http://neurotalk.psychcentral.com en Sat, 21 Nov 2009 10:27:25 GMT vBulletin 30 http://neurotalk.psychcentral.com/images/ca_evo2/misc/rss.jpg http://neurotalk.psychcentral.com http://neurotalk.psychcentral.com/showthread.php?t=108582&goto=newpost Sat, 21 Nov 2009 02:46:29 GMT I've always had exceptionally strong fingernails. The last few months the nails on my LEFT hand only have begun to become soft, weak and split vertically. My right hand nails are strong as ever. So now I have short nails on the left and long nails on the right!!
I am right handed so it is not from over use of my dominate hand. I've been wondering about the meds we take possibly being the culprit.
Anyone else experience this change in fingernail strength? ]]> Multiple Sclerosis karilann http://neurotalk.psychcentral.com/showthread.php?t=108582 http://neurotalk.psychcentral.com/showthread.php?t=108560&goto=newpost Fri, 20 Nov 2009 23:15:57 GMT This sticky has been added to fulfill a need for those with Primary Progressive MS. PPMS differs from SPMS and Remitting/Relapsing MS in both... This sticky has been added to fulfill a need for those with Primary Progressive MS.

PPMS differs from SPMS and Remitting/Relapsing MS in both onset and prognosis. Unlike RRMS, those with PPMS are not offered any of the treatments currently available, so with that in mind, this thread has been formulated for those members to discuss their trials and tribulations, or to simply keep in touch.

I hope you'll find this thread beneficial. ]]> Multiple Sclerosis Koala77 http://neurotalk.psychcentral.com/showthread.php?t=108560 http://neurotalk.psychcentral.com/showthread.php?t=108465&goto=newpost Thu, 19 Nov 2009 21:18:27 GMT I feel I shouldn't be in the MS forum anymore....but
I can get info about all my sx in here, which are the same/similar.

I saw my 2nd opinion neuro yesterday.
He read out all my tests - bloods, mri's, etc and said, "well they're all clear, except for the disc protrusion at C5-6"
So he looks at my spine, says I have mild-moderate scoliosis (it's in the spine MRI report) the feels my neck as I'm laying face down.
It was tender on the left side (most of my sx are on the left).

He took my blood pressure, reflex tested my arm and legs with the hammer thing and that's it.

Sits down and says I have 'cervical facet joint dysfunction' and anxiety and it can be cured with seeing a spinal physio!!
So I'm pretty excited here, but still, a bit sceptical:

My 1st neuro dismissed the disc protrusion issue, as the MRI report said all the roots exit freely, and a lot of people have this minor indentation.
Also, the 2nd neuro couldn't explain why I get effected in the heat. (I don't know' he said.)
I have regular chiropractic adjustments - have had them every 2 months for the last 6 years. I've been going weekly since Sept this year.
I have no C5-6 neck pain at all.

he told me to walk 30mins a day - this is after I'd been telling him walking is difficult!
I just looked at him in disbelief, and couldn't feel I could argue with him.

He also said we'd have to check my calcium levels as he couldn't see it in the blood work.
I got home and checked mine - it had been done before.
He also said my Epstein Barr was negative - but I knew it said 'detected' on my report!
(small things, but showing he wasn't thorough)

My friend who came with me asked the neuro what can be done about the heat intolerance, as he's seen me go downhill quickly due to heat. Neuro replied with a laugh, "stay cool"...... !!!!:eek:

So I left feeling not listened to, reports not thoroughly checked and fobbed off.

Does anyone know about the joint dysfunction thing? ]]> Multiple Sclerosis Freesia38 http://neurotalk.psychcentral.com/showthread.php?t=108465 http://neurotalk.psychcentral.com/showthread.php?t=108381&goto=newpost Thu, 19 Nov 2009 04:22:56 GMT I have been taking Clonazepan for it and it works fine but it isn't on my new insurance formulary. So I called my neuro and she ordered Baclofen. Any ideas how this works with you all? Only problem is that it is a teir 3!!!!!!:(:confused::mad::eek: I may just call the pharmacy and see how much Clonazepan is without insurance. ]]> Multiple Sclerosis doydie http://neurotalk.psychcentral.com/showthread.php?t=108381 http://neurotalk.psychcentral.com/showthread.php?t=108373&goto=newpost Thu, 19 Nov 2009 02:05:56 GMT I was told to get an MRI and scheduled to get an EMG on my right leg (huh...?) and come back at the end of January for an appointment. Such a loooong... I was told to get an MRI and scheduled to get an EMG on my right leg (huh...?) and come back at the end of January for an appointment. Such a loooong way away.

I had my MRI today. Oddly, though, I was given a CD with the images to give to my neuro at my next appt. She said that they dont send it to him and that he prefers to look it over himself - no radiologist reviews it. Is this normal?

And then I looked at the images, which may have been dumb...'cause I know next to nothing about what a brain SHOULD look like, so I don't know if anything is weird. It mostly looks normal-ish (So no MS?)...I think...to me... so I thought I'd ask you guys about the dots.



LOL what is that circle thing on the middle/bottom? It reminds me of one of those moths that have fake eyes on their wings!



Erm....what is that dot?



Ahhh, the two eyes ON my brain are looking at me!! :eek: ]]> Multiple Sclerosis Hoshi http://neurotalk.psychcentral.com/showthread.php?t=108373 http://neurotalk.psychcentral.com/showthread.php?t=108316&goto=newpost Wed, 18 Nov 2009 07:13:10 GMT Prayer for a person with MS by Canon Andrew White Lord they tell me I have MS and at times I am afraid; my future, my family, my ambitions... Prayer for a person with MS
by Canon Andrew White


Lord they tell me I have MS and at times I am afraid;
my future, my family, my ambitions are all full of uncertainties,
my body will not function as it used to and I no longer feel in control;
at times, though surrounded by masses, I feel so alone.
In my fear will you enable me to trust you,
in my vulnerability may I know your power
and in my loneliness will you assure me of your presence. ]]> Multiple Sclerosis kentucky_wildchild http://neurotalk.psychcentral.com/showthread.php?t=108316 http://neurotalk.psychcentral.com/showthread.php?t=108294&goto=newpost Wed, 18 Nov 2009 02:39:14 GMT I've been doing a lot of cleaning lately to get ready for a construction project in my bedroom, and I think I either moved one heavy box too many, or I picked up the wrong box the wrong way.

I posted the other day about my hair hurting and a weird pain in my neck and back...well, it's worse this week. My dad thinks I might have torn something up in my neck and shoulder area, because I've got pain and muscle spasms that go from the neck up into the back of my head, and down my shoulder blade.

Where the sharp pain is in the back of my head just above my neck, it's numb, and the numbness goes into my ear and cheek. My dad said that if I tore something, the numbness is probably normal for that kind of injury. (I'm probably going to go see a doctor tomorrow)

I'm just a little worried the numbness is an MS thing. Right now tho, the numbness isnt that bad, it's the pain from the spasms that's driving me mad. Even chewing food makes my neck hurt.

No more box moving for me. (It was just yarn, I didnt think yarn could get that heavy) I'm getting smaller boxes. The 30 and 40 gallon totes get heavy quickly. ]]> Multiple Sclerosis Erin524 http://neurotalk.psychcentral.com/showthread.php?t=108294 http://neurotalk.psychcentral.com/showthread.php?t=108275&goto=newpost Tue, 17 Nov 2009 22:29:37 GMT hello. i have rrms dx in 2001. upon being scanned for a problem with my swallowing, 2 cysts showed up on my thyroid. at the bottom of the mri was a... hello. i have rrms dx in 2001. upon being scanned for a problem with my swallowing, 2 cysts showed up on my thyroid. at the bottom of the mri was a note saying:
cardiomegaly and borderline pulmonary vasculature. when i asked the dr about the results, he dismissed the note and told me its nothing, not to worry. this was 3 yrs ago. i have many symptoms that were pushed aside... should i disregard this notation in the scanned results or should i have looked into this further? i should say even before the test was taken, i had been to the e.r. a few times for palpitations and for a resting pulse of 140 or over.
thank you very much for your help...
MamaGirl ]]> Multiple Sclerosis MamaGirl http://neurotalk.psychcentral.com/showthread.php?t=108275 http://neurotalk.psychcentral.com/showthread.php?t=108269&goto=newpost Tue, 17 Nov 2009 20:35:32 GMT And now that all of my friends and family are freaking out on me and telling me how much they don't want me to start this drug.... :(

But I am determined to be optimistic! Monday is the day. Any advice I should know? Things they don't tell ya? ]]> Multiple Sclerosis legzzalot http://neurotalk.psychcentral.com/showthread.php?t=108269 http://neurotalk.psychcentral.com/showthread.php?t=108233&goto=newpost Tue, 17 Nov 2009 10:06:07 GMT Just for the record before I start, I haven't been dx'd with anything!

I've noticed that my sx flare up every 3-4 weeks now lasting for about 7-10days.
I'm just starting one now - it's come on gradually since saturday.
The last 3 flare ups now my dermatitis gets much worse. It's between my pinky and ring fingers, and it's worse on my left hand (knuckles too) which is my more effected side of my body (arm and leg heaviness, etc).
I use cortisone cream which works, but then I stop using it when it's better then with a flare it comes back again. (I don't like using it too much).

A thread about this came up in my search, but I wanted to ask do any of you have this problem when beginning a flare?
Thanks. ]]> Multiple Sclerosis Freesia38 http://neurotalk.psychcentral.com/showthread.php?t=108233 http://neurotalk.psychcentral.com/showthread.php?t=107987&goto=newpost Sat, 14 Nov 2009 01:15:30 GMT I didn't see anything posted about this yet here!

FDA delays ruling on Fampridine-SR, a drug to improve walking ability from Acorda.

Acorda said the FDA extended its review because it recently submitted new information on its risk evaluation strategy for the drug.

http://news.moneycentral.msn.com/pro...22&id=10582834 ]]> Multiple Sclerosis Riverwild http://neurotalk.psychcentral.com/showthread.php?t=107987 http://neurotalk.psychcentral.com/showthread.php?t=107899&goto=newpost Thu, 12 Nov 2009 18:08:00 GMT Why not? I already hava MS induced menopause, MS related issues from getting my tubes tied.... So my doc appt today was interesting. Gained 13... Why not? I already hava MS induced menopause, MS related issues from getting my tubes tied....

So my doc appt today was interesting. Gained 13 pounds in 2 weeks, 3 inches in my abdomen and a slew of other symptoms. And I finally headed in to my doc who finds glucose and protien in my urine. And he sent me in for ultrasounds (yes, plural!) and they are checking for kidney stones.

Does it ever flippin end with this dang disease?? ]]> Multiple Sclerosis legzzalot http://neurotalk.psychcentral.com/showthread.php?t=107899 http://neurotalk.psychcentral.com/showthread.php?t=107886&goto=newpost Thu, 12 Nov 2009 12:26:05 GMT My sister who has had a dx of probable MS, (who has now been told probably not) read out some of her MRI reports to me. Can anyone help interpret it... My sister who has had a dx of probable MS, (who has now been told probably not) read out some of her MRI reports to me.
Can anyone help interpret it please? I just jotted down words... so it's not all in context.

"5 lesions posterior.. right & left cerebral.. Parietal.. occipital region.
...elongated dimension"..
represent an old change of demyelination".
"5 burnt out plaques"...

2nd MRI 6 months later - no new lesions. Report said:
" non specific but may represent multi-focal demyelination"...

is this not typical of MS, so is that why the neuro said 'probably not'....??

Thanks. ]]> Multiple Sclerosis Freesia38 http://neurotalk.psychcentral.com/showthread.php?t=107886 http://neurotalk.psychcentral.com/showthread.php?t=107857&goto=newpost Thu, 12 Nov 2009 02:39:12 GMT Very Interesting! I've only included the beginning of the article since it is long. Please click the link for further information. :hug:

http://www.businesswire.com/portal/s...60&newsLang=en

November 11, 2009 09:00 AM Eastern Time
Mayo Clinic Neurologist Reports: “Thousands of NMO Patients are Misdiagnosed with Multiple Sclerosis”

Groundbreaking Conference for Rare Neurological Disease – Neuromyelitis Optica (NMO) – Brings Together World’s Top Doctors, Medical Researchers and Patients in Pursuit of a Cure

LOS ANGELES--(BUSINESS WIRE)--Thousands of Neuromyelitis Optica (NMO) patients are potentially being misdiagnosed with Multiple Sclerosis (MS), according to Mayo Clinic Neurologist Sean Pittock, M.D., largely due to lack of awareness of NMO within the medical community. Dr. Pittock shared this finding with more than 50 of the world’s leading doctors and medical researchers – from Harvard to Oxford – who gathered at the 2009 NMO Roundtable Conference, sponsored by the Guthy-Jackson Charitable Foundation.

NMO is a rare and debilitating disease that attacks the optic nerves and spinal cord, often causing vision loss, paralysis of legs and arms, and sensory disturbances. The Guthy-Jackson Charitable Foundation has brought together these researchers to help find a cure for this rare disease.

Dr. Pittock came to his conclusion based on ongoing research at the Mayo Clinic. Of the 1,200 blood samples that are sent to Mayo Clinic’s neuroimmunology laboratory for NMO antibody (NMO-IgG) testing each month, approximately 70 new patients test positive for NMO, which is surprisingly high considering it is believed to be a rare disease. Of the 70 patients who have the NMO antibody, Dr. Pittock has found that a majority were previously thought to have MS.

Making the distinction between MS and NMO has been greatly assisted by Mayo Clinic’s recent discovery of this NMO antibody. In fact, this is the first biomarker that has shown to be sensitive and specific for any central nervous system (CNS), inflammatory demyelinating disease.
“It’s important to differentiate NMO from MS as these disorders are treated differently,” says Dr. Pittock. “The identification of this novel antibody marker will hopefully assist neurologists in making a correct diagnosis of NMO, rather than MS.” ... ]]> Multiple Sclerosis Riverwild http://neurotalk.psychcentral.com/showthread.php?t=107857 http://neurotalk.psychcentral.com/showthread.php?t=107784&goto=newpost Wed, 11 Nov 2009 05:08:29 GMT My kids got the nasal mist. But I've also heard there are two kinds of shot....is this right???? If so, which one is best for ms patients. I know they mentioned to my daughter that one of them had mercury.

Any idea? I am supposed to get one Monday.
Thanks. ]]> Multiple Sclerosis Friend2U http://neurotalk.psychcentral.com/showthread.php?t=107784