Well Hello!

[cmkern]

How much can happen in the few months BT was gone and I was too lazy to search for an alternative!

For one I have a new daughter...born WAY too early! 24 weeker born on August 31st. Finally stablizing a little bit this week and doing pretty darn good for all that she is facing!

Ethan has been doing very well as he has been getting a ton of undivided attention from his grand and great grandparents. We got his wheelchair and are still struggling with its usefulness.

Hopefully I will have a sec to check up on things around here. Hope you are all well!

[DystoniaGal]

Well Congrats Chris. I hadn't realized that your wife was pregnant. Glad to hear that Ethan is going well. How is he doing on his Artane?

Suzie

[MarghanMom]

Glad to know I wasn't the LAST one to find this place!

Congratulations on your new baby, but I know that this is a scary time for you. Praying for a smooth road ahead for your family.

Take care...

[LIZARD]

CHRIS!!!!!!!!!! :D :D It's so great to "see" you!!!!!! Congrats on your sweet li'l princess, too! 24 weeks...wow. Please keep us up to date on how she's doing.



((((((((((((((((((((((((((HUGS)))))))))))))))))))) )))))))))),

LIZARD :)

[lauren'smom]

Hi Chris,

Congratulations on the new princess....prayers for her continued good progress....hugs to Ethan, I'm sure he is enjoying all the extra attention and looks like he is thriving in your pic...

Keep us updated on the new little one!!!

Hugs,

Debi

[Nat Hyland]

Hey Chris, it's great to see you! I was thinking about you and wondering how Ethan was only a few days ago. There are a few people who haven't quite made it here yet. Congratulations on your new baby too! I hope she continues to get strong and healthy.

Welcome back!

Nat.

[cmkern]

Good to read the smiling faces!

Ethan has been doing fairly well on the Artane. He is at 8mls three times a day and you can definitely tell a difference.

He has been gaining alot of ground in the speech department! When he wants to say yes is the greatest thing to hear "yeah yeah yeah".

[suecr]

Hey! Welcome, good to "see you"! Glad your new daughter is holding her own, congratulations! Now maybe I can get an avatar pic up!! he he

[MegNJaxMom]

Hey Chris! Wow! You had a lot more happen than I did over this "vacation" period. Keep us updated on your new little one ok?

[cmkern]

Yes send you avatar wanna be photos and I will be glad to assist! :-)

I posted my daughters blog over in CN but don't know that you all read that forum to so just in case...

http://www.ebabyphotos.com/ca/

[DystoniaGal]

Chris

So glad to hear that Ethan is doing well on the Artane? Has he been tested for DRD, dopa-responsive-dystonia? I am reading Caroline's blog daily, what a little angel you have there.

Suzie

[cmkern]

Havent heard of DRD but will be researching it now! :-)

[Austinsmom]

I am so glad to hear Ethan has been doing very well and is enjoying his grandparents.

Congratulation on the birth of your gorgeous precious little girl. I hope that her struggle is short-lived and that, in time, her situation greatly improves.
Keep strong and know we are thinking and praying about all of you, I hope & pray that your precious baby grows stronger with each and every day and heals quickly.

The road may be bumpy but remember we are here if you need us.
{Hugs}
Deborah

PS Austin was just Dx'd with DRD Dopomine Responsive Dystonia he was put on Senimet and he has not had his legs go out in over 6 weeks, he was amazed on how much it has helped, me I am still wondering what why and who, but will take any help to save hime from falling and not bering able to walk I wonder how many people with Hydro have this?

[CoolAngel26]

Hey Chris,

We are all here if you need us...:) Kristin