A Form Of Dwarfism!..........................

[Justice]

My neice that is only 5 months old right now, was just diagnosed with a form of dwarfism.I can't remember the exact medical name for it,but she's just so precious and tiny,and I'm scared for her. We know how a lot of society looks at the "Little People",and makes fun of them,thinks they belong in the circus,and things like that.I can't even imagine someone making fun of my neice,and how I'd react if I saw it.I'd probably end up putting them in the hospital! But I'm afraid for her both emotionally and medically,because her body won't grow to full size ,but her organs will,and it will cause her health problems.I don't get why she has to deal with this she's just a innocent little baby!:(
Does anybody else here have a friend or relative that is a small person like that,that is okay,and is living a good life,and is not being hurt so bad,just so my mind could be at ease a little about this?:confused:

[LIZARD]

(((((((((((((((((Justice))))))))))))))))). :(

I'm so sorry...:( Is it achondroplasia? That's the only form I know of, but I know there are others. At least it can give you a place to start in looking for info.

I did know a girl in college who was immensely popular. She had some form of dwarfism (not sure which one), so this little one's life may not be so bad. I know what you mean, though. I was picked on mercilessly as a kid for my hydro, and as my son enters our local jr. high, I fear the same for him. :( Thank God for disability awareness! It's made bullying and ostracism uncool, so she'll likely be protected by most people.


:hug: :hug: :hug: :hug:

LIZARD :)

[lisa6wks]

Have you watched the popular TV show "Little People, Big World"? It is on the TLC channel and shows a family in which both parents have a form of dwarfism and they have 4 children, one who has it as well and he is a twin. It may give you a better more positive idea of what life can be like for a Little Person.

Lisa

[Justice]

(((((((((((((((((Justice))))))))))))))))). :(

I'm so sorry...:( Is it achondroplasia? That's the only form I know of, but I know there are others. At least it can give you a place to start in looking for info.

I did know a girl in college who was immensely popular. She had some form of dwarfism (not sure which one), so this little one's life may not be so bad. I know what you mean, though. I was picked on mercilessly as a kid for my hydro, and as my son enters our local jr. high, I fear the same for him. :( Thank God for disability awareness! It's made bullying and ostracism uncool, so she'll likely be protected by most people.


:hug: :hug: :hug: :hug:

LIZARD :)
I just had to see the word to recognize it,but that is what she was diagnosed with.But thanks for the comments about the bullying not being so bad,cause i know it was when i was in school!
I've heard of the TV show about the little people,I've just never watched it,maybe I should!:grouphug:

[Justice]

What a trip,yesterday,right after I logged off,and shut down my laptop.I went to turn on the TV,and that show that you were telling me about,"Little People,Big World"was on,so I watched it for the first time,and it really helped me see,that they really aren't so helpless after all.People did stare,but it was on TV,so they were probably staring at all the camera's rolling!;) But it was such a touching show! Thanks for referring that to me,cause I wouldn't have just thought of it on my own!:hug:

[snoozie]

I really enjoy that show. It helps to show people that just because your a little person you are still just a person like everyone else. They go through the same troubles with raising kids and I like how the parents encourage them that even though they are little they can do anything they put their mind to. Did you know that the dad spent most of his younger years in the hospital? That is why he makes his farm so much fun. I would like to meet them in person someday. ...Sue

OK I am rambled and didn't say what I wanted to say. Shows like that are such a learning tool for the young people today. They can see them on TV and hopefully not be afraid of them or make fun of them. That is another reason that I am for special needs kids to be in the regular school system. So that everyone can see that people are different and that is not a bad thing.

[Justice]

I agree,and it was such a cute show to.I'll probably start watching it more,it was really touching watching how this family really helped eachother out,and stuck together as a family.It really helped me to not worry about my nieces condition so much,because I know that her mom,and dad,and big brother would be there for her as well!:grouphug:

[DM]

Hi! I watch LPBW also and it is really a good family show.. It has also brought awareness to the fact that "Little" people are just like you and me, only of smaller stature.... I think that show has opened alot of eyes....

Your niece will be loved and alot of regular size people don't have that...

take care......

[Justice]

That's true,with as big of a family as I have,she sure won't be lacking in the love department.She's got 8 uncle's,and 8 aunt's,and I lost count on how many cousins she's got,and a Grandmother that will spoil her to no end! Plus her Dad,and Mom will love her to death,and she has a big brother,she's only 5 months old right now,and her brother is 3 1/2,and he already protects her,and loves her to death,so she'll have him by her side to!I just wish she didn't have to go through it,because emotionally,she'll notice she's different,and physically she may have some medical problems over it,that's what they told my brother! I know one thing though,I'll stick up for her,even if it lands me in jail,I won't let anyone get away with teasing her,if I see it,you don't want to know what I'll do to that person!:eek:

[nath]

I had a room-mate in college with some form of dwarfism (don't remember which) who really helped me get used to living away from home. She was ace. (And scary-smart, doing her masters in Geography).

[Justice]

That's awesome,my same brother with the daughter with the Achondroaplasia,his son that is 3 1/2 is very smart for his age,even though he doesn't have the disease,so maybe she'll get the brains to! Her Mom is a CPA,and her DAD is The head of an Athletic Department for a school and a coach.He played football in College.So I don't think anybody will mess with her in front of her Dad,he's a big guy! Thier more worried about the medical standpoint in it,they were told that though her body will not grow to an adult or normal size,her internal organs would,and that could cause her some health problems in the future as she starts to grow,since she's only 5 1/2 months old now.:(

[kinseya]

Justice~
Does your neice live in the S.D. area? I am looking for a parent with a child with Achondroplasia. I recently found out one of my twins most likely will have this condition. It is basically dwarfism. I need some one in the San Diego area or a parent of a child with similar experience to email me advice about taking care of my soon coming baby. It isn't very common I guess. My doctor has not had a baby come in her office yet.
I guess by reading on the net, little people are very similar to normal people but just have a short stature. They can have problems with lungs at infancy but it is rare. And there is different types of the disorder. My daughter just seem to have short limbs, arms, legs. Everything else appears to be normal. I will know more when she arrives. I went to college also with a couple of little people so it helped me decide I am definately having this baby. They can live a very normal life..challenging at times I am sure but there are alot more people out there worse off. :) If you can give me any info..I would appreciate it. I just recently found out about my daughters condition so I haven't talked to anyone else in the area yet, it would be good to hear from someone with answers.

[Justice]

Actually the family is up here in Utah,that's why Utah is where I'm stuck,is because all my family is here,I'm the only one from San Diego! My family is the type that would freak if they knew I was discussing family issues with people online.I wish he was the type that would talk with you about it,but he was in tears just telling me.I'm sorry,I wish I could give you more,but you can look up Achondroaplasia online and see what it say's there,but so far my niece is 5 1/2 months old,and she's doing fine at her current age,if that even makes a difference at all,she has the same,I think where her arms,and legs,will stay smaller,but the rest will grow big,I'm not sure about her trunk area,you know chest and stomach part.And of course her head will grow:hug: