Go Back   NeuroTalk Support Groups > Health Conditions M - Z > Traumatic Brain Injury and Post Concussion Syndrome

Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

TBI and Thryoid condition

Reply
Thread Tools Display Modes
Unread 04-01-2012, 07:25 AM   #1
DebraJeane
Junior Member
 
Join Date: Mar 2012
Location: West Virginia
Posts: 6
Default TBI and Thryoid condition

My son has TBI and has recently gone for an ultrasound and blood work for his Thryoid.

The doctor is believing that his TBI has caused this. He has blister break outs and sweats profusely.

He was also told that he must avoid wheat and/or has a Gluten intolerate condition.

Could this be a possibility?

Results on testing Monday, April 2nd.

Thanks!
DebraJeane is offline   Reply With Quote
Unread 04-01-2012, 12:58 PM   #2
Mark in Idaho
Elder
 
Mark in Idaho's Avatar
 
Join Date: Feb 2009
Location: Mountains of West Central Idaho, USA
Posts: 6,029
Default

DebraJeane,

Welcome to NeuroTalk. I am sorry to hear about your son's injury and struggles. I see you are also pursuing an SSDI application for him.

With the information you have provided, it is hard to offer much help.

Can you tell us a bit more about him? Age, mechanism of injury and type of TBI, other health issues, prior history of head impacts from sports, etc. any medications he is taking,

A common problem from TBI can be the hormone system. It is extremely complex with cascading effects where on problem cascades to many others.

Is the doctor doing a complete hormone panel? How about B-12, D3 and folate? Deficiencies of B-12, D3 and folate can lead to problems with brain recovery.

Regarding the SSDI application, I am not surprised they are doing a wait and see response. There are attorneys who specialize in SSDI so legal aid is not necessarily the best direction. The attorney gets a fee of 25% of back pay up to a limit of $5400. They are not usually required this early in the process. So, has he only had one denial so far? It takes two denials to get out of your state's Disability Determination Service and to the SSDI appeals judge. Denial on the first application is almost the standard policy, especially for someone so early in their recovery.

Other than the sweating and blisters, what other symptoms is he struggling with?

Gluten intolerance seems to be the current rage. Fortunately, it is not catastrophic to remove gluten from his diet, at least for the short term. If he improves, gluten can be slowly reintroduced to see if he has a negative reaction. I have a daughter who struggles with gluten but has some tolerance for it if she is careful. There are other factors that can magnify gluten intolerance, that once addressed, lessen the gluten intolerance.

Let us know how else we can help.

And, try to remember that the brain heals slowly with often a roller coaster ride along the way.

My best to you.
__________________
Mark in Idaho
.


59 years old, retired due to disability, married 34 years, father of three, grandfather of four, Suffered a serious concussion at 10 years old (1965) stopped most driving after concussion at 46 years old (2001), Post Concussion Syndrome/Multiple Concussion/Impact Syndrome with PTSD, immediate/short term visual and auditory memory problems, slowed processing speed, visual/auditory processing difficulties, insomnia, absence seizures, OCD, 14 concussions since first concussion at 8 years old, Taking paroxetine for 14 years and gabapentin for 12 years. Added L-Tryptophan and stopped paroxetine after 3 months of tapering. I currently take 500 mgs of L-Tryptophan AM, 500 mgs noon, and 500 mgs PM.


As of Nov 15th, Due to high stress issues resulting in PTSD, docs put me on 3 meds. Clonazepam but only for 30 days ) .125 mgs twice daily (Doc presc. .25 mgs 2x daily but half a tablet is good) , citalopram (Celexa), an SSRI , and olanzapine (Zyprexa), an atypical anti-psychotic that usually causes weight gain before bed. I lost over 30 pounds since mid July. It just stopped the weight loss. Took me off the gabapentin. I am feeling better than I have in years.

This great feeling only lasted a month. Back to the same old PCS doldrums.

May 2014, I am off the olanzapine due to a 6 fold price increase. Back on 600 mgs of gabapentin before bed.

I am also taking L-Theanine to help with GABA regulation


"Be Still and Know That I am God" Psalm 46:10
Mark in Idaho is offline   Reply With Quote
Unread 04-01-2012, 05:39 PM   #3
DebraJeane
Junior Member
 
Join Date: Mar 2012
Location: West Virginia
Posts: 6
Default Additional information

Thank you for taking the time to give me more of an insight into all of this!

My son is 30 and has always been healthy. He is a pipefitter/welder apprentice-finishing up his final year. As you know-this professional requires strength and durability in all types of weather and conditions. He lives in St Petersburg Fl - therefore - the weather is hot most of the time. When welding he has to wear full gear-hat, welding helmet, welding jacket and gloves. His TBI occurred in September of 2011. He has had previous "blows" to the head while sparring and according to his medical records - he has had blackouts before,

With this injury-we are not sure if he will be able to go back into this field.

His recovery from the head injury as been miraculous! He has short term memory loss and word loss at times. He still has headaches, anixiety and a few bouts of depression.

He is not allowed to work out or do strenuous activities.

At this time-he is on Dilantin for seizures and pain medication (Vicidin) for the headaches.

He has had two painful breakouts - his blisters are on his head, across his face, across his chest and in between fingers. He says that his body hurts all the time when he has this breakout.

He has cut gluton out of his diet...and that has seemed to help. He sweats easily and more than most of us.

I will continue to research the appeal process. I will follow your insight regarding an attorney and how this should proceed. I filed the appeal online and according to his case worker-his file will now be sent to another case worker and a new set of doctors for review. The answer on the appeal shouldn't take too longer (according to case worker). Not sure how many times this can be removed and when to turn this over to an attorney.

I hope that I have answered a few of your questions so that you may understand his case better.

Again........Thank you for your time!

D
DebraJeane is offline   Reply With Quote
Unread 04-01-2012, 10:22 PM   #4
EsthersDoll
Member
 
Join Date: Feb 2011
Location: Los Angeles
Posts: 701
Default

I don't see the reason why your son decided to stop eating gluten listed in your posts.

Although gluten sensitivity is "trendy" right now, a real wheat allergy and Celiac Disease can cause very serious problems if it is ignored - especially when recovering from a brain injury!

My Dr. diagnosed me with a Wheat allergy (and a sesame seed allergy) after sustaining a concussion with a blood test. Before the accident that caused the concussion I never had any problems with wheat or gluten. Now I get hives and I wheeze after eating it which is indicative of a systemic response and that's why my Dr. gave me a blood test for it.

When a person has a systemic response to eating a type of food or after being exposed to a substance they are allergic to it means that toxins are being released in their brain in addition to the physical symptoms that are easily perceived. Unnecessary toxins being released in the brain can not be good for recovering from a brain injury.

If a person has Celiac Disease and they eat gluten it damages their intestines and that prevents them from being able to absorb nutrients properly. They can become malnourished and easily fatigued. And when a person is recovering from a brain injury, they need all the nutrients and energy they can get!

Some people even display systemic and anaphylactic reactions to foods but their blood tests do not show a food allergy - this is known as a "false negative". ("False positives" exist too.) But if someone has a blood test and has a bad reaction to eating food, then they would probably benefit from talking about it with their Dr. and staying away from that food.

If your son and/or his medical practitioner want to experiment with him not eating gluten for no reason then that's his prerogative. But if he has an allergy or is a Celiac, then he should definitely stay away from wheat and/or gluten. And good luck to him in trying - because it was SUPER difficult for me to remember to look for wheat as an ingredient while I was doing very poorly cognitively. And it's in practically everything! It was difficult for me to find alternatives as well. I'm doing a lot better cognitively than I was and I still have trouble with it and I was diagnosed with these food allergies almost a year ago.
EsthersDoll is offline   Reply With Quote
Unread 04-01-2012, 10:58 PM   #5
Mark in Idaho
Elder
 
Mark in Idaho's Avatar
 
Join Date: Feb 2009
Location: Mountains of West Central Idaho, USA
Posts: 6,029
Default

Does he have seizures? Or was the Dilantin prescribed as a precaution?

Dilantin is a powerful drug. Rashes, hives and other skin eruptions are known side effects.

It might be worth trying a different anti-seizure med. My doc switched me to phenobarbital when I could not tolerate Dilantin.

Has he been checked for herpes or herpatic neuralgia?

If he engaged in boxing or martial arts and took hits to the head, he likely has has a large number of sub-concussive impacts. They can cause serious problems, especially when followed by a severe concussion.

Gluten intolerance can be a due to a weak immune system similar to shingles or herpes outbreaks.

Plus, throw in a bunch of hormonal imbalances and "Katie bar the door."

If/when he returns to work, he needs to be sure to follow inhalation safety to the max. The compromised brain is far more sensitive to heavy metals and other toxins. If he does any work with aluminum, he also needs to protect his skin. He likely will always have gloves on so the skin contact can be well managed.


I hope I have not overwhelmed you. I tend to use a fire hose to put out a candle flame.

Other than his financial needs, try to not sweat the delays with SSDI. You are not experiencing anything unusual. It took me three years almost to the day to get approves. The average is 18 to 28 months depending on the office. There was an effort under Pres Bush to hire more case workers and admin law judges, etc but not much has improved. And, some states have staffed their DDS offices with classic moronic bureaucrats.

Sometimes, what helps is knowing the right questions to ask. It can get doctors and others to look outside their usual box.

Keep asking questions. Knowledge is power regarding concussion and brain injury.

My best to you.
__________________
Mark in Idaho
.


59 years old, retired due to disability, married 34 years, father of three, grandfather of four, Suffered a serious concussion at 10 years old (1965) stopped most driving after concussion at 46 years old (2001), Post Concussion Syndrome/Multiple Concussion/Impact Syndrome with PTSD, immediate/short term visual and auditory memory problems, slowed processing speed, visual/auditory processing difficulties, insomnia, absence seizures, OCD, 14 concussions since first concussion at 8 years old, Taking paroxetine for 14 years and gabapentin for 12 years. Added L-Tryptophan and stopped paroxetine after 3 months of tapering. I currently take 500 mgs of L-Tryptophan AM, 500 mgs noon, and 500 mgs PM.


As of Nov 15th, Due to high stress issues resulting in PTSD, docs put me on 3 meds. Clonazepam but only for 30 days ) .125 mgs twice daily (Doc presc. .25 mgs 2x daily but half a tablet is good) , citalopram (Celexa), an SSRI , and olanzapine (Zyprexa), an atypical anti-psychotic that usually causes weight gain before bed. I lost over 30 pounds since mid July. It just stopped the weight loss. Took me off the gabapentin. I am feeling better than I have in years.

This great feeling only lasted a month. Back to the same old PCS doldrums.

May 2014, I am off the olanzapine due to a 6 fold price increase. Back on 600 mgs of gabapentin before bed.

I am also taking L-Theanine to help with GABA regulation


"Be Still and Know That I am God" Psalm 46:10
Mark in Idaho is offline   Reply With Quote
"Thanks for this!" says:
EsthersDoll (04-02-2012)
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Thryoid connection Shelley Autoimmune Diseases 4 05-24-2014 09:02 PM
The most similar condition boytos Thoracic Outlet Syndrome 7 11-15-2011 11:23 AM
New condition??? ConnieS Myasthenia Gravis 5 11-22-2010 05:49 AM
TOS + thryoid Shelley Thoracic Outlet Syndrome 5 09-27-2007 09:12 PM


All times are GMT -5. The time now is 07:59 AM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.


All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy
NeuroTalk Archives