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RollCall for PALS

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Unread 09-09-2006, 05:03 PM   #1
BobbyB
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Arrow RollCall for PALS

RollCall

(ALS) Amyotrophic Lateral Sclerosis or (MND) Motor Neurone Disease are referred to as ALS/MND
PALS is short for People (or a person) with ALS.

tell us your name
where your from
when you were dx
anything you want
tell us how your doing
what your doing


Rollenanruf für KUMPEL
llamada del rodillo para los PALS
richiesta del rullo per i PALS
chamada do rolo para PALS
الاسماء يطالبون
友達のためのロールコール
PALS를 위한 검열소집
唱名对友
Roll Call for PALS

please sound off here and tell us how your doing with ALS/MND we would like to hear from you.

bitte weg hier klingen und uns, wie dein Tun erklären mit ALS/MND wir von dir hören möchte.

sonar por favor apagado aquí y decirnos cómo el tu hacer con ALS/MND nosotros quisiera oír de ti.

suonare prego fuori qui e dirci come vostro fare con ALS/MND noi vorrebbe sentirsi da voi.

soar por favor fora aqui e dizer-nos como seu fazer com ALS/MND nós gostaria de se ouvir de você.

يرجي من الصوت ومن هنا نقول ان العمل بها مع تعيين والفرقه واود ان اسمع منك.

ALS/MNDとあなたのすることが私達あなたからいかに聞くことを望むかここに鳴り、私達に言いなさい。

请告诉我们这里良好的产,你做441/我们要多听听你们.
Background on ALS


Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s Disease, is a progressive, degenerative disease of the nervous system. ALS is within the group of diseases called motor neuron diseases (MND), in which specialized nerve cells that control movement of the voluntary muscles gradually cease functioning and die. These specialized nerve cells are called motor neurons. They carry impulses from the brain to the brainstem and spinal cord. The impulses are then carried to the muscles. The muscles respond to these impulses by contracting or relaxing, depending on the desired voluntary movement. In ALS and other motor neuron diseases, the muscle tissue deteriorates from a lack of stimulation by the nerve cells. This results in progressive weakness, atrophy, and often spasticity (excess muscle tone). In motor neuron disease, only the motor neurons are affected, therefore other neurons, such as the sensory neurons bringing information from the sense organs, remain intact and unaffected.
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ALS/MND Registry

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Last edited by BobbyB; 10-23-2006 at 10:22 AM.
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Unread 09-09-2006, 06:17 PM   #2
BobbyB
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hello im Bobby B.
from north carolina,
pals dx/94.
im in a wheelchair 6 yrs.


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ALS/MND Registry

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Last edited by BobbyB; 12-25-2006 at 07:24 PM.
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Unread 09-10-2006, 07:03 AM   #3
alperstein
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Alper Kaya MD
Ophthalmologist
45 M
PALS dx 1990, limb onset
PWC Lifestand LSC (1999), Trach, BIPAP(2004)
Onscreen keyboard (ScreenDoors/Madentec) for typing
Eating, speaking still ;-)
Izmir/Turkey
So far so good ;-)
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Unread 09-10-2006, 09:46 AM   #4
Sharob
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Rob
Pals,dx July 2002
No use of arms/hands,wheelchair,PEG,trache.
Still fighting on!
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Unread 09-10-2006, 10:56 AM   #5
Rama
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Rama Whitlock, female, 56
ALS symptoms appeared in 1977, it took another year to get dxd after the delivery a beautiful daughter. I deteriorated at a steady pace until my diet was radically altered to eliminate dairy, grains, except brown rice, and simple sugars and fats. When I added supplements I stabilized even though symptoms are ready to continue the deterioration any time I don't follow my regimen.
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Unread 09-10-2006, 12:29 PM   #6
joelc
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Joel Cutler, 54
Symptoms started Dec04 or Jan05
DX Aug 05 limb onset. Left hand first then right.
I was monitored and given 2 years. Found Glutathione and still kicking! Deterioration slowed down immensely, was supposed to be immobile Dec05 - still functioning quite well.
Down to 1 finger on each hand to type, but still getting around on my own!
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Unread 10-04-2011, 02:24 AM   #7
kiwicafe
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Default Diet

Quote:
Originally Posted by Rama View Post
Rama Whitlock, female, 56
ALS symptoms appeared in 1977, it took another year to get dxd after the delivery a beautiful daughter. I deteriorated at a steady pace until my diet was radically altered to eliminate dairy, grains, except brown rice, and simple sugars and fats. When I added supplements I stabilized even though symptoms are ready to continue the deterioration any time I don't follow my regimen.
I am really interested to read the dietary issue. How would you or where would you suggest I go for guidance on this issue. Thanks for your post. I am totally new here, Richard.
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Unread 10-17-2011, 10:56 PM   #8
kiwicafe
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Default Diet

many thanks for your posting rama, i am interested in the actual diet, i know i feel much better when I change my diet but I need some guidance, who did you approach? All the best and please, keep posting, Richard.
Quote:
Originally Posted by Rama View Post
Rama Whitlock, female, 56
ALS symptoms appeared in 1977, it took another year to get dxd after the delivery a beautiful daughter. I deteriorated at a steady pace until my diet was radically altered to eliminate dairy, grains, except brown rice, and simple sugars and fats. When I added supplements I stabilized even though symptoms are ready to continue the deterioration any time I don't follow my regimen.
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Unread 09-10-2006, 02:43 PM   #9
magaro
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hello. What this is for? I understand nothing.

Quote:
Originally Posted by BobbyB View Post
hello im Bobby B.
from north carolina,
pals dx/94.
im in a wheelchair 6 yrs.


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Unread 09-10-2006, 02:47 PM   #10
BobbyB
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hola el magaro, espera que todo sea bueno con ti. apenas decirnos sobre se aquí. cómo estás haciendo. es justo dejó el mundo conocernos aquí está esperando la curación. decirnos que seas, de donde tu, cuánto tiempo has tenido als/mnd. gracias BOBBY


nombre de donde tu cuando eras dx/als/mnd cómo el tu hacer y qué el tu hacer drogas, sillón de ruedas, respiradero, clavija él tu del níquel opinión tan qué deseas por favor

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ROLLCALL

tell us your name
where your from
when you were dx
anything you want
tell us how your doing
what your doing
__________________

.

ALS/MND Registry

.

Last edited by BobbyB; 09-10-2006 at 03:54 PM.
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