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BobbyB
04-21-2008, 12:24 PM
Spreading awareness of Parkinson’s


Filed by Carolyn Woody

April is Parkinson’s Awareness Month, so I felt I should share my story.

Parkinson’s disease is a chronic, degenerative disease that affects a small area of nerve cells in the brain. These cells normally make chemicals that transmit signals between areas in the brain that coordinate smooth and balanced muscle movement. Parkinson’s disease causes these nerve cells to die and as a result, body movements are affected.

I have had many health challenges in my life from breast cancer at the young age of 34 to heart problems the last 10 years, but nothing prepared me for this disease.

It first started out as a slight tremor in my right hand and gradually became worse. It began to affect my handwriting and everyday tasks, such as cutting up my food, putting on makeup, etc. I began to have vivid dreams and nightmares and my emotions were on a roller coaster, causing anxiety and depression. I finally went to a psychiatrist and he put me on an anti-depressant, which helped. A large percentage of PD patients have depression.

My dad had PD and I saw it firsthand, and the thought of becoming disabled and dependent on someone else is not a happy thought. Parkinson’s does progress differently in every person, so there is hope that I will be one of the lucky ones whose symptoms don’t get worse. I was diagnosed by a fine neurologist in Chattanooga, and I wanted a second opinion, so he helped me get an appointment with a movement disorder specialist at Vanderbilt University Medical Center. I had a great doctor there, too, and he confirmed the diagnosis. He put me on Mirapex. I am still on a low dose, building up to a stronger dose gradually. I am also trying to stay active. I started a water aerobics class, which I love! A support system of family and friends is a must, and I certainly have that.

Many people remain closet patients and tell no one about their illness, but I find that it takes the power away from the disease if I can talk about it to others. I stay in touch with folks all over the U.S. and in other countries, too.

Not nearly enough research has been done on Parkinson’s. We must get the disease before the public. Please help me do this! Please feel free to e-mail me if you have Parkinson’s or if someone close to you does.

E-mail Carolyn Woody at lcwoody43@yahoo.com




Jaye
04-22-2008, 11:54 AM
Thanks a bunch, BobbyB, for taking the time to stroll over here from the ALS forum to share this item with us. We know that our eventual victory depends on the public's knowledge of our plight.

May the Spirit of Life continue to be strong in you,
Jaye

CTenaLouise
04-22-2008, 10:11 PM
this was my awareness film -with all of my favorite PARKIES
in the film

In Search of a Champion ... the young onset Parkinson's project Produced by Tena and Rebecca

We want to shine light on a disease that until now has been thought to only affect senior citizens. This film shows what actually happens when people in their 20's, 30's and 40's are struck down in the prime of their lives. These years are usually associated with busy new life, beginnings, graduations, careers, weddings, building families and enjoying life.


Our film introduces you to a cross section of men and women who are doing their best to live well despite this neurodegenerative disease. You'll also hear from caregivers, doctors and support groups who are trying to improve the quality of life for the Parkinson's patient.

Our hopes are that after viewing our documentary you will have a greater understanding of young onset Parkinson's disease. We encourage you to join our efforts to find the cure. We are In Search of a Champion to defeat this illness in our generation.

http://www.pwnkle.com/champion.htm


Congressman Lane Evans -most well known and greatest.

my best friend and her daughter -who passed away at the young age of 34
August of 2007
I wanted the film to show the young onset -and I realize their are so many
young onset PD patients to add to the apparently PD epidemic equation,

and I applaud anyone who has this affliction/plague or any neurodegenerative illness with as much faith and optimism as possible... dear bobbi -you are a great one of these kind hearted people

as reality is an ever changing concept, and I have seen there is a cure.
now - we that have tried to be patient advocates/ medical researchers/
pass the baton to you and those like you...

never ever give up!
:hug: