Internal Tremor

[invisable]

Has anyone ever heard of internal tremor being a symptom of Lyme Disease?

I also have may abnormal neuro sensations all over my body.

Any insight would be appreciated.

Thank You.

[frosty]

Has anyone ever heard of internal tremor being a symptom of Lyme Disease?

I also have may abnormal neuro sensations all over my body.

Any insight would be appreciated.

Thank You.

Neuro lyme can cause a whole array of symptoms - are you seeing a Lyme Literate doctor? You should join your local lyme group by state on Yahoo medical groups. Very knowledgable folks. I have neuro lyme and babasia coinfection - I go to a lyme literate doctor and she has been a miracle in testing and treatment. You can get a referal from the Lyme yahoo groop for a good doc in your area.

[rbwalton]

Invisible-

I have noticed a few of your posts. I also have a weird tremor. When it was finally noticed, it was called Essential Tremor, after doctors ruled out the more harmful things they could think of. The visible tremor is not always there, but I can feel the shaking even when no one can see. Right this second it is pretty under control, but I am not holding my breath to see if it lasts. Anyway-

You ask about Lyme disease and tremor, and I have also wondered about a relationship. What I have found is that Lyme disease can flush magnesium out of the body somehow- and the lack of magnesium can lead to tremor, and a host of other weird neurologic sensations.

From lymebook.com/lyme-disease-diet-and-supplements-vitamin-a-b-c-magnesium

“Magnesium: Both Lyme and Bartonella significantly deplete the body’s supply of magnesium. Magnesium is one of the most important mineral nutrients necessary for good health, and also one of the minerals that Americans in general are most commonly deficient in. The recommended daily intake of magnesium for healthy people is 400 mg per day, but the sad reality is that the average American gets about half that amount per day. The best nutritional sources include green foods, especially collards and chard (magnesium is to chlorophyll what iron is to hemoglobin), orange-colored foods, nuts, chocolate, figs, apricots, coconut, bran, oats, beans, and legumes.

Most widely known for its ability to support the health of the bones, heart, skeletal muscles, and teeth, magnesium also plays essential roles in the maintenance and repair of all body cells, energy production, hormone regulation, nerve transmission, and the metabolism of proteins and nucleic acids. It also helps to reverse muscular tension and is involved in the functioning of literally hundreds of the body’s enzymatic reactions. A lack of magnesium can also contribute to immune system dysfunction, depression, fatigue, high blood pressure, high cholesterol, gastrointestinal problems, irregular heartbeat, memory problems, mood swings, muscle spasms and twitching, and motor skill problems. “

Hope that helps. . . I am still trying to figure out what causes my tremor. Magnesium controlled it for a while, but it is helping less as time goes on.

Good Luck!!











Has anyone ever heard of internal tremor being a symptom of Lyme Disease?

I also have may abnormal neuro sensations all over my body.

Any insight would be appreciated.

Thank You.

[invisable]

Invisible-

I have noticed a few of your posts. I also have a weird tremor. When it was finally noticed, it was called Essential Tremor, after doctors ruled out the more harmful things they could think of. The visible tremor is not always there, but I can feel the shaking even when no one can see. Right this second it is pretty under control, but I am not holding my breath to see if it lasts. Anyway-

You ask about Lyme disease and tremor, and I have also wondered about a relationship. What I have found is that Lyme disease can flush magnesium out of the body somehow- and the lack of magnesium can lead to tremor, and a host of other weird neurologic sensations.

From lymebook.com/lyme-disease-diet-and-supplements-vitamin-a-b-c-magnesium

“Magnesium: Both Lyme and Bartonella significantly deplete the body’s supply of magnesium. Magnesium is one of the most important mineral nutrients necessary for good health, and also one of the minerals that Americans in general are most commonly deficient in. The recommended daily intake of magnesium for healthy people is 400 mg per day, but the sad reality is that the average American gets about half that amount per day. The best nutritional sources include green foods, especially collards and chard (magnesium is to chlorophyll what iron is to hemoglobin), orange-colored foods, nuts, chocolate, figs, apricots, coconut, bran, oats, beans, and legumes.

Most widely known for its ability to support the health of the bones, heart, skeletal muscles, and teeth, magnesium also plays essential roles in the maintenance and repair of all body cells, energy production, hormone regulation, nerve transmission, and the metabolism of proteins and nucleic acids. It also helps to reverse muscular tension and is involved in the functioning of literally hundreds of the body’s enzymatic reactions. A lack of magnesium can also contribute to immune system dysfunction, depression, fatigue, high blood pressure, high cholesterol, gastrointestinal problems, irregular heartbeat, memory problems, mood swings, muscle spasms and twitching, and motor skill problems. “

Hope that helps. . . I am still trying to figure out what causes my tremor. Magnesium controlled it for a while, but it is helping less as time goes on.

Good Luck!!

RB Walton - Thanks for your reply. Have you been dx'd with Lyme disease?
Where is your tremor and when does it occur? Mine is when I am resting, not at all in movement. Mine is only on one side that is why I am so worried about Parkinsons, for which there is no test, it is dx'd by clinical observation and because mine is internal that is possible right now.

Sorry for more ?'s.......but scared & worried.

[Shelley]

Invisible I think you posted on my wall about internal tremor.

I had what felt like an internal tremor while at rest and it was really only on one side of my body which was left side (shoulder, head, neck area). And I felt it more at rest than anything else. Turned out to be a nerve that was impinged and spasming. It also sat really close to a blood vessel and the pressure on both is what was causing the sensation for me.

I hope you find some answers.

[rbwalton]

No, I have not been diagnosed with Lyme disease. My tremor is all in movement or in trying to hold my hand or leg steady against gravity. How you describe your tremor does not really sound like Parkinson's to me (I am not a doctor). "At rest tremor" or not, I think usually they are noticeable to outside viewers. Does it stop when you try to move? Is it in your hands or feet? Does it feel at all similar to a muscle spasm? Do you have any of the other early symptoms that might also point to Parkinson's?

RB Walton - Thanks for your reply. Have you been dx'd with Lyme disease?
Where is your tremor and when does it occur? Mine is when I am resting, not at all in movement. Mine is only on one side that is why I am so worried about Parkinsons, for which there is no test, it is dx'd by clinical observation and because mine is internal that is possible right now.

Sorry for more ?'s.......but scared & worried.

[invisable]

Thanks again for you replies.

My tremor is in calf of right leg, slightly in (rgt) arm & hand, chest & stomach. Is most noticable upon wakening. It does stop with movement. No other Parkinsons movement symptoms, but I have had many abnormal neuro sensations all over body, neuro took all kinds of tests; MRI's, Spinal Tap, 2 EMG's, lots of blood work, all neg. But Parkinsons doesn't show up in any of these tests, one has to wait for clinical symptoms to be obserable by Dr. and since mine are internal (tremor) & sensations.....no dx.

Lots of anxiety here!!!

[rbwalton]

Invisable-
Well, whatever it is you are not alone. Try google search of "invisible tremor." Here is one example that sounded just like you.

There is one for medhelp dot org (can not post links yet- hard to show this to make it easier to get to.

posts/Undiagnosed-Symptoms/invisible-tremors/show/1052092

What other odd neurological symptoms do you have?


Thanks again for you replies.

My tremor is in calf of right leg, slightly in (rgt) arm & hand, chest & stomach. Is most noticable upon wakening. It does stop with movement. No other Parkinsons movement symptoms, but I have had many abnormal neuro sensations all over body, neuro took all kinds of tests; MRI's, Spinal Tap, 2 EMG's, lots of blood work, all neg. But Parkinsons doesn't show up in any of these tests, one has to wait for clinical symptoms to be obserable by Dr. and since mine are internal (tremor) & sensations.....no dx.

Lots of anxiety here!!!

[invisable]

Thanks for the site - it sounded like I wrote it!

My other sensations are pin & needles randomly all over body, a wormy crawly feeling in leg, electrical type current sensations and sometimes a feeling like water has spilled on my leg. My neuro gave me Gabapentin, which helped wipe out about 80% of these, but the tremor continues.

I pray it is not Parkinsons.......it is a tough disease, a lot more to it than shaking.

[rbwalton]

Your other symptoms sound a lot like restless leg syndrome. Oh, and it can also be in arms and hands, on one side but both is more common. And, I just saw a study that found a possible association with essential tremor.

And a new theory emerges.

What if as you are waking up feeling the desire to move do the the RLS, and as you start to move, you feel the tremor. When I started to get a tremor I first noticed it as I was waking up and using my left arm to adjust the covers. This was long before I noticed it in regular awake hours. This may not fit you, but I wanted to give you another possibility other than Parkinson's.

What do your doctors say about you possibly having Parkinson's?

(The more I look at this stuff the more it seems I might have Parkinson's. Too many symptoms in that list, and some of them are common to many other processes other than Parkinson's.)



Thanks for the site - it sounded like I wrote it!

My other sensations are pin & needles randomly all over body, a wormy crawly feeling in leg, electrical type current sensations and sometimes a feeling like water has spilled on my leg. My neuro gave me Gabapentin, which helped wipe out about 80% of these, but the tremor continues.

I pray it is not Parkinsons.......it is a tough disease, a lot more to it than shaking.

[invisable]

Your other symptoms sound a lot like restless leg syndrome. Oh, and it can also be in arms and hands, on one side but both is more common. And, I just saw a study that found a possible association with essential tremor.

And a new theory emerges.

What if as you are waking up feeling the desire to move do the the RLS, and as you start to move, you feel the tremor. When I started to get a tremor I first noticed it as I was waking up and using my left arm to adjust the covers. This was long before I noticed it in regular awake hours. This may not fit you, but I wanted to give you another possibility other than Parkinson's.

What do your doctors say about you possibly having Parkinson's?

(The more I look at this stuff the more it seems I might have Parkinson's. Too many symptoms in that list, and some of them are common to many other processes other than Parkinson's.)

It really is a tough one! I read about essential tremor, it can include internal tremor also, but the part that doesn't fit for me is my tremor is always at rest and started in leg. Essential seems to only occur with movement and starts in hands or arms. Believe me, I wish it was Essential tremor, Parkinsons scares me to death! The neuro I went to couldn't dx Parkinsons because no symptoms were visable, he said internal tremor can be a part of Parkinsons, but has to be seen (advanced) for dx. It is pretty hard searching for answers, getting none, feeling the symptoms and getting more and more anxious. I am sorry if I put the Parkinsons bug in your ear........didn't mean to do that!
If you have had tremor for a while now (how long has it been?), you would probably be showing more symptoms by now if it were PD.

[rbwalton]

I get that you are afraid of what this could turn into, and I am right with you. Certain of my symptoms do not fit my main diagnosis, but what I have does not really suggest anything to the doctors either. That is why they ran all the tests that while they did not turn up a new diagnosis- at least they ruled out certain others. SO, I guess all we can do is wait- and hope those other things do not show up.

What I see out there on internal tremor- All it means is that your tremor is not visible to others yet. It still could be other things than Parkinson's.

There are a lot of kinds of tremor. Do not think that just because yours does not fit with essential tremor that it means Parkinson's. I have seen a "postural tremor" video on youtube. The person is laying down, and tremor is impacting all limbs. They are technically at rest. But it is a postural tremor because if they sit up and move, it goes away.

It really is a tough one! I read about essential tremor, it can include internal tremor also, but the part that doesn't fit for me is my tremor is always at rest and started in leg. Essential seems to only occur with movement and starts in hands or arms. Believe me, I wish it was Essential tremor, Parkinsons scares me to death! The neuro I went to couldn't dx Parkinsons because no symptoms were visable, he said internal tremor can be a part of Parkinsons, but has to be seen (advanced) for dx. It is pretty hard searching for answers, getting none, feeling the symptoms and getting more and more anxious. I am sorry if I put the Parkinsons bug in your ear........didn't mean to do that!
If you have had tremor for a while now (how long has it been?), you would probably be showing more symptoms by now if it were PD.

[rbwalton]

Invisible

Just me again. I wanted to add that whatever you have, a magnesium supplement still may help with the symptoms. Magnesium is a necessary part of many body processes involving nerve and muscle function. And it is often not available in high enough amounts in food products today. I take a daily chelated magnesium supplement, and it has helped me.

Good Luck, and better health to you!

[shingleberry]

Invisible I think you posted on my wall about internal tremor.

I had what felt like an internal tremor while at rest and it was really only on one side of my body which was left side (shoulder, head, neck area). And I felt it more at rest than anything else. Turned out to be a nerve that was impinged and spasming. It also sat really close to a blood vessel and the pressure on both is what was causing the sensation for me.

I hope you find some answers.

How did you fix it?

[Zanney]

I have Acrodermatitis chronica atrophicans, a very late stage symptom of lyme that is more commonly known in Europe.

It is skin and joint related mostly but these tremors are a major part of it.
I can not get much in the way of treatment, as lyme is 'not allowed'. I do get releif from epsom salt baths, at least for a few hours. Twitching, involuntary large muscle movements, internal or invisible tremors and actual visible tremors and my skin feels like I have been sunburned and stuck in a hot shower all the time now..
FYI.....under anestesia for dental work...i was told i twitched like a fish on a dock, and had to be restrained to keep me in the chair.

I have not yet figured out how to supplement magnesium as I have severe nickel allergies now and all the foods high in magnesium are also high in nickel.....will this never end....ahhhhh!

[WhatDoIHave?]

Thanks for the site - it sounded like I wrote it!

My other sensations are pin & needles randomly all over body, a wormy crawly feeling in leg, electrical type current sensations and sometimes a feeling like water has spilled on my leg. My neuro gave me Gabapentin, which helped wipe out about 80% of these, but the tremor continues.

I pray it is not Parkinsons.......it is a tough disease, a lot more to it than shaking.

HI. I read your symptoms and they sound like mine. I've been to 3 neurologists who tell me I do not have Parkinson's. My walking is getting worse, balance is very off, "electricity feeling" throughout my body when resting, high pitched sound in my ears as if I am hearing the electricity, and moving tremor when I use my muscles. Tested negative for Lymes. I went from being totally fine 6 monts ago, to being a person who cannot make it through a mall. I need to find what I have. Does anyone out there have any ideas? I was a healthy active productive 52 year old mother, wife, daughter just a few months ago. I'm scared. Without a diagnosis, and getting worse by the day, it's scary. PS. My dad has Parkinson's. Could this be early PD? It is just a waiting game? Has anyone had a DAT scan and does it help. My docs do not recommend it, as they do not think I have PD.