Metadiscussin about: "A Question About Enterolab"

[NancyM]

Cara, just wanted to applaud you for your patience and persistence. You go girl!

[jccgf]

Well, now you've blown my cover for "boarding around". It was a little slow here for a while, and I...um...was just peeking...really.

Cara

[NancyM]

I'm sure with the name of IMResident he must be an Internal Medicine resident. Or plays one on TV.

I think his point with his story of his Mom is that he thinks people will assume their problem is gluten sensitivity and not keep looking for other answers. But when you're a patient and you can't get a doctor to take you seriously you've got to look for your own answers. I can't tell you how many stories I hear of people with extremely severe disease who find their own diagnosis because doctors leap to the antidepressants or labeling the patient as nuts.

[aklap]

Yeah yeah Cara... You little board tramp you... LOL!!!

I had seen your posts over there recently.

I just happened to read this particular post today! I was going to PM you about it, but now I don't have to :). It was a very interesting conversation. I may need to go back and read it in depth to get the full effect.

[aklap]

I think his point with his story of his Mom is that he thinks people will assume their problem is gluten sensitivity and not keep looking for other answers.
Yeah, well if the docs would come up with the right answers in the 1st place we wouldn't be forced to continue to look and research every thing ourselves.

[jccgf]

I do think he makes a valid point that not everything in the world is cured by a gluten free diet. I think patients do have to recognize that if their symptoms don't resolve during a dietary trial, or if bothersome symptoms remain... that they have to keep on looking, keep on trying new doctors, etc., and perhaps sometimes give the medications a try... even if they aren't sure they want to. This could have happened to his mother had she been diagnosed with biopsy proven celiac disease...she may have gone on to require additional treatment for depression.

I'd love to hear this story from his mother's perspective.

Cara

[NancyM]

I'd love to hear this story from his mother's perspective.


I would too!

[annelb]

I will have to go back and reread this tomorrow when I am more awake.

Anne

[diamondheart]

Cara, just wanted to applaud you for schooling that Resident. :) I bet it really makes him mad. You know how doctors love to absorb new information from non-doctors. *cough*

It took me a while to find the thread. If the guy isn't open to the information, why not let it go? It's like that saying, "minds are like parachutes - they only work when they are open".

I'm not taking sides here, but I'll say that one of the things that impressed me about the GS/CD BrainTalk was how nice people were to each other. I know that I wouldn't want other people gossiping about me on other forums, and I like to treat people the same way I want to be treated.

Claire

[jccgf]

Point well taken.

What's the saying???

What happen's at Las Vegas (enter forum name), stays at (enter forum name).

Not to mention, it probably leaves others a bit confused~ who aren't boarding around.

[Hanna]

Please realise and not forget that we can solve so many of our problems with drugs. I haven't read the other forum but there are two sides to the coin "chemicals and feeling good". For those of you who know my story, the end result is the same. 2 versus 25

[NancyM]

With so many of our chronic diseases, depression included, I just have to think there's something underlying it all. Personally, I think we're eating a diet we're not really evolved to eat. Whenever you look at the primitive societies that don't eat a lot of agricultural products they're not dying of the diseases we have.

[mle_ii]

With so many of our chronic diseases, depression included, I just have to think there's something underlying it all. Personally, I think we're eating a diet we're not really evolved to eat. Whenever you look at the primitive societies that don't eat a lot of agricultural products they're not dying of the diseases we have.

Agreed, wheat especially. At every turn I'm learning something else about this grain that is not good for our bodies.

[NancyM]

Wow, Matilda seems to be a Cara clone! Very knowledgable.

(I'm going back and reading the older posts in that thread I missed.)

[Leslieand]

Ok, I give up. Can't find the thread. Directions anyone? I want to wh---Board around.
Leslie

[mle_ii]

Ok, I give up. Can't find the thread. Directions anyone? I want to wh---Board around.
Leslie

Hope it's ok to post a link.

Here it is:
http://www.glutenfreeforum.com/index.php?showtopic=23511&hl=

[RathyKay]

Ok, I give up. Can't find the thread. Directions anyone? I want to wh---Board around.
Leslie
Yeah, me too. Mom... they're trying to ditch me again.

Editted to Add: Cross-post with mle_ii

[mle_ii]

This was also a good discussion:
http://www.glutenfreeforum.com/index.php?showtopic=23411&hl=

[NancyM]

Sorry, I should have posted the link. I didn't mean anyone to be left out!

[concerned lady]

Hi Cara,

Oh boy! You can lead a horse to water...

I bet the resident guy in that other (Celiac Disease) forum, has not yet read Dr. Fine's article, "Before the Villi are gone", and, at this time, it sure seems like he has his mind firmly made up (without reading what Dr. Fine has written) to be against Dr. Fine's EnteroLab testing, perhaps for his own psychological needs.

This reminds me of a conversation I once had with an oncologist (cancer doc), who was convinced that eating a MacDonald's diet, was a healthy diet (!). He told me that he didn't want to know about anything that could cause cancer, if it wasn't in his medical books, because he just didn't want to change his outlook.

A lack of being open to new ideas, is one of the downfalls of our medical system.

When I first made my website about VCD (vocal cord dysfunction), I was also looking at the condition in a very narrow light. It was annoying to have to open my mind--it would take so much effort and work. Luckily, it was more frustrating to NOT look at a broader view of VCD. So, I gave in, and expanded my mind. As a result, my website grew.

Now, I'm getting more and more people telling me that they finally stopped having VCD attacks, ONLY when they stopped eating gluten, casein, corn, etc.!

How did I find out about gluten? First, from an old friend of my hubby's, who had Celiac Disease, finally diagnosed by his getting better from avoiding gluten (his old doc said just avoid gluten, and see what happens). The doc was of Scottish ancestry, and I suspect he may have known about Celiac Disease, from his own personal experience.

Then, when I started to get symptoms of Thoracic Outlet Syndrome, from bad ergonomics while working on creating my VCD website (!), I found the TOS forum on braintalk.org

Then, on the TOS forum, I was led to the PN/peripheral neuropathy forum, also at braintalk.org

Then, I met Cara on the PN forum, and that got me back into thinking about gluten.

Then, my hubby and I got tested by EnteroLab. He came out positive, and I came out negative. So, we both go gluten-free. And, I added info about gluten sensitivity to my VCD website.

Hey, is braintalk ever coming back?

Carol
http://cantbreathesuspectvcd.com

[aklap]

Well, now you've blown my cover for "boarding around". It was a little slow here for a while, and I...um...was just peeking...really.

Cara
Hehehee It's OK Cara, no one thinks less of you [some might even think MORE of you]. I would venture to guess that a good percentage of people look at other boards and several of those participate on them.

Bottom line is that you are helping people. It doesn't matter that they are not from BT [of any version].

Think of it this way...you are just expanding the circle of the TGF & BTx. ;)

Keep up the good work - where proper gluten info is needed!!

[jccgf]

Hi Carol,

Nice to see you. Will Braintalk ever be back? Million dollar question, and I don't know the answer. I keep hearing little snippets that it is being worked on. I guess until I hear a definitive "no, it won't be coming back", I won't discount the possibiity of its return.

It is amazing how things can be connected, isn't it? And sometimes it also seems "the more I know the less I know".

Cara