Useful Websites & Resources for Tourette Syndrome

[Chemar]

Tourette Syndrome Plus
http://www.tourettesyndrome.net

Tourette Syndrome Association
http://www.tsa-usa.org

Latitudes/Association for Comprehensive Neurotherapy
http://www.latitudes.org



Life's A Twitch
http://www.lifesatwitch.com

[Lara]

Tourette syndrome: minimizing confusion
Roger D. Freeman, M.D., Clinical Head
Neuropsychiatry Clinic at British Columbia Children's Hospital,
Vancouver
http://www.tourette-confusion.blogspot.com/

__________

Neuropsychiatry

Canadian Journal of Psychiatry - Bulletin - February 2002.

Neuropsychiatry

Challenging Phenomenology in Tourette Syndrome and
Obsessive–Compulsive Disorder: The Benefits of Reductionism

Anton Scamvougeras, MBChB, FRCPC
Clinical Associate Professor, Adult Tourette Syndrome Clinic,
Neuropsychiatry Unit, Department of Psychiatry,
University of British Columbia, Vancouver, British Columbia.
http://ww1.cpa-apc.org:8080/publications/archives/bulletin/2002/february/specialfeaturescamvougeras.asp
__________


Tic Disorder/Obsessive Compulsive Disorder Specialty Clinic
Yale Child Study Center
http://www.med.yale.edu/chldstdy/clinics/ocd/index.html

__________


MEJIA, Nicte I; JANKOVIC, Joseph.
Secondary tics and tourettism
Rev. Bras. Psiquiatr.,
São Paulo, v. 27, n. 1, 2005.
http://www.scielo.br/pdf/rbp/v27n1/23707.pdf

__________

Tourette Syndrome Now What
Dedicated to families with a new diagnosis of Tourette's syndrome
http://tourettenowwhat.tripod.com/

[Lara]

TSA-USA: CHAPTERS IN THE U.S.A.
http://www.tsa-usa.org/Chapters/usachapters.html

TSA-USA: INTERNATIONAL CONTACTS
http://www.tsa-usa.org/Chapters/international.html

[n.b. some of the International Contacts they've listed don't have website links. I have those elsewhere though and will add them when I can, although I'm probably not going to be posting too often. Also if anyone needs anything in particular, please contact me because it's likely that if it was worth saving, then I have it.]

[Lara]

I wasn't sure exactly where to put this on the forum, but it's a very interesting article that some people who visit here might find useful reading.

782 Developmental Medicine & Child Neurology 2004, 46: 776–782

http://journals.cambridge.org/action/displayAbstract?fromPage=online&aid=255857
Full PDF available there to the right

Melatonin therapy for circadian rhythm sleep disorders in children with multiple
disabilities: what have we learned in the last decade?

James E Jan, Roger D Freeman

[firemonkey]

http://www.doaj.org/

[Lara]

These are just a few of the links on the first site above that Chemar has listed. Over the years I found them most helpful. It is a huge site so worth checking the *site map* for specific information.

Tourette Syndrome - Plus : Site Map and Search (http://www.tourettesyndrome.net/sitemap.htm)

Primer on Tourette's Syndrome (http://www.tourettesyndrome.net/tourette_primer.htm)

Chart of Common Tics (PDF) (http://www.tourettesyndrome.net/Files/CommonTics.PDF)
"Note: This list is not all-inclusive. Furthermore, any behavior or symptom may have alternative explanations in a child who has TS and other diagnoses such as Obsessive-Compulsive Disorder and/or Attention Deficit Hyperactivity Disorder. Differentially diagnosing any one symptom cannot be made without further study or information. Teachers or school personnel should contact the child's parents and treating professionals for assistance and guidance." [quoting Leslie Packer]

Tips on Dealing with Tics in the Classroom (PDF) (http://www.tourettesyndrome.net/Files/tips_tourette2003.PDF)

same in Spanish below...

Consejos para manejar los tic en el aula (PDF) (http://www.tourettesyndrome.net/Files/Consejos_tic_en_el_aula%20.pdf)

Education: Articles and Files that apply to a number of conditions (http://www.tourettesyndrome.net/education.htm)

Glossary and Guide to Acronyms and Clinical Terms (PDF) (http://www.tourettesyndrome.net/Files/glossary.pdf)

Alternative or Complementary Therapies Sites (http://www.tourettesyndrome.net/treatment_alternatives.htm)

[Lara]

PANDAS = Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections.

NIMH - General Information and Frequently Asked Questions: PANDAS http://intramural.nimh.nih.gov/pdn/web.htm

PANDAS information from Tourette Syndrome "Plus" - http://www.tourettesyndrome.net/pandas_overview.htm

[Chemar]

This book by Sheila Rogers is a very comprehensive overview of natural treatments for tics and Tourette Syndrome.

http://www.latitudes.org/book.html

[Lara]

HEALTH INSURANCE
TSA Resources

Unfortunately, many people with TS are experiencing difficulty in obtaining health insurance, or appropriate reimbursement for the TS related health care they receive under their existing insurance plans. TSA is addressing this issue on the National level by monitoring health insurance legislation and lobbying for changes in the law to ensure that people with TS gain better access to health insurance coverage.

More information about Health Insurance difficulties at TSA-USA below...

http://www.tsa-usa.org/Medical/healthinsurance.html

[Lara]

Stuttering and Tourette's Syndrome
Stuttering Foundation of America (http://www.stutteringhelp.org/Default.aspx?tabid=440)

[Lara]

[Newly Diagnosed - from TSA-USA (http://www.tsa-usa.org/People/diagnosed/newly_diagnosed.html[/url)

VIDEO - NEWLY DIAGNOSED TOURETTE SYNDROME
Dr. John T. Walkup

[Lara]

A book to borrow from a library perhaps...

Advances in Neurology
Volume 99 : Tourette Syndrome
Walkup, Mink and Hollenbeck

from google books (http://books.google.com.au/books?id=hhE74A1fTQkC&dq=Tourette+Syndrome+and+sensory+issues&printsec=frontcover&source=in&hl=en&ei=zZb6SYvODpySswPFg4XfAQ&sa=X&oi=book_result&ct=result&resnum=11#PPR7,M1)

If you scroll down from the cover it gives a list of contents ... just shows what is in the book for further reading if you wish to borrow it.

[Chemar]

excellent resource website for P.A.N.D.A.S. (Pediatric Autoimmune Illness Associated with Streptococci)

http://www.pandasnetwork.org/index.html