Can anyone help me?

[Cheyenna]

I hope this is the right forum. If not, please direct me to the right one. My pain phyician surgically implanted an intrathecal pain pump into me 10/31/05. Three days later I started to have neurological complications, which went untreated. The following March, I suffered 5 strokes. Since that time I have seen multiple doctors in multiple hospitals and they all say the same thing. My body seems to be having an inflammatory response to the pain pump and needs to be removed. Since the quality of my life has improved 100% since the pump was placed, needless to say I don't want to take it out. The only doctor who says it's not the pain pump is the doctor who put in.

Does anyone know anything about intrathecal pain pumps and complications (specifically strokes)? I NEED ANY KIND OF HELP!!!!!!

Thanks, Cheyenna

[Jo*mar]

check the chronic pain forum here or spinal?? - if the old Braintalk was up and online I know there has been mentions of that.

I googled this == site: brain.hastypastry.net intrathecal pump

and here is the link for that-
http://www.google.com/search?hl=en&lr=&q=site%3Abrain.hastypastry.net+intrathecal+pump&btnG=Search
but click on cached {below the main link and description} to access the info

here is the top link of that search cached-
http://66.102.7.104/search?q=cache:f2SFpPEI9hEJ:brain.hastypastry.net/forums/showthread.php%3Ft%3D30100+site:brain.hastypastry. net+intrathecal+pump&hl=en&gl=us&ct=clnk&cd=1

and you can add any name or topic in place of intrathecal pump to find more info
untill the old BT gets back online

[Jaye]

Cheyannea

If there is not some overriding reason for using that same doctor, like your insurance won't let you change, fire the doctor! You do not have to keep seeing the same one, do you? Pick one of the "good guys" and ask them to be your doctor (before you tell the old guy) and ask if they would be any reason not to change. Your HMO stopping you? Take it higher up, and so forth. These are ideas off the top of my head. I'll see what I can find out.

Jaye

[stumps]

I hope this is the right forum. If not, please direct me to the right one. My pain phyician surgically implanted an intrathecal pain pump into me 10/31/05. Three days later I started to have neurological complications, which went untreated. The following March, I suffered 5 strokes. Since that time I have seen multiple doctors in multiple hospitals and they all say the same thing. My body seems to be having an inflammatory response to the pain pump and needs to be removed. Since the quality of my life has improved 100% since the pump was placed, needless to say I don't want to take it out. The only doctor who says it's not the pain pump is the doctor who put in.

Does anyone know anything about intrathecal pain pumps and complications (specifically strokes)? I NEED ANY KIND OF HELP!!!!!!

Thanks, Cheyenna

I can't help with your question but I can send you mega(((hugs))) of comfort and good wishes for some help soon.

[Curious]

you beat me to it stumps.

(((((((cheyenna))))))

i'm sure somebody here will have some help for you.

[stevem53]

Cheyenna..I really sympathize with you..It is a terrible thing to be in a dilema like yours, and having Drs conflicting in their diagnosis..I have no experience with this sort of thing, but a second opinion, or maybe even a third seems in order here..Know that you are in my thoughs and prayers..:)

Steve

[mamafigure]

I don't have any experience in this, either, but perhaps you could receive the same medicine delivered in a different way, like a patch. It wouldn't be quite as responsive, but it probably wouldn't set off the self-defense mechanism of your body, either.

I would peruse the latest PDR and see what delivery systems are available now for your drug, or set up an appointment with a pharmacist. They are often more up on new drugs than physicians.

My thoughts are with you.

[clouds z]

the most honest nurse ive heard is on

www.thepowerhour.com

[dahlek]

no specific knowledge in this area, nor can I refer you to any quarters. I only want you to know that I've been in that scary place more than once and can understand the panic. Don't let the fear paralyze you!

Try to get as many facts as you can, this is a Medical Issue, but, it relates to your LIFE and how you LIVE it. Ask these docs for facts, references [medical text sources w/statistics and variables] then go with what your instinct tells you to do. I know from my own experience that if I'd not followed that instinct, and also go lucky with a couple of savvy neuro's, I'd be in a wheelchair now, maybe worse. I make decisions on more than one doc, to either bolster what my mind/body is telling me or convince me...really convince me to do differently. [It's been a while since any doc has tried the 'trust me, I'm the doc..' game with me.

You have a mind, you found BT2, ask questions, maybe more specific and we mite be able to steer you to the better questions to ask. Promise & we will all try. Good thoughts - j

[ConsiderThis]

I hope this is the right forum. If not, please direct me to the right one. My pain phyician surgically implanted an intrathecal pain pump into me 10/31/05. Three days later I started to have neurological complications, which went untreated. The following March, I suffered 5 strokes. Since that time I have seen multiple doctors in multiple hospitals and they all say the same thing. My body seems to be having an inflammatory response to the pain pump and needs to be removed. Since the quality of my life has improved 100% since the pump was placed, needless to say I don't want to take it out. The only doctor who says it's not the pain pump is the doctor who put in.

Does anyone know anything about intrathecal pain pumps and complications (specifically strokes)? I NEED ANY KIND OF HELP!!!!!!

Thanks, Cheyenna

Hi Cheyenna,

I've been to this forum a few times:
http://sci.rutgers.edu/forum/forumdisplay.php?f=68

There are members from all over the world, and some of them have some excellent information.

You might find someone with experience there.