forum title list from '04 for rebuild info

[dorry]

http://web.archive.org/web/20040605035044/brain.hastypastry.net/forums/

I'm sure there are newer ones at google also.

[dorry]

General Neurology and Rare Disorders
Discussions about general neurology and undiagnosed conditions, including rare disorders that may not be separately listed.

Forum Feedback
Forum Feedback is a place to discuss general ideas about the BrainTalk Communities - a place to ask any questions you may have, to talk about things you like, things you don't like, new ideas about how our community may grow, new features you'd like

Forum for Emotional Support
This is a general forum for people looking for emotional support of any kind.

Adoptive Parents of Special Needs Children

Advocacy and Activism

Anger Management
A place for people to share ideas, experiences, and tips for managing anger related to people dealing with neurological illnesses.

Artistic Expression and Therapy
A place to express creative ways of dealing with neurological disorders using art (words, music, images).

Breast Cancer

Bridging the Cultural Gap
There are thousands of people from many different cultures in these forums. Here's a special place to learn and share information about different cultures and customs!

Caregiver Support

Chatroom Feedback
A place to discuss the MGH Neurology Chatrooms and to give feedback about their use.

Chit-Chat
This is a place for daily "chit-chat" and other discussions that are not directly related to Neurology. This is also a place to discuss chatrooms!

Comic Relief
A place for people to share jokes and funny stories as a way to provide "comic relief" for people dealing with the stress and anxiety of neurological illnesses. Please just keep it in "good taste" and lighthearted!

Complementary and Alternative Medicine

Complex Issues / Multiple Diagnoses

Computers and Technology
A general forum for discussions about computers, technology, and the Internet. If you just want to "geek out" or talk about how computers tick, then this is the place!

Coping with the Loss of Child

Current Scientific Findings and Articles

Disability Aids

Domestic Abuse

eBayers at BrainTalk
Many BrainTalk members use eBay both for fun and as an important source of income to help people who are housebound and on a limited income. This is a place for fellow BrainTalk eBayers to share information and experiences about eBay, and to help ea

Educational and School Issues
This forum is for general discussions about school and educational matters regarding neurological conditions, particularly for Parents, Child Care Workers, Teachers, Students, Councellors, and Special Assistants.

Featured Websites
A forum to discuss and comment on useful medical websites that have appeared in the "Featured Websites" link at the top of every page here.

Folding@Home
Folding@Home is a distributed computing project whose purpose is to unlock the mysteries of protein folding. Many human diseases, including many neurodegenerative diseases, are thought to be caused by improper protein folding, or protein misfolding.

Food for Thought - Nutrition and Neurology
A forum to discuss healthy recipies, food, and nutrition ideas relative to neurology.

Forget Me Not Garden of Memories
A place to share stories and remember loved ones who have passed away. A place to publically say a few words about those special people who have touched our lives.

Friends of BrainTalk Communities
Friends pulling together to help support our Community and our Home. A place to share ideas on how to make BrainTalk self-sustainable through grants and donations.

Grief

Infertility and Neurology

Legal Issues - General
General legal issues dealing with neurological disorders.

The Lighter Side
The Lighter Side Forum provides an opportunity for people who suffer from neurological conditions to relieve stress and to put their difficulties into a less intimidating light through real-life humor. ?Lurking? (that is, reading without posting) is

Linder's Card Shop
This is a special forum to find, create, and send cards to people in these forums.


Lost and Found - Finding People
There are many forums here, and sometimes it is difficult for people to "find" each other. Some people move from forum to forum over time. Sometimes people go on vacation or move, and they may wish to somehow "announce" that they are going to be offl

Making Peace and Moving On
Have you had an argument with someone? Are you ready to "bury the hatchet" with someone? Even if the best you can do is to simply "agree to disagree" (and sometimes that is all we can do), THIS is the place to publically make peace and move on to a m

Medical Conferences and Meetings
A general forum for discussing upcoming medical meetings and conferences relevant to neurology.

Medical Equipment Exchange
A place where people can post exclusively about medical aids/equipment they no longer need and are willing to donate to someone else. Also for people with needs who can post so others might be able to help them with what they need.

Medical Ethics

Medications and Medication Toxicity
General discussions and questions about medications for any disease conditions, including issues of medication toxicity.

Memory Deficits

Men's Health and Neurology
A place to discuss men's specific health issues related to neurology.


Night Owls
A place to go when you can't sleep and would like to meet other "Night Owls."

Nursing

Obesity and Neurological Disorders

Older People with Neonatal or Prenatal Conditions

Parents of Survivors of Child Abuse

Personal Injury Protection (PIP)
A forum to discuss PIP issues, such as MVA or Slip/Fall cases.


Pet Therapy
A place for people to talk about their pets and the therapeutic effects of pets on people dealing with neurological disorders.

Philosophy of Chronic Illness
A place to discuss the philosophy of, as well as random thoughts on , chronic illness.

Positive Experiences with Health Care Professionals
Patient, parent, and caregiver recommended neurologists, therapists, and health care providers.

Prostate Cancer

Psychology of Chronic Illness
Rehabilitation

Sexuality
Discussions about impotence, sexual functioning, and personal experiences/effects of neurological disorders on human sexuality.


Sanctuary for Spiritual Support
This "Sanctuary" is a place for people of all spiritual beliefs and faiths to offer support and compassion to each other in the form of prayers, meditation, and expressions of spirituality. This forum is for support, not religious debate.


Single Parents with Disabling Conditions

Social Security Disability

Smoking and Tobacco

Success Stories
A place to share positive experiences about "success" when dealing with any neurological disorders.


Survivors of Suicide

Teens Helping Teens

Tests and Procedures

Vitamin Deficiency

Widows, Widowers, and their Families

Women's Health and Neurology
A place to discuss women's specific health issues related to neurology.


Worker's Compensation

Private - Support Team

[dorry]

Specific Neurological Conditions (A - L)

Achalasia

Addiction

ADHD
Attention Deficit Disorder/Attention Deficit Hyperactive Disorder


Agoraphobia

Alcoholism, Addiction and Recovery

Alcoholism, Addiction and Family
Support group for people dealing with family members who suffer from alcoholism.

ALS

Alzheimer's Disease

Amyloidosis

Aneurysm
Welcome to the Brain Aneurysm Foundation's http://www.bafound.org message board. This board is part of a partnership with "BrainTalk Communities" sponsored in part by the Massachusetts General Hospital's Department of Neurology.

Angelman Syndrome

Antiphospholipid Antibody Syndrome (APS)

Anxiety Disorders (General)

Allergies and Allergic Reactions

Arachnoid Cysts

Arachnoiditis

Arnold Chiari Malformation

Arteriovenous Malformation

Arthritis

Ataxia

Autism

Autoimmune Diseases

Autonomic

Behavioral Disorders

Bells Palsy

Bipolar Disorder

Blood Pressure Problems
Issues dealing with Blood Pressure problems and how they relate to neurological disorders.

Body Dysmorphic Disorder

Bowel Disorders

Brain Cancer and Tumors

Canavan Disease

Cauda Equina Syndrome

Central Auditory Processing Disorder (CAPD)

Cerebellar Ataxia

Cerebellar Disorders

Cerebral Palsy

Charcot Marie Tooth

Child Neurology

Chronic Fatigue Syndrome

Chronic Pain
Whatever the cause, support for managing long term or intractable pain.

Cluster Headache

Compulsive Skin Picking

Congenital Fiber Type Disproportion

Coronary Disease and Neurology
A forum for discussing coronary disease, heart attacks, and the neurological implications/complications.

Corticobasal Ganglionic Degeneration

Creutzfeldt Jakobs

CSF Leak

Dandy Walker

Decubitus Ulcer

DeMorsiers Syndrome

Depression

Diabetes
For discussions about the neurological implications of diabetes.

Dissociative Identity Disorder/Multiple Personality Disorder

Down Syndrome

Dyslexia

Dystonia

Eating Disorders
Anorexia, bulimia, compulsive eating, obesity issues, etc.

Ehlers Danlos Syndrome

Encephalitis

Endocrine and Gland Disorders
Issues dealing with Endocrine/Gland disorders and how they relate to neurological disorders.

Endometriosis
Issues dealing with Endometriosis and how they relate to neurological disorders.

Epilepsy Awareness Projects

Epilepsy

Erythromelalgia

Essential Tremors

Facial Paralysis

Fibromyalgia

Fragile X

Gaucher Disease

Gifted and Learning Disabled Individuals

Gluten Sensitivity / Celiac Disease

Glycogen Storage Disorders

Gulf War Syndrome

Guillain Barre and CIDP

Headache

Hearing and Inner Ear Disorders
Discussion about hearing, inner ear, balance, vestibular, labyrinth, vertigo and undiagnosed hearing disorders.

Hemispherectomy

Hepatitis C (HCV)

HIV and Infectious Disease


Huntingtons Disease

Hydrocephalus

Hypotonia and Hypertonia

Irritable Bowel Syndrome (IBS)

Landau Kleffner Syndrome

Late Talking Children

Lead Neuropathy

Lennox-Gastaut Syndrome

Leukodystrophy

Lewy Body Disease

Lightning and Electric Shock

Lupus

Lyme Disease

Specific Neurological Conditions (M - Z)


Mal de Debarquement

Marfan Syndrome

MSUD (Maple Syrup Urine Disease)

Meningitis

Menopause and Neurological Implications

Mental Retardation and Related Cognitive Disabilities

Meralgia Paresthetica

Mercury Toxicity

Microcephaly

Mitochondrial Disorders

Mixed and Undifferentiated Connective Tissue Disease

Moebius Syndrome

Movement Disorders

Moya Moya

Multifocal Motor Neuropathy

Multiple Chemical Sensitivity (MCS) and Chemical Injury
Issues dealing with Multiple Chemical Sensitivity (MCS ) and Chemical Injury, and how they relate to neurological disorders.

Multiple Sclerosis

Muscular Dystrophy

Myasthenia Gravis

Myelin Disorders

Myelomalacia

Myoclonus

Myositis

Narcolepsy

Neuralgia

Neurofibromatosis

Neuromuscular (in memory of Rose Marie)

Norrie Disease (in memory of Bobby and Matthew)

OCD

Overgrowth Syndrome

Pelizaeus-Merzbacher Disease

PANDAS
Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections.

Pain

Panic Disorders

Parkinson's Disease

PLWP (People Living with Parkinson's)

Parkinson's Disease - DBS/STN Support
A forum specifically for supporting people dealing with DBS/STN issues and Parkinson's Disease.

Pelizaeus-Merzbacher Disease

Periodic Paralysis

Peripheral Neuropathy

Periventricular Leukomalacia (PVM)

Personality Disorders

Phantom Limb Pain

Porphyria

Post Polio Syndrome


Post Traumatic Stress Disorder

Premenstrual Dysphoric Disorder

Progressive Supranuclear Palsy (in memory of "JanDel")

Proximal Myotonic Myopathy (PROMM)

Pseudotumor Cerebri

Radiation Exposure and the Nervous System

Ramsey Hunt Syndrome

Reflex Anoxic Seizure

Reflex Sympathetic Dystrophy
Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)

Repetitive Strain Injury

Restless Leg Syndrome

Rombergs Disorder

Schizophrenia

Scoliosis

Self Injury

Sensory Integration Disorder

Shy Drager (Multiple Systems Atrophy)

Silicone Related Diseases

Sjogren's Syndrome

Sleep Disorders

Spasmodic Torticollis

Speech Disorders

Spina Bifida

Spinal Cord Injury

Spinal Disorders

Spinal Muscular Atrophy

Stiff-Person (Stiff-man) Syndrome

Stroke

Sturge Weber Syndrome

Survivors of Sexual Abuse

Sydenhams Chorea

Syringomyelia

Tardive Dyskinesia

Tethered Cord Syndrome

Thalamic Pain/Central Pain Syndrome

Thoracic Outlet Syndrome

Thoracic Outlet Syndrome/Brachial Plexopathy

Tics and Twitches
Discussions about tics and twitches in general.

TMJ (Temporomandibular Joint) Syndrome

Tinnitus

Tourette Syndrome

Transplants

Traumatic Brain Injury

Trichotillomania

Trigeminal Neuralgia

Trisomy 18 Disorders

Tuberous Sclerosis

Urinary Disorders
Urinary Disorders related to neurological disorders.

Vaccine or DTP Injuries

Vascular Malformations

Visual Impairments

[Thelma]

Hell I hear John left a sweater at the old site lets go get that too.

Now it is getting really ridiculous.

You can't be serious about this....can you?

[dorry]

Hell I hear John left a sweater at the old site lets go get that too.

Now it is getting really ridiculous.

You can't be serious about this....can you?


Weren't you the one complaining that there were only some forum topics here, or was that sarcasm? There are some forums listed that aren't here that I would like to see medical information on. Others have stated that their disease of choice isn't listed.

I've never heard of 90% of the diseases listed above, and I doubt many of them were frequented often, if ever. They were probably taken from a neuro disease list.

BT could come back tommorow, but personally I have no interest in returning there. If nothing more, than the outpouring of paranoia and demanding attitude that I have seen here. I'm a patient person, but not that patient. I know my limitations.

Others that I've invited here from the old BT forum have read here and said no thx. Not because they think their precious BT had been stolen, but rather it brought out the worst of what they remembered from BT and why they seldom went there either.

You may not care to stay here, but many of us do. We're looking to build a community where some familar faces want to park themselves and discuss neuro disease. I don't happen to know what diseases they want, so I copied the list.

I don't understand your point.

[Wittesea]

Thank you Dorry for finding the list.

Personally, I would like to see an Autoimmune forum here.

There were a lot of forums at BT for specific Autoimmune diseases, but I don't see the need for that here (yet) but a general autoimmune forum would be a nice addition in my opinion.

Liz

[dorry]

your welcome wittesea. I'd like to see these forums, if there are other members with similar problems.

Autonomic Disorders
Coronary Disease and Neurology
Sleep Disorders or Insomnia
Panic Disorders from Arrythmias or otherwise

Alot of autonomic disorders have overlapping symptoms and many diseases may have similar symptoms that patients could share info on how to cope. I agree with your suggestion that a group of disorders could be classified in one related category.

I tend to not be a medication taker because of allergic reactions, so I would love to converse with ppl that manage their symptoms without medication.

Those would be some of my choices.

[Curious]

LOL

if the sleep disorder/ insomnia one gets started...we might as well name it curious'es room! ya think i'm a yappy monkey now? hehe....did you know i rarely sleep?

[jccgf]

I'd think looking at the top thirty or so most active old forums would provide a good base, and then people could request additional forums be opened if they saw or had a need. I pulled the number thirty out of the hat...might be more....but I'd imagine there are some that could go. I agree that a lot of them were empty and served little purpose..of course, empty forums don't cause many problems either. A forum doesn't need to have a lot of members to be useful. So, I guess that came full circle...lol.

Cara

[stumps]

Thank you Dorry for finding the list.

Personally, I would like to see an Autoimmune forum here.

There were a lot of forums at BT for specific Autoimmune diseases, but I don't see the need for that here (yet) but a general autoimmune forum would be a nice addition in my opinion.

Liz

I agree with Wittesea, as too many forums for specific disoders make life complicated IMO, plus many of us with Neuro. disorders also seem to have Autoimmune problems and a specific forum for them as they often over-lap may be very useful.

Gillian

[purple pal]

I would like to request that porphyria be added. I'm new to Brain Talk, so my opinion may not have much weight, but please take my suggestion into consideration. If you feel that the forum for that was not frequented enough, then one for rare genetic disorders would do well. :)


Wendy

[Doody]

Wow Dorry, I'm impressed! Thanks for finding that!

[dorry]

your welcome doody! I wanted to run and hide after the first response, but I hung in there :) I found it on google and had to change to format to paste it here.

I think it will be helpful for ppl to recognize what their home forums are or want them to be.

[artist]

Hell I hear John left a sweater at the old site lets go get that too....

Not that old sweater with the Einstein equation on it? Damn, I coveted that....ah, our different senses of humour, I thought that was very funny, a real LOL :D

Dorry, that is a great list - it will serve as a great reference. Voting? I think not, we'll be here till next year. We're already making the suggestions as things develop, seems to be working.

We did need the list, even if large chunks can be dispensed with, to remind ourselves - I reckon we're doing it the right way.

Good nabbing, shame you didn't nick that sweater too though ;).
all the best

[dorry]

ah, our different senses of humour, I thought that was very funny, a real LOL


haha artist!! thelma skeered me - I thought she was going to rake me over the coals or somethin. she's cool. I just had to get to know her and appreciate her ;)

/dorry slinks away

[artist]

...../dorry slinks away
Yup, she gotcha :p :D
atb