another...

[pono]

fall has resulted in another concussion. don't know why/what caused the fall down 13 stiars & whacck on head (dont know if was knocked out)
I"ve been cryin since... doesn't help the horrible headaches or nausea, or other body pain/aches..... just want to sleep .....but hurt more whne i do try to lay down....


I'm having a hard time writig, lookin at scrren , etc.
I'm ..... i don't know... a physical & emoontial wreck..... now....

too many & muc....

there's more.... but head hurts, and body/brain doesn't want to coopreate --- not sure what or why i'm try to write now...

I'm having big flares fo anger & frustration & confusion... and very negative thoghts & feeling.... all making me sicker & crazier...

I don't know...

[Lucy]

Oh my goodness, you must be feeling so sh... PCS McGee would have a better expression to describe it. You will be feeling like you can't do/go through this again. The last time I did it - couple of months ago I think, I was lying there with a massive headache in tears - I understand!. Are you able to just shut you yourself in a dark room to sleep for a few days and have somebody in to look after your Dad. The only thing that I found helped was morphine once when I was in hospital - only 3 days of it but what a difference. My thoughts are with you. Hugs.

Lynlee

[jeffn]

Hi Pono Bad Day At The Office No Fun

It Does Not Sound Like Your Doing To Well, You May Want To Call 911 And Have Them Take You To The Hospital ?

Do You Have A Safety Line Someone You Can Call In Case There Is An Emergency?

Be Smart Pono This Tbi/pcs Is Nothing To Play Around With On Good Days Or Bad Ones


I'll Keep You In My Prayers

Take Care Jeffn

[Sissy]

Hi Pono, I'm so sorry to hear about your latest fall. I hope you will be able to get help and recover as fast as possible. Will also keep you in my prayers. Take care.

[Lucy]

Hi, I am worried about you, can you let us know how you are? I think if you dialed 911 it would get you some action and maybe result in some help at home. I'm sorry that I can't do anything to help you.

Lynlee

[froglady]

Pono, sure hope and pray you are OK. Please do call for help. many hugs, Gaye

[jeffn]

Good Morning Pono, PLEASE PUT UP A POST AND LET EVERYONE KNOW YOU'RE OK. MANY HERE ARE VERY CONCERNED. JEFFN

[pono]

for your concern... and prayers....

I trying to write between laying down (with headaches, fatigue, pain & other stuff) so hope this makes sense....


All that "familiar" stuff is back w/ a venegance.... my last BIG TBI occured last DEC. --but sometings seem worse. EMotional --crying , anger, irritable, and more ... hard to express. Most of time I don't know what I"m doing or saying....

My father did call 911 after I fell , when I didn't respond . When EMT came, they ckecked me out, suspected conccussion & wanted me to go to ER. I refused ... my last experience was taken to a Trauma unit 50 miles away, rather than local ER--even drs/med pros asked why did they bring you here?
seems some protocal ( coz of my Hx of head injurys, TBI, etc) they did no more & much slower that interventions at local hospital (trauma unit was very busy dealing w/ gunshots, knife & such traumas so I got to wait in pain till finally was given someting & released) Then had to find a ride back home

Perhaps it was not smatest thing to do, but I know the drill from going to ER so often since I do fall so much. I do know, feel when somethings are not right that should be checked out professionally.

If anything feels worse I will call my DR or 911 and go in to be checked.
Last year it took 3 days till the major affects of the injury hit and I did go to ER.

Today is day 3 so will see. I've been sleeping a lot during day, wake thru nite w/ pain.

I do have friends who are taking care of my father but I still have to oversee his care, since I'm the one who knows as long time primary carer.

I am going to call Brain Injury Program & update them --see if there is anything they can or will offer now.

I will update.....

again, thanks all for your concern & prayers...

[jeffn]

Hi Pono, Thanks for posting no fun going to the ER been there many many times.

I was very concerned about your post, because of my own experience with TBi and being in the Hospital so many times. I don't play around with this, as I was in a coma for 4 days after my first release form the Hospital, walking around in a black out for 4 days is very dangerous.

I did email Mc Gee and admin on your behalf as there are many side effects from re injuring yourself.

I always call 911, because the Hospitals can not refuse you treatment and being in the Hospital is sometimes the safest place to be.

Don't give up Pono. Pick up the phone and find some help and if you can't pick up the phone find an advocate to find some help for you. I've had to do this because I was so hurt I could not even make a phone call.

Pono I usually mind my own business so if I'm out of line here just tell me to mind my own business. I do not mess around with TBI/PCS and my mental health.

Jeffn

[Lucy]

So good to hear from you. It is funny about the 3 day later thing - I have found the same and always wondered if it is the bruising in your brain. Take care and I do understand what you mean about the ER I have often discharged myself as the noise and lack of sleep in those places makes you feel worse. Must go keep us posted.

Lynlee

[RisibleGirl]

I'm so sad to be reading this. I never thought I"d be worried about falling as much as I am now. I'm a klutz by nature- so I'm used to stitches and bruises.

I hope this fall doesn't set you back too far. Please do take care. :hug:

[pono]

dear friends , for your concern, support , suggestions, etc. to get me thru this latest injury. Not the worst but def. a setback ..... thoughts, words, writing... not coming easily now... just wanted to check in..

iSTill very foggy, but intense headaches are alleveating (at least those migraine/cluster type-- did get injections of Toradol at home from my PCP to deal w/ that pain.
Our home health nurse who was here to check on my father, was very concerned (she's known me LOng time ) and tho I don't recall much of the conversation w/ her, she made calls trying to get me in for neuro observation. These folks were suposed to come & evaluate me but never did. I spent day or so w/ severe nausea & vomiting, then slept alot....

I am better now but realize it's {another] slow process... and I have to take it easy --listen to what my body & brain . Frustrating, timing wise.... just before XMas (not that there's a "good " time to get injured... but .... was hoping to do more, or at least something special, for this holiday... my father is terminally ill; no one thought he'd live this long... each day, moment is a blessing. Just wanted this holiday to be more, special... perhpas it will be... we'll see... Blessings do come in interesting ways & forms...
a good friend staying w/ us now. a great help & Blessings. I'm very grateful for this much needed help & support esp. now...

I'm very foggy....w/ lots of aches & pains... too much to get into...
back of head pain continues, also blurry double vision, fatigue, sleep problems, and other stuff esp. cognitive & emotional issues-- worse than before.
My neuro is away till New Year...really don't want to go to a "new" one; but if I need to I will, or call 911 or my PCP, who does make house calls!!

"Brain Injury PRogram" .... is trying to find /get more help too (been waiting months so we'll see if something happens faster now) as well as VA aid & attendance for my dad.... had aids for him before, but problems.... time for problems to be "pau"--done, finished... and move into better.... BEST...

Solstice marked the clilmax of "darkness', now Lite is on rise, increasing.. so lookin forward to that--on all levels.

I'm getting confused & tired.... got into more than intended (that crazy rambling...) anyway.... THANKS again ALL....

I will update... and wish you all the BEST....

Blessings,


ps... Jeffn.... you were NOT out of line... appreciate ALL you did!!THANKs

I'm deeply touched my ALL...




all of you ,who [sadly] understand because of your experiences.... my deep appreciation & prayers...

[Nancy F]

Pono,
I was so sorry to read about your fall, so so frustrating!! You are such a wonderful person and deserve more. I will pray for a recovery of symptoms soon. Life can be such a roller coaster ride. Hang in there, you are a beautiful person.

[jeffn]

Good Morning Pono, sounds like you're out of the danger zone.

I know how you feel, my migraines started on Christmas day last year and put me in bed for 9 months. My PCP but me on imitrex as a perventive medication and this seems to be working for me as I can stop the migraines before they start. Hope you find the medication that work for you.

I also know it is very hard to ask for help when your so ill, and your brain is not working, sounds like the nurse is trying to get you some help. There's alot of really good people out there.

Keep us posted Jeffn

[pono]

things seem to be getting worse.... beseides headaches & other TBI/PCS stuff , I'm falling -many times day or even hour.

Falls on Xmas eve upset my father . I was an emotional wreck , confused & more feelings I can't assisn words to--that I agreed to go when 911 was called. I felt at least it would give my poor dad a break .....
ER nurse was great ( ol school mate) but the DR just didn't seem to " get it".... after about 6 hours of crying w/ severe pain-mainly cluster type headache-- long after CT scan -negative--- I was given morphine & vicodin ( 4 to use at home) and.... told to go....
I did overhear ER nurse strongly expressing to DR that I should NOT be released; she knew me, Hx, family.... but only so much nurse can do....
I'm grateful for her kind & special care; she put me in private quiet dark" room--she gets migrraines so understands.......
but she is an excelllent nurse....

MY PCP & other DRs are on vacation.... next week?? neuro till jan....
the "other programs"--TBi, etc.... that are supposed to be Helping--- but haven't --- were all on extended holidays---
even then what /can they do??? I can , & have asked for help-- for my parents, self, etc-- haven't gotten....


Well, back at home..... I felt worse.... meds didn't help help. and all the stuff that was bothering me now seemed magnifed..... what a way to spend Xmas ....

this is the short version.... my head hurts , vision is blurred. My CT scan was negative ..... actually I was writing a reply to you all, when this fiasco that day began....wish I wouln't sent....would've express someofthe the frustrations .....of trying to access help (from agencies/programs ,etc) as option to ER.....

I feel awful today; nauasea, headaches, and that other stuff-- the despondancy, depression, the Negative nah's that taught & haunt.... and seem to be right since all I try to do fails.....

i feel & cracked my head on door when i got up to go bathroom; think i knocked out but got a big bump. there were other falls, stuff...too much to get into....

I've been crying for days... for various reasons??? one is missing my mom who died last year; for my TErminally ill father in his wheelchair witnissing all

I feel I need to .... what???? get away from him??? I don't know.... I wis was a place where pain/pr[lems could be fixed..... but...

I need to stop ...too many mistakes, typo, andmore.....esp. pain,blurry visions and crazy thoughts....

I hope you all had s[peical blessed holidays...

[jeffn]

Good Morning Pono, Sounds like another bad day at the office.

Hey Pono I've been thrown out of the Hospital, ER, Dr Offices and a lot of other facilities no fun.

I would suggest you try to find and TBI/PCS Advocate to try to help you get threw this. When you are suffering this type of mental dis order you need some help.

You may what to get ahold of your nurse friend and see if she knows of an advocate or can help you find one.

Jeffn

[PCS McGee]

Pono-

I talked to my craniosacral therapist, and unfortunately he doesn't know anyone personally who does his kind of work in western PA. However, he suggested that you try to find a cranial osteopath, which is an MD who specializes in the skull and brain.

His primary reason for suggesting this is that Cranial Osteopaths can be of great benefit to PCS sufferers, and unlike craniosacral therapists, their work is actually covered by insurance.

Here's hoping you reach a break in the clouds sometime soon. If you need help, get it.

[Lucy]

I hope that things have improved for you now - it is not sounding good, I think you need somebody in to look after you - sooner rather than later. Can you call on a friend??

I understand about your mother and Christmas - I have just been through that and it is very sad, but just think she wouldn't be wanting you to be so upset about her not being here with you. I am sure that your Dad will be wanting you to call for help, I think it is time to be worrying about you, getting help for yourself and allowing yourself to cry for you alone!

Please get help

Lynlee

[jeffn]

HI PONO ARE YOU DOING ALRIGHT ??? Jeffn

[pono]

thank all for support, concern, etc.

tings Not going well...

problems w/ PC (& me) ... I tried writing but lost posts .....

I don't know what to do.... still having severe constant headaches, nausea, vomting and falls....

fall few days ago knock out?? went to ER by ambulance. Long story but not much help. was given IV morphine & vicodin --nothing for nausea. nurse was wonderful; she put me in dark quiet room, wanted Dr to do more (like keep or refer me) but after tests negative I was released.

I've been a wreck--physically, emotionally, mentally, etc.

I can't really sleep or find comfort--hurt to lay down, feel so tired sitting.
Vision is blurry as is brain in general.

My home health nurse did contact Health south Rehab . they now want me to go in --be admitted . Don't know if or what they can do.... it is a good rehab but I think I'm more in need of some answers and treatmt.... for headaches, falls, nausea, etc.
Long story--in prior posts--RE: Dr --"brain injury specialist" --physiatrist -- that I saw last spring; after 2 appts and few med trial & errors he said "can't help you" ... Rehab folks said he would be my DR.... wonder what he can do now???

my pcp should be back today; will call or go see him. My neuro is still away.

I do have help here for my father and perhaps would be good for me to be "away" --not affecting him so much watching me fall, be in pain, crying, etc.

My friend who's here helping does NOt feel good about my going to this place . I don't know what is Best... except can't go on... for me or family...

too fuzzy now.. and want to try post b4 lose again...

thanks all.... will update... when can...

wishing ALL the Best...