View Full Version : chiron
04-19-2010, 08:26 PM
We, on our own irish pain site have a high negative feedback [ 70% ] about SCSs.Mind you,we have very few neurologists here, who are under pressure due to underfunding and poor resources. thanks
Thank you for coming to the forum! :)
Your input is much appreciated! We do have several here who are going thru a rough time with their SCS's.....
Would love it if you could elaborate a bit.....
What, in your opinion, is the leading cause of the SCS's poor ratings.?
Is it attributed to the surgery, or the SCS not working properly, or electrode lead movement...... infection?
ANYthing you are willing to share would be of much value!
Do you have one of these units?
04-22-2010, 10:20 PM
Hi Rrae, i am not able to have a SCS but the feedback i get from others on the pain site is mainly the leads moving around and constantly having surgery to correct same. The discussion forum is on the Chronic Pain Ireland [CPI] site. I still am not used to this massive site but i will get there,[i hope] regards .
You're doin a great job of finding your way around this wonderful forum!
I saw your posts on the game threads....:) So much fun to be had here.
I can spend hours here without realizing the time flying by.....things that take my mind off pain.....
Speaking of which, I visited your profile page and saw you mention that wonderful 'friend' of ours (NOT) Neuropathy ! Such a drag.
I think you know where the Peripheral Neuropathy forum is at here....I'll post the link for you if you don't find it in the main menu. It's a very active forum here and it is LOADED with valuable info on how to combat that type of pain, supplements that help, causes, resources and most importantly (to me anyway :) ) a wonderful group of folks with a good sense of humor!
Anyway, back on topic >> SCS ! The downside of what you mention is pretty much same here......do you have a high incidence of RSD (Reflex Sympathetic Dystrophy)? Here, it seems to post a high risk of RSD spreading when getting the implant.
I pray for improved awareness of RSD in the medical arena.
So glad you've joined up here!
The support here is absolutely wonderful.....
05-01-2010, 08:57 AM
Sorry Rrae,but info on that is not availailble yet. take care.
05-05-2010, 06:05 AM
Yes I agree not alot of info on RSD, I found out by accident when my consultant mentioned it in passing I had CRPS (Chronic Regional Pain Syndrome) and had to google it, it is the same I believe, just new name.
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