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View Full Version : Now I have seen liver failure myself :(




gambles
12-17-2006, 01:53 AM
I thought I would post a new thread to make sure that everyone who was so incredibly supportive and gave me great advice, words of encouragement, and strength would see it.

Greg turned bright yellow on 12/7 (a week ago Thurs) From that point he deteriorated dramatically every time he woke up. My back held out until Sun around 5 AM when I ended up on the hall floor. Miraculously I was able to head off every migraine before they got out of control. I spent that Monday in bed, nearly hysterical because I couldn't get in to Greg. His sister and Brother in law were with him, but it was really tough emotionally. He was completely nonreponsive that day. He spoke his last words the night before - "I love you to me", which was very difficult to get out, and "cool" when I told him his San Diego Chargers had won their game that day.

We only got one hospice shift because the nurse I waited up for all Sunday night (the 3rd one they sent since I signed him up the previous Friday) said his vitals were strong and he didn't qualify for continuous care. :mad: In actuality he was in respiratory distress and in very bad shape, but that is another story.

Hospice did send out a social worker for me Monday who didn't leave until she had ordered all the equipment we needed and gotten him approved for constant care. The first shift started at 8 PM Monday night. By 10:30 PM when I was trying yet again to hobble out to see him, she was on her way back to get me. His pulse was dropping rapidly. When I got to his bedside, his heart rate went right back up and stayed up for another 6 hours!! The nurse was in total shock. He never went into a coma. There was one time he opened one eye, and I could see the sparkle in his eye and knew beyond a shadow of a doubt that he could hear me.:)

As hard as I tried to help him let go, he never gave up. I couldn't even tell him the nurses were from hospice as he knew that meant no more attempts at chemo! Other than the one idiot nurse, hospice was wonderful - especially the social worker and the nurse on that one shift. They were outright angels.

I can never tell you all how much your responses to my other thread helped me. Once I posted that, the feeling of being totally alone and not having a clue what to expect eased up tremendously. I only hope that my replies on future threads are helpful to people also.

Greg is finally at peace. Now I have to work on finding some for myself until the day I get to go join him again. Most of the time it seems easier to stick my head in the sand and pretend this didn't really happen. I am very blessed to have had such an incredible husband.

Suzanne




Wittesea
12-17-2006, 11:25 AM
(((((((((((((((((((Suzanne))))))))))))))))))

You have my sincere condolences, and I hope you are able to find peace and strength during this difficult time.

I hope you are able to carry the good memories in your mind, and know that Greg will always be with you in your heart.

Take care of you,
Liz

lady_express_44
12-17-2006, 11:54 AM
Suzanne,

I am sorry to hear of your husband's passing.

Greg is blessed to have had the love/support you gave to him, both during his life & in his passing.

May he now rest in peace.

Cherie

Chemar
12-17-2006, 12:18 PM
Dear Suzanne
my deepest condolences to you.

I am so glad that you found support and comfort here during the difficult time of Greg's illness, and that you can find that same care here now in your sorrow.

Cheri

http://www.jproscenium.org/ecards/sympathy_flowers_card.jpg

dadsgirl
12-17-2006, 01:17 PM
Dear Suzanne ~

I am so very sorry for your loss ~ please know you will be in my heart, thoughts and prayers ~

Love,
Sue

janster
12-17-2006, 03:56 PM
Dear Suzanne~

http://i41.photobucket.com/albums/e274/janster46/ComfortSympathy/Sympathy.gif

I lost my first husband.
You will forever carry Greg in your heart.
Sending healing prayers.
Love,
Jan

nancy-h
12-17-2006, 08:33 PM
Suzanne,

You have my deepest sympathy. You are an incredibly strong person and it sounds like you were something very special to your husband.

Take care,
nancy-h

simby
12-17-2006, 09:50 PM
(((((((((((((((((((((suzanne))))))))))))))))))

hugs,
sims

Curious
12-17-2006, 11:52 PM
dear suzanne,

my deepest sympathy.

(((hugs)))

Curious

Idealist
12-18-2006, 12:08 AM
(((((Suzanne)))))

My deepest and most heartfelt sympathy goes out to you. You sound like such a wonderful and courageous person. I wish you all the best that this world has to provide.

Idealist

DiMarie
12-19-2006, 12:46 PM
Dearest Suzanne,
I had hoped that in your family's case the end was not so soon. I was praying that things would calm down and the liver stabilize better.

With my Dad when he was so terrible yellow in the ER I knew he would not be home, he went downhill fast. We had from the previous July 2000 Until Easter 2001 to do so much and share every moment of every day in a good way with Dad. We had hospice from Jan. until April, the nurses we had were twice a week until his admission, and they became friends with Dad.

I took care of Dad until his admission into the VA although I had been in a car accident, I had no support from the siblings, just Dad's brother, and my husband.
I was so full of family in my home, but felt so heartbroken.

The holiday's are going to be tough, it does get a little easier each year, but never goes away, the love and missing them is always there.
I wish so much I could just share another day with Dad....
My prayers are with you, Please keep posting,
Dianne

LindaM
12-23-2006, 08:07 PM
Suzanne, I'm so sorry to have not seen this sooner.
Please know that you are in my thoughts and prayers.
I know it helps to know that Greg is at last free of pain and at peace, though the grief of your loss is still strong, please know that you have made so very good friends here and that we will be here for you when you need us.Please continue to post and let us know how you are when your up to it.
I'm glad to hear that hospice was there for you when you needed them, they were such a God send to us.
Many gentle hugs,
Linda

gambles
01-31-2007, 04:54 PM
Immediately after that post, my computer broke down. When I finally tried to get it fixed or at least save the bookmarks, I had no luck. My mother finally gave me her computer as she is still sleeping on my couch every night. I've been back online for almost 2 weeks, but I couldn't FINDTHIS WEBSITE!!! I was so frustrated.

Then today by some miracle I found it again. Thanks again to all of you who were there. Your posts help a lot. As a shut in, I am very isolated. I'm still waiting to turn the corner from when happy memories cause searing pain to when I can rejoice in the time we had together. Today is one of my worst days yet. I can't get the very end out of my head.

Anyway, hopefully now that I have found this site again, I will have something of value to offer to others.

Sincerely,
Suzanne

Curious
01-31-2007, 05:32 PM
:hug:

so glad you found us again. we have been worried about you.

LindaM
01-31-2007, 06:52 PM
gambles, I'm so glad you were able to find the site again, it helps so much to have support at times like this..
Linda

DiMarie
01-31-2007, 09:24 PM
Susann,
I am so glad that you found the forum. There is a wonderful group of supportive people from so many walks of life.

Since you posted I had a tremendous loss, my young daughter DeAnne, a chronic pain patient suffering from thoracic outlet syndrome passed away. My friends on the forum are carrying me through with their love, prayers and support.

I am so glad you found us, and I hope that we also can find strength to travel on and keep our loved ones close to us. I wrote you of the last year my daughters liver failure, she also had a horrendous bacterial infection in her arm that was flesh eating. She ahd nearly lost her arm and life then.

But, more recently the added pain of not only body but struggles of the mind trying to carry the load began taking its toll. She never really recovered emotionally the life's battles of the last year along with her injury pain.

She was hospitalized for a period and the unit felt she was stabilized, but she could not manage her emotions and it was terrible waiting until after the weekend for her to see a councilor again. She had battles going on in her head and physical pain in her body and soul.
Her body was failing from the injury battle of pain, it took its toll n her mind, then just used up her soul….She could not find herself back from a place she was drifting and pleaded for mental health help….Treat them and release them on tons of meds who knows what is going to interact with each other.Too many medications took her from me...

New medications, increased medications and the addition of increase dosages caused her to stop breathing. I also ahv guilt as I left the mornings medication dosw with her that night after bedtime. I wonder did she wake up and take it too early?

I miss her, ache to hold her, braid her hair even just to drive o an appointment again. I saw my niece outside the other day and it looked so much like my daughter I just pretended for a while it was my lovely daughter.

He middle cat Dahlia, is so sweet, she is a bit, a lot shy, but she loves me,. The other night it was tough, I sleep in the recliner....the sweet kitty crawled up on my chest and lay with her paws crossed at my chest. I loved her, then she took her paw reached out and held my face at the side of my mouth and cheek....Can I hold the thought that my daughter was a part of that gentle touch...

We have to go on Susann, it hurts we miss them, we are blessed with friends and family.
My hugs are with you and my hand wipes your tears too as I do mine....
Love Dianne

PS. Wonderful friends and Doc John have dedicated the thoracic outlet forum to the memory of my daughter DeAnne. I will always have her with me even here on the forum.
keep us book marked and stay close.

http://www.legacy.com/timesleader/Obituaries.asp?Page=LifeStory&PersonID=86128144