NeuroTalk Communities - Reflex Sympathetic Dystrophy (RSD and CRPS) http://neurotalk.psychcentral.com Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) en Sat, 21 Nov 2009 19:25:47 GMT vBulletin 30 http://neurotalk.psychcentral.com/images/ca_evo2/misc/rss.jpg NeuroTalk Communities - Reflex Sympathetic Dystrophy (RSD and CRPS) http://neurotalk.psychcentral.com New Blankie! http://neurotalk.psychcentral.com/showthread.php?t=108594&goto=newpost Sat, 21 Nov 2009 04:53:16 GMT I just spent $95.00 on a "full" heating blanket! BEST THING I EVER DID! My husband says that I am in my "toaster oven". Heating pad on the bottom; heating blanket on the top! I am in HEAVEN! Just don't pee yourself or spill anything! ]]> Reflex Sympathetic Dystrophy (RSD and CRPS) kim ames http://neurotalk.psychcentral.com/showthread.php?t=108594 Starting the whole litigation thing with w/c. http://neurotalk.psychcentral.com/showthread.php?t=108593&goto=newpost Sat, 21 Nov 2009 04:48:32 GMT Hi everyone. I am on my one year mark for w/c. I do have an attorney and am about to have my IME. I am hoping that someone can help tell me what... Hi everyone. I am on my one year mark for w/c. I do have an attorney and am about to have my IME. I am hoping that someone can help tell me what to excpect; and what outcome I am to anticipate. I live in Maryland, but worked in Delaware. I see that there is some type of cap on w/c benefits here....I just don't know what to expect. I certainly don't want to get rich from this; however, I need to be taken care of medically. My attorney is not the "slit the throat" type; so, please give me any advice you can. I am getting w/c benefits every two weeks; but they are not paying for mileage, etc. Every six months they stop my benefits. It only takes a phone call from my pharmacist to get my meds paid for. They have actually have been good to me. Anyone with help on this will be appreciated... Thanks! Kim ]]> Reflex Sympathetic Dystrophy (RSD and CRPS) kim ames http://neurotalk.psychcentral.com/showthread.php?t=108593 Rolfing/cold laser therapy is working so far!!!! http://neurotalk.psychcentral.com/showthread.php?t=108577&goto=newpost Sat, 21 Nov 2009 01:59:53 GMT I started with 4 sessions on non crps sites to see if i would be able to tolerate rolfing and it is working better than anything else so far. this... I started with 4 sessions on non crps sites to see if i would be able to tolerate rolfing and it is working better than anything else so far. this week i finally let the rolfer touch my legs which was very scary but he started very soft and only uses enough pressure to get relief.

in my opinion, rolfing is the best manual therapy i have had. I have had hundreds of treatments of manual work before crps.

the rolfers now use a cold laser so they dont have to go so deep.

i will keep this going as i receive further treatment.

mike

for those who are wondering how a treatment session goes...

you usually start by walking back and forth down a hallway so they can watch your gait. they then put you on a massage table and start on a specific area. they might spend the entire session on one area of the body unlike massage ware you can get the entire body worked on in an hour.

for me i can barely walk with a cane and i am limited to about 100ft a day of walking so i dont do the walk before getting on the table. i then told him to work on the hips cuz they hurt like crazy from being in bed almost 24hrs a day. everything has atrophyed so he's got a lot of work to do. unlike massage ware you can go to sleep, in rolfing its constant feedback and sometimes you have to move slightly, such as when he was woking on my IT band, he would say move your heel toward the bottom of the table slowly(you move maybe an inch or so and then slowly go back). its sorta weird how they can feel your nerves and know what type of work to do to that nerve. they also work on tendon and ligament attachments. so far i feel like i can walk slightly faster and straighter with my cane. i havent been able to raise my arm above my head for years and after one treatment i can now.

the cold laser looks like the laser at the grocery store. it shoots out a red beam. here is a cut and paste that better explains the laser.(by the way, you cant feel it-no heat).

Welcome to ColdLasers.Org. This site was created to present information about cold lasers and cold laser therapy. This site includes information about different technologies available and different style of cold laser therapy.Some sources say that cold lasers can be used for many purposes including inflammation treatment, pain treatment and stop-smoking therapy. This site will review each type of therapy and discuss treatment options and possibilities. In addition this site will review the different types of lasers and quality of lasers.

Cold laser light is:

Monochromatic (a single wavelength in the 635 to 970 nm range)
Coherent (traveling in a straight non-diverging line)
Has a wavelength in red portion of the electromagnetic spectrum (cold)
Polarized (concentrating it energy as a defined spot)
Low power level (ranging from 10 to 7500 mw)
Unlike high-power medical laser, which are widely used to safety cut and remove tissue, the Low Level Laser penetrates the surface of the skin with no heating effect or damage. The energy is directed deep into effected area stimulating the body’s cell which convert the energy into chemical energy to promote natural healing.

Cold lasers are often compared to " acupuncture with a laser beams." In most LLL treatments the laser beam is use to stimulate the body's acupoints or damanged area in an attempt to increase the blood supply to parts of the body. The energy from the laser may penetrate as deep as 2 inches into the body based on the power of the laser and other variables.

Cold Laser Therapy is considered an alternative Therapy like Acupuncture. Traditional medicine still more sever treatment options like Ultrasound And Tens. These treatment provide releif for many patients every years and may be used on combination with cold laser treatment for even better results.

Currently there are over 25 different cold lasers that have been cleared by the FDA for various types of treatments. Cold laser have been in use around the world for over 30 years and have been in use in the US for over 10 years, mostly in the veterinary field. Low level laser therapy has been proven completely safe in over 3000 worldwide studies.

The wavelenght of the laser light ranges from 635 to 970 nanometers. The power level of medical grade cold lasers ranges from 10 milliwatts to 7500 milliwatts. This energy can be created using one or an array of laser diodes. An array of lasers allows a wider treatment area. Since finding the troubled spot deep inside the tissue is "educated guess", it can be very useful to cover a larger area with an array. This increased the probability of energizing the problem area and also helps increase the energy in the area surrounding the problem area.

The average cold laser therapy session cost from 30 to 60 dollars. The average medical grade laser costs about $4000.

link to info site-
http://www.coldlasers.org/ ]]> Reflex Sympathetic Dystrophy (RSD and CRPS) ALASKA MIKE http://neurotalk.psychcentral.com/showthread.php?t=108577 Out of control http://neurotalk.psychcentral.com/showthread.php?t=108533&goto=newpost Fri, 20 Nov 2009 15:50:33 GMT HI, i'm usually on the Thoracic Outlet Syndrome forum here.

Personally, my RSD has calmed somewhat with the 60 degree cold here in California. But, crap this Fibromyalgia stuf is full body with the cold. My RSD calms with the cold. Increases with the sun & heat; obviously its the vascular TOS issues. The TOS muscle spasms increases with the cold. Love the cold much better than the heat. Its so messed up. 1 condition loves the cold, 1 condition likes the warm not heat 1 condition doesnt like either.

YES sk8ter it is out of control! Cant sleep nights, the days can be torture with the RLS and with constant constipation from the opiods. ]]> Reflex Sympathetic Dystrophy (RSD and CRPS) olecyn http://neurotalk.psychcentral.com/showthread.php?t=108533 <![CDATA[My kids don't understand...please help!]]> http://neurotalk.psychcentral.com/showthread.php?t=108498&goto=newpost Fri, 20 Nov 2009 04:18:20 GMT Please help me/

I have two teenage kids; 18 and 15. They just don't seem to understand about RSD. I have talked with them about this; however, it just doesn't sink in. When I was their age, my grandmother had cancer; so I can understand that they don't grasp it.; However, they continue to be cold and unresponsive to my needs and concerns. How can I possibly convey to them the magnitude of this crippling disease and also relay to them the coping skills they surely need? I have resorted to turning their cell-phones off as a matter of discipline; in which I feel horrible about. They continue to "diss" me even after I have tried to enforce my (not horrible) threats to them. I tend to over-compensate to make up for my shortcomings. In which I feel has led to this situation. I would appreciate any advice and/or lecture on this subject. I am heartbroken over this. So, any advice is more than welcome~ Thanks!:confused: ]]> Reflex Sympathetic Dystrophy (RSD and CRPS) kim ames http://neurotalk.psychcentral.com/showthread.php?t=108498 why does time go so slow somedays? http://neurotalk.psychcentral.com/showthread.php?t=108477&goto=newpost Fri, 20 Nov 2009 02:08:39 GMT I've got less then 2 wks to the pain pump trial and time is going so slowly. I think that, for some reason, I'm getting, not scared, but irritable. I don't know why. I have high hopes for the pump, so I don't think it's that. I just watched Bones, and at the end the grandfather went to a retirement home. SOmehow that has got me so depressed. I think it bring back memories of last year this time being put in a nursing home with old ppl and ppl dying. It was the worse thing that has happened to me. I thought I had put all the memories of that place to rest, but now I'm here, feeling almost sick. just wanting time to pass. I fell in the mud/wet grass today, on my back on right side. I'm living on my pain meds and advil. I've actually got a headache of sorts. don't want to do anything, talk to anyone. So I figured I'd better get on here and share. I've learned that when things seem depressing, that getting on here with my friends pulls me out of if, and puts me back into my happy go luck. don't give a darn, self.

Hugs
Mary ]]> Reflex Sympathetic Dystrophy (RSD and CRPS) lostmary http://neurotalk.psychcentral.com/showthread.php?t=108477 looking at a photograph of a loved one can relieve the sensation of physical pain http://neurotalk.psychcentral.com/showthread.php?t=108466&goto=newpost Thu, 19 Nov 2009 21:43:29 GMT Interesting: November 19, 2009, 1:59 PM *Pain Relief Through Photography* By RONI CARYN RABIN Can looking at the photograph of a loved... Interesting:

November 19, 2009, 1:59 PM

Pain Relief Through Photography

By RONI CARYN RABIN

Can looking at the photograph of a loved one make pain go away?

Numerous studies show that strong social connections have benefits for health. People who have active social lives seem to live longer than those who are isolated, and married cancer patients have a better outlook than divorced cancer patients. Now, a study [http://www.scn.ucla.edu/pdf/Master-InPress-PsychSci.pdf] suggests that merely looking at a photograph of a loved one can relieve the sensation of physical pain. . . .
http://well.blogs.nytimes.com/2009/1...ugh-photos/?hp ]]> Reflex Sympathetic Dystrophy (RSD and CRPS) fmichael http://neurotalk.psychcentral.com/showthread.php?t=108466 Lost the ability to move my big toe. http://neurotalk.psychcentral.com/showthread.php?t=108451&goto=newpost Thu, 19 Nov 2009 17:26:11 GMT I don't know when or how, but I can no longer wiggle my big toe. I asked my Doc about it and he said that happens with RSD. When I asked him if I will ever be able to move it again, he just raised his eye brows. He went on with the exam and asked about other things. :mad:

I asked the PT guy about it and he said well, it's not good. I asked if I will be able to move it again, and he said let's hope. Now what does this mean?

Have any of you lost the ability to move a toe, finger, body part and then have it return?

I have had it for 9 months. ]]> Reflex Sympathetic Dystrophy (RSD and CRPS) stardustkid http://neurotalk.psychcentral.com/showthread.php?t=108451 Lesions to ulcers http://neurotalk.psychcentral.com/showthread.php?t=108443&goto=newpost Thu, 19 Nov 2009 15:59:28 GMT removing lesion pictures posting elsewhere removing lesion pictures posting elsewhere ]]> Reflex Sympathetic Dystrophy (RSD and CRPS) CZZ74 http://neurotalk.psychcentral.com/showthread.php?t=108443 Lesions http://neurotalk.psychcentral.com/showthread.php?t=108442&goto=newpost Thu, 19 Nov 2009 15:44:10 GMT removing post posting elsewhere, its going over the web removing post posting elsewhere, its going over the web ]]> Reflex Sympathetic Dystrophy (RSD and CRPS) CZZ74 http://neurotalk.psychcentral.com/showthread.php?t=108442 States That Have Legalized Marijuana For Medical Use http://neurotalk.psychcentral.com/showthread.php?t=108413&goto=newpost Thu, 19 Nov 2009 14:49:00 GMT http://medicalmarijuana.procon.org/v...00881#Michigan
Hey everyone. I thought I'd let you all know the link to the website that explains all the states that have legalized the use of Marijuana for medical use. The website explains very clearly the amount, the year the bill passed in the state, what conditions are acceptable for use, and the cost of the I.D. Card needed for use and purchase. Since the website has been posted, 3 more states have followed. As of today, 4 other states have considered it and are ready to pass their bills to become law. Anyone who suffers from CRPS/RSDS will be allowed and considered under the law. This information can be useful to other patients who suffer from other chronic diseases. Any questions, please call or write your represenative. I hope everyone at least takes a look. You can make up your own mind. Keep safe and have a pain free day/night. mellowguy ]]> Reflex Sympathetic Dystrophy (RSD and CRPS) mellowguy http://neurotalk.psychcentral.com/showthread.php?t=108413 Does neuroinflammation fan the flame in neurodegenerative diseases? http://neurotalk.psychcentral.com/showthread.php?t=108404&goto=newpost Thu, 19 Nov 2009 12:24:23 GMT Does neuroinflammation fan the flame in neurodegenerative diseases? I personaly think that this pertains to the origins of RSD/CRPS and the spread... Does neuroinflammation fan the flame in neurodegenerative diseases?

I personaly think that this pertains to the origins of RSD/CRPS and the spread of this condition as well.

http://www.molecularneurodegeneratio...-1326-4-47.pdf

be well,
Sandra ]]> Reflex Sympathetic Dystrophy (RSD and CRPS) Sandel http://neurotalk.psychcentral.com/showthread.php?t=108404 Going for my I.M.E. http://neurotalk.psychcentral.com/showthread.php?t=108396&goto=newpost Thu, 19 Nov 2009 06:07:14 GMT Hi~Can anyone help me with this? I am scheduled to see a new doctor on December 12th to get my "rating" for disability. I would love any advice, warnings, etc... This is for me, not w/c. (My attorney). I am sure that that will be much more involved and hurtful. However; this is a w/c appointment.

I have RSD in my left hip and leg. Have not worked in over a year. P.T. for that time period and in agony (as you all know.) I just want to have one hour of being pain free. Please; if you have any insight...I am desperate...and would appreciate any advice. This disease has brought my life to a halt and I can no longer care for myself. I can't take care of my kids or my husband. I used to run for miles (track coach) and work at a job in which I loved. Now; just taking a shower each day (not to mention the "shave days") are agony. I just want it to stop. I am truly sorry for all of you; and all of us that live with this monster each and every day.

I welcome each and every idea, comment, thought, etc...Please help me learn from you and comfort you. We all just want to feel good.........

Thank you. Please be at rest.... ]]> Reflex Sympathetic Dystrophy (RSD and CRPS) kim ames http://neurotalk.psychcentral.com/showthread.php?t=108396 If your cloths hurt your skin... http://neurotalk.psychcentral.com/showthread.php?t=108380&goto=newpost Thu, 19 Nov 2009 03:58:48 GMT I found some clothing that doesn't hurt my arm when it's flaired. Don't know if it will work for you but it does me :D

It can be found at:

http://www.bambooclothes.com/ ]]> Reflex Sympathetic Dystrophy (RSD and CRPS) Dubious http://neurotalk.psychcentral.com/showthread.php?t=108380 Bad ER experience http://neurotalk.psychcentral.com/showthread.php?t=108377&goto=newpost Thu, 19 Nov 2009 02:57:35 GMT I was really bad off last night. My RSD is on almost entire right side of my body. I brought my journal that I keep of my meds & special ER instructions in. On the way there, my friend was speeding to get me there. A cop pulled us & refused to escort us. At that time, I was unconscious & not breathing. This happenned off & on all night. When we got to ER, they were throwing me around like a doll. They had all been warned too. Then, it took my friend asking 3 different nurses to get oxygen. They kept saying they couldnt find the key. I realize that the ER had alot of traumas last night, but it was no excuse for how we were treated. When the nurse went to start my i.v. we told her it had to be on my good side & area had to be numbed. So, she comes back with 2 Ativan pills. My friend said thats not gonna cut it. She needs an i.v. or injection of something. I'd taken lots of oral meds already with no relief. So, the nurse came back & said they didnt have any numbing agents in the adult ER & that anestesiology would have to be paged to get that & they were unwilling to do that. So, the nurse told me she was just gonna put the i.v. in my bad arm because it was already messed up. My friend told her no, so she went & got the doc. Doc came in & said,"Y'all need to quit #$%^ing around & tell us what you want". I got really offended & just said fine...use my good arm but just please be extra careful. Nurse was yelling at me for being too tense. Sorry, my body was shaking uncontrollably. So, they gave me Ativan in an i.v. & that was it. They always give me i.v. Dilaudid. They refused & said that my primary had not left any notations in the computer system specifying that I needed Dilaudid. It was very obvious that my pain was a 10/10. The Ativan did calm down the shaking some, but the pain was never controlled. So, I got mad & said if you're not gonna give me anything for pain how about taking the i.v. out of my arm. They told me to go home & double up on my regular pain meds (Lortab 10-500 x2, Oxycodone Hcl 30mg, Soma 350, Xanax 1mg x2). What a waste of time & effort. I have to give major credit to my friend that took me. We have only known each other for a few months, but apparently she really listens to what I say about my RSD because she really took care of me. That really meant alot to me. She did not have to do that. She was even trying to hold me down before we left for the ER. The doctor asked me if she was my "partner"....we are still laughing about that. I left a message with my primary to see how we can avoid this happening again. Nurse at my primary doc said they dont use same computer system even though its same hospital. Maybe my doc can type a letter explaining what I need when I go to the ER. Anyone else done this?? Sorry this is so long....I just gave you the highlights of the night. Oh yeah...there was really bloody gauze on the floor next to my bed...gross....I will definately be filling out the survey that they send out after ER visits. Got the doctors name too. ]]> Reflex Sympathetic Dystrophy (RSD and CRPS) firegirl http://neurotalk.psychcentral.com/showthread.php?t=108377