lucky22

Hi, I am 33 years old and was diagnosed with RSD/CRPS in November 2008. My doctor was very optimistic that we would be able to "treat and beat" it and hopefully get me back to normal. Well, that hasn't been the case. Here we are, a year later, and we're still treating it. The pain is just as severe today as it was then and sometimes I think it's even worse. It's only been in the last couple of months that I have been doing alot of reading on the internet about RSD that I have come to find out that it is incurable. If i'm lucky, one day, it might go into remission, but then it would likely flare up from time to time still. I had no idea what I was facing when I was diagnosed a year ago.

Alffe

Hi Lucky and welcome to NeuroTalk. Here is the link to our RSD/CRSP forum..http://neurotalk.psychcentral.com/forum21.html

I'm sorry for you dx but glad you found us.

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http://www.metanoia.org/suicide/

(Broken Wings)

Welcome to NT

We are a friendly and understanding group of people. We're here for support or to give you advice for what it's worth. Lots of people have found ways to cope with thing challenges you face.

Sometimes it's good to just vent. We understand that too.

RSD/CRPS is not easy to live with. So you don't have to feel bad about feeling bad. We know it is bad!

Let us know if we can help out.

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(Broken Wings)

ali12

Hello and Welcome to NeuroTalk, Lucky22!

I'm sorry to hear that you have been diagnosed with RSD! I've had RSD since I was 12 years old (am now 14) in my left leg and both arms so understand just how hard and painful it is to cope with.

I see that Alffe has directed you to the RSD forum ... hope to see you there soon. There's many great people there who i'm sure will try and help in anyway they possibly can.

If you want to talk, know that I am here for you.

You're in my thoughts.

Alison.

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To the World you may be one person, but to one person, you may be the World.

This is a link to my Blog where I write about my Battle with the illness, RSD and lots of other things!! Please feel free to take a look and write a comment should you wish to do so!
http://messystuffalifewithrsd.blogspot.com/

Darlene

Welcome to NeuroTalk. Great to see you have come to be with our loving group. There are a number of friends will to assist as we can. Just let us know how we can be of any help. We are all here to assist each other as possible.

Again welcome, looking forward to seeing you around.

Darlene

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And now abideth faith, hope, charity, these three; but the greatest of these in charity.

megatrends

Welcome, I am new here as well and have found help for my issues already in just 2 days.

The best knowledge I feel comes from people affected by the diseases we share.

Read all over the place in here ... I have learned a lot.

azoyizes

Hi lucky, and welcome to NT! This is such a great place with many caring and helpful people.

We're glad you found us!

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Maryann

RRMS diagnosed 1991, now SPMS.

Began Tysabri 09/25/2009. Yeah!



Age appears to be best in four things--old wood to burn, old wine to drink, old friends to trust, and old authors to read.