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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

weight gain and rsd

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Unread 01-27-2012, 01:10 PM   #11
ballerina
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I had lost so much weight on Weight Watchers prior to this RSD spread in 2009, now I have pretty much regained the majority of it since I can't get out there and do what I was doing before, like working out and even walking around the block! It is so frustrating!

I now have a gluten intolerance and one dr told me I was borderline gastroparesis. A lot of the gluten free foods are fattening and the best options, my system can't handle... I have difficulty digesting fruits and veggies...the things that I should be eating!! I have several food allergies too. You would think I would be skinny as a rail, but nope I am far from it...big and swollen!! UGH!!! The meds don't help either....

Nanc
How frustrating to work so hard to get the weight off only to be rewarded with a CRPS spread. Gastroparesis with CRPS is something to be taken real seriously. I cannot tell you how miserable I was with gastro symptoms. For me, the symptoms were so bad that i lost 40 pounds and was so severely underweight that I looked like photos of concentration camp survivors. tDCS knock it right out and none of the symptoms have returned. One time I could not remember what it was like to have no gastro problems. Now that those problems are gone, however, I remember them as though they never left.

Hope this helps!
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Unread 01-27-2012, 02:38 PM   #12
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Quote:
Originally Posted by Nanc View Post
I had lost so much weight on Weight Watchers prior to this RSD spread in 2009, now I have pretty much regained the majority of it since I can't get out there and do what I was doing before, like working out and even walking around the block! It is so frustrating!

I now have a gluten intolerance and one dr told me I was borderline gastroparesis. A lot of the gluten free foods are fattening and the best options, my system can't handle... I have difficulty digesting fruits and veggies...the things that I should be eating!! I have several food allergies too. You would think I would be skinny as a rail, but nope I am far from it...big and swollen!! UGH!!! The meds don't help either....

Nanc
Ugh...that really stinks! I'm so sorry that you have to deal with things like that. My mom has rheumatoid arthritis and suffers from weight problems but she is allergic to fresh fruits, fresh veggies, most kinds of nuts, and shellfish. It would be so hard to try to eat well if you cannot eat the foods that are good for you. I'm so sorry that you have to deal with that. And then to have worked so hard to lose the weigth before only to end up with CRPS...life can play some cruel tricks on us...
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Unread 01-27-2012, 02:46 PM   #13
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My doctor doesn't act to concerned either but now my husband says that I snore which is an indicator of sleep apnea which can be caused by weight gain. So I am defenitly going to bring this up again at my February apt. I am on Neurontin which from what I have read is notarious for weight gain and I believe so is Lyrica. I will try eating better and drinking water. I think Catra maybe on to something by eating smaller meals so my hunger doesn't get out of control.
I've always been a fan of eating throughout the day but was never much of a "snacker" per se. It would be pretty normal for me to eat every couple of hours but instead of eating chips or cookies or something like that I would make myself a sandwich or pop in a small tv dinner or something. I have a very fast metabolism prior to the RSD...could eat anything and just never gain the weight...and I think part of that was because of the way I ate throughout the day instead of 3 larger meals. I've seen things on tv and read some stuff about this...something about how eating throughout the day keeps your system from going in rest/fat storing mode or something. Even just substituting different foods for your snacks (like a sandwhich or a yogurt or whatever) may be helpful. I still allow myself a cheat every now and again (like once a week)...cutting certain things out of my diet completely has just not been possible...but that one little cheat every now and then doesn't seem like it messes up my diet or anything.

Good luck.
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Unread 01-27-2012, 05:30 PM   #14
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I use to be this way until I started having hot flashes around 35. Then the weight pilled on over the next couple years I gained 20 lbs. Then I got rsd and gained another 20-25 lbs. I am going to see about getting put on estrigen to see if this will help. I will try and eat healthy snacks in between meals also. But I tell you I'm craving chocolate just sitting here writing.
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I've always been a fan of eating throughout the day but was never much of a "snacker" per se. It would be pretty normal for me to eat every couple of hours but instead of eating chips or cookies or something like that I would make myself a sandwich or pop in a small tv dinner or something. I have a very fast metabolism prior to the RSD...could eat anything and just never gain the weight...and I think part of that was because of the way I ate throughout the day instead of 3 larger meals. I've seen things on tv and read some stuff about this...something about how eating throughout the day keeps your system from going in rest/fat storing mode or something. Even just substituting different foods for your snacks (like a sandwhich or a yogurt or whatever) may be helpful. I still allow myself a cheat every now and again (like once a week)...cutting certain things out of my diet completely has just not been possible...but that one little cheat every now and then doesn't seem like it messes up my diet or anything.

Good luck.
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Unread 01-27-2012, 08:33 PM   #15
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Ah yes...the chocolate. That's been a tough one and my one cheat a week is usually related in some way to chocolate...or coffee. My boyfriend is terribly mean and has been buying these flavored coffees and creamers that he knows I like and then offers me a cup every day. I almost always turn him down...but once every couple weeks or so I give in...especially if it's cold outside. He's generally really supportive with all the other food changes I've made...but I think he's just getting back at me for getting him hooked on the flavored coffee and creamers. He was always a straight black with nothing in it sort of guy and now (and this is apparently MY fault...whatever) he can't drink his coffee without at least some flavored creamer.
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Unread 01-27-2012, 09:47 PM   #16
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The coffee with flavored creamer. Got to agree that is definitley a breaker. My husband wont go without either so dont feel to bad.
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Unread 02-02-2012, 05:29 PM   #17
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well I gained another pound. All my labs came back normal so I called the gyn and requested estrogen. Maybe my hormones are so out of wack that I am gaining weight. Will try this for 30 days and see if there is a difference.
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Unread 02-02-2012, 06:50 PM   #18
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You know what's really strange? I've been having really bad back spasms a couple days this week and my stomach got HUGE yesterday. I swear...I looked like I was pregnant. Couldn't wear any pants (I was extremely sensitive around the waist) and then today my jeans are falling down and my stomach is back to "normal" (which is still much bigger than it used to be). What IS that? I think it's swelling from the RSD that I get when it flares up bad in my back, waist, etc area. I swear...what RSD has done to my body is just ridiculous and a lot of it is swelling and inflammation I think because it's just in the areas where I have the RSD now. But to change like that from one day to the next...it's just odd.
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Unread 02-02-2012, 08:17 PM   #19
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Catra,

I have heard of fluid retention but that is crazy. RSD does strange things now we can add one more to the list. I have been watching and trying to eat in moderation and only eating apples for snacks but at the end of the day. I am just famished.
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Unread 02-02-2012, 09:37 PM   #20
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Well at least it's gone now. I really do think it's just because of the RSD in that area.

Have you tried maybe having something a little bigger as a snack? I don't know how you feel about salads...but I find a decent sized salad with chicken in it along with chopped up veggies and fruit can be more filling. I can't not eat when I am hungry and putting meat and veggies and fruit in the salad seems to make it more filling. Sometimes I have more fruits, veggies, and chicken than I do lettuce...lol...but it works for me.

Or maybe just trying smaller meals...but meals all the same. Cooking can be very difficult for me but if I am feeling good then sometimes I will make enough food for a few days all at once and then later all I need to do is reheat the leftovers for meals over the next couple of days. It's usually too much for me to cook multiple meals during the day but reheating is usually not too difficult. But stuff I make is much healthier than anything you can buy that is just ready to heat like tv dinners.
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