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View Full Version : Lost & Found: What brain injury survivors want you to know.




SpaceCadet
05-27-2012, 10:12 PM
Here's a great article for you to show your friends and family.

My apologies if this has been posted before.

http://m.brainline.org/#content/content.php?id=5498

I'm browsing from my phone, so the link is for the mobile version of the website. Hopefully it will redirect you to the non-mobile version when you click it...if not, I'll find the correct link and post it later.

Nick




Mark in Idaho
05-28-2012, 12:54 AM
Thanks Nick,

The link works fine for a computer browser. This web page is great. It says the simple truth without pulling any punches.

Many would do well to print it out and keep a copy on hand for those occasions when you need to explain your condition but do not have the energy.

You can sign up for the Brainline newsletter and Facebook site.

pretdou
05-28-2012, 02:07 AM
Thank you for this. I'm caring for my 13 y/o daughter who has PCS (2nd time) and I'm finding it exhausting to try and explain things to family/friends--I may well use this as well to help her school better understand what she is coping with when she goes back next fall.

Theta Z
05-28-2012, 05:09 PM
Wow. This just really says it all. Simple, yet impressive.
Imagine: Wouldn't it have been great to have been handed this at the ER, or from whatever support group or wherever, way-back-when?

Dolfinwolf
05-28-2012, 05:20 PM
Theta Z, no kidding!!! I am going to print a few out at work to give to my parents, and a couple to hang onto for when I feel like someone just doesn't get it anymore. This is an awesome link, thank you, Nick, for posting it!! So perfect!

"Starr"
05-28-2012, 07:57 PM
Great link! Thanks for posting Nick!
I've reposted it several places today, I figure the more that read it, the better!
Starr

pcslife
05-29-2012, 09:07 AM
Thx for the link. It is precise and concise and most of us here can completely relate. Problem is many people cannot relate (including doctors). I am training my cousin psychiatrist who is a psychiatrist and my uncle who is an MD about all this.

They still think with some medicines and something they can "fix" it. Now they read and attend conferences and start to realize that is not the case.

Also I personally know people with mild to severe TBIs including some seniors and except severe TBIs (who lost some functions like short term memory, cannot use much one side body) but other TBI survivors has no or minimal issues. Even they are seriously confused about all my symptoms :)

Seems like I am unlucky in that aspect with poor recovery but I still see some progress. Downs is what tough to handle after I see ups. Almost like a hangover ;) But this link is great. I am sure going to forward this to some people.

Lightrail11
05-29-2012, 10:10 AM
Thanks Nick, I posted this link to my Facebook page.

EsthersDoll
05-29-2012, 12:52 PM
I just sent the link to some of my friends and family so they might be able to understand better what it is I'm dealing with. Thanks for posting this!

mollymum
05-29-2012, 08:04 PM
Me too, so clear even my kids will be able to explain what's happened to mummy

SpaceCadet
05-30-2012, 01:44 PM
I like how it says "recovery is measured in years". Not only does that make us feel a little better about our situation, it let's others know that things won't happen overnight. I talked to a buddy of mine not too long ago, when I told him that I was still feeling the effects of the injury, he said "damn, your messed up for life, huh?".

I'm glad that I found this article. Its the first thing that I've found that is simple, easy to understand and direct to the point. I think it will be a valuable tool for many of us.

Nick