Anyone have any personal news to share?

[ponyboy]

In the ~6 weeks or so that BrainTalk has been off the air, there has undoubtedly been some newsworthy event occurring to some of our crew...

So, what's new among y'all? :confused:

As for me, the biggest news is that my M-I-L is now firmly ensconced in a "Memory Care Home"... a place specifically for memory-impaired people. She seems to be settling into her new digs, and has apparently forgotten all the acrimonious things she said to and about me. My mind is attempting to recover from her torture and torment of the past 8 or 9 months, and I'll start school next Monday. Fresh classwork ought to provide a welcome respite from the battle scenes... My annual "How ya doin'?" session with the OrthoSurgeon is set for the 7th of September... I'll enlighten him about my continued cervical degeneration and the progression of arthritis in both of my carpometacarpal joints (base thumb joints). The steroid injections just aren't cuttin' it any more... :( We spent a pleasant week in early August out in Sioux Falls visiting our son, d-i-l, and two of our grandkids... Kind of difficult to believe that our little granddaughter is approaching her first birthday next week, and her big brother is fast approaching five years old.

Okay, I've spilled my guts out; what's new among all you folks? :)

[JanM]

My sad news is that we have spent our first summer in Texas and didn't get to spent 2-3 months in NE WI The ESI I had gotten last August has worn off, but it lasted about 9 months. This is 8 months longer than any of the other have lasted. I'm getting an eye lift this Friday because my eyelids are drooping and interfering with my sight, esspecially the left one. I will be awake for this, so I can sit up so they can check on the how they're hangin'

[claudia029]

New nerve pain running up and down the left side of my left leg. So I had a Lumbar MRI on 8/8/06 and NS is supposed to call me today with results.

FINALLY, got my SSD approved and received back pay to 10/15/04. Hubby and I are going on a 7 day cruise to the Virgin Islands (St. Thomas, St. Marteen 10/29/06).

If MRI doesn't show significant change at L3-L4, then I will have a Cervical and Lumbar ESI on 10/20/06 hoping it will as my hubby told NS put me in a 'Comfort Zone' for the cruise. I'm trying to be positive about them; however had 1 Lumbar L5-S1 in either 8/05 or 9/05 and just caused severe muscle spasms in my back. I had a cervical ESI at C7-T1 on 4/11/06 and it took away the severe pain on the left side of my neck and shoulder blades and moved moderate pain to the other side.

On Lortab instead of Demerol w/phenegran. NS is switching my daily doses of Neurontin to Zonegran. I have RX but haven't gotten it filled yet. He wanted to put me on Lyrica, but insurance company refused to pay for it. Said it was
only for diabetic neuoropathy.

That's it Folks.

Hugs To Ya!
Claudia:)

[ncdude]

I just finished a hellacious cervical MRI and am about to have cubital tunnel surgery on my left hand. Doc just wanted to make sure my neck was not contributing to the ulnar nerve problem.

joe

[Jyes]

Hi, I am still suffering from a Cervical RF procedure on C3/4 that went wrong and partially fried C2 causing Neuralgia and Occipital nerve pain at base of the skull. :(
Also, had X-Rays taken of Lumbar in July and was told I had 6 Lumbar Vertebrae instead of 5, but I also had a new Lumbar MRI this month and no mention of an extra. :confused:

Seeing a new NS next month, hoping for some answers.

Jyes

[Kathe]

I do have some news...actually quite positive news...

My pain levels have bottomed out, and I almost feel like a normal human being again. The horrible nerve pain in my legs are now completely gone...as well as the quilting patches that were on my thighs...my back feels so much stronger...

I am now on no meds besides my basics...thyroid, b-12 and folic acid. I've been eating fresh bananas instead of the potassium pills...been going to a massage therapist for quite some time now, picked up walking and pilates (sp) and kept myself busy and moving and somehow worked right through the pain I was having. My hip feels awesome and this is the best I've felt in years.

I really don't have any complaints, except for waking up at 6am to take my DD to cross country practice...LOL! I am finally able to enjoy myself for the first time in years.

Please don't take this as bragging...I honestly think that because my core was weakened that everything was compounding itself and making what should have been mildly painful....terribly painful. It wasn't an overnight type of getting better, but I told myself I was going to work through it and so far so good.

Will it last? I have no idea, but I'm happy and I finally can dance with the kids!!! It's been a real blessing.

Thanks for letting me share!

I wish you all pain free days ahead and never stop trying to get there (however that may be).

Blessings,
Kathe ;)

[Username]

Kathe:

Brag away, I'm proud of your attitude! I've been seriously considering pilates myself. It's rather expensive here though. On top of the gym membership I think it's like $100 for 7 sessions, something close to that. But I've spoken to my drs about it and they think it certainly wouldn't hurt and would probably be beneficial in stretching the muscles and ligaments out since that's a big part of my pain (tight neck/back muscles). I think I'm going to get botox in the neck, start massage and add the pilates. Maybe the combination will keep everything from locking back up. My pain dr. doesn't think anything will work. He actually told me at my last visit, that I was trying to hard and I would never get any better than I am right now. I'm setting myself up for disappointment and depression if I don't achieve what I think I should be able to achieve. How's that for confusion and dissillusion?!! If I didn't think he was a good dr. and that he truelly believes me and is willing to work with my pain meds I probably wouldn't go back. I suppose he's seen me up and down so many times he doesn't want me to see me back down again. Who knows.

Anyway, glad to hear that you're feeling so much better and the mystery patchs are gone. That had to be nerve wracking!

Linda

[JanM]

This past Friday the 25th I had to have both of my eyelids fixed. The left one's lid muscle was stretched and on the right the muscle had slipped off from way it should have been. The eye doc made an incision in the crease of each eye and cut away some skin and fixed the problem. It took about an hour and I was awake for the procedure. He also zapped the fat out of there and it smelled like I was the main course at a bar-b-que. The stiches come out next Friday. I know, my hair's a mess!

[snoozie]

Wow Jan that looks like it really was painful. I can't believe you were awake during that! What a brave woman you are. Was there a choice to get knocked out? Do you mind of I ask what caused the muscles to stretch the way they did? Well just think how fresh and young your eyes will look when they heal :) ...Sue

[JanM]

Wow Jan that looks like it really was painful. I can't believe you were awake during that! What a brave woman you are. Was there a choice to get knocked out? Do you mind of I ask what caused the muscles to stretch the way they did? Well just think how fresh and young your eyes will look when they heal :) ...Sue

The doc did it in his office and injected numbing into the eyebrow. He had to inject more as he got deeper into the muscle area. I have only taken 4 pain pills, it didn't hurt that much. In 2002 I had fallen over a low bench in Iowa at a rest stop and had the biggest blackest left eye. The doc felt that the blood in there had streched the muscle. I now remember of hitting that eye on the corner of a shelf a couple of years ago also. The best part is that I failed the eye field of vision test and so the surgery was a medical necessity. thence covered by insurance.

[ncdude]

I just finished a hellacious cervical MRI and am about to have cubital tunnel surgery on my left hand. Doc just wanted to make sure my neck was not contributing to the ulnar nerve problem.

joe

NEVERMIND!! I'm screwed. New herniation at C5/6. Please read my thread. Any help or commiseration appreciated.

joe

[GinaMarie]

My summer has been PACKED with doctor appts and therapy and counseling for me and the boys. My doctor now says Im having seizures on top of all my other medical problems. We think they are the partials as I dont lose conciousness. I had a neuro who we think is a quack. All this year he hasnt really tried to find out why Im losing my balance or why my headaches are increasing. He just says he thinks Im losing my balance because of my bone structure :confused: :mad: . I dont think so. He doesnt believe the seizure stuff. My primary wanted me to see a neuro closer here to home. She is dropping the blue cross Med-i-cal which I have (secondary) so I get to drop that neuro .

The new neuro ordered new MRI's on my brain and spine (tho not my lower spine which has all my spinal problems) to see if he can find why my balance problems and headaches. I see him again this month. My primary increased my Topomax for my seizures.

I know my back has gotten worse. The pain has started going down my leg. The neuropathy has gotten LOTS worse in my feet and hands. Instead of occasionally its now ALL the time and ANYTIME I put any kind of pressure on my hands or feet. My back surgeon put my on Lyrica for the neuropathy and it hasnt done ANYTHING to help it... all it has done is made me walk into walls and more "loopy" and lose my hair.. Im going to tell him I want OFF IT.

Anyway.. Oh... Monday I was on my way to P/T and heard a "clunk" while driving. I thought it was something of the boys falling or my walker falling.. Got to P/T and my gearshift wouldnt go out of drive.. I thought my Tranny went out.. while waiting to figure out what to do and have van towed home.. I locked my keys in the van.. Got the van home later that day and later that night my brother checked the van and found I was a miracle to be alive.. the Frame under the van (under my seat) BROKE WHILE I was driving!!! My brother said that by the linkage locking up it probably saved the steering column from falling out. God was watching out for me. BUT now I live 15 miles from town and have NO van/car and NEED one but cant seem to get a loan from any bank/place to buy the van I want with a lift. Today Im using my ex's old car but not sure if my walker will fit in it when I put all 4 boys in it. He is also telling me NOT to RUIN his car... :mad: its a OLD beat up car already. HE is the one that gets in MORE accidents than I do.
uggggggg Sorry this is so long.
Gina Marie

[JanM]

My stitches are still in. It seems that I have an allergy to the Bacitracin Zn/Poly-B ointment I had to apply to each eyelid. The eyelids were way to swollen for the doc to remove the stitches. I am taking Benadryl and continue with cold packs to get the swelling to go down and I go back again on Tuesday. My eye are still itchy, but the swelling is down a tad. With my luck, I probally allergic to the stiches! :rolleyes:

[ejbpesca]

for those of you who may have given up on BThastypastry, I clicked on it and John L. left a note of why it has been down so long. Hardware/software/ and travel situations.

Now back to that popping back thing. It is a daily thing for me now and guess what, pain levels have plummeted since the popping started. I can make it happen now and sometimes you can hear it in another room!

The pop and pops are just below the cervical surgery area. Maybe, just maybe the tensed up muscles there are starting to let go and allow my spine to adjust itsself. Isn't that what popping is all about? I've know folks for years who love to pop their backs or get their backs popped going...aaaahhhhh after especially a sequenced multi pop.

Oh..for all y'all out there taking care of the infirm, I have joined your boat. I had no idea this would befall me. After my mother died her husband has gone steadily down hill. I never really new the man that well but boy I do now! He refuses clinical VA/SS help and relies on me and my brother to get 'r done for him. We can't always be around though...don't know what to do.

Peace and love from AL
jb

[janster]

Hey jb~
Been a while. Hang in there honey!
http://i41.photobucket.com/albums/e274/janster46/Hugs/teddyhug.gif
Hugs,
Jan