Sorry... Haven't had experience with this. I did when I was in Art School (university level) have a female model in life class who was losing her subcutaneous fat. She was young...maybe in her 20's. She was going to a teaching hospital complex in Ann Arbor, and just told us this because her body, looked more male than female, and hence she was difficult to draw. Face and hair were feminine but her body looked male.
Some of the students asked her about her issues one day. And we didn't have her often either. This was Art anatomy class and the instructor tried to get her for this class because it was easier to see muscle insertion and definition with her, than most of the males.
(the term was "body landmarks" etc)
She never told us the name, but said it was very rare, and inherited. She never mentioned blood sugar problems either, and didn't really go into it much.