facial nerves/ connective tissue sinus damaged

[Lily]

I don't know if anyone has had this type of problem, but I have had some nervous inflammation and connective tissue destruction that went up into my face. I'm not sure that doctors have seen anything like it, and my illness didn't even have a name outside of the Naturopath's diagnosis of Celiac Disease. It feels like my sinuses are leaking through my tissue. I can't expect anyone knows what I mean, but maybe someone else out there knows the devastation of connective tissue destruction. It takes so long to get into these specialists, and my illness is systemic, so it means lying here day after day just waiting. Know what I mean?

[bizi]

I just wanted to give you a hug....
((((HUGS))))
bizi:hug:

[loisba]

Oh, my, what a nerve-wracking situation to be in. I'm going to add my :hug: :hug: :hug: to bizi's. I can only try to imagine what it must be like for you, though I can certainly sympathize with the wait for a specialist. Been there, done that! :D
hugs,

[kcdepotlady]

I don't know if anyone has had this type of problem, but I have had some nervous inflammation and connective tissue destruction that went up into my face. I'm not sure that doctors have seen anything like it, and my illness didn't even have a name outside of the Naturopath's diagnosis of Celiac Disease. It feels like my sinuses are leaking through my tissue. I can't expect anyone knows what I mean, but maybe someone else out there knows the devastation of connective tissue destruction. It takes so long to get into these specialists, and my illness is systemic, so it means lying here day after day just waiting. Know what I mean?

Lily, I know what you mean about the sinus leaking and the pain in your face under you eye and around it. The feeling tht your ears are drowning in fluid and difficulty hearing and often swollowing, the top of my chest also feels like someone is sitting on it half the time and I wake up at night alot because this gunk litterally is drowning me.
I have been around in circles with various doctors,dentist and sugeons and i am at a loss. Every day my sinus leaks way in the back I even went to the best doctors at the University of Michigan and was told I had migraines and to go home and ask my family physician for an anti depressant! What the #$@%! ? I have been like this for 2 years now. Antibiotics seem to make the gunk that leaks clear rather than green, but as soon as I stop taking them It gets thicker and green and I end up in the emergency room. I have seen an ent he did surgery right after my 1st consultation, he basically router rootered my septum. Which did not help and after about 10 follow up appointments he gave up and I quite going and went back to the dentist..who refuses to pull teeth. I do have teeth in my sinus and have had a root canal thru all this and then it was filed down and ultimately extracted. But I think I have 1 or 2 more in my sinus...I am not sure that is the problem (teeth) I alos noticed all my problemsstarted when a wacked out dentist yanked out a molar that was very healthy only because it was 1/2 broke off to the gum. I have had nothing but problems ever since..which the first thing that I had after that was a sinus infection which in 40 years I only had a sinus infection 1 time in my whole life and it was when i was about 30 and aftre it came back after 3-4 weeks the dr treated me asked me when was the last time I had been to the dentist, it had been a while and the tooth they filled cured that sinus infection and just so happened to be the one that was yanked 2 years ago...is it possible the traumatic extraction ( it took 3 dentist taking turns to yank it out-with what I would call excessive prying) the U of M specialist also informed me I did not have a hole in my sinus from that. May nerve damage from the extraction? I am ready to have all my teeth on the top yanked and a partial put in..I do not know what else to do?:hug:

[rumpled]

Have you looked into trigeminal nerve issues? Perhaps you need something to combat that? I had my ENT numb me temporarily once (but it was just a temporary thing) as it effected my eye but you can use medications (neurontin, topamax etc) or even botox to reduce to pain. The meds have side effects so you have to weigh the benes vs drawbacks but I would see a neurologist if the ENT is running out of options.