View Full Version : no no no no no please no
12-21-2006, 12:31 PM
In Feb I had that terrible surgery removing the diffuse oligodendroglioma tumor and a bit of my hippocampus which had been causing my seizures since 1990 and I hadn't had a seizure since then. Wow. Lucky me. In August the epi told me to drive again!
Nine months with no seizures -- nine months.
Nov. 25 I had a partial complex sz but what's one sz, huh? I tried desperately to just ignore it. I did stop driving.
This morning I've had THREE seizures. What's going on? Why? What's happening? Why?
I phoned the neuro surgeon office and I'm waiting - fat chance - for someone to call back. My next appointment there is Jan 22. I have a fuzzy memory of him saying that if I had more sz I would need more hippocampus removed. OMG - more surgery ?!?
12-21-2006, 12:42 PM
awwww sweety hang tight. they will call.
i'm praying for you. please try and rest. i know how very very scared you are. i am here for you. always just a pm away.
12-21-2006, 12:58 PM
Jingle I am sending all the positive thoughts I can muster in your direction..and am sprinkling them with a prayer or two. Please stay in touch and let us know what the dr. says. (((Jingle)))
12-21-2006, 01:28 PM
Thank you Alffe and Curious. Bless your kind hearts. --
I'm wallowing in self pity ~sigh~ I'll try to get passed that.
12-21-2006, 01:46 PM
Dear lady, you are not wallowing in self pity....it's scary s***!!
Big hugs...we are here for you.
12-21-2006, 01:55 PM
well....if it is pity...then we can have a pity party. i bet alffe has extra wedding cookies. ;) i have fudge...
but really jingle...we will give you the support and comfort friends can. we were there for you before the surgery. we will be here for you now. just like you always are for us.
12-21-2006, 01:56 PM
I am so sorry to hear this and just want you to know I am praying for you too.
(((very gentle hugs)))
12-21-2006, 02:18 PM
Oh Jingle Sweetie, I'm sooo sorry. I will keep you in my prayers.
(((Gentle healing hugs)))
12-21-2006, 05:47 PM
My prayers are with you. I also had 2 surgeries and then after going 4 yrs. with my sz. reduced I started having many more sz. for no reason. I spoke with both my epi and neurosurgeon and I was told the reason why I began to have more sz. again was because I was under to much stress and I was going through my change which could either increase or decrease my sz.
I wish you only the best of luck and May God Bless You!
12-21-2006, 07:29 PM
I thank God for all your kindness -- bless your hearts.
I wrote way too much stuff ------- oh, how I got carried away.
I talked to a string of people at the hospital and they're not concerned at me. I'm just fine.
I am increasing Topamax, going back on Trileptal and they want me to have Lorazepam on hand so they are having some delivered tomorrow.
They'll just do extra stuff during my regular MRI scheduled in Jan.
12-21-2006, 07:37 PM
good! i'm glad you got a hold of somebody who help. :) hopefully the extra meds will be the key.
12-21-2006, 08:14 PM
I hope that the extra meds do the trick. I will keep you in my thoughts and prayers.
12-22-2006, 04:54 PM
I wish you the best of luck with the increase of topamax. I pray that your sz. stop forever. Here's wishing you only the best and May God Bless You!
Jingle,my prayers are with you that your meds with work and you will
have a sz free life .
Wishing you a Merry Christmas and a Happy Healthy New Year
Thinking of you jingle.
12-23-2006, 05:00 AM
I just had to come in and remind you of how much you are loved around here.
I'm glad your drs. are responsive and am hoping this new dosage will be the answer.
I also wanted to wish you a Merry Christmas!
12-23-2006, 07:24 AM
:Blush2: thank you
Hearing such nice words has made this easier. Again - bless your lovely hearts.
12-23-2006, 11:20 AM
Bless you right back you sweet thing!
12-23-2006, 10:36 PM
How scary for you, I know this feeling. I've had only a handful of seizures since my surgery (4 1/2 years ago) and they still freak me out. I'm praying for you. Think positive, miracles happen every day - we're here, right?
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