Weekly Check-In May 6-12, 2007

[stevem53]

Hi Everyone..The weather has been nice and Ive been busy..Ive got so much to do between fishing and yard work that I dont know where to start..Ive been fishing for bait so that I can get started with my conch traps, and have been making a utility trailor out of an old boat trailor..I can use it to get my traps down to the waterfront as I have a little Ford Ranger now and it doesnt carry much..I also have to get a yard of 3/4 stone for my driveway, and no way do I want to put it in the bed of the truck..Its got one of those plastic bed covers on it, and its nice because it keeps the bed dry when it rains etc, and is great for putting groceries back there without having to worry about them getting wet..All this work has been wearing me to a frazzle, and I am doing the Parkinsons shuffle by afternoon and have to lay down to charge the battery back up..What a difference a year makes

Im beat so Im gonna cut this short..Thats whats going on with me..Kitty is doing great!

How was your week?

http://i106.photobucket.com/albums/m250/slowhand_01/violent4bu-ch-ru-PSD-JPG.jpg

[steffi 001]

Don`t usually post on this check in but had to let you know I eventually tracked down a cough mixture with the infamous elixir called dex*&*(*& whatever...in it.I had to admit to the pharmacist that it wasn`t for a cough but he still sold me some after checking my meds,He is also going to trace it in tablet form cos my daughter kind of let on that I drink from the bottle and not from a measuring spoon.:(
The interesting thing is...I have not suffered dystonia sincee taking it.Do you reckon I can start dropping off a tablet or two yet? No? ok then.
Not to worry. Dystonia free is good enough for now.
Have a great week
x

[stevem53]

Don`t usually post on this check in but had to let you know I eventually tracked down a cough mixture with the infamous elixir called dex*&*(*& whatever...in it.I had to admit to the pharmacist that it wasn`t for a cough but he still sold me some after checking my meds,He is also going to trace it in tablet form cos my daughter kind of let on that I drink from the bottle and not from a measuring spoon.:(
The interesting thing is...I have not suffered dystonia sincee taking it.Do you reckon I can start dropping off a tablet or two yet? No? ok then.
Not to worry. Dystonia free is good enough for now.
Have a great week
x

The suggested therapudic dose is 1/2 teaspoon..(5-8 mg)..@ 15mg per teaspoon by volume, which should render you 7.5 mg daily..Not suggested to exceed that dose

[steffi 001]

whoopsy....mega overdosing then...will try to be more sensible.
Thanks steve

[stevem53]

whoopsy....mega overdosing then...will try to be more sensible.
Thanks steve

Steffi..The study that was done by Dr Hong on lab rats suggests that DM has neuro-protective properties in the therapudic dose..If this is in fact so in humans as well, then any other benefits associated with DM use are a bonus

DM although a low grade narcodic can become addictive and cause heart problems through high blood pressure among other ailments in high doses

[Stitcher]

The weather here in south central PA is very cool. I am trying very hard to resist closing my upstairs windows. It is in the 50s today with a strong breeze. The skies and temps during the week were not this cool, but wonder out in the sun.

I mowed my daughter's yard on Monday.
By Tuesday morning I realized that without intervention, this may be the last summer I can do all the yardwork I have done in the past.
I tried to do a bit of bed edging on Tuesday, which lasted all of about 10 mins...:(
By Friday all the beds and trees were weeded and edged :)

The apple tree has about 20 buds on it...aka future 1155
The grandmother's 1157 will be all shade by the end of this week :)

Alas, it will be Monday again tomorrow, and the yard already needs to be mowed again :thud: and yes, I will do it anyway

It looks so peaceful to look out the kitchen/family room windows and see the yard when it is freshly cleaned up and the kids are enjoying the huge play set 1151 that the my grandmother counterpart had built there last year.

This past Wednesday, I drove to Harrisburg and got on the , making the 90-minute 1158 ride into Philadelphia. The 1159 ride from the awesomely beautiful 30th Street Station to the Institute of Neurology reminded me why I didn't drive into Philly :shocked: !!

During the Invetigational Doctor's Q&A I didn't learn anything I didn't already know, since I had been watching CERE-120 past through the industry pipeline for a while now. On Friday I sent the Coordinator my, "It's a Go!" email, and will be going back to Philly next week for the consent review and physical evaluation workup. Then I will find out if I physically qualify for the trial.

Have a beautiful Spring week!!



For those attending the BIO International Convention (http://www.bio2007.org/) in Boston this week. Watch out for the :Demonstration:

[paula_w]

Now I don't know which to join - the bio tech conference or the protestors.....it's a love hate relationship....perhaps go back and forth?

paula

[vlhperry]

I would like to recommend a book for you to read written by Dr. Howard Brody, who holds the John P. McGovern Centennial in Family Medicine and is Professor and Director at the Institute for the Medical Humanities, University of Texas. It is published by Rowman and Littlefield Publishers, ISBN - 13 978-0-7425-5218-0. The book, Ethics, The Medical Profession, and the Pharmaceutical Industry - Hooked copyright, 2007.

It makes recommendations on changes that should be considered in the contracts patients sign for research companies. It gives a little history and uses actual cases to make the authors points.

As far as life in the state of Minnesota, today we have winds of up to 40 miles per hour. It is my middle son's birthday and we are eating out to celebrate. He and his fiancee have finally set a date for their wedding, July 21, 2007, and a week later they will move to Dallas, Texas so Fred can go to college to learn law, and his fiancee Karen can have better luck finding a full time teaching job.

My children are all moving so far away. I don't see them much anyways because they lead busy lifes. I miss the closeness of day to day contact.

Will really miss the opportunity to babysit the grandchildren.

Vicky

[Todd]

Steve, your pictures are too funny. Can you PM me and tell me how to post pics? I'm so clueless about this kind of stuff! I have some Unity Walk pictures I'd like to share...

Sunny and warm here, so life is good. Mid 80's today and pushing 90 over the next few days. I love it! :cool:

Completely exhausted after our trip to NY for the Unity Walk. Flying coast to coast is never fun, especially when you're 6'4" and have PD. But it was worth it as the Walk is a great event and the weather cooperated. If you've never been, you should seriously consider it for next year.

Getting ready for the upcoming NPF Young-Onset Conference in Chicago July 5-7. It'll be fun to see old friends, and meet new ones.

Other than that, life is quiet and that's a good thing right now.

Have a great week everyone!

[maryfrances]

Hello Everyone,

I've had a busy week and will have an even busier week next week.
I hit the trail and went bike riding today. I love to ride. Afterwards, I loaded up my bike, got in the car and then the rain started. Lucky me! My daughter was crowned Miss Indian Alabama on Saturday. She is very beautiful...........inside and out. I'm enjoying learning about each one of you on this forum. You are all great. I hope everyone has a great week this week!

Lots of Love,

Mary Frances

[Ronhutton]

Hi All,
Won't be around until 23rd May. Leaving home at 5-45am tomorrow (8th) to fly to Crete, a Greek island in the Meditteranean Sea. It is a 4 hour flight, so not too bad.
So much to do before we go. I am working almost full time for PD researchers in KIng's College London, and also organising booking a trip for the Canterbury Branch of the PD Society to travel to France in September and meet the PWP folk there. I have found and booked a Hotel in Reims for $50 per double room per night. I hope it is OK!!!!!
I always thought that by the time I reached 70, I would be sitting back in my rocking chair...but i reckoned without 16 years of PD.
Ron

[RLSmi]

Ron, you are one dude upon whom no moss will ever grow! It is clear that you are driven, in a good way, to remain as much a "mover and shaker" as you have ever been. Good on you!

Summer comes early in the South. The temperature and humidity are rising so fast that I've almost forgotten what the springtime was like. Although we have had some scattered thunderstorms and rain the past week or two, it has actually been a rather dry spring. The lawn began looking so dry and stressed, I actually had to water it a couple of times in April. When the temperature rises and the rains don't come, the huge pine trees in our back yard suck the earth beneath them dry with their shallow roots.

We are tooling up for a cross-country trip up to Illinois next week to visit kids and grandkids. Our compact motor home is in need of some pre-trip attention; tires, shock absorbers, etc.

It is good to be back online again. 'Puter problems!
Everyone have a good week!

Robert

[Teretxu]

Hi All,
Won't be around until 23rd May. Leaving home at 5-45am tomorrow (8th) to fly to Crete, a Greek island in the Meditteranean Sea. It is a 4 hour flight, so not too bad.
So much to do before we go. I am working almost full time for PD researchers in KIng's College London, and also organising booking a trip for the Canterbury Branch of the PD Society to travel to France in September and meet the PWP folk there. I have found and booked a Hotel in Reims for $50 per double room per night. I hope it is OK!!!!!
I always thought that by the time I reached 70, I would be sitting back in my rocking chair...but i reckoned without 16 years of PD.
Ron


Ron, $50 per double room sounds great! I only hope that it's not the same hotel down-town Reims, on its beautiful high street, that we slept in ten years ago. It was a historic building, so historic in fact that the plumbing was visible:D. It was alright, though, only there were no pillow cases - the pillows were tucked under the bottom sheet. Other than that, they were nice folks and even allowed us to have breakfast after 10 a.m.