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View Full Version : Does anyone here use a pain cream?




Shelley
04-17-2010, 08:45 PM
Just wondering, I have several for my left shoulder which has developed RSD.

I have....

1. triple numbing cream with lidocaine, tetracaine, benzocaine and some baclofen
2. DMSO, ketoprofen (?), baclofen and lidocaine
3. DMSO, Ketamine, gabapetin, ketoprofen


Trying out to see what helps more.




Wilbyfree
04-17-2010, 09:46 PM
Hi Shelley, yes I have a compound that I use from time to time. Mine is lidocaine, ketamine and neurontin. It is very helpful but I mainly use it for flares or a really bad day. I think the next time I have it prescribed I am going to ask the doctor to add Magnesium, I have heard that is most helpful.

Best Wishes

Jeanie

finz
04-18-2010, 01:26 AM
Were the ketamine/dmso compounded by a pharmacy or something your doctor makes ?

I have been considering buying some dmso online and making my own cream by crushing some of my Vicodin, but I'm concerned about an allergic reaction because I am allergic to sulfa.

Shelley
04-18-2010, 03:28 PM
Hi Finz,

All the creams are doctor prescribed and made by a compounding pharmacy.

I bought some DMSO online with some aloe in it and it was too strong for me.

Iit was flygirl who first recommended the creams to me. Her's has dmso, clonodine, gabapentin and ketamine in hers. I don't react well to clonodine.

Jeanie, what a great idea, magnesium!

keep smilin
04-18-2010, 05:28 PM
Hi Finz,

All the creams are doctor prescribed and made by a compounding pharmacy.

I bought some DMSO online with some aloe in it and it was too strong for me.

Iit was flygirl who first recommended the creams to me. Her's has dmso, clonodine, gabapentin and ketamine in hers. I don't react well to clonodine.

Jeanie, what a great idea, magnesium!

I am sorry I can not add to this post as I don't use any pain cream..I can't put it on as I am not able to touch my skin.. I tryed using the patches, lidocaine.. got those babies on but sadly I was not able to take it off comfortably...Funny even having someone sit next to me or even attempt to touch me makes me cringe..

Wish I was more help.... take care,

Hugz, Kathy:grouphug:

Lisa in Ohio
04-18-2010, 06:46 PM
Virtual hugs to you, my friend!

Shelley
04-19-2010, 10:03 PM
Was at the compundd pharamcy today. asked them about adding magnesium. They said they would look into it but that they were worried it might change the PH of the cream and interfere with the meds in it. Told the pharmacist I would also ask the doc.

mrsD
04-20-2010, 03:02 AM
You could buy the Kirkman cream and use it every other application. That way there would not be an interaction.

Rosie33
03-09-2011, 06:54 PM
I use "Topricin" for short term pain relief. I add a few drops of pure peppermint oil to the lotion which also helps with the burning. My pharmacist recommended this product. I found the best price at vitacost.com. There are two types, regular and foot therapy cream, which is more expensive. I've tried both, and found that the regular works even better than the foot therapy cream. They both have just about the same ingredients. I get better results with the regular. I posted the ingredients below.

TOPRICIN®'s INGREDIENTS
Topricin®'s patented combination of natural medicines is formulated to provide an array of benefits. Each ingredient passes through rigorous quality control procedure to ensure strength and purity. These superior ingredients effect their action while concurrently conditioning and moisturizing your skin.

Topricin® does not contain petroleum, mineral oil, lanolin, menthol, capsaicin, fragrances, or irritating chemicals. The cream is odorless, non-greasy, and will not stain your clothing. Topricin®'s hypoallergenic base is formulated for maximum absorption of its eleven medicines.

Arnica Montana - For injuries and bruising to the muscles and joints. Arnica is considered especially useful for arthritis, joint injuries, and bruising (6X)

Rhus Tox - For sprains, arthritic pain, and backaches (6X)

Ruta Graveolens - For relief from injuries to the bone or bone covering; often used to relieve trauma to the knee, shin, elbow and cheekbone (6X)

Lachesis Muta - For relief from sciatica, arthritis, lower back pain and carpal tunnel (8X)

Belladonna - Relief of pain, spasm & inflammation to muscle tissue (6X)

Echinacea - Anti-inflammatory and anti-bacterial (6X)

Crotalus - For improving localized circulation, and considered effective for bruises and contusions, and for accelerating repair to damaged nerves, joints, and muscles (8X)

Aesculus - For chronic pain, especially in the legs & varicose veins. (6X)

Heloderma - For relief from burning sensation in the hands or feet. (8X)

Naja - Relieves inflammation and pain in nerve tissue in the treatment of Carpal Tunnel and neuropathy (8X)

Graphites - For relieving symptoms of skin conditions (6X)
:grouphug:

cindi1965
03-10-2011, 01:10 AM
Shelley,
I have been on oral Baclofen for many years because I was born with Cerebral Palsy, but never knew that it came in a cream for RSD. I acquired RSD three years ago after a bout with a MRSA infection. I tried the lidocaine cream, but it didn't work at all.

Changing the subject, I started laughing when I scrolled down and saw the pic of RR. I am from WV and everyone knows how we feel about him. Bryan Wright, one of the strength coaches for UM, is from the town I live in. He is a great kid and one of my husband's dearest friends. I really hope all goes well for the Blue this year. WV had much respect for the late Coach S. since he was best friends with our beloved Coach Don Nehlen.

:hug:

dreambeliever128
03-10-2011, 09:22 AM
My Dr. just started prescribing Lidocaine gel for me a few months ago. It works like the lidocaine patch. He gave it to me to use in my vaginal area for the RSD and it does help. No mixing, just a prescription is needed.

Ada

Patti_Christmas
03-12-2011, 06:42 PM
I have the patches (hate them - they hurt going on and coming off. They also irritate just "being there"), Lidocane cream (this stuff is super cold and I have to be desperate for it because it hurts being put on) and I now have the compounded pain cream. The compounded pain cream hurts to be applied as well. I lay on the bed, face buried in a pillow and scream my own special language (trying to cut down on the cussing). It helps for a bit, but about an hour after applying, it burns something fierce. The doctors and pharmacy said that it's the lidocane in it, numbing my skin, etc. I don't get a rash from it, so I would assume they are correct. Again, it doesn't last long, but it will help me some especially if I am having a rough night and can't sleep. I also have a new patch - Clonidine. The first two days I had one on, fell off even with the "special cover". I put another one on a few days ago, and it hasn't fell off yet. I am watching the skin where the first one was at because it has raised little bumps and is a pinker color than the rest of my arm.

fmichael
03-13-2011, 08:02 PM
Dear Shelley -

Ever since I've been with Dr. Richeimer (2003) I've been using a compounded ketamine gel. The current mix is Ketamine, Gabapentine and Lidocaine (10, 5 and 5%, respectively) in an "Ogel," and works wonders. Although it's prescribed twice a day, I generally only use it at bedtime, unless my feet are really hurting and I have to put on shoes and socks to go somewhere. As such, 500 ml. lasts about two months, which is ironic because if I was using it 2/day as prescribed I would go through it in a month, and yet my insurance co. is only willing to pay for 400 ml./mo. as prescribed.

As I just Noted in Debbie's thread, I just learned a couple of months ago about the 400 ml. policy from my wife, where we are required to pay cash up front and my wife - as the named insured - gets the check months later. I will try to have the Rx changed to 400 ml./mo. and see what happens: the carrier may well lower the allowed amount to 300ml. TBD.

Also, there is an enormous discrepancy in what compounding pharmacies charge in our area. Not surprisingly, an outfit in BH is extremely expensive, whereas I highly recommend a little place that I understand may be much more convenient for you and with which you are probably already well acquainted: on 15th St. between Wilshire and Arizona, ask for Lisa. :winky:

Mike

windrivermaiden
03-15-2011, 10:13 PM
I'm new (today) to the cream theory. I have Ramsay Hunt syndrome (X 22 years...and counting) I have been frustrated with RSD in my neck and shoulder this last year and finally got refered to a pain specialist.
I hope to hear back from someone else who has Ramsay Hunt as I have never met any one else with it.

RichPA
04-16-2011, 09:39 AM
Just wondering, I have several for my left shoulder which has developed RSD.

I have....

1. triple numbing cream with lidocaine, tetracaine, benzocaine and some baclofen
2. DMSO, ketoprofen (?), baclofen and lidocaine
3. DMSO, Ketamine, gabapetin, ketoprofen


Trying out to see what helps more.

I know this is an old post, but hopefully Shelley is still around or someone else has tried the 1st one on the list above and can give me percentages for the lido - tetra - benzo - baclo cream. I was Dx'd with RSd around mid 2003 post rt. knee surgery, and had it spread to full body following a 2004 rt knee surgery (First was a unicompartmental knee replacement, 2nd was a "revision" to remove the UNI and replace with a Total Knee at the ripe old age of 34)

Right now I am using C-Ketamine, Baclofen and Amitriptyline compounded into a cream, but it's losing it's effectivness over time and my Neuro and I are looking into different creams / gels that people have had success with. He's not an RSD "Specialist" per se, but he works with me and is willing to try anything new, which is great, and he is a close friend of Dr. Schwartzman and can call him anytime night or day. I've been treated by Dr S. since 2004, and now work through my local Neuro since he's only 20 minutes from me, and Dr. S is 3+ hrs away, but Dr. S is kept in the loop so to speak, and he calls my local Neuro when there's new things going on, or upcoming trials that may benefit me. Dr. S has been a godsend for me over the last 7 years.

peppermintpatty
04-16-2011, 10:53 AM
Not the OP, but the combo that I used was Ketamine/Clonidine/Imipramine/Gabapentin/Lidocaine (10/0.2/3/6/5%). Unfortunately I never did get a lot of help from it.

gramE
04-16-2011, 11:09 AM
Just wondering, I have several for my left shoulder which has developed RSD.

I have....

1. triple numbing cream with lidocaine, tetracaine, benzocaine and some baclofen
2. DMSO, ketoprofen (?), baclofen and lidocaine
3. DMSO, Ketamine, gabapetin, ketoprofen


Trying out to see what helps more.
I just started(only used once) Voltaren gel 1%. It is in the anti inflammatory category the same as Mobic or Celebrex. I do believe it helped with the swelling, but the Dr said only use it when I have to and I only used 1/2 of what it called for. I had what I thought were a couple of the side effects and I'm not anxious to go there, but days when the pain speaks pretty loud you weigh out the options.

I get a lot of relief from soaking, but it does limit your mobility.

pat e

Teresa Marie
04-18-2011, 06:36 PM
Hi Shelley

I use a compound cream with 5% Ketamine and 5% amitryptaline. This works good for my feet and wrists just before climbing into bed. Helps with the pain I get when finally letting my entire body relax.

My PM doctor at the Mayo Clinic who specializes in RSD, ALS, etc. has ordered it for me and it is mixed at the Mayo Clinic pharmacy. If you have a prescription to be compounded but your local pharmacy doesn't do compounds you can have the RX filled at MC--they mail out for free!

This is the only mix I have used but will talk about others when I see my doc. Good luck to you,

Teresa Marie



Just wondering, I have several for my left shoulder which has developed RSD.

I have....

1. triple numbing cream with lidocaine, tetracaine, benzocaine and some baclofen
2. DMSO, ketoprofen (?), baclofen and lidocaine
3. DMSO, Ketamine, gabapetin, ketoprofen


Trying out to see what helps more.