How Long Have You

[Rocking4Epilepsy]

been sz free?

When was your last sz?

[LIZARD]

2 1/2 months...Woke up to get ready to hear my Sunday radio show and something said, "Don't get up yet..." About 10 min later, I had a GM in bed. :rolleyes: :mad: Now I'm on a low dose of med and doing great. :)



LIZARD :)

[Rocking4Epilepsy]

I am glad you are now doing great...

What meds are you taking?

[LIZARD]

60 mg phenobarb at night. Thank God I don't need more. I have an autistic child and can't afford to be whipped on med, which is what they have all done to me. :o


LIZARD :)

[jingle]

I had my last CP seizure on Feb. 4/06, then a grade 2 oligodendroglioma tumor was removed from left temporal lobe on Feb. 14. Not a sz since then.
Currently taking 1200 Trileptal and 125 Topamax which will be reduced in Oct.

[Birdbomb]

About a year and a half. Had my last one at my father's funeral. There have been several times I felt like one was going to happen, but they never materlized.:D

[Rocking4Epilepsy]

Tanks for sharing
The longest my son ever went was 36 days


Hugs

[Riva]

Hi Jingle : I am not sure if you remember me, I was fourtsar on Brainchat. I was friends with Shan. Congrats on your being sz free. Have you heard from Shan? She is remarried to a minster and off her meds and sz free the last I heard. She has changed alot . She is very happy .
Wishing you a continued sz free life.

enjoy
Riva

[SAK89]

It will be 6 years on October 17th (after surgery)...except for a seizure I had last October when my husband and I were seperated. I still can't believe the stress brought it on after a temporal lobectomy and 5 years seizure free (at the time). So, I guess it's really been almost a year. It's like an alcoholic being sober for 20 years but has a drink a year ago. That blows it.

Sebrena

[J2636s]

38 years. Best was less than 2 mos on Topamax and couldn't take side effects. Otherwise amybe 3 days... absence szs.

[Julie]

I have not had one in over a year and my son has had no grand mals since 2001 and no atonic in well over a year!

[Rocking4Epilepsy]

Thanks for sharing..Hope we can go even longer with out and sz

Hugs

[CoolAngel26]

19 yrs..but,taking meds as a precaution.;)

[Ellie]

Last night.

Do I win anything?! :D

[Rocking4Epilepsy]

Last night.

Do I win anything?! :D

((((Ellie)))) That is not the kind of news I like to hear:(

Lets hope you now go along time without

Hugs

[Ellie]

They are still toying with my meds, I call it the 'Lab Rat' phase. :D

[trekker]

Husband hasn't had one in a year and a half. And that one was my fault. I was extremely tired and missed a med dose then a couple of doses later I was late with his meds by an hour and he seized. Quick way to a guilt trip.

In a way though it worked out for the best because he had been seizure free for 2-3 years and everyone kind of relaxed. Then with this one we discovered just how low his seizure threshold is...that he can't miss even one dose. He is on Tegretol and Neurontin. The neurontin made a big difference because he was not getting total control on the Tegretol...seizures every 3-4 months. He also takes Ativan for several reasons and I have permission to give him an extra dose if I see "pre-seizure activity. His seizures are set off by light and so we keep a small towel near him and put it over his eyes if he seems to be in trouble...it works for him thankfully. If I move fast enough I have been able to stop a seizure in it's tracks (the doctors have a hard time believing this but it's happened many times and so I know it's true).

[CoolAngel26]

They are still toying with my meds, I call it the 'Lab Rat' phase. :D

Lab rat..hmm..been there,no fun.Hang in there..:(

[trippinroses]

I havent had a cp since july or aug of 2005, but had a sp on fri, i think :(
I think im going to end up getting my meds increased