poll re: trial participation

[jeanb]

Given the thread on clinical trial participation, I thought it would be interesting to have a (an unscientific) poll for the pwp on NT.

Curious will delete these polls if they are unsatisfactory - please post if you have questions you'd like polled, and we will redo!

[girija]

How about including new participants: Would you volunteer for clinical studies?
Do you require transportation?
Or something like that.
I am curious to see if all these discussions are motivating PWPs to participate in clinical trials. I just enrolled in one!

Girija

Given the thread on clinical trial participation, I thought it would be interesting to have a (an unscientific) poll for the pwp on NT.

Curious will delete these polls if they are unsatisfactory - please post if you have questions you'd like polled, and we will redo!

[Debi Brooks]

Some years ago, we funded a survey to better understand this issue since we frequently were told that patient recruitment was a challenge...the two most compelling inputs for patients who participated (according to our survey) were:

My physician recommended it to me.

I spoke with someone else who had a positive experience in clinical trials.

Both of these responses offer some great ideas and illuminate some challenges...but, thought folks would like to know about the survey responses.

Debi

[indigogo]

I would argue that those top responses to the MJFF survey indicate that in order to take part in a trial, PD patients need outside support for their choice, whether it be from their doctor or from the community.

Just thinking out loud here; my contention is that with the right motivation and support, clinical trials participation would increase.

How do we promote the most effective motivation; provide the proper and best support?

It's a good conversation.

[Curious]

bump.......