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I need to find a doctor in Ohio who treats RSD

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Unread 01-11-2012, 09:38 AM   #1
one hurting momma
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Frown I need to find a doctor in Ohio who treats RSD

For the past 3 years I have been in severe pain in my right leg. My doctor just finally said that I have RSD and I more then likely had it the whole time. He was giving me pain meds but now he won't give them to me even though my pain level is off the chart. I had to quit my job cause of the pain, I can no longer bend my leg, I have to use a cane when I walk. I feel like jumping off a bridge at times. I have been to 4 doctors who know nothing about RSD and I'm at my wits end. I need to find someone who knows how to help me. I am 29 years old with 3 kids and its hard for me to do anything with them. Someone please help!
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Unread 01-11-2012, 05:45 PM   #2
Rrae
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Welcome to NT!

I am SO very sorry for what you are going thru!
Hang in there, tho, because there are alot of wonderful people here who know exactly what this is and how it affects our lives.
Check out the RSD forum, it has so much good information and everyone there is very caring and understanding. Here's the link to get you there:

http://neurotalk.psychcentral.com/fo...aysprune=&f=21

I hope you can find a doctor who will work with you and get you a better quality of life.....they are out there and there is alot of information on this condition.

It's great that you are here!

Caring,
Rae
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Unread 01-11-2012, 08:00 PM   #3
Abbie
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Smile Hello and Welcome!

Hello One Hurting Mama and WELCOME to NeuroTalk!

I see that Rae has given you the link to our RSD Forum...

You will find a wealth of information and wonderful, kind, and caring people there!!!

I too have RSD 8+years. I am not in Ohio so I can not recommend a doctor. I will suggest maybe a neurologist who specializes in pain. If possible one at a University Hospital...that way he can work with a team of doctors and you can ge the best care possible.

Please feel free to roam around and join in anywhere.
If you have any questions or need any assistance please do not hesitate to ask. Someone will always be around shortly to help in any way that we are able.

I look forward to seeing you around the board.

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Unread 01-12-2012, 01:24 AM   #4
Darlene
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Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, welcome to a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

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Unread 01-17-2012, 10:42 AM   #5
scots ox
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Smile Rsd

I am very sorry to hear about you trouble.I have bodywide rsd compounded by back trouble which sets it off all the time.I hope you can find someone to help you.The British doctors are hopeless blame u for it etc.
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Unread 01-22-2012, 10:25 AM   #6
lauriecrpsmom
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I don't know if this will help,nor have we personally been there,but were once referred to the Pain Center at Cleveland Clinic to see the head of the team,Dr. Stanton-Hicks,by my daughters treating doc in Chicago to confirm her RSD dx. Stanton-Hicks has written articles in pain management medical books in sections pertaining to RSD,mostly in re to block techniques. I do believe you would be able to get your dx there,but am adding a caution here. We were seeing Dr. Lubenow,medical director at Rush Pain Center in Chicago and Stanton-Hicks was his mentor. Rush is VERY spinal cord stimulator oriented [SCS],meaning that after some blocks and meds didn't cause immediate results,the SCS is pushed on every visit. You can say no,but it will be pushed hard. Back then it was a 9hr drive for us and too much for my child to withstand. Your other option would be to seek some valid local support groups in Ohio and get some patient opinions. I would also try the RSDSA website for ideas on seeking local support groups in Ohio.

Finally,don't lose hope! It took 3yrs of pursuit to get a dx and 3 more pain docs to find the right treatment. By then it was in both her legs,yet she was able to achieve 100% remission with conservative treatments,and pain relief enough to do intense PT . Hope this isn't too late to help
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