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RSDLynnie
08-21-2009, 09:03 PM
My pain specialist/vascular physician is recommending PRP. Anyone familiar with or been treated using PRP? Did insurance cover. He states the goal is 80% improvement in pain. Know it's being used for some sports injuries but haven't had time to really investigate. If insurance won't cover would be moot.

Haven't participated in this forum for a while. Actually had good summer until the last 4 weeks. Got up, drove to work, and worked for couple of hours before pain really set in. Now back to pain upon getting up and getting nervous about the coming winter. I've made it 5 years with RSD since my accident and goal is 5 1/2 more years to retire. But it gets harder particularly as my memory seems to shrink daily. Hope everyone is having some peace in pain and doing okay.

Lynnie




CRPSbe
08-22-2009, 10:21 AM
I've never heard of it as a treatment for sports injuries, let alone of it being a treatment for RSD.

I'm very curious as to what the outcome would be... and what the reasoning behind it is, and why it would be good for RSD.

firegirl
08-22-2009, 10:51 AM
Are you talking about Dr. Schwartz?? I heard him speaking about it at the RSD Conference this year. I talked to one lady that had it done & got worse, but everyone is different. Wish I knew more about it.

Dew58
08-22-2009, 12:00 PM
PRP - Platelet Rich Plasma Treatment..never heard of it. Sounds like it could be used to boost the immune system??? I hope you feel better soon.Welcome Back.
http://i44.tinypic.com/2w58shg.jpg

mrsD
08-26-2009, 05:25 AM
Here is a pretty interesting article explaining the process:

http://www.aaos.org/news/bulletin/sep07/research2.asp

How it would pertain to RSD? Haven't found that yet..still looking.

Jimking
08-26-2009, 03:43 PM
I found this.http://www.treatingpain.com/diagnosis-and-treatments/diagnosis.html
My wife went to this place who made her worse because they did absolutely nothing. And to add insult to injury they refused to sign her disability papers on top of that which caused her to lose her job.

Dew58
08-26-2009, 08:33 PM
Jimking,

I am so sorry this happened to your wife and you. I am confused why the doctor not signing the disability papers caused the loss of your wife's job?? Usually, it is when the disability papers are signed that the loss of job comes after.

Please share what the doctors dx. your wife with, and what treatment or tests did the doctors perform. The site you posted is a really slick advertisement page. I can see why you went to see them as the ad for the clinic is alluring and hopeful.

Again, I hope this gets resolved soon. I have missed seeing your posting, and letting us know how things are going.

Welcome Back:)

:grouphug:
Dew

Jimking
08-27-2009, 07:58 AM
Jimking,

I am so sorry this happened to your wife and you. I am confused why the doctor not signing the disability papers caused the loss of your wife's job?? Usually, it is when the disability papers are signed that the loss of job comes after.

Please share what the doctors dx. your wife with, and what treatment or tests did the doctors perform. The site you posted is a really slick advertisement page. I can see why you went to see them as the ad for the clinic is alluring and hopeful.

Again, I hope this gets resolved soon. I have missed seeing your posting, and letting us know how things are going.

Welcome Back:)

:grouphug:
Dew
Dew, my wife broke her wrist in 2002 and was diagnosed with RSD soon after. Through her work we had HMO coverage with a company who had full time representatives at her company working on the same floor both working in the benefits department. In 2003 she announced she was diagnosed with RSD to her employer. That is when things became much worse for her. The company increased her work load and discription and at the same time several doctors under this HMO refused or did very little to help her. Late 2005 I vigorously got involved with her in what doctors and treatment she should receive. I witnessed time and time again doctors refusing to lift a finger to help her. I was dumb founded and didn't understand what was going on. My wife knew the whole time what the problem was and said it was her employments relationship with the HMO that was causing the problem and it was to force her out of employment. Early 2006 my wife short term (6 months) disability was signed by a female doctor at the pain rehab link I posted earlier. She attempted to control Suzy's pain then the doctors where switched on her. The new doctor did little and refused to control her pain and precribed one Vicodin, the weakest form, per day. When Susy's short term was over her company required the doctor's signature to continue her on to long term disibility (two years). We went to doctor and he refused to sign the paper and walked out of the office. He spent 5 minutes with Suzy and never saw him again. He told Suzy's employer she was Ok and she should return to work in which Suzy couldn't. She was terminated.
Suzy was relieved because she knew with precession that her treatment would now improve. We picked up coverage from my work and with in a week we found a doctor who has taken good care of her these last 3 years.

Dew58
08-27-2009, 08:32 AM
That is good to know. Glad she is getting proper care.:)