Forum Requests

[Chemar]

Hi DocJohn

I have been hearing from a number of people who are seeking a safe haven to be able to discuss their struggles with OCD, and learn about ways to help with it

Could you possibly add a forum for it here?

thanks again for providing this community for us.
Cheri

[jccgf]

While you're adding, could you please consider adding a Vitamin Deficiency board. Having had three years of neurological problems related to a B12 deficiency, I sort of have a soft spot for the topic. Not to mention, my 'home forum' is the Gluten Sensitivity/Celiac Disease forum, the symptoms of which are all about vitamin deficiency.

This was a newer but relatively active forum on OBT, and it kept the vitamin talk out of some the other forums (where it sometimes annoyed people).

Thanks!

Also, perhaps you might want to sticky this thread for a month or so, so that all further requests can just be kept in one spot. This thread has a nice title for that :).

Cara

[stumps]

I would also very much appreciate a Vitamin Forum on this site.

Gillian

[Chemar]

Maybe not just vitamins, but supplements in general..... vitamins, minerals, amino acids, herbs, etc :)
As I have learned with my son dealing with both Tourettes and Crohn's....it is frequently the entire nutritional approach that makes the biggest impact!

[stumps]

Maybe not just vitamins, but supplements in general..... vitamins, minerals, amino acids, herbs, etc :)
As I have learned with my son dealing with both Tourettes and Crohn's....it is frequently the entire nutritional approach that makes the biggest impact!

That would be stupendous as I have to try to balance all those things as well and would love to join a forum like that.

Gillian

[Wittesea]

I have had this idea rolling around in my head for a while...

My idea is to add a new catagory (right now for catagories we have General, Health Conditions A-L, Health Conditions M-Z).

My suggestion is for a new catagory titled Non-Health Related Forums or Off Topic Forums (or something like that).

In that catagory, I think the current....
Social Chat
Computers and Technology
Sanctuary for Spiritual Support
could all be moved there...

In addition I have ideas for 2 new forums for the non-health related catagory...

1. The Media Room - for discussions about TV, Movies, Radio, Magazines, Books, Sports, Celebrities, etc... (currently, these types of discussions are scattered around the forums, having one forum would allow people to discuss these things with a larger group and would increase the likleyhood of finding other people who want to discuss a particular TV show or movie).

2. Life in General (or something like that) - for discussions about current events (global, national, state, or local) and day to day life (dealing with neighbors, buying your first house, advice on raising kids, how to buy a good mattress, favorite restaurants, etc....)

And if you decide that any political discussions would be allowed, another forum in the Non-Health Related catagory could be Politics.


So that's my idea. I have no clue whether it's a good idea or a bad idea, but I figured I would post it and you can all share feedback/opinions about whether you think it's a good or bad idea.

Liz

[Kamie]

We need a forum for Coping with the loss of a loved one.

[mrsD]

Our vitamin forum at OBT was very valuable. The new information shared
there about Vitamin D and the new research on raising it RDA was a good
example.

One title could be Nutrients/supplements

Also, a Medications board would be nice too, since people often have
drug experiences/side effects/questions or data on new drugs to share.

Thanks for the consideration!

[Kamie]

We also need a Coping with the loss of a loved one forum too.

[Jo*mar]

that sounds like a good suggestion Liz.
grouping those non medical topics together like that.

[mrsD]

While all of this suggestion is great, I personally would love a "media room"...

I do not feel comfortable discussing my private life on the internet, but I do
enjoy Off Topic threads. Especially the Media Room, as I read alot.

I've learned alot from Computers and Technology too.

Again, Liz... these ideas are great I think!

[artist]

Yes they are great, I can see them all being used frequently.
All for it,
all the best,

[swift]

Could we have either a Cerebra Palsy forum or a CP/movement disorders forum?

(As there were a small number of people who were provided for by the CP forum - the dystonia forum was used by very few, and the only other forum that discusses the same range of needs as the CP one did is Child Neurology - which isn't for adults).

[Thelma]

There is a Parkinsons forum here and the man who has written this is one of the best. All you want to know about dystonia is here.

Good luck to you

http://forums.braintalk2.org/showthread.php?t=1018

[swift]

Thanks - I had looked at the Parkinson's forum already (I've had generalised dystonia for anything from 13-17 years now, so I have a wide knowledge of the various drug/medical interventions, what works with me and what doesn't - and there are other more dystonia-focussed forums on the web).

The discussions on the CP forum were more based around equipment/lifestyle issues/ways to get around common issues, and with GD I have a lot more in common with the people who were frequenting that forum than the PD forum...partially because of age, but also because of the severity of my dystonia.

Still crossing my fingers in hope,
Swift

[Alffe]

Yes or just a Grief forum.

[Julie]

Excellent idea.

[Jaye]

Yes to coping with grief. I am typical in having to periodically grieve my losses of mobility and perception to Parkinson's and now to degenerative arthritis. How do you say goodbye to the head of your left femur?

Jaye

[Thelma]

with a salute to it and a fond goodbye you bstd and a roaring hello to pain free movement.

[dorry]

deleted b/c i'm done

[wheeliebird]

Could we have either a CP forum or a CP/movement disorders forum?

(As there were a small number of people who were provided for by the CP forum - the dystonia forum was used by very few, and the only other forum that discusses the same range of needs as the CP one did is Child Neurology - which isn't for adults).

Swift, Are you talking about a Cerebral Palsy forum? If so I totally agree. Someone over on Child neuro was requesting that too. :)

Robin

[swift]

Swift, Are you talking about a Cerebral Palsy forum? If so I totally agree. Someone over on Child neuro was requesting that too. :)

Robin

Yes, I was talking about Cerebral Palsy (fingers weren't working well yesterday, hence all the abbreviations).

Swift
PS Also, after reading the dystonia info on the PD forum, that may apply to dystonia related to parkinson's, but there are inaccuracies as far as 'just' dystonia goes.

[KTM5665]

A few of us here have mitochondrial and metabolic diseases. Would it be at all possible to start a forum for this? thanks so much~! Ali

[Wheelin Rev]

I second that motion. :) Dave

[KTM5665]

:D Mornin'chief!

[Wheelin Rev]

<off_topic>

Chief? If that's the case, why am I at the bottom of the totem pole? :confused:

<on_topic>

[KTM5665]

ok...Captain. At least you could sail rund the world, take in some good food...and remember to pick up your friends on the way!:p

[ColeysMom]

I'd also like to see the forum added...

[Wheelin Rev]

Hi ColeysMom,

Now we have a threesome! :)

Nice to meet you.

Dave

[stumps]

Hi again all

:D Please could Moose also put her fantastic sticky that she had back on it as well if we get a mito. forum..
:confused: I can't find it in cache and I have been looking honest....

Gillian

[Wheelin Rev]

Hi Gillian,

We now have a quorum for a forum. :D

Dave

[stumps]

ahhh hoping another old member will find her way here soon, found her e-mail in the depths of this dratted PC and managed to contact her..
Gillian

[ColeysMom]

Nice to meet you too...I mostly hung out in the autism & child neuro forums on BT1, but technically my son's issues, although reflect in autistic tendencies and other neuro issues, are metabolic in nature. As long as we keep him 'clean' he is symptom free. Poor kid will NEVER be able to lie about it!

He's been diagnosed with Fructose 1, 6 bisphosphatase deficiency, in turn PDD-NOS and seizure disorder.

Thanks for the welcome!
KJ

[Discododi]

DocJon,
Is there a chance we could have a colloid cyst site here like the old BT had? I think many people with this problem could find some comfort and support from others, including myself, who have been through this ordeal. I think anyone who did a Google search would be directed to this site like the old one.


Thanks so much John. I feel like I have lost touch with my old ccyst pals, Dodi

[dorry]

can we also get a pet forum and a swap unused medical equipment?

[Julie]

Diabetes too.

[Kamie]

Please post your forum requests here so Doc John can see them all in one neat, and happy place. :)

From now on, all forum request threads that are started will be merged into this thread. :) Thanks.

[ColeysMom]

http://forums.braintalk2.org/showthread.php?t=1088

[JoJo6]

Maybe this is already hear and I just don't see it, but if not I would like to see a forum for the patient as well as the caregiver.

The symptoms of Alzheimer's and Dementia from aging or numerous other reasons are closely related. There are differences, but close enough to combine the 2.

The caregiving issue is important, too little attention is given to the health of the caregiver and they get burned out in a hurry.

Many times we will find ourselves doing both. I myself have several neuro issue's, but I have been caregiver to MIL who has Alzheimer's Disease.

If enough people are interested enough to be a part of a forum like this please speak up. It would be helpful to me, but not if only 1 or 2 others take part. It's not easy taking care of another very sick person.

Be honest with your self if you think about being part of a forum of this nature. If you can't take part it is certainly understandable if you don't have time to take anything else on.

I would like to see every thing here helpfull. If not, then we need to put the space to a better use.
thank you, Julia

[Bobbi]

How about a forum for Free Medical Equipment/Services :D ? Pretty please.

... if nothing else, I got to see the Smilie that makes me smile :) ...

[newbie]

Comic relief any one?

[shotspine]

Cancer Forum
Abuse Forum

Thank You!

[trekker]

Would you also consider forums for:

Caregivers so we can share coping strategies and shoulders to lean on during the bad times.

Humor or Comic Relief for the days when we desperately need to find something to laugh about.

Pet forum because they are such an important part of our lives. No matter what our problems they just love and support us without judgement.

Art/Poetry forum. There are many creative people and I for one enjoy reading and seeing photos of the output of their hearts and minds. I think I learned more about the pain and difficulty of people's lives in reading their stories and poems than anywhere else. And just as importantly about their joys and triumphs and what makes them unique, wonderful, amazing.

[CoolAngel26]

What about a sub-forum for Normal Pressure Hydrocephalus??

[Jo*mar]

what does anyone think about a few more forums medical and non-medical ?

like maybe something like - I'm just putting some ideas out -

For the Home?
Recipes & Cooking ?
Penny Pinching, Coupons & Frugal Living?
{maybe these could be combined if there is any interest in these types of topics.}

what about a General topic about-

Dealing with Drs, offices, forms, tests, legal issues & insurance companies? { would need a shorter name i think}
{ this would be handy for all- hints, tips and ins and outs, ect}

A few other medical topics -

Repetitive Strain Injury
Chronic Myofascial Pain
Chronic Fatigue

So what do you think?
any ideas or suggestions?
How to make this a well rounded community?

[FreeSpirit]

Hi All,

I'm new here so perhaps it is forward of me to ask but if there is enough interest would it be possible to have a forum for Arnold Chiari Malformation?

Thank you for your consideration.

FS

[JoJo6]

Hi Trekker. I agree we need something for caregivers. I had posted this along with the Alzheimer's and Dementia room.

Maybe we could have a caregivers room, put all the things that goes with caregiving. It is MHO that caregivers need all the encourgement they can find. It is a hard job and if one is not careful they will burn out, then who will take care of the patient?

I hope this will be considered.
thank you, Jo

[swift]

Hiya,

There's a stickied thread about new forums right here: http://forums.braintalk2.org/showthread.php?t=1200

HTH
Swift

[Buttons]

Hi all, I'm requesting a Pet Forum, myoclonus/movement disorder forum & emotional support forum. And sure would like to see the Lymies back-appreciate that you put in the Lyme disease forum!

I'm adding the need for a diabetes forum also! (hard to recall all the forums I was active on!)

Thanks so much!
Buttons

[JoJo6]

Maybe this is already hear and I just don't see it, but if not I would like to see a forum for the patient as well as the caregiver.

The symptoms of Alzheimer's and Dementia from aging or numerous other reasons are closely related. There are differences, but close enough to combine the 2.

The caregiving issue is important, too little attention is given to the health of the caregiver and they get burned out in a hurry.

Many times we will find ourselves doing both. I myself have several neuro issue's, but I have been caregiver to MIL who has Alzheimer's Disease.

If enough people are interested enough to be a part of a forum like this please speak up. It would be helpful to me, but not if only 1 or 2 others take part. It's not easy taking care of another very sick person.

Be honest with your self if you think about being part of a forum of this nature. If you can't take part it is certainly understandable if you don't have time to take anything else on.

I would like to see every thing here helpfull. If not, then we need to put the space to a better use.
thank you, Julia

On a board as large as this one, well i think the last time I looked there were maybe 6 or 7 hundred? Am I the only one here that have loved ones with Alzheimers or Dementia from many reasons? The Caregivers are the ones that need desperatly a place to care for each other as much as an online site could be. This is very important

I don't understand why no interest has been shown for this request. On another post Trekker listed a Caregiver Support room. This could be for more than one disease.

Alzheimer's D. is an important issue, it's not like something nobody has ever heard of it. Sorry, I have personal concerns, my MIL has Alzheimer's and it is very heart breaking.

I see many other things being asked for , they all have their place. I'm sure many like Comic Relief and maybe that is how they get through their hard times, but when you watch someone lose their idenity, don't remember their name, much less their childrens name and the heart break goes on.

If nobody else here have an interest in a room for Caregivers, Alzheimer's and Dementia, I will stop posting all over the place. This is something that you put your whole self into and thats when the caregiver gets into trouble with their health.

thank you, Jo

[shotspine]

Hi Jo

I'm pretty positive I read on a thread today that Doc John has been sick and he would get more forums put up tomorrow.

I agree that the forums you are asking for are extremely important. I took care of my father with dementia and I bow to anyone taking care of Alz or dementia patients.

Blessings for you!

[Phillipe]

what does anyone think about a few more forums medical and non-medical ?
like maybe something like - I'm just putting some ideas out -

For the Home?
Recipes & Cooking ?
Penny Pinching, Coupons & Frugal Living?
{maybe these could be combined if there is any interest in these types of topics.} So what do you think? any ideas or suggestions?
How to make this a well rounded community?


What do I think? Jo, this is not a Betty Crocker, Pillsbury or a Martha Forum. Lets stick with medical issues, OK? Doc John has made this a well rounded community. Lets respect this.

[Jane]

Diet and recipe swapping are an important function on many boards. Many of us have some exotic dietary restrictions due to our medical conditions. Many of us are on a constant look out for dishes that we can tollerate.

Then there are those who still struggle to remain domesticly functional and always appreciate household hints. There are quite a few of us who have become or remained functional in the kitchen thanks to simple remodling tips that have been passed on........on the boards.

It may not be rocket science but it certainly relates, in a serious way, to our medical conditions. Just a thought. Have a good weekend

[hummer]

I was worried that there weren't to be off topic threads.......I asked about it and they are to be allowed in all forums......this place isn't to be just about medicine.......what a wonderful relief that was to me....I had a large sigh of relief........

I take no medications, because of my brain injury....so any post, I ever post on, will not be about medications.....I come to this place, to help me live in the world......it is not information about meds that I take away from here....it is the human strength part, it has such tremedous value to me.....any thing that makes it easier to get through each day.....certainly rates, as a treasure......in my book........

The men in my home have come to tell me they need me.....HA.........

I hope what ever I wrote makes sense...........I think it is a wonderful and helpful thing for the caregivers.......especially if we are the wounded ones.....

Blessings to us all......
Hummer

[snoozie]

We share recipes on the weight loss forum. Any and all are welcome to join in, even if you are not necessarily coming to lose weight maybe you could share recipes or food tips that have kept you not needing a weight loss forum :p ...Sue

[JDPhD]

I could utilize a Good Nutrition forum for sure! I am hypoglycemic and don't feel comfortable posting in Diabetes (natch) ...at least with a nutrition support forum, I could battle the most important aspect of it. :) TC. JD

[purplegrrl]

The old Alzheimers/Dementia board was the FIRST one I looked for when I came here, I think... my mum has frontal lobe variant Alzheimers, severe emphasema and multiple other medical problems. I am, for all practical purposes, her only carer... despite significant health problems/disabilities of my own. Needless to say, really struggling.

Miss the CP board, too.

[Chemar]

I could utilize a Good Nutrition forum for sure! I am hypoglycemic and don't feel comfortable posting in Diabetes (natch) ...at least with a nutrition support forum, I could battle the most important aspect of it. :) TC. JD

Hi
I believe the Vitamins etc forum could be what you will find helpful. Doesnt have to be just pills...all food and complementary health issues/treatments welcome too :)

[The Godfather]

In case they have not already been proposed the following neurological disorders had forums on BT1 but still do not have forums on BT2 :

Essential Tremor

Dystonia

Restless Legs Syndrome

Alzheimer's Disease and Dementia

[mrsD]

I second the suggestion, that Chemar made.

I have a good grasp of nutrition issues (how to balance your food intake
so you get the vits/minerals from your food).

I myself have insulin resistance, so I am somewhat hypoglycemic myself
and have to take care of that!

Our weight loss forum has some threads that are "nutrition" based, not
just for weight loss, but for controlling hunger. The fruits/veggie thread is
good, there. So check that out too.

Maybe that forum could be renamed Weight Loss/ Nutritional Issues?

We have a very active forum at Vit/Minerals forum here, please take a look.

[swift]

In case they have not already been proposed the following neurological disorders had forums on BT1 but still do not have forums on BT2 :

Essential Tremor

Dystonia

Restless Legs Syndrome

Alzheimer's Disease and Dementia

I don't know how much the ET and RLS forums got used, but the dystonia one was used very little. A 'movement disorders' forum could encompass all of the top three, plus other movement disorders.

JMHO
Swift

[lookingup58]

I am happy to see braintalk2.org. This is a place we can learn, share and cope better. I am sorry to see the Meralagia Paresthetica Forum is not listed. I am hopeful it will return. MP is not understood by many people or doctors. This is one place MP was up front and there to help inform people. Hopeful it will return. Does anyone know if it will?

Glad DocJohn has made braintalk2 available to us. Thanks!

[trekker]

:D Thanks again DocJohn for the latest forums. Now I must go to my humor archive and see if I have some little goodies to bring a chuckle or two.

[MoonAngel]

gentle nudge back to the first page :)

[mister]

I am looking for information on hydrocephalus, essential tremors, kindey disease. I have learned much from others over the course of time and the free exchange of ideas in these areas aswell as others can only make this site stronger and mor actractive to others who aren't here yet. I know I have already pasted on this site to a number of my friends and I hope that they will find their way here over the course of time.

Regards
Mister

[ihearvoices2]

Please can we have a brain tumor forum with maybe sub forums of different types of tumors? Also a MGUS (monoclonal gammopathy of undetermined significance) forum? thanks

[Chemar]

just a reminder to put forum requests on the special sticky thread Doc has created for this...that way he can check them there and try to add as best possible

here is the link to the Forum requests sticky thread

http://forums.braintalk2.org/showthread.php?t=2849

:)