DOCTORS & PTs List and saved PT info threads

[Jo*mar]

Smileymichelle,
I placed a copy of your post on the main area of the TOS forum, so more members will see it and reply
- here is the link to it-
http://neurotalk.psychcentral.com/thread156590.html.

[ladylaura418]

Dr. Donohue at MGH Boston has been great thus far. He met with me for an hour and a half for my consultation, and he has been very responsive over the phone as well. Dr. Donohue is a cardiothoracic surgeon but has told me that he does not want to do surgery before ruling out all other options. As a single 24 yo working to pay back extreme college loans, I appreciate that he does not want to do surgery yet, if at all.

Catherine Wee, an OT at Spaulding Rehabilitation Hospital, was also fabulous. I saw her for several appts, but my condition continued to worsen. She is down to earth and compassionate. When I had been referred to other doctors around the Boston area, she called me after a couple months just to check in - I really like her, but I'm just not in a place where PT is helpful.

[nicinboston]

Originally Posted by ladylaura418

Dr. Donohue at MGH Boston has been great thus far. He met with me for an hour and a half for my consultation, and he has been very responsive over the phone as well. Dr. Donohue is a cardiothoracic surgeon but has told me that he does not want to do surgery before ruling out all other options. As a single 24 yo working to pay back extreme college loans, I appreciate that he does not want to do surgery yet, if at all.

Catherine Wee, an OT at Spaulding Rehabilitation Hospital, was also fabulous. I saw her for several appts, but my condition continued to worsen. She is down to earth and compassionate. When I had been referred to other doctors around the Boston area, she called me after a couple months just to check in - I really like her, but I'm just not in a place where PT is helpful.

Hi LadyLaura,
I am a patient of Dr. Donohue as well - he was the one who finally did the right imaging and confirmed I have compression in my thoracic outlet. He recommended a scalene Botox injection for me but we're still working on getting insurance to approve. I too have been really impressed with Dr. Donohue's approach - he seems genuinely interested in helping deal with this condition and was really thorough in our consultation. Best of luck to you!

[Scaredsilly]

I have read this entire thread and may have missed it accidentely but I saw one doctor listed that someone recommended for a VTOS/ATOS surgeon in New York.

Id think since New York has such a high population and is very well known for their good doctors that im not sure why I am having such a difficult time finding a fantastic doctor her In NEw YORK. Anyone recommend any? Thank you !!

[Jo*mar]

Many of the state by state listings were compliled in 2006, a few have been updated when new info was mentioned, but not many.

There really should be some new Drs and surgeons coming along - we hope!

Please add to this list if you do find some good ones.

[rbn4jsus]

http://www.mysurgicalgroup.com/Thora...tSyndrome.html
Dr. John Collins Jr.
Kalamazoo, MI

*Runs a TOS clinic locally.

[OzKira]

Originally Posted by OzKira

This is my specialist who see's a lot of patients with Vascular TOS

Terry Devine (Vascular Surgeon)

158 Lennox St
Richmond Victoria
Ph 9429 5922 (for appointments)

Also practices at Monash Medical Centre Clayton
South Eastern Private Hospital Noble Park
Knox Private Hospital Wantirna

I hope this helps someone in my state

My experience with Mr Devine over nearly 2 years is that he doesn't really look at the patient as a whole. He also was not one to perform tests to see what was happening in the area that TOS affect's nor did he suggest PT or anything else for that matter. Given I have blood clotting associated with my TOS and on blood thinner's there is a lot of things other with TOS patients can do to relieve their area's of paint and discomfort, I have medical restrictions from a lot of these things just in case I have a clot and dislodge it again.

My new specialist is Mr Adrian Ling

http://veinarteryspecialist.com.au/contact

Although he doesn't list TOS as a condition he treats he is very aware of what TOS is and has treated patients with TOS before. I like the fact that he discusses everything with you as a patient rather than fobbing you off like my last Dr did. He also performs amy test's to give him a clearer understanding of what is affected before discussing surgery further.

The physical exam was also more thorough and he was really concentrating on a particular area which is where I experience most of my pain and problems. I got the impression he knew by listening to blood flow but also feeling the structures there that he has a pretty good idea what was going on. My previous Dr refused to do surgery at all where as this Dr has listened to me and about TOS getting worse since diagnosis and wants to investigate further and has discussed that surgery is an option and that when the test's come back we can discuss the options although he is pretty sure surgery is the only option especially given TOS makes me clot and my quality of life is declining and I am not even 45 yet.

I know there aren't many Aussie's in here but this may be useful if there is.

[chel1017]

thank you for the list. I've been referred to wisconsin, I live in Louisiana.
Can't afford the trip. So maybe the dr in shreveport could help, alittle far from home but not as far as wisconsin.

[jkl626]

http://www.instituteofphysicalart.com/ipa/referral/list

This is where my PT studied and was certified. He's great, but dont know about any of the others.

[Iris]

i have a consultation with dr donahue in a few weeks. I wonder why he is not on the master list. also does anyone have any experience with others in ct besides dr low? what about at yale or in new york city?