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Gastroparesis and MS

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Unread 04-09-2010, 01:52 PM   #1
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Default Gastroparesis and MS

I was diagnosed last year with gastroparesis and told it was a permanent condition. I'll have periods of time where I can eat almost normally, even eating nuts, raisins, and ice cream. I've even gained some weight in the last two months.

I'm wondering if your gastro symptoms come and go like others? I had a real bad bout last summer causing the weight loss, pain, discomfort, & nausea for days on end, but since January I have been eating normally. I have meds for it, but don't take them regularly, as I've been feeling pretty normal.

Since I'm really new to this fun ailment, if there's anyone out with gastric issues, I'd appreciate any input. Have you ever had a flare of gastroparesis during a flare of any other symptoms? If so, does IVSM have an impact?
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Unread 04-13-2010, 09:44 AM   #2
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My stomach issues tend to come and go like that. I go through periods where I can be so hungry and then only be able to take a couple of bites and feel full. And then there is the pain that comes after eating these few bites. I also get that nauseous feeling for no apparent reason. I had an EGD done and the GI dr. said the nerves in my stomach are hypersensitive and my stomach goes in to spasms. But again, it comes and goes.

During these times, I pretty much stick with a liquid type diet and things that are easier to digest. I make lots of smoothies with different fruits and veggies. I completely avoid things that are hard to digest - meat, fats, etc. In fact, on a regular basis I don't eat fatty foods as I just can't digest them well.

So, to answer your question, yes my symptoms come and go and act up terribly during a spinal lesion flare and are similar to those of gastroparesis. I don't know if IVSM helps as my dr doesn't give steroids for a spinal lesion flare.
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Unread 04-13-2010, 11:47 PM   #3
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I haven't been diagnosed with gastroparesis, but I have Crohn's and no colon (I have an anastomosis called a j-pouch created out of ilium) . . . and ongoing gastric and intestinal issues. I have been told that when my gut slows down and feels backed up to cut out fats as completely as possible. I go on a liquid diet for as long as it takes, and do abdominal massage (gently) . . . as often my symptoms are due to partial blockages.
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Unread 05-18-2010, 05:43 PM   #4
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I just saw this thread, as I was IN the hospital with gastroparesis when you wrote it.

I too have MS and gastroparesis. They are saying that the IVSM "may" have tripped off my initial pancreatitis, and gastritis and that led me to gastroparesis. I have known for some time that I have a slowed reaction to food, and suffer greatly from constipation.

The more I research, the more I find folks just like us, with MS AND gastro issues. I am scheduled to go for autonomic tests to see if my MS is affecting my autonomic system as well as my central systems.

Im amazed when I google MS and gastroparesis. I find so much! Like the diet from http://www.gicare.com/diets/Gastroparesis.aspx

I hope you are feeling better.
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