I'm so sorry you have all these problems.
I too have had RSD for over two years after breaking my wrist after a fall.
I was diagnosed with RSD about 5 months after wrist was casted.
It was swollen, purple and hurt at the slightest touch.
After several courses of prednisone and 8 neverblocks and alot of pain and anxiety medication, it looks a little better and gave me some movement back, but not all.
And even though it looks better, it seems to hurt and burn and swell more and more over time and also is slowly spreading.
During that time I have had two surgeries for endometriosis and hysterectomy, which didn't help with the spread, and
lost one tooth due to an infection in my gums from a failed root canal. I also have stomach problems due to meds and gallstones (which will need to be removed soon), have bed sores and other sores in my ears and mouth and all over my body that don't seem to heal quickly if at all.
I also was recently diagnosed with fibromalagia and osteopenia (bone thinning) in my right hip. It is very painful.
My RSD has spread from my right hand and wrist up to my right shoulder. I cannot move my wrist and have limited movement in my fingers and shoulder.
Now after two years, my left hand is red and swollen and is stiffening up like the right one has. It has also spread down my right leg, knee and foot. They are all swollen and red.
I also get terrible cramps in my left calf, and numbness and tingling in my fingers and toes.
I have had pain in my gums and have had alot of dental work as well.
All I can is some days are better than others, and I try to enjoy the better days as much as I can. On the days that are worse, I usually just curl up in bed all day and watch tv.
Again, I'm sorry you have all these problems. I admire your strength in dealing with it everyday and being able to talk about it. It took me a long time to do that.
I went into deep depression for a while and didn't want to face the world.
Just try to do the best you can each day and pamper yourself. Do something nice for yourself everyday. Whether it be a cup of your favorite tea or snack or maybe a little gift from tv shopping! Funny sitcoms help me too.
The thing that seems to be helping me the most right now is talking to people like you who are going through what I am going through.
I hope maybe I can give back for all the kindness I'm getting from all of you
by helping give advice that has gotten me through RSD and Fibromalygia.
I hope you have as pain free as possible a night too, and I'm always here is you need to talk.
Hope I helped.
Also try to stay warm. The cold of winter is rough on rsd.
Take good care of yourself. You deserve it for all you've been through.
And remember that you're not alone.
Originally Posted by 89danboy
I got rsd from fallen 2 story's breaking my back,shattered my heel & fractured dislocated & broken wrist. I wake up in extreme pain and can't get off the couch or bed until I have a high amount of opiates in my body. Without my pain medicine I would not be over to get out of bed at all. I have bad stomach issues from all the information in my body that cause me to feel sick nauseous.i lost 12 teeth in the last 2 years,all back thank god.had gull bladder &gull stones removed,had a seizure.had a full body rash that looked like big pimples.i get bad cold sweats and skin tempature changes.sometimes I stay in bed for weeks at a time in pain and feeling sick.my body has no testosterone in it,no vitamin d,I feel nauseous after every meal.ingrown nails that are brutal.high blood pressure and heart rate .legs and ankles swell up.lost all my muscle.cant wear cotton shirts ,must be real soft .noise bothers. Me,almost hurts me.i always feel sick and extremely fatigued.all I can do is lay down and try to make my self feel relaxed.but usally I'm just in agony.i just started nasal ketamine .had to beg my dr for 5 months to get it.im on a low dose 40 mgs 2 times a day,I should be on atleast 300 mgs aday.but what are u gonna do.ive had infusions befor ,they did help.so I'm hoping I get relief once I'm on the rite dose.i also take methodone 120 mgs aday & oxycodone 30 mgs x4 . I would like to here the symtoms all ofyou go thru on a daily basis.thank you all & soft huggs