Welcome to NeuroTalk. I am sorry to hear about your son's injury and struggles. I see you are also pursuing an SSDI application for him.
With the information you have provided, it is hard to offer much help.
Can you tell us a bit more about him? Age, mechanism of injury and type of TBI, other health issues, prior history of head impacts from sports, etc. any medications he is taking,
A common problem from TBI can be the hormone system. It is extremely complex with cascading effects where on problem cascades to many others.
Is the doctor doing a complete hormone panel? How about B-12, D3 and folate? Deficiencies of B-12, D3 and folate can lead to problems with brain recovery.
Regarding the SSDI application, I am not surprised they are doing a wait and see response. There are attorneys who specialize in SSDI so legal aid is not necessarily the best direction. The attorney gets a fee of 25% of back pay up to a limit of $5400. They are not usually required this early in the process. So, has he only had one denial so far? It takes two denials to get out of your state's Disability Determination Service and to the SSDI appeals judge. Denial on the first application is almost the standard policy, especially for someone so early in their recovery.
Other than the sweating and blisters, what other symptoms is he struggling with?
Gluten intolerance seems to be the current rage. Fortunately, it is not catastrophic to remove gluten from his diet, at least for the short term. If he improves, gluten can be slowly reintroduced to see if he has a negative reaction. I have a daughter who struggles with gluten but has some tolerance for it if she is careful. There are other factors that can magnify gluten intolerance, that once addressed, lessen the gluten intolerance.
Let us know how else we can help.
And, try to remember that the brain heals slowly with often a roller coaster ride along the way.
My best to you.
Mark in Idaho
59 years old, retired due to disability, married 34 years, father of three, grandfather of four, Suffered a serious concussion at 10 years old (1965) stopped most driving after concussion at 46 years old (2001), Post Concussion Syndrome/Multiple Concussion/Impact Syndrome with PTSD, immediate/short term visual and auditory memory problems, slowed processing speed, visual/auditory processing difficulties, insomnia, absence seizures, OCD, 14 concussions since first concussion at 8 years old, Taking paroxetine for 14 years and gabapentin for 12 years. Added L-Tryptophan and stopped paroxetine after 3 months of tapering. I currently take 100 mgs of 5-HTP AM, 500 mgs of L-Tryptophan at noon.
As of Nov 15th, Due to high stress issues resulting in PTSD, docs put me on 3 meds. Clonazepam but only for 30 days ) .125 mgs twice daily (Doc presc. .25 mgs 2x daily but half a tablet is good) , citalopram (Celexa), an SSRI , and olanzapine (Zyprexa), an atypical anti-psychotic that usually causes weight gain before bed. I lost over 30 pounds since mid July. It just stopped the weight loss. Took me off the gabapentin. I am feeling better than I have in years.
This great feeling only lasted a month. Back to the same old PCS doldrums.
May 2014, I am off the olanzapine due to a 6 fold price increase. Back on 600 mgs of gabapentin before bed.
I am also taking L-Theanine to help with GABA regulation
"Be Still and Know That I am God" Psalm 46:10