Liam how to convince SS again your still very ill

[johnny1]

I find this more depressing then before , going before review again in 3 years. I have permanent lung dammage, severe sleep apnea ,narcolepsy ,AF, uncontrolled BP,cronic pain, HBP,surgeries to both my ankles ,knees,asthma allergies.
Now I have developed diabetes type II, with peripheral neuropathy,psoriasIS,hives,distorted vision, carpal tunnel.

I see doctors but i guess not enough to make SS happy . Most doctors once they diagnose the problem and because of past history ,they cant do much .so they give me the boot they dont need to see me unless i have new questions.
As the pain management doc said anybody can give you pain pills to manage your pain ,or treat your BP,u dont need a specialist .
All this has all been documented over the years . How do I explain I am now worse than before but have less doctors treating me? I now have diabetes which i have been treated for infections 3 times.i have to be more carefull what i do . even paper cuts can bring it on.I need dental work and the dentist has concerns. Should i be worried?

What do you think liam?

[Julie]

Hi Johnny and welcome to NeuroTalk.

I don't think Liam comes here to NeuroTalk. I don't know if he still posts over on Brain Talk.

You've got three years until review. Just keep good records of everything and make sure all diagnosis are kept.

[johnny1]

I think I have a ok family Doctor , who advises me in the more humane to treat things ,such as he refuses to give xrays , Mris , because he does not want to radiate me . or to may tests fear of contamination. He still charges full price on visits ,but i always come awaqy with advice rather than a prescription he frowns on that too much medication causes other problems .

Comparing him to other docs hes hesitant to try something new , he was even cautious in giving me vitamion B.

But this SS does not like this i hear from people i speak too, they like files that doctors prescribe more medication then the size of patient .

He hates to send me to experts ,so you see the dilemma

what to do ? I dont want to upset the doc ?

I just know what he tell me

Reason why i am concerned

Should I **** off the doctor and see others even though the diagnosis are the same ?

thankyou for all the information
God Bless

[Julie]

I say stick with what you know. If your doc is giving you good advice, I'd stick with him. He knows you better than anybody.

[caudaequinasyndrome]

it sounds like your not happy with your treating doctor. actually I'd be a bit leery of a doctor that didn't order x ray or MRI when needed. THE decision is yours

[johnny1]

Next week i have an appointment with him again , I need medication for a misdiagnosed problem ,his buddy called psoriasis, he called it echzema.

But i cant take the itching , i need meds and they knock me out .

I think then i will see his reaction , and take it from there
thanks everyone and God Bless