View Full Version : Were you ever able to get rid of M P ?
10-21-2006, 12:09 PM
I have only read of a few people that get over M P usually they do not have many other problems with their health. I was under the impression if the nerve stays damaged for a long time it will not heal at that point. The success of curing MP is reached early in the flare up of MP. I am not sure but these are things I read or was told. So I was wondering if anyone had knowledge of the long term effect of MP. (I guess I am looking for hope of no more MP.)
I have had it several yrs. Gabaapentin is what controls my symptoms except for the sensitivity to touch. Any input would be appreciated.
Two things work for me. At one point my MP in my right thigh was
the pits. Like 100 bee stings when it went off. The times it is numb I consider
improvements. I have had this since a C-Section (the long mid-abdominal incision) which was also an exploratory looking for a "tumor" which the doctors
thought I had.
I have had marked improvements with Lidoderm patches, which for me
seem to put the nerve to sleep. So I don't need them as often as before.
I had results in 2 weeks or so. But I still keep them on hand.
The other thing I do is alot of is supplements. EFAs, and esp Thiamine for my feet. I think the high dose thiamine helps with the MP nerve too.
I use 200mg at bedtime. Thiamine is B1 and is an old stand-by remedy for
neuropathy..it still works, and is inexpensive, and benign.
I have never used opiates or Neurontin or other "drugs" for it. So I cannot comment on them.:o
One thing that makes my MP act up is heat...so no steam room at the gym and avoidance of hot baths (which I love) helps also. Certain types of stretching of the leg will also set it off, so I cannot do vertical bikes for exercise. But I can do the recumbent with moderation, and the ellipitical is easier than the treadmill for me.
10-24-2006, 09:25 AM
I have had MP in my right thigh for about 4 years. I have had 6 back surgeries which I assumed started it in the first place. Gabapentin takes some of the sting out, but not the unexpected sudden shocks. I had a spinal cord stimulator put in early 06 and even it does not eliminate the shocks. It works to a point, but even with it I still have the creepy crawlies up and down the thigh and if I turn the wrong way or reach for something the stings come on fast.
I guess at this point it will be something Ill live with for the rest of my life. Even all the different meds including morophine dont touch it.
Just my thoughts,
10-25-2006, 12:20 PM
Thanks for your reply docholiday. I am sorry to hear the stimulator did not work for you. I read a post how much it helped Jerry Lewis but his sistuation maybe different. I was told by a pain dr. his recommendation would be a stimulator for me. I was in pursuit of a procedure - RFL by him and he moved into another pratice so I have not continued my pursuit. I was also told that the stimulator may not get rid of all the pain and pain meds might still be necessary. I had thought at one time the stimulator would take the place of the pain meds.
The warm weather is a better time for me to cope with MP since it is less clothing and no need to use a cover to sleep at night. Now it is colder season where I live and the cover a night is a problem it I try using it. I am senstive to touch in the thigh and close to the knee.
I hope you have better days and less pain. It can get us down. Not being able to be as active, the pain, and people who do not have nerve pain do not understand what we go through. That can be true about many illnesses I guess. But we can jump back up and go again!! It helps having a good place like this to talk and search for new treatments and to be able to communicate with others.
10-25-2006, 12:41 PM
Thanks for you reply MrsD. I will consider and check if I can take B1 in addition to the other vits and supplements I take. I like natural things and would like to go off some meds. I do not know if it is possible to elimante some meds but I will ask. .. maybe I can cut them down in size of dosage when I talk with the doctor.
The nerve pain sensitivity to clothes is one of the top issues with me. The Lidoderm patch is heaven sent...
I always wonder if my hystrectomy or my back had anything to do with my developing MP.
Thanks for your time and input . It is appreciated!!
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