http://neurotalk.psychcentral.com en Sun, 22 Nov 2009 03:49:54 GMT vBulletin 30 http://neurotalk.psychcentral.com/images/ca_evo2/misc/rss.jpg http://neurotalk.psychcentral.com http://neurotalk.psychcentral.com/showthread.php?t=108635&goto=newpost Sun, 22 Nov 2009 00:33:55 GMT Well, I ventured out today to WallyWorld and AC Moore (more grandmother yarn!!). I believe the world thought it was the weekend after Thanksgiving. ... Well, I ventured out today to WallyWorld and AC Moore (more grandmother yarn!!). I believe the world thought it was the weekend after Thanksgiving. The traffic was a mess; there were no carts in Walmart; no place to park at AC Moore. I was a wreck after just doing a tiny bit of grocery shopping at WM. Had to use my cane to go into AC Moore I was tremor-ing so badly.

So, decision for the holiday shopping...I will NOT shop alone. My oldest daughter will have to go with me, or I with her. But I will not be shopping alone. It will be nice to have someone there to help me get change and bills out of my purse to pay. Good thing I am not a guy, I don't know that I would be successful getting change from my pockets without them going all over the floor.

Just tell me I am not heading to a DBS one day...ugh!! OH yes, and I love spell check and backspace. They are as awesome as cruise control on my car...LOL.

Carolyn ]]> Stitcher http://neurotalk.psychcentral.com/showthread.php?t=108635 http://neurotalk.psychcentral.com/showthread.php?t=108631&goto=newpost Sun, 22 Nov 2009 00:25:51 GMT A friend told me there is a CD made by Goldman called Vocal Toning the Chakras. According to Goldman, "Vocal toning transmits these key vibratory frequencies not only through the physical resonators of the lungs and vocal chords, but through the entire neural latticework of the body." I hate to buy the CD and find it doesn't work. Anybody tried this? My friend claimed harp music should help PD. ]]> marciaj http://neurotalk.psychcentral.com/showthread.php?t=108631 http://neurotalk.psychcentral.com/showthread.php?t=108581&goto=newpost Sat, 21 Nov 2009 02:41:20 GMT Just in case you are interested...you can still RSVP and participate Saturday morning. The details are below. Debi MJFF’s Research... Just in case you are interested...you can still RSVP and participate Saturday morning. The details are below.
Debi


MJFF’s Research Roundtables, held around the country throughout the year, are for patients and caregivers. We want to share information about top Parkinson’s research priorities and provide a forum for you to ask your own question of the experts on the front lines of the search for a cure.

On November 21 at 11 a.m., our final 2009 Virtual Research Roundtable will be Webcast live. Hear from Foundation leadership and submit questions to be answered by our expert panel in real time — all from the comfort of your own personal computer. If you can’t join us live, register to watch the event video after the fact.

Already tuned in for a previous Virtual Roundtable in February or June? This event will feature different speakers and cover different topics — so be sure to register at the MJFF Web site today! http://video.webcasts.com/events/pmn...?eventid=32758


Virtual Research Roundtable
11 a.m.–1 p.m., Saturday, November 21, live from New York City

Speakers:
MJFF CEO Katie Hood
Vice President of Research Programs Todd Sherer, PhD
And members of the Foundation’s Executive Scientific Advisory Board

Virtual Roundtables are made possible by a generous lead gift from Solvay Pharmaceuticals, Inc. ]]> Debi Brooks http://neurotalk.psychcentral.com/showthread.php?t=108581 http://neurotalk.psychcentral.com/showthread.php?t=108522&goto=newpost Fri, 20 Nov 2009 12:52:18 GMT Gold-filled discovery in transplants Tissue transplantation may have a shining future -- if gold proves to be as precious as recent research on... Gold-filled discovery in transplants

Tissue transplantation may have a shining future -- if gold proves to be as precious as recent research on neutral transplants suggests. By filling envelopes made of viruses with colloidal goldColloidal gold, also known as "nanogold", is a suspension (or colloid) of sub-micrometre-sized particles of gold in a fluid--usually water. The liquid is usually either an intense red colour (for particles less than 100 nm), or a dirty yellowish colour (for larger
..... Click the link for more information. and fusing them with nerve cells, scientists at the University of South Florida


• • [ in Tampa have been able to track the migration of transplanted cells and measure their survival.

Used for years as a cell marker, the gelatin-like colloidal gold is easily distinguished by its yellow or bright white appearance through a microscope. Gary W. Arendash and his co-workers took advantage of gold's shining qualities and devised a model system applicable to transplantation science.


By scanning transplanted tissue for signs of gold, the scientists were able to follow the migration of transplanted cells through areas of the rats' brans, and to determine that the transplanted cells survived at least three months. Both location and viability are crucial to understanding the fate of nerve-tissue transplants, which have attracted attention and controversy as potential treatments for conditions like Parkinson's diseaseParkinson's disease or Parkinsonism, degenerative brain disorder first described by the English surgeon James Parkinson in 1817. When there is no known cause, the disease usually appears after age 40 and is referred to as Parkinson's disease.
..... Click the link for more information. (SN: 11/28/87, p.341). Arendash said in an interview that it should be possible to similarly label other types of cells used for transplants, and that the gold/Sendai system might settle the debate over whether adrenaladrenal /ad·re·nal/ (ah-dre´n'l)
1. paranephric.

2. adrenal gland.

3. pertaining to an adrenal gland.

--------------------------------------------------------------------------------

ad·re·nal
adj.
1.
..... Click the link for more information. cells transplanted into the brain for treating Parkinson's actually survive, or instead release nerve-cell-stimulating factors before their death. Although tissue must be removed when the colloidal gold technique is used, the scientists are now evaluating another marker that is already being used in clinical imaging techniques and that might be engulfed by reforming Sendai virus envelopes -- thus providing a way to follow grafts in vivo in vivo /in vi·vo/ (ve´vo) [L.] within the living body.
--------------------------------------------------------------------------------

in vi·vo
adj.
Within a living organism.


in vivo adv. .
http://www.thefreelibrary.com/Gold-f...k...-a06423801

Why is gold so important?
What are the properties of gold?
Pure gold is soft and wears easily. It is often mixed with other harder metals. A mixture of metals is called an alloy.

Gold is very unreactive. This means it is resistant to corrosion and tarnishing. That is why a gold nugget can be buried in the ground for thousands of years and still come up looking shiny.

Gold is malleable (easily shaped) and ductile (can be drawn into very thin wire). A square lump of gold about the size of your thumb nail would weigh an ounce. That ounce of gold can be flattened into a sheet so thin that it would be thinner than a piece of refill paper, and light could pass through it. It would cover an area about the size of a small bedroom. The same lump of gold can be drawn into a piece of wire 80 km long. That's long enough to go around a rugby field 23 times.

http://www.marthamine.co.nz/schools/gold_sch.html

what has this to do with the price of gold?
1 troy ounce of gold -
markets across the world
www.goldprice.com

the truth about the gold standard perhaps? ]]> CTenaLouise http://neurotalk.psychcentral.com/showthread.php?t=108522 http://neurotalk.psychcentral.com/showthread.php?t=108519&goto=newpost Fri, 20 Nov 2009 11:42:22 GMT Does anyone have any contact details for Barb Davison. If so, please send me a private message. Muireann Does anyone have any contact details for Barb Davison. If so, please send me a private message.

Muireann ]]> Muireann http://neurotalk.psychcentral.com/showthread.php?t=108519 http://neurotalk.psychcentral.com/showthread.php?t=108471&goto=newpost Thu, 19 Nov 2009 23:35:53 GMT Ok. I have taken the plunge and ordered "Neuroinflammation: Mechanisms and Management" (used, the new version is way pricey, published in 2002 I believe) and will share what I can glean from it. Particularly, as it relates to the BBB, if that is mentioned and/or discussed (as one would expect). I am optimistic that after a gluttunous Thanksgiving meal I can curl up on the sofa with this text and avidly pore over its pages, that is, if the kids will leave me alone...

Has anyone here read this book? ]]> lurkingforacure http://neurotalk.psychcentral.com/showthread.php?t=108471 http://neurotalk.psychcentral.com/showthread.php?t=108458&goto=newpost Thu, 19 Nov 2009 19:10:56 GMT I would appreciate any ideas anyone has, this is driving me crazy. Here is the situation: I wake up in the morning moving very slowly and... I would appreciate any ideas anyone has, this is driving me crazy. Here is the situation: I wake up in the morning moving very slowly and asymmetrically, but I can move. I take my morning meds (1 mg Sinemet and .5 mg Mirapex) and things get much better for maybe 3 hours or so - then I take second dose, and immediately my legs lock up and I can't walk - in maybe 15 minutes time. This lasts for about an hour, then I'm better and can move again. But not always. Yesterday, I was off for 2-3 hours and finally took another small dose of meds and then could move again. Had to be carried out of my art class....I recently added Azilect - could that be doing something? I did cut back on the Sinemet recently from 1.5 mg to 1.0 mg 4 times a day.

Add theories anyone has would be great, am at my wits end, trying to get in to see new neuro right now so kind of in between docs - and I think this board knows a lot more about living with Parkinson's than any doc anyway! Thanks a lot for ANY ideas.

Sasha ]]> Sasha http://neurotalk.psychcentral.com/showthread.php?t=108458 http://neurotalk.psychcentral.com/showthread.php?t=108456&goto=newpost Thu, 19 Nov 2009 17:55:28 GMT Tee hee, I promised I'd remind you. Thanks for all you do for me. ]]> Jaye http://neurotalk.psychcentral.com/showthread.php?t=108456 http://neurotalk.psychcentral.com/showthread.php?t=108415&goto=newpost Thu, 19 Nov 2009 14:55:09 GMT People with Parkinson's are a moody lot! This may sound as if I am overstating a statement about my mood(s), but this is factual and has been consistent for my 18 years of living with PD.


My mood vascillates worse than Edgar Allen Poe's pendulum. Seriously, one minute I can be so up (almost manic) and the next nearly suicidal! I even scare myself sometimes.

Yesterday is an example. As many of you know, I have been wheelchair-bound for nearly 3 months, and am now in a rigid, cumbersome "boot" until after the holidays. Then to add stress to stress, my husband had a total knee replacement (and yikes! He's coming home this afternoon!)
I have held up pretty well under all of this, until ran into a church friend at the hospital. I regularly attend church, but have to miss many weeks due to the foot surgery. That's when I lost it. I wrapped myself around my frieend's neck and cried like a baby - and I have no idea why.

Researchers have identified that many who suffer with depression (before diagnosis) tend to be more susceptible to Parkinson's. Then add to your already imbalanced brain chemicals, MORE chemicals (dopamine, MAO-Inhibitors, Seritonin - SSRI's, etc), and your fluctuations with "on" and "off" times and exacerbation of PD symptoms can escalate.

I started thinking about this and how that may have a major impact on research results. For those of you who are proficient in analysis of statistical data, can this "mood" fluctuation be factored out in clinical trials? Or do we need to give this more attention?

Finally, this is probably a fluke, but just for fun you can download a "mood ring" (popular in my era) that goes right onto your toolbar. Laptops work best because you usually touch the keypad, but touching your mouse also "works.". Find out your mood right now and CAN SOMEBODY GIVE AN ANSWER TO THE QUESTION ABOVE ABOUT THE IMPACT OF DEPRESSION ON RESULTS IN CLINICAL TRIALS?

Download for mood ring:
http://www.ajcockrell.com/ajcockrell/moodring.htm

thx
peg ]]> pegleg http://neurotalk.psychcentral.com/showthread.php?t=108415 http://neurotalk.psychcentral.com/showthread.php?t=108302&goto=newpost Wed, 18 Nov 2009 04:16:42 GMT I had a boyfriend in the eighth grade and was new to a town where there were seldom new people. He was dear and sweet with large blue eyes and long... I had a boyfriend in the eighth grade and was new to a town where there were seldom new people. He was dear and sweet with large blue eyes and long curly eyelashes. His family was prominent, mine was not, his was old money, mine was no money. He was the first person who ever loved me and I was fourteen and incapable of loving at any level. Our romantic relationship terminated before the school year was out but we managed, after some adjusting, to remain very close friends. He was a wounded child, the victim of a toxic childhood riddled with abuse and neglect and I felt the need to watch over him. He ran away once to follow the PGA Tour and was gone for weeks. No one reported him missing.

I was fragile in my own right in those days, the product of a gypsy childhood. Always the new one, never quite fitting in, never quite adjusting to the new environment. He was my entrée I was his stability. We remained close all through high school. He went east for a substantial education, I stayed nearby for a mediocre one. We both married, he divorced, I did not, but we lost contact and that wonderful support we gave each other without condition. That was forty years ago.

Last summer we accidently reconnected in an odd culmination of events neither of us could have imagined much less engineered. With that reconnection began a correspondence that has continued almost daily until now. I told him early on of my Parkinson’s diagnosis and he told me of his recent battle with depression. We have been as honest as two people who have not seen each other in nearly half a century can be.

Now, with the approval of my husband of 36 years I have invited him for a visit. He still has siblings here but their lives are riddled with tragedy so I invited him and he accepted.

Now here’s my quandary, How do I tell him before he arrives of how Parkinson’s Disease has robbed me of my youth and vigor? But, you say, I must be on up there as I have been married 36 years, and there is some truth in that. I am not young anymore but I am not as old as my shuffling gait and gravely voice would indicate. How do I bring up how difficult walking is for me now and the fact that I won’t be cooking while he is here because I have no facility with a knife? How do I tell him I can no longer do anything with my hair on my own or apply make up with any success? What is the order of words that one uses to begin this conversation? Or, do I just stand mute and wait to see the shocked expression when he arrives, hitting him blind-sided and without any warning at all? While this is no longer a romantic attachment it was once and I still have a few shreds of vanity that stick to my personality regardless of my efforts to the contrary. I am so excited about seeing this dear friend again but I am also dreading those first few moments, until we recover ourselves and can move on.

Can someone tell me how to prepare him or myself for that first encounter after all these years? I’m not really as superficial as I sound, or perhaps I am. I just wish we could do this in the dark, like the correspondence has been. That way the memories wouldn’t have to be so disturbed. ]]> bunny http://neurotalk.psychcentral.com/showthread.php?t=108302 http://neurotalk.psychcentral.com/showthread.php?t=108288&goto=newpost Wed, 18 Nov 2009 00:14:52 GMT http://www.personalgrowthcourses.net/video/perceptual_experiment http://www.personalgrowthcourses.net...ual_experiment ]]> olsen http://neurotalk.psychcentral.com/showthread.php?t=108288 http://neurotalk.psychcentral.com/showthread.php?t=108287&goto=newpost Wed, 18 Nov 2009 00:12:19 GMT http://www.molecularneurodegeneration.com/content/pdf/1750-1326-4-47.pdf http://www.molecularneurodegeneratio...-1326-4-47.pdf ]]> olsen http://neurotalk.psychcentral.com/showthread.php?t=108287 http://neurotalk.psychcentral.com/showthread.php?t=108207&goto=newpost Mon, 16 Nov 2009 23:31:28 GMT Law Seeks to Ban Misuse of Genetic Testing By STEVEN GREENHOUSE... Law Seeks to Ban Misuse of Genetic Testing
By STEVEN GREENHOUSE
Published: November 15, 2009

The most important new antidiscrimination law in two decades — the Genetic Information Nondiscrimination Act — will take effect in the nation’s workplaces next weekend, prohibiting employers from requesting genetic testing or considering someone’s genetic background in hiring, firing or promotions.

http://www.nytimes.com/2009/11/16/bu...s.html?_r=2&em

paula ]]> paula_w http://neurotalk.psychcentral.com/showthread.php?t=108207 http://neurotalk.psychcentral.com/showthread.php?t=108179&goto=newpost Mon, 16 Nov 2009 19:11:07 GMT Some of you are aware of my fixation that PD is caused by long standing bio-mechanical aberrations in our bodies - which demand excess energy ALWAYS... Some of you are aware of my fixation that PD is caused by long standing bio-mechanical aberrations in our bodies - which demand excess energy ALWAYS and thus gobble up our dopamine.

I have noticed over the past 10 years that every change - good or bad - in symptoms is preceeded by a physical event - such as massage, chiro, a fall, etc. you name it.

I recently started seeing 2 chiros. After the 2nd visit my symptoms began to receed...immediately. Subtly but surely. I wrote "better!" in my log as soon as I got home. Over the weekend ALL MY SYMPTOMS began improving significantly. I read a book, comfortably in a chair. Haven't been able to do this in 6 years! Tremor subsided by half. No more pain!. Erect posture effortlessly! Gait normalizing. Slept 6 1/2 hours solid! (Usually 2 hours max) I could go on and on. Everything was easy!

Then my 3rd trip to the chiro reversed all that positive stuff and I started going backwards again. A dozen more trips full of hope that they could find the magic spot again....and alas I am worse than ever. Seriously bad. I am looking for assisted living now.

How I have wished I did not return after the magic 2nd visit. I have no doubt I'd be well on my way to recovery. Sounds unbelievable, doesn't it?

I don't know if it was a particular chiro move, a series in a certain order...or what. But I know what happened...just not how or why.

Clearly w/ these chiros it was a hit or miss deal...and one got it right by accident. People may find all this hard to believe but it happened.

So now what? I don't know. At the very least I wanted to tell this chapter in my PD life to hopefully raise awareness of the body work possibilities.
The only advice I can give is to urge you to stop whatever treatment helps when you notice good things happening...and let the body go with it.

Has anyone experienced anything similar to this? I would love to hear about it. Surely I'm not the only one!

Ibby

:confused: ]]> Ibken http://neurotalk.psychcentral.com/showthread.php?t=108179 http://neurotalk.psychcentral.com/showthread.php?t=108093&goto=newpost Sun, 15 Nov 2009 14:51:13 GMT http://www.1800special.com/ http://www.1800special.com/ ]]> CTenaLouise http://neurotalk.psychcentral.com/showthread.php?t=108093