oh hmmm orange oil.....kind of mish mash of all good pain oils....anyone want info reallly happy to give my secret recipies away...but as a good cook (not a chef who makes things the same every time...) my meals ...or rather oils are never the same twice even when I do write them down.......

take care all.

hugs...
Victoria

[Edelweiss]

Hello again,
I have been off from the forum for nearly one month - and I am happy to be back again.
I read your conversation in the "today I" thread and so I am up to date what happened.

My "cure" was really fine and I enjoyed the treatments: lymphatic massage, physiotherapy with 1) trigger points and 2) mobilisation of the first rib, phonophorese etc etc etc
I was able to switch off my brain: I had a timetable when and where is what kind of therapy and the meals were served and the room was made - so I had nothing to do besides beeing there at time. Really great.

Of course, I didn`t return "cured" - I still have my shoulder and TOS problems but I am in a good mood and relaxed and I hope this holds on.
The doctor told me to see and apreciate the parts of the body who are good and healthy and not to focus the part who is sick. This will help me to come out easily from acute pain.

I cannot answer each thread here, so I wish you all a good day and all the best with your situations.
Best wishes
Barbara

[DDayMBB]

Today I....
.... think youu have the the right idea on taking things a bit slower Lisa:) as far as the cake goes when the Armadillos were not loodking I tokk it off Red's porch<YUM>
.... thank Victoria, Red and Jo for their wishes, no this was one of those controlable episodes... the muscles and nerves are still a bit loose since the shots, as far as the message, it actually hurts to get one <damm RSD/Fibro> oh well life goes on!!! Jo at least you got the kithen done, this past year I was to put a new roof on (my brotehr, father, uncle and and I) but was in no shape to be hammering and carrying shingles... that is my first priority when WC or SSD comes about.
.... wlecome Frau Barb back and glad to hear that you had a great rest, unfortunatley this is not Austria, lucky health system suplies us with a Dr visit;)

and unto all GOOBER-N-MARK wish all a good day!!!!

[Edelweiss]

want to share something with you:
in the "cure-center" I had a therapy called "Energy Island":a color-aromatic-sound therapy for a) relaxation b) vitalisation or c) anti-pain

I asked how the piece of music was called that helps again pain, and I ordered it and yesterday I got it.
I will insert the link and it is number 2 "Hörprobe 2" that helps against pain.
[URL="http://www.mentalis.de/shop2004/shop.php4?sess=277dd68581b2bcdaa3cfa9c1d79eb8ba&show_prod=48&xns_back=5"]

In the hope that you are having a good day today,
Barbara

[gibbrn]

Hope all are feeling ok tonight and that there is no one in too much pain....
I am sitting with my hot pack on munching some delicious Danish blue cheese with some kalimatra olives and melba toasts....hmmmmmm dinner..lol

too lazy to cook. I am in muscle spasm but not too bad. Saw a new neurologist on Monday and am in love:eek: she just listened wanted no other medical paperwork from my past three years and said we'll start fresh!!!!!!
How refreshing to have a doc who actually cares!!!

hugs to all,
Victoria

[DDayMBB]

Today I... found one CD of intrest over at the site you put up Barb, unfortunately with EURO to dollar conversion and shipping, not even a thought, this one being...Hektik, Betriebsamkeit und eine ständig wachsende Informationsflut bestimmen den Alltag. Die Zeit ist so schnell geworden, der Mensch kann ihr kaum folgen, kommt kaum zur Besinnung. Jetzt einfach innehalten, für einige Minuten dem Alltag entfliehen, aufatmen, träumen, ganz du selbst sein: AUSZeit !
Danach kehrst du mit frischer Energie, klaren Gedanken, mit neuen Ideen und Impulsen zurück in den Tag. Though hope your therapy is still lasting and helping you through your days! :)

.....Must say Victoria, as refreshing as that sounds may get costly if she repeats any test! If you would like please PM me with the doctors name and location and I will post it up on the Drs. list in the correct area... my best of luck to you, you sound so excited with this new prospect and treatment ;)

.....am highly frustrated with the pharmacy that, I usually go to and dropped off my scripts last week, called last week and was told call us back in a few hours... time to change pharmacies:mad:

Wish all my best and certainly do hope all are having a low pain day !!!!

mark-n-goober

[gibbrn]

Mark,

I thank the one above every day for the Canadian medical system repeats and repeats and repeats at whos cost..hmmmmmm mine I guess damn taxes but still no out of pocket....not sure if I am able to post the name, but if anyone in my area Toronto/Hamilton Ontario wants the name PM me and I will send it to you. I am weary after last forum Mark. Who knows what is read by whom.....?????? anyhow.......sorry the massage dosnt work but what about the oil.....could it help or would it aggrevate as it stimulates??????:confused:
MarK....Pharmacy is sooooo key as I have learned....if they don't recognise you or know you by name or help you with your meds.....time to find a new one I find the small ones run independantly more efficient and friendly...just my own observation up here in the north........

Take care all

V

[DDayMBB]

Today, I hope all arre not plauged by the dampp and cold.... this seems to mess me up1111111111

[dawn3063]

Hi There..
I hope this finds everyone in a low pain day..
I know what you mean Mark the cold and damp days just put me in bed.. My husband calls me a human barometer.. I can predict weather better than those weather guys...
My pain is returning to my surgical side :( and my hand is becoming clumsey again.. I see my surgion next month.. I guess it was my luck to get that old scar tissue to return :eek:
Oh, Well... But then again some things are still doing very well.. I still have no numbness in my hand..:rolleyes:
I hope everyone has a great weekend..
((Hugs to All))
Dawn ;)

[DDayMBB]

TODAY I... was sent an E-mail that may be of intrest to some

STOP TAKING anything containing this ingredient. It has been linked to
increased hemorrhagic stroke (bleeding in brain) among women ages 18-49
in the three days after starting use of medication. Problems were not
found in men, but the FDA recommended that everyone (even children) seek
alternative
medicine.

The following medications contain Phenylpropanolamine:

Acutrim Diet Gum Appetite Suppressant
Acutrim Plus Dietary Supplements
Acutrim Maximum Strength Appetite Control
Alka-Seltzer Plus Children's Cold Medicine Effervescent
Alka-Seltzer Plus Cold medicine (cherry or orange)
Alka-Seltzer Plus Cold Medicine Original
Alka-Seltzer Plus Cold & Cough Medicine Effervescent
Alka-Seltzer Plus Cold & Flu Medicine
Alka-Seltzer Plus Cold & Sinus Effervescent
Alka Seltzer Plus Night-Time Cold Medicine
BC Allergy Sinus Cold Powder
BC Sinus Cold Powder
Comtrex Flu Therapy & Fever Relief
Day & Night Contac 12-Hour Cold Capsules
Contac 12 Hour Caplets
Coricidin D Cold, Flu & Sinus
Dexatrim Caffeine Free
Dexatrim Extended Duration
Dexatrim Gelcaps
Dexatrim Vitamin C/Caffeine Free
Dimetapp Cold & Allergy Chewable Tablets
Dimetapp Cold & Cough Liqui-Gels
Dimetapp DM Cold & Cough Elixir
Dimetapp Elixir
Dimetapp 4 Hour Liquid Gels
Dimetapp 4 Hour Tablets
Dimetapp 12 Hour Extentabs Tablets
Naldecon DX Pediatric Drops
Permathene Mega-16
Robitussin CF
Tavist-D 12 Hour Relief of Sinus & Nasal
Congestion
Triaminic DM Cough Relief
Triaminic Expectorant Chest & Head
Triaminic Syrup ! ! Cold & am and pm Allergy
Triaminic Triaminicol Cold & Cough .....

I just found out and called the 800# on the container
for Triaminic and they informed me that they are voluntarily recalling
the following medicines because of a certain ingredient that is causing
strokes and seizures in children:

Orange 3D Cold & Allergy Cherry (Pink)
3D Cold & Cough Berry
3D Cough Relief Yellow 3D Expectorant

They are asking you to call them at 800-548-3708 with the lot number on
the box so they can send you postage for you to send it back to them, and
they will also issue you a refund. If you know of anyone else with small
children, PLEASE PASS THIS ON. THIS IS SERIOUS STUFF!

[redjpwranglergirl]

Thanks for posting this Mark. I will call my DIL tomorrow morning and tell her about this since we have a 3 yr. old gr'son. I was thinking that Phenylpropanolamine was taken out of sinus/allergy medications a long time ago but it must not have been. I can't take most of these kinds of meds because I have high BP- I'm wondering if that is the ingredient that people with high BP aren't supposed to take or is it something else in these meds? Does anybody know? BTW, how are you feeling Mark?

[Jo*mar]

i didn't see anything on the FDA recall/alert site.
http://www.fda.gov/opacom/7alerts.html

but when i googled key parts of the message it seems many others have had the same message sent.
It seems someone is resending an old email about this or perhaps a spam of some sort

I did more searching- and found this info-

http://urbanlegends.about.com/library/blppa.htm

[2005 Update: Most if not all of the products listed above which formerly contained phenylpropanolamine hydrochloride have been reformulated to eliminate the ingredient. Consumer questions about phenylpropanolamine and its potential health hazards may be directed to the U.S. Food and Drug Administration at 1-888-INFO-FDA.

Some manufacturers of over-the-counter medicines containing phenylpropanolamine have offered refunds to consumers who purchased the products before they were voluntarily recalled in late 2000. To inquire about the availability of such refunds, dial the 800-number for consumer questions listed on the product packaging.

Comments by Carla Homan: This email has it mostly right. In November 2000, the FDA issued a public health advisory about phenylpropanolamine hydrochloride (PPA), the drug mentioned in the email. This drug is found in many over the counter (OTC) medicines, specifically in cold and flu remedies, as well as appetite suppressants. The drug will likely be banned, but because this process takes time, the FDA issued the health advisory in the meantime ]

http://www.fda.gov/cder/drug/infopage/ppa/

[The Food and Drug Administration (FDA) is taking steps to remove phenylpropanolamine (PPA) from all drug products and has requested that all drug companies discontinue marketing products containing PPA. In addition, FDA has issued a public health advisory concerning phenylpropanolamine. This drug is an ingredient that was used in many over-the-counter (OTC) and prescription cough and cold medications as a decongestant and in OTC weight loss products.

In response to the request made by FDA in November 2000, many companies have voluntarily reformulated and are continuing to reformulate their products to exclude PPA while FDA proceeds with the regulatory process necessary to remove PPA from the market.

[Edelweiss]

thank you for the important information - it is always good to know things like this!

Today we are all very lazy and slow - we have a difficult weather: warm and humid and not acceptable for the season....

I hope you have a better day today!!!
Send you very nice greetings
Barbara

[Horizontal One]

Just to say hello again and hope you are all doing well and pain is better. Have been popping by and reading but too much typing is a no no....
Halloween is fast approaching so...hope all have safe trick and treat etc...
Bye for now & Take care

Hx

[Krankie]

was once again denied a Rx that I have been using for...foreven now. This is how they get the ball rolling I guess. Things have been quiet in the world of W/C and I guess they needed to start things up again( Naturally for the holidays)They first begin by not covering 1 of my 3 rx's that I've been on for 18 months...then I get a letter for an IME...in Philadelphia, as usual....next I guess they will be following me. That seems to be the routine. Hopefully the next $$$$offer will be one we should take and I'd like to be rid of this whole W/C thing. Then maybe I can feel a little more normal. It is almost 4 years and I just want my life back...a life without IME's, FCE's, IRE's , EMG"s , hearings...notices........judges.......sleepless nights, not because of the TOS, but because I wonder if this time they will stop my checks. Sorry everyone, I just needed to vent. I use to cry and get worked up when they did this to me, but now I just get mad and I have realized that this is part of the drill. Anyone relate????? Thanx for listening!!!! I'll have to post this all by itself, too!!!

[DDayMBB]

Today, I was wondering among all of us in Pa that have this wonderful malady (TOS) **with a side order of RSD** feel comfortable with a surgeon who will help with TOS ??? I really would love to have Dr Sanders out in Colorado take care of me after meeting him in person and being examined be by him... though can see the insurance companies denying his care even though I would be cover my own travel, the lawyers, Ins companies and IME Doctors saying he is incompetant even though he has caovered 5000 cases and only had to do surgery on 3000 cases.... unfortunately on the the left I fall into the surgical story, than again this may only by minor surgey.... this also goes with the right in only having the minor !!!!

Best to all............ MARK-N-GOOBER

[gibbrn]

Hi all
Krankie,
I can certainly relate to your post!!!!

.......sleepless nights, not because of the TOS, but because I wonder if this time they will stop my checks. Sorry everyone, I just needed to vent. I use to cry and get worked up when they did this to me, but now I just get mad and I have realized that this is part of the drill. Anyone relate????? Thanx for listening!!!! I'll have to post this all by itself, too!!!


I too have the same worrries and have learned not to let these guys make me cry....then they win!!!! ahhh the pain of worrry!! I am in the same boat...just want life back now back on workers comp and still dealing with LTD and the garbage of more docs and more garbage because of the three years of no comp due to denial!!!!!!!!!!!!!!!!!!

so here is to all suffering with papers and politics........my heart feels your pain and my prayers are with you all

hope all is good for everyone!!!
take care,
Victoria

[Jo*mar]

I hope all are doing as well as they can be - winter is getting closer all the time.
Keep warm all.

[redjpwranglergirl]

We took gr'son to "Zoo Boo" at the zoo today. All kids were encouraged to wear their costumes and they could trick or treat at booths that were set up. Our weather has been beautiful the last few days- much cooler than it has been, so all of the animals were out enjoying it. Several of them, such as the bears, the tigers, and the lions had been given pumpkins and they were really enjoying tearing into those pumpkins!:D Unfortunately my feet are killing me this evening- but it was worth it. Wishing everybody an almost Happy Halloween.

[Edelweiss]

hope that the most of us are doing well!!!!

Since yesterday winter is approaching too here...we had a fantastic fall.

I send very nice monday:) -greetings
Barbara

[DDayMBB]

TODAY I.... dito the warmth , though mother nature does not pic and choose... The othe morning was up and about around 4 am and there was the S (snow)sttuff on the lawn... krankie I do not know down where you live if you had any, though sure DiMarie would have had it, ooops I forgot she is in Florida and I am jealous....UMPH.... and Barb do what you can to stop the winter foe for all of us :) Mark-n-Goober

[Dolfinz]

Yes, it is coming too early here.. Winds 50+ yesterday and I even saw a few ffffffffflakes ...ughhhh, Now here is the ironic thing, I was on the beach in FL a week ago yesterday !!!!! Oh well, still keep smiling tho.......

[Edelweiss]

say OK Mark, I will do my best to stop the winter!!!!!
So I cannot write more...I have something to do....:) :) :)
Barbara

[gibbrn]

it's all in the power of our minds right???? ok think Uri Geller.....no snow no snow no snow.........will it work if we all do it together......I will remain positive.....damn Canada.......oh I mean I love Canada and it's cool white stuff....lol lol

pain free day to all.....

sincerely,
Victoria.....AND should I be signing for Shadow.????

[Jo*mar]

Victoria,
Have you heard anything new about the TOS articles accessibility on the msn site?

[Edelweiss]

think that we can lear a lot of Victoria`s mental power: winter arrived here in Austria directly from Canada. Thank you!!!:)
It is beautiful to see a light white touch on the fields....but it was a catastrophy for the car drivers and there were a lot of accidents. As I am a public transport user so I don`t care....
We were already waiting for this moment and finally we don`t like it.

Deep temperatures are not good for us TOs sick people and I hope we can motivate us to go through this time as good as possible.

Cold greetings
Barbara

[Horizontal One]

Today I, well a couple of days a go was the first time had to wear a jacket/coat as temp been very mild......first frost last night..brrrrr
Hate the cold like all of you do..
Best wishes to everyone xx

Barbara...lovely Austria....I was there many years ago at Easter...beautiful.
Hope your therapy was good.

Bye for today, maybe tomorrow lets see how it goes.......

[DDayMBB]

TODAY I................. SEND OUT A HELLO TO ALL and do ask something i never did of anyone prior! All evidence, documents and records have been submitted to the court on my workmans comp case now I wait for the judge to sift through everything and come to a ruling:) ... I should fear not that the judge rules in my favor bieng everything on my side was truth, infact one of the bosses may have even helped our side. What I do ask is that you PLEASE say a prayer for my case to come to a positive end shortley so that I can get GOOBER off me!!!!

Until later my best unto all, Mark-n-Goober

[trix]

send up a prayer for Mark's WC case. I pray the judge devines the truth and rules in the correct way. I pray that all comes out as is the will of the Lord.
Tracy

[redjpwranglergirl]

Good luck, Mark. I'm keeping my fingers crossed for you!:)

[Jo*mar]

Good wishes, prayers and luck to you Mark!

"adios, bon voyage, ciao baby & hasta la vista" is what we want for you to be able to say to Goober--LOL

any typos are gooberettes fault hehe


It's my birthday today -- 51 years old ** don't look a day over 49 hehe silly me

[ginnybean32]

I dont know what possesed me perhaps the decent weather as its going to get cold for a few days here in Alabama starting tomorrow so I thought the heck with it and caught little brim and a few small mouth bass...of course I threw them back. Watched the leaves fall and enjoyed the beauty of nature around me today here at my new home....then came in and dusted and vacumed just a little bit...hardwoods have to be vacumed with animals constantly...UGGGG....otherwise a glorious day and look forward to going to the Alabama vs Miss State game on Saturday.....made plans for that today as well....all in all a wonderful day...yall wish me warm on Saturday though as its supposed to be cold..:eek: Amy

[gibbrn]

Prayers lound and clear from Canada.,.....for justice and liberty and that some good old common sense is used in your case my heart goes out to you in this time of waiting and stress.......but I guess the pain is worse...lol

take care Mark......taliking to the one above now........

Sincerley,
Victoria

[gibbrn]

Hi Jo ......no answer from MS.....perhaps I need to write a nastier letter!!!!!!!!!!!!!!!! I am really good at that !!!!!!! thanks for the reminder I will endevour to remember to do it sometime this week or weekend!!!!

thanks again...man are you ever on the ball.....chronic pain kills brain cells and I only have two to use so I am killed on the logic front I guess..lol:eek:

take care hugs,
Victoria

[Peg24]

Hello to Everyone,

It is so good to see old friends talking again. I hope everyone is holding up well.

I am doing pretty good. One year now since surgery,

Still have some flare ups. I still feel there is still some impingement somewhere. It seems though if I keep the walking up, I feel pretty good.

I walk 3 miles a day. That has also helped me to drop 10 pounds too, so that always helps.

Glad to be back and to have my family back!

Peggy Schatzberg :)

[Jo*mar]

Peggy!
hello -so good to hear from you, and that you are doing pretty good --that is soooo awesome!

[DDayMBB]

My thanks to all for the wishes, however through my own haste, I was premature in thinking all was hingeing upon the judge! Seems as though their side has not handed in their final brief and are waiting till the last moment to do so.
It has not that I have not been past the board, just that think all the typing really messes with me... nice to see alot of former members over here and how the support and kindness that was remains yet! My thoughts and prayers go out to all!!
Mark-n-Goober:confused:

[dawn3063]

Feel I am so blessed to have my TOS friends...
((Hugs))
Dawn ;)

[redjpwranglergirl]

My thanks to all for the wishes, however through my own haste, I was premature in thinking all was hingeing upon the judge! Seems as though their side has not handed in their final brief and are waiting till the last moment to do so.
It has not that I have not been past the board, just that think all the typing really messes with me... nice to see alot of former members over here and how the support and kindness that was remains yet! My thoughts and prayers go out to all!!
Mark-n-Goober:confused:

As I always say on here, keep thinking positively and I'm sure everybody is hoping things turn out great for you!

[Edelweiss]

am online again - I hate computer-problems!!!!

Mark, even if I am late with my wishes, I send you a lot of good thoughts to resolve your situation.

The last days my arm is swelling and I have problems to wear long arm sleeves shirts + pullover/jacket, this is quite unconfortable. (but it is cold here!)

I wish you all a very beautiful automne day without pain!!
Barbara

[Horizontal One]

Today I....am really happy as at last my dining room has a floor...yippee..that will give me another 4 walls to look at !!!

Also today I am sending positive thoughts and best wishes to everyone....

Take care...
Hx

[DDayMBB]

It was the night before Sunday and all through the house the only creatures stiring were, GOOBER and his Host (ME).... as he awaits the oncoming low front that is sure come as kick and stabs just to bother !!!
OMG... so very sorry ALL:D

Just popping in as I wander about, I so do hope all have a pain free night and a better day tomorrow!!!

MARK-n-GOOBER

[redjpwranglergirl]

It was the night before Sunday and all through the house the only creatures stiring were, GOOBER and his Host (ME).... as he awaits the oncoming low front that is sure come as kick and stabs just to bother !!!
OMG... so very sorry ALL:D

Just popping in as I wander about, I so do hope all have a pain free night and a better day tomorrow!!!

MARK-n-GOOBER

Glad to see that you still can have your sense of humor about this Mark!:D

[Jo*mar]

Sunday eve we are supposed to be in for a rain & wind storm- soil is saturated so trees blowing down is a problem

[Horizontal One]

Sunday eve we are supposed to be in for a rain & wind storm- soil is saturated so trees blowing down is a problem

We most definately had very strong wind and rain yesterday...blew out through the night. At least now we have some autumn leaves lying around.

Twas the night before Sunday, and all throught the house not a creature was stirring except for the cat, sounds of velcro torn apart, as claws not retracted padded about!!

Today I....feel in fun mode, though the pain is no better. Very cold last few days and I have felt it. It had been very mild until recently, with plants coming back into flower when supposed to be asleep!!!


Take care all.....sorry about pinching the rhyme but just thought that it was appropriate given the cat has not been retracting her claws of late...think she thinks she is a fishing cat!!

Hx

[astern]

T'was the night before Sunday (technically Sunday it seems) and my terrible headache invaded my dreams. I kept thinking "if only I'm able to sleep, this pain will subside - I'll continue to dream". But 5am came, no relief coming quick. My pillows weren't fluffy, they felt more like brick. I made myself get up and take a big pill. but 3 hours later and I'm feeling quite ill.

So here I am typing to my support group: seems this bad weather system's thrown us all for a loop!

My best prayers and blessings to all those in pain, and hopes that the next system will bring ONLY rain!

Love,
Anne

[dawn3063]

Anne, That should be the "Official" TOS Poem.. It is so fitting..
I hope the storms let up back east and where ever the wind may be blowing..
Wishing everyone a pain free day..
((Hugs))
Dawn ;)

[Jo*mar]

Oh lovely fall and winter
thy stormy skies prevail
casting us about
like leaves upon a raging sea
just keep us all afloat
till we settle on a friendly shore
Jo

[Edelweiss]

am thankful that my headaches are gone from friday noon I had a 48h migraine and I am still tired of this. Unfortunately, it`s monday and I am back at work, so no relaxation - I am smiling as if nothing happend.
But I seein your posts, I am not alone with my painful weekend - and this helps me.
I hope that all those who suffered this weekend can start in a new painfree week.
Very nice greetings
Barbara

[DDayMBB]

Pass along to Red, that is all I have (a sense of humor) money, health and life are just going down the tubes in front of me and you know what **we all need at a point and time just to say what the H E double toothpicks**:D

hope Jo got rid of all those nasty down trees:confused:

just do not know Hx, maybe you have been saying what I told red to do :) than again I *probably am wrong* ;)

wish that Anne would dump the bricks out of her pillows and replace them with some soft foam or down!

ask Dawn not to break me with the hug, as I tell my boys DO NOT BREAK THE DADDY:cool:

Feel sad that Barb had to spend the whole weekend in pain and tell her when things get rough Eine zwei und trinkt:D

[Jo*mar]

The worst of the wind storm went to the south of us - we didn't even lose power.
But the Oregon coast had max wind gusts to 104.
Others had outages - most fixed the next day.

[flippnout]

today I had PT and it is cold and wet, I hurt like heck and had a wierd thought of Pauley Shore saying OK Budd-ddy dont ask I swear it is the weather causing me to flipout

[DDayMBB]

T O D A Y I......

am glad for Jo that they weathered the storm with little inconvience and hope that soon the sun may shine on her face !!;)

pass along to flippin, I think we all get weirded out one way or another when the barometer decides to change for the low side.... maybe we should all become weather forcasters... what a job being able to be wrong 50% of the time and collect 100% of their pay !!!:D

My wish and thoughts go out to those in pain and surely hope that this passes soon.... ~GOOBER-n-MARK~

[gibbrn]

hi all,

hope pain levels low for all today praying and wishing for this for all. it is thankfully nice here in Ontario....Toronto area it is 9-13 deg C and is not bad at night thankfully the whole winter coat thing is a daunting thought and I hate the weight it flares things beyond belief!!!!


So here is to warm weather here for a while ....need to be in a tropical area.....hmmmmmm mayan riverea????????? who knows hopefullly I will be going away soon for a holiday got the bikinis already....can't wait to go......sooon ......second weeek in Dec I think...or third...back JUST before Christmas......oh the beach and sun is just what the Dr ordered.....(me I mean lol !!!)

take care alll,
Victoria:)

[Edelweiss]

want to add some weather informations too: here it is again mild (too warm for the season they say) during the day. In the morning and in the evening it is fresh/cold but the real winter didn`t start already. It is fine but on the other side a lot of people catched a cold.

I am not in a big flare but the whole day my arm gets cold, then hot, then it is like electricity, etc etc etc. I think my arm is going mad but I ignore it as good as possible.

Mark, thank you for the good advice (eins, zwei, trinken!) - I apreciate the humour, it is the best medecine.

Wish you all a good automne day without pain.
Barbara

[DDayMBB]

TODAY ....
Am wondering if Victoria has a bit of extra room for a big package in her luggage:cool: some warm weather and a soak in some warm salt water would do one good... enjoy !!!

Barb, unfortuately, I am sensitive to the cold all-in-all. doc says it has to do with CRPS and aldonyia. My hands actually burn from the cold and causes my chest to tighten that at time think I am having a MI and yes I have had an EKG, CXR and blood work... Troponin, and CK-MB were normal, however my ESR was off the wall:) So happy you enjoyed my suggestion :D

Wonder if anybody else gets pain radiating from the shoulder up affecting the Occipital area of my head, however at times my jaws, temple and at times causes my left eye to twitch.

Certainly hope all are well... My hopes to all that they have a great weekend !!!

[redjpwranglergirl]

TODAY ....
Am wondering if Victoria has a bit of extra room for a big package in her luggage:cool: some warm weather and a soak in some warm salt water would do one good... enjoy !!!

Barb, unfortuately, I am sensitive to the cold all-in-all. doc says it has to do with CRPS and aldonyia. My hands actually burn from the cold and causes my chest to tighten that at time think I am having a MI and yes I have had an EKG, CXR and blood work... Troponin, and CK-MB were normal, however my ESR was off the wall:) So happy you enjoyed my suggestion :D

Wonder if anybody else gets pain radiating from the shoulder up affecting the Occipital area of my head, however at times my jaws, temple and at times causes my left eye to twitch.

Certainly hope all are well... My hopes to all that they have a great weekend !!!

Mark, I don't have trouble with my eye(s) twitching but I do have TERRIBLE pain sometimes in the occipital area. The pain travels up around my ears to my temples and around my eyes. If I press on those areas it's very painful- almost feels like those areas are deeply bruised. PM dr. told me it all tied into the the chronically spasmed muscles in my neck (cervical dystonia). Whatever it is, it's very painful and I sympathize with you.

[gibbrn]

Mark,

Wonder if anybody else gets pain radiating from the shoulder up affecting the Occipital area of my head, however at times my jaws, temple and at times causes my left eye to twitch.

This so accurately describes my pain I am amazed that your telepathy can reach that far!!! Can you bend spoons with your mind??? Should I call you Uri G????

My headache starts at back of neck…or shoulder and works its way up the back of my head and is always muscularly hard as a rock (is that a word?? muscularly??) and then goes up and around the front to the side and to my eye it causes vascular spasm in my eye and it sometimes makes my face go numb as well as my ear ringing.....and my face and cheek to go numb. I can't believe it is only me....Oh the horror of the pain you suffer I know your plight.......I can only say I understand 100% and offer condolences as this headache sucks the worst almost as bad as my migraines, but I can usually stop them before they get too bad with the right meds.

oh and by the way.....would if I could in the luggage....hoping to bring back something big...but on my finger not in the luggage and it damn well better sparkle in the sun.....hopeful as always...but not sure it will happen.......

hope all with the bad weather are staying dry and warm around a fire which is just what I am about to do after my super hot bath with a damn lot of epsom salts and lavender oil and a plate of blue cheese and melba toasts.....ok now you all KNOW I am a freak......

take care all...hugs,
Victoria

[dabbo]

Today I've been married for 1 year - in that year i've had left shoulder surgery, developed (or just noticed) what we think is TOS, had a pilonidal cyst removed, not had a good night sleep, and have become the proud father of a beautiful baby girl! I'd say it was a pretty full 12 months.

[DDayMBB]

TODAY I.....
....... Victoria, just want to scream when that pain takes over. it seems to originate from GOOOBER(which is a real entity/swelling that I get in my traps the size of a golf ball)! It travels up the left of my neck, back of my head to the temples into my left eye! Like you said if you do not catch it quick enough with meds, it can ruin ones week, as it is tender to touch and laying down is an impossibility. I can not lay on either side, because of shoulder arm pain, which was a hard adjustment as I used to lay on my right side spooning my wife (and get your minds out of the gutter guys:D ), just being close. Hope you get the sparkles you are looking for, my wife has all the sparkles I can afford now and when I got it... a 1 1/2 kt diamond shaped center stone with 1/4 kt bagets on both sides... can not ever see being able to do that again unless the lottery "GODS" are on my side;) than again the price I paid was worth every cent for a sweet, caring and special lady who beside my children is my life and am not able to say enough good about her!!!!!

......think Dabbo, that from the sounds of it, you lucked out in the realm of love and that you have a fine woman, that when the going gets tough your bonds get stronger!!! :) Hope each succeding 12 months/years bring about more joy less any more pain!!!

....... Would like to send out to all of our spouses and signifigant others in our lives a true and heart felt **THANK YOU** for dealing with the roller coaster ride of emotions we go through on a daily basis!:) I do not know about others, but at times I do become self centered with my TOS/RSD world that I forget about my wife and be consumed with myself and ignore the ones who are there for me day-in-day-out! In short, those of us fortubate to have this support are so darn blessed that words can not express and am thankful to all my fellow TOSers here that remind and humble me in the fact that there is always somebody who has it worse than I and not have the nurturing support at home!!!!

God bless one and all and my true and honest wish that all can be pain free and life may become that prior to this pain we live with on a daily basis.........~MARK-n-GOOBER~

[redjpwranglergirl]

Today I've been married for 1 year - in that year i've had left shoulder surgery, developed (or just noticed) what we think is TOS, had a pilonidal cyst removed, not had a good night sleep, and have become the proud father of a beautiful baby girl! I'd say it was a pretty full 12 months.

Congratulations on your anniversary! Next February I'll be married 32 yrs. and the years just seem to fly by!

[Jo*mar]

Congrats on all the anniversaries-- {and the new baby}
in Sept. hubby & I hit 28 yrs - but 33 yrs together total.

Red , don't the years seem to fly by now days??
why is that?

[DDayMBB]

Yesterday, we were fortunate enough to share my parents 50th wedding anniversary... well it is actually Wed the 22nd though to get all the family together celebrated it than. We had no idea what to get them so we wnt to a Hallmark shop and got them a guest sign in book that had pages in the front to list family tree, pictures through the years and 2 pages that they could fill in the good times and such that they spent together! DiMarie may be able to elaberate on where we had the affair "Wild Flower Manor" and the food and atmosphere was excellent! It was great that we were able to share this day with them... though than again they have more of a life than we have golfing, traveling and forever remodeling the house.

My prayers, thoughts and hope go out to all who suffer with the maladies that cause pain and wish that these aches lessen up AND THAT TOMORROW IS PAIN FREE!!!!

~~Mark-n-Goober~~

[redjpwranglergirl]

Congrats on all the anniversaries-- {and the new baby}
in Sept. hubby & I hit 28 yrs - but 33 yrs together total.

Red , don't the years seem to fly by now days??
why is that?

I don't know Jo....sometimes I stop and think and wonder to myself, "how the h%@# did I get to be 49 yrs. old when 'just yesterday' I was in high school....In my mind though, I still feel like I should be about 20, but in my body....forget it- some days about 100":D When we're kids time just drags by, the older we get it seems to fly.

[DDayMBB]

If I may pass along a humbling thought.... my 15 year old towers over me at 6'2" and has about 20 lbs on me, to boot he is and has been involved in Judo for the last 5 years and no doubt can break the "DADDY" and my 12 yeard old looks me straight in the eye at 5'9". I remember changing both and rocking them to sleep... how time goes!

Hope all are well as I wander about the halls of my house.... and road, went down for a coffee for something to do! "bout the safest place to be at this time of night as all the local police are hanging out there also!:D

Mark-n-Goober

[redjpwranglergirl]

If I may pass along a humbling thought.... my 15 year old towers over me at 6'2" and has about 20 lbs on me, to boot he is and has been involved in Judo for the last 5 years and no doubt can break the "DADDY" and my 12 yeard old looks me straight in the eye at 5'9". I remember changing both and rocking them to sleep... how time goes!

Hope all are well as I wander about the halls of my house.... and road, went down for a coffee for something to do! "bout the safest place to be at this time of night as all the local police are hanging out there also!:D

Mark-n-Goober

I know the feeling, our son is 6'3"- I'm 5'5" and hubby is 6'- so he looks "down" on us! He's 26 yrs. old and is married with a 3 yr. old- it also seems like yesterday that he was learning to walk and coming down the hall every morning when he got up and giving me "morning love" (his words). Seems like one minute they're babies and the next they're grownups.

[Edelweiss]

quickly jump in to say hello :) to my dear virtual friends and hope that pain and other troubles are not too difficult today.

[DDayMBB]

Today I.... think if I were to win the big lottery would love to set us all up for a week in the Bahamas in an all=inclusive where we would be waited on and enjoy the warm salt water lapping against our worn bodies and not have anytyhig to do other than ordering a drink or thinkinking about the next meal and enjoying the local steele drum music at night,,,, maybe a message or 2 using the hot rock therapy.... MMMMmmm to dream and my drea,s go to all who can imagine such also ~~~Mark-n-Goober~~~

[Edelweiss]

continue your dream....
Last friday there were 182 000 000€ in the euro-millionen-lottery (a lottery in italy, france, great britain, spain and austria at the same time) and noboy won the big price.
They divided the amount among those who had 4 right numbers - and now there are 20 new millionairs in europe. Not me, because I FORGOT to play!:eek:

With this big amount of money, I would see us spending months in the bahamas with our private massage therapist and other people around who care about us........

Good dreams,
Barbara

[dabbo]

Yesterday (I meant to post this, since this is the "today" thread)....I realized how mentally overwhelming the physical pain can be....the not knowing when it(if?) it will end, or that when I feel alright, theres a good chance i'll be hurtin soon. Gotta train my brain to get over that I suppose - looks like theres some reading in my near future. anyways. heres hoping all ya'll on this side of the pond have a happy Thanksgiving. I can't remember where I found this, but....
"May your stuffing be tasty, may your turkey be plump,
May your potatoes ‘n gravy have nary a lump.
May your yams be delicious, may your pies take the prize
...and may your Thanksgiving dinner stay off of your thighs.
Happy Thanksgiving!"
:cool:

[Jo*mar]

Happy Turkey day to all of my friends here!

may you all have a safe and cozy Holiday

for our friends across the pond - be safe and happy too!

[astern]

Dabbo, I also wonder how a human can survive such intense pain so many times in their lives and live... with every "flare" I get an indentation in my fingernails - so I know the pain is doing something more to my body than just hurt.

Wishing all my friends here - old, new and as yet unmet - a happy Thanksgiving holiday spent just your way! :) Most of our guests have just left, with full bellies (even the vegetarians) and loaded down with leftovers. I am now very thankful. :rolleyes:

No pain... No pain... No pain...
Anne

[DDayMBB]

TODAY I.... was told by my wife that I am being weird again... isnt love just grand! I try and break up my day by adding a bit of humor and wha lah... needless to say she does not like it when I get this way:confused:

[DiMarie]

Glad the big day is over. I know you like and love the support and caring wife gives you, maybe it is just like I pick up on things with my kiddo she does not notice. I can feel her getting sick or something not right in her moods and all. An instinct, far before she sees it. The medications sometimes mask things we do not see that others can just feel. maye doses need to drop down a week and go back up, or different medications.

I am glad that you have her, so much! It is tough now with the wait and see game with w/c and soc sec. but many prayers are with you.

I was able to get some work done here for the holiday, am totally wiped out tonight, hurt to bad to sleep. I am sleeping in tomorrow with the husband, the first day he had off in almost a year. He didn't even get to Disney with us. Then off to watch the grandson while the gang goes off black Friday shopping.

Hope everyone had as good a day and manageable pain levels as could be.
If the pain is high take it easy today,
Di

[Jo*mar]

Hi gang,
I always wondered why they call it Black Friday??
shouldn't it be Green Friday or Charge Card Friday --LOL
or Fight the Crowds Friday??

We stay home or go to parents house where lil sis's family stays when they come down for long holiday weekend visits.

[redjpwranglergirl]

Hi gang,
I always wondered why they call it Black Friday??
shouldn't it be Green Friday or Charge Card Friday --LOL
or Fight the Crowds Friday??

We stay home or go to parents house where lil sis's family stays when they come down for long holiday weekend visits.

How about "you're a glutton for punishment if you go to the mall today" Friday?:D

[dawn3063]

Remember what it is like to have a nasty head cold with TOS...:( Coughing, Sneezing and Sinus congestion is awful.. My neck and upper back are just hating me... Uggg.. More than normal...:(
((Hugs Everyone))
Dawn ;)

[DDayMBB]

I have seen Drs that were posted in threads that were not covered under the Drs. Sticky List at the top of the thread page... it is difficult to find/monitor all threads for new doctors that need to be added to this list and I ask if you would send this info. directly to me via. a PM to DDayMBB,
when doing so I ask that you provide Drs, name, specialty, address, phone number and E-mail address if known thank you DDayMBB it would make it quicker and easier to get it up on the board quicker also one other request is to make sure the Dr or PT you want added is not already up on the board, unless there is a change of address, phone number etc. again please PM this info. to DDayMBB


~~~Mark-n-Goober~~~

[DDayMBB]

TODAY I..... was wondering if people on occasion that the get pain from head down to the toes, I am not talking just talking pain on the inside, but pain that that truly hurts to the touch from the inside out and going from head to toe!

[Edelweiss]

am on the way up....I had a kind of TOS attac on saturday night, and the whole sunday I had real troubles with both arms, this night was a bit better (with the arms) but I had dreams as if I had a fever.
My right arm is the "official" TOS arm and today he still is crazy - but I think it is normal, as the scalene-muscle is tight.

I hope you can have a better start in the new week!
Wish you a good day,
Barbara

[dabbo]

Today I am going to start the Managing your Pain before It manages you book/program. Time to come up with some goals and pain charts!! We're in for a HUGE (30-40 degree) weather change later this week, so that'll be fun. right. :mad:

[Jo*mar]

great dabbo,
keep us updated on how it is doing for you.

here are other books available in most libraries along the same line - if one doesn't help much try some others.
I think a multi pronged approach is best - TOS is very postural related so add in something that works on that too {Alexander etc}
I found some older videos at the library about somatics {Tomas Hanna{sp} }and Alexander tech- i think both were interesting and helpful to me.

[Jo*mar]

a pic of my car in the first snow for us here this winter.

[dabbo]

Posture is one thing that I absolutely have to work on. I know I have bad posture, and have HAD bad posture for quite a while. I'm pretty sure that it can be traced back to my original shoulder injury 6.5yrs ago and how I compensated for/favored that left shoulder. Hope everyone is having a relatively pain-free day!! :rolleyes:

[johannakat]

I am also trying to work on posture...!!! It is Sooooooooo hard. I have been soooo bad for so long.

At Conster's suggestion, I am trying a posture corrector now for work when using the computer. I also have very bad posture- and have found that all my muscles that are supposed to hold me up complain when I sit "properly" for too long b/c they are so used to the old ways....

Might be something to consider.

This is the one I bought, there are many out there...

http://www.nulifemedical.com/pc-405-33-posture-corrector.aspx

Johanna

[dabbo]

today i...... realized nobody had posted on the "today I" thread. so i figured i would. Working on the "Managing pain..." goals and trying to remember to stretch and take breaks from sitting at the computer at work all day. hope everyone had/has good/managable pain levels today and tomorrow!:cool:

[Edelweiss]

thank dabbo for continuing the "today I.." thread.

Today my hands show different colours: white, blue, red, cold, hot......
I have the Raynauds-Syndrom and I think TOS and Raynaud make a competition in my arms.......How funny!!!:cool:

Me too, I wish you all a painfree day!
Barbara

[Edelweiss]

I forgot to add, that I practice Alexander and I learned a lot about my body. I saw in the "today I" thread that you were talking about this. My intention to start with Alexander was not the posture but the body work in general. I go to a Alexander teacher and the session is about 50 minutes - I haven`t tried DVDs or groups, only individual therapy.
Barbara

[astern]

...leave for 8 days in Florida. The drive is going to be painful and I'm not sure what to expect - the first roadtrip after a bi-lateral pec minor release just over 1.5 yrs ago. I have my pillows and lots of water.

Staying with a friend in Tampa who turns 50 today - we can compare aches and pains over champaigne. ;) Also making a stopover in mid-GA at BF's house. :D Destination: Ft. Lauderdale, and a court case against my X for legal fees. Could use extra prayers from you all on Dec 8th. I'm fighting to keep the building tension out of my neck/shoulders and I'm sure court day I'll be a wreck.

wishing you all pain-free days,
Anne

[DDayMBB]

Wisshing all is well with everyone today... astern, I am in a reverse bboat me with my EX swear she has claws that reach out for miles and my hause bugged:D I have a court date about support with he on the 20th of this month... all I can say is she can have 3/4 % of what I make which is zero. It is not a matter of not wanting to provide it is the inability to do so! When I was working besides what the court said, all she would have to do is call and mention that the kids needed this or that and the check was in the mail... haow I miss those days:(
Well fingers are not working so well so sending along my best

Mark-n-Goober

[buckwheat]

Hi Everyone,
As most of you know I moved to the country less than a year ago. I love the area. But my husband does not have a job here. So he only comes here on weekends.

I feel horriable because my husband rented our house in the city and they are good renters, and my husband is giving them notice. I feel bad for them.

But I had major surgery a bit over amonth ago. Cervical Spine surgery C4-7. I also had TOS surgery in March. It's to much on me to be out here on my own all week. I can barely take care of my youngest son here on my own.

Not to mention their are no Docs to help me out here. I guess it's back to city life for me. Hugs, Roz

[buckwheat]

Hi Mark,
Don't feel bad. With this TOS stuff I honestly don't see how anyone can work. I worked 6 months into it and I went from bad to worse. I was not DX to 2 1/2 years into it.

No matter what your a good dad. I am sure your boys no you love them. That's the most important thing.

Hang their my friend. Hugs, Roz

[Jo*mar]

Roz is sounds like it will be a good idea - your husband needs to be with you and family more that's what is most important.

hope you have plenty of help packing:eek:

Ann - hope the drive and hearing go well- hey lay on the beach and get a nice tan for us that are up in the icky rainy cold places OK???

show us some nice warm sunny beach pictures Too!!

Mark - good grief does she think you have a secret income??
maybe it will get lowered- that would fix her!!

[dabbo]

Ann - enjoy the beach! It's 40deg. colder here today than yesterday....not what i would call pleasant. No ice tho, thankfully. Hope the drive and the court date go well for you. Hope everyone has a good weekend!!

[dawn3063]

Roz,
I know how much you loved your renters and the thought of moving them out just made you sick.. But look on the bright side your husband will be there with you and that will help with your son.. Ahhh and when were both well enough I'll be close driving distance... We can have lunch :D Hang in there and take it easy with the packing.. And NO lifting :eek:
Best of luck my friend I'll be giving you a call soon...

Mark, My thoughts are with you on your up and coming court date.. I hope the judge see's through things..

Anne, Soak up that warm Florida sun...
((Hugs to Everyone))
Dawn ;)

[DDayMBB]

WELL MAYBE NOT TODAY>>>> BUT FRIDAY.... Cathy from Dr Sanders Office called and gave me a few dates open in the new year for surgey... I can not wait! Just the vibes I got from our initial visit I know I will be the one to bring me back to semi-normal:D

Roz, that is a tough situation to be put in, but the added help from DH on a daily basis may just come in handy and do not worry about my guys they are taken care of, each and every check I receive they get part... a few shares of stock here Aflac etc, do what I can:(

Many thank dabbo and do stay warm...'Kay

Dawn, you are alwyas a bright spot in everyones day!

My best wishes for being pain free...MARK-n-GOOBER:cool:

[Edelweiss]

say to Mark and Roz that my thoughts are with you!!
Take care,
Barbara

[dabbo]

Today I..... read a read a good article in the Wall Street Journal (needed to fall asleep:rolleyes: ) about a lady in N.E. Tennessee who had insurance, got kicked off TennCare, added to BCBS, died and then was declared disabled. Sad story, but a good article about the struggles of those without insurance. I attached it in pdf format (i think). Had a bad night last night- I had to leave the dinner table to lay down - i thought my arm and/or was going to explode. Its tough to explain that feeling......

[redjpwranglergirl]

Today I..... read a read a good article in the Wall Street Journal (needed to fall asleep:rolleyes: ) about a lady in N.E. Tennessee who had insurance, got kicked off TennCare, added to BCBS, died and then was declared disabled. Sad story, but a good article about the struggles of those without insurance. I attached it in pdf format (i think). Had a bad night last night- I had to leave the dinner table to lay down - i thought my arm and/or was going to explode. Its tough to explain that feeling......

The first neurologist that I was sent to, was WONDERFUL....But, I wasn't able to keep going to him because he was "kicked off" of our insurance plan. Why? Because he raised holy h%@# with them because they let one of his patients (who had insurance with the same co. I do) die by denying them care.....Isn't that just typical....

[Gromlily]

Today I realize I need to check out this thread everyday because this is where all the action is!! LOL!! I have missed so much!! Alot I could learn and use, and alot I would like to respond to! I will try and stay on my toes from now on!!

Hey all, just a thought... when you post a site or share helpful info., how about also starting a new thread for those of us that don't always make it through all of the threads posted. That way you can find things to read that relate to you quickly! Also newbies or slowpokes like me might miss out on good stuff like the things you have posted in this thread.

Thanks you guys, and wishes and hope for a good day for all!!

G ~ :)