View Full Version : The thread for my upcoming stim surgery
tchr012
09-27-2010, 04:42 PM
Hi everyone, this is going to be my actual surgery info thread...I am no longer using the other one for personal reasons. I probably won't be able to post much until after my appointment on the 12th. I am still in a lot of pain (even with the pain meds) but am able to go out in the wheelchair. I can't walk very far at all even with the walker. Right now, I am just trying to get through the semester even though I failed a test yesterday and my school work was really bad. I have all these emotions about the surgery, I am nervous but I want it done I am so tired of being in pain and want to be back to my normal self. I am thankful for the pain meds especially when the stupid stim shuts all the way down and won't charge back up. I cannot sleep hardly but I am trying to make the best of things because I know this will all be over soon! Hope everyone is doing well! Have a great week :hug:'sTara
:hug::hug::hug: oh, and one more thing.. :hug:!
You just do what you need to do and try your hardest to take care of yourself... we're all here if you need us and thinking about you and praying for you...
Totally understand if you don't get back to talk much--you have other important things on your plate right now, like school.
Oh, but I do expect a reply to my message I sent last night--which was, by the way, 5 pages in a word processing document. :winky:
Okay, okay, so I can wait for a response... :) Take care of YOU!
Love you, as always.
Mark56
09-27-2010, 10:16 PM
Nope, I am not John Wayne, and can't even do a good imitation. But it just caught me, you are on a pilgrimmage Tara, from the before of pain and hopelessness where falling and hurting have ruled your life to the after of post surgical healing and hopefully repair of a system gone haywire in your body. I pray and hope and pray and pray that ALL will be well in this for you and for your husband. So looking forward to hearing a report that everything has gone well once your surgeon has said and done all there is to be done to restore life to Tara.
Yes indeed,
Mark56:hug:Z:grouphug:
tchr012
09-29-2010, 05:46 PM
I haven't been posting much because there is so much going on right now. I was really depressed and feeling pretty horrible mentally and physically but I am doing a little better. It is just so much for me to keep doing school right now and I guess I was upset when I started having problems like when I failed the test. However, after a very good talk with my therapist I am able to cut myself more slack. It just gets so hard and frustrating sometimes because lately all I have wanted to do is to curl up in a ball somewhere until I am better but I don't have that option. I think I also feel a lot of pressure to get really high grades this semester since I am supposed to be graduating in the spring and then trying to get into our school's teaching program. I should just be thankful that I will be able to get better and that at least I have pain meds but I guess that does not take away all of my emotions about the situation right now. I really don't like this person that I am right now, sorry I know that is probably negative but it is how I feel. And of course I got a letter from my lawyer about even more money that has been racked up for my medical bills and everyone wants to be paid but I cannot pay and I just want the lawsuit to be over and for my surgery to be over. I just want this new life that everyone has been promising me (when I got the stim originally). So anyway, thanks for listening and hope you all are having a good week. take care.
Tara,
I can't speak for anyone else, but I for one love your updates--even when things aren't going so well. And I like you, even when you don't like yourself. (((hugs)))
I know that things are stressful and that this is tough right now--but you will get through it. You are such a fighter... I know you will come out just fine in the end. It's the process and the middle part that is tough--but you can do it.
Lean on us... we're all here for you. I'm glad you were able to talk it out with your therapist. We are also here to listen if you want to talk. :)
Keep doing what you're doing... you are doing just fine! One failed test won't matter in the long run. Remember what I said about regrets in the classroom? You will always look back and say "I regret this" or "I wish I had done this instead" or "That failed miserably"... but as long as you are doing the best that you possibly can at each moment, nobody can ask any more than that.
Hang in there, and I'm always here if you want/need to talk. :)
I will hopefully respond to your FB message tomorrow--tonight I am trying to finish a journal entry in my CaringBridge.. but I will get back to you ASAP. :)
Love you!
Sarah
Jackiey
09-30-2010, 09:46 AM
I haven't been posting much because there is so much going on right now. I was really depressed and feeling pretty horrible mentally and physically but I am doing a little better. It is just so much for me to keep doing school right now and I guess I was upset when I started having problems like when I failed the test. However, after a very good talk with my therapist I am able to cut myself more slack. It just gets so hard and frustrating sometimes because lately all I have wanted to do is to curl up in a ball somewhere until I am better but I don't have that option. I think I also feel a lot of pressure to get really high grades this semester since I am supposed to be graduating in the spring and then trying to get into our school's teaching program. I should just be thankful that I will be able to get better and that at least I have pain meds but I guess that does not take away all of my emotions about the situation right now. I really don't like this person that I am right now, sorry I know that is probably negative but it is how I feel. And of course I got a letter from my lawyer about even more money that has been racked up for my medical bills and everyone wants to be paid but I cannot pay and I just want the lawsuit to be over and for my surgery to be over. I just want this new life that everyone has been promising me (when I got the stim originally). So anyway, thanks for listening and hope you all are having a good week. take care.
Tara:hug:Its lovely to have you here whenever you feel the need and want to share. Its amazing how just typing out your feelings and 'getting it all out' can be of some benefit to someone. I hope you are feeling better today.
Take care :hug:
tchr012
09-30-2010, 01:49 PM
I just talked to the surgeon's office and all of my doctor's paperwork finally got sent over and they are going to see me on Oct. 5 instead of the 12th! Yay :) I am so happy because she also said that during this new appointment we would learn all the details and get my surgery scheduled!! I am so happy about this because it has been a real emotional roller coaster with all my doctors and surgeon these last few months! I am finally going to be seeing the light at the end of the tunnel very soon :) Yay!!!!!
Mark56
09-30-2010, 05:37 PM
Yea for your move up on the appt to the 5th!! That is the same day as my job interview! May we both come out happy in the results of our discussions!
Big Hugs to Tara and your medical team!:grouphug:
Mark56:hug:
tchr012
09-30-2010, 07:10 PM
Thank you! Good luck on your job interview Mark, That date is going to be great for the both of us!! Although, I am not going to lie, I am starting to get a bit nervous already ;) take care. :hug:'sTara
Jackiey
10-05-2010, 03:18 AM
Tara good luck today with your dr appointment. I do hope it's everything that you want and need. Make sure you asks lots of questions and dont go until you are happy with everything. I pray that you will get a surgery date and we will all start the countdown process with you ;). Tellus how you got on. Here's to a happy future.
Jackie :hugs:
Today's a BIG day for you Tara, my friend!
You KNOW we are all pullin for ya!
((((HUGS)))) and (((PRAYERS)))
Rae
:grouphug::grouphug:
tchr012
10-05-2010, 10:34 AM
Well, I just got back from my dr. appt. It went well and he explained the procedure and now I am not as scared. I don't have a date yet because the surgeon and my pain doctor have to figure out the day they can schedule it together. He said that he will do the incision (in my back) and place the paddle lead and then she will fix my pocket where my battery is. The only thing I am not too excited about is they have to wake me up during the surgery again:( so that they can make sure the stimulation is in the right place. I was really hoping to just sleep through the whole thing because that is the part I hate most about stim surgeries! Oh well, I am willing to go through whatever it takes to get my stim working right again and I am looking forward to everything working and me getting my life back :) Thank you everyone for the support and I will let you know when I get my date set up! Take care :hug:'sTara.
Jackiey
10-05-2010, 12:34 PM
Hey Tara:hug:
Im so glad you had a good appointment today. I dont know what its actually like to be woken up as I was awake, well kinda sedated slightly,:eek: during my implant. But you know as you said Im sure you will 'put up' with that bit once they get the whole thing sorted now. Thats all you want. To get back on track. You did say that when you had it done initially it was great, so lets hope thats whats going to happen this time too. And Ive no doubt it will:) Keep your spirits up and you know in a couple of months you will be reading back your posts and thinking, wow Ive survived all that and now look at me ;)
Will keep you in my prayers, my list is endless:D and pray that you will have a date sooner rather than later.
Take care
Jackie :hug:
fionab
10-05-2010, 01:21 PM
They woke me up several times during my two implant surgery and all I remember is saying, "ouch, ouch, ouch", answering a few questions and then I was knocked out again. Is really not a big deal as once you're in recovery you're on pain meds. and the surgery is behind you and you get yourself mentally focused on recovery. Good luck :hug:
tchr012
10-05-2010, 08:07 PM
The reason I am so concerned about having to be awake in the middle is because during my last revision the anesthesia was very messed up and I felt way more than I needed and I remember it a lot more clearly than the original placement. I still actually have nightmares about it and the original was not as bad as all. And then when they were supposed to do sedation for the spinal block again it got screwed up and did not even kick in until I was home from the hospital that night! I also hate the part where you are lying on the surgery table or bed (whatever it is) and when they are calibrating you and your middle gets sucked in and you start lifting off the table and it is way more painful than after the surgery. The surgeon that I saw today acted like this will not be a big deal but it kind of is for me because of all those reasons above ;)!
I was AWAKE the whole time too!! Just expound upon the fact that you'd really really REALLY appreciate plenty of 'local' anesthesia around the site he's workin on and keep real still.......
PLUS! For some reason I made it known to the entire hospital staff of how awesome that little yellow spongy 'face-pillow' was, and I insisted upon taking it home as a souvenier!!...... :rolleyes:
Yep, just keep asking for them to shoot the numbing stuff where he's doin the work......take an anti-anxiety something or other.....you'll be done with it before you know it.....I truly bet it won't be what you remember your other one to be....! It'll go smooooth
:hug::grouphug::hug:
Jackiey
10-06-2010, 12:49 PM
Wish I had one of those 'face-pillow' when I had mine:rolleyes: I vaguely remember the whole procedure even though I was actually awake. Well I was slightly sedated. I dont remember getting from my bed onto the bed in the op theatre.....or getting back into my own bed:eek:yet I was awake! hmmmmmm. One of the things my Dr said to me was that the only part that MIGHT be uncomfortable is the actual injections to numb the area. Well let me tell you , he was right!:eek:thats all I felt, just the prick from the needles and then ......nothing. So Tara you will be just fantastic. I imagine they too will probably give you some light sedation , after all if you asleep for most of the procedure, you will probably just be slightly awake, enough to say, yep that where I need it etc....and then next thing you will be in your bed....and wondering how the hell you got there:D
Keep thinking that once its done, its done:hug:
tchr012
10-06-2010, 07:06 PM
Thank you :hug::hug::hug:jackie fiona and Rae, I think I am just overwhelmed with a lot right now so it is making surgery seem more scary ;) I also was worried because I am putting trust in my old pain doctor and the surgeon she likes so I guess that made me more nervous. However, at this point I just want it done and I am ready for it! I am having problems with charging again and its been two days so far it has not charged again and to me its like why have this in me and have gone through 2 surgeries just to have it not work! So, I am definitely ready to do this and get on track to getting my life back I do have faith and I have prayed that I am making the right decision. I will of course, let you all know when I get the news, thanks again for encouragement and support! take care!
Jackiey
10-07-2010, 09:01 AM
Thank you :hug::hug::hug:jackie fiona and Rae, I think I am just overwhelmed with a lot right now so it is making surgery seem more scary ;) I also was worried because I am putting trust in my old pain doctor and the surgeon she likes so I guess that made me more nervous. However, at this point I just want it done and I am ready for it! I am having problems with charging again and its been two days so far it has not charged again and to me its like why have this in me and have gone through 2 surgeries just to have it not work! So, I am definitely ready to do this and get on track to getting my life back I do have faith and I have prayed that I am making the right decision. I will of course, let you all know when I get the news, thanks again for encouragement and support! take care!
:hug:Tara...we are all thinking of you....I hope you get a date real soon:hug:
tchr012
10-07-2010, 02:52 PM
I am having an extremely hard time right now, things keep getting worse and I am so stressed out :icon_cry::icon_cry::icon_cry::icon_cry::icon_cry: I just wish I could get a break! Its not just about my stim surgery either there is way more too it but that is all I can say on here.
Jackiey
10-07-2010, 04:30 PM
Im SOOOOOOOO sorry to hear that you are so stressed out Tara, if only we could help you out it would be so good. Please feel free to talk whenever you feel like it.....
Take care Jackie:hug:
Mark56
10-07-2010, 08:26 PM
Dear Tara- I am so sorry you have learned of the need for wakefulness during the procedure. Perhaps because of the prior issues they just want to make absolutely sure of the placement so as to give you the best possible care. I slept through my whole procedure, and it has seemed to go well, but our histories are different, and I truly pray and hope that with this seemingly unusual approach that your situation will be fully handled so that your pain is MANAGED to the full. Yes indeed.
Praying,
Mark56:hug:
pooh_ac
10-07-2010, 09:29 PM
Tara, I truely feel your pain. Just remember if this old broad can do the wakeful thing three times so can you! I am thinking I am heading for yet another revision:eek: Not looking forward to it but if thats what it takes to control my pain so be it:wink:
Keep your chin up and beller whenever you need an ear to bend:rolleyes:
:hug:z
Mark56
10-07-2010, 11:20 PM
Tara, I truely feel your pain. Just remember if this old broad can do the wakeful thing three times so can you! I am thinking I am heading for yet another revision:eek: Not looking forward to it but if thats what it takes to control my pain so be it:wink:
Keep your chin up and beller whenever you need an ear to bend:rolleyes:
:hug:z
Sorry you are headed for another revision...... and I guess in a way glad, in hopes that this revision will be the ticket for better pain management for you for darn sure!!!!!!
Prayin,
Mark56:hug::hug:
Jackiey
10-08-2010, 09:32 AM
Tara, I truely feel your pain. Just remember if this old broad can do the wakeful thing three times so can you! I am thinking I am heading for yet another revision:eek: Not looking forward to it but if thats what it takes to control my pain so be it:wink:
Keep your chin up and beller whenever you need an ear to bend:rolleyes:
:hug:z
Oh a revision:eek:didnt even know they existed. I assumed that if anything went wrong, tough, that was the deal and they couldnt do anymore for you. I hope if they do have to do a revision that it will bring you relief from this dreadful pain :)
tchr012
10-08-2010, 11:57 AM
He called to check up on me and find out how things were going. He is going to get in touch with the pain doctor office to see about my surgery being scheduled. However, I am concerned because when I told him that the neurosurgeon said that my pain doctor would have to work with him on the surgery and that she had to fix the batter/pocket area he seemed really confused. I am getting a really bad feeling and if they say I have to have another meeting with her or that she won't do that part of the surgery I am definitely going to the new doctor and have him handle me from now on! I am so tired of this and have never had this much problem with a surgery before and I have had plenty of surgeries! I am not that concerned about being awake at this point, I just want it done and to feel comfortable that people know what they are doing. I am going to see what he says later and then make a decision. I am so stressed out right now I am hardly eating and feel sick or eating causes a lot of pain :( I just want this over with and to get on with my life again! I will let you know when I hear anything. Take care :hug:'sTara.
tchr012
10-08-2010, 12:00 PM
Oh a revision:eek:didnt even know they existed. I assumed that if anything went wrong, tough, that was the deal and they couldnt do anymore for you. I hope if they do have to do a revision that it will bring you relief from this dreadful pain :)
Jackie, I have already had a revision before and this will be my second. They do revisions when you need your battery changed or you need your leads fixed because they moved;). This time it is different because its the second time my leads moved and they are going to put in the paddle leads in the hopes they wont be able to move again. Hope that makes sense ;) I guess at least it is good to know that we do have options of getting revisions even if something goes wrong ;)
tchr012
10-08-2010, 12:03 PM
Tara, I truely feel your pain. Just remember if this old broad can do the wakeful thing three times so can you! I am thinking I am heading for yet another revision:eek: Not looking forward to it but if thats what it takes to control my pain so be it:wink:
Keep your chin up and beller whenever you need an ear to bend:rolleyes:
:hug:z
:hug:Pooh, I am sorry to hear you need another revision too! I hope that it works out for you, are you going to get the paddle leads too or not? Do they know why you need the revision? Thanks for responding to my post, I will be thinking about you too and hope that they can fix everything ;) Take care :hug:'sTara.
Mark56
10-08-2010, 11:03 PM
Hi Tara-
Just thinking that paddles will do..... paddles will do, especially once they scar in so that movement may be even less of a risk for you. So glad your stim guy is responsive and responsible in helping you!!
ASAP,
Mark56:hug:
fionab
10-09-2010, 09:45 AM
I hope that you FINALLY get things straightened out about your surgery. It's stressful enough without all this runaround!
Pooh: Praying your revision goes well and you get the pain relief you need.
Jackiey
10-10-2010, 01:13 PM
Wow all this talk about revisions:eek:
When I had my surgery my Consultant told me that if the leads move that thats it basically. He also told me that the skin over the battery is very thin and I have to be very careful not to bang off it or knock it etc otherwise the whole thing would be a disaster. They was no talk of revisions. Certainly no talk of sorting out the leads if they move or if the battery moves. I got the impression from him that this is the deal now. You've had your surgery and its up to me to make sure that I dont do anything to jeopardise the situation. He said he did many stims and so far all have been successful......hmmmmm wonder what would happen in reality if anything did go wrong, just a thought:confused:
Pooh I hope that you will get it all sorted out real soon:)
pooh_ac
10-11-2010, 09:34 PM
I am stalling and trying to get this thing figured out. Jackie, my revisions have been for the following reasons:
1. Battery died:mad: due to the amount of energy I need, * this was before the rechargables were available
2, Leads pulled loose due to fall, new implant rechargable this time and new lead placement
I hope we can figure out what is going on with my unit, but I have very little faith in it as it does not seem to want to charge as it should. I would like to just have the unit, not the leads replaced if I can at all so I dont have to go through all the healing time.
:eek: I guess time will tell but I have a funny feeling.......
fionab
10-12-2010, 01:45 PM
Pooh: Sorry to hear you've had to deal with so mant problems :hug: Just recovering from this surgery (my one and only, I hope) is bad enough, let alone your having to go through it several times. Praying for you :smileypray::smileypray:
tchr012
10-14-2010, 08:19 AM
Well, since this is information about my stim surgery I put it back on this thread. I am back from the doctor and the good news is that he is officially my new doctor and he will be working with a surgeon (whom I am going to meet) to do my surgery! The doctor explained the surgery and he said that since my leads are so messed up they will have to replace them rather them simply move them (and add the paddle) he is also trying to figure out my battery issues since I can't charge right because they might have to replace it too. I am so happy and very proud of myself :) I also was shocked because the nurse or med assistant was extremely rude to me and argued about everything with me from my pain level , to what helped my pain, and even about my limitations! I hate when I get treated like that and I don't think it is right or fair especially when I did nothing wrong but it does happen :( I did tell the resident that works with my doctor though because if she was that way to me odds are she is doing that to other patients! Overall, I am very happy though because I have a great new doctor, my surgery is going to be scheduled, and they also put me on new pain meds because I have been throwing up and hardly eating. And I get to keep my favorite stim guy :) That is the update for now, I am just waiting to get my appt with the surgeon and then of course the surgery date will come after that. I have lots of homework to do still so I need to go I will leave another update when I can. I hope everyone is having a great week Take care:hug:'sTara
fionab
10-14-2010, 10:16 AM
Well, since this is information about my stim surgery I put it back on this thread. I am back from the doctor and the good news is that he is officially my new doctor and he will be working with a surgeon (whom I am going to meet) to do my surgery! The doctor explained the surgery and he said that since my leads are so messed up they will have to replace them rather them simply move them (and add the paddle) he is also trying to figure out my battery issues since I can't charge right because they might have to replace it too. I am so happy and very proud of myself :) I also was shocked because the nurse or med assistant was extremely rude to me and argued about everything with me from my pain level , to what helped my pain, and even about my limitations! I hate when I get treated like that and I don't think it is right or fair especially when I did nothing wrong but it does happen :( I did tell the resident that works with my doctor though because if she was that way to me odds are she is doing that to other patients! Overall, I am very happy though because I have a great new doctor, my surgery is going to be scheduled, and they also put me on new pain meds because I have been throwing up and hardly eating. And I get to keep my favorite stim guy :) That is the update for now, I am just waiting to get my appt with the surgeon and then of course the surgery date will come after that. I have lots of homework to do still so I need to go I will leave another update when I can. I hope everyone is having a great week Take care:hug:'sTara
Great news :Dancing-Chilli::Dancing-Chilli::Dancing-Chilli:
Jackiey
10-14-2010, 12:59 PM
Well, since this is information about my stim surgery I put it back on this thread. I am back from the doctor and the good news is that he is officially my new doctor and he will be working with a surgeon (whom I am going to meet) to do my surgery! The doctor explained the surgery and he said that since my leads are so messed up they will have to replace them rather them simply move them (and add the paddle) he is also trying to figure out my battery issues since I can't charge right because they might have to replace it too. I am so happy and very proud of myself :) I also was shocked because the nurse or med assistant was extremely rude to me and argued about everything with me from my pain level , to what helped my pain, and even about my limitations! I hate when I get treated like that and I don't think it is right or fair especially when I did nothing wrong but it does happen :( I did tell the resident that works with my doctor though because if she was that way to me odds are she is doing that to other patients! Overall, I am very happy though because I have a great new doctor, my surgery is going to be scheduled, and they also put me on new pain meds because I have been throwing up and hardly eating. And I get to keep my favorite stim guy :) That is the update for now, I am just waiting to get my appt with the surgeon and then of course the surgery date will come after that. I have lots of homework to do still so I need to go I will leave another update when I can. I hope everyone is having a great week Take care:hug:'sTara
Woooooohoooooooo Tara:hug:
How wonderful to read your latest update. I cant believe you are 'getting' there so to speak. Its fantastic news indeed.
You know you dont have to take the rudeness that this nurse dishes out to you. YOU ARE THE PATIENT and certainly do not need this added hassle to the stress and strain you have been under for the past while.
I remember when I first got an appointment with my Consultant, not the pain guy, to figure out what was up with me. This was back in 2005. He had this secretary. Well she was the most ignorant person I have EVER come across. When I would ring to speak with my Consultant, she wouldnt pass on the messages nor would she get him to speak with me even if he was in the next room. I dreaded calling her in case she had a 'go' at me. At the time I was always ringing my Consultant because I was waiting for dates for surgery etc, not unlike yourself Tara. But I had had enough and when I eventually got to see my Consultant I told him I was NOT impressed with how his secretary was treating me. He said that he had many complaints and that she was being 'removed'. Its hard enough to have to deal with all the pain and suffering etc . So the last thing you need is someone who doesnt seem to 'care' but wants to make you feel even worse. I hope that if this person treats you like this again Tara that you make a complaint. You shouldnt have to put up with this harrassment or bullying. :)
Im sooooo pleased though that all is going in the right direction. Well done you :hug: Keep us updated and I hope that your homework isnt too stressful for you. Especially on such a good day as today has been for you
Take care:hug:
tchr012
10-15-2010, 12:10 PM
Woooooohoooooooo Tara:hug:
How wonderful to read your latest update. I cant believe you are 'getting' there so to speak. Its fantastic news indeed.
You know you dont have to take the rudeness that this nurse dishes out to you. YOU ARE THE PATIENT and certainly do not need this added hassle to the stress and strain you have been under for the past while.
I remember when I first got an appointment with my Consultant, not the pain guy, to figure out what was up with me. This was back in 2005. He had this secretary. Well she was the most ignorant person I have EVER come across. When I would ring to speak with my Consultant, she wouldnt pass on the messages nor would she get him to speak with me even if he was in the next room. I dreaded calling her in case she had a 'go' at me. At the time I was always ringing my Consultant because I was waiting for dates for surgery etc, not unlike yourself Tara. But I had had enough and when I eventually got to see my Consultant I told him I was NOT impressed with how his secretary was treating me. He said that he had many complaints and that she was being 'removed'. Its hard enough to have to deal with all the pain and suffering etc . So the last thing you need is someone who doesnt seem to 'care' but wants to make you feel even worse. I hope that if this person treats you like this again Tara that you make a complaint. You shouldnt have to put up with this harrassment or bullying. :)
Im sooooo pleased though that all is going in the right direction. Well done you :hug: Keep us updated and I hope that your homework isnt too stressful for you. Especially on such a good day as today has been for you
Take care:hug:
Jackie, thanks for sharing your experience with me! I am so sorry that you went through that too with a rude secretary. I honestly don't know why they let people treat their patients like that, if you have a bad attitude towards people you should not be involved in a job that is supposed to be about helping them! I did tell the doctor assistant about her behavior and if I ever get her again I am just going to refuse to see her I get tired of putting up with rude people just because I am desperate to get some help :( Its bad enough to be in constant pain and be sick all the time without the added annoyance of being worried about your treatment from your doctors, nurses, med assistants, and secretaries! Now, I get even more nervous and feel sick to my stomach whenever I have to see a new doctor because I get worried about if they will take me seriously and help me or just be rude and upset me. I guess this is all more learning experiences...
tchr012
10-15-2010, 12:15 PM
I am stalling and trying to get this thing figured out. Jackie, my revisions have been for the following reasons:
1. Battery died:mad: due to the amount of energy I need, * this was before the rechargables were available
2, Leads pulled loose due to fall, new implant rechargable this time and new lead placement
I hope we can figure out what is going on with my unit, but I have very little faith in it as it does not seem to want to charge as it should. I would like to just have the unit, not the leads replaced if I can at all so I dont have to go through all the healing time.
:eek: I guess time will tell but I have a funny feeling.......
:grouphug:Pooh, I am so sorry that you have to have another revision :( I was pretty frustrated myself when I found out I have to have yet another surgery. I really hope they can figure out what is going on with your device and I hope they can just replace your battery without messing with the leads for your sake :( The first time both my leads migrated they still have no idea why that happened, and then of course this last time was due to a fall (like yours). I didn't realize that yours was not a rechargeable battery because I guess I thought all of ours are but that really must be difficult! I have trouble enough (since my fall) even getting it to charge properly at all so I cannot imagine what you are going through :( Good luck with everything and please keep me and everyone posted! Take care BIG:hug:'sTara
pooh_ac
10-15-2010, 09:18 PM
well my current unit is suposed to be a rechargeable, however my last 2 units were not and i tend to chew through batteries, NOW my recharging unit will not charge so.......:confused:
tchr012
10-16-2010, 01:15 PM
well my current unit is suposed to be a rechargeable, however my last 2 units were not and i tend to chew through batteries, NOW my recharging unit will not charge so.......:confused:
Pooh, I am so sorry to hear that! It is really rough when your stim will not recharge and I think its been 8 days since mine has worked :( My stim rep said I have to get it charged to at least 2 again because they want to see if my battery is messed up or if it has just moved. I miss the old times when it used to charge and I didn't even have to worry about it. I am just thankful that the new pain meds they put me on are helping with my pain and I am no longer throwing up with them so I can try to start eating a little more again! I am really sorry that you need another surgery and like I said I understand your frustration especially because my revision was very painful compared to the original placement. I hope that you can get yours fixed and can get some relief again! I cannot wait for my surgery so I can use mine again :) Its hard to go from having the stim and being out of pain and walking normally to now have it so screwed up that you can't even be on your walker more than a few minutes! My thoughts and prayers are with you that you get your stim fixed and feel better! Take care BIG:hug:'sTara
tchr012
10-27-2010, 05:54 PM
Well, the good thing is I have my ct scans set for Friday morning. The doctor is going to check them (especially the heart one) and then I get to FINALLY have my surgery scheduled and have my date! I am so excited and really happy that things are moving along. I really made the right choice in changing doctors! I also had to make some changes at school and I am not going to be graduating in the Spring but I still got into the school of education and after I retake some math classes I can apply for the student teaching program. I was really hoping to have graduated by 30 but it is okay because sometimes life throws things at you (or a big yellow bus) and it changes your path for awhile. I am determined more than ever to be a teacher and getting my stim surgery done is one of the steps to getting to that goal! Anyway, I have also been really busy with school and I have had a lot of assignments and papers so thats why I haven't been around as much. I will let you all know after my tests when I get to know my actual surgery date :) Hope you are all doing okay and having a great week! Take care :hug:'sTara
tchr012
10-29-2010, 08:43 PM
Well, we went for my ct scans today and I was really nervous because I am always afraid the aneurysm has gotten bigger :( It took an hour for them to get me back there and then I had to have the dye which always makes me very sick :( It was weird because they made me totally turn my stim off which no one else has had me do before for any other tests. I have been very nauseas and getting sick all day and am still not feeling very good :( I have been sleeping pretty much all day. They told me that my doctor should call next week to let me know the results and to schedule my surgery. I hope it happens very soon, a year is so long to wait for all of this to be fixed. I only have two more months for this semester so I am trying to keep ahead of things so that I can keep my good grades, although when I do get my surgery I doubt I will feel good enough to do any homework. Well, this will probably be my last update until I get my surgery date, I will probably just make a new thread with the date when it is official. Hope everyone has a great weekend! Take care :hug:'sTara
(((Tara!)))
I'm so sorry the CT went this way! :( You've had your share of feeling sick and you certainly didn't need THIS! It's too bad they wouldn't let you at least have your unit ON.......how very uncomfortable you must have been!
I pray that your results will be in your favor so that things can just move right along for you!
Lifting you up in P R A Y E R my dear friend!
Always Caring
Rae
:hug:
Jackiey
10-30-2010, 07:06 AM
Tara:hug:
How awful, MORE SICKNESS:mad:......Im sure you will get the go ahead pretty soon. A year is a lifetime when in pain, dont we know it. So Please GOD it will come asap.
I hope you are feeling a bit better today. Try to relax as much as you can. I know you have homework to do too, but you need to take it easy too. You've been through a lot this week.
Good luck Tara and take care:hug:
Mark56
10-31-2010, 11:38 PM
Gotta get that hurdle out of the way to do the redo of you, then all will be better, this I pray for you.
:hug:
Mark56
tchr012
11-02-2010, 03:40 PM
Well, I called the doctor's office and it was very weird. They said that they cannot give me a surgery date until they talk to my heart doctor about my ct scan. I am not sure what that means but I hope that my aneursym hasn't gotten bigger :( They are supposed to call me tomorrow so hopefully I find out something. I wish they could have just told me if there was something found with the ct or whatever, just thought I would let you all know. I am still sick (kidney infections again) and feeling horrible. I am also trying to do lots of homework but I will tell you guys if I get my actual date. Take care, thanks for thinking of me! :hug:Tara
Well, I called the doctor's office and it was very weird. They said that they cannot give me a surgery date until they talk to my heart doctor about my ct scan. I am not sure what that means but I hope that my aneursym hasn't gotten bigger :( They are supposed to call me tomorrow so hopefully I find out something. I wish they could have just told me if there was something found with the ct or whatever, just thought I would let you all know. I am still sick (kidney infections again) and feeling horrible. I am also trying to do lots of homework but I will tell you guys if I get my actual date. Take care, thanks for thinking of me! :hug:Tara
:hug:
:smileypray: for you.
:circlelove:
Jackiey
11-02-2010, 07:06 PM
Well, I called the doctor's office and it was very weird. They said that they cannot give me a surgery date until they talk to my heart doctor about my ct scan. I am not sure what that means but I hope that my aneursym hasn't gotten bigger :( They are supposed to call me tomorrow so hopefully I find out something. I wish they could have just told me if there was something found with the ct or whatever, just thought I would let you all know. I am still sick (kidney infections again) and feeling horrible. I am also trying to do lots of homework but I will tell you guys if I get my actual date. Take care, thanks for thinking of me! :hug:Tara
Tara:hug: I do hope that all is well and you get your date real soon. We're all praying for you.
Jackie :hug:
Saffy
11-03-2010, 03:48 AM
Indeed .. I do not have a faith as such, but I do believer in the power of people's thoughts and I'm sending my positive vibes along with everyone elses. xxx
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