Looking for Info on Myoclonus

[Memphis]

My son has been diagnosed with Myoclonus at UCLA. It is still undetermined which one, should find out next month. I am new at this and do not know what to expect. I could use any info or advice possible.
Thank you

[Koala77]

Hi there Memphis, and welcome to NeuroTalk.

I did a quick search for you, for posts made about myoclonus here on NT and here's what I came up with:

http://neurotalk.psychcentral.com/search.php?searchid=1338246&photoplog_searchinfo=1&photoplog_searchquery=Myoclonus

[ali12]

Hello Memphis and Welcome to Neurotalk!

I'm sorry to hear about everything that your son is dealing with right now!:hug: I hope you can find something soon to ease his spasms and pain and will keep you both in my thoughts!!

I also suffer from Myoclonic Spasms although mine are as a result of another condition (Complex Regional Pain Syndrome). My leg bounces in the air on it's own uncontrolably and can be very painful and embarrassing - especially when I am out in public and it starts happening as people often tend to stare at it.

Has your son tried any muscle relaxants or anything yet? I was put on quite a few muscle relaxants such as Baclofen, Diazepam, Kenadrin but haven't found anything that helps really at the moment.

Here is a video of the spasms I have in my leg:
http://www.youtube.com/watch?v=xIXakErNBpE

Take care and please send your son my best wishes. If you ever need anyone to talk to, please know that I am here for you because I understand some of what you are going through!!

Alison.