Weekly Check-In April 27-May 3, 2008 Welcome New Community Members

[stevem53]

Hi Everyone..A big warm welcome to our new community members!

The Unity Walk in Central Park was today..I havent been feeling good lately, very symptomatic, and I decided theat getting up at 5:00 AM to make it to the bus, and coming home at around 11:00 PM was a bit too much for me, even though I would have loved to go

I saw my neuro last week, and he wants to see me again in 2 months, and see if getting back to fishing makes me feel better..If not, I'll have to have a med increase..I had a real good year untill a couple of months ago, when I began to slide backward, but I am not going to let it stop me..I put my boat in the water yesterday and went out and dug a few clams this afternoon when I got back from my support group..I am also going to try some brand name 50/200 Sinemet I have here, to see if maybe its the generic Sinemet that is the culprit..I start that tomorrow morning

In the process of launching my boat, I had a bad wheel bearing on my trailor, and it was a miracle that I made it down to the dock without the wheel falling off..What a horror show that would have been!..But after a few trips back and forth to Walmsley Marine, and the house to get some tools, I got it put back together and got it back home..Well, Ive been saying I needed to get out of the house and get more physically active..I guess I should feel grateful that my trailor was falling apart?..:confused: :rolleyes: :D

How was your week?

[jcitron]

Hi Steve,

I hope you feel better soon. The weather is too nice to let it slide by the wayside.

This has been a good week for me so far. I've let the school work go sadly in face of the fatigue that was knocking me down, but I feel better now. I'm not as exhausted or barfy feeling. That was the one other thing that was stressing me out and totally exhausting me. I don't start back to classes again until the beginning of June, and hopefully I can finish the last 6 I need.

I had a good visit with my GP (Primary Care Dr.) on Thursday last week. He's excited about my mobility and said that without knowing any history, no one would know I have PD. That really made me happy. :D I see him in about 12 weeks because he's got me scheduled for a sleep study at the Holy Family hospital on May 30th. I told him about the twitching and major limb movements at night - I punched myself in the eye last week and he wants to check into other aspects of my sleep.

Anyway, I've been spending a lot of money lately. I bought some new clothes for my upcoming trip, and a wide-angle lens for my video camera. While I was at it, I spent another $500 or so on music books. Heck as long as I can still play the piano, I'll look at new music. ;)

This past Saturday (4/26), I walked about 5 miles. I took a long way around walk to the Building 19, which is about a mile from my house to get some clothing for me trip. The walk home was a killer, and I really felt it in my legs and my back on Sunday and today. That's the break I guess for being lazy all winter.

Enjoy the good weather while we have it. ;)

John