Reynaud's Syndrome

[Av8rgirl]

Does anyone have RS? I am sure that's a pretty silly question but I do have it along with MS and am wondering how many others here have RS along with other diseases or disorders.

I know there are two types, primary and secondary. I have primary but lately I seem to be having episodes more and more often. I know that stress can bring it on and so can the cold weather (it's been a little chilly here in Idaho ... :eek: )

I found this website along with a couple of others, but was hoping that maybe some of you had some experience with this...I know I don't have connective tissue disorder (scleroderma) and no thyroid problems, so I am just hoping that maybe the increased cold hands and feet is due to the unusual amount of stress I've been under lately :eek:

http://www.lef.org/protocols/heart_circulatory/raynauds_syndrome_01.htm

[Koala77]

I've not been diagnosed with RD, but I'm starting to think I may have it. In cool weather my fingers and toes are blanched pure white.

I'd actually had it in my mind to mention this to my local doctor when I go for my next visit.

Thanks for the link FG.

[Alffe]

I have Reynaud's also. Even picking up anything from the freezer sets it off.
One of my daughters has it in her toes. I find sucking really hard on the affected fingers as soon as it starts helps a lot! (course in the grocery store you look like a pervert) :o

[Parkie Patty]

I too have Raynaud's. I've had it since 1983. Also have Parkinson's Disease diagnosed 1/2008. It's been bad this year...having attacks even in the house. I've tried battery operated heat gloves and socks with no luck. Have been buying those little hand warmers (I must have stock in them I buy so many) A doc I know takes the medication (can't remember the name) that treats high cholesterol and high blood pressure and gets great relief. Well, I have low BP so that wouldn't help me. Yes, stress brings it on too. It's a double doozy having frozen parkinson's hands.:(

[Av8rgirl]

I carry those hand warmers around all the time, even the ones that go in your shoes. My feet are the worst b/c of the MS, my feet are numb all the time so I have to be really careful b/c I cannot tell if they are cold or not! I have to actually touch them...

We must have the market cornered on those hand warmers! I buy them by the case! ;)

[fanfaire]

I've got Raynaud's secondary to Sjogren's syndrome. It affects my hands, feet, nose and ears. Not a good time when the temperature is 20 below zero. :eek:

I have fingerless gloves that go up to my elbows to wear when I type. I wear high top house shoes over thick chenille socks. And I often wear a hoodie to keep my ears warm (hats make my head itch).

Mine was steadily getting worse but seems to have leveled off a bit since I went on immuno-suppressants. I haven't noticed any connection with stress but I have read it can affect some people that way.

fanfaire
:cool:

[4everyoung]

yup I was dx with it in my 40's before any thoughts of MS

[JustWeave]

I've had it for a few years now. The really weird thing about me is it effects my right side more than my left. www.raynauds.org was a help to me when I was first dxed.

[Av8rgirl]

I've had it for a few years now. The really weird thing about me is it effects my right side more than my left. www.raynauds.org (http://www.raynauds.org) was a help to me when I was first dxed.

Me too!!! Doc said it was b/c I am right-handed.

Thanks for the link!

[JustWeave]

Me too!!! Doc said it was b/c I am right-handed.

Thanks for the link!

My docs never gave me a reason for the extra sensitive side. I thought I was just plain weird. :eek:

[Av8rgirl]

My docs never gave me a reason for the extra sensitive side. I thought I was just plain weird. :eek:

Then we are weird together!! :D

[ewizabeth]

I must have it because my feet are cold most of the time, even in the summer, and my hands are cold all winter long. My feet are like popsicles in the winter. I have to keep a ceramic heater going by my desk all spring, fall and winter. I even run it in the summertime when my feet feel cold.

[JustWeave]

Wiz- Welcome to the club. We may have cold hands but our hearts are warm.

[Av8rgirl]

Wiz- Welcome to the club. We may have cold hands but our hearts are warm.

It's a great club! Welcome Wiz!!

I keep a case of those hand warmers around and I also have a heater by my desk and it runs most of the time.

I also have an electric blanket for the couch that I use all the time!! It's great!

[Fran E]

Hi, I've had Raynaud's as long as I can remember, but it has gotten much worse in last couple of years - same time as I have developed a lot of other problems probably related to some autoimmune disease no one can diagnose (peripheral polyneuropathy etc). the Raynaud's has gotten so bad I get chilblains on my toes - one of them burst and got infected last year. Not fun for a girl who likes to wear high heels and lives in Canada where we get very cold winters.... anyway my dr gave me adalat which helps somewhat.













Does anyone have RS? I am sure that's a pretty silly question but I do have it along with MS and am wondering how many others here have RS along with other diseases or disorders.

I know there are two types, primary and secondary. I have primary but lately I seem to be having episodes more and more often. I know that stress can bring it on and so can the cold weather (it's been a little chilly here in Idaho ... :eek: )

I found this website along with a couple of others, but was hoping that maybe some of you had some experience with this...I know I don't have connective tissue disorder (scleroderma) and no thyroid problems, so I am just hoping that maybe the increased cold hands and feet is due to the unusual amount of stress I've been under lately :eek:

http://www.lef.org/protocols/heart_circulatory/raynauds_syndrome_01.htm

[mother of 4]

For the last week, my 14 year old daughter has had her hands turn bright red and then these white either lines or round welt looking things pop out on fingers and hands. She complains of pain when it happens and discomfort. Its not on her feet. I thought she was having some kind of allergic reaction; but the dr. Is pretty positive it is rd. I saw the links some of you posted and i thank you since i dont know much about this rd. I will be posting more. Thanks in advance from idaho!

Crysta-mom of 4