Back in limbo

[knittenkitten]

My MS history is a little unusual. The MRI and other tests I have had usually do not show anything. My symptoms are classic. So, the docs see me when I am not doing well, say I have MS and treat me. When I get better and stay better for a long time they decide I do not have MS and stop my meds. Then, I get sick again. By this time I am so annoyed at my old neuro that I go to a new one and start the cycle all over again. I am now in the do not have MS leg of the cycle.

My PCP is willing to accept that I do not have MS but she knows I have something that the neuros are not finding. So, I am going to the Cleveland clinic tommorrow. I am excited to think I am finally getting an answer but scared I will not. I hope they do not say they do not know what I have either and leave me hanging. Please keep a good thought.

[SallyC]

Hi KK. Good luck at the Cleveland Clinic tomorrow. I've heard good things about them. When you know something is wrong it's best to have answers as to why and I hope you find your answers soon.

Let us know how it goes..

[Kitty]

Good luck at your appt.. Let us know how it went.

[knittenkitten]

I don't relish the 4 1/2 hour drive but I am looking forward to some time to sleep on the way. At least I'll be refreshed when I get there.