I too have a Tarlov Cyst

[AcheyBreakyNecky]

This is so exciting to find others with the same,,,,,,,,Among other spine issues, I have a Tarlov Cyst at the S2, Three surgeons I have been to say this is NOT the cause of pain, and that Tarlov Cyst do not cause problems, they are just incidental findings. I had one neorologist say yes they can cause issues, and wrote me scripts for nerve pain meds, which help somewhat. I look forward to reading many post here, and please forgive me if I ask too many questions, or if I ask questions that have been asnwered as I am new here, and still finding my way about, and how to use this site.

[AcheyBreakyNecky]

I just wanted to add here, that I suffer from burning sensations on my buttocks, and now have a new symptom, pain in hips, and am getting very frusterated and at a loss of what to do. Seems most doctors don't even want to talk about a Tarlov Cyst, as soon as you say you have one, they say, ya, and that is not asymptomatic, grrrrr, but can't tell you why you are in pain, or burning,,,, Please, anyone in Boston area with a doc who is helping them, let me know.

Also, I would like to know what ppl are taking for the burning, I have lidocaine patches, nortriplyne and gabapentin, but I still have burning, though not as bad, it still there, interferring with my life, it hard when all you can feel is BURNING. Any ideas, sugestions greatly appreciated.

[GAIL REEVE]

I just wanted to add here, that I suffer from burning sensations on my buttocks, and now have a new symptom, pain in hips, and am getting very frusterated and at a loss of what to do. Seems most doctors don't even want to talk about a Tarlov Cyst, as soon as you say you have one, they say, ya, and that is not asymptomatic, grrrrr, but can't tell you why you are in pain, or burning,,,, Please, anyone in Boston area with a doc who is helping them, let me know.

Also, I would like to know what ppl are taking for the burning, I have lidocaine patches, nortriplyne and gabapentin, but I still have burning, though not as bad, it still there, interferring with my life, it hard when all you can feel is BURNING. Any ideas, sugestions greatly appreciated.

There has been a lot of time since you posted this, but I am going to the Lahey Clinic in Burlington, MA to see Dr. Tarlov, grandson to the original Dr. Tarlov. My appointment is scheduled for July 20, 2009. Hope he can help me. Gail

[gongshow22]

COLOR]There has been a lot of time since you posted this, but I am going to the Lahey Clinic in Burlington, MA to see Dr. Tarlov, grandson to the original Dr. Tarlov. My appointment is scheduled for July 20, 2009. Hope he can help me. Gail


How did you make out there? I just had my Tarlov Cyst aspirated and filled with fibrin glue, but I'm in a LOT more pain. :mad: