New here and looking for friends!

[SandyRI]

Kim - you are welcome! I can't emphasize enough the importance of getting the right medical care. Since you are in Maryland (and I am guessing that you worked at Dover Downs?), you have access to DC, Baltimore and Philly docs. Research who the best are and try to get in. Perhaps make an appt with Dr. S at Drexel. You will need to wait 18 months or so. FMichael, who posts on this site often, has previously included a link to sites which will help you find board certified pain management docs and board certified anethesiologists. "Ain't So Bad" Pete, another frequent poster, has an excellent neurologost named Dr. Knobler at the Knobler Institute (Pete - please jump in and correct me if I am wrong?) who is located (I think) just outside of Philly in NE Pa. And I am traveling soon from RI to visit Dr. Philip Getson in Marlton, New Jersey.

I made a critical error early in my diagnosis. I wasted the first 6 months of my diagnoses letting a RI pain management doc inject bupivicane and steriods into my cervical spine, my SCM, and my occipal area. I thought because he was board certified and on the teaching staff at Brown University he could be trusted not to cause me any harm. I was so, so wrong. By the time I found a doc to treat me in Boston it was too late, I had a series of stellate ganglion blocks but they only worked short term. I can't lay down on the back of my head because it is too painful and probably always will be. For a while I thought that perhaps I would hire an attorney and go after the doctors that screwed me up so badly - it used keep me "sane" to think that. Now I don't know what I think. Just fighting with workers comp all the time has me worn out, and I care more about getting better and going back to my old job than thinking that I'm going to win a lawsuit and not worry about $ someday. The chances of that happening are likely to be very slim.

You have to take care of yourself. Also - a good PT can help a lot with RSD, I had one for a year and I make sure that I do all the exercises every day. Try to find one that is well versed with RSD or that is willing to research it for you.

The best of luck to you. PLease keep in touch.

XOXOX Sandy

[lostmary]

Kim,

I'll be getting the pain pump trial at the hospital in Silver Spring. It's Holy Cross. It's in Md. Of course, I live in Virginia. it's almost and hr and a half to two hrs drive one way. I sure hope the pain pump work. It's a long drive. Luckly, I'll be in the hospital for the 4 day trial. I'm still waiting to hear when the date will be. I'm hoping for a week or two, but somehow I think it may be a couple of weeks yet. Then I have to wait for the perm pain pump and then the long healing time. But then I'll be able to go back to riding horses and all the things I used to do. That is, if it works. I'm sure hoping

Hugs
Mary

[Jimking]

Originally Posted by lostmary

Kim,

I'll be getting the pain pump trial at the hospital in Silver Spring. It's Holy Cross. It's in Md. Of course, I live in Virginia. it's almost and hr and a half to two hrs drive one way. I sure hope the pain pump work. It's a long drive. Luckly, I'll be in the hospital for the 4 day trial. I'm still waiting to hear when the date will be. I'm hoping for a week or two, but somehow I think it may be a couple of weeks yet. Then I have to wait for the perm pain pump and then the long healing time. But then I'll be able to go back to riding horses and all the things I used to do. That is, if it works. I'm sure hoping

Hugs
Mary

Mary, my wife and I live just outside the Washington Beltway in Virginia. My wife, who has RSD, is from Silver Spring Md. Please keep us posted how the trial goes. My wife has made up her mind about stimulators and doesn't want to take a chance on invasiveness, the pump maybe another story. Good luck!

jim