i am tired of hurting

[Mylegshurt]

This is my second attempt at posting a message, so I apologize if my story gets posted twice.
I was diagnosed with MP 1 year ago, although I have been suffering with it for about 6 years. In the beginning it was mild pain worse with standing or sitting for long periods of time. Also I experienced an embarrassing symptom, which is probably why I did not discuss it with a dr. sooner, but I would experience severe thigh pain before having a bowel movement. Does anyone else experience this?
My pain gradually got to the point of being daily with no relief. Then the numbness began in my thighs. I describe it like the numbness after a trip to the dentist. I finally discussed with my MD and after several tests and appointments, my 2nd neurologist diagnosed me with MP and pudendle nerve entrapment. I have been treated with several rounds of oral steroids which have helped for 2 weeks at a time only. I refuse to take anymore because the side effects of the steroids are not worth the limited relief I get.
I have also taken several different anti-inflammatory drugs with minimal relief.
What I have found is that pain meds like ultram or lorcet help with the pain on the really bad days. I had these prescriptions left over from other reasons. Do others of you take pain meds like these and get relief? Are your MD's willing to prescribe them? My MD has never mentioned them and I feel that he does not think they will help because this is nerve pain.

He has mentioned trigger point injections. Has anyone tried this? Does it help?

I am relieved to know that there are others who know what this is like, but at the same time I am sorry others are suffering with this. I feel like people think I am crazy when I try to describe this to them. I am so tired of hurting.

[bonnie z]

This is my second attempt at posting a message, so I apologize if my story gets posted twice.
I was diagnosed with MP 1 year ago, although I have been suffering with it for about 6 years. In the beginning it was mild pain worse with standing or sitting for long periods of time. Also I experienced an embarrassing symptom, which is probably why I did not discuss it with a dr. sooner, but I would experience severe thigh pain before having a bowel movement. Does anyone else experience this?
My pain gradually got to the point of being daily with no relief. Then the numbness began in my thighs. I describe it like the numbness after a trip to the dentist. I finally discussed with my MD and after several tests and appointments, my 2nd neurologist diagnosed me with MP and pudendle nerve entrapment. I have been treated with several rounds of oral steroids which have helped for 2 weeks at a time only. I refuse to take anymore because the side effects of the steroids are not worth the limited relief I get.
I have also taken several different anti-inflammatory drugs with minimal relief.
What I have found is that pain meds like ultram or lorcet help with the pain on the really bad days. I had these prescriptions left over from other reasons. Do others of you take pain meds like these and get relief? Are your MD's willing to prescribe them? My MD has never mentioned them and I feel that he does not think they will help because this is nerve pain.

He has mentioned trigger point injections. Has anyone tried this? Does it help?

I am relieved to know that there are others who know what this is like, but at the same time I am sorry others are suffering with this. I feel like people think I am crazy when I try to describe this to them. I am so tired of hurting.

To your legs hurt?
How are you doing now? How come nobody ever post here? Is there a new board that everybody is posting on? I have MP and I am not heavy I am 5'8 and 130, I asked the doctor why this happened and he said it was just one of those things, I was the "lucky" one I guess. I have a spinal cord stimulator for my upper body for another problem that doesn't work that great,and I was thinking of having the leads moved down, for pain in my leg. I hope to see more people posting.
Hugs
Bonnie

[Mylegshurt]

To your legs hurt?
How are you doing now? How come nobody ever post here? Is there a new board that everybody is posting on? I have MP and I am not heavy I am 5'8 and 130, I asked the doctor why this happened and he said it was just one of those things, I was the "lucky" one I guess. I have a spinal cord stimulator for my upper body for another problem that doesn't work that great,and I was thinking of having the leads moved down, for pain in my leg. I hope to see more people posting.
Hugs
Bonnie

it has been a while since I have been on here. I have about given up on being pain free. I have seen many neuros because each one thinks I have something different. I do now know that I definitely have MP. I have also been able to isolate where the nerve impingement is. My spine/sacral area where the nerves originate. I went to a great chiropractor and although he could not get rid of the pain -- I could finally feel that it was starting at the spine. (i believe there are 3 spots the nerve can get pinched) so at least now we know where it is coming from. I take ultram 100mg 2/ day to stay at a tolerable pain level for work and taking care of my kids, but would love to find something to take the pain away. I don't know what other medicines people have tried. I could not tolerate neurontin-- I was a zombie on it at just 900mg and it did not change my pain. My md has mentioned topamax. Have you tried it? I also have wondered if epidural injections would be effective. I just know I don't want to live like this the rest of my life.
Hope you are doing well.
Alison