http://neurotalk.psychcentral.com The place for social chat for our M.S. community. en Mon, 23 Nov 2009 12:25:31 GMT vBulletin 30 http://neurotalk.psychcentral.com/images/ca_evo2/misc/rss.jpg http://neurotalk.psychcentral.com http://neurotalk.psychcentral.com/showthread.php?t=108795&goto=newpost Mon, 23 Nov 2009 04:38:17 GMT OK so tomorrow is the big day... first Ty infusion... of course I cannot fall asleep. Been thinking about cutting my hair off and I finally did it!... OK so tomorrow is the big day... first Ty infusion... of course I cannot fall asleep. Been thinking about cutting my hair off and I finally did it! It's a little shorter than I wanted, but it'll grow in a couple of weeks...if the Ty doesn't make it fall out. ]]> The Stumble Inn legzzalot http://neurotalk.psychcentral.com/showthread.php?t=108795 http://neurotalk.psychcentral.com/showthread.php?t=108790&goto=newpost Mon, 23 Nov 2009 03:09:28 GMT I've got a construction project planned for December 2nd in my room. I'm having a desk and bookcase built into my wall. I have furniture that I have to move, and even tho I made the attempt to clean things up, it feels like I wont be able to get the room ready for the contractor.

I had two computer cabinets. I got one moved today. (I didnt move it!) I got my boyfriend and one of his roommates to come over and they wrestled it out of my room and got it upstairs for my dad to use.

My other desk is still in here, and wasnt ready for moving. Boyfriend wont be able to come over to move it either. He's working every day pretty much till after Xmas.

I hurt myself a week or two ago lifting something, and did some damage to my neck and am in some pain. I can barely do the cleaning that I need to do.

The new desk will be ready to be built on December 2nd. I have to get an electrician to move the outlets and prepare my wall above the desk for the flat screen tv I got for Xmas last year to be hung on the wall. I dont think I have time to get that done. Seeing as how I still have to get the other desk out of the way, along with my tv stand.

It wore me out this afternoon helping clean things up so that boyfriend could move the desk for me. (ok, I went shopping at Cabela's for 3hrs before the desk move, so my bad there) And boyfriend was pretty disgusted by the 5 or 6yrs of dust that had accumulated in and on that cabinet desk. At least the other desk isnt as bad. I was creeped out by all the dust too...it was all the same color as my dog that died 3yrs ago. I think most of it was dog hair.

There's still a dust bunny inside the cabinet desk we moved today that's the size of a small puppy, at least I'm hoping it was a dust bunny. If it's anything that used to actually be alive, I'm going to freak.

I'm just amazed at all the accumulated junk that I had to clean out of both my cabinet desks. It was like an archaelogical expedition. I'm exhausted now!

I'm tempted to just get a nice big sledgehammer to turn the 2nd desk into small pieces of particle board to get it out of the room. (I'd have to have someone else smash it for me tho)

At least now with the one desk out, I can kind of imagine what the built-in is going to look like in that space, and I'm realizing that I'll have a ton more space in my room to move around...and real practical storage. (cant wait for that bookcase!)

I just dont know where I'm going to get the energy to get the rest of my stuff moved. (also have to move a storage cabinet, because we're having a linen cabinet built in down here too.) I already injured myself in the early stages of cleaning, and that's not showing signs of healing anytime soon, and I think the injury set off another MS flare. (my right arm is starting to go numb, altho not as bad as my left hand and arm are right now)

Anyone else think that maybe I should schedule the construction for AFTER Christmastime?? ]]> The Stumble Inn Erin524 http://neurotalk.psychcentral.com/showthread.php?t=108790 http://neurotalk.psychcentral.com/showthread.php?t=108759&goto=newpost Sun, 22 Nov 2009 18:06:14 GMT I was looking through a box of old photographs this morning and happened to find a bunch of papers clipped together with an old rusty paperclip. How... I was looking through a box of old photographs this morning and happened to find a bunch of papers clipped together with an old rusty paperclip. How have I never seen this before now!!??

It was handwritten text by my mother (she died in 2005) to my oldest sister. She had written it back in 1987. It was just a series of memories and stories from her childhood and what she remembered about specific things during her life. It was amazing to read it! She talked about her parents, her life in Mississippi and her friends as a young child. She even talked about walking home from school for lunch!

I'm going to make copies of this and send one to my sister in case she's never seen this before. The original is going into a plastic bag. The copy will go into a folder. This is something I don't want to lose.

I feel like I've just had a conversation with my Mom. :) ]]> The Stumble Inn Kitty http://neurotalk.psychcentral.com/showthread.php?t=108759 http://neurotalk.psychcentral.com/showthread.php?t=108722&goto=newpost Sun, 22 Nov 2009 16:04:12 GMT Bill Cosby for President! Bill Cosby for President! ]]> The Stumble Inn braingonebad http://neurotalk.psychcentral.com/showthread.php?t=108722 http://neurotalk.psychcentral.com/showthread.php?t=108629&goto=newpost Sat, 21 Nov 2009 23:44:19 GMT I have LOTS of heirloom-type items that I've inherited from both sides of my family...nothing of much intrinsic value, but things like my grandmother's baby doll, a napkin holder my Grandpa made for me, a lamp my dad made, some portraits, souvenirs, etc. Most everything is "yard sale value", except for the memories.

It occurred to me that not only will my children and grandchild not remember the stories behind these things, someday I may not remember them myself. After I'm gone, a lot of things will be "junk" to them. It will be theirs to keep or dispose of as they wish, but I want them at least to know the stories before they decide.

God bless the person who invented the digital camera! I've been taking pictures of things, printing them out as a wallet size or 3X5 print on a full-size sheet of white paper, and then writing the information on the paper next to the picture.

I'm filing these in my "After I Croak" file for my daughter. Some of them I've noted who should get a certain thing...my son the old pump organ, my daughter the marble top table, my granddaughter my mother's little red chair, etc. The rest they can draw straws or duke it out, whatever. But at least they'll know what's what. ]]> The Stumble Inn Blessings2You http://neurotalk.psychcentral.com/showthread.php?t=108629 http://neurotalk.psychcentral.com/showthread.php?t=108583&goto=newpost Sat, 21 Nov 2009 02:49:54 GMT Wow~~*sputter, cough*

*yanking gag outta mouth*

I'm freeeeeee! I finally broke out! AMN has had me locked up in her basement for weeks and wouldn't let me communicate w/the outside world at all.

It's been just awful, I tell ya. Oh, once in a while she'd toss me a crumb of bread, but I finally out smarted her, spiked her Joe w/some Crown and broke out. I kept asking her how everyone here was doing, but she would just sneer at me in her own evil way and cackle. It was ugly, I tell ya!!!!


So, I thought I'd check in real quick and say Hi to everyone. (looking over shoulder)




]]> The Stumble Inn DM http://neurotalk.psychcentral.com/showthread.php?t=108583 http://neurotalk.psychcentral.com/showthread.php?t=108566&goto=newpost Sat, 21 Nov 2009 01:17:07 GMT I was sent this website in an e-mail. I took a look and it was legitimate. And free to send a postcard. So easy and it would mean so much to a... I was sent this website in an e-mail. I took a look and it was legitimate.

And free to send a postcard.

So easy and it would mean so much to a man or woman in the military.

www.LetsSayThanks.com

Appropriate for Thanksgiving, don't you think? ]]> The Stumble Inn Aarcyn http://neurotalk.psychcentral.com/showthread.php?t=108566 http://neurotalk.psychcentral.com/showthread.php?t=108552&goto=newpost Fri, 20 Nov 2009 20:31:19 GMT This isn't a whine...or maybe it is, I don't know.

I was just wondering if I'll EVER get my mind around the concept of having a shorter day than most of the rest of the world? I'm talking about "usable" hours.

It takes me an hour or two to pull it together physically in the morning, between MS and arthritis mostly, and then I have anywhere from three to five "good" hours (relatively speaking) before things start going downhill.

Somewhere along the line I started thinking of 3 p.m. as the end of the day, even though I'm still technically up for another five or six hours. By 5:00, I'm circling the drain.

Even though I made/make the conscious choice to accept life as it is and adapt to it as graciously as I can, almost every day I catch myself thinking, "What? I'm STILL broken??" ]]> The Stumble Inn Blessings2You http://neurotalk.psychcentral.com/showthread.php?t=108552 http://neurotalk.psychcentral.com/showthread.php?t=108548&goto=newpost Fri, 20 Nov 2009 19:46:02 GMT Someone pointed this out to me on another site and I find it very interesting. :Dunno: Three years ago was the Chinese calendar’s *Year of the... Someone pointed this out to me on another site and I find it very interesting. :Dunno:

Three years ago was the Chinese calendar’s Year of the Cow, & we had…Mad Cow Disease.

Two years ago was the Chinese calendar’s Year of the Bird, & we had…Avian Flu.

This year is the Chinese calendar’s Year of the Pig, & we have…Swine Flu.

And next year… Well, next year is the Year of the Cock… ]]> The Stumble Inn karousel http://neurotalk.psychcentral.com/showthread.php?t=108548 http://neurotalk.psychcentral.com/showthread.php?t=108544&goto=newpost Fri, 20 Nov 2009 19:34:26 GMT I'm having some difficulty with some abbreviations here. I;ve just let it ride, thinking it would eventually come to me, but my assumptions just aren;t right, so maybe one of you guys would help me out?

Whats "DH" I get that it's "Husband" but what's the D for? Dopey? Dear? Devoted? Disabled?

Same with DD or DS? Second D is daughter, the S is son, but what's the first D for?

I know there are some others, but I can't think of any or find any examples right now.

Thanks for your usual help. ]]> The Stumble Inn Catch http://neurotalk.psychcentral.com/showthread.php?t=108544 http://neurotalk.psychcentral.com/showthread.php?t=108529&goto=newpost Fri, 20 Nov 2009 15:25:46 GMT For anyone interested. CSPAN is covering the U.S. Senate debate to vote to debate Healthcare reform. So if you want to listen to Senators and the... For anyone interested. CSPAN is covering the U.S. Senate debate to vote to debate Healthcare reform.

So if you want to listen to Senators and the information of their states and positions pro/con, here is your chance.

It is interesting. No spin from any particular news source that influences you. And GOOD information too.:)

History and as Walter Cronkite would say, "You were There." ]]> The Stumble Inn Aarcyn http://neurotalk.psychcentral.com/showthread.php?t=108529 http://neurotalk.psychcentral.com/showthread.php?t=108457&goto=newpost Thu, 19 Nov 2009 19:03:46 GMT We saw Arnold's oncologist today. After a stress test to make sure his heart is functioning normally, December 2 they will start him on a month-long protocol of four hormone shots a week. It doesn't work for many people but his doctor wanted to try this first because if it does work, it will completely destroy the cancer. If it doesn't work, he'll have to begin chemotherapy.

Side effects from the shots are fever and flu-like symptoms.

I have a very good feeling about these shots, and I believe they are going to work for him and destroy the cancer.
]]> The Stumble Inn azoyizes http://neurotalk.psychcentral.com/showthread.php?t=108457 http://neurotalk.psychcentral.com/showthread.php?t=108395&goto=newpost Thu, 19 Nov 2009 06:03:43 GMT A little while ago, my husband told me that he kind of had words with his mom earlier tonight. All because of me. :(

I've been in a relapse since beginning of October. We live 1.5 hours away from our family, so they haven't seen me and didn't realize how bad it's been. I tend to downplay things b/c I don't like to worry them. I was on the phone with my mother-in-law Sunday afternoon, and she told me she hoped I felt better and was able to come home for Thanksgiving. I agreed, and then she made the statement, "I would hate for you to be at home alone for Thanksgiving." :eek: Yes, she actually said that like she believes my husband would take our daughter and go out of town while I'm at home going through a relapse. I was in shock b/c that was so unlike her. I never mentioned it to my husband.

Well, tonight my husband had to run to town to pick up something for a pie he was making for work tomorrow, and they were talking on the phone. She started talking about Thanksgiving. We're going to her sister's house. She made the statement that if I needed to lay down in their bed, they (meaning her family) wouldn't mind. :eek: My husband told her that she didn't understand...she interrupted, saying she did...he said he raised his voice to her and told her no, she didn't understand(proud of him!!) and explained how bad it's been. Then he told her that even if I felt like being in a car for an hour and a half, that when I felt so bad, I can't handle being around a lot of people, the noise, and just didn't have the energy to do it. She then proceeded to say that if I didn't feel like going to her sister's for lunch, I could stay at her (MIL's) house while my husband, daughter, and MIL went, and everyone would understand. He didn't like or agree with that, told her so and told her that he would never ask me to do that and didn't think it was right to leave me alone.

I know people who don't have MS don't "get it", and I know they don't. It just hurts me. I guess I just needed to say it to people I know would "get it".

Thanks for listening. If anyone reads this, I hope it make sense. When I feel so crappy, I'm not always sure if what I'm saying is coming across the way I mean for it to.
jenn ]]> The Stumble Inn jowen214 http://neurotalk.psychcentral.com/showthread.php?t=108395 http://neurotalk.psychcentral.com/showthread.php?t=108387&goto=newpost Thu, 19 Nov 2009 05:33:48 GMT I've been watching the news the past couple of days, and there's been a couple of stories about some people who died from H1N1. These people were, according to the news story, perfectly healthy...other than weighing more than recommended. (tried to say that delicately. I'm a big girl, not huge, but yeah, I'd be considered to be more than "extra large"...actually, I'd probably be a 3x large, at least that's my tshirt size)

http://www.kmtv.com/global/story.asp?s=11533077

http://www.ketv.com/news/21657068/detail.html

http://www.wowt.com/home/headlines/70388747.html

So, now I'm starting to reconsider my position on the H1N1 vaccine. I'm going to call my neuro tomorrow and see if he's read anything more on the vaccine, since he's the one who told me earlier this fall that he didnt recommend that I get the vaccine...I'm starting to think maybe I should take the risk of the vaccine setting off the MS temporarily.

I saw my regular doctor today for my injured neck and shoulder (I have a more-than-mild sprain in the neck, and a pulled shoulder muscle or something...btw) and he thinks I should get the vaccine.

So, I guess if the neuro says it's ok, I'll go stand in line at one of the high schools where they're handing out the vaccine and take the risk.

I'm hoping that I can get my mom a shot too. She's got COPD and her doctor said he wants her to get the shot, but here in Omaha, unless you're in the age category (UNDER 65yrs old) AND have a chronic condition or an underlying medical problem, that's the only way you can get the vaccine.

I havent been able to find anyone to answer the question if my mom can get the shot because of the chronic health conditions she has, even tho she's 68yrs old. One place I called said you have to be younger than 65. Which seems a bit ageist to me.

I cant take my mom to any local doctors for an H1N1 vaccine because they dont have any...all the vaccinations right now are being done by the county. Hopefully I can get her one.

I just had a thought, right now with the sprain in my neck and shoulders, I hope I dont catch any colds or a flu anytime soon...I just sneezed from all the dust in my room (cleaning) and it hurt a lot to sneeze. I better stay relatively healthy till my neck heals.

Hearing that the swine flu is starting to take out the perfectly healthy, but larger, people is a bit scary. ]]> The Stumble Inn Erin524 http://neurotalk.psychcentral.com/showthread.php?t=108387 http://neurotalk.psychcentral.com/showthread.php?t=108376&goto=newpost Thu, 19 Nov 2009 02:43:01 GMT Any other Twihards in here? Tomorrow the New Moon movie FINALLY comes out - well, actually it's Friday, but I'm going to the midnight showing on Thursday night. I've already got my ticket bought and everything. DH is going to stay home with the kiddies. He asked if I was just going to go by myself, and I told him I didn't really know anybody else that was a big fan, but that I'm sure I'll meet some like-minded people at the theater!

I'M SO EXCITED!!!! Even if I wasn't into the story, it would be worth it just for the drool-worthy shirtless hunks of man-candy (hyperventilating). OME! ]]> The Stumble Inn msarkie http://neurotalk.psychcentral.com/showthread.php?t=108376